UCLH CHARITY REVIEW summer 2009 Ever wondered what we do with your donations? About 80 per cent of the people and organisations that support us ask for their donation to go to specific causes, with the rest going to the Trustees’ general funds. To make sure that any donations are used where they are most needed, we let front-line staff in the wards and departments decide what to buy. Here are some of the projects our supporters have helped us to fund. • British Land, which owns the Regent’s Place development on the Euston Road, teamed up with Hachette Livre to donate £5,000 to the UCLH Children’s Ward. The money was used to buy extra equipment for the sensory room, a calm, medical-free oasis equipped with lights, music and games, where children up to the age of 12 can take time out from the ward. As the room is too small to wheel a bed into, the donation will provide mobile equipment to take to the ward. • Researcher Susie Pearce went on a training course, financed by the Adolescent Cancer Unit fund, to explore ways to engage young people in research projects. “It is important for young patients to be active participants in research and the development of services” she says. • Kevin Sullivan, a paediatric radiotherapy research radiographer, has his salary partly funded by the Rays of Hope for Children with Cancer charitable fund. His work, which focuses on innovative radiation treatments for the childhood cancer neuroblastoma, means that children come from across Britain and abroad to UCLH for treatment. The fund’s supporters include Greggs the bakers, who organise fun runs to finance Kevin’s work. • P rofessor Derek Yellon, who works in cardiac research funded with the help of the UCLH Charity, is providing a placement over the summer for graduate student Matthew Roche. “It’s hugely interesting to spend time in a working lab, dealing with actual research” says Matthew, whose dissertation was on one of Professor Yellon’s key projects, looking at how to enhance the heart’s ability to heal itself after a heart attack. • U CLH Charity is very proud of the work that its fundraisers do – see pages 3 and 4 to see the many different ways that people get involved. And please contact Rachel Wilcox if you’d like to get involved in the next Greggs’ fun run. Above: Kevin Sullivan Above: Matthew Roche MEET OUR FUNDRAISING HEROES AND FIND OUT WHAT THEY’RE UP TO! Chief Executive’s letter Coping with the credit crunch Philip Brading Chief Executive The financial crisis continues to affect us all, whether we’re individuals, companies or charities. UCLH Charity has been fortunate in the past, as we have been able to use our investment income to support larger projects. But we can’t rely on this for the future. While we haven’t been forced to cut back on any of our existing commitments, we need to look hard at how we can generate additional income for new projects. You can find out more about this exciting project on this page. One example of this is HeartWorks, where an idea we supported with a grant is now being sold to other teaching hospitals. We are deeply grateful to everyone who has donated to our funds and to the UCLH staff who identify what is needed in their areas. Instead of looking back at the supporters who have completed their fundraising tasks events, this issue looks at supporters who are still – at the point of writing – preparing for their challenges. This issue also tells you how our supporters are raising much needed funds and how the donations that come in for specific wards or consultants continue to benefit our patients. HeartWorks project leads to new company generating charitable income! When three clinicians at the Heart Hospital – Sue Wright, Bruce Martin and Andrew Smith – had an idea for a computer teaching aid to help them train junior anaesthetists, they didn’t know where to get the IT skills or money they needed. A chance conversation with friends led them to Glassworks, an award-winning computer graphics company, who are most famous for the Citroen TV advert where a car morphs into a break-dancing robot. And they were successful in winning a grant from UCLH Charity for their HeartWorks programme, which helps junior staff relate two-dimensional ultrasound images to the three-dimensional anatomy of the heart. Painstaking research and input from clinicians and cardiac specialists helped Glassworks to produce an anatomical model that simulates a beating heart. A mannequin was later added with a transoesophageal probe, so that clinicians could learn how to manipulate the probe to achieve the images they needed, with the 2-D ultrasound image set alongside a cut-through virtual 3-D heart. It also became clear that if UCLH Charity was willing to pay for this teaching aid, others hospitals might be interested. So a new company, Inventive Medical Limited (IML), was established and in its first year it sold five systems to other teaching hospitals. These include Harvard in the US, where the cardiology professor declared himself “humbled” by the achievement of something he had been working on for years. The profits from the sales will be ploughed back into UCLH Charity and IML is looking out for the next great idea from our clinicians! Please contact us today If you’d like to find out more about how your donation would help UCLH Charity please contact Rachel Wilcox on: T: 020 7380 9743 email: [email protected] For more information visit: www.uclhcharity.org.uk UCLH Charity, 5th Floor East, 250 Euston Road, London NW1 2PG. Charity Registration Number 229771 Meet our new Trustees Professor Peter Ell FMedSci Dr HC is a Senior Investigator with the National Institute for Health Research, who has authored more than 630 peer-reviewed full papers and 12 textbooks. His many international awards include the British Nuclear Medicine Society First Medal for Outstanding Contributions to Clinical Science in Nuclear Medicine (2009) and the Georg de Hevesy Pioneer Award Society of Nuclear Medicine USA (2008). Mrs Sooty Asquith is Chairman of the Governors of a large special needs’ school in Wandsworth and has 20 years’ experience of NHS hospitals, as she has a handicapped son. She was a publishing editor with HarperCollins for 20 years and is a fundraiser for The Challenging Behaviour Foundation. Olympic swimmer inspires fund-raising challenge When Olympic swimmer Paul Marshall, who won a medal for Britain at the 1980 Moscow Olympics, was diagnosed with bowel