edically
ragile
hildren’s
oundation of
orthern
alifornia
Building better childhoods
Annual Report
Report
2010 - 2012
Table of Contents
•
Our Introduction
p. 1
•
Our Mission and Vision
p. 2
•
Our Team
pp. 3-5
•
Our Impact
pp. 6-7
•
Our Highlights
•
Our Accountability
•
Our Goals
p. 13
•
Our Thanks
p. 14
pp. 8-10
pp. 11-12
∞ Page i ∞
Our Introduction
April 26, 2013
To Our Wonderful Community:
On behalf of the Board of Directors for The Medically Fragile Children’s Foundation of Northern California
(MFCFNC), I would like to take this opportunity to introduce our first publication: “The MFCFNC’s Annual
Report 2010-2012”.
This report includes a summary of how the MFCFNC has touched the lives of children and adolescents with
physical, developmental, and medical needs. It provides an insight to our mission and philosophy, our
team, our impact, our highlights, our accountability, and our goals. Fundamentally guided by our mission
and philosophy, we aim to build better childhoods for those significantly affected by medical conditions
and disabilities. A common question we receive is, “What makes you different than other non-profits in
this sector?“ Although there are a number of many deserving and genuine causes that support children,
the MFCFNC specifically looks for ways to improve not only the quality of life, but also, the quality of
childhood. The children we serve would like to enjoy the same experiences that their peers without
disabilities experience; it is our goal to make such experiences tangible, not restricted by the walls of a
hospital or center.
Through financial and/or temporal support, it is our genuine wish that you will join us to help achieve our
mission of making childhood sustainable to those who are most vulnerable and are in need. As our logo,
branding, and mission suggests, our Foundation is built on “building better childhoods”. It is our hope to
extend such support to patient families as they are integral and innate to a child’s well-being.
In closing, we would like to extend a sincere and special recognition to our past Board members who
have assisted with the MFCFNC’s development and guidance since its incorporation in June 2010:
Anne Proctor, President (2010-2012)
Rose Silver, Vice President (2010-2011)
Bob Opp, Director (2012)
With warm appreciation and thoughts,
Building
better
childhoods
Rodrigo B. Galindo Jr., MSc
President and CEO
The Medically Fragile Children’s Foundation
of Northern California
∞ Page 1 ∞
Our Mission and Philosophy
The mission of The Medically Fragile Children’s Foundation of Northern
California (MFCFNC) is to serve children (up to 21 years of age), who
require medical technology and intervention to sustain life, and connect
them with the innate experiences associated with growing up, just as
their peers without such limitations experience. The MFCFNC supports
children who reside in Santa Clara County and are consumers of
Medi-Cal’s “pediatric subacute care”/ “pediatric day health center”
programs or similar services. We aim to uphold our mission through a
five-point BUILD philosophy:
Boosting community awareness and support of each child’s
unique spirit and needs regardless of disability, ethnicity,
socioeconomic status, and/or religion
Utilizing funds and resources to support childhood experiences
and life-enhancing equipment that are not normally expected to
be covered by a hospital / center and being financially
accountable by maintaining transparency to all stakeholders
Improving quality of life by making typical childhood experiences
more accessible: engaging in hobbies, celebrating life events
(milestone birthdays, graduations), and recreating (going to
concerts/movies, sporting events, the park, the mall, etc)
Limiting barriers that impede a child’s ability to live as normal as
a life possible
Decreasing financial burden associated with a child’s disability
and illness on the family.
∞ Page 2 ∞
Our Team
Team
Our
The Medically Fragile Children’s Foundation of Northern California: Board of Directors
Rodrigo B. Galindo Jr., MSc
President and CEO
Rodrigo has 14 years of direct and managerial experience in working with children
with physical and developmental disabilities in the development, execution, and
evaluation of programs in recreation, day/residential camps, and healthcare
settings. He actively volunteers in the community through various non-profits
including The American Red Cross, One Brick, Sacred Heart Community Service,
Second Harvest, Glide Memorial Church, and Habitat for Humanity. Rodrigo has
also piloted several programs involving connecting pediatric patients to day and
residential (overnight) camping experiences. For the last 13 years, Rodrigo has
supported the information technology needs of patients and staff at Children's
Recovery Center, Subacute Saratoga Children's Hospital, and Scribbles and Giggles
Pediatric Day Health Center. He also helps out as a rehab aide with Children’s
Recovery Center. Rodrigo holds an MSc in Physiotherapy (2010) from The Robert
Gordon University in Aberdeen, Scotland and a BS in Kinesiology (emphasis in
adapted physical activity) (2005) from San José State University.
