Fetal and Infant Mortality Review Programs Improve Community Systems This report is prepared by Jodi Shaefer, RN, PhD, Director and Hanan Abdulahi, Program Specialist National Fetal and Infant Mortality Review Program American College of Obstetricians and Gynecologists National Center for Fatality Review and Prevention< MPHI Acknowledgement and thank you to the many local FIMR programs and state FIMR coordinators who contributed this information. Their dedication and commitment to the community is what improves the health of families. This document was supported, in part, by Michigan Public Health Institute, thru funding from the Maternal and Child Health Bureau, Health Resources and Services Administration Grant #UG7MC28482 Copies of this document are available online at www.NFIMR.org NFIMR report on programs in USA and Puerto Rico, June 2016 1 Table of Contents Background………………………………………………………………………………... 3 2015 FIMR Program Information ……………………………………………….. 4 Cases reviewed and race ……………………………………………………………. 4 Maternal/Family Interview ………………………………………………………… 4 Funding sources, statute and theoretical basis for program……….. 5 FIMR Child Death Review collaboration……………………………………… 6 Actions taken because of FIMR in selected states ……………..………. 7 Training and Support by NFIMR …………………………………………………14 Conclusion …………………………………………………………………………..…….14 Appendix A: Number of FIMR programs and state coordinators…15 Appendix B: Program specific detail …………………………………………. 16 NFIMR report on programs in USA and Puerto Rico, June 2016 2 Fetal and Infant Mortality Review Programs Improve Community Systems* Background FIMR is a community-owned action-oriented, process to improve service systems. It examines medical, non-medical and systems related factors contributing to fetal and infant death at the community level. Consequently, each program reports activities tailored to their community. Data programed in the current database developed by FIMR coordinators, Michigan Department of Health and Human Services and NFIMR provide key demographic information with risk and protective factors. But, it is the rich and unique detail from FIMR programs that tell us how to successfully prevent fetal and infant death. The FIMR approach is unique because cases are de-identified and include a family interview to determine the family’s perspective on factors that may have contributed to the infant’s life and death. The mother is frequently the interviewee and provides the essential consumer view. The family interview yields valuable information about social and environmental aspects surrounding the fetal or infant death. Most communities select the cases for review based on risk and/or population factors. De-identified cases are discussed by a multidisciplinary case review team (CRT) that makes recommendations for system change. A community action team (CAT) that includes community leaders, takes these recommendations to action. State and national Maternal and Child Health (MCH) agencies have examined ways to implement the FIMR process and other MCH morbidity and mortality events to maximize their efforts. Many of these key elements of the FIMR model had been refined by the National Fetal and Infant Mortality Review Program (NFIMR) over the past 25 years. The following report is a summary of 2015 program data from 142 FIMR programs. This summary includes FIMR program information including location of FIMR program, core FIMR functions, and program activities. Outcomes as a direct result of FIMR action from selected programs are included. Some questions from the child death review survey are included. All FIMR programs were requested via Survey Monkey which was open from December 2015 through May 2016. Selected FIMR programs were contacted by phone to validate and clarify responses. Selected aggregate data is presented followed by state specific information. __________________ *Note that this is the first report of FIMR programs documented with information from each program. FIMR programs are in communities with high disparities and most do not have a state coordinator. It is a testimony to their dedication that they continue to improve systems through the FIMR process. NFIMR report on programs in USA and Puerto Rico, June 2016 3 2015 FIMR Program Information 142 of 177 FIMR programs and state coordinators responded from 31 states (80% response rate). Appendix A lists all state coordinators and FIMR programs. Please note that all percentages presented in this document are based on individuals who responded. The lead agency for 81% (91/112, 30 skipped item) of these programs is the county/city health department. Healthy Start is the lead for 13% of programs surveyed. Other lead agencies include perinatal coalitions/networks (5%), and 2% hospital or other. Federal Healthy Start participates in 40% of FIMR programs. Cases Reviewed and Race Eighty-seven percent of FIMR programs provided data on number of cases reviewed in 2015. Programs checked fetal death review (90%), neonatal deaths (75%), Post neonatal deaths (69%) and other (42%). Some programs reported fetal and infant deaths jointly. It is important to note the FIMR programs are the only systematic and comprehensive approach to examine fetal deaths with community level information and prevention recommendations. Table1: Number of cases reported Number of cases Fetal deaths 1,387 Neonatal deaths 1,014 Post neonatal deaths 731 Other* 618 Total cases 3,750 *These data are reported by coordinators of combined fetal and infant death. Child deaths are excluded. FIMR programs focus on diverse populations that have racial and ethnic disparities in their reported fetal and infant mortality. The largest groups served are African American and Hispanic. Very diverse populations are served by each program and included in Appendix B. Maternal/Family Interview The interview is the hallmark of the FIMR process as it provides data on issues surrounding the fetal or infant death in the family/mother’s own words and from that perspective. Some programs report challenges in obtaining maternal/family interviews. However, programs completing maternal/family interviews strongly endorse the value of these data to inform system gaps. Almost two thirds (55%) of FIMR programs report obtaining information from an interview with a family member. Challenges include; difficulty contacting mothers and obtaining permission for the interview, lack of trained interviewers, funding, family refusal, and new programs just beginning the FIMR process. In summary, the success with engaging mothers varies among programs with some rates reaching 100% (Table 2). NFIMR report on programs in USA and Puerto Rico, June 2016 4 Table 2: Selected FIMR programs and percent with maternal interviews. Location Total cases % Maternal Interview Woodland CA 8 50% Wilmington DE 65 30% Plentywood MT 3 100% Oklahoma City OK 120 30% Indianapolis, IN 107 36% Jacksonville, FL 29 40% Omaha NE 26 20% Knoxville TN 102 43% Kenosha WI 21 50% Funding sources, statute and theoretical basis for program Reported funding sources for FIMR programs vary, 39% report funding from county/city health department and 41% from Title V. Q6 provides the detail response for funding. Q6: What are the current funding source(s) for your program? (check all that apply) Answered: 128 Skipped: 14 NFIMR report on programs in USA and Puerto Rico, June 2016 5 Seventy-six percent of programs report that there is a statute to protect FIMR teams. FIMR programs have a theoretical basis for their services, see Q11. The top theories are life course, perinatal periods of risk and the NFIMR publications on cultural competence/bereavement support. Q11: Which of these theories/methods are being implemented in conjunction with FIMR? Check all that apply (answered 102 skip 40) FIMR Child Death Review collaboration Sixty percent of programs report using a two tier system with separate case review and community action teams. Collaboration is the core of FIMR with 83% of programs collaborating with child death review (CDR) (Q9). Staff work on CDR & FIMR and attending each other’s meetings are the top approaches to collaboration followed by leadership in one organization and joint prevention messages. NFIMR report on programs in USA and Puerto Rico, June 2016 6 Q9: What does CDR and FIMR collaboration look like in your community? Check all that apply (Answered: 131 Skipped: 11) FIMR programs report on their specific community education, service system improvement, policy advocacy, improved practices, and professional training. These data are listed for each local program in Appendix B. Additional information about specific actions taken by the FIMR program was also asked. In summary, top actions FIMR programs initiated as a direct result of FIMR data include safe sleep, bereavement support, preconception/interconception care, prenatal care, mental health support and intervention for substance abuse. FIMR programs were asked to provide specific examples of action taken as a direct result of their FIMR program. Selected examples are included to illustrate the variety of approaches FIMR programs have taken to improve the health of their communities. All responses are included in Appendix B. It is exciting and inspiring to read how local programs are meeting the needs of their community with innovation and limited resources. The dedication of FIMR programs to the health of community is impressive. Actions taken because of FIMR in selected states: Yolo County CA: Problem: Persistent and increasing presence of maternal mental health concerns in FIMR Cases. Recommendation: Develop a county wide collaborative to address maternal mental health. concerns. Interventions: Collaborative created. Multiyear action plan created and parts carried NFIMR report on programs in USA and Puerto Rico, June 2016 7 out that include sustainability of the collaborative/stakeholder engagement, resource building and reducing stigma. Outcomes: Successful awareness campaign in 2015 to reduce stigma that is growing in 2016. Blue Dot Campaign will be presented at the national 2016 PSI Conference. Joint Provider Mapping Project in progress by Yolo and Butte counties to assess needs of providers serving women along their life course (primary care, Peds, and OB). Humboldt County CA Problem: Many deaths reviewed included unsafe sleep environments. Recommendation: All babies need a safe sleep environment. Interventions: Movie Theatre Campaign. Outcomes: I do not have data available from 2014 yet. Problem: Maternal depression has been linked with attachment problems in infancy. Recommendation: Improve attachment problems by educating the community on Perinatal Mood and Anxiety Disorders. Interventions: Pec Indman, PhD addressed more than 225 community members at an all-day conference. Outcomes: I am attempting to obtain data specific to Humboldt County on PSI, but have not been able to yet. Alameda County CA Problem: Many gaps in service for perinatal depression screening and referral. FIMR identified that many women are never screened during perinatal period. Recommendation: Started perinatal depression screening and referral project at public health WIC sites. Interventions: Trained all WIC staff in screening and referral set up infrastructure for referral. Outcomes: 10,000 women have been screened at WIC since beginning the project. About 15% screen positive. About 20-30% of those accept referrals. We are working on evaluating the effectiveness of this intervention. Contra Costa County CA: Problem: Lack of referrals to substance abuse treatment, smoking cessation, nutrition counseling and other services was noted in cases of at-risk pregnant women. Recommendation: Care coordination and referrals to specialty services, such as substance abuse treatments, should be made by providers and documented for at-risk mothers and infants should increase. Interventions: Training of PNC providers on completion of importance of state sponsored referrals Outcomes: Review of ongoing cases over the first year. Anne Arundel County MD: We developed a website for both families and providers on issues relating to pregnancy and healthy babies- http://aahealthybabies.org/ We are now working on substance abuse in pregnancy with our birthing hospitals testing for substance abuse- http://aahealthybabies.org/pdf/PAdeathbrief.pdf NFIMR report on programs in USA and Puerto Rico, June 2016 8 Cecil County Health MD: Problem: There is a lack of prenatal care received by the Hispanic population in our community, resulting in poor outcomes, including increased fetal deaths. Recommendation: FIMR Team discussed the possibility of opening a free clinic for prenatal care to the Hispanic population that could not afford it. Interventions: The free clinic is in the planning stage at this time. A plan is being formulated by using prior statistics collected to prove the need and be presented to the CEO of the local hospital as a possible funding source. Will also be presented to other local businesses including OB/GYN providers. Outcomes: Still to be determined, if a free clinic can be established Harford County MD Problem: Significant increase in number of substance exposed newborns (SEN) born at local hospital. Per DSS referrals, our county ranked 4 of 23 in 2014. Recommendation: Develop a post-partum referral process from local hospital discharges of SENs to LHD and DSS. Intervention: Local hospital screens all deliveries and refers 100% of SENs to LHD and DSS. Intervention: LHD implemented a small home visiting program for SENs and mothers to ensure/refer to drug treatment, mental health, medical home for mom and baby, compliance with pediatric care/postpartum exam, parenting, supplies, community resources/safe sleep. Outcome: Local hospital is referring 100% of SEN cases to DSS and LHD. DSS and LHD hold monthly multi-d meetings to review cases and develop plan for care. Chattanooga-Hamilton County TN: Lack of resources for safe sleep space for babies. Provided pack n plays with sheets and Halo sleep sacks to more than 100 individualspartnerships with a wide variety of community agencies to identify those in need. Lack of knowledge of safe sleep practices. Conducted a large scale safe sleep media campaign. Safe sleep messages on buses, in large screens in food court area of mall, pre-show at 2 local movie theaters, on screen in department of motor vehicle locations in the county. Reduction of women smoking while pregnant needed. Partnered with Baby and Me program to promote and offer program in our community. Lack of education regarding prenatal care information and child/infant care. Promotion of Text4Baby program. Lack of information and promotion of kick counting/fetal movement monitoring in pregnancy. Promotion of Count the Kicks education/information and app. Communication issues between providers and with pregnant mother. Developed prenatal passport and distributed to all OB providers in the county. Louisiana: Problem: Growing number of NAS cases in Louisiana and a sense that legislature was going to get involve. Recommendation: Intervene so any decisions made by legislature would be informed and promote the wellbeing of Louisiana's families. Intervention: A study resolution passed legislature in 2015 granting permission for the Perinatal Commission on the Prevention of Infant Mortality (the State-level FIMR action body) to conduct a study resolution on NAS. Outcomes: Study will be complete in March 2016. NFIMR report on programs in USA and Puerto Rico, June 2016 9 Jacksonville FL: Increase in sleep related deaths in homes where a crib and basinet were available. A limited survey was done to determine the reason parents were sleeping with their infants. The results of the survey indicated the parents felt "safer", we are expanding our survey to determine the population's definition of "safe sleep" and to determine the context of "safe" i.e street violence, rodents/pests or mother's comfort. In the meantime, we have been able to target education to overcome barriers to the infants not being placed in their own beds Miami FL: Problem: Insufficient bereavement support services for families who experienced a pregnancy or infant loss. Recommendation: Implementation of bereavement programs at hospitals and increase in bereavement support services Interventions: Training of community members (hospital staff, local organizations, general community) on Perinatal Bereavement. Outcomes: Between July 2011 and December 2015, our program conducted twenty-one (21) perinatal bereavement professional development seminars attended by four hundred seventyeight (478) individuals Capitol Area Health Start Coalition, FL FIMR recognized a need for preconception health and community education to African American girls, focusing on the importance of personal hygiene, healthy lifestyles and proper nutrition and has put a program, STRONGER Girls, to address these issues. It is currently at one school in a predominantly African American neighborhood. It is hoped that with additional funding, it can be expanded to other schools. Healthy Start Coalition of Hardee, Highlands, and Polk Counties FL: Problem: There was an increase of women presenting to their obstetrician or the local hospital's emergency rooms with issues pertaining to dehydration. Recommendation: Provide the obstetricians, hospitals, and home visitors educational resources and tools to promote the importance of water consumption and staying hydrated during pregnancy. Intervention: When teaching the pregnant women about hydration during pregnancy providers and home visitors would have a visual tool to utilize with the teaching. Outcomes: The women presenting to obstetrician offices and local hospital emergency rooms for dehydration decreased. Problem: There were issues presented during the CRT findings dealing with access to prenatal care for minority pregnant women. Recommendation: The committee created an educational tool to input in the local newspaper and at all local churches that had high population of minorities present. This tool provided information for ways women could access prenatal care. In addition, committee members met with the local transportation committee and implemented a bus stop near a local provider that was needed. Outcomes: There was an increase in appointments completed for the local providers. NFIMR report on programs in USA and Puerto Rico, June 2016 10 Southern NJ Perinatal Coalition: Problem: Maternal Obesity reported in 43% of cases Recommendation: Due to lack of one to one nutritional support in PNC sites (only group at WIC) increase involvement of Nutritional education at PNC sites by SNAP Ed and education to Home Visiting programs in County Outcomes: SNAP Ed in place in FQHC's and Home visitors trained. We will continue to monitor rates. Marion County Health Department IN: Problem: Need for knowledge of home visitors about signs & symptoms of Neonatal Abstinence Syndrome. Recommendation: NAS speaker for in service of signs & symptoms of NAS Intervention: Planning of in service for home visitors of three community programs Outcomes: Continued assessment of home visitor needs for substance use assessment and referrals for treatment options. Chicago IL: Problem: No perinatal loss support group on south side of Chicago. Recommendation: Through a focus group meeting of parents, who had experienced a loss, the need for a support group on the mid-south side of Chicago was discussed. From this discussion it was determined that a support group was indeed needed. Intervention: Monthly support group meetings at one of the local charter high schools was started. Outcome: Monthly meetings held for one year at the local high school at no charge. One year later the school wanted to charge a rental fee for the space. The meeting site was changed to the hospital at no cost. Due to lack of staff to support the monthly meetings, meetings were changed to meet for Mother's/Father's Day and October Day of Remembrance. Families were referred to other support groups on the north, west side of Chicago and south suburbs. A graduate student who lives on the south side (Schweitzer Fellow) had experienced a fetal loss and wanted to be involved in working with families who had also experienced a loss. She was referred to FIMR from one of the north side support groups housed at a level three hospital. Through her networking with other agencies and community organizations, two meeting sites were located. The first meeting was December 12, 2015 at a local neighborhood community center. The Mother's/Father's Day and October National Day of Remembrance activities will continue along with the support group meetings. Washoe County NV: The Washoe County FIMR CAT Team is assisting with updating the resource directory (211) through the MCH coalition. In addition, efforts have been made to implement a media campaign to encourage early and regular prenatal care. The Community Action Team has initiated working with the District Attorney and hospitals to devise a system to collect baseline data that can be utilized to help develop a plan to address the issue of fetal drug exposure. The FIMR annual report was distributed to the FIMR Case Review Team and the Community Action NFIMR report on programs in USA and Puerto Rico, June 2016 11 Team. The report was also shared with the Maternal Child Health Advisory Board and the Washoe County District Board of Health. Evaluation of the actions are unavailable at this time as we are in the beginning phases of implementation. Canton Ohio: Problem: Lack of safe sleep education in the hospitals. Recommendation: Re-educate nurses on safe sleep and provide an education check list prior to mother’s discharge from the hospital. Interventions: Both local hospitals provide uniform safe sleep education and sleep sacks prior to mother and babies discharge. Problem: Late prenatal care and poor outcomes. Recommendation: Push for and increase on centering pregnancy care. Interventions: Local push to increase enrollment in centering prenatal care at one local hospital. The other local hospital is working to set up a centering pregnancy care program Missouri: We have established a collective impact initiative in our community called Flourish St. Louis to address infant mortality by bringing diverse sectors together in new ways. FIMR will help provide data and critical information about factors contributing to infant and fetal deaths that can lead to best practices and adoption of key policies. Dallas Texas: Problem: Mothers reporting a desire and need for more consistent prenatal education. Recommendations: Find and promote existing prenatal education in the community. Intervention: Promote the text4baby app through the Community Action Network (DHS version of CAT). Outcome: Review of text4baby statistics showed increase of users by 1600% from 52 to 830 individuals in a 6-month period. The county was recognized for the most participants in the state of Texas. Problem: 51% of FIMR mothers were overweight and of that number 62% were obese. Recommendation: Collaborate with providers at a women's community clinic to provide screening, education, care coordination and referrals to specialty services. Intervention: Create a program at women's community clinic to screen for obesity, provide education, follow-up and care coordination through the use of the "Someday Starts Now" tool. Outcome: Ongoing, since the beginning of the program six months ago. Anaconda Deer Lodge County Public Health, MT Problem: Lack of referrals and resources for parenting skills, substance abuse/cessation, at risk population factors. Recommendation: Care coordination, create and coordinate referrals among resources, establish Parents as Teachers home visiting program, and other home visiting programs; Interventions: Training of PCP, other community organizations on referral system and importance of programs. Outcomes: Starting to build home visiting culture with increase in referrals. NFIMR report on programs in USA and Puerto Rico, June 2016 12 We are a high risk community which is starting to build a system of programs and resources to reduce social determinants of health and other risk factor. Mississippi Department of Health Problem: Lack of referrals by providers to Family Planning through the health department. Recommendation: All women in prenatal classes and postpartum are referred to Family Planning. Interventions: Training of PNC providers at every CRT meeting. Outcomes: Review of ongoing cases show an increase in referrals to FP as noted on the medical records. Problem: Initial chart reviews in 2012 showed High rates of SIDS cases. Recommendation: FIMR RN review with coroners to verify SIDS vs asphyxia/overlay. Interventions: Proposed expanded trainings of coroners at state meetings; met with 12 county coroners and their assistants on a quarterly basis first two years. Met with state Medical Examiners. Outcomes: Cases are correctly designated. Problem: Lack of consistent Infant Safe Sleep information being given to new parents/grandparents/foster parents. Recommendation: Collaborate with MS SIDS Alliance to provide standardization of training. Interventions: Nine delivering hospitals visited in collaboration with MS SIDS Alliance to provide standardization of training. MS SIDS Alliance provided public recognition of hospitals completing the following: All MCH hospital staff trained with the NICHD/March of Dimes CE program; All parents to view the NICHD Infant Safe Sleep video and sign form acknowledging that they saw DVD (or declined). Outcomes: All 10 hospitals completed the above; FIMR involved with public recognition of 2 of the hospitals. MS State office also providing books for all new parents on safe sleep. Interventions: Trainings completed; parents instructed and viewed DVDs. Outcomes: SUIDs decreasing, although much still to do. Problem: Public awareness of infant safe sleep lacking. Recommendation: Conduct a one-day CE Infant Safe Sleep Conference. Interventions: Conference conducted in November 2014, 165 attendees included nurses, social workers, faith based, community leaders, foster parents, child care workers. OUTCOMES: Train the trainer programs continuing; faith based meeting with 8 faith leaders trained and provided with pack n plays. Puerto Rico: Problem: In the 2009-2011 reviews 69% received early prenatal care. Recommendation and Intervention: By recommendation of the FIMR Review Team, findings and recommendations were shared in presentations to health care providers in 2 main conferences. OUTCOMES; Upon review of the 2012-2015 cases there was an increase to 89% receiving prenatal care. PNC in PR has improved over the years. By 2014, VS data shows that about 86% of live births in PR, their mothers initiated PNC during the first trimester of pregnancy. Average NFIMR report on programs in USA and Puerto Rico, June 2016 13 Annual Percent Change (AAPC) trend analysis shows a significant increase of 0.6% since 2005 (81.5%). Training and Support by NFIMR NFIMR publications, list serve, and website are described as very helpful. Current FIMR resources provide valuable information for programs. Peer to peer communication between programs was identified as a need and NFIMR provided that connection. Site visits by the NFIMR director is viewed as extremely helpful, informative, and greatly appreciated. FIMR programs specifically requested regional and/or national meetings to network, discuss local issues and improve practice. Additional materials on funding and sustainability for local programs was requested and posted on the NFIMR website. Programs are looking forward to the final database. Question 40 lists the roles of NFIMR. Q40: Which of the following needs have been addressed by NFIMR? Conclusion FIMR programs report numerous examples of how FIMR is effective in addressing many of the identified contributing factors to fetal and infant mortality in their communities. Utilizing an anonymous case review approach where committee members represent an interdisciplinary team yields a wide range of recommendations for prevention that can be implemented by the CAT and converted into action. The FIMR data driven approach assists communities to address high disparity in these deaths. Finally, it was Tip O’Neill, former Speaker of the United States House of Representatives who is most closely associated with the phrase, “all politics is local”. This phrase also applies to decreasing fetal and infant mortality disparities. It is the local FIMR program that identifies system gaps and mobilizes the community to own and fix the problems. This is an effective approach when counting does not change the numbers. NFIMR report on programs in USA and Puerto Rico, June 2016 14 Appendix A: Number of FIMR programs and state coordinators State Coordinators Jared Parrish Amy Stratton Mari Tylan Joan Kelley for Anne Pedrick No state coordinator No state coordinator Rhonda Brown No state coordinator Gretchen Martin No state coordinator Robin Gruenfeld No state coordinator No state coordinator Latoya Hill Alison Whitney Jeff Spitzley Michelle Chiezah No state coordinator No state coordinator Kari Tutwiler No state coordinator Margaret Gray Rebecca Gonzales No state coordinator No state coordinator Andrea Filio No state coordinator No state coordinator Rachel Heitmann, April Kincaid transition No state coordinator Megan Kimberly No state coordinator Katie Gillespie Abby Collier No state coordinator No state coordinator Total programs State AK AL CA DE CO DC FL IL IN KS LA KY ME MD MD MI MN MS MO MT NE NJ NV SC SD OH OK PA TN TX UT WV WI WI WY PR Number of FIMR programs 1 2 16 2 1 1 16 1 4 5 9 1 1 21 13 2 2 2 34 2 3 1 1 2 9 3 1 5 3 1 1 7 1 1 175 NFIMR report on programs in USA and Puerto Rico, June 2016 15 Appendix B: Program specific detail State coordinators and local FIMR programs are listed in this report. Seventeen of 31 states have a state coordinators. Amy Stratton is the Alabama state coordinator. Name: Amy Stratton Organization: ADPH State: AL Which Agency leads the coordination of your FIMR program?: Regional Perinatal Network/Prenatal/Perinatal Coalition Do members of a federal Healthy Start participate in your FIMR team(s)?: Yes Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR collaboration look like in your community? Birth and death records are obtained from the Center for Health Statistics and shared among the CDR and FIMR programs. Programs work together through CoIIN efforts. Which of these theories/methods are being implemented in conjunction with FIMR?: Life Course Theory, Perinatal Periods of Risk Statute to protect FIMR programs: Yes Is the program currently reviewing cases? : Yes In what year did Case Reviews first begin? : 2009 Approximately how many cases do you review in 2015 by category?: Fetal Deaths: 50 Neonatal Deaths: 100 Post neonatal Deaths: 100 Percentage of Interview: 10% Two tiered system: Yes Please tell us more about your Community Action Team. The CAT is: Is Regionally based with members that represent many partnering organizations and professions. For example, social workers, education, nurse family partnership, community advocates, etc. Some of the CATS are conducted in collaboration with other groups. For example, Children's Policy Councils, Breastfeeding coalitions, etc. Community Education: Conduct a media campaign to encourage early and continuous prenatal care Conduct a media campaign to promote family planning or STD screening Conduct a media campaign to address disparities in infant health Promote breastfeeding, hold a town health fair, Develop culturally relevant health education materials, Meet with community based organizations, Publish an annual FIMR report, Other (please specify) Address unsafe sleep. Service Systems Improvement: Develop a 24/7 prenatal hotline, Eliminate a gap in MCH services, Improve referral patterns among agencies, Partner with local MOD Prematurity Campaign, Streamline MCH Medicaid application processes. Policy/Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Report the FIMR findings to the State MCH Director. Improved Practices, Programs, and Policies: Initiate or expand public health case management, Expand hospital quality assurance standards, Implement screening for smoking. Professional Training: Conduct provider training on prematurity/preterm labor management NFIMR report on programs in USA and Puerto Rico, June 2016 16 Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement SIDS training programs, Develop a community resource directory. Actions taken because of FIMR: PROBLEM: Pre-existing medical conditions such as asthma, hypertension, diabetes, mental health disorders, obesity, etc. existed in 83.3 percent of all review FIMR cases in 2013. RECOMMENDATION: Limited case management and referral to a medical home for the approximately 25 percent of women who remain on full Medicaid after their 60 day post-partum visit and who have ever experienced and adverse pregnancy outcome. INTERVENTION: Social Work Case Management protocol and referral process established and enacted statewide. OUTCOMES: Since February 2013 there have been more than 1,500 referrals for ICC Case Management with more than 1,000 of these mothers accepting services. Services provided include connecting mothers with a medical home, connecting infants with a primary provider, and providing education teaching, resources, and referrals as needed. PROBLEM: Non-medically indicated early elective deliveries prior to 39 weeks gestation RECOMMENDATION: Work with collaborators statewide to educate providers about the increased risks for mothers and infants. Collaborate with the Alabama Hospital Association to encourage delivering hospitals to have a "hard stop" policy to address EED. OUTCOMES: 88 percent of hospitals with an EED rate of zero from July 2014 through April 2015. Ethnic Populations: American Indian/ Alaska Native (Please specify 1 tribes/nations) Asian (Please specify country of origin) 1 Black/ African American (If specific culture, please name) Mother 46 Father 26 Pacific Islander (Please specify if Native Hawaiian, <1 Guamanian, Samoan or Other) Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto 10 Rican, Cuban, Descendants of Spain, Central and/or South American) White (Please specify country of origin) Mother 46 Father 32 Other (please specify) < Asian Indian, Chinese, Filipino, Korean, Other Asian, Two or more races Special Populations: No Population in your FIMR catchment area: Total population in the catchment area: Statewide Total number of live births: (2014) 59,532 Total number of fetal deaths: unknown Total number of infant deaths: 517 Annual Budget: 1.1 million How many funded staff are on the state level?: 6 How many in-kind staff are on the state level?: Administrative Asst. (25%), Data Analyst (25%), Nurse Coordinator (contracted) What are the functions of the state program?: Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: Reviews local findings, Make formal recommendations If yes, what are the functions of the board?: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 17 Sam Hyde is the former Alaska state coordinator & Jared Parrish is the current. Name: Sam Hyde Organization: State of Alaska-Section of Maternal Child and Health State: Alaska Which Agency leads the coordination of your FIMR program?: Data not provided Do members of a federal Healthy Start participate in your FIMR team(s)?: Our community does have a federal Healthy Start, but they do not participate in FIMR Reviews with FIMR program participation: Data not provided What does CDR and FIMR collaboration look like in your community?: Data not provided Which of these theories/methods are being implemented in conjunction with FIMR?: Statute to protect FIMR programs: No, we have not had great experiences trying to get CDR/FIMR programs put into statute Is the program currently reviewing cases? : No In what year did Case Reviews first begin? : Data not provided Approximately how many cases do you review in 2015 by category?: Fetal Deaths: 0 Neonatal Death: 4 Post neonatal Death: 25 Percentage of Interview: 0 Two tiered system: No Please tell us more about your Community Action Team. The CAT is: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Improved Practices, Programs, and Policies: Data not provided Policy Advocacy: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: American Indian/ Alaska Native (Please specify tribes/nations) 14.8 (Alaska Native) Asian (Please specify country of origin) 6.1 Black/ African American (If specific culture, please name) 3.9 Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) 1.3 Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 6.8 White (Please specify country of origin) 61.9 Special Populations: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: 0 How many funded staff are on the state level?: 0 How many in-kind staff are on the state level?: 0 What are the functions of the state program?: 0 Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 18 Maria Jocson is the former California state coordinator and Mari Tylan is the current coordinator. Name: Maria Jocson Organization: California Department of Health State: CA Which Agency leads the coordination of your FIMR program: State Department of Public Health, MCAH Division, coordinates the implementation of local FIMR programs. Do members of a federal Healthy Start participate in your FIMR team(s): Local FIMR Programs may have participation from Health Start entities. Reviews with FIMR program participation: Local FIMR programs may participate in these reviews. What does CDR and FIMR collaboration look like in your community: Depending on the local FIMR program, there will be varying degrees of CDR and FIMR collaboration. Which of these theories/methods are being implemented in conjunction with FIMR?: Life Course Theory, Perinatal Periods of Risk, NFIMR Publications on Cultural Competence/ Bereavement support Statute to protect FIMR programs: Yes Is the program currently reviewing cases? : Yes In what year did Case Reviews first begin? : 1991 Approximately how many cases do you review in 2015 by category?: 502 fetal and infant deaths Percentage of Interview: Yes Two tiered system: Yes Please tell us more about your Community Action Team. The CAT is: Depending on the local FIMR program, the CAT may be developed solely for FIMR, part of an existing coalition or advisory group, or a combination of the two. Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to promote prenatal alcohol and drug cessation, Conduct a media campaign to promote family planning or STD screening, Conduct a media campaign to address disparities in infant health, Conduct a media campaign about risks of prematurity, Promote breastfeeding, hold a town health fair, Hold a FIMR town meeting, Develop culturally relevant health education materials, Meet with community based organizations, Publish an annual FIMR report. Service Systems Improvement: Develop a 24/7 prenatal hotline, eliminate a duplication of MCH services, eliminate a gap in MCH services, Eliminate a gap in family planning services, Improve referral patterns among agencies, Improve bereavement referral services, Implement “one-stop-shopping” prenatal care, Partner with local MOD Prematurity Campaign, Improve/develop transportation routes to MCH services with the City or County Transportation Department, Streamline MCH Medicaid application processes. Improved Practices, Programs, and Policies: Initiate or expand public health case management, Expand hospital quality assurance standards, Expand services to homeless women and children, Expand services to pregnant substance abusers, enhance services to bereaved families, Expand family planning services, Implement standardized prenatal risk assessment, Improve cultural competency protocols, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression. Policy Advocacy: NFIMR report on programs in USA and Puerto Rico, June 2016 19 Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH, Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis Report the FIMR findings to the State MCH Director. Professional Training: Conduct provider training on prematurity/preterm labor management Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement cultural competency training, Implement SIDS training programs, Develop a community resource directory, Implement bereavement training, Implement cultural competency assessment for FIMR team members. Actions taken because of FIMR: Objective: Increase preconception health knowledge among teen population in San Diego County Intervention: From Sept. 2012-Aug. 2014, over 7,500 girls (target population 11-18 years old) received a Being Healthy Teen Wheel through schools, clinics and community-based organizations in San Diego County Outcomes: Evaluation surveys (826 received) showed that 88% were able to incorporated wheel information into routine activities; 92% strongly agreed/agreed that wheel was culturally and linguistically appropriate; 100% strongly agreed/agreed wheel helped with discussion of healthy behaviors/lifestyle choices Ethnic Populations: Data not provided Special Populations: Yes, African American, Native American, Asian American populations are some examples, depending on the local FIMR program Population in your FIMR catchment area: Question will be answered by local FIMR programs individually Annual Budget: Approximately $500,000 How many funded staff are on the state level?: 3 How many in-kind staff are on the state level?: varying number What are the functions of the state program?: Technical assistance to local teams, Coordination of local teams, Training of local teams, Data collection and reporting. Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: No If yes, what are the functions of the board?: Data not provided Name: Carole Mcgregor Organization: Alameda County Public Health State: CA Approximate cases reviewed: Reviews with FIMR program participation: Other SIDS review What does CDR and FIMR look like in your community? Currently there is no collaboration , Staff works on both CDR and FIMR , Members attend each other's meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 20-30% Community Education: Meet with community based organizations, Publish an annual FIMR report, NFIMR report on programs in USA and Puerto Rico, June 2016 20 Public information campaign to promote safe surrender of infants who might otherwise be abandoned Service Systems Improvement: Eliminate a gap in MCH services, Improve referral patterns among agencies, Improve bereavement referral services Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Initiate or expand public health case management, Enhance services to bereaved families, Implement screening for postpartum depression Professional Training: Actions taken because of FIMR: Problem: many gaps in service for perinatal depression screening and referral. FIMR identified that many women are never screened during perinatal period. Recommendation: Started perinatal depression screening and referral project at public health WIC sites. Interventions: trained all WIC staff in screening and referral set up infrastructure for referral. Outcomes: 10,000 women have been screened at WIC since beginning the project. About 15% screen positive. About 20-30% of those accept referrals. We are working on evaluating the effectiveness of this intervention. Ethnic Populations: American Indian/ Alaska Native (Please specify 0 tribes/nations) Asian (Please specify country of origin) 20% Black/ African American (If specific culture, please name) 35% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American)25% Foreign-Born/ Immigrants 10% Other (please specify) 1 mixed Caucasian/AA Special Religious or Cultural Subgroups: Yes, Muslim Population in your FIMR catchment area: Total population in the catchment area: 1,579,000 in 2013 Total number of live births: 19,050 in 2013 Total number of fetal deaths: 82 Total number of infant deaths: 69 Annual Budget: 20,000/year Name: Sara Hernadez-Singh Organization: County of San Bernardino Dept of Public Health State: CA Approximate cases reviewed: Fetal Deaths: 3 Neonatal Deaths: 3 Post neonatal Deaths: 9 Reviews with FIMR program participation: Other SIDS review What does CDR and FIMR look like in your community? Cases are triages into FIMR or CDR Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: Parents refuse to accept interview and there are no funds for incentives. NFIMR report on programs in USA and Puerto Rico, June 2016 21 Community Education: Promote breastfeeding, Develop culturally relevant health education materials. Service Systems Improvement: Data not provided. Policy Advocacy: Other, Develop policy for hospitals to use. Improved Practices: Data not provided. Professional Training: Implement SIDS trainings programs. Actions taken because of FIMR: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: No Annual Budget: Data not provided Name: Elaine Anthony Organization: Kern County Public Health Services State: CA Approximate cases reviewed: Fetal Deaths: 25 Neonatal Deaths: 25 Post neonatal Deaths: 25 Reviews with FIMR program participation: Child Death Review Team What does CDR and FIMR look like in your community? Currently there is no collaboration, Members attend each other’s meetings, and Prevention recommendations are shared. Statute to protect FIMR teams: No Two-tiered system: Yes Percentage of interviews: 50% Why interview is not done: Unable to locate the parents because they are either homeless or moved. Community Education: Promote breastfeeding Service Systems Improvement: Improve bereavement referral services Policy Advocacy: Discuss findings with Public Health Administration to collaborate on ways to educate the public regarding infant mortality. Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: FIMR case reviews make community partners aware of ongoing trends and barriers to healthy outcomes for infant’s due to perinatal women's ability to attain prenatal care. Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 874,589 Total number of live births: 14,552 Total number of infant deaths: 7.0/1,000 Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 22 Name: Natalie Berbick Organization: Contra Costa Health Services State: CA Approximate cases reviewed: Fetal Deaths: 14 Postneontal Deaths: 1 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Members attend each other's meetings, Prevention recommendations are shared. Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Promote breastfeeding and meet with community based organizations. Service Systems Improvement: Eliminate a gap in MCH services , Improve referral patterns among agencies , Improve bereavement referral services. Policy Advocacy: Report the FIMR findings to the State MCH Director Develop a policy in collaboration with City or County law enforcement offices or emergency services Improved Practices: Initiate or expand public health case management , Enhance services to bereaved families. Professional Training: Implement SIDS training programs. Actions taken because of FIMR: PROBLEM: Lack of referrals to substance abuse treatment, smoking cessation, nutrition counseling and other services was noted in cases of at-risk pregnant women. RECOMMENDATION: Care coordination and referrals to specialty services, such as substance abuse treatments, should be made by providers and documented for at-risk mothers and infants should increase. INTERVENTIONS: Training of PNC providers on completion of importance of state sponsored referrals OUTCOMES: Review of ongoing cases over the first year Ethnic Populations: Asian (Please specify country of origin) 40% Black/ African American (If specific culture, please name) 10% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 20% White (Please specify country of origin) 20% Foreign-Born/ Immigrants 10% Special Religious or Cultural Subgroups: Yes, African American Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 23 Name: Claudia Benton Organization: Ventura County Public Health State: CA Approximate cases reviewed: Fetal Deaths, Number 35 Other, please specify type of review & number Infant deaths: 43 Reviews with FIMR program participation: Child Fatality Review, Child Abuse and Neglect Review, Suicide Review Panel, Other SIDS review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Members attend each other's meetings, Cases are triaged into FIMR or CDR , Meetings are coordinated, Prevention recommendations are shared Statute to protect FIMR teams: Data not provided Two-tiered system: Yes Percentage of interviews: 6 Community Education: Conduct a media campaign to promote prenatal alcohol and drug cessation, Promote breastfeeding. Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services , Partner with local MOD Prematurity Campaign Policy Advocacy: Report the FIMR findings to the State MCH Director. Improved Practices: Implement screening for substance abuse, Implement screening for postpartum depression. Professional Training: Conduct provider training on prematurity/preterm labor management Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement SIDS training programs , Implement bereavement training. Actions taken because of FIMR: Problem: obese pregnant women Recommendation: more training for staff Interventions: All day training to Comprehensive perinatal service workers and other health care providers in collaboration with MOD. Comenzando Bien curriculum with emphasis in nutrition. Outcome: 50 people participated. Ethnic Populations: American Indian/ Alaska Native (Please specify 0 tribes/nations) Asian (Please specify country of origin) 0 Black/ African American (If specific culture, please name) 5 Pacific Islander (Please specify if Native Hawaiian, 0 Guamanian, Samoan or Other) Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto 50 Rican, Cuban, Descendants of Spain, Central and/or South American) White (Please specify country of origin) 45 Foreign-Born/ Immigrants Special Religious or Cultural Subgroups: Yes, Hispanics Population in your FIMR catchment area: Total population in the catchment area 846178 Total number of live births 10038 NFIMR report on programs in USA and Puerto Rico, June 2016 24 Total number of fetal deaths 35 Total number of infant deaths 43 Annual Budget: Data not provided Name: Erma Riley Organization: MCAH State: CA Approximate cases reviewed: Fetal Deaths, Number : 25 Neonatal Deaths, Number: 20 Reviews with FIMR program participation: Child Death Review Team What does CDR and FIMR look like in your community? Currently there is no collaboration, staff works on both CDR and FIMR. Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 5% Why interview is not done: Data not provided Community Education: Promote breastfeeding, Meet with community based organizations, Collaboratively worked with Family on access to LARC for women, receive a grant for decreasing disparities among African American women. Service Systems Improvement: Collaborate with the Faith based Community to bring awareness and decrease infant mortality Policy Advocacy: Invited to speak at SF Board of Supervisor Meeting to declare infant mortality in the month of October. Improved Practices: Expand family planning services, Implement standardized prenatal risk assessment, Implement screening for postpartum depression. Professional Training: Implement SIDS training programs, Implement bereavement training. Actions taken because of FIMR: We partnered with MCAH Family Planning to ensure that all women of childbearing age have access to family planning services including. Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 850,000 Total number of live births: 9,000 Total number of fetal deaths: 25 Total number of infant deaths: 20 Annual Budget: Data not provided Name: Nancy Calvo Organization: Solano County Health & Social Services State: CA Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Other MCAH leads coordination efforts. SIDS Coordinator attend the CRD meetings. NFIMR report on programs in USA and Puerto Rico, June 2016 25 Statute to protect FIMR teams: Not sure Two-tiered system: No Percentage of interviews: Data not provided Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to promote prenatal alcohol and drug cessation, Conduct a media campaign to address disparities in infant health, Promote breastfeeding, Develop culturally relevant health education materials, Publish an annual FIMR report Service Systems Improvement: Eliminate a duplication of MCH services, Improve referral patterns among agencies, Streamline MCH Medicaid application processes Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Expand services to pregnant substance abusers, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression. Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.), Implement SIDS training programs Actions taken because of FIMR: In 2015, the Solano FIMR Team produced the FIMR Sleep-Related Death Report, the report includes recommendations. Staff provided trainings regarding Safe Sleep to licensed childcare providers and Train the Trainer target to the African American community. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 400,000 Total number of live births: 5,200 Total number of fetal deaths: 35 Total number of infant deaths: 29 Annual Budget: 30,000 Name: Anna Sutton Organization: Yolo County HHSA State: CA Approximate cases reviewed: Fetal Deaths: 3 Neonatal Deaths: 2 Post neonatal Deaths: 3 Reviews with FIMR program participation : Child Fatality Review What does CDR and FIMR look like in your community? Members attend each other's meetings Statute to protect FIMR teams: No Two-tiered system: No Percentage of interviews: 50% Why interview is not done: FIMR Program Data is based on chart review and using an "issues checklist" developed by the California DPH. The maternal interview is done separately and presented as part of case review. NFIMR report on programs in USA and Puerto Rico, June 2016 26 Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to encourage early and continuous prenatal care, Develop culturally relevant health education materials, publish an annual FIMR report. Service Systems Improvement: Eliminate a gap in MCH services, improve referral patterns among agencies, Improve bereavement referral services. Policy Advocacy: 5 year FIMR reports are sent to State MCAH. Improved Practices: Enhance services to bereaved families, Implement screening for postpartum depression. Professional Training: Trainings offered around domestic violence and motivational interviewing offered to providers. Actions taken because of FIMR: Problem: persistent and increasing presence of maternal mental health concerns in FIMR Cases. Recommendation: Develop a county wide collaborative to address maternal mental health concerns. Interventions: Collaborative created. Multiyear action plan created and parts carried out that include sustainability of the collaborative/stakeholder engagement, resource building and reducing stigma. OUTCOMES: successful awareness campaign in 2015 to reduce stigma that is growing in 2016. Blue Dot Campaign will be presented at the national 2016 PSI Conference. Joint Provider Mapping Project in progress by Yolo and Butte counties to assess needs of providers serving women along their life course (primary care, Peds, and OB). Ethnic Populations: Data not available Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 200000 Total number of live births: 2500 Total number of fetal deaths: 10/year Total number of infant deaths: 5/year Annual Budget: guessing it's about $17K, but it's rolled into the whole MCAH Budget. Name: Quinn Wells Organization: Sacramento County DHHS State: CA Approximate cases reviewed: 30 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Members attend each other's meetings, Cases are triaged into FIMR or CDR, Meetings are coordinated, Prevention recommendations are shared Statute to protect FIMR teams: Data not provided Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Conduct a media campaign to encourage early and continuous prenatal care Conduct a media campaign to promote prenatal alcohol and drug cessation, Conduct a media campaign about risks of prematurity Meet with community based organizations Service Systems Improvement: Improve referral patterns among agencies Partner with local MOD Prematurity Campaign Policy Advocacy: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 27 Improved Practices: Initiate or expand public health case management Professional Training: Conduct provider training on prematurity/preterm labor management, Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement cultural competency training , Implement SIDS training programs , Develop a community resource directory Actions taken because of FIMR: Infant mortality rate high for African American Women Public Health Nurses hired to provide case management services for pregnant AA women. Special Religious or Cultural Subgroups: No Ethnic Populations: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Erica Alexander Organization: Fresno County Department of Public Health State: CA Approximate cases reviewed: Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Other, The SIDS coordinator attends child death review Statute to protect FIMR teams: Yes Two-tiered system: Data not provided Percentage of interviews: Data not provided Why interview is not done: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions Taken because of FIMR: Data not provided Special Religious or Cultural Subgroups: Data not provided Name: Sue Seaters Organization: Placer County HHS State: CA Approximate cases reviewed: Fetal Deaths: 7 Neonatal Deaths, Number: 12 Post neonatal Deaths, Number: 2 Reviews with FIMR program participation: Child Fatality Review , Child Abuse and Neglect Review What does CDR and FIMR look like in your community? Joint reviews are conducted, Meetings are coordinated, Prevention recommendations are shared. Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 28 Community Education: Promote breastfeeding, Meet with community based organizations, Publish an annual FIMR report. Service Systems Improvement: Improve referral patterns among agencies , Improve bereavement referral services, Streamline MCH Medicaid application processes. Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Initiate or expand public health case management , Expand services to pregnant substance abusers, Enhance services to bereaved families , Implement screening for postpartum depression. Professional Training: Implement SIDS training programs , Develop a community resource directory Actions taken because of FIMR: Problem: Continue seeing sleep related deaths in our communities. Recommendation: offer outreach to licensed daycare workers on Safe to Sleep recommendations and materials. Also provide materials for parents whose children attend the daycares. Intervention: At least once annually give a presentation, partnering with the County Coroner, to licensed daycare providers through the office of education. Outcomes: Reinforcing safe sleep guidelines promoted by the AAP; daycare providers are able to provide documentation to support the manner in which they sleep all babies in their centers (unless a MD has provided documentation for sleep position to be other than supine). Decrease in infant deaths in daycare settings. Ethnic Populations: Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 14% Mexican White (Please specify country of origin) 78% USA Other (please specify) 4% India Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 379,649 Total number of live births: 3684 Total number of fetal deaths: 714 Annual Budget: Data not provided Name: Allison Tans Organization: Humboldt County DHHS-Public Health State: CA Approximate cases reviewed: Fetal Deaths: 14 Neonatal Deaths, Number: 0 Post neonatal Deaths, Number: 1 Other, please specify type of review & number Child: 5 Reviews with FIMR program participation: Child Fatality Review , Suicide Review Panel, Other SIDS review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Cases are triaged into FIMR or CDR, Meetings are coordinated, Prevention recommendations are shared. NFIMR report on programs in USA and Puerto Rico, June 2016 29 Statute to protect FIMR teams: No Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: We would include it if we had any to include. There was a gap in interviews the year prior to the prior FIMR Coordinator's retirement. Community Education: Develop culturally relevant health education materials Publish an annual FIMR report, Other (please specify) Conduct a media campaign to encourage safe sleep Service Systems Improvement: Improve referral patterns among agencies, Improve/develop transportation routes to MCH services with the City or County Transportation Department, Streamline MCH Medicaid application processes Policy Advocacy: Data not provided Improved Practices: Expand services to pregnant substance abusers, Other (please specify) We are working on recommending implementation of screening for substance abuse and for postpartum depression to all county providers. Professional Training: Other (please specify) Some have been done in the past Actions taken because of FIMR: PROBLEM: Many deaths reviewed included unsafe sleep environments. RECOMMENDATION: All babies need a safe sleep environment. INTERVENTIONS: Movie Theatre Campaign. OUTCOMES: I do not have data available from 2014 yet. PROBRLEM: Maternal depression has been linked with attachment problems in infancy. RECOMMENDATION: Improve attachment problems by educating the community on Perinatal Mood and Anxiety Disorders. INTERVENTIONS: Pec Indman, PhD addressed more than 225 community members at an all-day conference. OUTCOMES: I am attempting to obtain data specific to Humboldt County on PSI, but have not been able to yet. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 134,623 Total number of live births: 1,396 Total number of fetal deaths: 14 Total number of infant deaths: 4 Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 30 Colorado has no state coordinator. Name: Melanie Cyphers Organization: Weld County Department of Public Health Environment State: CO Approximate cases reviewed: Fetal Deaths: 4 Neonatal Deaths: 1 Reviews with FIMR program participation: Data not provided. What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Members attend each other's meetings. Statute to protect FIMR teams: No, the state is not involved in FIMR. Our county has the only FIMR in the state Two-tiered system: Yes Percentage of interviews: 100 Why interview is not done: Data not provided Community Education: Media campaign on safe sleep Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Enhance services to bereavement Professional Training: Data not provided Actions taken because of FIMR: Data not provided Special Religious or Cultural Subgroups: Yes, East African Refugees in our community but have not reviewed any deaths from their community Population in your FIMR catchment area: Total population in the catchment area: 277,670 Total number of live births: 3901 Total number of fetal deaths: 18 Total number of infant deaths: 23 Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 31 Anne Pedrick is the Delaware state coordinator. Name: Anne Pedrick Organization: Child Death Review Commission State: DE Approximate cases reviewed: Other, please specify type of review & number Still working on 2015 data Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Cases are triaged into FIMR or CDR , Prevention recommendations are shared. Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 24% Community Education: Publish an annual FIMR report, Other (please specify) Publish Kicks counts materials. Service Systems Improvement: Eliminate a gap in MCH services, Improve referral patterns among agencies, Improve bereavement referral services. Policy Advocacy: Report the FIMR findings to the State MCH Director Report annual report findings to the Governor and legislature. Improved Practices: Enhance services to bereaved families, Expand family planning services, Implement standardized prenatal risk assessment. Professional Training: Implement SIDS training programs , Implement bereavement training Actions taken because of FIMR: Recommendation: Support prenatal education on fetal movement tracking as a standard of obstetric care. Action/Intervention In 2011, the Division of Public Health and the Delaware Healthy Mother and Infant Consortium developed the Fetal Kicks Count program, a social marketing campaign that targets health care providers and pregnant women with the message that fetal movement tracking, beginning at 24 weeks gestation, is an important indicator of fetal health. Outcomes: The Fetal Kicks Count program was developed and implemented in less than six months after discussion and a recommendation made at a FIMR CRT meeting. Toolkits— including education brochures and Kicks Count tracker pocket booklets for recording a baby’s daily movements— were distributed to prenatal providers statewide in 2011. A perinatal collaborative education coordinator also provides support to ensure providers have the Kicks Count toolkits and are comfortable implementing the clinical follow-up for decreased fetal movements. The FIMR database will continue to track the proportion of women with documented prenatal education on fetal movement tracking. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: 180,000 NFIMR report on programs in USA and Puerto Rico, June 2016 32 Name: Joan M. Kelley Organization: Child Death Review Commission State: DE Approximate cases reviewed: Fetal Deaths: 30 Neonatal Deaths: 30 Postneonatal Deaths: 5 Reviews with FIMR program participation : Maternal Mortality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Funding is shared, Cases are triaged into FIMR or CDR Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 30 Community Education: Publish an annual FIMR report Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Initiate or expand public health case management, Expand family planning services. Professional Training: Fetal Kick Counts statewide media campaign in past 4 years and ongoing. Actions taken because of FIMR: DE will be happy to share our annual report which will include 2 years’ worth of data and should be published in the spring. Please contact me or the Director of CDRC if interested. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 33 Quartil Robinson is the former Florida state coordinator and Rhonda Brown is the current coordinator. Name: Quartil Robinson Organization: Florida Department of Health State: FL Which Agency leads the coordination of your FIMR program?: The state health office contracts with 11 state Healthy Start Coalitions to conduct FIMR projects. Do members of a federal Healthy Start participate in your FIMR team(s)?: Data not provided Reviews with FIMR program participation: Data not provided What does CDR and FIMR collaboration look like in your community?: Data not provided Which of these theories/methods are being implemented in conjunction with FIMR?: Statute to protect FIMR programs: Yes Is the program currently reviewing cases? : Data not provided In what year did Case Reviews first begin? : FIMR project funding to Healthy Start coalitions began in 1993 Approximately how many cases do you review in 2015 by category: 28 case reviews are required by contract for each funded FIMR project per fiscal year Percentage of Interview: Data not provided Two tiered system: Data not provided Please tell us more about your Community Action Team. The CAT is: CAT is a contract requirement for funded FIMR projects. Non applicable to the state health office Community Education: Data not provided Service Systems Improvement: Data not provided Improved Practices, Programs, and Policies: Data not provided Policy Advocacy: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Problems, recommendations, and interventions will vary by county and community needs. Ethnic Populations: Data not provided Special Populations: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: 11 FIMR projects are funded at $21,784 each How many funded staff are on the state level?: 0 How many in-kind staff are on the state level?: 2 What are the functions of the state program?: Technical assistance to local teams, Provides funding to 11 FIMR projects through the state Healthy Start Coalitions. Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: No NFIMR report on programs in USA and Puerto Rico, June 2016 34 Name: Odeth O’Meally Organization: Palm Beach County FIMR State: FL Approximate cases reviewed: Fetal Deaths: 30 Infant Deaths: 50 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? FIMR funding agency (Program officer) is represented Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 20% Community Education: Develop culturally relevant health education materials, Meet with community based organizations, Publish an annual FIMR report, (1) Educate over 80% of the county's OB/GYN of FIMR (2) Lunch N' Learn RE: Rethinking the role of nutrition in infant mortality. Service Systems Improvement: Improve bereavement referral services. Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis Report the FIMR findings to the State MCH Director. Improved Practices: Enhance services to bereaved families, Implement standardized prenatal risk assessment Professional Training: Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Develop a community resource directory, Develop FIMR brochure Developed bereavement community resource directory Actions taken because of FIMR: Problem: OB/GYN in PBC lack of knowledge about the FIMR process Recommendation: Increase OB/GYN provider knowledge Provide education to OB/GYN Outcome: Annual report and brief education given to over 85% of OB/GYN through Healthy Mothers Healthy Babies in 2015 Problem: Families unable to find MCH bereavement resources in PBC Recommendation: Create a reference tool to assist families in locating of bereavement support Intervention: Create a county specific bereavement guide Outcomes: Bereavement directory sent out to 100% of mothers selected for a maternal interview. Additionally, bereavement document made available to all MCH organization associated or involved in FIMR Ethnic Populations: Data not available Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: (PBC: 1,308,741) (Female 12-45: 580,467) Total number of live births: 14,433 Total number of fetal deaths: 108 Total number of infant deaths: 69 Annual Budget: $135,959 NFIMR report on programs in USA and Puerto Rico, June 2016 35 Name: Brandy Gehrken Organization: Coastal OB/Gyn Healthy Start State: FL Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Data not provided Statute to protect FIMR teams: Data not provided Two-tiered system: Data not provided Percentage of interviews: Data not provided Why interview is not done: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Amy Olen Organization: Healthy Start Coalition of Miami-Dade State: FL Approximate cases reviewed: Fetal Deaths: 14 Neonatal Deaths: 11 Post neonatal Deaths: 7 Reviews with FIMR program participation: Child Fatality Review, Domestic Violence Review, Child Abuse and Neglect Review What does CDR and FIMR look like in your community? Member’s attend each other’s meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: We complete outreach attempts for all FIMR cases, however we have a high rate of cases that we are unable to locate as well as a number of cases that decline interviews. Community Education: Promote breastfeeding, Hold a town health fair, Develop culturally relevant health education materials. Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services, Partner with local MOD Prematurity Campaign. Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Enhance services to bereaved families, Expand family planning services. Professional Training: Conduct provider training on prematurity/preterm NFIMR report on programs in USA and Puerto Rico, June 2016 36 labor management, Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.), Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement cultural competency training , Implement SIDS training programs , Implement bereavement training. Actions taken because of FIMR: Problem: Insufficient bereavement support services for families who experienced a pregnancy or infant loss. Recommendation: implementation of bereavement programs at hospitals and increase in bereavement support services Interventions: training of community members (hospital staff, local organizations, general community) on Perinatal Bereavement. Outcomes: o Between July 2011 and December 2015, our program conducted twenty-one (21) perinatal bereavement professional development seminars attended by four hundred seventy-eight (478) individuals. Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 2,662,874 Total number of live births 31,990 Total number of fetal deaths 240 (7.4 per 1,000 live births) Total number of infant deaths 147 (4.7 per 1,000 live births Annual Budget: $21, 784 Name: Theresa Chimel Organization: Escambia County Healthy Start Coalition State: FL Approximate cases reviewed: Fetal Deaths, Number: 15 Neonatal Deaths, Number: 20 Post neonatal Deaths, Number: 7 Reviews with FIMR program participation: Child Abuse Death Review - we don't review all cases of child death, just those under investigation for abuse What does CDR and FIMR look like in your community? Members attend each other's meetings , Other (please specify), We attend meeting of the Child Abuse Death Review team Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: We have not been successful in getting mothers to be receptive to the interview process. We are currently working on a new approach to contacting mothers coupled with bereavement support. Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to encourage early and continuous prenatal care, conduct a media campaign to promote prenatal alcohol and drug cessation, Conduct a media campaign about risks of prematurity. Promote breastfeeding, Hold a town health fair, Hold a FIMR town meeting, Meet with community based organizations, Publish a FIMR newsletter, Other (please specify) NFIMR report on programs in USA and Puerto Rico, June 2016 37 conduct a media campaign to encourage safe sleep. Service Systems Improvement: Eliminate a duplication of MCH services , Eliminate a gap in MCH services, Partner with local MOD Prematurity Campaign Policy Advocacy: Data not provided Improved Practices: Initiate or expand public health case management, Expand hospital quality assurance standards, Implement standardized prenatal risk assessment Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement SIDS training programs , Develop a community resource directory Actions taken because of FIMR: Due to lack of funding, we have struggled to adequately meet the needs of our community. Over the past two years through our FIMR process, we have identified the need for comprehensive bereavement services. However, we have only been able to conduct one training and have yet to fully implement the program because the funds we receive to conduct the FIMR program aren't enough to even cover the abstraction process. Any programs or services we identify as a community gap must be funded by other means, often through fundraising efforts or small grants. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Total population in the catchment area 306,000 Total number of live births 3800 Total number of fetal deaths 28 Total number of infant deaths 30 Annual Budget: 21,784 Name: Sandra Despagne Organization: Healthy Mothers, Healthy Babies of Broward Inc. State: FL Approximate cases reviewed: We are currently still reviewing 2015 deaths. We are contracted to review 57 fetal and infant deaths. So far we have selected 44 cases for review 27 fetal and 17 infants Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Members attend each other's meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 15% Why interview is not done: We attempt to conduct maternal/ paternal interview with each selected case, however we get a lot of declines from the parents or no response to our letters and phone calls. Also, if a case is in litigation, we do not request a maternal interview. Community Education: Conduct a media campaign to address disparities in infant health Meet with community based organizations, Publish an annual FIMR report, Conduct a media campaign to promote infant safe sleep practices. Service Systems Improvement: Eliminate a gap in family planning services, Improve referral patterns among agencies, Improve bereavement referral services , Partner with local MOD Prematurity Campaign. NFIMR report on programs in USA and Puerto Rico, June 2016 38 Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis. Improved Practices: Expand hospital quality assurance standards, Other (please specify) Implement Model Behavior curriculum. Professional Training: Implement SIDS training programs, Other (please specify) Conduct provider training on perinatal bereavement support and MCH conference based on FIMR findings. Actions taken because of FIMR: Problem: In 2013-2014, there were a total of 38 infant deaths that had a primary cause as sleep related or had a contributory cause of being in an unsafe sleep environment or unsafe sleep position at time of death. Recommendation: Implement a Safe Sleep Awareness campaign to decrease the number of sleep related deaths in the community. Intervention: The implementation of the best practice "Medical Model Behavior" Program to educate hospital nurses, physicians and staff on the promotion of safe sleep practices for newborns. Implementation of Direct on Scene Education Program. DOSE is a program utilized by first responders to deliver the "safe sleep" message for all infants in the communities’ that they serve. Outcomes: Over 120 first responders have been trained in Broward County. Based on the preliminary data sleep related deaths have decreased in the county. Ethnic Populations: Black/ African American (If specific culture, please name) 69% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 23% Special Religious or Cultural Subgroups: Yes, Hispanics, Haitians, Jamaican, Russian, African American, Caribbean. Population in your FIMR catchment area: Total population in the catchment area Estimated population of Broward -1,838,844 Total number of live births: 21,541 Total number of fetal deaths: 223 Total number of infant deaths: 118 Annual Budget: 211, 181 Name: Melisa Reddick Organization: Chipola Healthy Start Coalition State: FL Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? No collaboration Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training : Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 39 Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Tonya Akwetey Organization: Healthy Start Coalition of Hardee, Highlands, and Polk Counties State: FL Approximate cases reviewed: Fetal Deaths: 14 Neonatal Deaths: 6 Post neonatal: 8 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Members attend each other meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 1 Community Education: Promote breastfeeding, meet with community based organizations, Promote relevant health information for some of the challenges and issues presented from the Case Review Team Meetings. Service Systems Improvement: Improve bereavement referral services, Improve/develop transportation routes to MCH services with the City or County Transportation Department, Streamline MCH Medicaid application processes. Policy Advocacy: Data not provided Improved Practices: Due to the FIMR Project there is a more heightened awareness at one of our main local hospitals. In addition, there is more involvement of key stakeholders in the FIMR Project. Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement SIDS training programs, Develop a community resource directory Actions taken because of FIMR: Problem: There was an increase of women presenting to their obstetrician or the local hospital's emergency rooms with issues pertaining to dehydration. Recommendation: Provide the obstetricians, hospitals, and home visitors educational resources and tools to promote the importance of water consumption and staying hydrated during pregnancy. Intervention: When teaching the pregnant women about hydration during pregnancy providers and home visitors would have a visual tool to utilize with the teaching. Outcomes: The women presenting to obstetrician offices and local hospital emergency rooms for dehydration decreased. Problem: There were issues presented during the CRT findings dealing with access to prenatal care for minority pregnant women. Recommendation: The committee created an educational tool to input in the local newspaper and at all local churches NFIMR report on programs in USA and Puerto Rico, June 2016 40 that had high population of minorities present. This tool provided information for ways women could access prenatal care. In addition, committee members met with the local transportation committee and implemented a bus stop near a local provider that was needed. Outcomes: There was an increase in appointments completed for the local providers. Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 760200 Total number of live births 8959 Total number of fetal deaths 50 Total number of infant deaths 52 Annual Budget: 21,784.00 Name: Leisa J. Stanley Organization: Healthy Start Coalition of Hillsborough County Inc. State: FL Approximate cases reviewed: Fetal Deaths, Number: 0 Neonatal Deaths, Number: 21 Post neonatal Deaths, Number: 17 Other, please specify type of review & number 0 Reviews with FIMR program participation: Child Fatality Review , Domestic Violence Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Members attend each other's meetings , Prevention recommendations are shared Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: We attempt to conduct maternal interviews but have approximately a 25%-30% response rate. Community Education: Conduct a media campaign to promote prenatal alcohol and drug cessation, Conduct a media campaign to address disparities in infant health, promote breastfeeding, hold a FIMR town meeting, Develop culturally relevant health education materials, Meet with community based organizations Service Systems Improvement: Eliminate a gap in MCH services, improve referral patterns among agencies, Improve bereavement referral services, Partner with local MOD Prematurity Campaign, Streamline MCH Medicaid application processes. Policy Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH, Report the FIMR findings to the State MCH Director, Develop local or state legislation. Improved Practices: Expand services to pregnant substance abusers, enhance services to bereaved families, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.), Implement SIDS training programs, and Develop a community resource directory. Actions taken because of FIMR: I would need to email this to you in a word document. Please let me know where to email this information. Ethnic Populations: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 41 Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area Total number of live births Total number of fetal deaths Total number of infant deaths Annual Budget: 30,000 1 million 17000 100-120 120-140 Name: Tracy Claveau Organization: Northeast Florida Healthy Start Coalition State: FL Approximate cases reviewed: Fetal Deaths, Number: 15 Neonatal Deaths, Number: 11 Post neonatal Deaths, Number: 3 Reviews with FIMR program participation: No What does CDR and FIMR look like in your community? Currently there is no collaboration Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 40% Community Education: Meet with community based organizations, publish an annual FIMR report Publish a FIMR newsletter. Service Systems Improvement: Improve bereavement referral services. Policy Advocacy: Data not provided. Improved Practices: Enhance services to bereaved families. Professional Training: Implement SIDS training programs. Actions taken because of FIMR: Increase in sleep related deaths in homes where a crib and basinet were available. A limited survey was done to determine the reason parents were sleeping with their infants. The results of the survey indicated the parents felt "safer", we are expanding our survey to determine the population's definition of "safe sleep" and to determine the context of "safe" i.e street violence, rodents/pests or mother's comfort. In the meantime we have been able to target education to overcome barriers to the infants not being placed in their own beds Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 900,000 Total number of live births 18,000 Total number of fetal deaths 149 Total number of infant deaths 143 Annual Budget: 26,000 Name: Hillary Smith Organization: Healthy Start at All About Women OBGYN State: FL Approximate cases reviewed: NFIMR report on programs in USA and Puerto Rico, June 2016 42 Fetal Deaths, Number Since October 2015, I believe that we have reviewed less than 10 fetal deaths. Neonatal Deaths, Number At least 2 neonatal deaths. Post neonatal Deaths, Number Less than 10 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Members attend each other's meetings , Prevention recommendations are shared Statute to protect FIMR teams: Not sure, we keep integrity, confidentiality and anonymity Two-tiered system: Yes Percentage of interviews: 100% Why interview is not done: As much as information that is able to be collected is collected Community Education: Conduct a media campaign to encourage early and continuous prenatal care, conduct a media campaign to promote prenatal alcohol and drug cessation, conduct a media campaign to promote family planning or STD screening, Conduct a media campaign to address disparities in infant health Conduct a media campaign about risks of prematurity Promote breastfeeding, hold a FIMR town meeting, meet with community based organizations, Other (please specify) Walk to Remember. Service Systems Improvement: Eliminate a gap in family planning services, Improve referral patterns among agencies, Improve bereavement referral services. Policy Advocacy: I am not sure. I have only been attending FIMR since Oct 2015. Improved Practices: Initiate or expand public health case management, expand hospital quality assurance standards, expand services to homeless women and children, expand services to pregnant substance abusers, enhance services to bereaved families, Expand family planning services, Implement standardized prenatal risk assessment, Improve cultural competency protocols, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression. Professional Training: Conduct provider training on prematurity/preterm labor management Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc. Develop a community resource directory; Implement bereavement training. Actions taken because of FIMR: PROBLEM: Substance abuse prevalent among expecting mothers on the rise RECOMMENDATION: Education on risk of substance abuse in ob. offices, health department, hospitals, media, etc. drug tests for expecting mothers who want Medicaid insurance. INTERVENTIONS: Substance abuse training for providers, hospitals, health department, social workers, etc. OUTCOMES: decrease in babies born dependent on substances and in the NICU. high yield and low cost. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Faye Gardner Organization: Capital Area Healthy Start Coalition State: FL Approximate cases reviewed: Fetal Deaths: 13 NFIMR report on programs in USA and Puerto Rico, June 2016 43 Post neonatal Deaths: 16 Reviews with FIMR program participation: Child Fatality Review, Child Abuse and Neglect Review. What does CDR and FIMR look like in your community? Members attend each other’s meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: Low maternal response to interview requests Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to promote family planning or STD screening, Promote breastfeeding, Develop culturally relevant health education materials, Meet with community based organizations, Publish an annual FIMR report. Service Systems Improvement: Eliminate a gap in MCH services, Improve referral patterns among agencies, Improve bereavement referral services, Partner with local MOD Prematurity Campaign, Streamline MCH Medicaid application processes Policy Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis Improved Practices: Data not provided Professional Training: Conduct provider training on prematurity/preterm labor management Implement SIDS training programs Actions taken because of FIMR: FIMR recognized a need for preconception health and community education to African American girls, focusing on the importance of personal hygiene, healthy lifestyles and proper nutrition and has put a program, STRONGER Girls, to address these issues. It is currently at one school in a predominantly African American neighborhood. It is hoped that with additional funding, it can be expanded to other schools. Ethnic Populations: Black/ African American (If specific culture, please name) 60% White (Please specify country of origin) 33% Other (please specify) 7% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 369998 (2014) Total number of live births: 4023 (2014) Total number of fetal deaths: 28 (2014) Total number of infant deaths: 28 (2014) Annual Budget: $21784 Name: Michelle T. Schaefer Organization: Healthy Start Coalition of Pinellas State: FL Approximate cases reviewed: Fetal Deaths: 19 Neonatal Deaths: 8 Post neonatal Deaths: 13 Reviews with FIMR program participation: CDR NFIMR report on programs in USA and Puerto Rico, June 2016 44 What does CDR and FIMR look like in your community? Members attend each other’s meetings, Prevention recommendations are shared Statute to protect FIMR teams: Unsure what is meant by "protect FIMR teams". We have a statute that allow us to collect information from providers. Two-tiered system: Yes Percentage of interviews: 30% Community Education: Conduct a media campaign to address disparities in infant health, promote breastfeeding, hold a town health fair, develop culturally relevant health education materials, meet with community based organizations, Publish an annual FIMR report, Publish a FIMR newsletter. Service Systems Improvement: Eliminate a duplication of MCH services, Eliminate a gap in MCH services, Improve referral patterns among agencies, Improve bereavement referral services, Streamline MCH Medicaid application processes. Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Report the FIMR findings to the State MCH Director. Improved Practices: Expand hospital quality assurance standards , Expand services to pregnant substance abusers Enhance services to bereaved families, Improve cultural competency protocols ,Implement screening for smoking , Implement screening for postpartum depression, Other (please specify) Nutrition. Professional Training: Conduct provider training on prematurity/preterm labor management, Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement cultural competency training, Implement SIDS training programs, Develop a community resource directory, Implement bereavement training. Actions taken because of FIMR: Problem: Obesity Recommendation: Nutritionist at home service Intervention: Hired a nutritionist for the Healthy Start team Outcomes: More women receiving nutritional counseling Ethnic Populations: Black/ African American (If specific culture, please name) 21 White (Please specify country of origin) 16 Other (please specify) 2 Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total number of live births 8100 Annual Budget: 21000 Name: Kelly Byrns-Davis Organization: Bay, Franklin, Gulf Healthy Start Coalition, Inc. State: FL Approximate cases reviewed: NFIMR report on programs in USA and Puerto Rico, June 2016 45 Fetal Deaths, Number: 10 Neonatal Deaths, Number: 15 Post neonatal Deaths, Number: 3 Other, please specify type of review & number 28 for year Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Members attend each other's meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 10% Community Education: Publish an annual FIMR report Service Systems Improvement: Improve bereavement referral services Policy Advocacy: Data not provided Improved Practices: Expand services to pregnant substance abusers , Enhance services to bereaved families Professional Training: Implement bereavement training, Other (please specify) Substance Abuse Task Force Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 46 Illinois has no state coordinator. Name: Virginia Julion Organization: FIMR State: IL Approximate cases reviewed: Fetal Deaths, Number: 16 Neonatal Deaths, Number: 16 Post neonatal Deaths, Number: 0 Other, please specify type of review & number: 0 Reviews with FIMR program participation: Other (please specify) FIMR Case Review, HIV FIMR Case Review What does CDR and FIMR look like in your community? Currently there is no collaboration Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 12% of all referrals consented to interview Community Education: Meet with community based organizations Service Systems Improvement: Developed a collaboration with Better Birth Outcomes to address interconceptual health. Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Problem: No perinatal loss support group on south side of Chicago. Recommendation: Through a focus group meeting of parents, who had experienced a loss, the need for a support group on the mid-south side of Chicago was discussed. From this discussion it was determined that a support was indeed needed. Intervention: Monthly support group meetings at one of the local charter high schools was started. Outcome: Monthly meetings held for one year at the local high school at no charge. One year later the school wanted to charge a rental fee for the space. The meeting site was changed to the hospital at no cost. Due to lack of staff to support the monthly meetings, meetings were changed to meet for Mother's/Father's Day and October Day of Remembrance. Families were referred to other support groups on the north, west side of Chicago and south suburbs. A graduate student who lives on the south side (Schweitzer Fellow) had experienced a fetal loss and wanted to be involved in working with families who had also experienced a loss. She was referred to FIMR from one of the north side support groups housed at a level three hospital. Through her networking with other agencies and community organizations, two meeting sites were located. The first meeting was December 12, 2015 at a local neighborhood community center. The Mother's/Father's Day and October National Day of Remembrance activities will continue along with the support group meetings. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes, Muslim, Hindu and Jewish Population in your FIMR catchment area: Total population in the catchment area: 2,722,389 2014 estimate US Census Bureau Total number of live births 42,805 - 2010 Illinois Department of Public Health Total number of infant deaths 318 - 2010 Illinois Department of Public Health Annual Budget: $164,000 NFIMR report on programs in USA and Puerto Rico, June 2016 47 Gretchen Martin is the Indiana state coordinator. Name: Gretchen Martin Organization: Indiana State Department of Health State: Indiana Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Data not provided Statute to protect FIMR teams: Data not provided Two-tiered system: Data not provided Percentage of interviews: Data not provided Why interview is not done: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: I am the state coordinator and this role is very new, so this information will have to be provided by our local teams. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Jeri Kenning Organization: Vanderburgh County Health Dept. State: IN Approximate cases reviewed: Approximately how many cases do you review in 2015 by category? Fetal Deaths, Number: 13 Neonatal Deaths, Number: 13 Post neonatal Deaths, Number: 1 Reviews with FIMR program participation : None currently, but will be participating in CFR & Ch Abuse/Neglect in the next few months What does CDR and FIMR look like in your community? Currently there is no collaboration, other (please specify) See above Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: We originally did maternal interviews, but stopped doing them after we had little success in meeting with those families. Incentives were offered, including support, but still few families were interested. We are currently planning on re- starting these interviews in the coming year. Community Education: Conduct a media campaign about risks of prematurity, Promote breastfeeding, Meet with community based organizations, Publish an annual FIMR report, Safe Sleep NFIMR report on programs in USA and Puerto Rico, June 2016 48 project for crib distribution, community education for prenatal clients to access transportation to prenatal appts, easier Medicaid enrollment. Service Systems Improvement: Improve referral patterns among agencies Policy Advocacy: Initiate a Mayoral or Governor’s proclamation of a day or week promoting MCH Improved Practices: Expand hospital quality assurance standards, Implement screening for domestic violence, Implement screening for substance abuse, and Implement screening for smoking Professional Training: Develop a community resource directory Actions taken because of FIMR: Problem- A lack of safe sleep was noted for several years as a factor in 2+ infant deaths annually. Recommendation-A Safe Crib program was needed in our community. Interventions: Community partners reached out, sought grants, & we received a grant to allow free pack n plays to be given to those families who needed one. As a requirement, they had to watch a video and receive safe sleep info prior to receiving the PNP. Ethnic Populations: American Indian/ Alaska Native (Please specify 0tribes/nations): 0 Asian (Please specify country of origin) 1% Black/ African American (If specific culture, please name) 14% Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) 1% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 9% White (Please specify country of origin) 75% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: 210,000 Annual Budget: 20,000 Name: Amy Williams Organization: Elkhart County Health Dept., Healthy Beginnings: Elk Co FIMR State: IN Approximate cases reviewed: Fetal Deaths, Number 0 Neonatal Deaths, Number 0 Post neonatal Deaths, Number 0 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Members attend each other's meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Cases will typically include family interview but Our program has not yet started reviewing cases. Community Education: We have not yet started reviewing cases. We are currently meeting with other community based organizations to establish community connections and build our CRT & CAT. We hope to be able to have more community actions related to Community Education once our program gets started! Service Systems Improvement: We have not yet started reviewing cases. We hope to contribute community actions related to “Service Systems Improvement/Linkages” once our program gets started! Policy Advocacy: We have not yet started reviewing cases. We hope to take Policy/Advocacy where we will connect to the political body that has the ability to make policy change and take action. NFIMR report on programs in USA and Puerto Rico, June 2016 49 Improved Practices: We have not yet started reviewing cases. We hope to be able to contribute community actions to Improve Practices, Programs and Policies if found necessary. Professional Training: We have not yet started reviewing cases. We hope to be able to take actions that will result in the development of specific training or training materials for providers in our community if found that these actions are needed. Actions taken because of FIMR: We haven't reviewed any cases yet but hope to be able to be able to contribute information on our future successes at a later time. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Genice Smithson Organization: East Central Indiana FIMR State: IN Approximate cases reviewed: Fetal Deaths: 12 Neonatal Deaths: 3 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Joint reviews are conducted, Meetings are coordinated, Prevention recommendations are shared, We review vital records of infant and fetal death then split for review of actual cases. Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Promote breastfeeding, Develop culturally relevant health education materials, Meet with community based organizations, We have participated in health fairs, we have a text messaging system, FB page, and twitter. Service Systems Improvement: Improve bereavement referral services, Other (please specify) We distribute MOD material. Policy Advocacy: Improve bereavement referral services, Other (please specify) We distribute MOD material Improved Practices: Expand services to pregnant substance abusers, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression. Professional Training: Education programs on safe sleep initiative Actions taken because of FIMR: Problem: Infant deaths relating to unsafe sleep practices. Recommendation: Care coordination and education in safe sleep practices, and referrals for pak-nplays, infant deaths should decrease. Interventions: AAP guidelines for safe sleep practices and environment for all staff in the Women and Children's Service. Line at local hospital, family residency clinics, Women's Health Clinic, and EMS/Fire Departments. Posters and brochures to be distributed from hospital, Women's Clinic, Family Residency Clinic, OB offices, Perinatal Center, EMS/Fire Departments, and local Health Department. NFIMR report on programs in USA and Puerto Rico, June 2016 50 Outcomes: Review of ongoing FIMR cases and survey on community knowledge on safe sleep practices and environment ongoing. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 294,738 (2010 Census) Total number of live births 1600-1800 Annual Budget: Data not provided Name: Teri Conrad Organization: Marion County Public Health Department State: IN Approximate cases reviewed: Fetal Deaths: 25 Neonatal Deaths: 50 Post neonatal Deaths: 32 Reviews with FIMR program participation: Child Fatality Review, Stillbirth Review Programs, LWB Review with NFP Clients What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, the recent NFIMR training was attended by DCS members & they have joined the FIMR team. Statute to protect FIMR teams: Have used the CFR statute. But there is a need for one. Two-tiered system: Yes Percentage of interviews: 36% Community Education: Conduct a media campaign to encourage early and continuous prenatal care, conduct a media campaign to promote prenatal alcohol and drug cessation, conduct a media campaign to promote family planning or STD screening, Develop culturally relevant health education materials Meet with community based organizations, these actions are in collaboration with other MCH Programs. Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services. Policy Advocacy: Data not provided Improved Practices: Enhance services to bereaved families, Implement screening for smoking, In collaboration with other MCH agencies. Professional Training: Data not available Actions taken because of FIMR: Problem: Need for knowledge of home visitors about signs & symptoms of Neonatal Abstinence Syndrome. Recommendation: NAS speaker for in service of signs & symptoms of NAS Intervention: Planning of in service for home visitors of three community programs Outcomes: Continued assessment of home visitor needs for substance use assessment and referrals for treatment options. Ethnic Populations: NFIMR report on programs in USA and Puerto Rico, June 2016 51 American Indian/ Alaska Native (Please specify NA tribes/nations) Asian (Please specify country of origin) 10% Burma, India, Black/ African American (If specific culture, please name) 55% Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) 0 Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Spain, Central and/or South American) 7% Rican, Cuban, Descendants of White (Please specify country of origin) 36% Special Religious or Cultural Subgroups: Yes Population in your FIMR catchment area: Total population in the catchment area: 852,866 Total number of live births: 12,415 Total number of fetal deaths: 118 Total number of infant deaths: 116 Annual Budget: 142,000 (Including 2 full time nurse staff and 2 irregular part time nurses. NFIMR report on programs in USA and Puerto Rico, June 2016 52 Kansas has no state coordinator. Name: Diane Creek Organization: Shawnee County Health Agency State: KS Approximate cases reviewed: Fetal Deaths, Number: 5 Neonatal Deaths, Number: 3 Reviews with FIMR program participation: None What does CDR and FIMR look like in your community? We have met with the CDR Executive Director once to talk about the possibility of collaboration. Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: We've had a hard time getting moms to agree to an interview. We've had one interview. We've changed our Maternal Interviewer in the hopes that it will help engage moms. Community Education: Community Baby Shower with the emphasis being Safe Sleep Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: We just finished our first year of CRT. Recommendations are currently going to the CAT. We are very early in the process. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Our program will serve special religious or cultural subgroups if we encounter them. So far we haven't. Population in your FIMR catchment area: Total population in the catchment area 178,000 Total number of live births 2339 in 2014 Total number of fetal deaths not available Total number of infant deaths 15 in 2013. Most current data Annual Budget: Data not provided Name: Jennifer Allen Organization: Unified Government Public Health Department State: KS Approximate cases reviewed: Fetal Deaths: 8 Post neonatal Deaths: 1 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? There is no CDR in my community Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 50% Community Education: Meet with community based organizations, Press release and media coverage about infant mortality in our county. Pregnancy and infant loss NFIMR report on programs in USA and Puerto Rico, June 2016 53 candle light vigil. Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services, Streamline MCH Medicaid application processes Policy Advocacy: Include the Mayor or County Executive as a FIMR, Community Action Team member. Improved Practices: Enhance services to bereaved families, Expand family planning services, Implement screening for smoking, Implement screening for postpartum depression. Professional Training: Implement SIDS training programs, smoking cessation. Actions taken because of FIMR: We are currently working with the Kansas Medicaid program (KanCare) on expediting Medicaid cards for pregnant women. We are in the very early stages of this process Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 158,000 Total number of live births: 3,000 Total number of fetal deaths: 18 Total number of infant deaths: 6 Annual Budget: 83,650 NFIMR report on programs in USA and Puerto Rico, June 2016 54 Name: Sarah Talley Organization: Geary County FIMR State: KS Approximate cases reviewed: Fetal Deaths: 4 Neonatal Deaths: 3 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Data not provided Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 43% Community Education: Conduct a media campaign to encourage early and continuous prenatal care Conduct a media campaign about risks of prematurity, Promote breastfeeding, Develop culturally relevant health education materials, Meet with community based organizations, Publish an annual FIMR report Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Include the Mayor or County Executive as a FIMR Community Action Team member, MOA with US Military to allow record abstraction Improved Practices: Enhance services to bereaved families Professional Training: Implement cultural competency assessment for FIMR team members Actions taken because of FIMR: Data not provided Ethnic Populations: American Indian/ Alaska Native (Please specify 0tribes/nations) Asian (Please specify country of origin) 0 Black/ African American (If specific culture, please name) 9% Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) 0% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 13% White (Please specify country of origin) 38% Other (please specify) 40% multi-race Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 34,362 Total number of live births: 1,052 Total number of fetal deaths: 5 Total number of infant deaths: 5 Annual Budget: $74,900 NFIMR report on programs in USA and Puerto Rico, June 2016 55 Robin Gruenfeld is the Louisiana state coordinator. Name: Robin Gruenfeld Organization: Louisiana Bureau of Family Health State: LA Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review , Other SIDS review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Members attend each other's meetings, Cases are triaged into FIMR or CDR, Prevention recommendations are developed jointly, Prevention recommendations are shared, Other (please specify), We have joint Community Action Team meetings at the regional level. Statute to protect FIMR teams: No Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: We do not presently conduct maternal interviews. Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to promote family planning or STD screening, Conduct a media campaign about risks of prematurity, Promote breastfeeding, Develop culturally relevant health education materials, Meet with community based organizations, Publish an annual FIMR report Service Systems Improvement: Develop a 24/7 prenatal hotline, Partner with local MOD Prematurity Campaign , Streamline MCH Medicaid application processes Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Include the Mayor or County Executive as a FIMR Community Action Team member, Report the FIMR findings to the State MCH Director, Develop local or state legislation Improved Practices: Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement SIDS training programs , Develop a community resource directory Actions taken because of FIMR: PROBLEM: Growing number of NAS cases in Louisiana and a sense that legislature was going to get involved RECOMMENDATION: Intervene so any decisions made by legislature would be informed and promote the wellbeing of Louisiana's families INTERVENTION: A study resolution passed legislature in 2015 granting permission for the Perinatal Commission on the Prevention of Infant Mortality (the State-level FIMR action body) to conduct a study resolution on NAS OUTCOMES: Study will be complete in March 2016. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes, We have a high concentration of Latino and Vietnamese populations in certain areas Name: Shelley Ryan Gray NFIMR report on programs in USA and Puerto Rico, June 2016 56 Organization: Bureau of Family Health State: LA Approximate cases reviewed: Fetal Deaths, Number in 2014-16 Neonatal Deaths, Number in 2014-18 Post neonatal Deaths, Number Included in Neonatal deaths Other, please specify type of review & number SUID is handled with Child Death Review Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Members attend each other's meetings, Meetings are coordinated, Prevention recommendations are developed jointly, Prevention recommendations are shared. Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Community Education: Supported Safe Sleep through an October 2015 Campaign. Service Systems Improvement: Improve bereavement referral services Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Expansion of Nurse Family Partnership and Parents as Teachers Home Visiting programs. Bringing a Black Mother's Breastfeeding Support program to a low income community. Expanding GIFT program. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Martha Hennegan Organization: Department of Health and Hospitals, Office of Public Health State: LA Approximate cases reviewed: Fetal Deaths: 1 Neonatal Deaths: 1 Post neonatal Deaths: 18 Reviews with FIMR program participation: Child Fatality Review, Maternal Mortality Review, Other SIDS review. What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Members attend each other's meetings, Joint reviews are conducted, Prevention recommendations are developed jointly , Prevention recommendations are shared Statute to protect FIMR teams: Yes Two-tiered system: Yes Ethnic Populations: Data not provided Percentage of interviews: Data not provided Community Education: Promote breastfeeding, Meet with community based organizations. NFIMR report on programs in USA and Puerto Rico, June 2016 57 Service Systems Improvement: Eliminate a duplication of MCH services ,Eliminate a gap in MCH services, Improve bereavement referral services , Implement “one-stop-shopping” prenatal care Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Include the Mayor or County Executive as a FIMR Community Action Team member, Report the FIMR findings to the State MCH Director. Improved Practices: Expand services to homeless women and children , Improve cultural competency protocols. Professional Training: Implement cultural competency training Actions taken because of FIMR: State MCH coordinators contacted every delivering hospital in the state, requested they review their safe sleep policy, provide an initial evaluation and post review once given the most recent materials from MCH regarding Safe Sleep. Over the course of 6 months, many hospitals revised their admission assessment to include the question "where will your baby sleep when you are home" in conjunction with that question about the infant car seat. Additionally, virtually ALL hospitals enhanced their parent/family education about Safe Sleep and received a certificate as Safe Sleep Champion. Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: No Annual Budget: Data not provided Name: Lisa Norman Organization: Bureau of Family Health, Louisiana Office of Public Health State: LA Approximate cases reviewed: Fetal Deaths, Number: 9 Neonatal Deaths, Number: 4 Post neonatal Deaths, Number: 5 Other(SUID): 7 Reviews with FIMR program participation: Child Fatality Review, Maternal Mortality Review, Other SIDS review, CDC SUID review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Members attend each other's meetings. Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Conduct a media campaign to promote prenatal alcohol and drug cessation Promote breastfeeding, Hold a town health fair, Hold a FIMR town meeting, Develop culturally relevant health education materials Meet with community based organizations Service Systems Improvement: Eliminate a gap in MCH services, Improve referral patterns among agencies, Improve bereavement referral services, Partner with local MOD Prematurity Campaign. Policy Advocacy: Report the FIMR findings to the State MCH Director Develop a policy in collaboration with City or County law enforcement offices or emergency services Develop local or state legislation. NFIMR report on programs in USA and Puerto Rico, June 2016 58 Improved Practices: Expand hospital quality assurance standards , Expand services to homeless women and children, Expand services to pregnant substance abusers , Implement screening for domestic violence, Implement screening for substance abuse , Implement screening for smoking. Professional Training: Implement SIDS training programs , Develop a community resource directory Actions taken because of FIMR: Data not provided Ethnic Populations: American Indian/ Alaska Native (Please specify tribes/nations) 1 Asian (Please specify country of origin) 0 Black/ African American (If specific culture, please name) 56 Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) 0 Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 1 White (Please specify country of origin) 38 USA Data not available 4 Special Religious or Cultural Subgroups: Yes, Migrant workers, primarily Hispanic, seasonal workers in nursery/plant business Small local Czech community Population in your FIMR catchment area: Total population in the catchment area 308,348 (2014) Total number of live births 4173 (2006-2010) Total number of fetal deaths unknown (request submitted to state BFH Epidemiologist; will forward when received) Total number of infant deaths unknown (request submitted to state BFH Epidemiologist; will forward when received Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 59 Latoya Hill and Alison Whitney are the Maryland state coordinators. Name: Alison Whitney Organization: Maryland Department of Health and Mental Hygiene State: MD Which Agency leads the coordination of your FIMR program?: County/City Health Department, Other (please specify) Also at the state level Do members of a federal Healthy Start participate in your FIMR team(s)?: Data not provided Reviews with FIMR program participation: In some counties, team members overlap between CFR and FIMR. What does CDR and FIMR collaboration look like in your community?: Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Members attend each other's meetings , Cases are triaged into FIMR or CDR Which of these theories/methods are being implemented in conjunction with FIMR?: Varies from team to team. Statute to protect FIMR programs: Yes Is the program currently reviewing cases? : Yes In what year did Case Reviews first begin? : 1990s Approximately how many cases do you review in 2015 by category?: Data not provided Percentage of Interview: Data not provided Two tiered system: Yes Please tell us more about your Community Action Team. The CAT is: Developed solely for the FIMR program Community Education: Promote breastfeeding, Hold a town health fair, Meet with community based organizations, Other (please specify) Specific to local teams Service Systems Improvement: Improve referral patterns among agencies, Partner with local MOD Prematurity Campaign , Other (please specify) Specific to local teams Policy Advocacy: Report the FIMR findings to the State MCH Director Develop a policy in collaboration with City or County law enforcement offices or emergency services Improved Practices, Programs, and Policies: Implement standardized prenatal risk assessment , Other (please specify) Specific to local teams Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement SIDS training programs, Specific to local teams. Actions taken because of FIMR: PROBLEM: Reported maternal history of tobacco use RECOMMENDATION: Improve provider knowledge of available tobacco cessation services INTERVENTION: Obtaining funds from DHMH’s tobacco grant fund, PATCH, and holding a smoking cessation strategic planning summit for over 70 providers OUTCOMES: Pending Ethnic Populations: Data not provided Special Populations: No Population in your FIMR catchment area: Total population in the catchment area: 5.976 million Total number of live births: 73, 588 Total number of fetal deaths: 566 Total number of infant deaths: 476 Annual Budget: $2,102,403 How many funded staff are on the state level?: 2 NFIMR report on programs in USA and Puerto Rico, June 2016 60 How many in-kind staff are on the state level?: 0 What are the functions of the state program? Technical assistance to local teams, Coordination of local teams , Training of local teams, Data collection and reporting Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: No Name: Latoya Hill Organization: Maryland DHMH State: Maryland Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Data not provided Statute to protect FIMR teams: Data not provided Two-tiered system: Data not provided Percentage of interviews: Data not provided Why interview is not done: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Kristen Newman Organization: Prince George’s County Health Department State: MD Approximate cases reviewed: Fetal Deaths: 8 Neonatal Deaths: 0 Post neonatal Deaths: 0 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR , Funding is shared, Members attend each other's meetings. Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Meet with community based organizations Service Systems Improvement: Improve referral patterns among agencies, Partner with local MOD Prematurity Campaign Policy Advocacy: Report to the FIMR findings to the State MCH Director Improved Practices: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 61 Professional Training: Implement SIDS training programs Actions taken because of FIMR: PROBLEM: Lack of educational opportunities for service providers for women, infants and families within the community. Lack of networking opportunities for organizations and providers of community resources that support infant mortality. RECOMMENDATION: Create educational opportunity(s) that allow service providers to remain up to date on national and local initiatives that allow for coordination of services and the ability to network to support one another. INTERVENTIONS: Held one-day Infant Mortality Conference that allowed for networking and educational sessions covering national and local initiatives along with current issues of concern. OUTCOMES: Conference well attended, increased service coordination and networking allowed for on-going information sharing to improve services for women, infants and families in the community. Formal statistics not yet available, conference held this past fall. Ethnic Populations: American Indian/ Alaska Native (Please specify 0 tribes/nations) Asian (Please specify country of origin) 0 Black/ African American (If specific culture, please name) 75 % Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 25% White (Please specify country of origin) 0 Foreign-Born/ Immigrants 12.5% Other (please specify) 0 Special Religious or Cultural Subgroups: Yes Yes, this program serves a large immigrant population that encompasses a wide array of religious and cultural subgroups. ie.. Hispanic (Guatemalan, Honduran, El Salvadoran, Nicaraguan); Thai; Vietnamese; Guinea; Congo; Nigerian; Tanzania; Ghana. Religious subgroups: Jehovah Witness, Hindu, Islam, Roman Catholic, Baptist are some of the subgroups. Population in your FIMR catchment area: Total population in the catchment area: 904,430 Total number of live births: 12,288 Total number of fetal deaths: 140 Total number of infant deaths: 92 Annual Budget: Data not provided Name: Tina Baird Organization: Allegany County Health Department State: MD Approximate cases reviewed: Fetal Deaths: 2 Neonatal Deaths: 2 Post neonatal Deaths: 1 Reviews with FIMR program participation: Child Fatality Review NFIMR report on programs in USA and Puerto Rico, June 2016 62 What does CDR and FIMR look like in your community? There is no CDR in my community, Child Fatality Review Board does death review of birth- age 18 Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 80% Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to promote prenatal alcohol and drug cessation, Conduct a media campaign to promote family planning or STD screening, Conduct a media campaign to address disparities in infant health, Conduct a media campaign about risks of prematurity, Meet with community based organizations. Service Systems Improvement: Eliminate a duplication of MCH services, Eliminate a gap in MCH services, Eliminate a gap in family planning services, Improve referral patterns among agencies, Improve bereavement referral services , Implement “one-stop-shopping” prenatal care, Improve/develop transportation routes to MCH services with the City or County Transportation Department, Streamline MCH Medicaid application processes. Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, report the FIMR findings to the State MCH Director. Develop a policy in collaboration with City or County law enforcement offices or emergency services. Improved Practices: Expand hospital quality assurance standards, Expand services to pregnant substance abusers, Enhance services to bereaved families, Expand family planning services, Implement standardized prenatal risk assessment, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc. Implement SIDS training programs , Develop a community resource directory Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Judy Churn Organization: Hartford County Health Department State: Maryland Approximate cases reviewed: Fetal Deaths: 2 Neonatal Death: 2 Post neonatal Death: 5 Reviews with FIMR program participation: Child Fatality Review, FIMR and CFR Coordinator is same person What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Members attend each other's meetings, Cases are triaged into FIMR or CDR, Prevention recommendations are shared. Statute to protect FIMR teams: Yes NFIMR report on programs in USA and Puerto Rico, June 2016 63 Two-tiered system: No Percentage of interviews: Data not provided Community Education: Data not provided Service Systems Improvement: Improve referral patterns among agencies Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Initiate or expand public health case management, Expand services to pregnant substance abusers, Implement screening for domestic violence, Implement screening for substance abuse , Implement screening for smoking, Implement screening for postpartum depression. Professional Training: Data not provided Actions taken because of FIMR: P: Significant increase in number of substance exposed newborns (SEN) born at local hospital. Per DSS referrals, our county ranked 4 of 23 in 2014. R: Develop a post-partum referral process from local hospital discharges of SENs to LHD and DSS. I: Local hospital screens all deliveries and refers 100% of SENs to LHD and DSS. I: LHD implemented a small home visiting program for SENs and mothers to ensure/refer to drug treatment, mental health, medical home for mom and baby, compliance with pediatric care/postpartum exam, parenting, supplies, community resources/safe sleep. O: Local hospital is referring 100% of SEN cases to DSS and LHD. DSS and LHD hold monthly multi-d meetings to review cases and develop plan for care. New problem: Local hospital only delivers 40% of county residents. Other deliveries are out of county, and out of county hospitals do not refer cases to LHD. Will need to work on non-referring hospitals. Ethnic Populations: Black/ African American (If specific culture, please name) 10 White (Please specify country of origin) Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total number of live births: 2900 Total number of fetal deaths: 10-15 Total number of infant deaths: 8-10 Annual Budget: Data not provided 90 Name: Patti Murphy Organization: Washington County Health Department State: MD Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Cases are triaged into FIMR or CDR, Prevention recommendations are shared. Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 1% Community Education: Promote breastfeeding, Develop culturally relevant health education materials, Meet with community based organizations. NFIMR report on programs in USA and Puerto Rico, June 2016 64 Service Systems Improvement: Improve bereavement referral services ,Partner with local MOD Prematurity Campaign, Improve/develop transportation routes to MCH services with the City or County Transportation Department Streamline MCH Medicaid application processes. Policy Advocacy: Improve bereavement referral services, Partner with local MOD Prematurity Campaign, Improve/develop transportation routes to MCH services with the City or County Transportation Department, Streamline MCH Medicaid application processes Improved Practices: Expand services to homeless women and children, Expand services to pregnant substance abusers. Professional Training: Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Actions taken because of FIMR: Problem: Parents still using bumper pads and drop sided cribs. Recommendation: Teaching needed to educate parents regarding the dangers of this. Interventions; Educational materials provided to pediatricians, PCP's and community regarding the dangers of bumper pads and drop sided cribs. Problem: Unsafe sleep practices still being used by parents. Recommendation: Education provided to providers regarding safe sleep practices. A letter encouraging all providers to teach this to parents and grandparents was also included in their materials. Intervention: A packet of safe sleep material was distributed to all providers in the county. Special Religious or Cultural Subgroups: Yes, any group that has a loss Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Lisa Helms Guba Organization: Anne Arundel County Department of Health State: MD Approximate cases reviewed: Fetal Deaths: 4 Post neonatal Death: 4 about 80 fetal/infant deaths per a year FIMR Programs in other reviews: Child Fatality Review, Other (please specify) Heroin Overdose Fatality Review Committee What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Members attend each other's meetings, Cases are triaged into FIMR or CDR, Meetings are coordinated, Prevention recommendations are developed jointly, and Prevention recommendations are shared. Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 25% Why interview is not done: We send a letter to all moms who have had a fetal/infant loss that reside in our county. Typically, we do 2 maternal interviews/year and typically just with the mother. Community Education: Conduct a media campaign to encourage early and continuous prenatal care NFIMR report on programs in USA and Puerto Rico, June 2016 65 Conduct a media campaign to promote prenatal alcohol and drug cessation Conduct a media campaign to address disparities in infant health Conduct a media campaign about risks of prematurity, promote breastfeeding, develop culturally relevant health education materials, meet with community based organizations, publish an annual FIMR report, publish a monthly healthy babies press release; send letters to ob/gyn and pediatricians on safe sleep. Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services, Streamline MCH Medicaid application processes Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Expand services to pregnant substance abusers, enhance services to bereaved families, Expand family planning services, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression Professional Training: Implement SIDS training programs Actions taken because of FIMR: We developed a website for both families and providers on issues relating to pregnancy and healthy babies- http://aahealthybabies.org/ We are now working on substance abuse in pregnancy with our birthing hospitals testing for substance abuse- http://aahealthybabies.org/pdf/PAdeathbrief.pdf We have a new statewide substance abuse in pregnancy toolkithttp://aaphysicians.org/pdf/substance-use-in- pregnancy.pdf We developed a flyer on substance abuse in pregnancyhttp://aahealthybabies.org/pdf/AlcoholDrugUsePregnancy.pdf We developed an annual report on infant health - http://aahealth.org/pdf/infant-health-report-2015.pdf We developed rack cards for both families and providers- http://aahealthybabies.org/parents-infantres.html Problem- 28 infants have died from SIDS in our county since 2010. However, a recent postpartum survey of County Healthy Start parents found only 48 percent of clients received education from their pediatricians, even fewer, six percent, reported obtaining such information from their obstetricians. Recommendation: Send a letter to all pediatricians and obs in our county in 2015 and 2016. Intervention- Letter sent to all pediatricians and obs in our county in 2015 and 2016. Outcome- Review infant death cases with a decrease in the number of SIDS/SUID Cases. Ethnic Populations: Asian (Please specify country of origin) 5% Black/ African American (If specific culture, please name) 70% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 5% White (Please specify country of origin) 20% Foreign-Born/ Immigrants 4% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: NFIMR report on programs in USA and Puerto Rico, June 2016 66 Total population in the catchment area: 560,133 (in 2014) Total number of live births: 6968 Total number of fetal deaths 35 Total number of infant deaths 37 Annual Budget: $38,687 (budget is for FIMR, CAT team and Child Fatality Review) Name: Melissa Aftoora Organization: State: MD Approximate cases reviewed: Fetal Deaths: 3 Neonatal Deaths: 2 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR , Prevention recommendations are shared Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Why interview is not done: We receive cases and records long after the fetal or infant death it's difficult to get a maternal interview. Community Education: conducted a media campaign to encourage Safe Sleep Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Expand services to pregnant substance abusers Professional Training: Data not provided Actions taken because of FIMR: Each year our team does the March for babies walk through the March of dimes in May and we raise 500.00 each year. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Cathy Costa Organization: Baltimore City Health Department State: MD Approximate cases reviewed: Fetal Deaths: 20 Neonatal Deaths: 8 Postneonatal Deaths: 2 Reviews with FIMR program participation: Child Fatality Review , Domestic Violence Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR , Funding is shared, Members attend each other's meetings , Cases are triaged into FIMR or CDR. Statute to protect FIMR teams: Yes NFIMR report on programs in USA and Puerto Rico, June 2016 67 Two-tiered system: Yes Percentage of interviews: 25 Why interview is not done: We attempt to get interviews for all cases, but are only successful in about a quarter to a third of all cases. Community Education: Conduct a media campaign to promote prenatal alcohol and drug cessation Conduct a media campaign to promote family planning or STD screening Promote breastfeeding, hold a town health fair, develop culturally relevant health education materials, Meet with community based organizations, Publish an annual FIMR report, Extensive community education on smoking cessation. Service Systems Improvement: Eliminate a duplication of MCH services, eliminate a gap in MCH services, Eliminate a gap in family planning services, Improve referral patterns among agencies , Improve bereavement referral services, Improve Prenatal Risk Assessment processes. Policy Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis Include the Deputy Mayor as a Community Action Team member Improved Practices: Initiate or expand public health case management, expand services to pregnant substance abusers, enhance services to bereaved families, Expand family planning services, Implement standardized prenatal risk assessment, Implement screening for substance abuse, Implement screening for smoking. Professional Training: Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement bereavement training. Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Lower Shore Tri-County FIMR Organization: Wicomico, Worchester & Somerset Health Department State: MD Approximate cases reviewed: 12 fetal deaths reported, 4 Infant reported Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Members attend each other's meetings. Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: Although efforts are always made to interview family - it is typically declined by the family stating they would like to "move on" or we are unable to reach the family (last known address or phone number is no longer correct) Community Education: Promote breastfeeding, Meet with community based organizations Service Systems Improvement: NFIMR report on programs in USA and Puerto Rico, June 2016 68 Name: Betsy Bridgett Organization: Calvert County State: MD Approximate cases reviewed: Fetal Deaths: 5 Neonatal Deaths: 5 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization , Staff works on both CDR and FIMR, Funding is shared Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 10 Why interview is not done: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Eliminate a gap in MCH services, Eliminate a gap in family planning services ,Improve referral patterns among agencies, Improve bereavement referral services. Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Lower Shore FIMR Community Action Plan July 2014 – June 2016 Goal: By the end of FY 2016, heighten community awareness of the importance of preconception, prenatal health care and other services to promote healthy birth outcomes. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area Tri-County 2014 -179,073 Total number of live births 1914 Total number of fetal deaths 27 Total number of infant deaths 18 Annual Budget: Data not provided Name: Lois Beverage Organization: Charles County Department of Health State: MD Approximate cases reviewed: Fetal Deaths, Number: 17 Neonatal Deaths, Number: 0 NFIMR report on programs in USA and Puerto Rico, June 2016 69 Post neonatal Deaths, Number:3 Other, please specify type of review & number: 0 Reviews with FIMR program participation: Child Fatality Review, Child Abuse and Neglect Review What does CDR and FIMR look like in your community? Leadership is housed in one organization , Staff works on both CDR and FIMR, Members attend each other's meetings , Meetings are coordinated, Prevention recommendations are shared Statute to protect FIMR teams: If No, Please Explain Why I am not sure I understand this question Two-tiered system: Yes Percentage of interviews: Data not available Community Education: Conduct a media campaign to encourage early and continuous prenatal care, conduct a media campaign to address disparities in infant health, conduct a media campaign about risks of prematurity, Promote breastfeeding, Other (please specify) Safe Infant Environment Service Systems Improvement: Improve/develop transportation routes to MCH services with the City or County Transportation Department Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis Improved Practices: Implement screening for drug abuse Professional Training: Implement training on care of the drug affected newborn. Actions taken because of FIMR: Concern regarding safe sleep environment for infants. Distribution of safe sleep DVD, face to face education by trained professionals, outcome: reduction in unsafe sleep related deaths. Ethnic Populations: Data not available Special Religious or Cultural Subgroups: Yes Population in your FIMR catchment area: Unknown Annual Budget: $49,000.00 Name: Jan Sparks Organization: Frederick County Health Dept. of Maryland State: MD Approximate cases reviewed: Fetal Deaths, Number: 14 Neonatal Deaths, Number: 4 Post neonatal Deaths, Number: 0 Other, please specify type of review & number: 0 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR , Funding is shared, Prevention recommendations are developed jointly , Prevention recommendations are shared Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 83 % 5 out 6 reviews, the other case interview done by hospice nurse involved since mother was pregnant again and did not want to interview Community Education: Develop culturally relevant health education materials NFIMR report on programs in USA and Puerto Rico, June 2016 70 Meet with community based organizations, Publish an annual FIMR report, Media Ad program for vehicle heat safety; Focus on Health u tube and local county government channel. Service Systems Improvement: Improve bereavement referral services Policy Advocacy: Report the FIMR findings to the State MCH Director Other (please specify) State FIMR Coordinator Improved Practices: Enhance services to bereaved families Professional Training: Implement bereavement training Actions taken because of FIMR: Problem: Lack of collective brochure for mothers with perinatal loss Recommendation: Develop brochure for OB offices, hospitals, funeral homes with information for bereavement services Interventions: Brochure in English, Spanish, and Burmese developed and distributed to local funeral homes, OB offices, Pregnancy Centers, Parish Nurses, local and out of county hospitals where county mothers deliver. Outcomes: During maternal interview, 80% of mothers say they have seen the brochure or have it. It has been helpful Ethnic Populations: Black/ African American (If specific culture, please name) 16% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American)17% White (Please specify country of origin) 50% Foreign-Born/ Immigrants 11% Other (please specify) 5% Data not provided 11% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 245,000 Total number of live births: 2,700 Total number of fetal deaths: 15 Total number of infant death:13 Annual Budget: 24,000 Name: Susan Russ Organization: Caroline County Health Department State: MD Approximate cases reviewed: Fetal Deaths: 2 Neonatal Deaths: 4 Post neonatal Deaths: 2 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? There is no CDR in my community Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 0 Community Education: Develop culturally relevant health education materials Meet with community based organizations NFIMR report on programs in USA and Puerto Rico, June 2016 71 Service Systems Improvement: Eliminate a gap in MCH services, Improve referral patterns among agencies, Improve/develop transportation routes to MCH services with the City or County Transportation Department. Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Expand services to pregnant substance abusers, Improve cultural competency protocols, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression. Professional Training: Develop a community resource directory Actions taken because of FIMR: Problem: Delay in receiving referrals from local providers/hospitals/DHMH have resulted in ineffective case reviews and lack of maternal interviews. Recommendation: Need improvement in timeliness of receiving referrals. Interventions: Contact and training with local providers on the importance of more timely referrals so that case review quality improves. Outcomes: This process is ongoing with local providers - goal is to improve case reviews and obtain more maternal interviews. This goal will also help to improve the Mid-Shore FIMR collaborative team Ethnic Populations: American Indian/ Alaska Native (Please specify 0% tribes/nations) Asian (Please specify country of origin) 0% Black/ African American (If specific culture, please name) 45% Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American)0% 25% White (Please specify country of origin) 25% Foreign-Born/ Immigrants 5% Special Religious or Cultural Subgroups: Yes, Hispanics from Central American countries Population in your FIMR catchment area: Data not provided Annual Budget: $22,482 Name: Ruth Baker Organization: Dorchester County Health Department State: MD Approximate cases reviewed: Fetal Deaths, Number: 5 Neonatal Deaths, Number: 0 Post neonatal Deaths, Number: 0 Other, please specify type of review & number: 0 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Prevention recommendations are shared Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Community Education: Hold a town health fair, Other (please specify) NFIMR report on programs in USA and Puerto Rico, June 2016 72 Conduct a media campaign on safe-sleep Service Systems Improvement: Policy Advocacy: Data not provided Improved Practices: Implement standardized prenatal risk assessment, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking Professional Training: Data not provided Actions taken because of FIMR: regional team noted increased incidents of fetal deaths related to safe sleep. Media campaign launched with PSA spots shown at the local movie theaters regarding safe sleep. Decrease noted in cases of fetal death related to sleep issues. Wallet inserts created and hand out that gave information on signs & sx. of preterm labor and dental care in pregnancy. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes, Hispanic/Spanish speaking Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Cindy Marucci-Bosley Organization: Carroll County Health Department State: MD Approximate cases reviewed: Fetal Deaths: 2 Neonatal Deaths, Number: 2 Post neonatal Deaths, Number: 2 Reviews with FIMR program participation : Child Fatality Review, Domestic Violence Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Members attend each other's meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 10% Community Education: Conduct a media campaign to promote prenatal alcohol and drug cessation Service Systems Improvement: Policy Advocacy: Report the FIMR findings to the State MCH Director, Develop a policy in collaboration with City or County law enforcement offices or emergency services. Improved Practices: Initiate or expand public health case management, Expand hospital quality assurance standards, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for postpartum depression. Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc. Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: 24,000 NFIMR report on programs in USA and Puerto Rico, June 2016 73 Name: Tina Bell, BSN, RN Organization: Cecil County Health Dept., Health Promotion Division State: MD Approximate cases reviewed: Fetal Deaths: 6 to 8 Reviews with FIMR program participation: What does CDR and FIMR look like in your community? Prevention recommendations are shared, Funding is shared, Staff works on both CDR and FIMR, and Leadership is housed in one organization. Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to promote prenatal alcohol and drug cessation Conduct a media campaign about risks of prematurity, Develop culturally relevant health education materials, Meet with community based organizations. Service Systems Improvement: Eliminate a gap in MCH services Policy Advocacy: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Improved Practices: Expand services to pregnant substance abusers, Enhance services to bereaved families, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Actions taken because of FIMR: Problem: There is a lack of prenatal care received by Hispanic population in our community, resulting in poor outcomes, including increased fetal deaths. Recommendation: FIMR Team discussed the possibility of opening a free clinic for prenatal care to the Hispanic population that could not afford it. Interventions: The free clinic is in the planning stage at this time. A plan is being formulated by using prior statistics collected to prove the need and be presented to the CEO of the local hospital as a possible funding source. Will also be presented to other local businesses including OB/GYN providers. Outcomes: Still to be determined, if a free clinic can be established Special Religious or Cultural Subgroups: Yes, Hispanic & African American mostly. There are some Asian & Indian cultures also present in the community as well as Jewish and Islamic Religious groups. Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 74 Jeff Spitzley is the Michigan state coordinator, Cassandra McNulty is the former state coordinator. Name: Cassandra McNulty Organization: Michigan Department State: MI Which Agency leads the coordination of your FIMR program?: State Coordination with local cooperation and autonomy Do members of a federal Healthy Start participate in your FIMR team(s)?: Yes Reviews with FIMR program participation: At the state level, I currently only participate in the SIDS review; we are looking at having me involved in CDR in 2016 What does CDR and FIMR collaboration look like in your community? No collaboration; occasionally CDR attends our meetings but do not invite us to theirs. Which of these theories/methods are being implemented in conjunction with FIMR?: Life Course Theory Statute to protect FIMR programs: Yes Is the program currently reviewing cases?: Yes In what year did Case Reviews first begin? : 1991 Approximately how many cases do you review in 2015 by category? Fetal Deaths, Number 12 (all programs) Other, please specify type of review & number 102 Infant Deaths (all programs- we do not separate out neonate and post neonate in reporting Percentage of Interview: 10% Two tiered system: Data not provided Please tell us more about your Community Action Team. The CAT is: A combination, please specify maternal interviews vary by local team; some make them a priority, others do not. All teams have a two- tiered system and some kind of CAT. Community Education: State supported local efforts but did not spearhead state-wide efforts as part of FIMR Service Systems Improvement: State supported local efforts; additionally enhanced bereavement support services Improved Practices, Programs, and Policies: State supported local efforts but did not spearhead state-wide efforts as part of FIMR Policy Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH, Report Findings to MDHHS, Developed state legislation for safe sleep training in day care settings; working on legislation to ban the sale of bumper pads in MI. Professional Training: State supported local efforts and additionally provided FIMR new coordinators training, cultural competency training and online bereavement training to FIMR teams. Additionally worked on online infant safe sleep training for health care providers. Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Populations: Yes, Middle Eastern in Dearborn (Muslim and Chaldean). Large refugee populations in Grand Rapids and Detroit. Population in your FIMR catchment area: Total population in the catchment area: 9, 910,000 Total number of live births: 114,399 Total number of fetal deaths: 748 Total number of infant deaths: 763 NFIMR report on programs in USA and Puerto Rico, June 2016 75 Annual Budget: 190,994 (case abstraction only) How many funded staff are on the state level?: 1 How many in-kind staff are on the state level?: 0 What are the functions of the state program? Technical assistance to local teams, coordination of local teams, training local teams, data collection and reporting, ensuring quality and consistency across teams, consulting. Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: No If yes, what are the functions of the board?: Technical assistance to local teams , Other (please specify), coordination of local teams, training local teams, data collection and reporting, ensuring quality and consistency across teams, consulting Name: Erin Somerlott Organization: Calhoun County Public Health Department State: MI Approximate cases reviewed: Fetal Deaths: 5 Neonatal Deaths: 0 Post neonatal Deaths: 0 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Currently there is no collaboration, Staff works on both CDR and FIMR Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: Transient population, no nurse home visitor at this time. Community Education: Conduct a media campaign to promote prenatal alcohol and drug cessation Promote breastfeeding, Meet with community based organizations, Publish an annual FIMR report Service Systems Improvement: Data not provided Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: $20000 Name: Mary Kops Organization: Jackson County Health Department State: MI Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 7 Post neonatal Deaths: 3 Other: 0 NFIMR report on programs in USA and Puerto Rico, June 2016 76 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR , Members attend each other's meetings , Prevention recommendations are shared, Prevention recommendations are developed jointly , Cases are triaged into FIMR or CDR Statute to protect FIMR teams: Data not provided Two-tiered system: Yes Percentage of interviews: 30% Community Education: Develop culturally relevant health education materials Meet with community based organizations, Publish an annual FIMR report , Infant Mortality/Safe Sleep education to CNA's and RN students from U of M and MSU Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis Improved Practices: Enhance services to bereaved families, Implement screening for smoking Professional Training: Other (please specify) Multiple training on Safe Sleep to variety of organizations i.e., nursing students, staff, kids fest, and parish nurses. Actions taken because of FIMR: Due to restructuring of CAT team we have had very little action over the last two years but however we are continuing to track recommendations and hope to implement actions over the next two years. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 160,248 Total number of live births 1866 Total number of infant deaths 8 Annual Budget: $92,554 Name: David Roth Organization: Oakland County Health Division State: MI Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 17 Postneontal Deaths: 6 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Prevention recommendations are shared Statute to protect FIMR teams: Approved Research Project Two-tiered system: Yes Percentage of interviews: 15% Community Education: Conduct a media campaign to encourage early and continuous prenatal care Conduct a media campaign to promote family NFIMR report on programs in USA and Puerto Rico, June 2016 77 planning or STD screening Conduct a media campaign about risks of prematurity Promote breastfeeding, Hold a town health fair, Develop culturally relevant health education materials Meet with community based organizations Service Systems Improvement: Eliminate a duplication of MCH services, Eliminate a gap in MCH services, Improve referral patterns among agencies , Improve bereavement referral services , Partner with local MOD Prematurity Campaign, Streamline MCH Medicaid application processes. Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis Report the FIMR findings to the State MCH Director Improved Practices: Initiate or expand public health case management, expand hospital quality assurance standards, expand services to homeless women and children, expand services to pregnant substance abusers, enhance services to bereaved families, Improve cultural competency protocols, Implement screening for smoking, Implement screening for postpartum depression. Professional Training: Data not provided Actions taken because of FIMR: Problem: Lack of access to prenatal care Recommendation/interventions: Outreach to pregnant women, enrolled women in Medicaid, facilitate access to Medicaid OB providers. Problem: Lack of awareness of Safe Sleep Recommendation/interventions: media campaigns, client teaching during home visits, crib distribution and community outreach. Problem: Low levels of breastfeeding initiation Recommendations/interventions: support for hospitals to baby friendly certified, media campaigns, community education, development of materials to encourage breast feeding support for Fathers Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes, Hmong Immigrant Populations: Hispanic and Arabic Population in your FIMR catchment area: Total population in the catchment area 1,231,640 Total number of live births 13,501 Total number of fetal deaths 53 Total number of infant deaths 90 Unknown Source: http://www.mdch.state.mi.us/pha/osr/chi/profiles/frame.html Annual Budget: County funded Name: Deborah Rhodes Organization: Saginaw County Health Department State: MI Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Two separate meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 78 Community Education: Conduct a media campaign to encourage early and continuous prenatal care, conduct a media campaign to promote family planning or STD screening, meet with community based organizations, Publish an annual FIMR report. Service Systems Improvement: Implement “one-stop-shopping” prenatal care, Increase public safety around MCH service sites in collaboration with City or County law enforcement Policy Advocacy: Data not provided Improved Practices: Initiate or expand public health case management, Expand services to pregnant substance abusers, Expand family planning services Professional Training: Conduct provider training on prematurity/preterm labor management, conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Actions taken because of FIMR: We have a Doctors dinner to discuss FIMR findings. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: 15 reviewed cases about 4,000 Name: Raeanne Madison Organization: Inter-Tribal Council of Michigan State: MI Approximate cases reviewed: Fetal Deaths, Number: 0 Neonatal Deaths, Number: 5 Post neonatal Deaths, Number: 10 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? There is no CDR in my community Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Community Education: Conduct a media campaign to promote prenatal alcohol and drug cessation, promote breastfeeding, Hold a town health fair, Develop culturally relevant health education materials, meet with community based organizations, publish a FIMR newsletter, Conduct a media campaign and community outreach to promote infant safe sleep. Service Systems Improvement: Eliminate a duplication of MCH services, Eliminate a gap in MCH services, Eliminate a gap in family planning services, Improve referral patterns among agencies. Policy Advocacy: Initiate a tribal council declaration of a day or week promoting MCH (Michigan Breastfeeding Awareness Month August). Improved Practices: Improve cultural competency protocols, implement screening for smoking. Professional Training: Conduct provider training on use of screening tool, Implement cultural competency training, Develop a community resource directory, Implement training on historical trauma, maternal depression, infant safe sleep, and Native American cultures. NFIMR report on programs in USA and Puerto Rico, June 2016 79 Actions taken because of FIMR: PROBLEM: Our communities were experiencing high rates of Postneontal deaths with associated unsafe sleep factors present. RECOMMENDATION: Saturate the community with consistent safe sleep messaging. INTERVENTIONS: Provided culturally-centered safe sleep and breastfeeding education to communities through health fairs and gatherings. Provided all MCH health care providers in tribal service areas with materials about safe sleep to ensure consistent messaging to tribal families. OUTCOMES: Community gatherings were evaluated and rated very highly among attendees in terms of changing thinking and behavioral intentions around safe sleep. Ongoing case reviews of infant deaths provide feedback on other factors that our team can address through our coalition. Ethnic Populations: American Indian/ Alaska Native (Please specify tribes/nations) 100% (many mixed-race - see below) Black/ African American (If specific culture, please name) 25% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 10% White (Please specify country of origin) 50% Special Religious or Cultural Subgroups: Yes, American Indians Population in your FIMR catchment area: We serve all tribal communities in the state of Michigan including urban and reservation service areas. Annual Budget: We do not have a specified budget for FIMR; however, we use Healthy Start and Tribal Home Visiting funds to coordinate FIMR meetings with staff quarterly meetings including travel and staff time. Name: Lori Devos Organization: Macomb County Health Department State: MI Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 5 Post neonatal Deaths: 11 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Hold a town health fair, develop culturally relevant health education materials, Our CAT team has been focusing on sponsoring safe sleep events in our community. Service Systems Improvement: Improve bereavement referral services Policy Advocacy: Invite the Mayor or County Executive to contribute to the FIMR annual report, Develop a policy in collaboration with City or County law enforcement offices or emergency services . Improved Practices: Expand services to pregnant substance abusers, Enhance services to bereaved families, Implement screening for substance abuse. Professional Training: NFIMR report on programs in USA and Puerto Rico, June 2016 80 Implement cultural competency training , Implement SIDS training programs , Implement bereavement training. Actions taken because of FIMR: Our CAT team has held several health fairs to educate families on safe sleep. Some were specific to the Arabic community in our area. Ethnic Populations: Data not available Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 855,000 Total number of live births 9400 Total number of fetal deaths 51 Total number of infant deaths 67 Annual Budget: Data not provided Name: Jane Kessler Organization: Oakland County Health Division State: MI Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Data not provided Statute to protect FIMR teams: Data not provided Two-tiered system: Data not provided Percentage of interviews: Data not provided Why interview is not done: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Total population in the catchment area 2,722,389 2014 estimate US Census Bureau Total number of live births 42,805 - 2010 Illinois Department of Public Health Total number of infant deaths 318 - 2010 Illinois Department of Public Health Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Alysia Osoff Organization: Ingham County Health Department State: MI Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, members attend each other’s meetings. NFIMR report on programs in USA and Puerto Rico, June 2016 81 Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 0 Community Education: FIMR Stakeholder Luncheon to generate interest Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Part of our healthy start grant Name: Sarah MacDonald Organization: Spectrum Health State: MI Approximate cases reviewed: Fetal Deaths: 4 Neonatal Deaths: 37 Post neonatal Deaths: 19 Other, please specify type of review & number Elective Terminations that received live birth certificates - 2 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Members attend each other's meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Our home interview numbers have gone down - we had 6 home interviews completed in 2015. Community Education: Promote breastfeeding, Meet with community based organizations, Publish an annual FIMR report, Conducted a media campaign to encourage safe sleep for infants, presented infant mortality data at a community meeting about disparities in infant mortality Service Systems Improvement: Eliminate a duplication of MCH services, Improve referral patterns among agencies, Improve bereavement referral services Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Enhance services to bereaved families, Expand family planning services , Implement screening for substance abuse, Implement screening for postpartum depression Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.), Implement cultural competency training, Develop a community resource directory , Other (please specify), Safe sleep trainings, held conference on Perinatal Mood Disorders Actions taken because of FIMR: Data not provided Ethnic Populations: American Indian/ Alaska Native (Please specify tribes/nations): 2% Asian (Please specify country of origin) 2% Black/ African American (If specific culture, please name) 26% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 16% NFIMR report on programs in USA and Puerto Rico, June 2016 82 White (Please specify country of origin) Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided 53% Name: Deb Lenz Organization: Kalamazoo County Health & Community Services State: MI Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 0 Post neonatal Deaths: 4 Reviews with FIMR program participation : Child Fatality Review, Child Abuse and Neglect Review What does CDR and FIMR look like in your community? Members attend each other's meetings; Prevention recommendations are shared. Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Conduct a media campaign to address disparities in infant health Service Systems Improvement: Eliminate a duplication of MCH services, Eliminate a gap in MCH services, Improve referral patterns among agencies, Eliminate a gap in family planning services, Policy Advocacy: Eliminate a duplication of MCH services, Eliminate a gap in MCH services, Eliminate a gap in family planning services, Improve referral patterns among agencies. Improved Practices: Implement standardized prenatal risk assessment, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression. Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc., Implement SIDS training programs. Actions Taken because FIMR: Data not provided Ethnic Populations: Black/ African American (If specific culture, please name): 50 White (Please specify country of origin): 50 Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: n/a Annual Budget: n/a Michelle Chiezah is the Minnesota state coordinator. Name: Michelle Chiezah Organization: Minnesota Department of Health State: MN Approximate cases reviewed: 0 Reviews with FIMR program participation : Child Fatality Review What does CDR and FIMR look like in your community? Currently there is no collaboration, Leadership is housed in one organization NFIMR report on programs in USA and Puerto Rico, June 2016 83 Statute to protect FIMR teams: No, Statute expired and trying to get it reinstated Two-tiered system: Yes Percentage of interviews: 0 Why interview is not done: We interview the mom or other next close kin who is an adult Community Education: Hold a town health fair, developing a culturally-competent curriculum to address racism experienced by the American Indian population in healthcare system Service Systems Improvement: Results from FIMR led to a staff liaison position being created at one of the local hospitals to create a linkage between the American Indian community and broader healthcare community Policy Advocacy: Report the FIMR findings to the State MCH Director, Invited state health commissioner to host listening session about health challenges facing the American Indian population in our state Improved Practices: Improve cultural competency protocols, Created an American liaison position at local hospital to link the American Indian population with broader community services Professional Training: Implement SIDS training programs Actions Taken because of FIMR: Revamping our FIMR program, and many individuals who participated in previous CAT or CRT have been helping out with that process Ethnic Populations: American Indian/ Alaska Native (Please specify tribes/nations) 90-100% Black/ African American (If specific culture, please name) 90-100% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 84 Mississippi has no state coordinator. Name: Arletha Howard Organization: Tougaloo College/Delta HealthPartners Healthy Start Initiative (Delta Regional FIMR) State: MS Approximate cases reviewed: 1 case was reviewed in 2015 and 1 CR was conducted in the Month of October 2015 Reviews with FIMR program participation: Infant Death Review What does CDR and FIMR look like in your community? There is no CDR in my community, Prevention recommendations are developed jointly , Prevention recommendations are shared Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 100% Community Education: Conduct a media campaign to promote family planning or STD screening Promote breastfeeding Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Mary Craig Organization: Mississippi State Department of Health State: MS Approximate cases reviewed: Data not provided Reviews with FIMR program participation: No What does CDR and FIMR look like in your community? There is no CDR in my community, Currently there is no collaboration , Leadership is housed in one organization , limited CDR and only at the state level Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Promote breastfeeding, Meet with community based organizations, Publish an annual FIMR report, collaborate with March of Dimes on media messaging; at the local level, we have no funding for media. Service Systems Improvement: Eliminate a gap in family planning services, improve referral patterns among agencies, Improve bereavement referral services, Partner with local MOD Prematurity Campaign. NFIMR report on programs in USA and Puerto Rico, June 2016 85 Policy Advocacy: Report findings after every CRT and CAT meeting to more than 150 medical providers, nurses, social workers, public health, community leaders. provide data to the state physician overseeing FIMR. Improved Practices: Initiate or expand public health case management, expand hospital quality assurance standards, expand services to pregnant substance abusers, enhance services to bereaved families, expand family planning services, Implement standardized prenatal risk assessment, Improve cultural competency protocols, Implement screening for substance abuse, Implement screening for smoking. Professional Training: Conduct provider training on prematurity/preterm labor management Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement cultural competency training, Implement SIDS training programs, Implement bereavement training, Implement cultural competency assessment for FIMR team members Actions taken because of FIMR: PROBLEM: Lack of referrals by providers to Family Planning through the health dept. RECOMMENDATION: All women in prenatal classes and postpartum are referred to Family Planning INTERVENTIONS: Training of PNC providers at every CRT meeting OUTCOMES: Review of ongoing cases show an increase in referrals to FP as noted on the medical records. PROBLEM: Initial chart reviews in 2012 showed High rates of SIDS cases RECOMMENDATION: FIMR RN review with coroners to verify SIDS vs asphyxia/overlay INTERVENTIONS: Proposed expanded trainings of coroners at state meetings; met with 12 county coroners and their assistants on a quarterly basis first two years. Met with state Medical Examiners. OUTCOMES: Cases are correctly designated PROBLEM: Lack of consistent Infant Safe Sleep information being given to new parents/grandparents/foster parents RECOMMENDATION: Collaborate with MS SIDS Alliance to provide standardization of training. INTERVENTIONS: 9 Delivering hospitals visited in collaboration with MS SIDS Alliance to provide standardization of training. MS SIDS Alliance provided public recognition of hospitals completing the following: All MCH hospital staff trained with the NICHD/March of Dimes CE program; All parents to view the NICHD Infant Safe Sleep video and sign form acknowledging that they saw DVD (or declined) OUTCOMES: All 10 hospitals completed the above; FIMR involved with public recognition of 2 of the hospitals. MS State office also providing books for all new parents on safe sleep. INTERVENTIONS: Trainings completed; parents instructed and viewed DVDs OUTCOMES: SUIDs decreasing, although much still to do. PROBLEM: Public awareness of infant safe sleep lacking. RECOMMENDATION: Conduct a one-day CE Infant Safe Sleep Conference INTERVENTIONS: Conference conducted in November 2014, 165 attendees included nurses, social workers, faith based, community leaders, foster parents, child care workers OUTCOMES: Train the trainer programs continuing; faith based meeting with 8 faith leaders trained and provided with pack n plays. Ethnic Populations: American Indian/ Alaska Native (Please specify 0 NFIMR report on programs in USA and Puerto Rico, June 2016 86 tribes/nations) Asian (Please specify country of origin) 0 Black/ African American (If specific culture, please name) 38% Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 0 3% unknown White (Please specify country of origin) 59% Foreign-Born/ Immigrants unknown Special Religious or Cultural Subgroups: Yes, Baptist, Catholic, Methodist, etc. Population in your FIMR catchment area: Total number of live births 6,055 Annual Budget: 50,000 approx. for regional FIMR NFIMR report on programs in USA and Puerto Rico, June 2016 87 Kari Tutwiler is the Montana state coordinator Name: Kari Tutwiler Organization: State Public Health Human services-FICMMR State: MT Which Agency leads the coordination of your FIMR program?: The state Dept. Public Health & Human Services leads the coordination of overall program, local, county teams perform the actual work. Do members of a federal Healthy Start participate in your FIMR team(s)?: Our community does not have a Healthy Start program Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR collaboration look like in your community?: Leadership is housed in one organization, There is no separation between FIMR & Child Review. Which of these theories/methods are being implemented in conjunction with FIMR: Data not provided Statute to protect FIMR programs: Yes Is the program currently reviewing cases? : Yes In what year did Case Reviews first begin?: 1990-1991 Pilot sites first began Approximately how many cases do you review in 2015 by category: Fetal Deaths, Number We have averaged 56 fetal deaths from 2011- 2014. Final 2015 data is not available until July 2016. Neonatal Deaths, Number Final 2015 data not available until July 2016. Percentage of Interview: Data not provided Two tiered system: No Please tell us more about your Community Action Team. The CAT is: Our county review team also is the community action team. Community Education: Promote breastfeeding, Hold a town health fair Service Systems Improvement: Increase public safety around MCH service sites in collaboration with City or County law enforcement Policy/Advocacy: Develop local or state legislation Improved Practices, Programs, and Policies: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Populations: Data not provided Population in your FIMR catchment area: Total population in the catchment area 986,415 Total number of live births Won't have final 2015 data until July 2016. Total number of fetal deaths Averaged 56 fetal deaths in MT from 2011- 2014. Annual Budget: 55,000 How many funded staff are on the state level?: 1.0 FTE How many in-kind staff are on the state level?: 6 What are the functions of the state program?: Technical assistance to local teams , Coordination of local teams , Training of local teams, Data collection and reporting. Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: No NFIMR report on programs in USA and Puerto Rico, June 2016 88 Name: Vicki Ruby Organization: Sheridan County Public Health Department State: MT Approximate cases reviewed: Fetal Deaths, Number: 1 Neonatal Deaths, Number: 1 Post neonatal Deaths, Number: 1 Reviews with FIMR program participation : Child Fatality Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR. Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 100% Why interview is not done: N/A Community Education: Hold a town health fair, Meet with community based organizations conduct a media campaign to promote prenatal alcohol and drug cessation, promote breastfeeding Service Systems Improvement: Improve referral patterns among agencies, Increase public safety around MCH service sites in collaboration with City or County law enforcement. Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Report the FIMR findings to the State MCH Director, Develop a policy in collaboration with City or County law enforcement offices or emergency services. Improved Practices: Implement screening for substance abuse,Implement screening for smoking Professional Training: Data not provided Actions Taken because of FIMR: There are no birthing hospitals nor ob services in this county. Referrals to services for at-risk mothers and infants are made by local clinicians, the WIC Program, and mental health services. Ethnic Populations: American Indian/ Alaska Native (Please specify 0 tribes/nations) Asian (Please specify country of origin) 0 Black/ African American (If specific culture, please name) 0 Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) : 50% White (Please specify country of origin): 50% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area : 700 Total number of live births: 0 Total number of fetal deaths: 0 Total number of infant deaths: 0 Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 89 Name: Tracy Knoedler Organization: Gallatin City-County Health Department State: MT Approximate cases reviewed: Fetal Deaths: 2 Neonatal Deaths: 0 Post neonatal Deaths: 1 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? There is no CDR in my community Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Why interview is not done: We have not customarily done this unless we need additional information outside of what's available from the medical and police records. Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Karen Maloughney Organization: Butte-Silver Bow Health Department State: MT Approximate cases reviewed: Fetal Deaths, Number 1 Other, please specify type of review & number Child Death Review - Four Cases Reviews with FIMR program participation: Child Fatality Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Joint reviews are conducted, Prevention recommendations are developed jointly, Prevention recommendations are shared. Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Community Education: Conduct a media campaign to promote family planning or STD screening, Promote breastfeeding Service Systems Improvement: Data not provided Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Develop local or state legislation. Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: NFIMR report on programs in USA and Puerto Rico, June 2016 90 For the two years that I have been conducting FICMMR reviews (we do not separate fetal deaths from infant/child deaths), our biggest prevention effort has been with suicide. Our county had three suicides within a six-week time frame and then eight months later, two more suicides that were three months apart. Our state ranks extremely high in suicide rates, not only in children under 18, but in adults as well. In the 2015 Legislative session, House Bill 374 was sponsored for our Suicide Prevention Team. This bill was passed into law. This new law allows for suicide and prevention training be available to every teacher or specialist who applies for certification renewal. We are hoping that this new law, along with other prevention efforts, will help us decrease the number of suicides in our state. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Katherine Basirico Organization: Anaconda Deer Lodge County Public Health State: MT Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 0 Postneonatal Deaths: 0 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? Data not provided Statute to protect FIMR teams: Yes Two-tiered system: Data not provided Percentage of interviews: Data not provided Community Education: Promote breastfeeding, Other (please specify) new to position - building on and creating new team Service Systems Improvement: Eliminate a gap in MCH services, Eliminate a gap in family planning services, Improve referral patterns among agencies, Improve bereavement referral services, Implement “one-stop-shopping” prenatal care, Increase public safety around MCH service sites in collaboration with City or County law enforcement, Streamline MCH Medicaid application processes Policy Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH, Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis Include the Mayor or County Executive as a FIMR Community Action Team member, Invite the Mayor, County Executive or other elected official to chair a FIMR town meeting, Invite the Mayor or County Executive to contribute to the FIMR annual report, Report the FIMR findings to the State MCH Director, Develop a policy in collaboration with City or County law enforcement offices or emergency services, Develop local or state legislation Improved Practices: Initiate or expand public health case management, Expand services to pregnant substance abusers, Enhance services to bereaved families, Expand family planning services, Implement standardized prenatal risk assessment, Improve cultural competency protocols, NFIMR report on programs in USA and Puerto Rico, June 2016 91 Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression Professional Training: Conduct provider training on prematurity/preterm labor management Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement cultural competency training, Implement SIDS training programs, Develop a community resource directory, Implement bereavement training, Implement cultural competency assessment for FIMR team members Actions taken because of FIMR: Problem: Lack of referrals and resources for parenting skills, substance abuse / cessation, at risk population factors. recommendation: care coordination, created and coordinate referrals among resources, establish Parents as teacher’s home visiting program, other home visiting Interventions: training of PCP, other community organizations on referral system and importance of programs Outcomes: starting to build home visiting culture with increase in referrals We are a high risk community which is starting to build a system of programs and resources to reduce social determinants of health and other risk factor. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Darleen Williams Organization: Powder River Public Health State: MT Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 0 Post neonatal Death: 0 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review , Suicide Review Panel, Homicide Review Panel What does CDR and FIMR look like in your community? Leadership is housed in one organization , Staff works on both CDR and FIMR , Joint reviews are conducted, Prevention recommendations are shared Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: No deaths in 2015 Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 92 Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Tammy Matt Organization: CSKT Tribal Health Department State: MT Approximate cases reviewed: Fetal Deaths, Number 6 Post neonatal Deaths, Number 3 Other, please specify type of review & number 2 maternal Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review , What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Joint reviews are conducted, Meetings are coordinated, Prevention recommendations are developed jointly , Prevention recommendations are shared Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 50% Community Education: Conduct a media campaign to encourage early and continuous prenatal care Promote breastfeeding, Other (please specify) working on media campaign regarding bed sharing Service Systems Improvement: Improve referral patterns among agencies Policy Advocacy: Develop a policy in collaboration with City or County law enforcement offices or emergency services Improved Practices: Improve cultural competency protocols, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking , Implement screening for postpartum depression. Professional Training: Data not provided Actions taken because of FIMR: we have had a high number of infant deaths related to co-sleeping and are working on a collaborative media campaign for public education Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes, CSKT Tribes Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Kathy Helmuth Organization: Richland County Health Department State: MT Approximate cases reviewed: Fetal Deaths, Number: 2 Other, please specify type of review & number: 1 Infant Reviews with FIMR program participation: Child Fatality Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Funding is shared, Joint reviews are conducted, Other (please specify) We are a frontier county. Our one team reviews all Fetal, Infant, Child and Maternal deaths. Statute to protect FIMR teams: Yes NFIMR report on programs in USA and Puerto Rico, June 2016 93 Two-tiered system: No Percentage of interviews:100% Why interview is not done: I reviewed this survey and cannot find where I would have indicated that our data does not include info from a family member. We do include it by interview. Family are not invited or allowed at the team meetings. Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Our experience is not overly helpful as our numbers are so small and our deaths have been largely from unpreventable causes that have not led to public prevention efforts. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 10,000 Total number of live births: 140 Total number of fetal deaths: 2 Total number of infant deaths: 1 Annual Budget: Data not provided Name: Karyn Johnston Organization: Granite County Public Health State: MT Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 0 Post neonatal Deaths: 0 Other, please specify type of review & number 0 Reviews with FIMR program participation: Child Fatality Review , Suicide Review Panel, Homicide Review Panel, Other SIDS review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR , Joint reviews are conducted Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Why interview is not done: It's up to the County Coroner Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 94 Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Kim Franchi Organization: Jefferson County Public Health State: MT Approximate cases reviewed: Other, please specify type of review & number 3 children(MVC) 2 teenages (suicide) Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR , Members attend each other's meetings , Joint reviews are conducted, Prevention recommendations are shared Statute to protect FIMR teams: No Two-tiered system: No Percentage of interviews: My information typically comes from coroner interview with family and would be 40%. Community Education: Conduct a media campaign to encourage early and continuous prenatal care Promote breastfeeding, Hold a town health fair Service Systems Improvement: Improve referral patterns among agencies , Improve bereavement referral services Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Implemented a home visiting service to new and expectant mothers. Provide educational information on various topics relevant to FIMR issues, and in particular issues currently affecting our community. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Cynthia Grubb Organization: Pondera County Health Department State: MT Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Child Fatality Review , Domestic Violence Review, Child Abuse and Neglect Review What does CDR and FIMR look like in your community? Currently there is no collaboration Statute to protect FIMR teams: Yes Two-tiered system: Data not provided Percentage of interviews: Data not provided Why interview is not done: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 95 Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Carol McDivitt Organization: Glacier County Health Department State: MT Approximate cases reviewed: Fetal Deaths, Number 5 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR , Other regional MOU with larger City/ County Health Dept to review local cases Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Community Education: Conduct a media campaign to encourage early and continuous prenatal care Promote breastfeeding, Hold a town health fair Service Systems Improvement: Data not provided Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Ethnic Populations: American Indian/ Alaska Native (Please specify tribes/nations) 80 White (Please specify country of origin) 20 Special Religious or Cultural Subgroups: Yes, Hutterite Colonies Population in your FIMR catchment area: Total population in the catchment area Annual Budget: Data not provided 600 Name: Kami Doughty Organization: oneHealth State: MT Approximate cases reviewed: Fetal Deaths, Number 1 Other, please specify type of review & number Child review 1 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review , Other SIDS review What does CDR and FIMR look like in your community? Our FICMMR review team puts their reports into the online CDR data base Statute to protect FIMR teams: Yes NFIMR report on programs in USA and Puerto Rico, June 2016 96 Two-tiered system: No Percentage of interviews: Data not provided Community Education: Develop culturally relevant health education materials Educational materials placed at site of drowning regarding swimmer safety, personal flotation devices, etc. Service Systems Improvement: Data not provided Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Problem: Lack of education at a local recreational area on how to use PFDs and the importance of avoiding fatigue while swimming. Recommendation: Educational instructions and advisements regarding water safety be placed on the admittance board at the entrance of the recreational area. Interventions: PHN to put signs and posters up at the entrance to the recreational area. Outcomes: No drownings at the recreational area in 2015. Ethnic Populations: American Indian/ Alaska Native (Please specify 0 tribes/nations) Asian (Please specify country of origin) 0 Black/ African American (If specific culture, please name) 0 Pacific Islander (Please specify if Native Hawaiian, 0 Guamanian, Samoan or Other) Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto 0 Rican, Cuban, Descendants of Spain, Central and/or South American) White (Please specify country of origin) 100% Special Religious or Cultural Subgroups: Yes Population in your FIMR catchment area: Total population in the catchment area 19,400 Total number of live births 360 Total number of fetal deaths 2 Total number of infant deaths 1 Annual Budget: Data not provided Name: Katlynn Reed Organization: RiverStone Health State: MT Approximate cases reviewed: Fetal Deaths, Number 7 Neonatal Deaths, Number 16 Postneonatal Deaths, Number 9 Reviews with FIMR program participation: Child Fatality Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Data not provided Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Conduct a media campaign to encourage early and NFIMR report on programs in USA and Puerto Rico, June 2016 97 continuous prenatal care, conduct a media campaign to promote family planning or STD screening, Conduct a media campaign to address disparities in infant health, Promote breastfeeding, Meet with community based organizations Service Systems Improvement: Data not provided Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Problem-Increasing awareness of SIDs and Co-sleeping deaths Recommendation- provide educational materials to new parents, expand on presentation of materials Intervention-distributed several copies of safe to sleep books, magnets, posters etc. to several areas of community. Purchased a mobile crib to display the correct furnishings and placement of baby, which can be easily moved to different locations. Outcomes-ongoing, first review not yet complete Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Christina Robinson Organization: Stillwater Billings Clinic State: MT Approximate cases reviewed: Fetal Deaths: 2 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review , Suicide Review Panel, Homicide Review Panel What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR , Funding is shared, Members attend each other's meetings. Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 50% Why interview is not done: Only reviewed 2 cases and one was done prior to my employment Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to promote prenatal alcohol and drug cessation Conduct a media campaign to promote family planning or STD screening Conduct a media campaign about risks of prematurity Hold a town health fair, Meet with community based organizations Service Systems Improvement: Eliminate a duplication of MCH services , Eliminate a gap in MCH services Policy Advocacy: Report the FIMR findings to the State MCH Director Develop a policy in collaboration with City or County law enforcement offices or emergency services Improved Practices: Initiate or expand public health case management , NFIMR report on programs in USA and Puerto Rico, June 2016 98 Enhance services to bereaved families , Implement standardized prenatal risk assessment Professional Training: Conduct provider training on prematurity/preterm labor management Develop a community resource directory Actions taken because of FIMR: Re-establishing the FICMMR team Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes, Hutterite, Jehovah Witness, Native American, home school Population in your FIMR catchment area: Total population in the catchment area : 9290 Annual Budget: Data not provided Name: Megan Olson Organization: Prairie County Public Health Department State: MT Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Joint reviews are conducted, Meetings are coordinated, Prevention recommendations are developed jointly , Prevention recommendations are shared Statute to protect FIMR teams: Yes Two-tiered system: Data not provided Percentage of interviews: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Ella Tweten Organization: Valley County Health Department State: MT Approximate cases reviewed: Other, please specify type of review & number child death review one Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: one out of one Community Education: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 99 Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: We send a letter to each family with a new child from our community, let them know our services and encourage a home visit if they would like. Included in the mailing is info on immunizations, safe sleep and WIC resources. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Julie Stroh Organization: Missoula City-County Health Dept. State: MT Approximate cases reviewed: Fetal Deaths, Number: 6 Neonatal Deaths, Number: 4 Post neonatal Deaths, Number: 1 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? Currently there is no collaboration Statute to protect FIMR teams: Two-tiered system: No Percentage of interviews: Data not provided Community Education: The Health Dept. does many of these activities, but not necessarily the FIMR team Service Systems Improvement: The Health Dept. does many of these activities but not necessarily the FIMR team. We would like to implement some of the above, such as bereavement referral services and one-stop shopping prenatal care Policy Advocacy: Current funding does not allow for staff time to implement the above activities, though we would be interested in many of them Improved Practices: Staff limitations related to funding Professional Training: Same as above comments Actions taken because of FIMR: Problem: Lack of referrals to substance abuse and smoking cessation services. Recommendation: Create a Resource Guide for Health Care Providers. Interventions: The Resource Guide is still a work in progress. One practice has also hired a Social Worker to make referrals for clients or provide contact information to community resources. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 112,000 Total number of live births: 1200 Total number of fetal deaths: Refer to State data Total number of infant deaths: Refer to State data Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 100 Name: LuAnn Burgmuller Organization: Ravalli County Public Health State: MT Approximate cases reviewed: Fetal Deaths, Number: 0 Neonatal Deaths, Number: 0 Post neonatal Deaths, Number: 0 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? There is no CDR in my community Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Community Education: Promote breastfeeding, Develop culturally relevant health education materials Meet with community based organizations, Other (please specify) Promoted water safety throughout community Service Systems Improvement: Streamline MCH Medicaid application processes Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Problem: Major river running through several communities in our county. River has dangerous low-head dam which has been site of several accidents and one death of a 6-year-old girl. Recommendation: Closure of section of river containing low head dam during times of high-water. Education of community members about importance of wearing lifejackets/river safety awareness. Interventions: Supported Montana FWP in passing rule to close river section temporarily during high risk water levels. Conducted lifejacket and water safety campaign at several local events (i.e. Farmer's Market, Spring Fair, etc.) Distributed water safety material to local river outfitters and recreational businesses. Outcomes: No river deaths in 2015, but review and interventions will continue year by year. Ethnic Populations: American Indian/ Alaska Native (Please specify tribes/nations) 0.8% Asian (Please specify country of origin) 0.1% Black/ African American (If specific culture, please name) 0.14% Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 0.4% 1.8% White (Please specify country of origin) 96% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 41,000 Total number of live births 300 Total number of fetal deaths <5 per 1000 Total number of infant deaths <5 per 1000 NFIMR report on programs in USA and Puerto Rico, June 2016 101 Annual Budget: 38,000. Name: Sue Snitker Organization: Indian Health Service State: PHN MT Approximate cases reviewed: Fetal Deaths, Number 2 Neonatal Deaths, Number 2 Post neonatal Deaths, Number 2 Reviews with FIMR program participation: Child Fatality Review, Maternal Mortality Review, Child Abuse, and Neglect Review What does CDR and FIMR look like in your community? There is no CDR in my community Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 100% Why interview is not done: Our clients in health care are also the cases we review, so 1st hand information is always used. Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to promote prenatal alcohol and drug cessation, Conduct a media campaign to promote family planning or STD screening, Conduct a media campaign about risks of prematurity, Promote breastfeeding, Develop culturally relevant health education materials Service Systems Improvement: Eliminate a gap in MCH services, • Eliminate a gap in family planning services, • Implement “one-stop-shopping” prenatal care, • Streamline MCH Medicaid application processes Policy Advocacy: Improved Practices: Expand services to pregnant substance abusers, • Expand family planning services, • Implement screening for domestic violence, • Implement screening for substance abuse, • Implement screening for smoking, • Implement screening for postpartum depression Professional Training: Develop a community resource directory Actions taken because of FIMR: we need local planning to decrease substance abuse! Increase use of reversible contraception. Special Religious or Cultural Subgroups: NO Population in your FIMR catchment area: Total population in the catchment area 10,000 Total number of live births 300 Total number of fetal deaths 2 Total number of infant deaths 2 Annual Budget: Data not provided Name: Marianne Saylor NFIMR report on programs in USA and Puerto Rico, June 2016 102 Organization: Public Health State: MT Approximate cases reviewed: Other, please specify type of review & number 4 children Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review , Child Abuse and Neglect Review, Suicide Review Panel, Homicide Review Panel What does CDR and FIMR look like in your community? Data not provided Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Up to this point, we have had no need to interview family members Why interview is not done: Community Education: Conduct a media campaign to promote family planning or STD screening Promote breastfeeding, Hold a town health fair, Meet with community based organizations Service Systems Improvement: Data not provided Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Report the FIMR findings to the State MCH Director, Develop a policy in collaboration with City or County law enforcement offices or emergency services Improved Practices: Enhance services to bereaved families, Expand family planning services, Implement screening for smoking Professional Training: Data not provided Actions taken because of FIMR: Problem: minimal Family planning & after care Recommendation: develop a family planning clinic & advertise a follow up after care Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Karen Morey Organization: Sanders County Health Department State: MT Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 0 Post neonatal Deaths: 3 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? Prevention recommendations are shared Statute to protect FIMR teams: Two-tiered system: No Percentage of interviews: Why interview is not done: We glean all our information from the coroner, MD, ambulance, deputies Community Education: Promote breastfeeding, Develop culturally relevant health education materials, Meet with community based organizations Service Systems Improvement: Develop a 24/7 prenatal hotline , Eliminate a gap in family planning services, Improve referral patterns among agencies Policy Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis NFIMR report on programs in USA and Puerto Rico, June 2016 103 Include the Mayor or County Executive as a FIMR Community Action Team member Improved Practices: Data not provided Professional Training: Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.)Develop a community resource directory Actions taken because of FIMR: Small county with lack of resources. No family planning within 100 miles. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Byrnne Leftridge Organization: Flathead City-County Health Department State: MT Approximate cases reviewed: Data not provided Reviews with FIMR program participation : Data not provided What does CDR and FIMR look like in your community? Data not provided Statute to protect FIMR teams: Data not provided Two-tiered system: Data not provided Percentage of interviews: Data not provided Why interview is not done: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Special Religious or Cultural Subgroups: Data not provided Ethnic Populations: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Melissa Brummell Organization: Madison County Public Health State: MT Approximate cases reviewed: Fetal Deaths, Number 0 Neonatal Deaths Number: 0 Post neonatal Deaths, Number 0 Reviews with FIMR program participation : Child Fatality Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 0 Community Education: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 104 Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services. Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Develop a community resource directory Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 7500 Total number of live births: 53 Total number of fetal deaths: 0 Total number of infant deaths: 0 Annual Budget: Data not provided Name: Jennifer Chappell Organization: Sweet Grass Public Health State: MT Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review , Suicide Review Panel, Homicide Review Panel, Other SIDS review What does CDR and FIMR look like in your community? Leadership is housed in one organization Statute to protect FIMR teams: Yes Two-tiered system: Data not provided Percentage of interviews: Data not provided Community Education: Hold a town health fair Service Systems Improvement: Eliminate a duplication of MCH services Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Expand family planning services , Implement screening for domestic violence , Implement screening for substance abuse Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc. Implement SIDS training programs, Implement bereavement training , Implement cultural competency assessment for FIMR team members. Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Eva Kerr Organization: Meagher County Health Department State: MT Approximate cases reviewed: Fetal Deaths, Number 0 Neonatal Deaths, Number 0 NFIMR report on programs in USA and Puerto Rico, June 2016 105 Post neonatal Deaths, Number 0 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? Data not provided Statute to protect FIMR teams: I would think so, but not 100% sure. I am fairly new to this position and have not had a case yet. Two-tiered system: Yes Percentage of interviews: 0 Community Education: Promote breastfeeding, Hold a town health fair, Meet with community based organizations Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: American Indian/ Alaska Native (Please specify 5% tribes/nations) Asian (Please specify country of origin) 0 Black/ African American (If specific culture, please name) 1% Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) 0 Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Spain, Central and/or South American) 3% Rican, Cuban, Descendants of White (Please specify country of origin) 91% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 2000 Total number of live births 15 Total number of fetal deaths 0 Total number of infant deaths 0 Annual Budget: Data not provided Name: Sue Hansen Organization: Beaverhead County Public Health State: MT Approximate cases reviewed: Fetal Deaths, Number 0 Neonatal Deaths, Number 1 Post neonatal Deaths, Number 0 Other, please specify type of review & number 0 Reviews with FIMR program participation: Child Fatality Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Funding is shared, Joint reviews are conducted, NFIMR report on programs in USA and Puerto Rico, June 2016 106 Prevention recommendations are developed jointly Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Why interview is not done: Team did not indicate need to interview family Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 9000 Total number of live births 100 Annual Budget: Data not provided Name: Leigh Estvold Organization: Lake County Public Health Dept. State: MT Approximate cases reviewed: Fetal Deaths:4 Neonatal Deaths: 2 Post neonatal Deaths: 3 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review , Other (please specify) fetal What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Joint reviews are conducted, Prevention recommendations are developed jointly Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Due to lack of funding we haven't had any successful campaigns in the past 2 years. Ethnic Populations: American Indian/ Alaska Native (Please specify tribes/nations) 75 primarily confederated Salish & Kootenai and Crow White (Please specify country of origin) 2 Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 40000 Total number of fetal deaths 4 NFIMR report on programs in USA and Puerto Rico, June 2016 107 Total number of infant deaths 2 Annual Budget: Data not provided Name: Barbara Mau’s Organization: Wibaux County Health Department State: MT Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 0 Post neonatal Deaths: 0 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? Neighboring County inputs information and collaborates with our county to perform reviews Statute to protect FIMR teams: Data not provided Two-tiered system: Yes Percentage of interviews: 0 Community Education: Promote breastfeeding, Hold a town health fair, Develop culturally relevant health education materials Meet with community based organizations Service Systems Improvement: Develop a 24/7 prenatal hotline, Eliminate a gap in MCH services, Improve referral patterns among agencies. Policy Advocacy: Data not provided Improved Practices: Initiate or expand public health case management Professional Training: Implement SIDS training programs Actions taken because of FIMR: Using the MCH funding, we have implemented postnatal visits to new moms, which allows us to provide information on immunizations, safe sleep, poison control Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes Population in your FIMR catchment area: 12-15/year Annual Budget: we only receive MCHBG funds-$1735.00/year Name: Timber Dempewolf Organization: Dawson County Health Department State: MT Approximate cases reviewed: Fetal Deaths Number: 2 Neonatal Deaths, Number: 1 Post neonatal Deaths Number: 1 Reviews with FIMR program participation : Child Fatality Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Cases are triaged into FIMR or CDR, Meetings are coordinated, Prevention recommendations are developed jointly, and Prevention recommendations are shared Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 108 Community Education: Promote breastfeeding, Meet with community based organizations Service Systems Improvement: Improve referral patterns among agencies Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Data not provided Professional Training: Implement SIDS training programs, Develop a community resource directory Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 9500 Total number of live births: 100 Total number of fetal deaths: 1 Total number of infant deaths: 1 Annual Budget: Data not provided Name: Kristi Aklestad Organization: Toole County Health Department State: MT Approximate cases reviewed: Fetal Deaths, Number: 0 Neonatal Deaths, Number: 0 Post neonatal Deaths, Number: 0 Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR look like in your community? There is no CDR in my community Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 100 Community Education: Promote breastfeeding, Meet with community based organizations, Service Systems Improvement: Implement screening for smoking Policy Advocacy: Data not provided Improved Practices: Implement screening for smoking Professional Training: Data not provided Actions taken because of FIMR: Problem: adolescent suicide ideation in combination with an actual adolescent suicide Recommendation: educate community members and school staff regarding risks for suicide and how to respond Intervention: QPR training for 100% of the schools in our county (all certified staff) and other community member, ASIST training offered for school and community Outcome: all certified staff attended QPR, 26 community members, including public health and first responders and some school staff, attended ASIST training Ethnic Populations: Total population in the catchment area 5200 Special Religious or Cultural Subgroups: Yes, Hutterite Population in your FIMR catchment area: Total population in the catchment area 5200 Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 109 Missouri does not have a state coordinator. Name: Lora Gulley Organization: Maternal Child and Family Health Coalition State: MO Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Currently there is no collaboration Statute to protect FIMR teams: No Two-tiered system: Yes Percentage of interviews: 30% Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Conduct a media campaign to address disparities in infant health, Develop culturally relevant health education materials, Meet with community based organizations. Service Systems Improvement: Data not provided Policy Advocacy: Data not provided Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: We have established a collective impact initiative in our community called Flourish St. Louis to address infant mortality by bringing diverse sectors together in new ways. FIMR will help provide data and critical information about factors contributing to infant and fetus deaths that can lead to best practices and adoption of key policies. Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided Name: Mary Jean Brown Organization: MCHC State: MO Approximate cases reviewed: Fetal Deaths: 13 Neonatal Deaths: 10 Post neonatal Deaths, Number deaths after 4 wks.= 4deaths, all other 6 died < 3wks.