Of fi ci al N ew sl et t e r of t h e Park i n son i s m S oci et y W ai ka t o In c THE SUPPORTING HAND Newsletter No 216 CC No 27397 October 2012 Research . Information . Support . Education A word Margaret Nicholson—VP and UpBeat meeting organiser. At the upbeat meeting, which was held in the communal area of 11 Somerset St - since the booked Neurological speaker was ill, (she will be rescheduled.) we did some brain gym stretches and exercises in gathering information on people in social occasions to look at our communication skills. Lloyd taught the group how to do Sudoku - how to look at logical paths in problem solving this puzzle. Fran and Tony spoke on their trip to Canada and shared some photos. Margo demonstrated her new Nordic Walking sticks and showed us what an improvement it has made in her ability to walk. Next month is a combined Support Group Meeting and Upbeat Meeting with a BBQ lunch starting at 1 o’clock. Bring a your own meat to BBQ and bring a plate of food to share such as salad, boiled eggs, a sweet or whatever. This will be a social occasion and will be held rain or shine. Fundraising for Parkinson’s Waikato: On Sale Now: 2013 feral Calendar at only $15 each. Coming up: Parkinson’s Awareness Week—1st—7th November. This year we are holding a Golf Tournament, on 3rd November—more information on pg 2. Garage Sale on 8th December, details on page 7. We need your support and help to make these successful events. The money raised goes toward supporting the Field Officer Service in the Waikato & Coromandel areas. Kind Regards, Margaret N. From the Office: This is the sort of email I love to receive! Hi Gail, I took one of my Parkinson's tulips to Garden Club today and won the best 'bloom prize'. It's pink. I took this shot and by chance the afternoon sun came out and lit up the inside of the flower. Gorgeous! Enjoy. Warm regards, Raewyn Thorburn And for anyone wanting gift ideas we have FOR SALE: Potted Tulips - $4.50—$6 per pot 2013 feral Calendar—$15 each Take care—Gail Please send in any articles or topics of interest and we will add it to the newsletter when we have the space. Parkinson’s Waikato Charity Golf Day Saturday 3rd November Are you interested in a FUN GOLF DAY at Hukanui Golf Club? This day will feature: Green fees $20 for non-members Plus 9 & 18 hole completion Entries will be accepted on the day Quickfire 9 am tee-off - nearest pin—longest drive—haggles Raffles $2 Sponsorship opportunities are still available for the Golf Day—please contact Janice Diez if you are interested Phone 07 847 5326 or office 07 839 9038—email [email protected] Don’t miss out—please support this fun charity day in aid of people with Parkinsonism conditions. Eileen Barker - Field Officer, Cambridge & Hamilton East Hello, Thanks to the Waikato Parkinson Committee, the Field Officers were able to attend the annual Parkinson’s Field Officer conference in Wellington during September. We had a very interesting two days and it was great to be able to share stories and ideas with others from all over New Zealand. Sessions on LSTV-Big by Physiotherapist Tara Martin (who also spoke at the Upbeat weekend) and Lorraine McDonald, Parkinson’s Nurse Specialist in Auckland, informing us of Parkinson’s medications plus Lizzie Kent, the Clinical Psychologist for the Psychology Clinic, Massey University were very informative. Tara Martin will be presenting at a Seminar organised by Rotorua Parkinson’s members in Rotorua on November 8th. See Page 7 & 8 for flyer and registration form. We have all our Parkinson’s Waikato Library books available for loan now. Your field officer can help if you are interested. The Simpson family very kindly donated their collection of books to Parkinson Waikato. Thank you. Take care Eileen PARKINSON'S WAIKATO LIBRARY BOOKS John C. Coleman ND 3/09/2012 STOP PARKIN' AND START LIVIN (Reversing the symptoms of Parkinson's disease) David L Cram,MD & Understanding Parkinson's Disease (A Self-Help Guide) Michael J Fox Always Looking Up (The Adventures of an incurable optimist) Michael J Fox Lucky Man (A memoir) Abraham.N Lieberman Parkinson's Disease (The complete Guide for Patients and Caregivers) William J Weiner, MD & Parkinson's Disease ( A Comprehensive resource for coping with medical, emotional and practical challenges) Page 2 2005 2009 2010 2002 1993 2001 PARKINSONISM SOCIETY WAIKATO INC Five Stages of Accepting an Illness Though symptoms of chronic illnesses differ, people with them are united by the