CONTINENCE CARE PATHWAYS Doc. Ref. No. Title of Document Author’s Name Author’s Job Title Dept / Service Doc. Status Ref no to track policy by Continence Care Pathways Mary-Lou Brennan, Continence Service Manager, Linda Gibney, Continence Advisor Jenny Tibbs, Continence Advisor See above Continence Service V3 Based on Guidelines, Evidence-based Practice and BCH Continence Care Pathways 2008 Signed off by Publication Date Next review date Distribution Committee responsible for approving the policy August 2013 August 2015 Bristol Community Health Practitioners Consultation Version V0.1 Date November 2012 V0.2 April 2013 V3 August 2013 Consultation Mary-Lou Brennan, Continence Service Manager, Linda Gibney, Continence Advisor Jenny Tibbs, Continence Advisor Mary-Lou Brennan, Continence Service Manager, Linda Gibney, Continence Advisor Post wider BCH review Checklist for Approving Committee / Board Has an equality impact assessment been compiled? No Has legal advice been sought No Has the policy been assessed for its impact on Human rights? No Have training issues been considered? Yes Have any financial issues been considered? Yes Will implementation be monitored? Yes Is there a cascade mechanism in place to communicate the policy? - with staff with patients with the public Yes Are there linked policies / procedures? Yes Has a review date been set? yes Is this related to the core standards for better health? Yes Continence Care Pathways Welcome to the Bristol Community Health Continence Care Pathways: We would like to introduce you to the Bristol Community Health (BCH) Continence Care Pathways. The aim of the pathways is to help in a practical way and to improve the standard of continence assessment, enabling an evidence based approach to continence care. The care pathways are available on the public site of the BCH website: www.briscomhealth.org.uk under Continence Service and also on the Staff side. The design of the pathways helps avoid duplication of records and is a structured approach to the assessment and management and review of incontinence. The statements in the pathways form a standard of care and there is no need to write anything unless the standard is not met, in which case the variance from the standard should be recorded. We wish to acknowledge the excellent work of North Hampshire PCT Continence Care Pathway Development Group and Barts, The London NHS Trust & Tower Hamlets Primary Care Trust. These pathways has been adapted in collaboration with NBT South Gloucestershire Community Services and North Somerset Community Partnership to enable practitioners to use best practice guidance in a user friendly way. Further developments of the pathways are anticipated and the care pathways will be reviewed in two years. We intend to add a Catheter Care Pathway and Bowel Care Pathway in the future. Continence Service Horfield Health Centre Lockleaze Road Bristol BS7 9RR Tel: 0117 3737 118 Office hours: Mon - Fri 08.30 - 16.30 4 Contents of the Continence Care Pathway 1. Introduction Introduction to continence assessment in the community Instruction for using the care pathway Guidance for completing the continence assessment tool 2. Assessment Adult Continence Assessment Tool (appendix 1) Symptom profile (appendix 2) Bladder record chart (appendix 3) 3. Pelvic floor weakness (stress) pathway (appendix 4) 4 Overactive bladder (urge) pathway (appendix 5) 5. Voiding difficulties pathway (appendix 6) 6. Functional Incontinence/ Cognitive Problems (Appendix 7) 7. Functional Incontinence/ Mobility and/or Dexterity (Appendix 8) 8. Neuropathic (Reflex) Incontinence (Appendix 9) 9. Nocturia (Appendix 10) 10. History Sheet (Appendix 11) 11. Supporting patient information leaflets Pelvic floor exercises (appendix 12) Pelvic Floor Exercises for Men (appendix 13) Urge information sheets (appendix 14) Caffeine information sheet (appendix 15) Bristol stool scale (appendix 16) Bowel habit diary (appendix 17) Continence in the confused elderly (Appendix 18) 12. Supporting practitioner information forms Nocturnal Polyuria (appendix 19) Urinalysis flow chart (appendix 20) How to collect a urine sample (appendix 21) Vulval Observation (appendix 22) Measuring post void residual (appendix 23) Medication information (appendix 24) Guidelines for using the Product Requirement Form (appendix 25) Guide for Patients Receiving Continence Products ( appendix 26) Skin care Guidance (appendix 27) 13. Useful Addresses (Appendix 28) 14. References 5 Continence Assessment in the Community Introduction The “Good Practice Guidelines in Continence Care” (Department of Health 2000) states that all patients should be asked, as part of an holistic assessment, if they have a bladder or bowel problem. For the purpose of this document the standard trigger question is “Do you have any problems with, or concerns about, your bladder or bowel?” If the answer is “yes” a full continence assessment should be carried out. This documentation aims to support professionals in undertaking a continence assessment, and to support clinical decision making rather than replace it. It encourages: Clear guidance about current best practice Standardisation of care Audit of quality and effectiveness, which can be measured Outcomes, which can be reviewed at regular intervals. Background Continence is a “skill gained when a person learns to recognise the need to pass urine and/or bowel motion, has the ability to reach an acceptable place to void, is able to hold on until they reach an acceptable place to void, and is able to void/ eliminate effectively on reaching that place” (Anderson1988, cited Norton 1992). This is the ideal state for everyone. Incontinence Incontinence is “an involuntary loss of urine and/ or bowel motion at an inappropriate time or in an inappropriate place”. The amount can vary from slight to copious. Incontinence is not a disease but is a symptom of an underlying disorder (Anderson et al 1988, cited Norton 1992). Why undertake a continence assessment? The World Health Organisation’s Consensus on Continence Conference 1997 drew up the following explanation of continence management. This looks at incontinence in four ways, from a person who is truly continent, to one who is totally incontinent. It suggests the terms “social continence” and “dependant continence” as a means of achieving some degree of continence in patients. Social Continence Continent Dependant Continence Incontinent Social Continence The client is socially continent. This may involve using pads, appropriate appliance or internal device (Fonda 1997). Dependant Continence This means the client being dependant on others to take them, or remind them to go, to the toilet (Fonda 1997). 6 Aim The aim of this continence care assessment tool is that by following care pathways every patient will achieve their fullest potential. There may be reasons why this may not happen and the ideal outcomes for a client may be reflected in the social or dependent continence categories. The research evidence shows that at least 90% of clients under 65 can make significant health gains if their incontinence is properly diagnosed and managed and 75% of clients over 65 can make significant health gains (Norton 1992). Therefore each practitioner should be aiming to improve his or her patient’s continence status. All clients going through a continence assessment and treatment process will visit each stage at a different rate. False hope should not be given and realistic goals should be set. These goals should be reviewed regularly, and progress noted. Standardisation of Care This documentation has been designed to slot into community practitioner’s documentation, but is available on the www.briscomhealth.org.uk to enable adaptation for different care settings. However to enable continuity of care, a copy of the assessment form and care pathways used could be given to the client, allowing them ownership of the document. We will be considering links to GP Practice computer systems in the future. Audit, Research and Review Audit of compliance shall be in line with BCH’s audit plan, or as deemed necessary by either the Quality Directorate or the Continence Service. Participation and contributions to research by the Continence Service are vital so as to be involved with national recommendations for policy and practice. This document will be reviewed and updated every two years or as changes in best practice standards, guidance or legislation occurs. Training A training needs analysis will be carried out when Integrated Care Pathways (ICP) are implemented to establish areas for future training. All practitioners undertaking continence assessments and utilising the care pathways should attend a recognised training course such as the BCH One Day Continence Promotion and have been assessed as competent. They must refresh their knowledge and skills five yearly (RCN 2012) by attending the One Day Continence Promotion Study day which can be accessed through BCH Learning and Development and personal study should be undertaken. Please see BCH Continence Policy for further detail on www.briscomhealth.org.uk and for the Core Competency for Adult Continence Assessment. 7 Instruction for Using the Care Pathway Background An audit of the quality of continence assessments, within the Community Directorate of UBHT, in 1999 showed a wide variation in standards across the directorate. To that end, an Integrated Care Pathway (ICP) was developed to try and standardise the quality of assessments. In developing the ICP, the group took into consideration: Research evidence, where it existed Best Practice evidence Department of Health (2000) Good practice in Continence services Department of Health (2001) NSF for older people Department of Health (2001) Essence of Care NICE guidance RCP audit 2006 About the pathway The pathway takes the nurse through possible symptoms, enabling identification of appropriate managements. There are three basic sets of symptoms, pelvic floor weakness, overactive bladder and voiding dysfunction. However, additional care pathways have been added. Standard statements are made concerning each behaviour that affects bladder function. Variance from this behaviour can be resolved with evidence-based patient information leaflets enabling the nurse to suggest changes at each step of the way. The degree of behaviour change will influence improvement in symptoms. A symptom profile: is completed before assessment as progress can be monitored objectively by improvement of the symptom profile over time. Pelvic floor weakness: is demonstrated by urinary leakage on coughing, sneezing and exercise or by any activity that raises abdominal pressure. This puts pressure on the bladder and also on to the pelvic floor muscles that support the bladder neck keeping it shut tightly to prevent leakage. Overactive bladder: this can happen when the bladder muscle (the detrusor) starts to contract before we get to the toilet and frequently leads to an urge leak. A patient information leaflet advises on lifestyle changes and how to retrain the bladder. Many older women will present with mixed symptoms of urge and stress leakage and need advice for both. Voiding dysfunction: can happen to anyone with an outflow obstruction around the bladder neck or anything that will prevent complete emptying of the bladder. In men it can be due to an enlarged prostate, in women it can be due to vaginal or uterine prolapse. Acute or chronic constipation can also impact on emptying as can neurological problems such as stroke, diabetes or multiple sclerosis. Prior to assessment: in the community the patient or carer is asked to complete; a diary of their voiding frequency to enable a clear idea of bladder function and behaviours affecting symptoms for four days. (bladder diary – Appendix 3) A symptom profile. (Appendix 2) A list of current medication In care homes and care homes with nursing, or hospital setting, it should be possible to ensure completion of a bladder output/ fluid intake chart or frequency volume chart for four days. 8 Stages of the Care Pathways 1st visit 1. Initial assessment 2. Symptom profile 3. Bladder diary – leave with patient/carer to complete prior to visi visit to do assessment if appropriate 4. Bothersome rating 5. Agree most relevant pathway and give relevant written 6. Information 7. If unable to commence pathway document reason 1. 