84TH PRIORITY | FEBRUARY 2015 Expanding the Period of PURPLE Crying In Texas Abstract Abusive head trauma (AHT) is a leading cause of maltreatment-related death in infants. AHT is frequently the result of shaken baby syndrome (SBS), which occurs when a parent shakes a baby, often out of frustration with the baby’s intense crying. The Period of PURPLE Crying is a low-cost program gaining popularity across the United States and internationally due to its effectiveness in educating caregivers and improving caregiver responses to crying babies. Due to the vitality of its message and the cost-effectiveness and efficiency of the program, the PURPLE program should be used on a widespread level in Texas hospitals and beyond. Abusive Head Trauma In Infants Over the last decade, child maltreatment has been on a steady decline across the country with Texas following a similar trend. However, in 2013, Texas saw 66,398 cases, the highest number of confirmed cases since 2009. Additionally, although child abuse and neglect fatalities also appear to be on the decline, Texas still ranks near the top of the list, with the third highest number of fatalities in 2013 at 156 and the seventh highest rate of maltreatment related fatalities.i The youngest children continue to be the most vulnerable to abuse, with victims less than one year old to two years old accounting for the largest percentage of victims across all maltreatment types.ii Abusive head trauma is one of the leading causes of infant maltreatment fatalities in the United States, with between 1,200 and 1,400 infants sustaining injuries or dying due to the head trauma annually..iii AHT is frequently the result of someone shaking an infant, a condition commonly known as shaken baby syndrome. Triggers Leading to AHT Excessive infant crying has been cited as the most common trigger for AHT perpetration,iv with infants ages one to three months at the greatest risk.v,vi,vii,xii For this reason, numerous studies have focused on the cycle of infant crying and the response of caregivers in order to determine normal infant development behavior and caregiver reactions. Researchers have identified that there is a “normal crying curve” for infants across cultures (Figure 1). Despite varying caretaking styles across cultures, a “normal crying curve” is universal: an infant cries in a strong, unexpected, and unpredictable increasing/decreasing pattern that is unrelated to his or her needs and/or the environment and that resists consolation. Previously described as “colic,” this pattern of behavior has been redefined as part of normal infant development.xii However, this behavior still challenges and distresses caregivers,xii and is a frequent cited cause of SBS during early infancy (Figure 2). Prevention programs, such as the Period of PURPLE Crying, are targeting these peaks of crying patterns during the first months of life, as they most closely relate with high rates of AHT.viii 2904 Floyd, Suite A | Dallas, TX 74204 | 214-442-1672 | www.texprotects.org 2 Figure 1. Normal crying curve of early infancy (from the National Center on Shaken Baby Syndrome).ix Figure 2.Age-specific incidence of publicly-reported cases of SBS (from the National Center on Shaken Baby Syndrome).iv Additionally, retrospective reviews of diagnosed cases of AHT reveal the importance of prevention strategies that encompass the child(ren)’s entire community, as the alleged perpetrator of AHT is not always the child’s parent. In fact, non-parental perpetrators tend to cause more severe injuries and account for 77% of the cases of children over one year of age experiencing AHT.x Yet studies have consistently shown that for the most vulnerable population, children less than one year of age, biological fathers are overwhelmingly the most common adult perpetrators, followed by partners of parents, biological mothers, and other adult caregivers.x,xi,xii For this reason, programs that are universally implemented at birth within a healthcare Expanding the Period of PURPLE Crying in Texas www.texprotects.org 3 setting and target the child’s entire community of caregivers on educational and coping strategies are most likely to yield the greatest benefits. Economic