rapport
Bringing people together
Spring 2016
ISSN 1180-503X
“Evening in The Maritimes” the best kitchen party in Ottawa!
Most Maritimers can see a "kitchen party" if they
close their eyes. Drink, food and merriment
abound, to the sounds of Celtic inspired music.
The kitchen party has been enshrined as an
iconic image of east coast living, turning up in
television shows, music videos and as the
largest annual fundraiser for Citizen Advocacy.
Bytown Highland Dancers, and Ten Strings and
A Goat Skin; a truly east coast band.
Tickets are $175 each and include a $75 tax
receipt, corporate tables of 10 are $1,900.
For information about Citizen Advocacy’s
biggest fundraiser of the year visit:
www.eveninginthemaritimes.com.
Wondering how you can help? Citizen Advocacy
will need event volunteers. We are also
collecting items for the silent auction.
Contact Virgilia Partridge
[email protected] or
613-761-9522 x 240 with comments or
questions.
For twenty-two years Citizen Advocacy has
proudly held the best kitchen party in Ottawa –
Evening in the Maritimes. You will experience
traditional east coast hospitality including
complimentary
Screech
Storm
cocktails
provided by Newfoundland Screech Rum, our
signature 4-course lobster dinner (beef and
vegetarian meals are also available upon
request) and live east coast entertainment
provided by the Ottawa Police Pipe Band, the
Thank you to our sponsors: Lundbeck,
Scotiabank, Scotia Wealth Management,
Emond Harden, Fisheries Council of Canada,
Newfoundland Screech Rum, Telus, CTV, Majic
100FM, and the Hilton Lac-Leamy.
Community Supporters: Borden Ladner
Gervais, LLP, Global Public Affairs,
Lundbeck, Scotiabank and Scotia Wealth
Management
Damon Lauder
Consumers Advisory Committee Member
Impacting Lives Together
On Friday April 1st Citizen Advocacy hosted a
breakfast, Impacting Lives Together. It was
our opportunity to personally thank and
celebrate the impact our community has on the
lives of hundreds of people living with a
disability and their families in Ottawa.
Approximately 120 members of the Citizen
Advocacy community - staff, Board of
Directors,
Advocates,
Friends,
event
volunteers, Consumer Advisory Committee
members, donors, sponsors and supporters
were able to join us.
Collectively through our programs we have a
direct impact on the lives of 1,200 people each
month. It is also estimated that for every
person directly impacted by the work of Citizen
Advocacy there are 3-5 people indirectly
impacted by our programs. Our organization
continues to be highly respected by individuals
with disabilities and their families. We are often
told we are a place where they feel welcomed,
safe and able to speak their minds. They
receive the recognition, guidance and support
they are seeking. We recognize the resilience
of individuals with disabilities and their families
as they access supports and services and look
for innovative and creative ways to build
healthy, safe and inclusive futures in our
community.
Lifetime Networks Cheque
Presentation
Simone Joanisse, Board and Lifetime Networks
Advisory Committee member, accepted a $500
donation to Citizen Advocacy’s Lifetime
Networks program from Sarah Simpson at the
recent Impacting Lives Together event. Sarah is
a Carson Wagonlit Travel Canada employee,
who recently entered the travel agency’s
national contest. The contest asked their
employees to highlight the work they do for a
charity. Sarah wrote about her experiences as a
member of Caroline Joanisse’s Lifetime Network
and she detailed all the good work of Citizen
Advocacy Ottawa. Sarah’s submission won.
Thank you, Sarah and Carson Wagonlit Travel
Canada.
Our impact on these lives would not be
possible without the amazingly gifted and
generous people in our community. Thank
you!
Rapport Spring 2015
2
Caregiver Retreat
Citizen Advocacy hosted a weekend Caregiver Retreat at the wonderful Courtyard Marriot Hotel and
Conference Centre in Ottawa. Caregivers explored the benefits of independent facilitation and persondirected planning through discussion with facilitators, parents, employers and fifty other families! It was
truly an all-inclusive event with sumptuous food, free hand massages and a lounge suite to mingle after
hours with wine and cheese!