denial, anger, fear, hope, and acceptance and other feelings they bring. Below are the five stages that people typically go through when they find out they have a chronic illness. Not everyone goes through these stages in the same order and it is common to go back and forth between stages as your physical health improves or worsens. No matter what stage you are in, just accept that this is where you belong, go with it, and feel all the emotions you need to feel in order to move to the next stage. Don’t rush this process. Let it happen naturally. If you believe that you are stuck in one of the first four stages permanently, you may want to consult with a therapist. We all have problems that we need to cope with besides this illness, and they can sometimes prevent this process from occurring naturally. 1. Denial. Any change or loss in your life is likely to bring denial, and learning that you have a chronic disease can bring large doses of it. Someone in denial may believe a disease can’t hurt them. They may ignore their doctors’ advice that could help keep the disease under control. In the case of people with diabetes that may mean refusing to take medications or eat a proper diet. On the other hand, some people quickly accept a disease and turn their attention toward healing. These people stay abreast of medical advances and work with doctors to keep the disease in check. 2. Anger. What often fuels denial is anger--anger that an individual was the “one in 1,000” to get a disease. Anger may also be directed inward, with an individual blaming himself or herself for having the illness. The best way to minimize anger is to find outlets for it. Writing in a journal, attending a support group or meeting with a counsellor are constructive ways to express anger. Anger is normal and can take a long time to work through. Sometimes a small part of anger stays with you throughout the entire illness. 3. Fear. Often underlying anger is the fear that comes with having a disease that can’t be cured. People with chronic illnesses may start to view life through a “telephoto lens” instead of a “wide-angle lens”. They stop planning ahead or making life changes because they believe they won’t be around much longer. Fear is often enhanced when people know little about a disease, so combating it often begins with education. The more a person learns about a disease, the more they feel in control of it. Fear also occurs when you lose faith in your ability to fight and to believe in the plan of the universe. This is the most important stage to work through. Fear does no good. It only causes toxins in your body that will make you sicker. Believe in the Master Plan and let the fear go as soon as you can. It will come back, but don’t let it take over. Tell it that it is a useless feeling and that you are stronger than it is. 4. Grief. Feelings of grief and loss are common because chronic diseases bring life restrictions that others don’t have to face. These may include no longer being able to participate in activities once enjoyed, like eating a favourite meal or playing catch with a grandchild. Grief can cause feelings of inadequacy and lead to withdrawal and isolation. Focusing on activities that remain unaffected by an illness can help people overcome these feelings. Those who refuse to think of themselves as ‘sick’ will have a more positive outlook. Joining a support group can also help. Groups allow people to meet others with the same disease who are still active and accomplishing goals. 5. Acceptance. Though managing a long-term illness can bring emotional upheaval, it also brings the triumphant feelings and strength that come with overcoming obstacles. Success comes in a variety of forms, whether it’s controlling a disease with positive thinking, biofeedback, or physical therapy so well that less medication is needed or accepting that the illness has irrevocably changed your life and some of it is very, very good. With each success comes the confidence that you’re able to live a full, rewarding life and maybe even a more meaningful life than if you hadn’t gotten the illness. If you are interested in learning more about these stages, look up Elizabeth Kubler-Ross at the library or on any search engine. She is the pioneer in studying the stages of grief and has written several books. Strategies for Moving Through Grief Illness brings loss, which takes some time to process. What can help you move through your time of grief? Use problem-solving: Respond to the