MostImportanttoKatie:
Thingsothersneedtodotobestsupport
Katie:
• Socializing,havingyourattention
o Timewithfriends,high5’s
• iPad
o Speak4Yourself
communicationapp
o Sharingphotos/PicCollage
o Listeningtomusic/YouTube
Videos
• Singing,Sleep,goingtothemovies
• Movienights(Disney)withherbrother
Seanatnight
• Family
• Katielikestoholdsomethinginherhand
(i.e.herIDcard,beadednecklace,
medals);ifsheistoopre-occupiedyou
canletherknowyouwillgiveitback
afteratask,distractherfromit/sneakit
away(i.e.atlunch).
• Planextratimetogetreadyandfor
transitions,routineshelp,discuss
changes
ThingsWeLikeandAdmireabout
Katie:
-SundayBreakfastwithDad
-Visitingfamily(mom
mom,poppopBob,Colleen,Tom)
“LightsuptheRoom”
-SwimsatUncleBob’spoolandTommy’s
house
• Loving,Cheerful,amazing“Hi’s”
-SpendingtimewithShane,Tom’sson
• “Iloveeverythingabouther”
• Lovesorganizingthings(Birthdaycards,
• She’sBeautiful,Beautifulhair,her
blocks,etc.)
eyes!
• TV:Frozen,BigBangTheory,Everyone
LovesRaymond,TheGrinch
• Katieis“MyRock”
• Likestocleanofthedinnertable,putaway
• Greatwithusingher“talker”
itemsinthekitchen
• Smiley,Funny
• Lovesgoingtothegrocerystore,walkingin
• GreathelperwithbabyShane
themall
• “Alwaysmakesmefeelbetter”
• Ridingherbike
• “Sheputsyouinagoodmood”
• PlayingwithCharlie,thedog
• Playingmatchinggames/Connect4(no
• Shekeepsgrowinginsomany
rules!)
ways!
• Keepherenvironmentcalm,sheis
affectedbynoise/arguing
-Katiehassomedegreeofhearingloss
andsomepitchesmayaffectherbehavior
-Katiedislikes:somenoises,“night
noises”,shewillcoverherears.
• SheDOESNOTlikehouseplants-phobia;
don’tmakeabigdealaboutitand
don’tforcehertobenearthem.She
maypointouttreesblowinginthewind
outside,youcanjustsaysomething
positive.
• Bemindfulofcrosscontaminationdueto
celiacdisease/glutenfreediet.
MicrowavesokayNOTtoaster.(use
foilinoven)
• Handsonactivities;Movement
• Katiedoesnotlikebaths,doingthem
rightafterschoolhelpspairedwitha
specialdrinkorsnackhelps
• Katieusessomesignlanguage;usingthe
signfor“standup”help.
HowtoBestSupportKatie:
• Bepatient,respectherneedfor
greetingfriends
• 1:1whoknowsandcansupport
herthroughouttheday
• Giveherchoices
• Sheneedstohaveameansto
communicate(Speak4Yourselfon
heripad,photos,signs,usingher
voice)Respectherrightto
communicate
• Shemayfeeljealousifyouare
givingtomuchattentiontoother
peopleand/orpets
• KeepsomespacewithKatie,she
mayholdonto/pullyourhair,hug
toohard(keep1armup)
• Shelikes“frozen”,glutenfree
lunches
• BeVERYcautiousaroundwaterand
inpublic.Shemayrunoff-safety
concern;Keepherclose,lockarms/
holdhands
• Trytokeepherbusy;nottoomuch
downtime
HowKatieCommunicates:
•
Katiesitsontheflooritmaymeanafew
things:shetired,wantsattention,ordoesn’t
wanttodosomething.Whenthishappens
youcanreachoutyourhandtoher,change
demands,and/orusethesignfor“standup”
Katietapsherears/coverherears:itmeans
thenoiseisbotheringher(fireworks,ipad
tooloud,hallways)oritistooloud.Shecan
wearheadphones,coverherears.
•
•
IfKatieismadaboutsomething/ordoesn’t
wanttodoit,shemayhitherwriston
something,kickorhitherself.Say,“Don’t
hurtKatie.”
•
Katiesplasheswater(outoftub).She’s
havingfunand/orwantsattention
Katieblowsraspberries,sticksouther
tongue.Shemaybeupset,frustratedorjust
playingandbeinggoofy.Tellhertoputher
tonguebackinhermouth.
Katieholds/pullssomeone’shair;hugstoo
tight,“headlock”.Shemaybeplayingor
testingyou;possiblyimpulsive.Youcanhold
onearmupwhenyouhugher,say,“Letgo”,
“fingerpeel”,lightlybrushtopofher
knuckles
Katiepullsherhairoutofherponytailand
putsitinfrontofherface.Shewantsyour
attention;letherhairstaywhereitis/ignore
it.
•
•
•
Katie’sBestPossibleFuture:
Home/Living:
• WithMom&Dad/alwaysfamily
• SleepoverswithhersisterColleen;time
withherfamily/siblings/dinnerstogether
• Laundry(foldingit/puttingaway)
• Goingforwalks/swimming
Employment:
• NoTrees/plants
• 2:1(peers/adult)
• Organizingtasks
• Foldinglinens,stocking/organizing
shelves
• Foodallergyconcerns
• Handson/movementjobs
• Safearea/notoutsidenearcars/wateror
nearafrontdoor
Community:
• Localclubs,music,dancing,bowling
• Physicalactivities
• Friends,socialgroups
Recommendations/NextSteps:
• CommunicationDevicetrainingwith
mom(Speech)
• Hygieniccooking
• MostusedSignlanguagelist/pictures
(mom)
• Safety
• Independentmicrowaveuse
• Joinbowling
• Takecareofheripad/plugitin
• Findweekendcommunityactivities/
physicalclubs
• OpportunitiesforKatietorideherbike
• Visualjobcoachingschedule