Cost of AHT Due to the immediate and long-term consequences of SBS/AHT, the children, their families, society, and the government pay a high price. Approximately 25% of all AHT victims die as a result of their injuries.xii For those children that survive, 80% incur permanent disability. Disability may require medical or personal care, placing an additional emotional and financial strain on them and their families.xii,xiii About half of AHT cases have been shown to require inpatient hospitalization. AHT is correlated with greater usage of medical care, inpatient and outpatient services, and prescription usage for several years after the diagnosis, which totals an average of $47,952 per child between the incident and age four.xiv Lifelong estimated costs are about $1 million per case for treatment, rehabilitation, custodial care, and judicial costs.xv In Texas, that totals about $191,000,000 each year. In addition, a recent study determined that the lifetime cost for just a single year of confirmed child maltreatment of all kinds and for all victims in the United States is around $5.9 trillion.xvi Key Components of the Period of PURPLE Crying Due to the identifiable risk behavior (non-accidental shaking) and stimulus (crying) of SBS, most cases of AHT can be prevented.i,viii,x,xi,xii Specifically developed to reduce the occurrence of AHT, The Period of PURPLE Crying is a low-cost, evidence-based primary program that was designed using comprehensive empirical research connecting the crying curve and the triggers and dangers of AHT.xii,Error! Bookmark not defined.,xvii Available in ten languages that can easily be provided to any birthing facility, the PURPLE program is delivered by trained professionals to educate new parents, guardians and the community on infant crying and safety behaviors, in order to reduce AHT.xii,xvii The program is divided into three “doses.” In Dose 1, the parental portion of the PURPLE program consists of a ten-minute DVD and 11-page brochure that employs clear, positive, and multicultural messages viewed in the hospital after giving birth and prior to discharge. Following the viewing, there is a brief three- to fourminute conversation with a trained clinical professional to ensure all questions and concerns are answered during the parent’s initial stay or visit.xii,xvii In Dose 2, the video is taken home and shared with other caregivers or used as a reinforcement, such as in home visiting programs or with physicians and public health practices. Finally, Dose 3 takes the message to the community, through public education and a media campaign on the dangers of SBS and resulting AHT. Evaluation & Benefits The PURPLE program is a relatively low-cost program for prevention of AHT. Ensuring fidelity through specific professional training, the three doses are administered over the course of two years (Figure 3). The after unit cost per DVD is $2 plus initial execution and administrative costs; we estimate the total per unit to be Expanding the Period of PURPLE Crying in Texas www.texprotects.org 4 approximately $4.50 and the total for implementation in 50% of Texas birthing hospitals to be $5 million for two years. Over 30 years of extensive evaluations – consisting of more than 32 longitudinal parent focus groups and randomized controlled trials with 4,400 participants from various incomes, racial and cultural backgrounds – have yielded solid evidence that the PURPLE program can provide much needed education to help change behavior that can prevent AHT-related injury and death to our most vulnerable Texans.xii,xvii,xviii,xix Evidence- Based Outcomes Studies in both the United States and Canada have indicated that: Mothers understood more about normal infant crying; Mothers had increased knowledge of the dangers of shaking infants;xx Mothers increased walk-away behavior when frustrated, especially during periods of inconsolable crying;xxi Parents were more willing to share their education;xxii Knowledge is increased, which suggests preventative modification of harmful behaviors, though reduction of verified SBS occurrences is unknown;xxiii The program is effective for both Spanish and English speaking mothers;xxiv The program may