day and getting up at the same time Ways to assist in managing fatigue • Balance activity and rest • Use energy saving techniques throughout the day (i.e. complete activities sitting down) • Alternate between mental and physical activity • Get to know your triggers to fatigue • Get to know your energy limits on different activities • Work within your energy limits, don’t wait until you feel you have gone too far • Pace activities throughout the week • If necessary only tackle one larger activity a day • Take regular rest breaks, if requiring sleep during the day try to have 30 minute ‘power naps’ and avoid sleeping after 4pm • Try to exercise regularly If you require any furtherwithin information or physical capability advice please contact the Gloucestershire Brain Injury Team on 422 5139 If0300 you require any further information or advice please contact the Information for this leaflet has beenon Gloucestershire Brain Injury Team adapted 0300 422from 5139the following references which may provide useful further reading. Information for this leaflet has been Cooper, from J. Malley, D (2008)references Managing adapted the following fatiguemay after brain injury, – the which provide useful Headway further reading. brain injury association. Russell Press Ltd, Nottingham. Cooper, J. Malley, D (2008) Managing fatigue after brain injury, Headway – the Powell, T (2004) Head Injury: practical brain injury association. RussellA Press guide, Speechmark Publishing Ltd, Ltd, Nottingham. Bichester. Powell, T (2004) Head Injury: A practical guide, Speechmark Publishing Ltd, Bichester. • Prioritise where to use your energy • Try to ensure at least eight hours sleep a night to assist energy levels for the next day • Try to establish a regular routine by going to bed at the same time each day and getting up at the same time • Try to exercise regularly within physical capability GHPI0871_01_13 Author: Nicola Mifflin Review due: March 2016 www.gloshospitals.nhs.uk GHPI0871_01_13 Author: Nicola Mifflin Review due: March 2016 www.gloshospitals.nhs.uk Managing Fatigue after Brain Injury BETTER FOR YOU What is fatigue? Triggers to fatigue The purpose of this leaflet is to give information and advice on how to manage the effects of fatigue after a brain injury. Fatigue is experienced by everyone at some point after a period of physical or mental activity and is a signal telling us to take a break. Tiredness, loss of physical stamina and fatigue after brain injury are some of the most persisting symptoms because they affect everything that a person does and unlike ‘normal’ fatigue these symptoms are not always improved with rest. Activities which trigger fatigue will be different for everyone. Examples include:- Causes of fatigue after brain injury There have been various ideas put forward for the causes of fatigue. One such idea is that the part of the brain, the brain stem which controls consciousness, wakefulness and the rhythm of sleeping has been damaged (Powell, 2004) Another cause of fatigue post brain injury which has been suggested is that inflammation of the nerves in the brain which occur following brain injury can disrupt information processing and memory. If these skills are affected then greater effort is required in all mental and physical tasks leading to increased levels of fatigue. Whatever the cause it is clear that fatigue is a major factor for people post brain injury. • Working at a computer • Going for a walk • Being in a busy environment such as a shopping centre or restaurant • Going to the gym Managing fatigue For some people fatigue improves over time. However for many people fatigue is a condition that they have to learn to manage in the long term. Often there is a tendency to try and return to the same levels of activity that were achieved prior to a brain injury, which can lead to a ‘vicious cycle’ of good and bad days (as illustrated on the following graph). Bad days – When people have bad days the tendency is to rest to ‘recover’ however doing very little for a few days leads to decreased fitness and motivation. Good days – When people do feel better the temptation is to do all of the things left undone during bad days. However this can lead to over-activity. As fitness is reduced, people quickly feel worse and need to rest again. Pacing Evidence from research has shown that people can often get back to doing almost everything they want to do using a method called pacing. Pacing means keeping to the same amount of activity each day whether having a good or bad day. If everyday activities can be successfully paced using a ‘little and often’ approach then fitness will improve over time. Prioritising When pacing activities it is also important to prioritise what is most important. This involves thinking about all of the activities that have to be done each day/week and considering the following: • Which jobs are most important or essential? • Which activities are most enjoyed? • Which tasks could be delegated to someone else? • Could any activities be done less often or eliminated altogether? (Cooper and Malley 2008)
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