Managing Challenging Behavior in Children with Autism Tony Attwood, Ph.D. 9/10 Copyright © 2010 PESI, LLC PO Box 1000 3839 White Ave. Eau Claire, Wisconsin 54702 Printed in the United States PESI strives to obtain knowledgeable authors and faculty for its publications and seminars. The clinical recommendations contained herein are the result of extensive author research and review. Obviously, any recommendations for patient care must be held up against individual circumstances at hand. To the best of our knowledge any recommendations included by the author or faculty reflect currently accepted practice. However, these recommendations cannot be considered universal and complete. The authors and publisher repudiate any responsibility for unfavorable effects that result from information, recommendations, undetected omissions or errors. Professionals using this publication should research other original sources of authority as well. For information on this and other PESI manuals 800-844-8260 www.pesi.com. and audiorecordings, please call or visit our website at 9/10 Materials Provided By Professor Tony Attwood, Ph.D. is a clinical psychologist who has specialized in autism spectrum disorders since he qualified as a clinical psychologist in England in 1975. He works in private practice in Brisbane, Australia, and is also an adjunct professor at Griffith University, Queensland. Tony is the author of the best-selling book, Asperger’s Syndrome – A Guide for Parents and Professionals and it has sold over 300,000 copies and been translated into twenty languages. He has worked with over 6,000 individuals of all ages with Asperger`s syndrome. Tony presents workshops and runs training courses for parents, professionals and individuals with Asperger`s syndrome all over the world and is a prolific author of scientific papers and books on the subject. His latest book, The Complete Guide to Asperger’s Syndrome, was published in October 2006. The Activity Planner and Tony Attwood have indicated that the content being presented at today’s educational activity is without bias of any commercial product or drug. 1: Communication • The mannerisms have a message • Communication of thoughts and emotions PESI 23rd September 2010 Strategies • When behaviour is the only means of communication • Thoughts such as ‘I can’t cope’ or ‘I need help help’ • Feelings such as jumping for joy or ‘in a flap’ • Foreign phrase dictionary • Acquire an alternative means of communication using actions, gestures, vocalizations and speech • Use the behaviour as an early warning system of agitation • ‘Thermometer’ 1 Frustration: Problems With Comprehension. • Verbal complexity and length of utterance. • Clear, simple instructions. Frustration: Problems With Comprehension. • Demonstration. • Match the length of utterance to the child’s level of comprehension and memory. • One O iinstruction i at a time. i • Processing time Frustration: Problems With Expression • Value of alternative and augmentative communication(Gestures and pictures) 2 2: Exploration Through Sensation • The person’s developmental level in exploratory play • Exploring the world through taste, touch, aroma, sound, colour and perspective • Prior stage to constructive and imaginative play 3:To Block Sensory Overload. • Acute auditory sensitivity to specific sounds (Hyperacusis) • Sudden or ‘sharp’ noises, ( dog barking, coughing, click of a pen top) • Small electric motors or a specific pitch Exploration Through Sensation • Introduce a wide range of sensory experiences • Sensory integration therapy • Can be b used d as a reward d • If the action is dangerous or socially inappropriate, find an acceptable substitute Temple Grandin • “ Sudden loud noises hurt my ears like a dentist’s drill hitting a nerve. High pitched continuous noises such as hair dryers and other small motors are annoying. All the behaviour modification in the world is not going to stop an autistic child from screaming when a noise hurts his ears.” 3 Suggestions to Reduce Auditory Sensitivity Tactile Defensiveness • Identify and avoid the sound • Barrier such as ear plugs • Camouflage the perception of the sound with music iPod • Social Story • Acute sensitivity to specific tactile experiences • Sensitivity to touch and texture on particular parts of the body (scalp, upper arms, palms of hands and soles of feet) Temple Grandin Stephen Shore • “I pulled away when people tried to hug me, because being touched sent an overwhelming tidal wave of stimulation through my body.” • “Church was a nightmare because the petticoats and other Sunday clothes itched and scratched. Many behaviour problems in church could have been avoided by a few simple clothing modifications.” • “Haircuts were always a major event. They hurt! To try to calm me, my parents would say that hair is dead and has no feeling. It was impossible for me to communicate that the pulling on the scalp was causing the discomfort.” 4 Tactile Defensiveness • Gestures of affection perceived as too intense a sensation • Aversion to certain f bi fabrics • Strategies: ‘deep pressure’, sensory integration therapy Sean Barron • “I was supersensitive to the texture of food and I had to touch everything with my fingers to see how it felt before I could put it in my mouth I really hated it when food had things mouth. mixed with it. I could never put any of it into my mouth. I knew if I did I would get violently sick.” Sensitivity to the Taste and Texture of Food • Sensitivity to fibrous texture and multiple flavours • Sensitivity to particular aromas • Problems at meal times that are not due to having to sit still, talk, socialize or try unanticipated food Strategies for Sensitivity to Taste and Texture • Check diet • Avoid programs of starvation to encourage a wider range of foods • Avoid programs of force feeding • Accept the unusual diet at