emotions of chronic illness by problem-solving, as indicated in the examples above. One way to move through grief is to use its emotions as the impetus to adopt self-management strategies to remedy the situations that triggered the emotions. Keep structure in your life: Having a routine provides a sense of stability and familiarity, counteracting the feelings of disorientation and uncertainty brought by loss. Writer Gail Cassidy suggests that routine also offers a distraction from loss. “Do not make any unnecessary major changes in your life during times of loss, as they can further add to the existing instability and anxiety.” Avoid stress: Having to adjust to the many changes brought by illness is traumatic. In a situation in which you are already overloaded emotionally, it’s best to avoid people and situations that add more stress. Gail Cassidy suggests you “stay away from negative people and situations that trigger negative emotions.” Continued…….pg4 PARKINSONISM SOCIETY WAIKATO INC Page 3 Strategies for Moving Through Grief…..Continued Acknowledge loss: Some people report they found it useful to make a public declaration of loss. One person in our program wrote a Christmas letter to friends to explain why they hadn’t heard from him. The letter said, in part: “I am sobered by the realization that it is highly unlikely that I will return to the level of functioning that I had before becoming ill and so probably will have to adjust to living a life with greater limits than before.” He reports writing the letter helped him accept his limits and, paradoxically, increased his resolve to improve. Respond positively to self-pity: Almost everyone with chronic illness occasionally feels sorry for themselves. It’s not surprising that we would sometimes feel overwhelmed by emotions, given the losses and stresses we experience. Here are four ideas about how to fight back. 1. Recognize self-pity is a part of serious illness: Just as symptoms wax and wane, so do emotions. Acknowledging that self-pity is happening can take some of its power away. You might say something like “Oh, there’s self-pity again” or “I’m feeling sorry for myself.” Also, it can help to say consoling things like “I’ve felt this was before and it’s always blown over, so probably it won’t last this time either.” 2. Rest: Strong emotions are sometimes triggered by fatigue and other symptoms. In those instances, rest may help alleviate both physical symptoms and emotions. 3. Connect with others: Reach out via phone, email or in-person contact. Sometimes just being in touch can change a mood. At other times it helps to have your mood acknowledged. 4. Help others: Shift your attention off yourself onto what you can do for your family, friends or others in your life. Source: http://www.cfidsselfhelp.org/library/grieving-your-losses Message from Margaret Raddatz Field Officer, Thames/Coromandel and Hamilton West. Hello from Margaret. Here we are another month gone, they are flying by. Daylight savings has started, so more daylight time for exercise and fun things. The management of Parkinson's medication on time is number 1 priority and number 2 is exercise, repetitive and something that alternates from left side to right side is perfect, and if you puff and sweat this is even better! You don’t necessarily have to do 30 minutes at a time, so even a few minutes at a time and a few times a day, will be of benefit. Everyone’s Tulips finished flowering? I have seen some lovely Tulips around on my travels, and one person even got Best Bloom at their local garden club. Someone else said they never lift their bulbs but when the leaves start dying off they give it a liquid fertiliser each week until the leaves have died off completely and they have wonderful blooms each year, this is with all their bulbs not just tulips. Take care, Regards. How many squares did you find? The answer is: 8 x small squares 9 x double squares (2 x 2) 1 x quad squares (4 x 4) Page 4 18 x single squares 4 x triple squares (3 x 3) PARKINSONISM SOCIETY WAIKATO INC A Huge THANK YOU to the team of volunteers from Interactionz, Dalmont Centre, who, each month, cheerfully fold and envelope your Supporting Hand — Well Done Team! Sudoku Especially for our UpBeat Members—see if you can remember all the techniques that Lloyd showed you at your last meeting! Enjoy, and please, can someone send me the solution! Thanks. Q. What did the spider email to the fly? A. Visit my Web site! Keep smiling! The Top Ten Differences Between Cats & Dogs: “Have you got any kittens going cheap?” Asked a customer in a pet shop. “No, sir,” replied the owner. “All our kittens go “Meow.” 10. Dogs come when you call them. Cats take a message and get back to you when they are good and ready. 