Saturday began with David Remington from MCSS who emphasized that true change always comes
from the advocacy of families and our community, and indeed much work is still required to make
developmental services more responsive to people with disabilities. The next presentation was from
Windsor Essex Brokerage for Personal Supports, who enlightened the Ottawa families with success
stories in their own community and described the role of a facilitator as vision holders, opportunity
creators, network builders and catalysts!
Josh Gray, our graphics facilitator, captured the words and meaning of our speakers and the following panel discussions
in real-time!
Insight and innovative ideas were shared from the housing research team and Citizen Advocacy’s
leadership on steering a housing trust. The parent panel provided living proof of how effective persondirected planning can be. Nancy Huggett shared with us that person-directed planning gave her
daughter the ability to direct her life and ultimately opened hearts and doors by inviting people into her
support circle. Evelyn Simmons, a parent, stated “I said yes to person-directed planning, because I
know that I unfortunately will not be here forever.”
Attendees heard from an employment panel. Panel members included employee Nan who was a
valued employee at Zellers for 17 years until it was closed. With a little extra pressure from an
Independent Planning Facilitator, Nan is happily employed again. How valuable is it for an employer to
hear their employer say “I love my job” everyday? Nan is a perfect example of an employee who brings
persistence, reliability and joy to her team. Andrew Bearrs from Dow Honda was then asked why he
started employing people with disabilities, and he replied “someone needed to ask and it was the smart
thing to do.”
The weekend was capped off with an absolute treat from Lucinda Hage, the author of “What time is
the 9:20 bus?” She is the mother of Paul and has documented his journey through a person-directed
lens. What a gift it was to hear the voice behind the book and her generosity allowed everyone
attending the retreat to take home a copy of her book. It is a must read and a story definitely worth
sharing with the people in your lives.
Rapport Spring 2015
3
Fetal Alcohol Resource Program
(FARP) Update
The FARP team are thrilled by the number of
organizations and agencies signing up for
their Fetal Alcohol Spectrum Disorder
(FASD) training. At the end of March, they
have trained 200 people in the Ottawa
region, equipping them to better support
citizens in our community affected by
prenatal exposure to alcohol. Participating
organizations have included the Youth
Mental
Health
Court
Stakeholders;
LiveWorkPlay; Ottawa Carleton Pharmacists
Association; Ottawa Community Committee
on Child Abuse; City of Ottawa Special
Needs Staff; OCDSB Educational Assistants
and Early Childhood Educators; and the
Human Services Justice Coordinating
Committee. Fifteen more agencies have
signed up for workshops in the coming
weeks.
We are busy fulfilling our other mandates too.
The team has been supporting families
affected by FASD by guiding them to
supports and services. The FARP
Coordinators
are
collaborating
with
organizations such as CanFASD; CHEO;
Youth Now; the FASD Coalition of Ottawa;
FASCETS Canada; and the University of
Ottawa Medical and Education departments,
sharing expertise to enhance capacity to
support people with FASD.
March also saw a feature in an Ottawa
Citizen article on FASD and FARP as well as
on a segment of CBC's Ontario Morning. The
daily posts on their Facebook page are being
followed by people around the world. Tanya,
Janet and Nancy are happy and energized
by the support in the community for this
seven month old program.
For inquiries or to book training, please
contact [email protected] or call
613-761-9522 Ext. 234 and like us on
Facebook.
Rapport Spring 2015
Walking in My Shoes (WIMS)
Update
WIMS continues to provide monthly meetings
for parents of children with special needs.
These meetings offer an opportunity for
parents to learn about community resources
and share experiences through facilitated
discussions and guest speakers.
In January, Donna Thomson shared her
experiences and talked about some
strategies which may be helpful in finding
balance in your life, making tough decisions
and developing good coping strategies when
raising a child with special needs. In March,
the members participated in a facilitated
discussion on “When They Don’t Get It”.
Parents discussed what happens when your
own family or friends/acquaintances just
don’t get it; don’t seem to understand your
child’s strengths and needs and your
challenges.
In May, Christa Janes and Cathey
McLaughlin, Behaviour Consultants with
Ottawa Children’s Treatment Centre, will
share information which may help you
understand your child’s behaviour. They will
also review some practical tools which may
help you manage situations when issues
arise. There will be opportunity for questions
and discussion afterwards.
