Issue 6: Public Information Evening Special Edition 2012 Consumer Impact! Newsletter of the Northern Ireland Cancer Research Consumer Forum Northern Ireland Cancer Research Consumer Forum Forum Members with Speakers Northern Ireland Cancer Research Consumer Forum Host Public Information Evening Members of the Forum welcomed the public to an information evening ‘Cancer Research in Northern Ireland – a Brighter Future Together.’ Speakers focused on how research in Northern Ireland helped deliver innovations in cancer treatment, and how the involvement of the public and people affected by cancer is so important to this work. The event was held in the Postgraduate Lecture Theatre of the Belfast City Hospital on 6 September 2012. Summary of Presentations – Part 1: NI Cancer Research Network Dr Richard Wilson, Director of the Northern Ireland Cancer Trials Centre & Network described how partnerships with Trusts, Universities, research funders and the public were facilitating a growing number of people being able to take part in cancer clinical trials in NI. Eileen Dillon, Lead Clinical Research Nurse and Network Manager, described how the role of the research nurse involved supporting patients throughout the clinical trial. Research Advances in Breast Cancer Surgery Mr Stuart McIntosh, Consultant Breast Surgeon at the Belfast City Hospital, told the audience about the important contribution of NI to national multi-centre clinical trials in breast cancer. Research has led to major improvements in cosmetic outcomes and quality of life for women. His current research includes clinical trials of new therapies in the preand peri-operative settings. He is also researching the use of new imaging technology to advance breast reconstruction techniques. The Journey from Lab to Clinic Professor Richard Kennedy, Centre for Cancer Research and Cell Biology and Consultant Medical Oncologist, NI Cancer Centre, described the research pathway from the lab to the clinic and the multiple collaborations involved. He explained how this work is leading to the discovery treatments and Mrs newSharon ways to select the correct treatment for an individual Left to right: of Mrsnew Kate Burns, Mr Paul Burns, Hynds, Mr(personalised Dave Ardron, Dr Richard Wilson, Mrs Dori-Anne patient medicine). Finlay-Blackstock Left to right: Mrs Kate Burns, Mr Paul Burns, Mrs Sharon Hynds, Mr Dave Ardron, Dr Richard Wilson, Mrs Dori-Anne Finlay-Blackstock Left to right: Mr Mike Moran, Mrs Katie Scott, Mrs Eileen Dillon, Mrs Hazel Fisher Information and Conversation There was a break from the talks for a cup of tea and an opportunity to meet others and look at stands from the NI Biobank, Cancer Research UK, Friends of the Cancer Centre and the Public Health Agency. Summary of Presentations – Part 2: Perspectives in Prostate Cancer Mr Paul Burns gave an honest and heartfelt account of the impact of prostate cancer on his life. He described his participation in a clinical trial and shared reflections on the things that are important to him. Professor Joe O’Sullivan, Centre for Cancer Research and Cell Biology and Consultant Clinical Oncologist described how clinical trials are promoting high quality cancer treatments and offering patients hope and access to new drugs and techniques. An Invitation to Get Involved Mr Dave Ardron, Chair of the North Trent Consumer Research Panel, spoke about how people across the UK, affected by cancer, were getting together in collaboration with researchers and giving a vital voice to the patient perspective in the research process. Margaret Grayson, (Forum Chair) described the work of the local Forum and invited others to consider getting involved. Questions and Feedback Mr Geoff Hill (above left) co-chaired the evening, including an opportunity for questions to the speakers. Mr Pat McCartan (above centre), Chair of the Belfast HSC Trust, and Mr Mike Moran (above right), member of the Forum, were two members of the audience who contributed to the evening by asking the speakers about their work and collaborations. Feedback from the event was very positive, many commenting how inspiring the evening was. For more information visit the NICTC website www.qub.ac.uk/nictc The Northern Ireland Cancer Research Consumer Forum & Newsletter are co-ordinated by the NICTC. For further information please contact: Ruth Boyd NICTC East Podium, C-Floor Belfast City Hospital Lisburn Road, Belfast BT9 7AB Tel: 028 90 263903 E-mail Ruth Boyd at: [email protected]
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