be effective as a secondary prevention program.xxv At this time, the PURPLE program has been implemented at some level in 49 of 50 U.S. States, including Texas (currently implemented in 46 sites across Texas), and in eight of ten Canadian Provincesvii,xxvi The PURPLE program has expanded greatly and currently exists in 800 locations in North America (see Appendix A).xxvii Concluding Thoughts & Recommendations Focusing on prevention methods is the most effective way to protect and promote healthy lives and futures for Texas children. Utilizing The Period of PURPLE Crying can be the first of many prevention programs in a child’s life that sets a child and his or her family on course of healthy development. The Period of PURPLE Crying is cost-effective and efficient, requiring minimal resources and achieving vital results. Strategic plans for reaching families that prefer home births and/or midwives instead of birthing centers or hospitals must also be developed and implemented so that the program can reach these populations as well. When employed in a continuum of home visiting and other prevention programs, the Period of PURPLE Crying can be even more effective. The Nurse-Family Partnership is a home visiting program that has strong supporting evidence to show its positive effects on prenatal health, birth, maternal health and success, and child health and achievements. Similarly, the Home Instruction for Parents of Pre-school Youngsters, Parents as Teachers, Early Head Start, and AVANCE have shown effectiveness for Texas children and families. Utilizing not one but multiple preventative programs, Texas can further assure a child’s healthy development. Expanding the Period of PURPLE Crying in Texas www.texprotects.org 5 Appendix A 2-Year Statewide Implementation Proposed Budget PURPLE Cost Description Doses 1 & 2: Yr 1 (2016) Startup cost includes: planning, training, shipping, storage, materials, and hospital coordinator’s time. Based on UNC implementation cost evaluation. Doses 1 & 2: Yr 2 (2017) includes maintenance cost of materials, shipping, storage, and reduced hospital coordinator time. Based on UNC implementation cost evaluation. Dose 3: Statewide public information campaign (billboard, radio & TV PSAs, Click for babies, printing & publication across major TX cities) Projected Home Total Admin Material Projected Visiting Participants Total Cost/Unit Cost/Unit Births Clients (50% part.) Funding $2.56 $2.00 415,000 23,000 219,000 $998,640 $1.93 $2.00 415,000 23,000 219,000 $860,670 $1,330,000 Project Evaluation and Statewide Coordination/Training $1,840,000 Biennium Total $5,029,310 Expanding the Period of PURPLE Crying in Texas www.texprotects.org 6 Appendix B Map of Implementation of Period of PURPLE Cryingxxvi Expanding the Period of PURPLE Crying in Texas www.texprotects.org 7 References i American Academy of Pediatrics. (2014). Statistics. Retrieved from http://www2.aap.org/sections/childabuseneglect/. ii Department of Health & Human Services. (2012). Child Maltreatment (23rd Ed.). Retrieved from http://www.acf.hhs.gov/programs/cb/resource/child-maltreatment-2012. iii National Center for Child Death Review. (2014). Child Abuse and Neglect Fact Sheet. Retrieved from http://www.childdeathreview.org/causesCAN.htm iv Lee, C. Barr, R. G., Catherine, N., & Wicks, A. (2007). Age-related incidence of publicly reported shaken baby syndrome cases: is crying a trigger for shaking? Journal of Developmental & Behavioral Pediatrics 28(4), 288–293. v Parks, S., Sugerman, D., Xu, L., Coronado, V. (2012). Characteristics of non-fatal abusive head trauma among children in the USA, 2003-2008: application of the CDC operational case definition to national hospital inpatient data. Injury Prevention, (Feb. 23, 2012). vi Parks, S. E., Kegler, S. R., Annest, J. L., Mercy, J. A. (2012). Characteristics of fatal abusive head trauma among children in the USA, 2003-2007: an application of the CDC operational case definition to national vital statistics data. Injury Prevention, 18(3), 193–199. vii Shanahan, M. E., Nocera, M., Zolotor, A. J., Sellers, C. J., & Runyan, D. K. (2011). Education on Abusive Head Trauma in North Carolina Hospitals. Child Abuse Review, 