May 2008 Name of Organization Address Line Phone Number Caregiver Assistance News “C a r i n g f o r y o u … c a r i n g f o r o t h e r s ” Coping With COPD (Chronic Obstructive Pulmonary Disease) Sick Lungs Don't Show Adapted from The Comfort of Home: Caregiver Series, © 2008 CareTrust Publications. www.comfortofhome.com Emphysema Healthy Air Sacs Chronic Obstructive Pulmonary Disease (COPD) is long-term blockage of air movement in the lungs. It includes emphysema and chronic bronchitis. Think of the lungs like an upside down tree, with the windpipe (trachea) being the trunk, the bronchial tubes the branches and the air sacs as the leaves. Because there are millions of these tiny air sacs, a lot of damage can be done before a person notices breathing problems. Because oxygen moves into the bloodstream through these tiny air sacs, when they are damaged we cannot get enough oxygen into our body. A person with COPD may have either emphysema or bronchitis, but most people with COPD have both. Some may also have symptoms similar to asthma. In emphysema, there is damage to the walls of the air sacs in the lungs that prevents transfer of oxygen into the bloodstream. The lungs lose their ability to stretch, producing shortness of breath during activity. In chronic bronchitis the damage is in the breathing tubes (bronchial tubes), which become inflamed and swollen and produce large amounts of mucus, making it difficult to get air in and out of the lungs. Causes of COPD The most common cause of COPD is cigarette smoking. Other causes: • Breathing in dust, chemicals and coal dust or silica at work • Indoor air pollution from cooking fuels and heating in poorly ventilated homes • Secondhand smoke • Childhood lung infections • About 2% of cases are inherited Symptoms of COPD The first symptom of COPD is usually coughing that produces mucus, followed by shortness of breath after activities such as climbing the stairs. As breathing difficulties worsen, people with COPD may eventually get tired dressing and bathing, lose the ability to concentrate, and put strain on their heart because their lungs are not processing enough oxygen, causing swollen feet, ankles and legs. Healthy Bronchial Tubes Clogged Bronchial Tubes Care gi v er A ssistan c e N ewsl ett e r May 2008 Continued from page 1 Quit Smoking! If the person in your care is still smoking, the most important thing they can do is STOP SMOKING. Slow Down People with lung disease may be affected by irritating substances in the air, or they may have allergies to pollen. Inside or outside of the home they should always avoid dust, smoke, fumes from wood- or coal-burning stoves, and strong odors. People highly allergic to mold may have trouble breathing if exposed to it. People with COPD need to conserve their energy so they don’t become exhausted. Here are a few tips for doing that: • Take it easy; move slowly. • Sit while doing chores or other activities. • Avoid lifting and bending; keep household items within easy reach. • Rest after eating. • Use a cart with wheels to carry things. • Use a shower stool and hose sprayer in the bathtub. Stress Relief Keeping the Airways Clear Avoid Air Pollution and Pollen Stress can make breathing more difficult. When people have trouble breathing, they may become anxious, which can make breathing even more of a problem. Relaxation techniques such as meditation, or tensing and relaxing muscle groups are very helpful. © 2008 CareTrust Publications Fast Facts ✔Every 4 minutes someone dies of COPD in the U.S. ✔ COPD is the 4th leading cause of death, but will be the third leading cause of death by 2020. ✔ 12 million individuals have been diagnosed with COPD and 12 million are symptomatic or developing COPD. Source: COPD Foundation, www.copdfoundation.org Ask the doctor or therapist about these methods to help clear the lungs of mucus: • Diaphragmatic breathing and huff coughing. • Special positioning—called postural drainage or bronchial drainage uses gravity to drain mucus from the smaller to the larger airways where it can be coughed out. • Rhythmic clapping with cupped hands on the chest, back and ribs can be done while the person is positioned for airway clearance. Ask your doctor or therapist. • Drinking enough caffeine- and alcohol-free fluids every day helps keep the mucus thin. Source: The Comfort of Home for Chronic Lung Disease. www.comfortofhome.com. Care gi v er A ssistan ce Ne wsl ett er May 2008 Taking Care of Yourself Strategies for Eating Less • Eat protein for breakfast. Studies show you will eat fewer calories during the rest of the day. • Climb a flight of stairs to reach snacks. Put your favorite soda in a basement fridge. • Sleep on it. People who don’t get their eight