For more information about WIMS please
visit
www.wimsparents.ca
or
email
[email protected] or phone 613761-9522. The West-End meeting continues
to take place the second Tuesday of each
month from 7:00 to 9:00 pm at Bridlewood
Retirement Home, which is located at 480,
Brigitta Street. The East-End WIMS is offered
at 700 Industrial Ave. Suite 600, on the 3rd
Tuesday of the month from 7-9pm.
4
Lifetime Networks
There are some exciting things happening
within the Lifetime Networks Program! In the
Fall of 2015 we submitted a two-year
proposal to the Ontario Trillium Foundation
to grow the Lifetime Networks program. The
proposal was submitted in partnership with
the Mental Illness Caregiver’s Association
(MICA) and has two components. The first
was to grow the program by hiring a full-time
Coordinator, hiring and training more
Facilitators and recruiting more families. The
second part of the proposal was to
implement a pilot project, in partnership with
MICA, to see how the Lifetime Networks
model can be adapted to better support
people living with a mental illness. Our
proposal was successful and we are thrilled
to be able to grow the program, to explore
new ways of supporting people with mental
illness and to better support and educate our
current Facilitators and families.
We now have a new Lifetime Networks
Coordinator, Kelly Howson. Kelly has been
working as a Social Worker in our Everyday
Champions program and has a long career
in the mental health field.
Over the last year Lifetime Networks has had
the pleasure of witnessing the important role
support networks have played in the lives of
our members. The program has continued to
grow with an increasing number of families
becoming interested in developing networks
for their family member. We continue to
welcome younger children to our program.
We have many families expressing interest
in Lifetime Networks, and anticipate
increased interest and growth in the program
over the coming year as we work to grow the
program
The Dovercourt Dances continue to be very
popular as is the Parent Café, run in
partnership with Families Matter Co-op.
Parent Café meets at the same time as the
dance and is an opportunity for parents to
meet one another and socialize.
Rapport Spring 2015
Children’s Sibling Groups
The Children’s Sibling Groups, for children
who have a sibling with a disability, continues
to have great turnout week after week. We
are averaging 24 children in three different
age categories and groups.
This year we have had a former group
member return in the capacity of a junior
facilitator. He has a lot of experience
volunteering with children and has proved an
invaluable member of the team. In addition,
we have an amazing group of facilitators who
run the groups. They always seem to come
up with great themes as well as interactive
and therapeutic activities that the children
really seem to enjoy.
An informal session was planned with the
parents of the children and the feedback from
that session will be helpful as we plan for the
fall of 2016. We were hoping to find out how
the children are responding to groups and if
the parents are finding that it is helpful to the
children in terms of their interactions with
their brothers and sisters who are living with
a disability. This session also ended up being
a great way for the parents to informally
interact and drink coffee as they chatted
about their children and their families.
We are planning a family potluck at Brittania
Park to celebrate another great year of
groups and to allow all of the families to get
together in a fun setting. This potluck will take
place in June after the groups wind down for
the summer and before everyone leaves for
holidays. It will be a fun time for the children
to get together with their friends from groups
and their siblings, in order to interact, eat and
play fun games.
5
Learning to savour the experience
I can remember the first time Rob requested that I accompany him to an Ottawa Senators game.
Initially I was surprised by his request, you see he is totally blind. Why would you want to go to a
hockey game not being able to see the players, the goals, the body checks, the fights? Now years
later and many trips to see the Senators I am able to report, amongst the many other things he has
taught me, that there is an experience to a hockey game that goes far beyond what is on the ice.
Before I went to a game with Rob I thought the breaks in the actual game, the between period pauses,
the silly giveaways, the music etc. just got in the way of the actual game. Rob taught me about the
“experience” as opposed to the game. He loves the crowd noise, the music, the freedom to yell his
favourite hockey word, “bonehead”, and of course sending me off to find some coffee. I also get to
pretend that I am calling the play-by-play and when I forget that this is my job at the game he lets me
know it very quickly. That too is part of the “experience”.
Last summer Rob and I were sitting in the backyard of his group home on a beautiful afternoon just
hanging out. Rob is a man of few words but he began picking out sounds that he was hearing: birds,
airplanes, cars, trucks, motorcycles, people talking, and with each sound let me know what he was
hearing. Some of them I heard, some I had not. I think because my mind is simply too busy probably
with a lot of junk I was missing the “experience” that Rob was savouring. Another lesson learned from
my Friend Rob!
