EvaluationofMusicandMemoryProgram WhitePaper October,2016 UniversityofWisconsin‐Milwaukee HelenBaderSchoolofSocialWelfare& CenterforAgingandTranslationalResearch Authors: JungKwak,MSW,PhD KatharineO’ConnellValuch,MA Withthanksto:MichaelBrondino,PhD;HollyNeuman, WhitneyWelch,HotakaMaeda,ChrisCho,SheilaFeay‐ Shaw,MatthewRichie,JohnFennimore,Priscilla Kennedy,andSamanthaRatzlafffortheircontributionsto theproject. Thisevaluationwasfundedbythefollowing: ClaudePepperCenter,FloridaStateUniversity BaderPhilanthropies MyChoice,FamilyCare WisconsinDepartmentofHealthServices Copyright©2016,JungKwak,PhDandKatharine O’ConnellValuch,MA Allrightsreserved.Nopartofthisworkmaybe reproducedorcopiedinanyformorbyanymeans— graphic,electronic,ormechanical,including photocopying,recording,taping,Internetorinformation storageandretrievalsystems—withoutthewritten permissionofJungKwak,PhD.andKatharineO’Connell Valuch,MA JungKwak|UWM.EDU/SOCIALWELFARE/ TABLEOFCONTENTS ExecutiveSummary.....................................................................................................................1 Background.....................................................................................................................................4 KeyFindingsFromtheEvaluation.....................................................................................10 Recommendations.....................................................................................................................20 References.....................................................................................................................................28 Appendix........................................................................................................................................31 JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 1 EXECUTIVESUMMARY WHYWEEVALUATEDMUSIC&MEMORYPROGRAM The Music and Memory (M&M) program has been increasingly adopted in nursing homes across the U.S. to support persons with dementia. M&M uses personalized music playlists delivered on digital music players set up and maintainedbycarestafftrainedintheprogram(MusicandMemory,2013).The underlying premise of M&M is that these musical favorites tap into deep memories not lost to dementia, thereby facilitating resident communication, engagement, and socialization. However, few rigorous evaluations of this popularnon‐pharmacologicalternativehavebeenconducted. Asapartofongoingeffortsatimprovingdementiacare,theStateofWisconsin decided to implement statewide the Music and Memory program as a non‐ medicationbasedmethodthatmay:(1)reducetheratesofnegativebehaviors typicallytargetedbymedication,therebyreducingtheneedformedication,and (2)improvethequalityoflifeofpersonswithdementiabyprovidingaccessto anactivityenjoyedbythepersonsusingit.In2014,theWisconsinDepartment ofHealthServices(WIDHS)awardedagranttotheUniversityofWisconsin‐ MilwaukeetoevaluatetheeffectoftheMusic&Memory(M&M)programon outcomes for residents, staff, and family caregivers from nursing homes participatinginthestatewideM&Mprograminitiative.Withadditionalfunding support from Claude Pepper Center, Florida State University, Bader Philanthropies,andMyChoice,FamilyCare,theUWMresearchteamconducted comprehensiveevaluationoftheM&Mprogrambetween2014and2016. TheM&Mevaluationhadmultiplepartsincluding:(1)acrossoverstudywith 59 nursing home residents with dementia from 10 Wisconsin nursing home facilities;(2)apre‐andpost‐surveyonmedicationuseamong1,500residents who received M&M in 100 facilities participating in Phase 1 of the M&M statewide initiative; (3) a secondary data analysis of the Minimum Data Set (MDS) to compare nursing home resident outcomes between facilities that JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 2 participated in the M&M at different time points; and (4) a key informant survey with administrators of Wisconsin nursing home facilities about implementationandsustainabilityofM&M. WHATWEFOUND Someimportantmethodologicallimitationsoftheevaluationnotwithstanding, resultsfromallcomponentsoftheevaluationleadtoasimilarconclusion,that is, M&M had no or minimal effect on nursing home resident behavioral outcomes,andverymodesteffectonpsychotropicmedicationuse.However, many facilities viewed the M&M program as valuable, noting improvements observedinresidentssuchasenjoymentandimprovedmoodwithcaveatsthat neithertheM&Mprogram(ormusic),norusingheadphonesoriPods,workfor everyone. SeveralM&Mprogramimplementationrelatedissueswerealsofound,which provideatleastsomepartialexplanationforminimaleffectivenessoftheM&M program found in the evaluation. There was considerable variability in the ratesatwhichtheiPodswereusedacrossresidentsandacrossfacilitieswith theratesatmostfacilitiesbeinglow.Inotherwords,manyresidentswerenot receiving M&M for long or often enough for the program to have sufficient effect. SeveralkeybarrierstoconsistentlyandeffectivelydeliveringM&Mfortarget residentswerealsofound.Theyincludealackofbuy‐infromalllevelsofcare staff and management and a lack of or limited time available to staff to implement and maintain the program. For many busy direct care staff, developing the individualized playlist for each resident was quite time consuming.Otherbarriersincludeddifficultiesinunderstandingtheoperation ofthemusicdevices,issuesinidentifyinganaccessibleandsecurelocationfor storageandcharging,problemsunderstandinghowthedevicesinterfacedwith computers,andissuesassociatedwiththecostsofreplacingbrokenequipment, purchasingadditionalnewequipmentandpurchasingnewsongs. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 3 WHATWERECOMMEND Together,thefindingsfromtheevaluationofM&Mandpastresearchonmusic anddementiasuggestthatseveralimprovementscanbemadetoimprovethe program implementation fidelity, efficacy and sustainability. Recommendations to improve the program efficacy include: (1) select individualswhoaremostlikelytobenefitfromM&M;(2)assess,identifyand setspecificgoalsfortheM&Mintervention;(3)developindividualizedplaylists andlisteningschedulestailoredtoeachindividualperson;and(4)implement asystemicprocessevaluationoftheM&MprogramandincorporateM&Minto aformalcareplanningprocess. Recommendations to enhance sustainability of the program include: (1) increase buy‐in from all involved in the process; and (2) develop and test training programs for volunteers such as students to implement the M&M program.Buy‐inmaybeincreasedbyhelpingstafftorecognizeanypositive impacts of M&M on residents. Another way to facilitate buy‐in would be to approach M&M like other care interventions or programs that require a systematic approach to assess, develop the playlist, deliver and monitor consistently. To make this possible, offering incentives or education and training among direct care will be important for integrating M&M into care plans. To help facilities develop individualized playlists, which can be quite timeconsumingandasignificantbarrierfortheprogramtobesustainedover time,futureeffortsshouldfocusondevelopingstrategiestoinvolveandtrain residents’ families as well as volunteers to develop playlists and deliver the musicwillhelpreduceburdenondirectcarestaff. Inconclusion,theliteratureconcerningtheuseofmusic‐basedinterventions with persons with dementia suggests that there is the potential for such interventions to provide pleasure and aid in the remediation of undesirable behavioralsymptoms.ThereislittlereasontobelievethattheM&Mprogram cannotachievegreaterimpactifcarefullyimplemented. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 4 BACKGROUND DEMENTIAANDAGITATION In2014,morethanfivemillionAmericans,nearly1ofevery9olderAmericans, were diagnosed with Alzheimer’s disease or another form of dementia 1. In casesofAlzheimer’s,themostcommonformofdementia,impairmentsoccur incognitiveability,memory,language,reasoning,andjudgment. Up to 90 percent of persons with dementia (PWDs) experience secondary behavioral or psychological symptoms, which become more prevalent in advanced stages2,3. Among nursing home residents with dementia, secondary behavioral symptoms affect 75% of those with dementia4, with the most frequent problems being apathy (36%), depression (32%), and agitation/aggression(30%)4. TheseproblemsarechallenginganddistressingtonotonlyPWDsbutalsoto family and professional caregivers, and are often cited as the key reason for institutionalization6‐10.Thesebehavioralsymptomsarefurtherassociatedwith care‐related stress by staff and increased costs of care in the nursing home environment. TREATMENTAPPROACHESTOAGITATION A common approach to managing these symptoms, especially in nursing homes,istheuseofpsychotropicmedication.Oneestimatesuggeststhat33% JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 5 of residents with dementia receive such medication11. However, given the evidence for limited efficacy and serious potential side effects of pharmacologicaltreatments,therehasbeenanincreasingefforttodevelopand implement non‐pharmacological interventions to address the behaviors targetedbymedications. Approaches to reduce agitation and improvemoodincludestaff/caregiver education and training; structured activities; stimulation‐oriented treatments such as recreational activities; and therapies involving music, art, pets or programs that increase the number of pleasurable activities21,22. The risks associated with these non‐pharmacologic treatments, such as increased agitation for some residents, are less frequent and severe than those risks associated with anti‐psychotic medications(e.g.,mortality)7. One of the increasingly popular approaches being adopted in nursing home facilities is to use music, individualizedmusiclistening(IML)programsinparticular,andtheMusicand Memory(M&M)programisanexampleofIML. POTENTIALBENEFITSOFINDIVIDUALIZEDMUSICLISTENING Individualizedmusiclistening(IML)isapassivetypeofmusicinterventionthat involvesPWDslisteningtotheirpreferredmusicwiththegoalsofpromoting relaxationandenhancingtheemotionalstate.IMLprogramssuchasMusic& Memoryareincreasinglyusedinlong‐termcarefacilitiesbecauseoftheirlow costofimplementationandeaseofdelivery. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 6 Indeed,IMLhasthepotentialtoimprovequalityoflifeamongPWDsandthe carepracticesofdirectcarestaff.Theliteratureonqualityoflifeanddementia documents the clinical benefits of increasing pleasant events in treating depression and improving quality of life.4 The neuroscience literature also supports the conclusion that music enable PWDs to retrieve memories, and elicitpositiveemotions.5Studieshavereportedthatpeoplewithmoderateto severe dementia24 are able to correctly perceive the pitch and melody of music25‐27, recognize the titles of familiar songs28 and also recall familiar lyrics29.Preferredmusiclisteningmayhaveimportanttherapeuticbenefits. IMLsbasedonthePWD’sautobiographicalmemoryandmusicalpreferences can function as a pleasant sensory stimulation that helps trigger retrieval of pleasant memories, shifts attention away from stressful environmental stimuli, increases attention, improves mood, and reducesagitation.Asa result of observing such positive behavioral changes, direct care staff relationshipswithandattitudestowardsPWDscanimprove,whicharecentral toPWDs’qualityoflife.6 EVIDENCEBASEFORIML Despitethesubstantialbodyofliteratureconcerningthetherapeuticeffectsof music, surprisingly few rigorous empirical studies are available to date that JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 7 tested the efficacy of IML in reducing behavioral problems associated with dementia. Acomprehensivereviewofempiricalresearchonmusictherapyorlistening programswithPWDsbyVink,Bruinsma,Scholten33foundonlytenrandomized controlledtrials(RCTs)thatmettheirselectioncriteriaforrigorousresearch design.Thisreviewwasbuiltontwopreviousliteraturereviewsonthesame topic, and three reviews together identified over 500 published articles that hadreferencetomusictherapyanddementia.Only10studieswereRCTsthat mettheirreviewcriteria.Moreover,onlythreeofthetenstudiesexaminedthe effectsofIML34,35.Sincethepublicationofthe2011reviewbyVink,onlyone studybySakamoto,Ando,Tsutou36waspublishedwhichutilizedanRCTdesign toexaminetheeffectofIML.Overall,thecombinedevidencefromtheseeleven studies support that the claim that IML and active group music therapy are moreeffectivethannointerventioninreducingagitationandaggression33,36. MethodologicallimitationsofthesmallnumberofRCTs,however,precluded definitiveconclusionsregardingefficacyofIML. Thelimitedevidence‐basethatiscomprisedofrelativelyolderstudiesonIML programsmotivatedtheevaluationofM&MbytheresearchteamatUniversity ofWisconsin‐Milwaukee(UWM),whichisdescribedinthiswhitepaper. THISEVALUATIONISONEOFTHEFIRSTLARGE,COMPREHENSIVE EVALUATIONSOFANIMLPROGRAM: MUSIC&MEMORY(M&M) JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 8 MUSIC&MEMORY M&M Todate,Music&Memory(M&M)hasbeenadopted in over 1,000 nursing homes in the U.S. alone to supportpersonswithdementia37.Theprogramuses personalized music playlists delivered on iPods or other digital devices which are set up by care staff whoaretrainedintheprogram37. According to the resources and training materials available on the M&M website, M&M defines the “individualized”musicplaylistfollowingGerdner35, whostatedthat:“[Individualizedmusic]isdefinedas musicthathasbeenintegratedintotheperson’slife and is based on personal preference. The musical selectionmusthavespecificmeaningtotheperson’s life”(p.51). The M&M program emphasizes creating a playlist based on music that has personal meaning. The program suggests that persons with dementia or familymembersarethebestsourceforidentifying an individual’s music preferences and songs significant to that person’s life experience. The program also suggests that in case a person is no longer communicative and family members have little information about their relative’s music preferences,caregiverscanplaymusicpopularfrom the time the individual was a child or young adult, including music played on the radio or in popular televisionshows,andjudgewhatispreferredbased ontheindividual’sreactiontothemusic. JungKwak|UWM.EDU/SOCIALWELFARE/ TheMusic& Memoryprogram wasdevelopedby DanCohen,who wentontocreate theMusic& Memorynon‐profit organizationin 2010.More informationabout theprogramcanbe foundontheir website: musicandmemory.org UniversityofWisconsin‐Milwaukee 9 ImplementingM&M(fromHowtoCreateaPersonalizedPlaylistforYourLoved OneatHome37)includesthefollowingsteps: 1. 2. 3. Createaregularschedule/systemfordeliveringindividualizedplaylists such as “three 30‐minute listening sessions—morning, afternoon and evening”. Deliverthemusicatcertaintimesthroughouttheday(butthemanual does not specify when). For persons with Alzheimer’s disease, the manual emphasizes that “timing is very important. You can greatly reduceorheadoffagitationbyplayingmusictodistractandcalm”. If an individual becomes more agitated while listening to music, try changingthemusicselection. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 10 KEYFINDINGSFROMTHEEVALUATION OVERVIEWOFTHEEVALUATION ThestatewideinitiativetoimplementM&MinWisconsinbeganinJuly2013 when the Wisconsin Department of Health Services began soliciting applicationsforparticipationinPhaseIoftheinitiative.TrainingintheM&M programwasconductedinOctober2013withthe100nursinghomesthatwere selected from the applicant homes to participate in Phase I of the initiative. Equipment for the M&M program was distributed to nursing homes starting December 2013 after the nursing homes completed the Resident Selection Survey.Therewerethreephasesofthestatewideimplementation:2014asthe implementation year for Phase 1, 2015 forPhase2,and2016forPhase3. The M&M evaluation by the UWM research team had four parts. The first study was conducted using a crossover study design with 59 nursing home residents with dementia from 10 Wisconsin nursing home facilities from Phase 1. The second study was a pre‐ and post‐ survey on medication use among 1,500 residents who received M&M in 100 facilities participating in Phase1oftheM&Mstatewideinitiative.Thethirdstudywasasecondarydata analysis of the Minimum Data Set (MDS) to compare nursing home resident outcomesbetweenfacilitiesthatparticipatedinM&Matdifferentphasesofthe initiative,Phase1,Phase2,andPhase3.Thelaststudywasakeyinformant surveywithadministratorsofWisconsinnursinghomefacilitiesaboutpositive aspects and challenges in implementing and sustaining the program, and recommendationstoaddresschallengesorbarriers. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 11 OVERALLEFFECTIVENESSOFM&MINIMPROVINGRESIDENTOUTCOMES Theresultsfromthecrossoverstudysuggestthat,contrarytoourexpectations, theM&Mprogramhadlittleornoeffectonimprovingresidentoutcomesinthe areas of cognition, memory, agitation, mood, movement and medication use. Forexample,duringthefirst8weeksofthecrossoverstudy,residentsreceiving M&Mshowedimprovementinagitationandotherbehavioralsymptomswhile thecontrolgroupwithoutM&Mdidnot.Thesedifferences,however,werenot statistically significant and disappeared over time (see Figures 1 & 2). The analysisoftheMDSdataonnursinghomeresidentsfurthersupportthemain findingsfromthecrossoverstudy,thattherewerenostatisticallysignificant differences in resident outcomes, behavioral problems, communication, Figure1.Selectfindingsfromthecross‐overstudy. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 12 Figure2.Selectfindingsfromthecross‐overstudy. mobility,andmood.TheMDSanalysis,whileshowingdecreasesinmedication use also indicted that the decreases were greater in the nursing homes not usingM&MrelativetothehomesthathadimplementedM&Mbetween2014 and 2015. The pre‐ and post‐survey findings suggest, however, that the implementation of the M&M program may have had a small effect on the reduction of the use of anti‐anxiety medications among residents who were selected to participate in the program. There are several possible methodologicalissuesrelatedtotheevaluationdesignandtheM&Mprogram related explanations for such findings. They include but are not limited to reliance on staff reports on key resident outcome measures, lack of JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 13 randomization(despitematching)intheMDSdataandpre‐andpost‐survey, andlackofrandomsamplinginpre‐andpost‐survey. M&MIMPLEMENTATIONFIDELITY Musiclisteningdatafromthecrossoverstudyand key informant survey with nursing home facilities data suggest there was either low fidelity to the guidelinesrecommendedbytheM&Mprogramor that the M&M guidelines are insufficient when comparedtotheevidence‐basedpracticeguidelines onindividualizedmusiclisteningprograms. KEY FIDELITY CONCERNS Thereweretwo keyconcernswith implementation fidelity: 1. Improper development ofplaylists 2. Inconsistent useof devices Two notable areas of low fidelity were: (1) improper development of the individualized playlist based on the principles of familiarity, and autobiography, and (2) inconsistent and targeted useofthedevices. The evaluation found that musical genre preferences varied considerably across residents although a few genres such at jazz, (then) contemporarypopandbigbandwerefairlyuniform across residents. This seems to show that efforts weremadetoincludeavarietyofmusicalchoices thatwouldrelatetothestudyparticipants.Further investigation of the specific pieces, however, showed that many would not have been used as listeningchoicesbyindividualsintheyearsbefore theonsetofdementiawhichiscriticalformemory connectivity.Songswithcopyrightinthepast10‐20 years which were found in music listening data would likely have limited familiarity before JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 14 progressionofthedisorder,dependingontheageofthesubject. Also,therewasconsiderable variabilityinthe ratesatwhich theiPods were used across residents and a similar pattern was found between the nursing homes themselves but with the rates at most facilities being low. Some residentshadafixedscheduleforM&Mdeliveryandsomehadvaryingtime dependingonthemoodoftheresidentaswellasavailabilityofstafftodeliver M&M.Lengthofthedeliveryvariedfrom15minutespersessiontounlimited time per session. To some extent, nursing home staff were attempting to provide M&M at times that would assist with curbing behavioral problems, howeverthedurationofM&Mdeliveryvariedconsiderably,anditisunclear howroutinelytheprogramimplementationguidelineswerefollowed. VALUEOFM&M The key informant survey with administrators of Wisconsin nursinghomefacilitieswasacross‐ sectional survey with a response rate of 40% from all Wisconsin nursinghomes.Themajorityofkey informant survey respondents valuedtheprogramandviewedthe M&Mprogramfavorably. Aspects of M&M that were valued includedeaseofuse,fitforhelping residents experience and maintain personhood, and better social interactions and engagement. Respondents noted that M&M had the effects of improving mood and enjoyment among residents if the programwasimplementedconsistently. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 15 SUBSETOFRESIDENTSMOSTLIKELYTOBENEFITFROMM&M The M&M program is intended to be used with individuals who have a past connectiontomusiclisteningintheirlives.CasestudiessuchasCuddy,Duffin 46andtheEDGEProjectinNewYork 49demonstratethatindividualswithan appreciation for, enjoyment of or experience with music have the strongest potential to benefit from this intervention. However, personal history of enjoying music may not always mean that the person with dementia would enjoy M&M. Anecdotally, the research team was told that some residents cherishedtheirtimelisteningandthatmorethanoneresidentwassaidtobe upsetanytimetheiPodsweretakenawayfromthem.Otherresidentsweresaid tohavelittleornointerestintheiruseortodisliketheiruseoutright.Asimilar observation was made by the majority of key informant survey respondents whoobservedthattheM&Mprogramormusicasatherapeuticformingeneral doesnotworkforeveryone.Moreover,wearingheadphonesdidnotworkfor someresidents,andinsteadspeakershadtobeusedforsomeresidents.Lastly, althoughreasonsarenotclear,MedicaidresidentsreceivingM&Mexperienced improvementsinoverallbehavioralproblemsandrejectionofcare. RESIDENTOUTCOMESM&MLIKELYTOIMPROVEMOST The overall evaluation results suggest minimal or modest effects of M&M in improving agitation, mood, and medication use. Still, the majority of key informant survey respondents valued the program. Respondents noted observing improved mood and enjoyment among residents, and emphasized thatthepersonalizednatureofthemusicwasthekeytoenjoyment,triggering memories,andimprovingmood.AlsonotedwerethecalmingeffectofM&M, and the positive effect of headphones blocking noise and allowing each individualresidenttolistentothemusictheyprefer. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 16 Therefore,M&Mappearstofunctionasapleasanteventtohaveatleastshort‐ term(i.e.,withinafewhoursoflisteningtomusic)effectsofelicitingpositive moodandrelievingboredomatleastamongresidentswhorespondtomusic positively.Indeed,theliteratureonqualityoflifeanddementiadocumentsthe clinical benefits of increasing pleasant events in treating depression and improvingqualityoflife.4Moreover,theneuroscienceliteraturesupportsthe effectsofmusicinenablingPWDstoretrievememories,andelicitingpositive emotions.5 Thus,iftheM&Mplaylistisdevelopedbasedontheresident’s autobiographicalmemoryandmusicalpreferences,anddeliveredto residentswhohavepastconnectionswithmusicandrespond positivelytolisteningtomusic,M&Mhasthepotentialtoincrease attention,improvemood,andreduceagitation,atleastforthe short‐term. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 17 EFFECTSOFM&MONFAMILYANDDIRECTCARESTAFFOUTCOMES Pre/postsurveyresultsfromthecrossoverstudygenerallydidnotindicateany significant changes in family satisfaction with care or relationship quality betweenthe family members and residents.Direct carestaff who completed both the pre‐ and post‐survey regarding feelings about their jobs and about workingwithresidentswithdementiadidnotindicateanysignificantchanges in those perceptions between the beginning and end of the data collection period(about14weeksinduration).Methodologicalissuessuchaserrorsor biasesinherentinsurveydatacollectedfromasmallnon‐randomsamplewith a low response rate may contribute to these results. Moreover, numerous factors are related to job satisfaction and burnout, and it is likely that other factorsexperiencedbytherespondents(suchaschangesinmanagement)have agreatereffectontheexaminedoutcomevariablesthanasingleintervention orprotocol. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee KEY BARRIERS Thereweretwokey barriersto implementation: 1. Lackofbuy‐in 2. Timerequired toimplement Adequately addressingthesetwo barrierscanincrease fidelityof implementation,as wellasrateof implementation. 18 BARRIERSANDCHALLENGESIN IMPLEMENTINGANDSUSTAININGM&MIN NURSINGHOMES Twokeybarrierstoconsistentlyandeffectively deliveringM&Mfortargetresidentswere:(1)a lack of buy‐in from all levels of care staff and management, and (2) a lack of or limited time availabletostafftoimplementandmaintainthe program. Lackofbuy‐inaffectedallstepsoftheprocessof implementing and maintaining the program. Although M&M is a relatively easy and simple programtoimplementcomparedtoothertype of music interventions, for many activity and directcarestaff,thetimecommitmentrequired isnotminimal.Forexample,developingatruly individualizedmusicplaylist doestaketimeto interview not only residents but also family members. In fact, key informant survey respondents reported identifying preferred songsasabarrierbecausenotallfamiliesknow and often residents are not communicative. Hence,therewillbetrialanderrortocreatean optimalplaylistanddeliveryschedule. Moreover,monitoringlisteningbytheresidents duringthedeliveryandattheendofsessionalso requires serious commitment on the part of staff. With residents located at different wings or floors