2. 3. 4. 1. 2. 3. 4. 2nd visit Record bothersome rating Review patient compliance with pathway If symptoms have improved discharge from pathway If symptoms have not improved, agree review date as appropriate 3rd visit Record bothersome rating Review patient compliance with pathway If symptoms have not improved discuss with or consider referral to Continence Advisor Agree review date or discharge as appropriate. For further help or advice contact the Continence Service. 9 Guidelines for Completing the Continence Assessment Form The Continence Assessment Form has been designed for healthcare staff to help complete a comprehensive evidence based assessment. The following is guidance on completing the form. All patients need to be re-assessed as their needs change. Patient Details should be completed accurately in capital letter or clear print. Always record the NHS number; this is a MHRA requirement. Assessor Details includes the name, designation/title, base and contact number of the person completing the assessment. Please could you print details or use capital letters Presenting Problem is the Patient/Carer’s description – document the words used by the patient/carer and ask how long it has been a problem. Is it getting worse? From who’s perspective? Current Management. How does the client currently cope? Specify type and amount of pads. How often are they changing, and how wet do they get? Specify size and style of sheath or appliance/receptacle. Is the client happy with current management? If so, what are they hoping to gain from your assessment? How does the client feel about their continence problem and how does it affect them? Bothersome rating describes how much of an impact the bladder problem has on their quality of life. Relevant Health History Weight Increased body mass index is positively associated with loss of urine. Excess weight can increase abdominal pressure during physical activity, which may increase bladder pressure and urethral mobility. This also fits with the governments ‘Healthy Weight, Healthy Lives’ strategy published in January 2008. The ‘Lose weight, feel Great!’ leaflet may be helpful and can be obtained from the Librarian at South Plaza. Obstetric Risk factors for stress incontinence include weight of baby (over 8lb/ 4kg), trauma (episiotomy, tear), assisted delivery (forceps, suction), length of labour (long or short), epidural, number of babies, gaps between them (less than 2 years). Gynaecological surgery e.g. colposuspension, trans-vaginal tape (TVT), pelvic floor repair, hysterectomy, sling procedure, injectable urethral bulking agents Surgical Previous surgery should be documented. Also document when a catheter may have been in situ, including reasons. Particularly relevant: - Urological surgery e.g. Transurethral Resection of Prostate (TURP), Transurethral Resection of Bladder Tumour (TURBT), bladder neck surgery, radical prostatectomy, cystoscopy, urethral dilation and stricture therapy. 10 Medical Many medical conditions can affect the function of the bladder. For example neurological conditions:- multiple sclerosis, diabetes, spinal injuries, stroke, dementia, back pain and also chronic cough, depression, sexually transmitted diseases (particularly Chlamydia causes urgency), physical and learning disabilities. Also note any history of sexual abuse, age of menopause and HRT usage. NB hormone replacement therapy is contraindicated following breast cancer; anticholinergic therapy is contraindicated with some types of glaucoma (discuss with GP). Allergies should be documented. Constipation Links have been found between chronic constipation and/ or faecal impaction, and nocturia, frequency, urgency and stress incontinence (Spence-Jones et al 1994, Bannister et al 1988). These bowel problems are common in certain groups such as care homes, care homes with nursing, and hospital clients. Severe constipation and straining at stool over a prolonged period may cause changes in pelvic neurological function. Straining at stool has also been shown to be significantly more common in women with stress incontinence (Spence-Jones et al 1994). Smoking There is some evidence that cigarette smoking may be associated with increased risk of urinary incontinence as a consequence of frequent or violent coughing (Bump et al 1994). Smoking also carries an increased risk of bladder cancer. Previous treatment/investigations Ask the client if they are already seeing someone else who is dealing (or has dealt) with the problem, or who has asked them to request a further appointment should the problem reoccur. Medication Many drugs disturb bladder or bowel function (Appendix 24). Prompt the client to mention over the counter remedies, particularly laxatives, and herbal remedies. Some recreational drugs may affect continence. Urinalysis Urinalysis is an essential step in a continence assessment. The principle purpose is to exclude a urinary tract infection which may be a temporary cause of incontinence. Refer to urinalysis guidance (Appendices 20 and 21). Dysuria Dysuria means pain or burning whilst passing urine. It is often caused by a urinary tract infection. If the patient indicates a history of UTIs, document if specific organisms have been identified or if not. The frequency and treatment of UTIs should also be noted. Patients with recurrent UTI's require further investigations (NICE 2012), ask GP if these have been investigated and request copies of Consultant letters if available. If the answers are “yes” to the assessment questions, ensure a urinalysis is obtained and subsequent clean catch specimen or MSU if appropriate. Common causes are poor hygiene, residual urine, poor fluid intake, atrophic vaginitis and sexually transmitted diseases 11 Fluids An accurate record of fluid intake, including type and amount is a vital part of the assessment. Ask to see the usual size cup or mug. Do they drink a full cup or half? Caffeine is a diuretic and bladder stimulant, which can exacerbate urgency. Alcohol and fizzy drinks will have a similar effect. Some people also find it helpful to avoid citric drinks as well as blackcurrant juice (See Appendices 14 and 15). Many incontinent people use fluid reduction to manage their incontinence; this is not recommended, as concentrated urine can irritate the bladder and cause urothelial irritation and will also eventually diminish bladder capacity, leading to frequency. For suggested fluid intake see Appendices 14 and 15. Bowel Habit Identify the client’s normal bowel habit, including frequency and consistency. If bowels are known to be a problem prior to assessment, send 14 day bowel habit diary for patient to complete and use Bristol Stool Scale to document appearance (See Appendices 16 and 17). Identify any recent changes in bowel habit e.g. bleeding, constipation without cause, diarrhoea, pain and colour of stool and report changes to the GP/ medical practitioner immediately. The times of faecal incontinence should be documented. Mobility Mobility should be noted. The speed of mobility may be an issue when the patient has urinary or bowel urgency. It may be directly impaired eg due to pain, or indirectly, eg due to fear of falling. All patients who have fallen in the last year should be considered for a falls’ assessment. Please see: www.briscomhealth.org.uk/staff/falls-in-older-people Dexterity Linked closely to mobility is manual dexterity which may hinder removing clothes to use the toilet or in the fitting of aids or appliances. Mental and cognitive function Confusion and dementia will affect awareness of bladder and bowels and needs careful assessment and often constant monitoring. A carer’s advice leaflet is available see Appendix 18. Toilet Facilities Identify the toilet position at home, distance, ease of access with aids, use of commode. A patient’s posture on the toilet is important for successful elimination and they may require toilet frames, grab rails or steps to rest their feet on and make them feel safe. Some clients will be dependant upon others for their toileting needs and may only be able to use the toilet at times of the day when a carer is present. 12 Physical Examination Consent Document that the client has given their consent and if anyone else is present, state who. If the client refuses consent do not proceed with the examination and document in the patient notes that the examination was refused. The Mental Capacity Act 2005 provides a statutory framework to empower and protect vulnerable people age 16 and over who are not able to make their own decisions. When there is doubt about the mental capacity of a patient to make decisions relating to the procedure, the BCH guidelines for Assessing Capacity and Determining Best Interests must be followed. In some cases a Lasting Power of Attorney (LPA) may be been appointed to make health or welfare decisions on behalf of the person. A written LPA that has been verified by the Office of the Public Guardian may specify that a named person has the right to act on behalf of the patient in respect of treatment or welfare decisions specified in the LPA. In BCH we realise that for some patients they have personal preferences on the gender of the health professional who delivers intimate care such as physical examination or catheterisation. We will ensure that, whenever possible, we will take account of these preferences. However in certain situations, particularly urgent visits, we may be unable to do so. In cases such as this the patient is free to withdraw consent for the procedure to take place and BCH will seek the next available opportunity to provide the care with a member of staff with the preferred gender. In such situations the risk of delay should be fully explained and documented. Skin Condition Assess for soreness, excoriation, broken areas, skin texture and colour. Atrophic vaginitis may be present following the menopause or hysterectomy. The vagina and surrounding