Rob lets you know that he cares about you with his hugs; “big hug” is one of his favourite sayings. He
has lots and lots of friends. Invariably, anywhere that you go with him, someone comes up to him and
they exchange hugs. The “experience” for me is that I get to be the guy with him rather than Rob being
the guy with me.
Rob and I have been friends now for about five years. He lives in a group home with a wonderful staff
team so I need not do a lot of advocating for him, just experience being his friend. It is an experience
that I enjoy very much!
Mac Hiltz
Advocate
Empty bottles taking up too much space?
Our Consumers’ Advisory Committee is holding a bottle drive to raise funds to support people with
disabilities. Bring your empty bottles to the Citizen Advocacy parking lot (312 Parkdale Ave) on
Saturday April 30th between 11 am and 2 pm or drop them off at the office the week before. Our last
bottle drive raised $650 – help use beat that amount.
Rapport Spring 2015
6
We need your help!
One of our continuing challenges is recruiting
volunteers to become advocates for the more
than 290 people with disabilities on our waiting
list. For the last two years we have asked you to
recommend us to your family and friends and
you responded! We had 28 people express an
interest in volunteering as a direct result of a
recommendation from a friend or family member
during our recruitment drive. You are our true
advocates in the community, thank you.
This year, we’d like to ask you to help us in a
slightly different way. You all have either
employers or contacts at church groups, service
clubs and special interest clubs. We would love
to be able to reach out to these groups to offer
to speak to them about our matching programs.
We know that by spreading the word, one
person and group at a time, this has a
cumulative effect over the long-term as we see
more people coming forward to volunteer.
It would be great if you were able to recommend
Citizen Advocacy as a possible presenter for a
lunch and learn session or a regularly scheduled
meeting. You can then put them in touch with our
Community Engagement Coordinator, Maria
Redpath. Or if you’d rather we reached out to
your group just send Maria the contact name,
email or phone number and she’ll do the rest.
Thank you in advance. With your help we can
reduce the average 34 month wait time for a
volunteer advocate.
Maria Redpath: [email protected]
or 613-761-9522 ext. 222.
If you enjoy playing Bingo, please support
Citizen Advocacy by playing at Bingoland South
(www.bingolandsouth.com) at 9 Slack Road.
Citizen Advocacy hosts bingo on Tuesday
evenings at 7 p.m. Our wonderful, hardworking
Bingo Team would love to see you there!
Rapport Spring 2015
A rewarding one-on-one volunteer
opportunity
Janis is in her mid-30s and would benefit from a
volunteer advocate who is willing to spend time
gaining her trust and who also enjoys cards and
numbers games. Investing time in this
relationship will be very rewarding for the right
person.
Do you know someone who would make a great
advocate? Invite them to attend a volunteer
information session to learn how they can make
a real difference in the life of someone with a
disability. Sessions are held twice a month –
contact Maria Redpath at 613-761-9522 ext.
222 or [email protected] for more
information.
Date
Day
Start
Time
April 22
May 4
May 26
June 10
Friday
Wednesday
Thursday
Friday
12:30 pm
6:00 pm
6:00 pm
12:30 pm
Dates to Remember
May 4: Volunteer Information Session
May 10: WIMS Parent Group (West End)
May 14: Dovercourt Dance
May 17: WIMS Parent Group (East End)
May 19: Evening in the Maritimes
May 23: Victoria Day (office closed)
May 26: Volunteer Information Session
May 28: Children’s Sibling Group
May 28-29: Run for Everyday Champions
June 10: Volunteer Information Session
June 11: Dovercourt Dance
June 14: WIMS Parent Group (West End)
June 21: WIMS Parent Group (East End)
June 23: Volunteer Information Session
July 1: Canada Day (office closed)
July 6: Volunteer Information Session
August 1: Civic Holiday (office closed)
August 28: Annual Summer Picnic
September 5: Labour Day (office closed)
7
Board Member Interview: Neena Kushwaha
How long have you been on the board?
I’ve been a board member since June 2015
What motivated you to join the CA board?
I have been with CA for almost 11 years, and I believe that serving on the
board is a wonderful way to support an organization that is close to my heart.