9. Dogs will let you give them a bath without taking out a contract on your life. 8. Dogs will bark to wake you up if the house is on fire. Cats will quietly sneak out the back door. 7. Dogs will bring you your slippers or the evening newspaper. Cats might bring you a dead mouse. 6. Dogs will play Frisbee with you all afternoon. Cats will take a three-hour nap. 5. Dogs will sit on the car seat next to you. Cats have to have their own private box or they will not go at all. 4. Dogs will greet you and lick your face when you come home from work. Cats will be mad that you went to work at all. 3. Dogs will sit, lie down, and heel on command. Cats will smirk and walk away. 2. Dogs will tilt their heads and listen whenever you talk. Cats will yawn and close their eyes. 1. Dogs will give you unconditional love forever. Cats will make you pay for every mistake you've ever made since the day you were born. CHANGING YOUR ADDRESS? If you are moving—let us know your new address. Phone the office 07 839 9038 or contact your Field Officer. If you are moving area, please tell us and we can ensure you receive the correct contact information for Parkinson’s in that area. PARKINSONISM SOCIETY WAIKATO INC Page 5 Thank you to all advertisers in the Supporting Hand we appreciate your support and hope our readers will support you. If anyone would like to place an advertisement in The Supporting Hand, please contact Gail at the Office. Fundraiser Parkinson’s Waikato Calendar “2013 feral” a calendar of untamed NZ is now available. Beautiful photography again—by Fran Allcock—also a person with Parkinson’s. Funds raised by sale of this calendar goes towards the Field Officer Service in your region—you can support this—not only by purchasing a copy but we also appreciate your help with marketing this calendar. Tell your family, friends, neighbours, bank, local dairy, supermarket, taxi driver, schools, pharmacy, doctor, gym, and other local businesses. $15 Per Copy Contact the office Phone 07 839 9038 or your Field Officer for futher information or to order a copy. We ask for $3 to cover postage (if needed) - an envelope will fit up to 4 calendars. Email: [email protected] Page 6 PARKINSONISM SOCIETY WAIKATO INC Mind and Body—Parkinson’s Rotorua A rehabilitation Seminar with speakers: Wayne Froggatt on The Management & Prevention of Depression in Neurological Disorders and Tara Martin, who will discuss the rehabilitation of people with neurological conditions such as Stroke, MS, Parkinson’s, brain injury and spinal cord injury. Tara is a physiotherapist and is the only Certified LSVT Big instructor in NZ. Date: Thursday 8th November 2012 Time: 9.30 - 3.00pm Venue: Holiday Inn Hotel, Tyron St, Rotorua Cost: $35 per person—this includes morning tea and lunch. RSVP registration 5th November. Time to Spring Clean? Time to clear out some items that you no longer need? Please think of us…..Spread the word….Help us make this a successful fundraising event. The Parkinson’s Society Waikato will be holding a Garage Sale on 8th December 8.30am. We will accept your surplus items: Clean, useable working order—Large or small; collectables, white elephant items, sewing and knitted articles, preserves, jams, and baking. Small items can be delivered to the Office or larger items to the packhouse. Or phone Margaret and Lloyd Nicholson for collection. The Garage sale will be held at Nicholson’s Orchard, 3682 Cambridge Rd, which is the Cambridge, Te Awamutu road. Coming from the Cambridge end, go over the low level bridge, turn right as if going to Te Awamutu, follow this road out of town, past the Kaipaki Road turn off that goes to Mystery Creek and the Airport, (you’re still on the Cambridge, Te Awamutu road though) and we are the 3rd property on the left, its a orchard covered in netting. Please leave stuff on the steps around the back of the brick house if the Nicholson’s are not there, or phone 07 827 3088 or the office 07 839 9038, to arrange collection. SAVE A TREE: SAVE POSTAGE COSTS Please let the office know if you are happy to receive your copy of The Supporting Hand by email PARKINSONISM SOCIETY WAIKATO INC Page 7 Page 8 What’s On NOTE: All entries are by Calendar Dates October 2012 Monday 8th October, 1.30pm, Carer’s