tissue may be pale / dry or red and sore and the patient may report feeling itchy. Consider requesting a local vaginal oestrogen cream, pessaries from GP or ask the GP to consider inserting an Estriol ring pessary. See Appendix 22 for vulval observation. When giving advice on general barrier cream, advise only a very thin layer of barrier cream. If a pad is to be worn, cream may clog pads and reduce absorbency. Seek further advice if required and see skin care guidance Appendix 27. Physical Observation Assess for visible signs of prolapse (shown by external bulging of the vagina) refer to GP as appropriate. Visible leakage on cough – follow stress incontinence care pathway Post Void Residual Urine. Post void residual (PVR) should be measured by intermittent catheterisation, or by bladder scan. Any PVR predisposes the patient to infection or incontinence. Residual urine may be due to obstruction or poor bladder contractility (Appendix 23). Less than 50 mls is considered normal and over 200mls abnormal (Fanti et al 1996). In routine clinical practice a raised PVR is normally considered to be between 100-150mls. Please note this is in relation to the volume voided and patient’s symptoms. If found discuss with Continence Service as further investigation may be necessary. See Voiding Difficulties pathway Appendix 6. Knowledge of the PVR may have an impact on management e.g. anti-cholinergic therapy can reduce bladder contractility and is contraindicated when PVR is high. 13 Patient Self Assessment Symptom profile Ask / support the patient / carer to complete the symptom profile; this will help to determine the problem (Appendix 2). Fluid intake and output Chart Where possible this should be sent before the assessment to obtain a clear picture of voiding frequency and incontinence episodes. If the client is in a care home or care home with nursing, ask the care staff to help fill in the chart. Where possible ask patient /carer to weigh the wet pads as this objective measurement identifies the level of incontinence. Four days should be a good example of voiding pattern (Appendix 3). This enables the health care professional to give advice and plan a treatment programme and review as per the relevant care pathway. Bowel Diary Using the Bristol stool chart as a guide ask the patient to record bowel habit, frequency, stool type passed and bowel medication taken on the 14 day food and stool diary. This is essential in management and evidence-based care of bowel dysfunction. (Appendices 16 and 17). Pathway Based on the above assessment choose the most relevant pathway for the patients’ presenting symptoms and document which pathway is most relevant. If you are unable to commence a care pathway or, if deciding not to use a care pathway, the variance/reason must be documented. Product Request Following assessment and review and, if appropriate, the following should be sent to the Continence Service with the completed product request form ie white, yellow and pink copies when product samples have been trialled: copy of the assessment, symptom profile, four day fluid intake / output diary 14 day food and stool diary relevant care pathway All patients receiving products should be re-assessed two yearly (NICE 2012) or earlier if their needs change. Please refer to Continence Policy on www.briscomehealth.org.uk 14 Appendix 1 Bristol Community Health Continence Assessment Form BNSSG Continence Partnership Title: Date of Birth: Name: Address: Assessment Date: NHS Number: GP and Address: Telephone Number: Post Code: Assessor’s Name: Telephone Number: Assessor’s Base: Tel: Presenting Bladder / Bowel Problem □ Urinary □ Faecal □ Double □ Nocturia / Nocturnal Polyuria (see Care Pathway) Date of onset of problem: …………………… Who else have they consulted re this problem: …………………………… ………………………………………………………………………………………………………………………………………… Patient’s and/or Carer’s Aims and Goals for Treatment …………………………………………………………………………………………………………………………… …………………………………………………………………………………………………………………………… …………………………………………………………………………………………………………………………… Current Management Toileting Regime ISC Pads Indwelling Catheter Pants Other Sheath …………………………………………………………………………………………………………………………….. How does the client feel about their continence problem? How does it affect them? Scale 0 – Not bothersome Scale 5 - Extremely bothersome Relevant Health History (please state or tick) ……………………………………………….… Number of Pregnancies ………….... Back Problems………………...... Parkinson’s……………………… Difficult Deliveries ………………...… Constipation …………………….. MS ……………………………..… Hysterectomy ……………………..… Dementia……………………..…… Spinal Injury .………………….… Pelvic Surgery ………...… Depression …………………….… Psychiatric History……………… Cystoscopy ………………………..... Diabetes ……………………….… Weight ………………………...… Prostatectomy …………………….… Learning Disability …………….… Other…………………………..… Other/Comments/Previous Investigations ………………………………………………………………………...… ………………………………………………………………………………………………………………………….... Current Medication Urinalysis Fluid Intake ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… ……………………………………… Nitrites ……………………………….. Ketone ……………………………….. Blood ……………………………........ Protein ……………………………….. Leucocytes ………………………….. PH .…………………………………… Glucose …………………………….... Specific Gravity ……………………… Dysuria? ……………………………… If leucocytes/nitrites present or symptoms of UTI, send clean catch specimen (CCS). Suspend assessment until treatment is completed. CCS Sent YES/NO Date………….... Leave four day fluid input and output chart for completion. If drinking more or less than 7-8 mugs/glasses, advise to have 1½ litres of decaffeinated fluid daily. Drinks containing caffeine, citric and alcohol (especially at night) may increase incontinence. (See Urgency info) Individual advice given? YES / NO Outcome …………………………….. 15 Daily (+) …… Bowel Habit Alternate Days … Consistency of Stool (Bristol Stool Chart) Less Often …… Faecal incontinence ……….. …… If bowel problems, complete bowel assessment including 14 day food and stool diary CONTRIBUTORY FACTORS Mobility OUTCOME Independently Mobile with Carer Mobile with Aid Mobile with Aid & Carer Fall in last year? Can manage clothes quickly and easily? Dexterity Mental & Cognitive Ability Toilet Facilities YES/NO YES/NO Memory unimpaired Impaired Upstairs Downstairs Commode Special equipment PHYSICAL EXAMINATION YES Consider Functional Incontinence/ Mobility and/or Dexterity Pathway If yes, assess for falls Consider Functional Incontinence/ Mobility and/or Dexterity Pathway Consider Functional Incontinence/ Cognitive Problems Pathway Information leaflet given Appendix 18 Consider appropriate equipment NO Outcome Verbal Consent Penile Observation Vulval Observation. Observe for Atrophic Vaginitis (vulval area can be red and sore, or pale dry and sore). Refer to GP for Oestrogen therapy Skin condition satisfactory? ADDITIONAL COMMENTS Patient Assessment Outcome YES NO YES NO Symptom profile completed? Continence chart completed for 4 days? Continence charts discussed with patient? 14 day food and stool diary completed (as appropriate)? Pathway Stress Incontinence (SI )/ Pelvic Floor Weakness Overactive Bladder (OB) Voiding Difficulties (V.Diff) Functional Incontinence / Cognitive Problems Functional Incontinence/Mobility and / or Dexterity Neuropathic (Reflex) Incontinence Nocturia / Nocturnal Polyuria If unable to commence on pathway, give reason: Signature of Assessor: ……………………………………… Designation: …………………………... Assessor’s Name: ……………………………………..... … Date: ………………………………….. 16 Appendix 2 SYMPTOM PROFILE Name:………………………………. DOB:…………… NHS No.:…………………… Stress Incontinence I leak when I laugh, cough, sneeze, run or jump I only ever leak a little urine At night I only use the toilet once, or not at all I always know when I have leaked I leak without feeling the need to empty my bladder Only my pants get wet when I leak (not outer clothing) or I sometimes wear a panty liner Overactive Bladder I feel a sudden strong urge to pass urine and have to go quickly I feel a strong uncontrolled need to pass urine prior to leaking I leak moderate, or large, amounts of urine before I reach the toilet I feel that I pass urine frequently I get up at night to pass urine at least twice I think I had bladder problems as a child Voiding Difficulties I find it hard to start to pass urine I have to push, or strain, to pass urine My urine flow stops and starts several times My urine stream is weaker and slower than it used to be I feel that it takes me a long time to empty my bladder I feel as if my bladder is not completely empty after I have been to the toilet I leak a few drops of urine on to my underwear just after I have passed urine 17 Appendix 3 FLUID INTAKE AND OUTPUT RECORD Name: ………………………………………….. dob: ……….. NHS No: ………………………………………………………….. Address/Care Home: ………………………………………….. Please fill in the chart for four days and nights (can be nonconsecutive days). Note what drinks (intake) you have and the amount in mls, what urine you pass (output) using a household measuring jug, if you are wet () and the weight of the pad, if used, in grammes (1gm = 1ml). For example: Day/Date: ………………………………… Time Intake Time Output Wet/Pad Day/Date: 11th March 2013 Time Intake Time Output Wet/Pad Weight 9.00 am 150 mls Coffee 10.00 am 200 mls 350 grammes 10.00 am 150 mls Water 11.30 am 150 mls Weight Day/Date: ……………………………………….. Time TOTAL TOTAL TOTAL Intake Time Output Wet/Pad Weight TOTAL 18 Appendix 3 Name: ………………………………………….. dob: ………………… NHS No: ………………………………………………………………….. Address/ Care Home: …………………………………………………. Day/Date: …………………………………….. Day/Date:…………………………………….. Time Intake Time Output Wet/Pad Time Intake Time Weight TOTAL TOTAL Output Wet/Pad Weight TOTAL TOTAL 19 Appendix 4 Stress Incontinence (SI)/Pelvic Floor Weakness Care Pathway Patient Name………………………………………DOB:…………….NHS No.:……………………… Address/ Care Home:……………………………………………………………………………………. STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL VISIT 1 Presenting problem and bothersome rating 0 - None 5 – Extremely Treatment goal FEMALE PATIENTS: If patient is dry/sore around vagina, refer to GP for local oestrogen therapy consideration Observe perineal lift and teach pelvic floor exercises and give information sheet MALE PATIENTS: Teach pelvic floor exercises and give information sheet Discuss post micturition dribble and give ‘A common problem leaflet’. ALL PATIENTS: Discuss bladder diary, voiding frequency volumes and set targets If constipated discuss treatment options including correct position, 5 a Day and fluid advice Discuss appropriate type and amount of fluid intake (See Urgency and caffeine info. Sheets). You may need to give bladder training information Where appropriate give advice on containment and buying products Date and time of next visit agreed with patient (within 8 -12 weeks) PTO © Continence Care Pathway Development Group 20 Appendix 4 STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL VISIT 2 (8 – 12 weeks) Presenting problem and bothersome rating Record leakage frequency If symptoms have not improved reinforce active pelvic floor exercise programme. Continue Care Pathway If symptoms have improved discharge with maintenance pelvic floor programme Date and