What is your work and/or volunteer background?
I am a public servant with the Department of Innovation, Science and Economic Development of
Canada. I work in the fields of intellectual property and industrial technologies.
I have been a volunteer for most of my life, starting as a candy-striper at a local hospital. I enjoyed the
opportunity that volunteering provided me to connect and give something back my surrounding
community.
What is your education and/or training background?
I have a doctorate in cellular and molecular biology. I also have skills and expertise in intellectual
property, and project and team management.
What do you enjoy most about your board involvement?
As this is my first involvement on a board, I find it very interesting to see how the people, culture,
decision-making processes, and structures of the board come together to accomplish its goals.
Please describe the other ways in which you are involved with Citizen Advocacy
I am an Advocate. I’ve been matched with Debby Applebaum for almost 11 years. Through Citizen
Advocacy I have met an energetic, capable, empathetic and insightful women who I am blessed to
call a friend. I am so grateful to Citizen Advocacy for bringing us together and to those who support
our organization to bring others like us together to form deep, meaningful and lasting relationships. We
are looking forward to our future adventures together!
Ready, Set, RACE! Ottawa Race Weekends Heats Up
We may be struggling to leave winter behind, but that doesn’t mean things aren’t heating up for
Ottawa Race Weekend. Team Citizen Advocacy needs your help to raise crucial funds in support of
our Everyday Champions program. Pledge Team Citizen Advocacy here.
We are currently looking for participants and volunteers for the 2km, 5km & 10km races.
2km on May 28, 2016 – 3:00 pm
5km on May 28, 2016 – 4:00 pm
10km on May 28, 2016 – 6:30 pm
If you would like to volunteer for Ottawa Race Weekend or are interested in registering please
contact Neala Kelly at [email protected] or 613-761-9522 ext. 233.
Rapport Spring 2015
8
Match Anniversaries
Everyday Champions
JANUARY 2016
31 Arne Haaland &.Norman P.
25 Allan Dolenko & Maurice G.
20 Richard Kastler & Greg R.
9 David Murrell-Wright & Garry H.
8 Paul Sonnichsen & Jim S.
8 Peter Roorda & John L.
7 Jennifer Forbes Walker &
Nancy N.
7 Diane McGuire & Jenny G.
5 Tom Murphy & Gilles D.
3 Christopher McGregor &
Anthony G.
2 Mike Weir & Philip M.
1 Marie Daoust & Kathy B.
FEBRUARY 2016
10 Gerald Lalonde & Dan M.
10 Brian Joynt & Jeffrey B.
7 Peter Whelan & Dylan S.
7 Ellen Dettman & Mary G.
7 Chris Judge & Michael B.
3 Andrea Dixon & Theresa M.
3 Helen Wong & Renee C.
2 John Quinn & Nils L.
2 Shi Si & Debra N.
1 Heather Astle & Heloise B.
1 Laura Boutin & Michèle G.
1 Bruce Jutzi & Brian S.
1 Kathleen Stephenson & Marwa T.
1 Simone St-Cyr & Carole M.
MARCH 2016
16 Georgia Pavlou & Linda G.
15 Blaine Chessie & Gareth P.
15 Veronica Petro & Stefania I.
12 Viji Sundaram & Rachel W.
10 Jenna Elizabeth Swan & Katie P.
7 Chris Andrews & David R.
6 Mike Murphy & Darryl T.
6 Carlos Nunes & Roger T.
5 Stephanie Lalonde & Elizabeth S.
3 Lourdes Rojas & Maria A. C.
3 Stephanie Spooner & Malaika B.
2 Mike Murphy & Anthony T.
1 Jenna Neerhof & Ashley L.
1 Tuong Kuwabong & Christine B.
Rapport Spring 2015
1 Ashley Leifso & Lu L.
1 Jocelyn Kearney & Gail L.
APRIL 2016
17 Cynthia Throop & Nancy D.
15 Lori Streefkerk & Jane M.
15 Philip Hogarth & David F.
7 June Carter & Kris C.
7 James Kane & Steven S.
7 Jennifer Beckman & Dayna P.
6 Justin Mensen & Ryan B.
6 Preet Brar & Diane R.
4 Patricia Collette & Caroline J.
3 David Murrell-Wright & Scott M.
3 Allyson Charles & Thomas H.
2 Naga Lakshmi & Annie M.
2 Christine Thomson & Marika S.
2 Meltem Tuna & Alanna M.
2 Erin Gauthier & Yves V.
1 Mac Hiltz & Robert N.
1 Denise Curtis-Power &
Mandy Jane W.