cancer in May 2007, it hit his best friend Bruce Milroy hard. He felt he could make a difference by raising money and awareness of the treatment that had helped prolong Paul’s life – Radio Frequency Ablation (RFA). Sadly Paul died in May and this July, Bruce and two friends will cycle from Land’s End to John O’ Groats, aiming to cover a challenging 100 miles a day for UCLH’s RF Albation fund. Bruce says: “Paul’s the inspiration. When it gets to day four, five, or six and I’m exhausted and sore, I’ll just think of what he went through.” RFA uses heat to kill certain types of tumour and is less invasive than radiotherapy or chemotherapy. The fund provides bursaries to train doctors in the technique, so that this potentially life-saving therapy can be made available more widely. It costs up to £20,000 to provide training for a doctor, and the team are already over halfway to their £10,000 target. BIRTHDAY BOY DAN RUNS MARATHON FOR ADOLESCENT UROLOGY When consultant Dan Wood realised the New York marathon fell on his 40th birthday he decided to take part to raise money for the adolescent urology department at UCLH where he works. “The department is unique in the UK as it is able to take on a wide range of patients with complex congenital urological issues and see them through adolescence into adulthood” he says. “The long term aims include improving the understanding of long term outcomes in patients as well as striving to improve our day-to-day care with better equipment and expansion of the team.” www.justgiving.com/ethosfundraising T e a m p la n h a lf m a r a t h o n t o t n e m t a e r t r o f u yo k n a h t y a s Serena Bracken was inspired to raise money for UCLH after the treatment and support her mother received there. “A team of us – including my dad and Nancy Huntley from the hospital – are planning to run a half marathon in September” she says. “We aim to raise as much money as possible to thank everyone for their hard work and to support the important testing and research work done at the hospital.” Serena’s mother went to her local hospital in Sidcup after pinhead bruises kept appearing on her hands, arms and face. She also had a headache, nose bleeds and looked very pale. She was transferred to UCLH where she was told she had a very rare blood disease called TTP, which meant that her blood was forming platelets that were clotting internally, causing the bruises. “My mother was in UCLH for almost four weeks, undergoing plasma exchanges twice a day to clean her blood and receiving rituximab as part of a trial to kill the antibody making her blood form so many clots” says Serena. “She got the most unbelievable treatment and support, especially from her nurse Nancy Huntley. In fact, staff there gave outstanding care to the whole family. My mother is now at home but still getting the most amazing support and treatment as an outpatient.” www.justgiving.com/serena-mariabracken Fundraising news continued... Mothers and Daughters Committee raises money for brain cancer The Mothers and Daughters Committee, which now boasts more than 25 members, has raised more than £1.2 million for cancer research over the last 10 years. They recently launched a very personal £150,000 appeal after their founder and inspiration, Life President Celia Abrams, was diagnosed with Glioblastoma. The money will be used to fund a project that aims to improve the survival rates for people with this aggressive form of brain cancer. Fundraising initiatives include a dinner at Quaglino’s restaurant in London later this year and the daughter of a committee member will be climbing Kilimanjaro in October with a friend. For more information and details of how to support the campaign please visit www.mothersanddaughters.co.uk www.justgiving.com/suzanneandsuzie So how can you help? The extra equipment, facilities and training that UCLH Charity provides – both from our own funds and working with our ward staff and consultants – help to improve the experience for the patients who use UCL Hospitals. We are very proud of what we and our fundraisers achieve – but there is always more that could be done. UCLH STAFF GET ON THEIR BIKES Rachel Wilcox, the Charity’s Public Relations Manager, has cycled around London for over five years now and is totally convinced of the benefits. So when UCLH Charity started looking at the Government-backed Cycle to Work scheme, she was keen to push the idea forward. The scheme means that staff can rent a bike, tax-free for a year, saving over 24 per cent on the list price and paying in instalments from their salary. At the end of the year, they pay a nominal sum to buy the bike. “We estimated we might need about £30,000 to provide bikes for the scheme, but the Trustees said that we could have £40,000!” says housing manager Sue Parker, the Trust’s lead on the scheme. The trial period scheme has been such a success that the Trustees have now decided that it should be a permanent fixture. Here are just some of the ways you can support us: • T ake part in a fundraising event. You don’t have to run a marathon, skydive or cycle the length of the country. It may be something much smaller, but taking part in an event for us raises awareness as well as money – and it’s fun too! • A sk your employer to support us. Our local area covers high streets and offices as well as homes, and partnerships. Local firms such as British Land and Hachette Livre are already supporting us! • Join the Friends of UCLH – for a small annual membership fee you receive newsletters and an invitation to the Annual General Meeting. If you want to become more involved, the Friends are always on the lookout for potential Trustees, who decide which grants are awarded. Email us at [email protected] • Make a donation – regularly or as a one-off. Visit www.justgiving.com/ uclhc to find out how and see all the wonderful people who are taking part in events for us. Don’t forget that you can ask for your donation to benefit a specific project or ward – contact Rachel Wilcox on 020 7380 9743 or email [email protected] to find out more. • If you have regular free time, why not volunteer? Whether you welcome people to the hospital, visit patients on the wards or use your own personal skills in some way, this provides a huge benefit to patients and is a wonderful way to meet people. Find out more at www.uclh.nhs.uk/job+seekers+volunteers/volunteering
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