time of next visit agreed with patient (within 8-12 weeks) VISIT 3 (18 – 20 weeks) Presenting problem and bothersome rating Record leakage frequency If patient’s symptoms have Improved significantly – discharge with a maintenance programme Patient’s symptoms have not improved. Refer to Continence Service, or discuss with GP further options SUMMARY COMMENTS: Specimen signatures for variance: Visits Signature Print Name Initials Date Visit 1 Visit 2 Visit 3 Discharge Date Signature © Continence Care Pathway Development Group Print Name 21 Appendix 5 Overactive Bladder (OB) Care Pathway Patient Name………………………………………DOB:…………….NHS No.:……………………… Address/ Care Home:……………………………………………………………………………………. STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL VISIT 1 Presenting problem and bothersome rating 0 - None 5 – Extremely Treatment goal FEMALE PATIENTS: If patient is dry/sore around vagina, refer to GP for oestrogen therapy consideration ALL PATIENTS: Discuss bladder diary, voiding frequency volumes and set targets Discuss appropriate type and amount of fluid intake, (see Urgency and caffeine info. sheets). Record fluid intake Give caffeine information Discuss bladder training and give information sheet If constipated discuss treatment options including correct position, 5 a Day and fluid advice If diagnosed with neurological dysfunction e.g. MS, Parkinson’s disease, Diabetes, CVA, check for residual urine. If more than 100 -150 mls discuss with Continence Advisor. If less continue CP Check symptoms of pelvic floor weakness and as appropriate teach pelvic floor exercises Where appropriate give advice on buying products for containment Agree date and time of next visit with patient (within 8 -12 weeks). Ask patient to complete a bladder diary for 2 – 3 days before next visit PTO © Continence Care Pathway Development Group 22 Appendix 5 VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS STANDARD STATEMENT VISIT 2 DATE INITIAL (8 – 12 weeks) Presenting problem and bothersome rating Discuss bladder diary, voiding frequency volumes and set targets If symptoms have improved discharge with general bladder health advice If within 4 – 8 voids per day, less than 2 voids per night, continue with bladder training CP If outside above parameters for voiding, consider adjuncts to bladder training options. Anticholinergics, stimulation (contra-indications e.g. Glaucoma) Consider setbacks to bladder training, discuss coping strategies Date and time of next visit agreed with patient VISIT 3 (18 – 20 weeks) Presenting problem and bothersome rating Discuss bladder diary, voiding frequency volumes and set targets Patient discharged if they feel that they no longer have a problem, or symptoms have improved significantly If bothersome rating not improved refer to Continence Advisor or consider Urology referral SUMMARY COMMENTS: Specimen signatures for variance: Visits Signature Print Name Initials Date Visit 1 Visit 2 Visit 3 Discharge Date Signature © Continence Care Pathway Development Group Print Name 23 Appendix 6 Voiding Difficulties (V.Diff) Care Pathway Patient Name………………………………………DOB:…………….NHS No.:……………………… Address/ Care Home:……………………………………………………………………………………. STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL VISIT 1 Presenting problem and bothersome rating 0 - None 5 – Extremely Agree treatment goals ALL PATIENTS: Discuss bladder diary, voiding frequency volumes and set targets Discuss appropriate type and amount of fluid intake (see Urgency and caffeine info. sheets). Measure post-void residual urine. If more than 100-150 mls refer to Continence Service If residual less than 100 mls bladder training information sheet given to patient If constipated discuss treatment options including correct position, 5 a Day and fluid advice Review current medication and refer to list of medication, which may cause voiding difficulties Consider treatment with bladder massager Where appropriate give advice on products for containment MALE PATIENTS: Consider a prostate assessment symptom profile FEMALE PATIENTS: Give double voiding advice sheet Consider vaginal examination to exclude vaginal prolapse and atrophic vaginitis ALL PATIENTS: Date and time of next visit agreed within 6 – 8 weeks Patient discharged if they feel that they no longer have a problem, or symptoms have improved significantly PTO © Continence Care Pathway Development Group 24 Appendix 6 VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS STANDARD STATEMENT VISIT 2 DATE INITIAL Initials Date (6 – 8 weeks) Presenting problem and Bothersome rating Agree treatment goals ALL PATIENTS: Measure post-void residual urine. If more than 100-150 mls refer to Continence Service If residual less than 100 mls continue with bladder training Patient discharged if they feel that they no longer have a problem, or symptoms have improved significantly Date and time of next visit agreed. Within 6 – 8 weeks SUMMARY COMMENTS: Specimen signatures for variance: Visits Signature Print Name Visit 1 Visit 2 Visit 3 Discharge Date Signature © Continence Care Pathway Development Group Print Name 25 Appendix 7 Functional Incontinence/ Cognitive Problems Patient Name………………………………………DOB:…………….NHS No.:……………………… Address/ Care Home:……………………………………………………………………………………. STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL Visit 1 Presenting problem Bothersome rating 0 – 5 Agree treatment goal with patient/carer Discuss bladder diary, voiding frequency volumes and set targets Discuss appropriate type and amount of fluid intake (see Urgency and caffeine info. sheets). Plan programme of toileting based on bladder diary encourage toileting ¼ hour before normal voiding occurs. Consider change of toilet seat (See Appendix 18) If undertaking prompted toileting give praise when toileting is successful Review in 4 weeks; agree date and time of next visit with patient Visit 2 (4 – 6 weeks) Bothersome rating at this visit 0 – 5 If dry discharge maintain successful toileting programme. If improvement noted adjust toileting times up or down accordingly to achieve continence. Review in 2 weeks; agree time of next visit with patient/carer If no improvement consider advice on containment e.g. washable products (which can be purchased) or pads/ sheaths. PTO © Continence Care Pathway Development Group 26 Appendix 7 STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL Visit 3 (6 – 8 weeks) Bothersome rating at this visit 0 – 5 If dry discharge If problem remains consider advice on containment options for containment e.g. washable products (which can be purchased) or pads/sheaths Summary Comments: Specimen signatures for variance Visits Signature Visit 1 Print Name Initials Date Visit 2 Visit 3 Discharge Date Signature © Continence Care Pathway Development Group Print Name 27 Appendix 8 Functional Incontinence/ Mobility and/or Dexterity Patient Name………………………………………DOB:…………….NHS No.:……………………… Address/ Care Home:……………………………………………………………………………………. STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL Visit 1 Presenting problem Bothersome rating 0 – 5 Agree treatment goal with patient/carer Discuss bladder diary, voiding frequency volumes and set targets Discuss appropriate type and amount of fluid intake, (see Urgency and caffeine info. sheets). Record fluid intake If Patient has urgency follow Overactive Care Pathway If patient has difficulties mobilising to/ or using the toilet, where appropriate refer to OT/ Physio for advice on aids/ mobility Consider adaptive clothing to aid easier management of clothing Consider contacting Continence Service for advice re specialist toileting aids Plan programme of toileting based on patterns identified from bladder diary to allow for mobility difficulties Liaise with carers re toileting times if appropriate Review in 2- 4 weeks; agree date and time of next visit with patient Visit 2 (2 – 4 weeks) Bothersome rating at this visit 0-5 If dry discharge maintain successful toileting programme. If improvement noted, adjust toileting times up or down accordingly to achieve continence. Review in 2 weeks; agree time of next visit with patient/carer If no improvement, consider advice on containment e.g. washable products (which can be purchased) or pads/ sheaths PTO © Continence Care Pathway Development Group 28 Appendix 8 STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL Visit 3 (4 – 6 weeks) Bothersome rating at this visit 0 – 5 If dry discharge If problem remains consider advice on containment options for containment e.g. washable products (which can be purchased) /pads/sheaths Summary Comments: Specimen signatures for variance Visits Signature Visit 1 Print Name Initials Date Visit 2 Visit 3 Discharge Date Signature © Continence Care Pathway Development Group Print Name 29 Appendix 9 Neuropathic (Reflex) Incontinence Patient Name………………………………………DOB:…………….NHS No.:……………………… Address/ Care Home:……………………………………………………………………………………. STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL Visit 1 Presenting problem Bothersome rating 0-5 Agree treatment goal with patient/carer No evidence of recurrent UTI’s Discuss bladder diary, voiding frequency volumes and set targets Discuss appropriate type and amount of fluid intake (see Urgency and caffeine info. sheets). If evidence of recurrent UTI’s consider bladder scan / in and out catheter to rule out residual urine. If post-void residual over 150 mls or 50% more than average void go to Visit 1 on Voiding Difficulties Care Pathway. Review bladder diary to determine patient’s normal voiding pattern and plan toileting programme. Encourage toileting ¼ hr before normal voiding would occur Review in 2 – 4 weeks; agree time of next visit with patient/carer Visit 2 (2 – 4 weeks) Bothersome rating at this visit 0-5 If dry discharge If problem remains adjust timings up or down as necessary to achieve dryness Review in 2 weeks; agree time of next visit with patient/carer PTO © Continence Care Pathway Development Group 30 Appendix 9 STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL Visit 3 (4 – 6 weeks) Bothersome rating at this visit 0-5 If dry discharge If problem remains consider advice on containment options for containment e.g. washable products (which can be purchased) /pads/sheaths Summary Comments: Specimen signatures for variance Visits Signature Visit 1 Print Name Initials Date Visit 2 Visit 3 Discharge Date Signature © Continence Care Pathway Development Group Print Name 31 Appendix 10 Nocturia / Nocturnal Polyuria Patient Name………………………………………DOB:…………….NHS No.:……………………… Address/ Care Home:……………………………………………………………………………………. STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL Visit 1 Presenting problem Bothersome rating 0-5 Agree treatment goal with patient/carer Discuss bladder diary, voiding frequency volumes and set targets If urine output overnight is greater than 1/3 total amount passed, patient may have reversed diurnal rhythm consider the following: 1. Give advice regarding no major drinks after 7pm 2. Avoid caffeine, citric, chocolate and alcohol based fluids as last drink (See Urgency leaflet) 3. Lie on bed for 1 hour after lunch to aid diuresis in daytime 4. Give Nocturia / Nocturnal Polyuria leaflet, appendix 19 