1 Janine Smienk & Meredith C.
1 Todd Collings & Glen K.
1 Rachel Rhoades &
Jacquelyn W.
1 Filsan Omer & Bonnie V.
1 Laurena Nash & Marilyn P.
Group Advocacy Project
FEBRUARY 2016
5 Sheela Mallya & Christian
Horizons Kimball Crt
Chance for Choice
JANUARY 2016
7 Kate Wilder & Georgette L.
FEBRUARY 2016
3 Maryse Cote-Singer & Grace D.
2 Mary Walker & Martha T.
2 David Walker & Sheldon M.
APRIL 2016
7 Helen Wong & Frances H.
6 Mike Francis & Richard D.
5 Dave Hollis & Bill R.
New Matches
Everyday Champions
DECEMBER 2016
Kyoko Morikawa & Mattia S.
Olivier Dagenais & Christopher G.
Nina Nguyen & Olivia R.
Aviva King & Judith M.
Kyle Tanaka & Christopher J.
JANUARY 2016
Geraldine Esparza & Julienne W.
FEBRUARY 2016
Stephanie Smith & Trisha C.
Ruby Puni & Molly K.
Ron Warren & Richard P.
Bruce Burwell & Peter H.
Roger Soloshy & Derek H.
Tamara Kalnins & Heather K.
MARCH 2016
Jessica Murphy & Melanie D.
Jonathan Macéna & Andrew S.
Helen Barrette & Mireille D.
Sebastien Vaive & Jack M.
Chance for Choice
DECEMBER 2016
Hilary Philebrown & Saundra S.
JANUARY 2016
Orisha Yacyshyn & Marie S.
9
Staff News
Cara O’Connell
Emily Taylor-King
Sadly Executive Assistant, Cara O’Connell, has
decided to move on to new pastures. We wish her
all the best for the future.
I am very glad to be rejoining the Independent
Facilitators team at Citizen Advocacy, this time as
a full-time member of the core facilitation
team. Our work of walking alongside our focus
people as they identify and move toward their
goals is such a privilege. I always tell focus
people that my job is “to help you figure out how
to make your life more wonderful.” It gives me a
lot of joy to be of service in this way.
Nandeesh Kumar
I am thrilled to be part of the Independent
Facilitation and Person-Directed Planning team. I
have worked as a social worker and residential
home manager supporting developmentally
disabled adults. I am motivated to assist
individuals develop and pursue their goals with the
support of family, friends and our local community.
Rachel Levine-Katz
How quickly a year flies by! Social Worker, Rachel
Levine-Katz, returned to the matching programs
and WIMS teams from her maternity leave in
January. Rachel reports that baby, Vida, is settled
happy at her daycare. Welcome back Rachel.
Sara Rafiei
I am so pleased to be part of the Independent
Facilitation and Person-Directed Planning team. I
live in the Stormont, Dundas & Glengarry area
with my husband and my son and enjoy my spare
time embracing the outdoors. I am motivated and
dedicated and I look forward to helping individuals
reach their goals and to overcome obstacles along
the way.
Manon Leblond-Leduc
Hi! I’m Manon Leblond-Leduc and I’m thrilled to
be joining the Independent Facilitation and
Person Directed Planning team at Citizen
Advocacy. I was born and raised in Ottawa in a
francophone family, but have had the opportunity
to spend a year working in Saskatoon, SK. Now
that I am back, I look forward to being part of such
a wonderful community and hope to enrich our
focus people’s lives along the way.
Sari Musta-White
In the summer 2015 newsletter we reported that
Social Worker, Sari Musta-White, had embarked
on a six-month trip to Australia with her family.
Her adventures are over and we are happy to
report that she is back working with our matching
programs and WIMS teams.
Yes! I want support Citizen Advocacy
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Everyday Champions
Chance for Choice
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Lifetime Networks
Walking In My Shoes
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Rapport Spring 2015
10