Lindsay Zarcone, BS
Vice President
Being the daughter of fellow board member, Michael Zarcone, Lindsay has spent
most of her life exposed to working with medically fragile children. Lindsay
graduated with a BS from Wingate University (2008). During this time, Lindsay
became a member of the Chi Omega Fraternity, a national fraternity whose
philanthropy is The Make A Wish Foundation, which raises money to grant wishes
to terminally ill children. Through philanthropic efforts, Lindsay helped play a key
role in raising enough money to grant a child’s wish. Lindsay has worked at
Subacute Saratoga Children’s Hospital over the years in several job capacities; in
September of 2008, she became the Activities Director and was fundamental to
enhancing the recreational and after-school educational programs for the children,
including the integration of offsite field trips to the mall, etc. In March 2013,
Lindsay transitioned into leadership and management and now serves in her new
role as Assistant to the CEO of Subacute Saratoga Children’s Hospital, Children’s
Recovery Center, and Scribbles and Giggles Pediatric Day Health Center.
Joi Walker, MBA
Secretary
Joi serves as community liaison for the Board and has been a part of the Bay Area
community for all of her life. She has served on non-profit Boards for the past 5
years, including one year as Chapter President of a professional association. She
has volunteered for Guide Dogs for the Blind, The Family Giving Tree, the Red
Cross, and Second Harvest. She works as a residential property manager in San
Jose and has an MBA from San José State University.
∞ Page 3 ∞
Our Team
The Medically Fragile Children’s Foundation of Northern California: Board of Directors
Kathy Nguyen, BS
Treasurer
Kathy Nguyen currently serves as the Chief Financial Officer for Children’s
Recovery Center, Subacute Saratoga Children’s Hospital, and Scribbles and Giggles
Pediatric Day Health Center. Kathy has worked with the organizations for over 10
years and has been fundamental to financial development, management, and
strategic planning. Kathy graduated from San José State University with a BS in
Accounting & Management Information System in 1999. She is married, has two
lovely kids, and actively volunteers at their elementary schools.
Demi Laupati, BSBM
Director
Demi has worked at Subacute Saratoga Children’s Hospital for 12 years. She
currently serves as Admissions Coordinator for Subacute Saratoga Children’s
Hospital and Children’s Recovery Center. Demi holds a bachelor degree in Business
Management and is currently working toward a Master’s Degree in Social Work at
San José State University.
Donna Walker, RN, BS
Director
Donna is an experienced pediatric nurse who has worked in Santa Clara County for
over 30 years. Donna served as a trustee and president for the San Jose City
College-Evergreen Community College District and as an administrative aide for
the San José City Council. Donna is currently the Director of Patient Care Services
at Children’s Recovery Center.
Michael Bays, Esq.
Legal Counsel, Director
Michael did his undergraduate work at the University of Michigan and received his
JD from Santa Clara University. Michael has been practicing law in Los Gatos for
over 30 years and specializes in tax, estate planning, and business law. Michael
donates a significant amount of time supporting non-profit organizations in Santa
Clara County.
∞ Page 4 ∞
Our Team
The Medically Fragile Children’s Foundation of Northern California: Board of Directors
Michael Zarcone, Pharm D., MS
Director
Mike has actively been in healthcare for over 40 years. Starting out at Stanford
Medical Center, he supervised the oncology/medicine pharmacy. In 1984, Mike left
Stanford to devote all his efforts as Chief Executive Officer, clinical pharmacist, and
business developer, expanding the scope of hospital pharmacy services to patients
at their homes and skilled nursing facilities through Stanford HTS. After the sale of
Stanford HTS, Mike purchased a small skilled nursing facility in 1987, called Saratoga
Place, which soon became one of the first totally dedicated "subacute" hospitals in
California. In 1993, Mike and his staff were instrumental in passing statewide
legislation (AB 36) called the “pediatric subacute (pedisubacute)” program. Saratoga
place was then renamed to Subacute Saratoga Hospital. In order to further support
parents in keeping their medically fragile child at home, Mike also started
California’s first “Pediatric Day Health Center (PDHC)”, Scribbles and Giggles, thus
avoiding institutional stays. The PDHC program has grown statewide, which Mike
finally got Medi-Cal coverage for. In 1998, Mike opened a second hospital,
Children’s Recovery Center, geared more towards the technology-dependent infant.