hours of sleep experience hormonal fluctuations that increase appetite. • Don’t heap food on your plate. At a restaurant, ask the waiter to pack half your meal before serving it. Eat it the next day. • Shed light on the subject. You consume fewer calories at a well-lit restaurant table than in a dark corner. • Talk more, eat less. Entertaining friends with a story doesn’t give you much time to eat. Live Life Laughing! You aren’t going top light that filthy thing in here are you? • Don’t eat on the run. Sit down to snack—and use utensils and a plate—you’ll eat fewer calories. • Start with soup. Start lunch with about 130 calories of vegetable soup. • Too many choices are bad. Packages with assorted varieties of food make you want to try all the flavors. When people are given 10 colors of M&Ms, not seven, they eat 30% more! Source: www.RealAge.com Inspiration Some pursue happiness, others create it. Resource for You COPD Digest For reliable information on COPD, get a free subscription to COPD Digest at www.copddigest.org. Better Breathers Clubs (Part of the American Lung Association) www.lungusa.org. For club information, click on “diseases” then “Services and Support.” © 2008 CareTrust Publications COPD Foundation (866) 316-COPD (2673) www.copdfoundation.org Free educational materials, zinformation, and support are available through the COPD Information Line and COPD Digest. Flu and Pneumonia Our Purpose To provide caregivers with critical information enabling them to do their job with confidence, pride, and competence. Ordering Info From the publishers of Caregiver Series available from… CareTrust Publications LLC PO Box 10283, Portland, OR 97296 800-565-1533 or www.comfortofhome.com Comments and suggestions welcome. ©2008 CareTrust Publications LLC. All rights reserved. Reproduction of any component of this publication is forbidden without a license from the publisher. Some content in this publication is excerpted from The Comfort of Home: Caregivers Series. It is for informational use and not health advice. It is not meant to replace medical care but to supplement it. The publisher assumes no liability with respect to the accuracy, completeness or application of information presented or the reader’s misunderstanding of the text. Many people with lung disease become sick during flu season, and the flu can lead to pneumonia. People with lung disease and their caregivers should always: • Stay away from other people with colds or flu. • Wash hands often and clean the telephone with antibacterial soap. •Get a flu shot (pneumonia shots are also available). •Go to the doctor as soon as they come down with the flu or a cold. Inspiration Fear less, hope more. Eat less, chew more. Talk less, say more. Love more, and all good things will be yours. ~Swedish Proverb Resource for You The Eldercare Locator offers a free national Web service that provides an instant connection to resources to help seniors live independently. Call Eldercare Locator at 800.677.1116 or visit www.eldercare.gov Source: The National Association of Area Agencies on Aging N E X T I S S U E … k eep t h at infection fro m startin g COPD—May 2008 Caregiver Assistance News “C a r i n g f o r y o u … Q u i c k c a r i n g f o r o t h e r s ” Q u i z © 2008 CareTrust Publications 1. Most people with Chronic Obstructive Pulmonary Disease have both emphysema and chronic bronchitis. TF 2. Most COPD is inherited. TF 3. “Postural drainage” or “bronchial drainage” uses gravity to drain mucus from the smaller to the larger airways where it can be coughed out. TF 4. Mold generally doesn’t bother people with COPD. TF 5. Relaxation techniques such as meditation, or tensing and relaxing muscle groups are very helpful in relieving the stress that accompanies shortness of breath. TF 6. Jumping up and down is the best way to loosen mucus in bronchial tubes. TF 7. Cigarette smoking is the leading cause of COPD. TF 8. The first symptom of COPD is usually coughing that produces mucus, followed by shortness of breath after activities such as climbing the stairs. TF 9. People with COPD may eventually get tired dressing and bathing, lose the ability to concentrate, and put strain on their heart because their lungs are not processing enough oxygen. TF 10. People with lung disease and their caregivers should always stay away from other people with colds or flu. TF Name ________________________________________ Signature_____________________________________Date_________________________ Answers: 1-T; 2-F; 3-T; 4-F; 5-T; 6-F; 7-T; 8-T; 9-T; 10-T Chronic lung disease is very common and difficult for the caregiver and patient. Read this issue and answer True/False to questions below.
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