20,290–297. viii Barr, R. G., Trent, R. B., Cross, J. (2006). Age-related incidence curve of hospitalized Shaken Baby Syndrome cases: convergent evidence for crying as a trigger to shaking. Child Abuse & Neglect 30(1), 7–16. ix Barr, M. (n.d.). The relation of crying to SBS. Retrieved from http://www.purplecrying.info/sub-pages/protecting/the-relations-of-crying-to-sbs.php x Scribano, P. V., Makoroff, K. L., Feldman, K. W., & Berger, R. P. (2013). Association of perpetrator relationship to abusive head trauma clinical outcomes. Child Abuse & Neglect, 37, 771–777. xi Esernio-Jenssen, D., Tai, J. & Kodsi, S. (2011). Abusive Head Trauma in Children: a comparison of male and female perpetrators. Pediatrics, 127(4), 649–657. xii Barr, R.. G. (2012). Preventing abusive head trauma resulting from a failure of normal interaction between infants and their caregivers. Proceedings of National Academy of Sciences, 109(2), 17294–17301. xiii National Center on Shaken Baby Syndrome. (2014). Immediate Consequences. Retrieved from http://www.dontshake.org/sbs.php?topNavID=3&sbuNavID=23. xiv Peterson, C., Xu, L., Florence, C., Parks, S. E., Miller, T. R., Barr, R.G., . . . Steinbeigle, R. (2014). The medical cost of abusive head trauma in the United States. Pediatrics, 134(1), 91-99. xv Showers J. Executive Summary. In: Showers, J. Ed. Proceedings from the Second National Conference on Shaken Baby Syndrome. Paper presented at: Second National Conference on Shaken Baby Syndrome1998; Salt Lake City, UT. xvi Perryman Group. (2014). Suffer the little children: An assessment of the economic cost of child maltreatment. Waco, TX: The Perryman Group. Retrieved from http://www.perrymangroup.com/wpcontent/uploads/Perryman_Child_Maltreatment_Report.pdf xvii Barr, R. G. (2014). The Period of PUPRLE Crying: Components of the program. Retrieved from http://www.purplecrying.info/sub-pages/what-is-the-period-of-purple-crying/components-of-theprogram.php. xviii Barr, R. G., Rivara, F. P., Barr, M., Cummings, P., Taylor, J., Lengua, L. J., & Meredith-Benitz, E. (2009). Effectiveness of educational materials designed to change knowledge and behaviors regarding crying and shaken baby syndrome in mothers of newborn infants: a randomized controlled trial. Pediatrics, July 2009. Retrieved from http://pediatrics.aappublications.org/content/123/3/972.abstract. xix Barr, R. G., Barr, M., Fuiwara, T., Conway, J., Catherine, N., & Brant, R. ( ). Do educational materials change knowledge and behaviors regarding crying and shaken baby syndrome in mothers of newborns when delivered by public health home visitor nurses? A randomized controlled trial. Canadian Medical Association Journal, 180(7), 727–733. Retrieved from http://www.cmaj.ca/content/180/7/727.full.pdf+html?maxtoshow=&HITS=10&hits=10&RESULTFORMA T=&fulltext=shaken+baby&andorexactfulltext=and&searchid=1&FIRSTINDEX=0&sortspec=date&resour cetype=HWCIT&eaf. xx National Center on Shaken Baby Syndrome. (2009). Randomized controlled trials on the effectiveness of the PURPLE materials: Parallel studies in the state of Washington (USA) and the province of British Columbia Expanding the Period of PURPLE Crying in Texas www.texprotects.org 8 (Canada). Retrieved from http://www.dontshake.org/pdf/PURPLE-RandomizedControlledTrials.pdf Barr, R., Barr, M., Fujiwara, T., Conway, J., Catherine, N., & Brant, R. (2009). Do educational materials change knowledge and behavior about crying and shaken baby syndrome? A randomized controlled trial. CMAJ, 180(7), 727-733. xxii Laskey, A. Evaluation of the Period of PURPLE Crying through word of mouth. Retrieved from http://dontshake.org/pdf/DrLaskeyEvalPURPLE.pdf xxiii Ibid. xxiv Bradshaw, J. (2010). Period of PURPLE Crying effective in changing knowledge and behavior in a home visiting program supporting high risk, first time mothers (Doctoral Dissertation). Retrieved from http://dontshake.org/pdf/DrBradshawHomeVisitPURPLE.pdf xxv Ibid. xxvi National Center on Shaken Baby Syndrome. (n.d.) PURPLE Program. Retrieved from http://www.dontshake.org/sbs.php?topNavID=4&subNavID=32&navID=664 xxvii Ibid. xxi Expanding the Period of PURPLE Crying in Texas www.texprotects.org
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