Mike has served on many boards, with the most recent appointment to the San
Andreas Regional Center (SARC), and remains a community advocate for children.
For his remarkable philanthropic work and advocacy, Mike was formally recognized
with resolutions from the Cities of Campbell and Saratoga, California Association of
Health Facilities (CAHF), SARC, and The State of California Assembly in 2012.
Pamela Bonnacorso, BA, MA
Director
Pamela has worked in the educational and high tech field for over 30 years. She is
currently employed as Activities Director at Scribbles and Giggles Pediatric Day
Health Center and Activities Instructor at Subacute Saratoga Children’s Hospital. In
addition to her roles, Pamela has specialized training in Canine Therapy using her
service facility dog, Delta. Together, they work as a team with the children to
increase socialization and learning skills. Their work fosters independence, joy, and
healing. In her free time, Pamela is actively involved in the community and
volunteers for Canine Companion s for Independence (CCI), The Taylor Foundation,
Children’s Cancer Research, and Special Olympics.
Sabrina Shepard, RN, BA, CPhT.
Director
Sabrina has served as Director of Nurses for a home infusion company and has
taught pharmacy technicians in a secondary post education setting. Sabrina has
served as an advisor for the Young Buddhist’s Association, the Bay District Buddhist
Women’s Association, and Oakland Buddhist Church Board of Directors. Sabrina has
enjoyed being Secretary for MFCFNC for the past two years. Sabrina currently
serves as the Director of Staff Development at Children’s Recovery Center.
∞ Page 5 ∞
Our Impact
2010
Incorporation
In June, the MFCFNC became incorporated by the California
Secretary of State.
Children’s Recovery Center: Snoezelen Room
Melinda and Barrett Adams, in the memory of their beautiful
daughter, Trinity, spearheaded fundraising efforts to install a
sensory-motor room, which provides an enhanced audio, visual,
and tactile experiences, at Children’s Recovery Center. In
collaboration with the rehab team, the Snozelen room was fitted
with adaptive equipment and padding.
Christmas in the Park – San Jose
Medically fragile children helped handmake decorations for
participation in Downtown San Jose’s Christmas in the Park.
2011
Diana’s Quinceañera
A quinceañera, celebrating the 15th birthday of a female patient,
was held in a hospital parking lot.
Apple iPads® for SNG
Two iPads® purchased for patient use at Scribbles and Giggles.
Sunshade Equipment Installation
Shade for playground installed to protect patients.
Subacute Saratoga Children’s Hospital: Clothing Donation
Due to physical development and wear and tear, $500 worth of
clothes purchased for children.
Rehab Department Improvement
One iPad® and enhanced therapy equipment purchased.
Christmas in the Park – San Jose
Medically fragile children helped handmake decorations for
participation in Downtown San Jose’s Christmas in the Park.
∞ Page 6 ∞
Our Impact
2012
Hushamok® Baby Hammock
Purchase of a Hushamok® baby hammock for Children’s
Recovery Center.
Oakland Raiders® NFL Game Field Trip
A 17-year old patient got to attend a two Raiders NFL games at
the Oakland Coliseum.
Tomato chairs
Two specialized chairs for patient positioning relief donated to
Scribbles and Giggles Pediatric Day Health Center.
Scribbles and Giggles Pediatric Day Health Center: Field Trip to
Pumpkin Patch
10 program participants attended a field trip to a local
pumpkin patch.
Fish Tank
A 100-gallon fish tank lease for 1 year for patients/family at
Children’s Recovery Center.
Christmas in the Park – San Jose
Medically fragile children helped handmake decorations for
participation in Downtown San Jose’s Christmas in the Park.
Field Trip to Westgate Mall
Westgate Mall field trip for 10 children. For several kids, it was
their first time in a public setting of this scale.
∞ Page 7 ∞
Our Highlights
“It was the best day of my whole life.”
-Diana
For her 15th birthday, Diana celebrated her
quinceañera, a recognized right of passage
into womanhood for a girl of Mexican
heritage. Supported by over 33 community
businesses and individual donors, over 300
people (family, friends, and the public)
joined Diana in celebrating this milestone
birthday. The torrential rain did not dampen
anyone’s spirits on this unforgettable day.
