Dementia Friendly Communities What is Dementia? The term 'dementia' describes a set of symptoms which includes loss of memory, mood changes, and problems with communication and reasoning. These symptoms occur when the brain is damaged by certain diseases an example of this is Alzheimer's disease or damage caused by a series of small strokes. It is estimated that there are currently 7,400 people living with dementia in Warwickshire and this number is predicted to increase by 34% in just ten years. How does dementia impact peoples’ lives? As a result of damage to the brain caused by dementia, people may experience problems with: • Thinking and reasoning • Forgetfulness and memory loss • Difficulty remembering names or finding words • Confusion and disorientation in unknown surroundings • Struggling to think things through fully and concentrate on tasks, finding it difficult to make decisions and interpreting what is going on around them • Keeping track of a purse or wallet, using their card, paying bills or forgetting to pay for things they have just picked up • As dementia progresses, sometimes memory loss for recent events is severe and the person may appear to be living in the past; they may think of themselves as young and loose a sense of the present • Mood swings during periods of anxiety and stress • Feeling fearful and suspicious It is important to remember that every person is unique. People may experience all or some of the above symptoms. Some people live for many years after a diagnosis being able to lead independent and fulfilled lives. What does being dementia friendly mean? Being dementia friendly is about being aware of the impact that the condition has on a person and their everyday life. It is about enabling people with dementia to continue living a good life by making them feel supported, welcomed and encouraged to do the things they have always enjoyed doing whilst feeling confident about accessing their community. Recognising when someone has dementia It is important to focus on people as individuals and not define them by their condition. If someone experiences difficulty or confusion whilst accessing your service it may suggest they have dementia but this will not necessarily be the case. It is important not to assume that people who seem confused, lost or disorientated have dementia as their may be other problems. However if you do suspect someone has dementia they need extra help support, time or consideration when accessing your service. They may also: • • Tell you they have dementia and ask for help. Carry a Dementia Helpcard which explains the problem they have and how you might help: How you can support someone with dementia? Good people skills, including kindness, common sense, having good communication skills, and showing a good culture of customer care is a great start. Additionally, the following 9 top tips can help when communicating with someone with dementia: 1. Make sure that there is enough light for the person to see you and reduce unnecessary noise 2. Help the person to calm down if they seem anxious – offer a seat in a quiet area and/or a glass of water, if possible. Ask them if there is anyone you can ring for help, if necessary. 3. Communicate in a clear manner. Ask the person for their name and permission to call them by that; making frequent use of their name retains their attention. Don’t rush, speak clearly and calmly, avoid speaking sharply or raising your voice as this can cause distress. 4. Listen to what the person is saying. It will help them feel valued, respected and promote their sense of well-being. Avoid correcting what people say as although this may be inaccurate, it may mean something important to them. 5. Observe body language; although people may struggle to use their speech they may still express themselves through body language. 6. Always assume people with dementia understand what you are saying. Just because someone has dementia does not mean they do not hear what is being said around them. 7. If none of these work and the person appears in need of help, depending upon the nature of your business you could call: the persons next of kin or contact number if you are able to get this from them or their Helpcard if they carry one, your local community police officer, social services outreach, or as the last resort, emergency services. 8. Ensure you take into account carers as experts in the situation and value their experience and advice, if offered. 9. Create a dementia friendly environment by careful arrangement of furniture, choosing appropriate lighting and colour schemes. Premises should be easy to orientate in; there should be clear landmarks / signage to assist people finding their way round. Avoid clutter and trip hazards. Avoid reorganising furniture and swapping things round. Why is it important to become dementia friendly? The number of people with dementia is growing. A lot of people accessing your business will either have dementia or will know someone who does. This will have a huge impact on local services and organisations which, if not geared towards the needs of people with dementia and their family, may be inadvertently excluding them from their areas of business. Your business may have a community charter or a community benefit component to your quality assurance programme. Making it easier for people with dementia to use your business will contribute to that. Example of dementia friendly communities Issue: A gentleman with dementia used to visit a local store to purchase his daily paper. Whilst there, he would pick up a chocolate bar and eat it whilst walking around the shop, but forget to pay for it. Eventually he got banned from the shop, thus cutting off his only real access to the community. Potential Solution: If staff in the store had more awareness around dementia and understood the reasons for this behaviour, in this case forgetfulness, they could scan the packet of the item at the same time as scanning the paper without causing the gentleman distress. How do you pledge to become Dementia Friendly? Organisations signing up to the scheme can contact us by phone (01926 742214) or email [email protected] expressing their interest. We will then arrange to contact you discuss the process of becoming dementia friendly. Organisation will be requested to complete a simple application form their commitments in signing up to become dementia friendly. We will provide you with a resource pack which will give you all necessary information about the scheme. Become a Dementia Friend - Anyone can become a Dementia Friend – this scheme gives people an opportunity to understand dementia. For more details on how to become a Dementia Friend please visit: http://www.dementiafriends.org.uk/article/about-friends/what-is-a-friend Where to find information and advice about dementia? The Coventry and Warwickshire Dementia Portal: www.warwickshire.gov.uk/LivingWellwithDementia Support services and help to people with dementia and their carers: • Guideposts Trust (Warwickshire) Tel: 0845 600 9980 • Alzheimer’s Society (Warwickshire) Tel: 01926 888899 • Age UK (Warwickshire) Tel: 01926 458100 Follow us on Twitter: @DementiaCandW and get the latest news from the blog: http://livingwellwithdementiacoventryandwarwickshire.wordpress.com/
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