Review in 2 – 4 weeks; agree time of next visit with patient/carer Visit 2 (2 – 4 weeks) Bothersome rating at this visit 0-5 If symptoms no longer persist, discharge If no change ask GP to consider diuretics i.e. Furosemide late afternoon (5-6hrs before bedtime) Review in 1-2 weeks; agree time of next visit with patient/carer PTO © Continence Care Pathway Development Group 32 Appendix 10 STANDARD STATEMENT VARIANCE FROM STANDARD STATEMENT AND REASON/COMMENTS DATE INITIAL Visit 3 (3 – 6 weeks) Bothersome rating at this visit 0-5 If symptoms no longer persist, discharge If problem remains consider advice on containment options for containment e.g. washable products (which can be purchased) /pads/sheaths Summary Comments: Specimen signatures for variance Visits Signature Print Name Visit 1 Initials Date Visit 2 Visit 3 Discharge Date Signature © Continence Care Pathway Development Group Print Name 33 Appendix 11 S- Situation B- Background A- Assessment R- Recommendation Surname: First Name: NHS Number: Date © Continence Care Pathway Development Group DOB: Sex: GP: Clinical Notes 34 Appendix 11 S- Situation B- Background A- Assessment R- Recommendation Surname: First Name: NHS Number: Date © Continence Care Pathway Development Group DOB: Sex: GP: Clinical Notes 35 Appendix 12 STRESS INCONTINENCE INFORMATION SHEET Leakage when you cough, run, jump laugh or sneeze may be called “stress incontinence”. It can be caused or aggravated by childbirth, being overweight, constipation and chronic coughing. It is due to a weakness in the pelvic floor muscle. It is very important that you do not reduce your fluid intake as this may actually make your problem worse, and can cause constipation. Physiotherapists, doctors and nurses know that pelvic floor exercises can help you to improve your bladder control. When done correctly, pelvic floor exercises can build up and strengthen the muscles to help you hold urine. Do not feel embarrassed – studies show that as many as one woman in three have this symptom. PELVIC FLOOR EXERCISES THE PELVIC FLOOR Layers of muscle stretch like a hammock from the pubic bone in front to the bottom of the backbone. These firm supportive muscles are called the pelvic floor. They help to hold the bladder, womb and bowel in place and to close the bladder outlet and back passage. HOW THE PELVIC FLOOR WORKS The muscles of the pelvic floor are kept firm and slightly tense to stop leakage of urine from the bladder or faeces from the bowel. When you pass water or have a bowel motion the pelvic floor muscles relax. Afterwards, they tighten again to restore control. Pelvic floor muscles can become weak and sag because of childbirth, lack of exercise, the change of life or just getting older. Weak muscles give you less control and you may leak urine, especially with exercise or when you cough, sneeze or laugh. HOW PELVIC FLOOR EXERCISES CAN HELP Pelvic floor exercises can strengthen these muscles so that they once again give support. This will improve your bladder control and improve or stop leakage of urine. Like any other muscles in the body, the more you use and exercise them, the stronger the pelvic floor will be. © Continence Care Pathway Development Group 36 Appendix 12 HOW TO DO YOUR PELVIC FLOOR EXERCISES 1. Sit comfortably with knees/ legs slightly apart. Without moving your tummy muscle or bottom, try to squeeze the muscle around the back passage. Pretend you are trying to stop wind from escaping! 2. Now try the same with front part of the muscle. Again without moving the tummy or bottom, squeeze and lift the muscle into the vagina. Moving this front part of the muscle is harder and takes time to practice. 3. Once you can tighten and lift the muscles (lifting is as though you are taking the muscle up steps one at a time), pull as hard as you can and hold for as long as you can (e.g. 5 seconds), then relax. Repeat this 5-10 times with a good ‘rest’ for 10 seconds between each contraction. Do the group of 5-10 slow pull up exercises three times a day without making your muscle ache. 4. Now try to squeeze your muscle quickly like a one-second ‘flick’, then relax. Repeat this quick pull up exercise five times. Only do this once before your group of slow contractions. 5. These two actions of moving your muscle – i.e. slowly and then fast – will strengthen the pelvic floor muscle so that you will be able to do more repetitions and hold the squeeze longer. This will make the muscles strong and powerful. You may find pelvic floor exercises difficult at first, but you will need patience and perseverance in order to improve. All exercise needs to be repeated regularly in order to get a good result and the pelvic floor is no exception. Try doing them sitting, standing and lying down. You may notice an improvement in 6 – 8 weeks if you perform the exercises as above. The pelvic floor exercises will become much easier to perform as the muscle gets stronger and will become a habit. Your personal Pelvic floor exercise programme Number of slow pull up exercises…… and hold for …….. Rest for 5 -10 seconds Number of fast pull up exercises: © Continence Care Pathway Development Group 37 Appendix 13 PELVIC FLOOR EXERCISES FOR MEN Practice each section separately. The aim is not only to strenghthen the pelvic floor muscle but also to give it ‘bulk’ so that it can help prevent the escape of urine from the urethra. 1. Locate Bladder Muscle Group 2. Locate Rectal Muscles Contract the same muscles used to stop the flow of urine. Pull up as if trying to draw the penis inside the body. Pretend you have wind. Tighten the rectal muscles around the anus as if trying to prevent wind escaping. Hold tight for 3 normal breaths relax slowly Hold tight for 3 normal breaths – relax slowly. Practice 5 contractions at a time throughout the day Practice 5 contractions at a time 3. Raise entire pelvic floor throughout the day 4. After dribble Find 4 opportunities in a day to tighten these muscles 5 times. To eliminate this problem ‘milk’ the last few drops from the urethra. Pull up – hold tight – breathe normally – relax slowly. Place a finger behind the scrotum and gently massage forward prior to giving a shake Practice while sitting, standing or lying. Little and often, anywhere anytime. Gradually increase the period you hold tight for from 3 breaths. © Continence Care Pathway Development Group 38 Appendix 13 AFTER DRIBBLE – A COMMON PROBLEM Few men admit to having this problem but a great many suffer and are embarrassed by it. It affects all ages. After dribble means the loss of a few drops of urine after the main stream when the bladder appears empty. The medical term for this is post micturition dribble. It usually happens just as the penis is being replaced and clothing rearranged and results in underwear and trousers getting wet and stained. Some men find that even though they wait a while and shake carefully it remains a problem. What is happening is that the urethra (the tube leading from the bladder to the tip of the penis) is not being completely emptied by the muscles that surround it. A ‘sump’ of urine pools in the urethra (See the diagram on the right.) The best way to deal with this is to push the last few drops of urine from the urethra with your fingers before the final shake. The technique is as follows: After passing urine wait for a few seconds to allow the bladder to empty; Place the fingertips of the left hand three finger-breadths behind the scrotum and apply gentle pressure (see A on the diagram); Keeping pressure in the midline gently but positively draw the fingers towards the base of the penis under the scrotum; This pushes the urine forward into the urethra where it can then be emptied by shaking or squeezing in the usual way; Before leaveing the toilet repeat the technique twice more to make sure that the urethra is completely empty. This technique can be practised at home. When in public toilets it can be done discreetly with a hand inside a a trouser pocket and will avoid the problem of stained trousers. If after-dribble is associated with other urinary problems, for example delay or difficulty in emptying the bladder, or frquency or urgency, please consult your doctor. © Continence Care Pathway Development Group 39 Appendix 14 URGENCY INFORMATION SHEET What is a normal bladder habit? It is normal for an adult with a reasonable fluid intake to pass one to two cups full of urine each time the bladder is emptied (between 250-400ml) during the day and maybe once at night. This may increase slightly with age. As we get older our bladder capacity may get a little smaller, so we need to pass urine a little more often, including once or twice a night. Urgency is the symptom of having to hurry to pass urine. Frequency is when you need to go to the toilet a lot, eight or more times in 24 hours, but only pass small amounts of urine. What you can do about it? Whatever the cause there are certain rules to follow to help control your symptoms: Do not reduce your fluid intake. Far from helping this may make your problem much worse, and can also cause constipation. Have approximately 1½ litres of decaffeinated fluid per day. Try to avoid drinks containing caffeine, which is found in tea, green tea, coffee, chocolate and cola - reduce gradually to avoid headaches, moods etc. Fizzy drinks may also exacerbate your symptoms Some people also find it helpful to avoid citric drinks such as orange, lemon, lime, grapefruit and tangerine as they can irritate the bladder. Blackcurrant is a natural diuretic. Alcohol can also increase urgency Avoid passing urine “just in case” Try to increase the amount of time between visits to the toilet Do not try to hold on at night - it will only keep you awake. Practising holding on in the daytime will gradually help night time problems If you have been given water tablets you must take them no matter how often they make you want to go. Discuss this problem with your nurse or doctor © Continence Care Pathway Development Group 40 Appendix 14 If you are overweight try to lose a few pounds, this relieves stress on the pelvic floor. You may be able to obtain help via your GP regarding accessing dietary and exercise options e.g. Weight Watchers programmes and vouchers for Sports Centres. Be careful with your diet – too much or too little fibre is not good for you. Try changing your diet to see what works best for you You may need to take tablets to help relax your bladder muscle. When is a bladder training programme used? Bladder training is a treatment for people who suffer from an urgent need to pass small amounts of urine more frequently than normal, who may also experience leakage with urgency. Sometimes people with no urgency learn to pass urine frequently to avoid accidents. These people may also benefit from bladder training. What is bladder training? The aim of bladder training is to improve bladder control and increase the amount of urine the bladder can comfortably hold without urgency or leakage of urine. The programme teaches people to suppress the urgent desire to pass urine until a socially acceptable time and place is found. When the bladder is sensitive or over-active learning to ‘hold