mealtimes • Try new foods during programs of interesting sensory experiences • Distraction, relaxation and rewards to encourage increased tolerance 5 A World Of Terrifying Sensory Experiences • Pain and temperature Temple Grandin • Hyper-vigilant and ‘shell shocked’ • Need a coping or escape mechanism • Self hypnosis hypnosis, being mesmerized by a repetitive action or sensation 4: Coping with change • “Intensely preoccupied with the movement of the spinning coin or lid, I saw nothing or heard nothing. nothing People around me were transparent and no sound intruded on my fixation. It was as if I was deaf.” 6 Therese Jolliffe • “Reality to an autistic person is a confusing, interacting mass of events, people, places, sounds and sights. There seems to be no clear boundaries, order or meaning to anything. A large part of my life is spent just trying to work out the pattern behind everything. Set routines, times, particular routes and rituals all help to get order into an unbearably chaotic life.” Sean Barron • “I loved repetition. Every time I turned on a light I knew what would happen. When I flipped the switch, the light went on. It gave me a wonderful feeling of security security, because it was exactly the same each time.” Donna Williams • “I loved to copy, create and order things. I loved our set of encyclopedias. They had letters and numbers on the side, and I was always checking to make sure they were in order or putting them that way. I was making order out of chaos.” Weak Central Coherence • Not recognizing the context (telescope) • If the detail is changed, the ‘whole picture’ changes • Desperate to make order out of chaos 7 • Repetitive behaviours and routines to achieve sameness and predictability • Watching the same video again and again Fascination with symmetry and order Pictures to see the sequence of activities 5: Manage Anxiety • “The fun came from setting up and arranging things. Maybe this desire to organise things rather than play with things is the reason I never had any great interest in my peers.” 8 A Means of Reducing Anxiety • A ‘superstitious’ behaviour • The Curious Incident of the Dog in the Nighttime(Red cars good) • Negatively reinforced • Obsessive Compulsive Disorder • To release emotional energy Emotional Toolbox: To Fix The Feeling Strategies • • • • • Stress management program Learn alternative means of relaxation Controlled access Medication Cognitive Behaviour Therapy Physical Activity Tools. Quick release of emotional energy • Physical exercise, walk, run, trampoline. • Sport. (Basket Ball, golf, weight lifting) or dancing. • Creative destruction (recycling). 9 Physical Activity Tools. • • • • • Drum Kit. Swing. Orange squeezing. Bite an apple apple. Break a pencil. Social Tools • Time with a family member or friend. • Disclosure (typing, ( yp g music, poetry) • Seek advice. • Being with a pet. Relaxation Tools. Slow release of emotional energy • • • • • • Relaxation training. Solitude. Massage. Comedy programs. Repetitive action. Sleep Solitude • The mental and emotional exhaustion from socializing. • One hour of socializing needs one hour of solitude. 10 Social Swimming • I describe my social life with this analogy. Swimming in the water is nice at first, but if it goes on for too long, or too often, I start to drown (Yeshe) drown. Social Tools: Affection • Intensity • Duration Special Interests Thoughts and perspective • Put the events in perspective. • Imagine what you would like to do or say. • Being calm is being smart (IQ) • A means of relaxation, pleasure. • Knowledge to overcome fear. • Keeps anxiety under control • Thought blocking. • Interest or OCD. Is it irresistible? 11 Special Interest • Collecting and cataloguing (personal defrag). • Distraction during a meltdown. • The ‘off switch’ Sensory Tools • Sounds. Ear plugs, headphones. • Light. Irlen Lenses, hat, sun glasses glasses. • Aroma. deodorants, cleaning products. • Tactile. Clothing. Medication As a Tool • Treatment of an anxiety disorder or a clinical depression (SSRI). • Impulsive (Stimulants). • Mood cycles (anti (anticonvulsants). • Sedation (anti-psychotics) Repetitive Questions • Social echolalia. • To maintain the interaction. 12 Repetitive Questions • Predict what you are going to say next: What colour is your car? • Reassurance that you have not changed your mind 6: Soothing and Pleasurable • Soothing, as in a rocking chair or rocking to comfort someone • Euphoria • Tolerate an acceptable level Tourette’s Disorder: Motor Tics 7: A movement Disorder • • • • • • Blinking Grimacing Nose twitching Lip pouting Shoulder shrugs Arm and head jerking 13 Tourette’s Disorder: Vocal Tics • • • • • Grunting Barking Animal noises Coughing/sniffing Palilalia Tourette’s Disorder: Complex Motor or Behavioural and Emotional Tics • • • • • • • Touching the mouth area Clapping Face and head slapping Hopping Touching objects Licking objects Emotion tics (injury to others, crying) Summary 1. 2. 3. 4. 5. 6. 7. Communication Exploratory play Sensory overload Cope with change Manage anxiety Pleasurable Movement disorder 14 Managing Challenging Behavior in Children with Autism with Tony Attwood, Ph.D. Program Objectives Please use the objectives below to answer the online objective questions. At the completion of this seminar, I have been able to achieve these seminar objectives: 1. Summarize the range of explanations for the challenging behaviors associated with classic autism from sensory sensitivity to movement disturbance. 2. Acquire strategies to reduce the frequency, intensity and impact of challenging behaviors that occur in children with classic autism. 3. Describe the latest research on reducing the intensity and frequency of behaviors associated with autism. **Please mark any additional objective questions online “not applicable”. 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