”Thank you…
It was a blast
and I will always
remember it.”
-Bobby
Through generous
community
support, Bobby
attended 2 Raiders
NFL games, got to
join The Raider
Nation, and cheer
on his favorite
team.
∞ Page 8 ∞
Our Highlights
“The kids had a
blast!” –Pamela
Ten children from
Scribbles and
Giggles took a field
trip to a local
pumpkin patch.
New Aquatic
Friends…
A 100-gallon tank
and associated
services were
donated for a
duration of 1 year
for patients at
Children’s Recovery
Center. about CRC
Fish Tank
∞ Page 9 ∞
Our Highlights
Dedication and opening of Angel Trinity’s Snoezelen Room
On behalf of the MFCFNC, Michael Zarcone dedicated a multisensory
stimulation room, in celebration of the life of Trinity Adams, at
Children’s Recovery Center. Spearheading the funding efforts, Melinda
Adams and her family graciously cut the ribbon and officially opened
this incredible room, which allows patients the opportunity to
uniquely experience and engage their surroundings; all adaptations
collectively accentuate visual, auditory, tactile, and proprioceptive
sensory input for each patient.
∞ Page 10 ∞
Our Accountability
Revenue
2010
2011
2012
Individual Donations
9,762.20
1,836.11
980.85
Corporate Donations
1,500.00
479.50
0
Restricted Donations
0
33,504.07
6,940.00
Unrestricted Donations
0
0
0
11,262.20
35,819.68
7,920.85
N/A
24,557.48
(27,898.83)
2010
2011
2012
Staff Salaries
0
0
0
Operations / Marketing
0
0
0
Government Fees
0
0
0
12.00
25.00
267.00
Restricted Funds
6,218.35
20,609.14
7,208.56
Totals
6,230.35
20,634.14
7,475.56
N/A
15,185.54
(13.158.58)
Totals
Net Change
(from previous year)
Expenses
Other
Net Change
(from previous year)
∞ Page 11 ∞
Our Accountability
Budget:
Projected Revenue
2013
Individual Donations
2,000.00
Corporate Donations
5,000.00
Totals
7,000.00
Net Change
(from previous year)
34,898.83
Budget:
Projected Expenses
2013
Staff Salaries
0
Operations / Marketing
750.00
Government Fees
50.00
Field Trips
10,000.00
Special Events
15,000.00
Other (accommodation, equipment, etc.)
1,000.00
Totals
26,800.00
Net Change
(from previous year)
19,324.44
Note:
As stated, these numbers are anticipated estimates. Accordingly, actual expenses will be
based off of actual revenue.
∞ Page 12 ∞
Our Goals
We hope to enable more efforts that support building better childhoods…
$50
A Book on Tape®
$50
A birthday cake
$400
Full support of a child
on a ventilator
for a 10-hour day field trip
$50
$100
Gas card for remote
1 Night stay in hotel
family to visit child for remote family to stay
locally near child
$1500
Full support of a child
on a ventilator for an
overnight camping trip
$2000
Portable suction machine
and 5-hour ventilator
battery pack, exclusively for
use on outings
Note: These costs fall within the MFCFNC’s mission as they items that are not “normally”
covered under a hospital / center budget. Associated medical equipment designated
specifically for outings would significantly reduce the wear and tear on equipment that
children use as part of their hospital / center stay.
∞ Page 13 ∞
Our Thanks
The MFCFNC would like to recognize and express its most sincere gratitude and
appreciation for the community support (healthcare professionals, donors, and
the public) of our initiatives. Due to the financial support of individual and
corporate donors, we have been able to grow and directly and indirectly help
improve the quality of childhood for over 60 children with special and medical
needs. With your help, we hope to expand our support to impact the families of
children with such needs.
Note:
The associated brands/products mentioned in this publication are property of their respective
owners/companies. Profile pictures of Board members courtesy of Wing Hon Films
(http://www.winghonfilms.com). The rest of the pictures were generously provided by
respective photographers.
∞ Page 14 ∞
Building
better
childhoods
©2013
The Medically Fragile Children’s Foundation of Northern California
13425 Sousa Lane, Saratoga, CA 95070
phone/fax: 408.916.4900 • email: [email protected] • web: www.mfcfnc.org
Tax ID: 27-2776595 • 501(c)(3) (pending)