on’ can initially be difficult but usually becomes easier with practice. The bladder training programme. Keep a bladder chart or diary to measure progress. If you haven’t been given a chart by your doctor or continence advisor, simply record when and how much urine you pass and write down any accidental loss of urine. Fill in the bladder chart for 2-4 days (including overnight). Try to gradually increase the time between visits to the toilet Each time you get the urge to go to the toilet, try to hold on for a few minutes longer If you wake up during the night with a strong desire to go to the toilet, it is reasonable to go and empty the bladder right away (unless advised otherwise). As you improve by day you will gain confidence to practice the programme at night. © Continence Care Pathway Development Group 41 Appendix 14 Some helpful hints When you have the urgent need to pass urine, you may find it helpful to sit down and try to take your mind off wanting to get to the toilet When you do go to the toilet, walk, don't run Avoid going to the toilet 'just in case' Drink 6-8 cups of fluid over the day unless told otherwise by your doctor Minimise the intake of fluids which may irritate the bladder, for example, coffee, tea, cola and alcohol see advice above Maintain a good bowel habit by keeping your bowel regular and avoiding constipation as this can increase bladder sensitivity Do your pelvic floor exercises - this gives you confidence to hold on. See Pelvic floor Training for Women and Pelvic Floor Training for Men. Will there be setbacks? Do not be concerned with small day to day variations in your bladder pattern - these are normal for everyone. However, any person who starts a bladder training programme may experience set backs when the symptoms seem worse again. These may occur: When you are tired or run down During a urinary tract (bladder) infection (see the doctor immediately if you suspect this) At times of anxiety or emotional stress When the weather is wet, windy or cold During times of illness e.g. cold or flu If this does happen, do not be discouraged. Think positively and keep trying. Further information and support can be obtained from your health care professional. How to contact the Continence Service: Tel: 0117 3737 118 &RQWLQHQFH6HUYLFH +RUILHOG+HDOWK&HQWUH /RFNOHD]H5RDG %ULVWRO %655 © Continence Care Pathway Development Group 42 Appendix 15 CAFFEINE Caffeine is a natural drug that stimulates the body. It can act upon the central nervous system, heart muscle and lungs. It is a diuretic (it makes you produce more urine). Caffeine tightens the blood vessels and can worsen the effects of migraine type headaches. Caffeine may affect fertility and osteoporosis. For some people caffeine is also an irritant to the bladder. It has been considered that the average person should not take more than 300mgs of caffeine per day. The following table shows the amounts per serving in various foods and drinks. Food/drink Fresh Coffee Instant Coffee Tea Instant Tea Coke Cola Diet Coke Pepsi Cola Diet Pepsi Dr Pepper Red Bull Chocolate bar (1oz) Some Cold Relief Tablets Drinking chocolate (3 heaped teaspoons) Caffeine per Serving 80 -150 mgs 65 -100mgs 30 -70 mgs 30mgs 45.6mgs 45.6mgs 37.2mgs 37.2mgs 39.6mgs 80mg per 250mls 15mgs 30mgs 8mgs Ref. Website: Frequently asked questions about caffeine. Caffeine can be addictive in nature and people can experience withdrawal effects when reducing their caffeine intake. It is therefore vital that someone wishing to reduce their caffeine intake does so by cutting down gradually, ie by reducing 1 cup per day. Alternatives to caffeine drinks: Herbal tea, eg peppermint, camomile Fruit juices such as apple, cranberry, elderflower, peach and raspberry Please note that hot chocolate, alcohol, lemonade and other fizzy drinks may also cause bladder irritation and blackcurrant is a natural diuretic © Continence Care Pathway Development Group 43 Appendix 16 BRISTOL STOOL SCALE © Continence Care Pathway Development Group 44 Appendix 17 14 Day Food, Stool and Medication Diary Patient’s Name: ………………………………………………… DOB: ………………… NHS No: …………………………..……… Address/Care Home:…………………………………………………………………………………………………………………………………………… DATE FOOD AND DRINK (Please record everything you eat and drink e.g. Lunch: meat, boiled potatoes, peas, carrots, gravy, apple and yoghurt + 150mls water – please do not write ‘normal diet’) STOOL TYPE, FAECAL INCONTINENCE/SOILING IF APPROPRIATE AND TIME OCCURRED BOWEL MEDICATION Name, amount and times (See Bristol Stool Chart) © Continence Care Pathway Development Group 45 Appendix 17 14 Day Food, Stool and Medication Diary Patient’s Name: ………………………………………………… DOB: ………………… NHS No: …………………………..……… Address/Care Home:…………………………………………………………………………………………………………………………………………… DATE FOOD AND DRINK (Please record everything you eat and drink e.g. Lunch: meat, boiled potatoes, peas, carrots, gravy, apple and yoghurt + 150mls water – please do not write ‘normal diet’) STOOL TYPE, FAECAL INCONTINENCE/SOILING IF APPROPRIATE AND TIME OCCURRED BOWEL MEDICATION Name, amount and times (See Bristol Stool Chart) © Continence Care Pathway Development Group 46 Appendix 18 CONTINENCE IN THE CONFUSED ELDERLY The way we stay continent is a very complex function that allows us to voluntarily postpone passing urine or having our bowels opened until we are at the appropriate place. This skill can be affected by a condition such as dementia. It may happen just occasionally or, as the illness progresses, more frequently. It is very important to understand that it may be due to a treatable condition so the first thing to do is discuss it with a Health Care Professional. Treatable conditions may include: Urinary tract infection – someone may complain of pain or burning when passing water or may show an expression of pain if they have difficulty talking. You or the person may notice that their urine looks cloudy or smells. Sometimes an infection can be present without specific symptoms so it is always worthwhile asking your nurse or doctor to check that all is well Prostate gland trouble (in men) – your GP will be able to assess if this is a problem and advise you about treatment and help in managing leakage The side effects of some medication – unfortunately some medications do affect how your bladder and bowel work. It is always advisable to discuss this with your doctor if this could be the case and he or she may be able to change them or alter the dose. Please take advice before stopping or changing the time of taking any medicines. Constipation may cause urinary incontinence through pressure on the bladder or bowel leakage where loose, smelly motions leak around the hard stool blocking the bowel. It is important that you discuss this with a health care professional to advise how to improve this problem. Lack of recall – sadly when people become forgetful this may also mean they gradually lose the memory of what to do in a toilet or even where the toilet is. Advice can be given to help you manage in these circumstances. It is very important to try to help this person keep their own continence skills for as long as possible. © Continence Care Pathway Development Group 47 Appendix 18 How you can help: Get to know the person’s habits. This may seems a strange and very personal thing to suggest but usually our bladder and bowel actions have some pattern to them. It may be worthwhile noting when the person is most likely to use the toilet. As their memory starts to play tricks upon them, you can help by reminding them to go to the toilet at the times when you know they are most likely to go. Keep this as a regular routine. It may be that the person finds it difficult to verbally let you know they need to use a toilet. If this is the case you will need to become aware of other signs such as fidgeting, wandering or pulling at clothing and suggest they use the toilet. Make sure they drink enough during the day to keep the bladder and bowels healthy. People can forget to drink, or be reluctant to. Your nurse or GP can advise you. When you think about it, using the toilet is a very complicated thing to do involving lots of different steps to be successful. Try to keep using the toilet to a few, regular, easy steps. Always use the same language to ask or describe what is happening and keep to the same routine inside the toilet. Consider changing the toilet seat to a red colour as this is the last colour to go on the colour spectrum. This may help with toilet recognition. Decide the toilet routine, keep to it and tell others. This is important so that if the person spends time apart from you, the routine to use the toilet is the same and the skill is encouraged to remain. Keep in contact with the health care professional that is helping you. Discussing and monitoring changes as they occur can help prevent them from becoming larger problems. How others can help: With aids and adaptations to make using the toilet easier Advice about clothing so that the person can get quick access to themselves in the toilet – e.g. velcro rather than zips or buttons Advice about diet to keep bowels healthy Advice about hygiene Advice about mobility Advice about special problems to help manage any wetness and to keep the person dignified, comfortable and dry To provide the time to listen to your worries, suggest other ideas and to work with you. © Continence Care Pathway Development Group 48 Appendix 19 Nocturia / Nocturnal Polyuria Some people who have to get out of bed to pass water (urine) during the night have nocturnal polyuria. Nocturnal polyuria means that you pass too much urine at night, compared to the daytime. Nocturnal polyuria is commoner in older people and there are a number of causes. Some causes are simple Doing most of your drinking in the evenings. This means any fluid from water to beer! Eating a lot of water containing foods in the evening. These foods include salads, vegetables and fruit but also rice and pasta. Other causes are a little more complicated If your ankles are swollen in the evening, they will often be slim by the morning. In this case the water in your ankles is brought back into the body and changed into the urine you produce at night. Occasionally swollen ankles may mean that your heart is not working as efficiently as it could. If you sit a lot then you can get fluid lying in the legs, which is similar to swollen ankles. Snoring can be a symptom of sleep apnoea, a condition where the throat is temporarily blocked in sleep. This can cause nocturnal polyuria because it leads to the heart releasing a substance that causes urine to be produced. There are other rare causes. What can you do about it? Look at the way you eat and drink and spread it out evenly throughout the day. Have drier foods in the evening. If you have swollen ankles go and see your doctor and show her/him this sheet. Exercise regularly. Walking is good, but if you have heart problems go to your doctor first. If you are overweight you are more likely to snore, so try to lose weight. If you snore and feel exhausted in the day, you might have sleep apnoea, so see your doctor. 