meeting @ The Parkinson’s Office Communal area, 11 Somerset St, Frankton. Wednesday 10th October, 11.30am : Whitianga Shared lunch, Andrew's Church, All welcome St Tuesday October 16th October, 1.00pm: Combined Hamilton Support Group & Upbeat BBQ, At Parkinson’s Office, Communal area, 11 Somerset St, Frankton, Hamilton. Bring a small plate to share and your meat to BBQ, Sausages supplied. Tuesday October 23rd October, 1.30pm: Cambridge Support group meeting at Resthaven Quiet room, Vogel St, Cambridge. Thursday 25th October, 10.30am: Thames Careers Meeting Resouce Centre McKay St, shared morning tea Friday 26th October, 10.30am: Whangamata All members Sands Cafe UPBEAT MEETINGS Thursday November 1st 10.00 am Morning Tea at Hilda Ross Retirement Village Community room, 30 Ruakura Rd, Hamilton. All welcome Hamilton Tuesday 16th Oct 1.00 pm Combined Hamilton Support Group & Upbeat BBQ. At Parkinson’s Office, Community area, 11 Somerset St, Frankton, Hamilton. Bring a small plate to share and your meat to BBQ. Sausages supplied. ALL WELCOME: Singing Group at Te Kauwhata, Community Hall, Aparangi Village every Thursday 10am. And a shared morning tea (gold coin please), this is for anyone with a neurological condition, so if you know of anyone else that would like to come along they are most welcome. EXERCISE CLASS FREE! COMING UP Combined Hamilton Support Group & UpBeat Group Christmas Lunch More info in next month’s Supporting Hand (should be in the first week of December) PARKINSONISM SOCIETY WAIKATO INC EVERY Wednesday at the Matamata Medical Centre, Rawhiti Ave, Matamata, 10.00am—11.30am Come along & enjoy a safe exercise programme COMING UP IN NOVEMBER Hilda Ross Retirement Village Thursday November 1st 10.00 am Morning Tea in Community room, 30 Ruakura Rd, Hamilton. All welcome Putaruru: Support Meeting 15th November at 1pm Overdale Community House, Overdale Road, Putaruru. Contributions for afternoon tea appreciated. Page 9 Condolences The committee and Staff offer their condolences to the family and friends of those who have recently passed away. Parkinsonism Society Waikato Inc (A division of Parkinsonism Society of NZ Incorporated) Thank you for remembering Parkinson’s Waikato with your generous In Memory Donations. 11 Somerset Street, Frankton, HAMILTON. 3204 Many families have requested that donations be made to the Society in lieu of flowers. We offer our thanks to all those who have made such contributions as a symbol of their friendship and support. Receipts and acknowledgement will be sent on request. PO BOX 1235 Waikato Mail Centre Hamilton. 3240 email: [email protected] Phone: 07 839 9038 Website: www.parkinsons.org.nz facebook: waikato parkinsons. President: Janice Diez ForAll All Medical For MedicalUpdates Updates and Health Information andconsult Healthyour Information please Parkinsonian Refer to the Parkinsonian Magazine Vice President: Margaret Nicholson Administration: Co-Ordinator - Gail Tait Office hours: 9:00 am to 2.00 pm ( Tuesday to Friday) This is a quarterly magazine sent to you by the If you have not received a copy, contact Gail National Office, Wellington. at the office—these are a quarterly magazines If you have not received a copy, let your Field sent by National Office, Wellington. Officer know or contact Gail at the Hamilton office Committee members: Janice Diez Alain Harper Margaret & Lloyd Nicholson Kelvin Baxter Peter Theobald Eileen Barker HELP WANTED Field Officers: Hamilton City/Cambridge Eileen Barker 027 288 2295 Hamilton West Waikato Margaret Raddatz 07 862 8208 027 211 2295 Kaimai Tui Priest We need your help with various projects Parkinson’s has a new moderator for Face Book. Thank you Errol for your thorough attention to this urgent need. We still need volunteers to help in the office— Shredding paper, sorting files, preparing envelopes for posting Newsletter, setting up for meetings and other various projects. Please contact Gail or your Field Officer, if you are willing to become a volunteer for Parkinson’s. 07 888 8488 027 211 2294 Thames /Coromandel Margaret Raddatz 07 862 8208 027 211 2295 Disclaimer: Please do not interpret anything in this newsletter as medical advice—always discuss with your Doctor first. Parkinson's New Zealand offers education, information and support to people living with Parkinsonism conditions, their caregivers, friends, families and health professionals. Page 10 Back Page PARKINSONISM SOCIETY WAIKATO INC
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