= 10 Reviews with FIMR program participation: Child Fatality Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Members attend each other’s meetings Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Community Education: Conduct a media campaign to encourage early and continuous prenatal care, conduct a media campaign to encourage early and continuous prenatal care Promote breastfeeding, Develop culturally relevant health education materials Meet with community based organizations, NFIMR report on programs in USA and Puerto Rico, June 2016 110 Publish an annual FIMR report, Our FIMR report is not annual. Twice in 10 yrs. We held a town hall meeting with MODHSS for maternal mortality. Service Systems Improvement: Improve bereavement referral services, Streamline MCH Medicaid application processes, working on the Medicaid process Policy Advocacy: Report the FIMR findings to the State MCH director Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Problem: Lack of or late prenatal care. Interventions: Surveyed the city for places that did proof of pregnancy and cost and then published the list in our community resource guide. The proof of pregnancy is no longer needed to enroll in Medicaid, but many, many providers did not know that. Wrote a white paper on the slow response to enrolling clients in Medicaid. Working now to advertise that no proof of pregnancy is required. Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total number of live births 7205 (2012 data) Total number of fetal deaths 45 (2009 data) Total number of infant deaths IMR 7.1 (2009 data) Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 111 Nebraska does not have a state coordinator. Name: Carol Isaac Organization: Douglas County Health Department State: NE Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 16 Post neonatal Deaths: 10 Reviews with FIMR program participation : Data not provided What does CDR and FIMR look like in your community? Our State CDR liaison attends our FIMR meetings and we present annually to the State CDR Team (we focus on our FIMR Annual Report) Statute to protect FIMR teams: This is a yes and no answer for us. The NE legislative statues which give our state team the authority to CDR also give us the authority to do infant death review, but not fetal death review. We do not have any specific FIMR statutes in place at this time. Two-tiered system: Yes Percentage of interviews: 20% Community Education: Promote breastfeeding, develop culturally relevant health education materials, meet with community based organizations, Publish an annual FIMR report, A preconception heath education program known as the Teen Outreach Program (TOP) was expanded to a total of 4 community sites, safe sleep education was implemented by home visitors with the MIECHV Program in Douglas County (program oversight is provided by DCHD), a train-the trainer session to promote preterm labor education was developed for local home visitation programs and implemented by DCHD in partnership with the MOD, maternal depression screening was implemented by the MIECHV Program in an attempt to identify the extent of perinatal depression in Douglas County. Service Systems Improvement: Eliminate a duplication of MCH services, Eliminate a gap in MCH services , Improve bereavement referral services ,Partner with local MOD Prematurity Campaign , Partnered with local law enforcement re: training on utilizing the CDC SUID crime scene investigation checklist when investigating SUID cases, partnered with NE Perinatal Q.I. Collaborative in getting Count the Kicks information in hands of all birthing hospitals and OBs across NE. Policy Advocacy: Include the Mayor or County Executive as a FIMR Community Action Team member, Report the FIMR findings to the State MCH Director Improved Practices: Enhance services to bereaved families, Implement screening for postpartum depression. Professional Training: Conduct provider training on prematurity/preterm labor management Implement SIDS training programs, develop a community resource directory, Other (please specify) Our resource directory was specific for medical providers who needed to refer women to mental health providers who were expert in the area of perinatal depression. It was an on-line directory. Actions taken because of FIMR: Data not provided Ethnic Populations: Asian (Please specify country of origin) 4% (Korea) Black/ African American (If specific culture, please name): 38% NFIMR report on programs in USA and Puerto Rico, June 2016 112 Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American): 12% (South America) White (Please specify country of origin) 46% (U.S.) Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 543, 244 Total number of live births: 8,275 Total number of fetal deaths: 59 Total number of infant deaths: 43 Annual Budget: $62,000 NFIMR report on programs in USA and Puerto Rico, June 2016 113 Rebecca Gonzales is the Nevada state coordinator. Name: Jan Houk Organization: Washoe County Health District State: NV Approximate cases reviewed: Fetal Deaths: 21 Neonatal Deaths: 20 Post neonatal Deaths: 1 Other: 0 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Staff works on both CDR, and FIMR, Prevention recommendations are shared. Statute to protect FIMR teams: Not sure, but our FIMR program is authorized to access medical records for confidential review purposes on behalf of the State Health Officer. Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: At first we had problems getting demographic information to contact moms. Since then, it has been hard to make contact with the moms as phone numbers frequently change and we have a transient population. We have made changes to our approach and have been able to interview more moms. Community Education: Conduct a media campaign to encourage early and continuous prenatal care. Conduct a media campaign to encourage early and continuous prenatal care, conduct a media campaign to promote prenatal alcohol and drug cessation, hold a FIMR town meeting, meet with community based organizations, Publish an annual FIMR report , Other (please specify) Improve Database for 211 Service Systems Improvement: Eliminate a gap in MCH services, Improve referral patterns among agencies, Streamline MCH Medicaid application processes. Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Report the FIMR findings to the State MCH Director. Improved Practices: Enhance services to bereaved families, Implement screening for substance abuse. Professional Training: Develop a community resource directory. Actions taken because of FIMR: The Washoe County FIMR CAT Team is assisting with updating the resource directory (211) through the MCH coalition. In addition, efforts have been made to implement a media campaign to encourage early and regular prenatal care. The Community Action Team has initiated working with the District Attorney and hospitals to devise a system to collect baseline data that can be utilized to help develop a plan to address the issue of fetal drug exposure. The FIMR annual report was distributed to the FIMR Case Review Team and the Community Action Team. The report was also shared with the Maternal Child Health Advisory Board and the Washoe County District Board of Health. Evaluation of the actions are unavailable at this time as we are in the beginning phases of implementation. Ethnic Populations: American Indian/ Alaska Native (Please specify 1 tribes/nations) Asian (Please specify country of origin) 2 NFIMR report on programs in USA and Puerto Rico, June 2016 114 Black/ African American (If specific culture, please name) 4 Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) 1 Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 14 White (Please specify country of origin) 33 Foreign-Born/ Immigrants unknown Data not available Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 450000 Total number of live births: 5300 Total number of fetal deaths: 42 Total number of infant deaths: 39 Annual Budget: Data not provided 9 NFIMR report on programs in USA and Puerto Rico, June 2016 115 Margaret Gray is the New Jersey state coordinator. Name: Maggie Gray Organization: New Jersey Department of Health State: NJ Which Agency leads the coordination of your FIMR program?: NJ Department of Health- provide grants to the MCHC to do local FIMR Do members of a federal Healthy Start participate in your FIMR team(s)?: Yes Reviews with FIMR program participation: Data not provided What does CDR and FIMR collaboration look like in your community?: Data not provided Which of these theories/methods are being implemented in conjunction with FIMR?: Life Course Theory Statute to protect FIMR programs: Yes Is the program currently reviewing cases? : Yes In what year did Case Reviews first begin? : Data not provided Approximately how many cases do you review in 2015 by category: Varies per region Percentage of Interview: Varies per region Two tiered system: No Please tell us more about your Community Action Team. The CAT is: Developed solely for the FIMR program Community Education: Many of the other programs within the DOH utilize the information from FIMR and implement it in their programs. Service Systems Improvement: Data not provided Policy/Advocacy: Data not provided Improved Practices, Programs, and Policies: Data not provided Professional Training: NJ also has a SIDS program that works collaboratively with the FIMR programs Actions taken because of FIMR: varies per region Ethnic Populations: Data not provided Special Populations: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Varies per region How many funded staff are on the state level?: Data not provided How many in-kind staff are on the state level?: 1 What are the functions of the state program?: Technical assistance to local teams , Coordinator of state team/board , Coordination of local teams , Training of local teams Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: No If yes, what are the functions of the board?: Data not provided Name: Sheryl Dwyer Organization: Central Jersey Family Health Consortium State: NJ Approximate cases reviewed: Fetal Deaths, Number: 33 Neonatal Deaths, Number: 18 NFIMR report on programs in USA and Puerto Rico, June 2016 116 Post neonatal Deaths, Number: 1 Other, please specify type of review & number: 6 maternal interviews Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? no collaboration Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 12 Community Education: Promote breastfeeding, Meet with community based organizations, Publish a FIMR newsletter. Service Systems Improvement: Improve bereavement referral services, Other (please specify) NJ has a central intake program, based at each MCH consortium, FIMR distributes the information regarding Central Intake at meetings Policy Advocacy: State Stillbirth legislation was enacted in 2014, FIMR continues to educate hospitals and providers regarding the legislation Improved Practices: Enhance services to bereaved families, Other (please specify) Within the Maternal Child Health Consortium we have a Post-Partum Depression program and have increased referrals to the program for mothers who have had a perinatal death; Perinatal Addictions grant addresses smoking cessation, substance and alcohol use; Central Intake links women and families to services Professional Training: Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.), Implement bereavement training Actions taken because of FIMR: PROBLEM: Need to educate community regarding smoking cessation programs. FIMR case reviews Identified lack of knowledge by mothers of importance of fetal movement awareness and acting upon changes. Need for community workers to be knowledgeable regarding smoking cessation and fetal movement counts so they can educate their clients properly. RECOMMENDATION: Community bulletin to be created and distributed to community organizations with “Did You Know” topics as well as information relevant to Fetal/Infant Mortality according to FIMR recommendations. INTERVENTION: Community health worker bulletin created entitled "DID YOU KNOW: A Community Bulletin". Topics included Smoking Cessation Program, Fetal Movement Awareness and Fetal Infant Mortality Review. This Bulletin’s target audience is Community Health Workers, Home Visitation providers and community organizations that provide services to pregnant/childbearing age women. The goal of the bulletin is to provide health maintenance and preventative care information to the community providers. The bulletin has been distributed at the County Coalition meetings to community providers and to the Home Visitation Programs. It will also be posted on the CJFHC website. OUTCOMES: Well received by the intended audience; an electronic survey link was provided and results have not been tabulated. PROBLEM: Recommendation for interconceptual care during FIMR case reviews. Maternal interviews identified a lack of compassion and information from providers. Lack of autopsy or alternative to autopsy for evaluation of stillbirth. RECOMENDATION: Collaborate with other agencies to develop interventions to disseminate information on Interconceptual care. INTERVENTION: Central Jersey Family Health Consortium has been collaborating since July 2014 with the March of Dimes and the 2 other Consortiums on a Stillbirth/Interconceptual Care Project for providers. The project is in the final stages of design and editing. The toolkits will include evidence NFIMR report on programs in USA and Puerto Rico, June 2016 117 based literature, resource lists for providers/families, communication points for providers, letter to parents regarding autopsy/testing/alternatives to autopsy, birth plan for perinatal loss, provider key points for the postpartum visit and interconceptual care. Once completed, presentations for providers at our region hospitals will be done and toolkits will be given to providers. A link will be provided on magnets that will be distributed to hospitals, clinics and providers. All information will be available on the CJFHC website. OUTCOME: Intervention not instituted to date. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes, Observant Jewish, Asian Indian Population in your FIMR catchment area: Total population in the catchment area 2,869,254 (2013 est) Total number of live births 29,770 (2013) Total number of fetal deaths 180 (2013) Total number of infant deaths 64 (neonatal 2013), 23 post neonatal (2012) Annual Budget: Data not provided Name: Judy Stark Organization: Southern NJ Perinatal Cooperative State: NJ Approximate cases reviewed: Fetal Deaths, Number 30 Neonatal Deaths, Number 6 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Currently there is no collaboration Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 10% Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Develop culturally relevant health education materials, meet with community based organizations Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services. Policy Advocacy: Report the FIMR findings to the State MCH Director. Improved Practices: Enhance services to bereaved families. Professional Training: Conduct provider education programs, implement bereavement training Actions taken because of FIMR: Problem: Maternal Obesity reported in 43% of cases Recommendations: due to lack of one to one nutritional support in PNC sites (only group at WIC) increase involvement of Nutritional education at PNC sites by SNAP Ed and education to Home Visiting programs in County Outcomes: SNAP Ed in place in FQHC's and Home visitors trained. We will continue to monitor rates. Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 391,106 Total number of live births 3969 NFIMR report on programs in USA and Puerto Rico, June 2016 118 Total number of fetal deaths 26 Total number of infant deaths 35 Annual Budget: Data not provided Name: Carly Woman Ryan Organization: Partnership for Maternal Child Health of Northern New Jersey State: NJ Approximate cases reviewed: Fetal Deaths: 65 Neonatal Deaths: 25 Post neonatal Deaths, Number: 5 Reviews with FIMR program participation: Child Fatality Review, Child Abuse and Neglect Review What does CDR and FIMR look like in your community? FIMR staff attends CDR meetings Statute to protect FIMR teams: Covered by general public health authority at state Department of Health Two-tiered system: Yes Percentage of interviews: 18 Community Education: Conduct a media campaign about risks of prematurity Develop culturally relevant health education materials Meet with community based organizations, Other (please specify) Physician and community education regarding kick counts, physician and nursing education regarding stillbirth management and diagnosis and prevention in subsequent pregnancies, work with Medicaid to create a media campaign regarding early prenatal care and presumptive eligibility. Service Systems Improvement: Eliminate a gap in MCH services, improve referral patterns among agencies, improve bereavement referral services, Implement “one-stop-shopping” prenatal care, Partner with local MOD Prematurity Campaign , Streamline MCH Medicaid application processes Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Expand hospital quality assurance standards , Enhance services to bereaved families ,Implement standardized prenatal risk assessment , Implement screening for domestic violence , Implement screening for substance abuse , Implement screening for postpartum depression Professional Training: Conduct provider training on prematurity/preterm labor management Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc. Develop a community resource directory , Implement bereavement training Actions taken because of FIMR: Data not provided Ethnic Populations: Asian (Please specify country of origin) 5% Black/ African American (If specific culture, please name) 33% Pacific Islander (Please specify if Native Hawaiian, Guamanian, Samoan or Other) 0% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 21% White (Please specify country of origin) 38% Foreign-Born/ Immigrants 31% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 5,011,192 NFIMR report on programs in USA and Puerto Rico, June 2016 119 Total number of live births 60,022 Total number of fetal deaths 391 Total number of infant deaths 223 Annual Budget: $92,000 NFIMR report on programs in USA and Puerto Rico, June 2016 120 Andrea Filio is the Ohio state coordinator. Name: Andrea Filio Organization: Ohio Department of Health State: OH Which Agency leads the coordination of your FIMR program?: Different local teams pick their own agencies to lead Do members of a federal Healthy Start participate in your FIMR team(s)?: Determined by local FIMR teams Reviews with FIMR program participation: Data not provided What does CDR and FIMR collaboration look like in your community?: Determined by local FIMR teams Which of these theories/methods are being implemented in conjunction with FIMR?: Data not provided Statute to protect FIMR programs: Data not provided Is the program currently reviewing cases? : Data not provided In what year did Case Reviews first begin?: I am the coordinator at the state level. The different local FIMR teams are at various stages. Approximately how many cases do you review in 2015 by category?: Data not provided Percentage of Interview: Data not provided Two tiered system: Yes Please tell us more about your Community Action Team. The CAT is: Determined by local FIMR teams Community Education: Data not provided Service Systems Improvement: Data not provided Policy/Advocacy: Data not provided Improved Practices, Programs, and Policies: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Determined by local FIMR teams Ethnic Populations: Data not available Special Populations: Data not available Population in your FIMR catchment area: Data not available Annual Budget: Data not available How many funded staff are on the state level?: 1 How many in-kind staff are on the state level?: Data not provided What are the functions of the state program?: Technical assistance to local teams, Training of local teams Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: No Name: Lauren Rose-Cohen Organization: Columbia Public Health State: OH Approximate cases reviewed: Fetal Deaths: 21 Neonatal Deaths: 6 NFIMR report on programs in USA and Puerto Rico, June 2016 121 Post neonatal Deaths: 3 Reviews with FIMR program participation: Other SIDS review What does CDR and FIMR look like in your community? Members attend each other's meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 33% Community Education: Meet with community based organizations, Publish an annual FIMR report Service Systems Improvement: Improve bereavement referral services , Other (please specify) Developed a comprehensive grief services directory for our county. This is distributed to all agencies included in the brochure and mailed to all families who've experienced a loss. We also are collaborating with WIC to improve outreach to eligible families who've had a loss so they will get their WIC benefits after the demise. Policy Advocacy: Data not provided Improved Practices: Enhance services to bereaved families Professional Training: Data not provided Actions taken because of FIMR: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area : 1,212,000 Total number of live births: 18,000+ Total number of fetal deaths: 140 Total number of infant deaths: 150 Annual Budget: Data not provided Name: Latoya Dickens Organization: Canton City Health Department State: OH Approximate cases reviewed: Fetal Deaths, Number 1 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Currently there is no collaboration, there are some community members who are on the FIMR and CDR teams. Currently the two teams are not working together. Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 100 Community Education: Conduct a media campaign to address disparities in infant health, Develop culturally relevant health education materials Meet with community based organizations Service Systems Improvement: Improve bereavement referral services Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Report the FIMR findings to the State MCH Director. Improved Practices: Expand hospital quality assurance standards, enhance services to bereaved families, Improve cultural competency protocols. Professional Training: NFIMR report on programs in USA and Puerto Rico, June 2016 122 Implement SIDS training programs, Develop a community resource directory, Implement bereavement training Actions taken because of FIMR: Problem: Lack of safe sleep education in the hospitals Recommendation: reeducate nurses on safe sleep and provide an education check list prior to mother’s discharge from. Hospital Interventions: Both local hospitals provide uniform safe sleep education and sleep sacks prior to mother and babies discharge. Problem: late prenatal care and poor outcomes Recommendation: push for and increase on centering pregnancy care Interventions: local push to increase enrollment in centering prenatal care at one local hospital. The other local hospital is work to set up a centering pregnancy care program Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 74,000 Total number of live births 4,000 Total number of fetal deaths 21 Total number of infant deaths 337 Annual Budget: 30,233.96 Name: Karen Carr Organization: Butler County Health Department State: OH Approximate cases reviewed: Fetal Deaths, Number 14 (still missing some end of the year data) Neonatal Deaths, Number: 16 Post neonatal Deaths, Number: 5 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR , Members attend each other's meetings, Prevention recommendations are developed jointly, Prevention recommendations are shared, Other (please specify) Future plan to work on prevention recommendations jointly Statute to protect FIMR teams: State of Ohio has not put FIMR under CFR though there has been discussion to do this. Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: New FIMR program. Have had low response rate to letters sent out for FIMR interviews. FIMR nurse is part time and does not have time to do door to door outreach. Have had one interview. Community Education: Developed grief resource brochure for the county Service Systems Improvement: Data not provided Policy Advocacy: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 123 Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: We have not had any recommendations/interventions since our CRT hasn't met yet. Ethnic Populations: Black/ African American (If specific culture, please name) 25% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 25% White (Please specify country of origin) 50% Other (please specify) 2 cases have been reviewed; one with an interview. Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 371,272 Annual Budget: Data not provided Name: Angela Newman White Organization: Cuyahoga County Board of Health State: OH Approximate cases reviewed: Fetal Deaths, Number Neonatal Deaths, Number 4 3 Post neonatal Deaths, Number 0 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR , Members attend each other's meetings, Joint reviews are conducted, cases are triaged into FIMR or CDR , Meetings are coordinated. Statute to protect FIMR teams: There is only a statute for chart review Two-tiered system: Yes Percentage of interviews: 86% Community Education: Develop culturally relevant health education materials Service Systems Improvement: Improve bereavement referral services Policy Advocacy: Data not provided Improved Practices: Enhance services to bereaved families, Implement screening for postpartum depression Professional Training: Develop a community resource directory Actions taken because of FIMR: Problem: Parent(s) experiencing a fetal loss expressed disappointment in not having a birth certificate available for their stillborn baby- noted in 100% of fetal interviews. Recommendation: Make parent(s) experiencing a fetal loss aware that Ohio does offer a Stillbirth Commemorative Abstract Birth Certificate for free. Interventions: Family Interviewer includes the information and paperwork about the availability of Ohio's Stillbirth Commemorative Abstract Birth Certificate in a mailing that is sent to all fetal death families. NFIMR report on programs in USA and Puerto Rico, June 2016 124 Outcomes: Review of ongoing contact (verbal, electronic, family interview) 100% of families with fetal loss would like to send in the paperwork to request the Stillbirth Commemorative Abstract Birth Certificate. Problem: Lack of a comprehensive and current grief resource guide for Cuyahoga County was noted in 100% of family interview cases. Recommendation: Create a comprehensive grief resource guide that can be kept up-to-date for Cuyahoga County that is made available to all families experiencing a fetal and/or infant loss. Intervention: The FIMR Family Interviewer has created a comprehensive grief resource guide for Cuyahoga County that is mailed to all families in Cuyahoga County that experience a fetal and/or infant death. This guide is kept up-to-date by the FIMR Family Interviewer. Outcomes: to be determined. Initial feedback during family interviews have been positive. Ethnic Populations: Black/ African American (If specific culture, please name) 29% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 14% (Puerto Rican) White (Please specify country of origin) 57% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 1.2 million Total number of live births 14,500 (2015) Total number of fetal deaths 122 (2015) Total number of infant deaths 137 (2015) Annual Budget: 30,000 Name: Tracy Styka Organization: Mahoning County District Board of Health State: OH Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 6 Reviews with FIMR program participation : Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR , Funding is shared, Members attend each other's meetings , Cases are triaged into FIMR or CDR. Statute to protect FIMR teams: Data not provided Two-tiered system: Data not provided Percentage of interviews: Data not provided Community Education: No recommendations or accomplishments to date, since we are just getting started Service Systems Improvement: No recommendations or accomplishments to date, since we are just getting started Policy Advocacy: no recommendations or accomplishments to date, since we are just getting started NFIMR report on programs in USA and Puerto Rico, June 2016 125 Improved Practices: no recommendations or accomplishments to date, since we are just getting started Professional Training: no recommendations or accomplishments to date, since we are just getting started Actions taken because of FIMR: Data not provided Special Religious or Cultural Subgroups: Data not provided Ethnic Populations: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 126 Oklahoma does not have a state coordinator. Name: Kelli McNeal Organization: OKC- County Health Department State: OK Approximate cases reviewed: Fetal Death: 54 Neonatal Deaths: 36 Post neonatal Deaths: 30 Reviews with FIMR program participation: Maternal Mortality Review What does CDR and FIMR look like in your community? Members attend each other’s meetings Statute to protect FIMR teams: No Two-tiered system: Data not provided Percentage of interviews: 30 Community Education: Conduct a media campaign to encourage early and continuous prenatal care Conduct a media campaign to encourage early and continuous prenatal care Conduct a media campaign to address disparities in infant health Hold a FIMR town meeting, Develop culturally relevant health education materials, Publish a FIMR newsletter Service Systems Improvement: Improve bereavement referral services ,Partner with local MOD Prematurity Campaign Policy Advocacy: Report the FIMR findings to the State MCH Director Develop local or state legislation Improved Practices: Enhance services to bereaved families, Implement screening for postpartum depression. Professional Training: implement SIDS training programs Actions taken because of FIMR: Problem: Lack of standardized data Recommendation: Use of the SUIDI form Interventions: Approach law enforcement on the utilization of the SUIDI form and conduct trainings. Outcomes: Over 32 law enforcement agencies, including tribal police in 5 county region now have signed a pledge to use the SUIDI form during infant death scene investigations. Ethnic Populations: Data not available Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area approximately: 1.2 million Total number of live births: 12,000 Total number of fetal deaths: 54 in 2015 (preliminary numbers) Total number of infant deaths: 81 in 2015 (preliminary numbers) Annual Budget: $290,000 NFIMR report on programs in USA and Puerto Rico, June 2016 127 Pennsylvania does not have a state coordinator. Name: Emily Donovan Organization: Philadelphia Department of Public Health Division of Maternal, Child, and Family Health State: PA Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths: 0 Post neonatal Deaths: 3 Other, please specify type of review & number: 0 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Members attend each other's meetings; Cases are triaged into FIMR or CDR Other (please specify) CDR shares data with FIMR Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 33% Community Education: Plans: formed working groups to ban crib bumpers and conduct media campaign about safe sleep Service Systems Improvement: Data not provided Policy Advocacy: Plans-develop a policy/ordinance in the city Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: PROBLEM: Crib bumpers have led to asphyxiation deaths and death from climbing over the side of the crib. RECOMMENDATION: Develop an ordinance to ban the sale of crib bumpers in Philadelphia. INTERVENTIONS: Formation of a CAT working group to ban the sale of crib bumpers in Philadelphia through City leadership. OUTCOMES: (in progress) PROBLEM: Although safe sleep education at labor and delivery is mandated in hospitals in Philadelphia, parents and guardians do not always follow the recommendations. RECOMMENDATION: Conduct a media campaign to educate mothers, fathers, grandparents, other guardians, and community members about safe sleep in order to reinforce messages that may have only been given once to parents. INTERVENTIONS: Formation of CAT working groups to (1) develop safe sleep messages appropriate for various types of audiences in the community and (2) disseminate the safe sleep messages in order to reach communities experiencing the highest infant mortality rates. OUTCOMES: (in progress) Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes, Of our FIMR members, we have an organization committed to improving Black Women's health and a faith leader who is well connected with the Christian faith community. Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 128 Puerto Rico does not have a state coordinator. Name: Cindy Calderon, MD Organization: PR NFIMR MCAH PR DOH State: PR Approximate cases reviewed: Fetal Deaths: 0 Neonatal Deaths, Number from 2011 to 2015: 16 cases evaluated Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? There is no CDR in my community Statute to protect FIMR teams: No, There is no law for FIMR in PR Two-tiered system: Yes Percentage of interviews: all cases from 2011 to 2015 included a maternal interview Community Education: Conduct a media campaign to encourage early and continuous prenatal care Conduct a media campaign to encourage early and continuous prenatal care Conduct a media campaign to promote prenatal alcohol and drug cessation Promote breastfeeding, Develop culturally relevant health education materials Publish an annual FIMR report Service Systems Improvement: Improve referral patterns among agencies, improve bereavement referral services, Streamline MCH Medicaid application processes, Other (please specify) improve presence of nutritionist services in WIC clinics Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Report the FIMR findings to the State MCH Director Other (please specify) Advocating for the development of a Bill for FIMR in PR Improved Practices: Enhance services to bereaved families Professional Training: Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.), Results were presented in 'poster presentations in two local forums directed to health care providers, Women’s Preventive Care Update in November 1, 2015 and in the Annual Puerto Rico Physician Convention December 2015CoHealth Actions taken because of FIMR: PROBLEM: In the 2009-2011 reviews 69% received early prenatal care RECOMMENDATION and INTERVENTION: By recommendation of the FIMR Review Team, findings and recommendations were shared in presentations to health care providers in 2 main conferences OUTCOMES; Upon review of the 2012-2015 cases there was an increase to 89% receiving prenatal care . PNC in PR has improved over the years. By 2014, VS data shows that about 86% of live births in PR, their mothers initiated PNC during the first trimester of pregnancy. Average Annual Percent Change (AAPC) trend analysis shows a significant increase of 0.6% since 2005 (81.5%) Ethnic Populations: Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 100% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 3,500,000 Total number of live births: 34,493 Total number of fetal deaths: 11.7 for each 1,000 live births Total number of infant deaths: 7 for each 1,000 live births Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 129 Rachel Heitmann is the Tennessee state coordinator and April Kincaid is transitioning to that position. Name: Rachel Heitmann Organization: Tennessee Department of Health State: TN Which Agency leads the coordination of your FIMR program?: State Health Department Do members of a federal Healthy Start participate in your FIMR team(s)?: Our community does not have a Healthy Start program Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR collaboration look like in your community?: Leadership is housed in one organization , Staff works on both CDR and FIMR , Members attend each other's meetings Which of these theories/methods are being implemented in conjunction with FIMR?: Perinatal Periods of Risk Statute to protect FIMR programs: Yes Is the program currently reviewing cases? : Yes In what year did Case Reviews first begin? : 2010 Approximately how many cases do you review in 2015 by category?: Other, please specify type of review & number: 176 total deaths reviewed in 2015 Percentage of Interview: Yes Two tiered system: Yes Please tell us more about your Community Action Team. The CAT is: Most teams are developed solely for the FIMR program but one area of the state already had an existing safe sleep coalition that they are using as their community action team Community Education: Hold a town health fair, Meet with community based organizations, Publish an annual FIMR report Service Systems Improvement: Improve bereavement referral services, Partner with local MOD Prematurity Campaign. Improved Practices, Programs, and Policies: Expand hospital quality assurance standards Policy/Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH Professional Training: Conduct provider training on prematurity/preterm labor management Implement SIDS training programs Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Populations: Data not provided Population in your FIMR catchment area: Total population in the catchment area: 3,160,875 Total number of live births: 41,563 Total number of fetal deaths: 309 Total number of infant deaths: 311 Annual Budget: Data not provided How many funded staff are on the state level?: 1 How many in-kind staff are on the state level?: 25 What are the functions of the state program?: Technical assistance to local teams, Training of local teams Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: No NFIMR report on programs in USA and Puerto Rico, June 2016 130 Name: Autumn Mays Organization: East TN. Regional Office State: TN Approximate cases reviewed: Post neonatal Deaths, Number 50 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Currently there is no collaboration Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 60% Community Education: Conduct a media campaign to promote prenatal alcohol and drug cessation, promote breastfeeding, hold a town health fair, Develop culturally relevant health education materials Meet with community based organizations, Publish an annual FIMR report, Other (please specify) Safe Sleep campaign. Service Systems Improvement: I feel like we should collaborate with Child Fatality. I think in some ways FIMR is a duplication of child fatality because the cases get reviewed by both teams/ Policy Advocacy: Report the FIMR findings to the State MCH Director Develop local or state legislation Improved Practices: Initiate or expand public health case management, expand services to homeless women and children, expand services to pregnant substance abusers, enhance services to bereaved families, expand family planning services, Implement standardized prenatal risk assessment, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking , Implement screening for postpartum depression. Professional Training: Conduct provider training on prematurity/preterm labor management Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Develop a community resource directory , Implement bereavement training Actions taken because of FIMR: Problem: unsafe sleep deaths recommendation and intervention: safe sleep campaign outcomes: we have noted a decline in unsafe sleep deaths in Tennessee Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Yes, we do not discriminate against any religion or cultures. We review if a baby dies in our region and falls in our cohort. Population in your FIMR catchment area: Data not provided Annual Budget: 1600.00; 1800.00 travel, 1900.00 for brochures and pamphlets; Rural HD do not get a budget but metros do Name: Lisa Vincent Organization: Chattanooga-Hamilton County Health Department State: TN Approximate cases reviewed: Fetal Deaths: 8 Neonatal Deaths: 14 Post neonatal Deaths: 6 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization NFIMR report on programs in USA and Puerto Rico, June 2016 131 Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: We have about a 30%-40% interview rate, so being less than half of the cases reviewed, that would not be a typical situation to have an interview. We attempt to contact all of the mothers to conduct interviews. Community Education: Conduct a media campaign to encourage and educate on Safe Sleep Service Systems Improvement: Improve referral patterns among agencies, Partner with local MOD Prematurity Campaign , Other (please specify), Provide folic acid and PNV in all HD clinics and home visiting programs; provide standardized positive pregnancy test packets in all HD clinics Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Expand hospital quality assurance standards, Expand services to homeless women and children, Implement screening for smoking ,Implement screening for postpartum depression, Safe sleep Gold level national certification of local hospital system Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.)Develop a community resource directory , Other (please specify) Safe sleep training Actions taken because of FIMR: Lack of resources for safe sleep space for babies: provided pack n plays with sheets and Halo sleep sacks to more than 100 individuals- partnerships with a wide variety of community agencies to identify those in need. Lack of knowledge of safe sleep practices. Conducted a large scale safe sleep media campaign. Safe sleep messages on buses, in large screens in food court area of mall, pre-show at 2 local movie theaters, on screen in department of motor vehicle locations in the county. Reduction of women smoking while pregnant needed. Partnered with Baby and Me program to promote and offer program in our community. Lack of education regarding prenatal care information and child/infant care. Promotion of Text4Baby program. Lack of information and promotion of kick counting/fetal movement monitoring in pregnancy. Promotion of Count the Kicks education/information and app. Communication issues between providers and with pregnant mother. Developed prenatal passport and distributed to all OB providers in the county. Ethnic Populations: American Indian/ Alaska Native (Please specify tribes/nations): 1 Asian (Please specify country of origin) 5 Black/ African American (If specific culture, please name) 60 Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto 16 Rican, Cuban, Descendants of Spain, Central and/or South American) White (Please specify country of origin) : 94 Special Religious or Cultural Subgroups: Yes, Hispanic population, Asian population Population in your FIMR catchment area: Total population in the catchment area: 350,000 Total number of live births: 4,000 per year Total number of infant deaths: 28 in 2013 Annual Budget: $230,000 Name: Katherine Larsen Organization: Knox County Health Department State: TN NFIMR report on programs in USA and Puerto Rico, June 2016 132 Approximate cases reviewed: Fetal Deaths: 1 Neonatal Deaths: 15 Post neonatal Deaths: 10 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? Leadership is housed in one organization , Staff works on both CDR and FIMR , Members attend each other's meetings Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: 1% Community Education: Conduct a media campaign to encourage early and continuous prenatal care Conduct a media campaign to promote prenatal alcohol and drug cessation Service Systems Improvement: Eliminate a gap in family planning services, Improve bereavement referral services Policy Advocacy: Data not provided Improved Practices: Expand services to pregnant substance abusers, Enhance services to bereaved families, Implement screening for substance abuse Professional Training: Implement bereavement training Actions taken because of FIMR: Data not provided Ethnic Populations: Black/ African American (If specific culture, please name) 34.6 Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American) 3.86 White (Please specify country of origin) 57.76 Other (please specify) 7.76 Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 448.644 Total number of live births: 5255 Total number of fetal deaths: unknown Total number of infant deaths: 32 Annual Budget: Data not provided Name: Jamila Batts Organization: Shelby County Health Department State: TN Approximate cases reviewed: Fetal Deaths: 51 Neonatal Deaths: 13 Post neonatal Deaths: 33 Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization , Members attend each other's meetings , Cases are triaged into FIMR or CDR , Prevention recommendations are shared NFIMR report on programs in USA and Puerto Rico, June 2016 133 Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: 30 Community Education: Conduct a media campaign to encourage early and continuous prenatal care, Promote breastfeeding, Meet with community based organizations, Publish an annual FIMR report. Service Systems Improvement: Eliminate a gap in MCH services, Improve bereavement referral services, Partner with local MOD Prematurity Campaign , Streamline MCH Medicaid application processes Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Report the FIMR findings to the State MCH Director Improved Practices: Enhance services to bereaved families Professional Training: Implement SIDS training programs Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 134 Texas does not have a state coordinator. Name: Alexei Collins Organization: Dallas Healthy Start State: TX Approximate cases reviewed: Fetal Deaths: 12 Neonatal Deaths: 8 Post neonatal Deaths: 2 Reviews with FIMR program participation: Data not provided What does CDR and FIMR look like in your community? A Dallas Healthy Start staff member attends CDR meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: Data not provided Community Education: Meet with community based organizations, Publish an annual FIMR report , Promote existing text4baby campaign. Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services, Partner with local MOD Prematurity Campaign, Other (please specify) Reduce duplication and gaps in MCH services. Policy Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis Develop local or state legislation. Improved Practices: Enhance services to bereaved families, Other (please specify) Implement program and screening for obesity Professional Training: Conduct provider training on prematurity/preterm labor management Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement bereavement training. Actions taken because of FIMR: Problem: Mothers reporting a desire and need for more consistent prenatal education. Recommendations: Find and promote existing prenatal education in the community. Intervention: Promote the text4baby app through the Community Action Network (DHS version of CAT). Outcome: Review of text4baby statistics showed increase of users by 1600% from 52 to 830 individuals in a 6-month period. The county was recognized for the most participants in the state of Texas. Problem: 51% of FIMR mothers were overweight and of that number 62% were obese. Recommendation: Collaborate with providers at a women's community clinic to provide screening, education, care coordination and referrals to specialty services. Intervention: Create a program at women's community clinic to screen for obesity, provide education, follow-up and care coordination through the use of the "Someday Starts Now" tool. Outcome: Ongoing, since the beginning of the program 6-months ago. Ethnic Populations: Asian (Please specify country of origin) 4.5% Indian NFIMR report on programs in USA and Puerto Rico, June 2016 135 Black/ African American American Hispanic/ Spanish/ Latino 50% of total: 9% Kenyan, 18% Nigerian, 73% 41% of total: 89% Mexican, 11% El Salvadorian White (Please specify country of origin) 4.5% American Foreign-Born/ Immigrants 27% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area: 2,218,899 Total number of live births: 39,712 Total number of fetal deaths: 678 Total number of infant deaths: 504 Annual Budget: 112,000 NFIMR report on programs in USA and Puerto Rico, June 2016 136 Name: John Duah Organization: San Antonio Healthy Start State: TX Approximate cases reviewed: Data not provided Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Members attend each other's meetings Statute to protect FIMR teams: Yes Two-tiered system: Yes Percentage of interviews: We expect to conduct maternal interviews as part of our review process. We will share the data with you in the near future. Community Education: Promote breastfeeding, develop culturally relevant health education materials, meet with community based organizations, Other (please specify) We do not have enough information on our program to share at this time. Service Systems Improvement: Eliminate a gap in family planning services , Improve referral patterns among agencies, Improve bereavement referral services, Partner with local MOD Prematurity Campaign, Improve/develop transportation routes to MCH services with the City or County Transportation Department, Increase public safety around MCH service sites in collaboration with City or County law enforcement, Develop a 911 system, Streamline MCH Medicaid application processes. Policy Advocacy: Invite the Mayor or County Executive to contribute to the FIMR annual report Report the FIMR findings to the State MCH Director. We anticipate inviting the Mayor/an elected official to be part of our FIMR program Improved Practices: Initiate or expand public health case management , Expand hospital quality assurance standards, Expand services to homeless women and children , Expand services to pregnant substance abusers, enhance services to bereaved families, Expand family planning services, Implement standardized prenatal risk assessment, Improve cultural competency protocols, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression Professional Training: Implement SIDS training programs, Develop a community resource directory Implement cultural competency assessment for FIMR team members Actions taken because of FIMR: As indicated earlier, we are in the process of launching our FIMR program in the coming months. We expect to share our recommendations with you in the near future. Regardless, we anticipate that care coordination and resource referrals will be a major component of our policy recommendations when all is done Ethnic Populations: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 1,813,421 Total number of live births 26,590 Total number of fetal deaths 154 Total number of infant deaths 162 Unknown 0 Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 137 Megan Kimberly is new Utah state coordinator, information provided by Laurie Bash completed form. Name: Laurie Bash Organization: Utah Department of Health State: Utah Which Agency leads the coordination of your FIMR program?: State health department Do members of a federal Healthy Start participate in your FIMR team(s)?: Our community does not have a federal Healthy Start Reviews with FIMR program participation: Child Fatality Review, Domestic Violence Review, Maternal Mortality Review What does CDR and FIMR collaboration look like in your community?: Leadership is housed in one organization, Members attend each other's meetings Which of these theories/methods are being implemented in conjunction with FIMR?: Statute to protect FIMR programs: No Is the program currently reviewing cases? : Yes In what year did Case Reviews first begin? : 1993 Approximately how many cases do you review in 2015 by category? Fetal Deaths, Number 0; Neonatal Deaths, Number 90; Post neonatal Deaths, Number 10 Percentage of Interview: 0 We do not have the funding to conduct these interviews. We have one FTE who does both infant and maternal death reviews. Two tiered system: No Please tell us more about your Community Action Team. The CAT is: Data not provided Community Education: Work with perinatal quality collaborative to share findings and support activities (such as prematurity prevention) Service Systems Improvement: Partner with local MOD Prematurity Campaign Improved Practices, Programs, and Policies: Expand hospital quality assurance standards Policy Advocacy: Report the FIMR findings to the State MCH Director; Develop local or state legislation Professional Training: Develop a community resource directory Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Special Populations: Data not provided Population in your FIMR catchment area: Total population in the catchment area 2,942,902 Total number of live births 51,164 Total number of fetal deaths 273 Total number of infant deaths 251 Annual Budget: data not provided How many funded staff are on the state level?: data not provided How many in-kind staff are on the state level?: data not provided What are the functions of the state program?: data not provided Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 138 West Virginia does not have a state coordinator. Name: Melissa Baker Organization: WV OMCFH State: WV Approximate cases reviewed: Fetal Deaths, Number 0 Other, please specify type of review & number approximately 150 total infant deaths per year Reviews with FIMR program participation: Child Fatality Review, Maternal Mortality Review, Other SIDS review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Members attend each other's meetings Statute to protect FIMR teams: Yes Two-tiered system: No Percentage of interviews: Data not provided Why interview is not done: no interviews are conducted - only chart records and death scene investigations where notes have been recorded of conversations with family members Community Education: Publish a FIMR newsletter Service Systems Improvement: Data not provided Policy Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH, • Report the FIMR findings to the State MCH Director, • Develop local or state legislation Improved Practices: Expand hospital quality assurance standards , Expand services to pregnant substance abusers Professional Training: Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.) Implement SIDS training programs Actions taken because of FIMR: Data not provided Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total number of live births 21000per year in the state Total number of infant deaths roughly 150 per year Annual Budget: only covers salary for nurses that complete chart abstracts NFIMR report on programs in USA and Puerto Rico, June 2016 139 Katie Gillespie and Abby Collier are the Wisconsin state coordinators. Name: Abby Collier Organization: Children’s Health Alliance of Wisconsin-Children’s Hospital of Wisconsin State: WI Which agency leads the coordination of your FIMR program? Do members of a Federal Healthy Start participate in your FIMR team? Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review , Citizen Review Panel What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Members attend each other's meetings, Joint reviews are conducted, Cases are triaged into FIMR or CDR, Meetings are coordinated, Prevention recommendations are developed jointly, Prevention recommendations are shared. Which of these theories/methods are being implemented in conjunction with FIMR: Life Course Theory, Perinatal Periods of Risk, NFIMR Team Cultural Competency Assessment Statute to protect FIMR teams: No Is the program currently reviewing cases? : Yes In what year did Case Reviews first begin? : Varies Approximately how many cases do you review in 2015 by category? Fetal Deaths: 300 Neonatal Deaths: 150 Post neonatal Deaths, Number: 100 Two-tiered system: Yes Please tell us more about your Community Action Team. The CAT is: Some FIMR teams have a separate CAT, while others utilize existing coalitions. At the state level, there is a state council that makes recommendations Percentage of interviews: Varies depending on site. Average 40 percent Community Education: Data not provided Service Systems Improvement: Eliminate a duplication of MCH services, Eliminate a gap in MCH services, eliminate a gap in family planning services, improve referral patterns among agencies, improve bereavement referral services, and Implement “one-stop-shopping” prenatal care. Policy Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH. Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis. Include the Mayor or County Executive as a FIMR Community Action Team member. Invite the Mayor, County Executive or other elected official to chair a FIMR town meeting. Invite the Mayor or County Executive to contribute to the FIMR annual report. Report the FIMR findings to the State MCH Director. Develop a policy in collaboration with City or County law enforcement offices or emergency services, Develop local or state legislation. Improved Practices: Expand hospital quality assurance standards, expand services to pregnant substance abusers, enhance services to bereaved families, Expand family planning services, Implement standardized prenatal risk assessment, Improve cultural competency protocols, Implement screening for domestic violence, Implement screening for substance abuse, Implement screening for smoking, Implement screening for postpartum depression. Professional Training: Data not provided Actions taken because of FIMR: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 140 Special Religious or Cultural Subgroups: Yes, Amish Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided How many funded staff are on the state level? 1 How many in-kind staff are on the state level? 2 What are the functions of the state program? Technical assistance to local teams, Coordinator of state team/board, Training of local teams, Data collection and reporting. Is there a state-level advisory board that reviews local findings and makes state-level recommendation? Yes If yes, what are the functions of the board? Reviews local findings, make formal recommendations, write annual reports. Name: Katie H. Gillespie State: WI Organization: Wisconsin Department of Health Services Which Agency leads the coordination of your FIMR program?: County/City Health Department Do members of a federal Healthy Start participate in your FIMR team(s)?: No Does your community have the following reviews: Reviews with FIMR program participation: Child Fatality Review , Maternal Mortality Review What does CDR and FIMR collaboration look like in your community: Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Members attend each other's meetings, Cases are triaged into FIMR or CDR, and meetings are coordinated. Which of these theories/methods are being implemented in conjunction with FIMR?: Life Course Theory, Perinatal Periods of Risk Statues to protect FIMR programs: Yes Is the program currently reviewing cases?: Yes In what year did Case Reviews first begin? : 1993 Percentage of Interviews: Data not provided Two-tiered system: Data not provided Please tell us more about your Community Action Team. The CAT is: Data not provided Community Education: Data not provided Service Systems Improvement: Data not provided Improved Practices, Programs, and Policies: Data not provided Policy Advocacy: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: Data not provided Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided How many funded staff are on the state level?: 4 How many in-kind staff are on the state level?: 0 What are the functions of the state program: Technical assistance to local teams, Coordinator of state team/board, Training of local teams, Data collection and reporting. Is there a state-level advisory board that reviews local findings and makes state-level recommendations?: No NFIMR report on programs in USA and Puerto Rico, June 2016 141 Name: Leah Meidl Organization: Wood County Health Department State: WI Approximate cases reviewed: Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization , Members attend each other's meetings , Cases are triaged into FIMR or CDR Statute to protect FIMR teams: No, currently working on state legislation Two-tiered system: No Percentage of interviews: 35% Why interview is not done: Data not provided Community Education: Promote breastfeeding, Meet with community based organizations, Publish an annual FIMR report, media campaign on kick counts and oral health Service Systems Improvement: Improve referral patterns among agencies, Improve bereavement referral services Policy Advocacy: Develop local or state legislation Improved Practices: Enhance services to bereaved families Professional Training: Data not provided Actions taken because of FIMR: Data not provided Ethnic Populations: American Indian/ Alaska Native (Please specify tribes/nations) 2.5% Asian (Please specify country of origin) 2.5% White (Please specify country of origin) 95% Special Religious or Cultural Subgroups: Yes, Amish/Mennonite Population in your FIMR catchment area: Total population in the catchment area 180,000 Unknown unknown, 3 counties participating Annual Budget: Data not provided Name: Daniel Stattelman-Scanlan Organization: Public Health Madison and Dane County State: WI Approximate cases reviewed: Fetal Deaths: 30 Neonatal Deaths: 20 Post neonatal Deaths: 10 Reviews with FIMR program participation: Child Fatality Review does not meet regularity-trying to get going again What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Members attend each other's meetings, NFIMR report on programs in USA and Puerto Rico, June 2016 142 Prevention recommendations are developed jointly. Statute to protect FIMR teams: I believe this is being worked on now, there is language in statute about Child death review and authority of health department to do surveillance. Two-tiered system: No Percentage of interviews: Data not provided Why interview is not done: We began maternal interviews in 2015. We are beginning to integrate these into the case review. Community Education: Develop culturally relevant health education materials Meet with community based organizations, Publish an annual FIMR report, Conduct a campaign around safe sleep Service Systems Improvement: Eliminate a gap in MCH services, Improve referral patterns among agencies, Improve bereavement referral services, Other (please specify) Improved screening for diabetes, improve referral for opiate addiction, improved management for women with opiate addiction Policy Advocacy: Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis, Report the FIMR findings to the State MCH Director Request to state government assign a Legislative Council STudy Committee on Prevention of Premature births, Provide education to policy makers about effective ways to prevent infant mortality/ unsafe sleep deaths Improved Practices: Expand hospital quality assurance standards, Expand services to pregnant substance abusers, Enhance services to bereaved families, Implement screening for smoking, Other (please specify) improved screening for diabetes early in pregnancy Professional Training: Implement SIDS training programs Actions taken because of FIMR: FIMR Report is available here: http://publichealthmdc.com/family/documents/FIMR2012.pdf Safe Sleep Campaign: https://www.chawisconsin.org/PDF/IP4_Dane_County_Safe_Sleep.pdf State SUID Report: https://www.chawisconsin.org/documents/IP5SUIDreport.pdf PROBLEM: High number of infants dying in unsafe sleep environment RECOMMENDATION: Have consistent safe sleep message for families and providers INTERVENTIONS: Training of providers, clinic, hospital, home visitors, WIC staff and families- new parents, faith community. Also media campaign with bus signs, billboards and radio PSA. OUTCOMES: Surveyed mothers at WIC about safe sleep and campaign. Assessed ongoing causes of infant death. Still reviewing the impact. PROBLEM: Poor understanding of SUID vs SIDS and factors that may put infant at risk. RECOMMENDATION: Use the CDC SUID Classification system for all cases. INTERVENTIONS: Worked with local Pathologist and medical examiner reports to code each case and improve understand of the cases and aggregate data. Ethnic Populations: American Indian/ Alaska Native (Please specify 0tribes/nations) Asian (Please specify country of origin) Hmong/Chinese Black/ African American (If specific culture, please name) 23% NFIMR report on programs in USA and Puerto Rico, June 2016 143 Pacific Islander (Please specify if Native Hawaiian, 0 Guamanian, Samoan or Other) Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto 3 Rican, Cuban, Descendants of Spain, Central and/or South American) White (Please specify country of origin) 65 Other (please specify) 9 (Hmong, other Asian, native American and Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area 500,000 Total number of live births 6000 Total number of fetal deaths 30/year Total number of infant deaths 30/year Annual Budget: $150,000?? Name: Margaret Gesner Organization: Central Racine County Health Department State: W Approximate cases reviewed: Reviews with FIMR program participation: Child Fatality Review What does CDR and FIMR look like in your community? Leadership is housed in one organization, Staff works on both CDR and FIMR, Funding is shared, Members attend each other's meetings, Joint reviews are conducted, Meetings are coordinated, Prevention recommendations are developed jointly, Prevention recommendations are shared Statute to protect FIMR teams: No, currently under development Two-tiered system: Fetal Deaths, Number 0 Neonatal Deaths, Number 3 Post neonatal Deaths, Number 7 Other, please specify type of review & number 2 fetal Percentage of interviews: 50% Why interview is not done: Data not provided Community Education: Meet with community based organizations, Other (please specify) Work toward a hybrid CDR/FIMR team Service Systems Improvement: Data not provided Policy Advocacy: Report the FIMR findings to the State MCH Director Improved Practices: Data not provided Professional Training: Data not provided Actions taken because of FIMR: Team has not identified any areas for action at this time Special Religious or Cultural Subgroups: NO Population in your FIMR catchment area: Total population in the catchment area 195000 NFIMR report on programs in USA and Puerto Rico, June 2016 144 Total number of live births 2375 Total number of fetal deaths 2 Total number of infant deaths 21 Annual Budget: 40000 Name: Karen Michalski Organization: City of Milwaukee Health Department State: WI Approximate cases reviewed: Fetal Deaths: 25 Neonatal Deaths: 25 Post neonatal Deaths: 15 Reviews with FIMR program participation: Child Fatality Review, Domestic Violence Review, Maternal Mortality Review What does CDR and FIMR look like in your community? Members attend each other's meetings Statute to protect FIMR teams: No Two-tiered system: No Percentage of interviews: Data not provided Why interview is not done: A majority of the mothers are contacted but only a small percentage choose to participate. Community Education: Conduct a media campaign to promote prenatal alcohol and drug cessation, Conduct a media campaign to address disparities in infant health, Meet with community based organizations. Service Systems Improvement: Eliminate a duplication of MCH services, eliminate a gap in family planning services, and Improve bereavement referral services. Policy Advocacy: Initiate a Mayoral or Governor's proclamation of a day or week promoting MCH Report FIMR findings to the Mayor, County Executive, and/or other officials on an annual basis Invite the Mayor or County Executive to contribute to the FIMR annual report, Report the FIMR findings to the State MCH Director. Improved Practices: Expand hospital quality assurance standards, Enhance services to bereaved families, Expand family planning services Professional Training: Conduct provider education programs (e.g., management of IUGR, diabetes in pregnancy, etc.)Implement SIDS training programs , Develop a community resource directory , Implement bereavement training Actions taken because of FIMR: Data not provided Ethnic Populations: Black/ African American (If specific culture, please name) 50% Hispanic/ Spanish/ Latino (Please specify Mexican, Puerto Rican, Cuban, Descendants of Spain, Central and/or South American): 25% White (Please specify country of origin) 25% Special Religious or Cultural Subgroups: No Population in your FIMR catchment area: Total population in the catchment area : 600000 Total number of live births: 10000 Total number of fetal deaths: 75 NFIMR report on programs in USA and Puerto Rico, June 2016 145 Total number of infant deaths: 100 Annual Budget: 5000 excluding salaries Name: Gianna Ventura Organization: Kenosha County Division of Health State: Wisconsin Approximate cases reviewed: Reviews with FIMR program participation: Child Fatality Review, Suicide Review Panel What does CDR and FIMR look like in your community? Staff works on both CDR and FIMR, Cases are triaged into FIMR or CDR, Prevention recommendations are shared Statute to protect FIMR teams: No, still in development process Two-tiered system: Yes Percentage of interviews: Data not provided Why interview is not done: Would like to implement maternal interviews. In development process and exploring feasibility Community Education: Promote breastfeeding, Develop culturally relevant health education materials, Meet with community based organizations Service Systems Improvement: Eliminate a gap in MCH services , Eliminate a gap in family planning services ,Improve referral patterns among agencies , Improve bereavement referral services Policy Advocacy: Report the FIMR findings to the State MCH Director, Report FIMR findings to the Board of Health Improved Practices: Expand services to homeless women and children, expand services to pregnant substance abusers, enhance services to bereaved families, expand family planning services, Improve cultural competency protocols, Implement screening for substance abuse. Professional Training: Conduct provider training on use of screening tools (e.g., substance use, domestic violence, etc.) Implement cultural competency training, Develop a community resource directory, Implement cultural competency assessment for FIMR team members Actions taken because of FIMR: Problem: There was a lack of coordination and communication between birthing hospitals and our community. Special Religious or Cultural Subgroups: No Ethnic Populations: Population in your FIMR catchment area: Data not provided Annual Budget: Data not provided NFIMR report on programs in USA and Puerto Rico, June 2016 146
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