49 Appendix 19 Other things that can be done If you have swollen ankles then: - Putting your feet up after lunch and when you watch television often helps. But your feet need to be as high as your heart. That means lying on a bed or sofa. - Wearing elastic stockings can help. - You doctor may prescribe a tablet, Frusemide (40mg), at teatime (4.00pm to 6.00pm) to make you pass extra urine in the evening. 50 Appendix 20 Bristol HPA Urine Algorithm and Guidance 51 Appendix 21 How to collect a urine sample Urine samples are an effective way of testing for certain problems, especially Urinary Tract Infections (UTI). Therefore it is important to collect a sample so that things such as UTI’s can be diagnosed and treated, or ruled out. However this can be a challenge if you need to get a sample of urine from a child or client who is unable to co operate, and they wear nappies or pads you may find the following instructions useful. When should I collect the sample? It is usually best to collect the sample after they have been bathed. This is because the pad area needs to be clean. However, you can just wash and dry the pad area with soap and water. It is also important that you do not put any creams, lotions or talc on, as this will contaminate the sample. Equipment you will need 1. 2. 3. Specimen pot Syringe Small insert pad with no super absorbent gel How should I collect the sample? Place the insert pad that you have been provided with inside clients pad, and secure as usual. Check at intervals of about 60 minutes, and when it is wet remove the pad. (If the pad is soiled, the process needs to begin again, as this will also contaminate the sample.) Place the pad on a surface and wash your hands. Using the syringe in which you have been provided, place the tip on the pad and then gently pull up the plunger and you should see urine appearing in the syringe. Then dispense the urine into the sterile bottle provided. You will need 30 mls of urine for a good sample, you may need to repeat the whole process until you have 30mls in one go. References Alam et al. (2005) Comparison of urine contamination rates using three different methods of collection: clean-catch, cotton wool pad, and urine bag. The Liverpool School of Tropical Medicine, Liverpool, UK. Feasey, S. (1999) Are Newcastle urine collection pads suitable as a means of collecting specimens from infants? Northampton General Hospital NHS Trust. Patient Advice Leaflets: Collecting Urine Samples. http://www.gp-training.net/pal/gyngu/uticoll.htm Rao et al. (2004) An Improved urine collection pad method: a randomised clinical trial. Department of Child Health, Rotherham General Hospital, Rotherham, Yorkshire, UK. 52 Appendix 22 Vulval Observation Introduction A female patient presenting with bladder problems, or pelvic pain, may require a vulval observation to determine the nature and extent of their symptoms. Observe for signs of infection, vaginal atrophy and prolapse all of which can be treated and improve continence problems. It is important to consider consent (see Physical Examination Pg 13 in this document), chaperone and relevant infection control procedures. See Skills for Health – National Occupational Standards (SfH, NOS) Continence Competencies – www.skillsforhealth.org.uk Ref CC01 and CC12. Guidance on performing assessment With the woman lying in supine position, hips flexed and abducted. Observation 1. Perineal skin should be examined for scar tissue, lesions, excoriation, soreness or evidence of any irritation. Any cause for concern should be referred appropriately. 2. Any unpleasant odour or discharge should be noted as should any signs of gaping of the introitus. Any concerns should be referred back to the GP or consultant as appropriate. 3. The vaginal mucosa should be exposed and examined for colour, presence of rugae and hydration. Healthy vaginal mucosa should be moist, rugated and a deep pink/red colour. Dry, sore, thinned epithelium indicates atrophic vaginitis and may require topical medication. 4. Further observation may detect signs of prolapse. 5. Asking the patient to cough may demonstrate perineal descent, urine loss and provoke or increase the degree of any prolapse present. 6. Perineal observation of a voluntary pelvic floor muscle (PFM) contraction can indicate strength and endurance. Elevation of the perineum suggests a moderate to strong contraction. 7. Breath holding or co-contraction of any other muscle group should also be noted, and the patient instructed regarding any inappropriate activity. Co-contraction of the transversus abdomini and/or the glutei is not contraindicated but should not replace a correct PFM contraction. Adapted from : ACA Good Practice Guidance (2008) Vaginal Examination and Assessment of the Pelvic Floor. ACA 53 Appendix 23 Measurement of Post void residual urine Residual urine is retained in the bladder after micturition due to incomplete bladder emptying. The stagnant urine can provide a focus for infection and the formation of bladder stones or calculi. The actual amount can be measured in two ways:1. Passing by a single-use hydrophyllic coated intermittent catheter to withdraw the urine 2. Ultrasound scan For speed, passing an intermittent catheter will give an immediate answer. If the amount retained is 150 or more, please discuss what further action may be required with the relevant health care professional/Continence Service to ensure a safe and consistent approach is achieved. Possible cause of incomplete emptying: History of neurological or neuropathic disease (MS, Parkinson’s, diabetes) Enlarged prostate Uterine prolapse Constipation Obstructive symptoms include: Hesitancy Poor stream Straining to pass urine Stop start micturition Terminal dribbling Feeling of incomplete bladder emptying Prior to doing a post void residual with an intermittent (in/out) catheter please carry out: 1. Abdominal palpation 2. Prostate assessment in men 3. Urine test 4. FVC / intake and output chart Rationale The patient should be encouraged to empty their bladder prior to the procedure to ensure a true post void residual is measured. The procedure should be aseptic to reduce the risk of infection The catheter should be non-retainable single-use hydrophyllic coated e.g. Lofric, Easicath Procedure 1. Explain and discuss the procedure with the patient and gain consent 2. Ensure the patient has attempted to empty their bladder 3. Screen the bed 4. Bring equipment – appropriate size single use intermittent hydrophyllic (nelaton) catheter: Catheterisation pack Lubrication gel - if appropriate *not with soaked catheters Clean container 5. Wash hands using six-step technique, apply (sterile) gloves 6. Perform intermittent catheterisation as per Royal Marsden Hospital Manual (2007) 7. Measure residual volume and record in patients’ notes. 54 Appendix 24 Medication Likely To Effect Continence DRUG USE Alcohol Anticholinesterase Neostigmine Benhexol, Procylidine Hyoscine, Propantheline Anti histamines Pizotifen Promethazine Antidepressants Amitriptyline, Lofepramide Imipramine Calcium channel blockers Nifedapine Cytotoxics Cyclophosphamide Ifosfamide Loop diuretics Frusemide Bumetanide Metazolone Thiazides Bendroflurazide Cyclopenthiazide Amiloride, Triamterene Spironolactone Antipsychotics Chlorpromazine Thioridozine, Droperidol, Halperidol, Pimozide Benzodiazepines Nitrazepam Temazepam Lorazepam Barbiturates Amylobarbitone, henobarbitone Chloral derivatives Phenothiazines Chlorpromazine, Thioridazine Diamorphine, Morphine Theophylline, Caffeine EFFECT Impairs mobility, reduces sensation, increases urinary frequency and urgency, induces diuresis Myasthenia gravis Bladder sphincter muscle relaxation causing Irritable bowel spasm involuntary micturition Control of smooth muscle, increased peristalsis Antimuscarinic drugs also known as anticholinergics Parkinson’s Disease Drug induced Voiding difficulties Parkinsonism Drugs with antimuscarinic side effects Allergies, Hay fever, Voiding difficulties Rashes, Migraine, Travel sickness Reduced awareness of desire to void Social Depression Voiding difficulties Angina, arrhythmia, hypertension Malignancies Nocturia, increased frequency Haemorrhagic cystitis Diuretics Management of hypertension Urinary urgency Pulmonary oedema Urge incontinence Heart failure, oedema Diabetes insipidus Urinary urgency Oliguria due to renal Frequency failure Ascites, Nephrotic Urge incontinence syndrome Hypnotics/sedatives Schizophrenia and related psychotic illness Nausea, vomiting, Voiding difficulties, decreased awareness agitation Anxiety Sedation Decreased awareness, impaired mobility Sedation As above Sedation As above Sedation Decreased awareness of desire to void Opiate analgesics Pain control, Drug abuse Bladder sphincter spasm causing difficulty in micturition and urge incontinence Xanthines Asthma Increased diuresis, aggravates detrusor instability causing urge incontinence 55 Appendix 25 Guidelines for using Product Requirement Form 1. Always print and use black ink. 2. Please fill in all the relevant boxes - not doing so will result in a delay in the products reaching the patient as the form will be sent back to you. The products cannot be sent out if the form is incomplete. Please always order samples for patients to try prior to ordering. 3. The FULL postcode is vital as the carrier cannot make a delivery without it i.e. BS11 is not enough. 4. Tick only one type and one category of incontinence. Abbreviations are as follows for category. EMI LD T - Elderly Mentally Infirm Learning Difficulty Terminal Neuro PD - Neurological - Physical Disability 5. Use the other notes section to highlight special instructions i.e. takes time to answer the door, deliver Wednesday etc. See Guide for patients receiving products on BCH staff website. 6. Alternative delivery address - needs to be within walking distance for the driver i.e. next door/upstairs flat. Please use main address box if delivery is to go to another family member/carer. 7. Delivery cycles at present: 1 pad per day (Couche, Midi, Maxi) 1 pad per day (Normal, Plus, MoliCare) 2 pads per day (All Products) 3 pads per day (All Products) Children 4 – 18 years: Adults: Care Homes: Care Homes with Nursing: Terminal Patients: 48 week delivery cycle 24 week delivery cycle 16 week delivery cycle 12 week delivery cycle A maximum of 4 products per 24 hours -12 week delivery cycle A maximum of 3 products per 24 hours - 12 week delivery cycle 16 week delivery cycle 4 weekly 12, 8 week or 4 week one-off delivery, appropriate to diagnosis 8. Use the form to help you. The working capacities are shown for all the pads. 9. Shaded areas are at the discretion of the Continence Service and will have to be authorised. 10. This is a product request form - all clinical details should appear on your assessment. Please do not write any confidential clinical details on the form. 11. Paul Hartmann Ltd are there to help in matters regarding delivery - for clinical issues please contact your Continence Service. 12. Post all copies (white, yellow, pink) along with your continence assessment form and relevant care pathway to the Continence Service. The continence assessment form and the yellow copy will be returned for your files. 13. All patients must be re-assessed two yearly (NICE 2012) or earlier if their needs change. 14. For re-assessments - if no change complete the product form on line. If there is a change of product, increase in size or quantity, add evidence of why increase is needed to your reassessment and send both assessment and product form to the Continence Service. Continence Service, Horfield Health Centre, Lockleaze road, BS7 9RR Tel: 0117 3737118 56 Appendix 26 Guide for Patients Receiving Continence Products This guide is designed to help you understand how the home delivery service for continence pads works and what you need to do in order to alter, stop or recommence your deliveries. Please note that Paul Hartmann Ltd who manufacture the products, and CityLink - the carrier who deliver them, will only action alterations if they have authorisation from Bristol Community Health. If your pad supply is no longer appropriate please contact your assessing nurse. Your Contact Nurse details Name: ..………………………………………………………………….. Base: …………………………………………………………………….. Telephone number: …………………………………………………… Continence products’ manufacturer details Name: Paul Hartmann Ltd Telephone number: 01706 694755 57 Appendix 26 Starting the Home Delivery Service 1. Your Nurse has assessed your continence needs and decided that you require pads and / or treatment. The pads are provided for your use only. The nurse completes a requisition form which is sent to the Continence Service and then onto Paul Hartmann Ltd. You will then receive ….. weeks’ worth of products within approximately 10 working days from the date Paul Hartmann Ltd receive the form. 2. If you are out, or unable to answer the door, your pads can be left at an alternative delivery point close by, e.g. a garage, in a porch, with a neighbour with the same post code, or with family or a friend at a different address nearby. Please let your nurse know where you would like your alternative address to be. This is very important as you may be unable to answer the door or to wait in all day to receive your products. Deliveries 1. Your products will be delivered by a company called CityLink. The drivers have all been trained to understand the nature of the products. All drivers carry identification. If you are out the driver will post a CityLink card through the door, which will inform you when another delivery will be attempted. Please note that if you are not in the second time the goods will be returned to the depot. 2. You will be asked to sign for your products if you are able to do so. On the side of the box you will find a plastic wallet containing a delivery note, this tells you what products are enclosed and your next delivery date. 3. The next delivery date will always be as stated on the delivery note, unless that date falls on a Bank Holiday. In this instance your delivery will normally occur before the date due. 58 Appendix 26 Running out of Stock 1. You have been allocated a specific amount of products per day. Please be careful not to exceed this amount or you will run out before your next delivery is due. If the pads are insufficient you may need re-assessing and will need to purchase in the interim. Please contact your assessing nurse. 2. Your delivery should last until the next is due. It is important to use the products as discussed with your assessing nurse. If you find you are running out please contact your nurse as soon as possible so that a re-assessment can take place. 3. Please note there is a maximum allowance which cannot be exceeded. The NHS cannot guarantee to provide you with additional products. You may need to make arrangements to buy extra pads to ‘top up’ your supply. 4. We would like to recommend that you purchase an extra packet of your products to cover any unforeseen delivery problems that may arise such as inclement weather or strike actions. Too many pads If you have too many pads and need a delivery/deliveries to be stopped, please telephone Paul Hartmann Ltd and your assessing nurse (phone numbers on front page). You will need to do this at least 5 days before your expected delivery date. This does not mean that your deliveries will be stopped forever and you will be required to be re-assessed if the pads are stopped for six months or more. If you no longer need the pads it is your responsibility to inform your assessing nurse and/or the Continence Service. Please Help Us to Help You Be at home on your delivery date, OR Have advised us of an alternative delivery point Inform your assessing nurse if your condition alters. Please inform us if you are admitted to hospital or are going to be away from home when a delivery is due. 5. Please inform either Paul Hartmann Ltd or your assessing nurse if you change address. 1. 2. 3. 4. 59 Appendix 26 Please DO NOT: 1. Ask the driver to remove stock you have already accepted and signed for 2. Tip the driver 3. Ask the driver to alter your order in any way Your Pad Details Name of Pad/s Allocation You may wish to make a note of your next delivery dates below. Please keep this leaflet in a safe place. You or your family may wish to contact us regarding deliveries or products, our contact details are on the front page. This leaflet was adapted from a leaflet produced by North Somerset Community Partnership with the assistance of Paul Hartmann Ltd. 60 Appendix 27 SKIN INTEGRITY AND CONTINENCE CARE Protecting the integrity of the skin and providing effective treatment if skin breakdown occurs is an essential part of effective nursing care. When absorbent continence products are used to manage incontinence, extra care needs to be taken to prevent damage to the skin from contact with urine and faeces. General principles Encourage the client or carer to check the skin regularly to ensure healthy skin is maintained.(1) Ensure carers report and document any changes to the skin condition without delay. Soap products can lead to drying of the skin, and may affect the pH balance of the skin. Un-perfumed soap or soap-free cleansers are gentler on the skin.(1) Creams should not be used unless prescribed. Prescribed creams should be thinly applied only in the area affected, as thick application is unnecessary and may adversely affect the absorbency of continence care products. Thick, greasy preparations such as zinc and castor oil nappy rash creams and lotions(3) which contain a higher level of mineral oil or silicone may adversely affect the absorbency of continence care products. Avoid the use of talcum powder in conjunction with body worn continence products. Talcum powder forms a paste when wet, which clings to skin, maintaining urine contact. This paste can also clog absorbent products, limiting absorption.(2) In your area, you may have a skin care formulary which should be followed You should always refer to your local guidelines / policy with regard to tissue viability Emollient bath additives may be added to bath water to protect, soften and smooth the skin. In this instance, as the skin is gently dried before a product is applied, these will not have a detrimental effect on the absorbency of products. These preparations make skin and surfaces slippery – particular care is needed when bathing Adapted, by kind permission, from Skin Integrity and Continence Care (2012) Wendy Colley, Clinical Resource Manager, Paul Hartmann Ltd. These guidance notes have been prepared taking into account current evidence, where available. (1) Penzer R, Finch M (2001) ‘Promoting healthy skin in older people’, Nursing Older People. 13, 8. (2) O’Brien M. (2005) ‘Clinical Procedure Guidance’, GOSH. (3) Source: British National Formulary 62 (2012) (4) Source: J Junkin, J L Selkof. J Wound, Ostomy, Continence. Nurs. 2007: 34 (3): 260-269 Disclaimer: This information is provided to assist patient care and is offered with the best of intentions. By deciding to use or refer to the information contained on the Skin Integrity leaflet, the organisation providing healthcare, clinical staff and patient accepts that under no circumstances may PAUL HARTMANN Ltd or its staff be held responsible for incorrect diagnosis, inappropriate treatment or any other negative or harmful outcome as a result of the information in this leaflet. August 2012 61 Bristol Community Health Appendix 28 USEFUL ADDRESSES Association for Continence Advice (ACA) Drumcross Hall Bathgate Scotland EH48 4JT Tel: 01506 811077 www.fitwise.co.uk www.aca.uk.com Association of Chartered Physiotherapists in Women’s Health (ACPWH) 14 Bedford Row, London, WC1R 4ED Tel: 020 7306 6666 www.csp.org.uk Bladder and Bowel Foundation SATRA Innovation Park Rockingham Road, Kettering, Northants, NN16 9JH Tel: 01536 533255 www.bladderandbowelfoundation.org e.mail: info.bladderandbowelfoundation.org Continence Care Forum (for nurses) Royal College of Nursing 20 Cavendish Square, London, W1G ORN Tel: 020 7409 3333 or 0345 772 6100 (RCN Direct) www.rcn.org.uk ERIC : Education & Resources for improving Childhood Continence 36 Old School House, Brittania Road, Kingswood, Bristol, BS15 8DB Tel: 0845 370 8008 www.eric.org.uk PromoCon (Promoting Continence and Product Awareness) Burrows House, 10 Priestley Way, Wardley Industrial Estate, Worsley, Manchester, M28 2LY Telephone: 0161 607 8219 www.promocon.co.uk e mail: [email protected] 62 Bristol Community Health Appendix 28 RADAR Key Royal Association for Disability and Rehabilitation. Keys are available for anyone with bladder or bowel problems. Most major towns have a list of local facilities. Keys are £2.25 + £1.75 postage and packing Radar, 12 City Forum, 250 City Road, London, EC1V 8AF Tel: 020 7250 3222 www.radar.org.uk e mail: [email protected] Living DLC (Mobility and Driving Centre) The Vassall Centre, Gill Avenue, Fishponds, Bristol, BS16 2QQ Tel: 0117 9653651 www.thisisliving.org.uk The Disabled Living Foundation (DLF) Address - Disabled Living Foundation, Ground Floor, Landmark House, Hammersmith Bridge Road, London W6 9EJ Reception/Switchboard: 0207 289 6111 times are 9.00 am - 5.00 pm Monday to Friday. Helpline: 0300 999 0004 (charge at Local Call Rate). Opening times are 10.00 am - 4.00 pm Monday to Friday. Equipment centre – 0207 289 6111 Ext. 247/204. Opening times are 10.00 am - 4.00 pm Monday Friday. Visits are strictly by appointment only. www.livingmadeeasy.org.uk e mail: [email protected] The PILATES Foundation UK LTD PO Box 51186, London, SE13 9DA Tel: 020 7033 0078 www.pilatesfoundation.com Waterloo Home Design Centre (part of WE Care and Repair) Waterloo Road, St Philips, Bristol BS2 0BH Tel: 0117 954 2222 Open Monday – Friday 0900 – 17.00 hrs. No appointment necessary. www.wecr.org.uk or e-mail: [email protected] July 2013 63 Bristol Community Health References Abrams P, Khoury S and Wein A (1999) Incontinence, 1st International Consultation, Published by Plymbridge Distribution Ltd, Plymouth, England. ISBN 1 898452 25 3. Abrams P, Cardozo L, Fall M (2002) The Standardisation of terminology of lower urinary tract function: report from the Standardisation Subcommittee of the International Continence Society. Neurourology and Urodynamics. 21(2):167-178. 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