with different direct care staff with varying schedules (and high turnover) in JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 19 nursinghomeenvironment,implementingM&Minawaythatwillmaximize therapeuticbenefitsandresultinconcreteresultsisnoteasy. Otherbarriersincludeddifficultiesinunderstandingtheoperationofthemusic devices,issuesinidentifyinganaccessibleandsecurelocationforstorageand charging,problemsunderstandinghowthedevicesinterfacedwithcomputers andissuesassociatedwiththecostsofreplacingbrokenequipment,purchasing additional new equipment and purchasing new songs. Respondents acknowledgedthegrantfromthestatetobeavaluableresourcetoinitiateand implementtheprogram.However,aremainingconcernwassustainabilityof the program‐ how they will continue the program for existing and new residentsasadditionalcostswillbeincurredtoreplaceexistingequipmentand buynewsongs. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 20 RECOMMENDATIONS (1) Selectindividualswhoare most likely to benefit from M&M; The overall findings from the evaluation of M&M and past research on music and dementia suggest that improvements could bemadetohowtheM&Mprogram is implemented and monitored to increase its impact on resident well‐being and quality of life. Theseare: (2) Assess, identify and set specific goals for the M&M intervention; 1. Select individuals who are mostlikelytobenefitfromM&M RECOMMENDATIONS TO IMPROVE THE EFFICACY OF M&M PROGRAM INCLUDE: (3) Develop individualized playlists and listening schedules tailored to each individualperson;and (4) Implement a systemic process evaluation of the M&M program and incorporate M&M into a formal care planning process. First consideration for placement of residents in music listening programslikeM&Mistoassessthe importance of music in the person’s background.48 Similarly, the M&M program is intended to beusedwithindividualswhohave a past connection to music listeningintheirlives. The Personal Music Assessment form, or something similarly designed at each facility could help understand the importance of music in resident’slives.Autobiographicalinformationaboutresidentsthatcanbetaken atthetimeofintakeincludebutnotlimitedtopersonalinterestsinlisteningto music, specific listings of favorite songs, key autobiographical events with a musicassociation,favoritegenresandartists,etc.Thisinformationcanbeused JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 21 toidentifypersonsappropriateforthistypeoflisteninginterventionandallow foramoreappropriatestructuringofplaylistsatafuturepointintime. Other additional considerations in selecting residents for the program are whether residents often experience agitation, enjoy listening to music, and can tolerate headphones being placed over their ears. Music listeningconditionscanbe altered to accommodate certainresidentssuchasa residentcanlistentomusic over speakers while in his or her room instead of using headphones. Residents without agitation may also enjoy listening to individualized musicplaylistsalthoughtheymaynothavethesamebehavioralproblemsthat theuseofM&Misintendedtoameliorate.Nevertheless,residentswhodonot enjoylisteningtomusicshouldnotparticipateintheprogram,asparticipation may increase anxiety or agitation symptoms and could increase problem behaviors. Therefore, monitoring of their response to the intervention is important.Whileabenefitofthisinterventionisa“lackofsideeffects” 50,the neurocognitiveconnectionsoutlineddohavethepotentialtoelicitnegativeas wellaspositiveconnections. Lastly, it is helpful to keep in mind that persons with different forms of dementia may react differently to music. For example, the study by Hsieh, JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 22 Hornberger,Piguet,Hodges51foundpersonswithAlzheimer’sdiseasearemore likely to maintain some ability to attach emotional meaning to facial expressions or music when listening to familiar music than persons with semantic. KEYCONSIDERATIONSINIDENTIFYINGAPPROPRIATERESIDENTSFOR M&MARE:WHETHERRESIDENTSHAVEAPPRECIATIONFORMUSIC LISTENING(I.E.,RESIDENTSHAVESPECIFICLISTOFFAVORITESONGS, GENRES,ANDARTISTSTHATAREASSOCIATEDWITHAUTOBIOGRAPHICAL EVENTS),HAVEAGITATIONTHATNEEDSTOBETREATED,ANDCAN TOLERATELISTENINGTOMUSICWITHAHEADPHONE. 2.Assess,identifyandsetspecificgoalsfortheM&Mintervention Notable non‐pharmacologic interventions that have been shown to have positive effects are those that are directed at single behaviors such as agitation.22Personswithdementiawillmanifestvaryingtypesanddegreesof challengingsymptoms.Somepersonswithdementiamayhavemorereserved memory and cognitive abilities than others and for those, improving or maintainingcognitivefunctionmaybethedesirableoutcome.Forotherswith a more advanced stage of dementia, the targeted areas may be agitation, aggression,anxiety,depressionorapathy.Thekeyistoidentifyandtargetone ortwokeysymptomsthatseemtoaffecttheindividualthemost. Hence,identifyingthekeytargetareasofM&Minterventionwillbeacrucial stepbeforedevelopingtheindividualizedplaylistandmusiclisteningschedule. Forexample,theplaylistforaresidentwithagitationoraggressionsymptoms mayneedtobedevelopedwiththegoaltohelptheresidentrelaxandincrease positivemood,whiletheplaylistforaresidentwhoareemotionallyorsocially withdrawnmaybeneedtofocusedonthegoaltohelptheresidentbeenergized andactivelyengagedwiththeenvironment. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 23 IDENTIFYINGTHEKEYTARGETAREASOFTHEM&MINTERVENTION WILLBEACRUCIALSTEPBEFOREDEVELOPINGTHEINDIVIDUALIZED PLAYLISTANDMUSICLISTENINGSCHEDULE. 3.Developindividualizedplaylistandlisteningscheduletailoredtoeach individualperson Theliteratureonmusicanddementiasuggeststhattheindividual’sfamiliarity ofthemusicandautobiographicalconnectionbetweenthepersonandmusic areessentialfortheM&Mprogramtopositivelyaffecttheoutcomes. Thepremiseofthislisteningapproachtotherapeuticmusicisthatthe naturalistictaskofmusiclisteningrequireslowretrievaldemandsmakingit accessibleevenasAlzheimer’sprogresses.Therateofatrophyinthemedial prefrontalcortexforAlzheimer’sisslowerthanotherformsofdementia, allowingthisregion(whichisresponsibleforassociatingmusic,emotionsand memory)tobepreservedlongerandabletorecognizemusicalstructure whichiskeytomemoryretrievalcues30,32,47,51,52.Ascognitiondecreasesin Alzheimer’s,thefamiliarityofmusicalworksiscrucialtoactivateprior connections53,54. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 24 Therefore, it is critical for staff or volunteers to identify some key autobiographical events andspecificpiecesofmusic ormusicalgenrethatmight be associated with such events by interviewing residents as well as families. Careshouldbetakeninthe selection of music and modification of playlists, especially when residents are not able to clearly communicate preferences formusic.Careshouldalso betakentousedevicesfor delivery of music that will not result in increased frustration for the residents,whichcouldlead to problem behaviors and/or increased labor for staff beyond regular M&M program implementation requirements. Another critical element to successful M&M intervention would be to timing and amount of exposure to music listening. Persons with dementia have differenttimeofthedayoreventsortasksthatmaytriggeragitationsuchas mealtime,lateafternoon,orbathing.Observationandassessmentofspecific JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 25 agitationwhichimpactsanindividual’squalityoflifeoractivitiesofdailyliving canhelpstafftoidentifytheperiodfortargetedmusiclistening.Also,according tolisteningguidelines,atleast30minutesoflisteningfromtheindividualized playlistshouldbeutilizedpriortotheidentifiedperiodtoreducethesymptoms ofanxietyandagitation36,48. ITISCRITICALTHATTHEMUSICSELECTEDHAVESOME AUTOBIOGRAPHICALCONNECTIONFORTHEINDIVIDUAL.ITIS ALSOESSENTIALTHATTHETIMINGANDEXPOSUREOFMUSIC LISTENINGTOBETAILOREDTOEACHINDIVIDUAL. 4.ImplementasystemicprocessevaluationoftheM&Mprogramand incorporateM&Mintoaformalcareplanningprocess TheM&Mprogrammightbestbeutilizedasatreatmentinterventionsimilarly to other specific therapeutic approaches, whether administered by a music therapistunderspecificprescription,oridentifiedbyacareteamthatinvolves aresident’sfamilymembers.Specificgoalsforreductionofphysical,emotional orpsychologicaldisturbancesshouldbeidentifiedasdesiredoutcomesamong personswithadvanceddementia.Moreover,ongoingmonitoringforsuccess should be formalized and recorded48. The protocol for developing individualizedmusicalplaylists,auditingtheprocessforusedesignedaround specificperiodsofagitationandongoingassessmentcriteriashouldbeclearly presentedtofacilitiesparticipatingintraininganddemonstration. Lastly, the initial and ongoing assessment and development of goals, and progressshouldbediscussedandcoordinatedwithothercareteammembers routinelywithfacilities. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 26 RECOMMENDATIONSFORSUSTAINABILITY Tosustaintheprogram,itisessentialtohavebuy‐infromeveryone–residents, family members, direct care staff, activity staff, music therapists, IT staff, administrators, and volunteers. Buy‐in may be increased by helping staff to recognizeanypositiveimpactsofM&Monresidents. Another way to facilitate buy‐in would be to approach M&M like other care interventions or programs that require a systematic approach to assess, developtheplaylist,deliverandmonitorconsistently.Tomakethispossible, offering incentives or education and training among direct care will be importantorintegratingM&Mintocareplans.RespondentsdescribedM&Mas a program that heavily relies on direct care staff to deliver to residents especially during evening and night time. Although activity and recreational staffmaydeveloptheplaylistandsetupaschedule,theyalsorelyondirectcare stafftodelivertheiPod/headphoneasneededandbasedonasetscheduleeven duringdaytime.Atthesametime,carestaffreportedthatwhiletheprogram JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 27 enhancedthequalityoflifeofPWDs,developingindividualizedplaylistswas tootimeconsumingforstaff,makingitasignificantbarrierfortheprogramto besustainedovertime.Therefore,developingstrategiestoinvolveandtrain residents’ families as well as volunteers to develop playlists and deliver the music will help reduce burden on direct care staff. Several programs have indicatedincreasedsuccessinsupportingtheirexistingprogramthroughthe recruitmentofvolunteerstohelpdistributethedevicestotheresidents,track their use,maintain the playlists and music devices and by raising money for newequipmentbyreachingouttocommunity‐basedgroupsincludingservice societies,localschoolsandothervolunteergroups. Inconclusion,efficacystudiesshouldcontinuetoreview individualoutcomesacrosstheprograminmultiplefacilities todeterminethegeneralizabilityoftheprogram’ssuccess. Theliteratureconcerningtheuseofmusicbased interventionswithdementiaafflictedpersonssuggeststhat thereisthepotentialforsuchinterventionstoprovide pleasureandaidintheremediationofundesirable behavioralsymptoms. ThereislittlereasontobelievethattheM&Mprogram cannotachievegreaterimpactifcarefullyimplemented. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 28 REFERENCES 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. 16. 17. 18. 19. Alzheimer'sAssociation.2014Alzheimer'sDiseaseFactsandFigures.2014. LyketsosC,CarrilloM,RyanJ,etal.NeuropsychiatricsymptomsinAlzheimer'sdisease. Alzheimer's&Dementia.2011;7(5):532‐539. TrivediD,GoodmanC,DickinsonA,etal.Aprotocolforasystematicreviewofresearchon managingbehaviouralandpsychologicalsymptomsindementiaforcommunity‐dwelling olderpeople:evidencemappingandsyntheses.SystematicReviews.2013;2(1):1‐9. LyketsosC,LopezO,JonesB,FitzpatrickA,BreitnerJ,DeKoskyS.Prevalenceof neuropsychiatricsymptomsindementiaandmildcognitiveimpairment:Resultsfromthe CardiovascularHealthStudy.JAMA.2002;288(112):1475‐1483. SullivanSC,RichardsKC.Predictorsofcircadiansleep‐wakerhythmmaintenanceinelders withdementia.Aging&mentalhealth.2004;8(2):143‐152. DesaiA,SchwartzL,GrossbergG.Behavioraldisturbanceindementia.Currentpsychiatry reports.2012;14(4):298‐309. AgencyforHealthcareResearchandQuality.Non‐pharmacologicInterventionsforAgitation andAggressioninDementia.2014;http://effectivehealthcare.ahrq.gov/index.cfm/search‐ for‐guides‐reviews‐and‐reports/?pageaction=displayproduct&productid=1999,2015. GauglerJ,KaneR,KaneR,NewcomerR.Thelongitudinaleffectsofearlybehavioral problemsinthedementiacaregivingcareer.PsychAging.2005;20:100‐116. HopeT,KeeneJ,GedlingK,FairburnCG,JacobyR.Predictorsofinstitutionalizationfor peoplewithdementialivingathomewithacarer.Internationaljournalofgeriatric psychiatry.1998;13(10):682‐690. PollakCP,PerlickD.Sleepproblemsandinstitutionalizationoftheelderly.Journalof geriatricpsychiatryandneurology.1991;4(4):204‐210. KambleP,ChenH,ShererJ,AparasuR.Useofantipsychoticsamongelderlynursinghome residentswithdementiaintheUS:Ananalysisofnationalsurveydata.Drugs&Aging. 2009;26(6):483‐492. LanctotK,BestT,MittmanN,etal.Efficacyandsafetyofneurolepticsinbehavioral disordersassociatedwithdementia.TheJournalofClinicalPsychiatry.1998;59(10):550‐ 561. SchneiderL,PollockV,LynessS.Ameta‐analysisofcontrolledtrialsofneuroleptic treatmentindementia.JAmGeriatrSoc.1990;38:553‐563. AranaG.Anoverviewofsideeffectscausedbytypicalantipsychotics.TheJournalofClinical Psychiatry.2000;61(Suppl*):5‐11. ShekelleP,MaglioneM,BagleyS,etal.ComparativeEffectivenessofOff‐LabelUseofAtypical Antipsychotics.ComparativeEffectivenessReviewNo.6.(PreparedbytheSouthern California/RANDEvidence‐basedPracticeCenterunderContractNo.290‐02‐0003).Rockville, MD:AgencyforHealthcareQualityandResearch;2007. GillS,BronskillS,NormandS,etal.Antipsychoticdruguseandmortalityinolderadults withdementia.AnnalsofInternalMedicine.2007;146(11):775‐786. SchneiderL,DagermanK,InselP.Riskofdeathwithatypicalantipsychoticdrugtreatment fordementia:meta‐analysisofrandomizedplacebo‐controlledtrials..JAMA. 2005;294(15):1934‐1943. McCurrySM,Ancoli‐IsraelS.SleepDysfunctioninAlzheimer'sDiseaseandOtherDementias. Currenttreatmentoptionsinneurology.2003;5(3):261‐272. YesavageJA,FriedmanL,Ancoli‐IsraelS,etal.Developmentofdiagnosticcriteriafor definingsleepdisturbanceinAlzheimer'sdisease.Journalofgeriatricpsychiatryand neurology.2003;16(3):131‐139. JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 20. 21. 22. 23. 24. 25. 26. 27. 28. 29. 30. 31. 32. 33. 34. 35. 36. 37. 38. 39. 40. 29 NationalInstitutesofHealthStateoftheScienceConferencestatementonManifestations andManagementofChronicInsomniainAdults,June13‐15,2005.Sleep.2005;28(9):1049‐ 1057. AmericanPsychiatricAssociationWorkGrouponAlzheimer'sDiseaseandotherDementias. PracticeguidelinesforthetreatmentofpatientswithAlzheimer'sDiseaseandother dementias.2007: http://psychiatryonline.org/pb/assets/raw/sitewide/practice_guidelines/guidelines/alzhe imers.pdf. GitlinL,KalesH,LyketsosC.Nonpharmacologicmanagementofbehavioralsymptomsin dementia.JAMA.2012;308(19):2020‐2029. AldridgeD.MusicTherapyResearchandPracticeinMedicine:FromoutoftheSilence. London:JessicaKinglseyPublishers;1996. NorbergA,MelinE,AsplundK.Reactionstomusic,touchandobjectpresentationinthefinal stageofdementia.Anexploratorystudy.IntJNursStud.2003;40(5):473‐479. DrapeauJ,GosselinN,GagnonL,PeretzI,LorrainD.Emotionalrecognitionfromface,voice, andmusicindementiaoftheAlzheimertype.AnnNYAcadSci.2009;1169:342‐345. SamsonS,DellacherieD,PlatelH.Emotionalpowerofmusicinpatientswithmemory disorders:clinicalimplicationsofcognitiveneuroscience.AnnNYAcadSci.2009;1169:245‐ 255. VanstoneA,CuddyL.MusicalmemoryinAlzheimerdisease.AgingNeuropsycholCogn. 2010;17(1):108‐128. JohnsonJ,ChangC,BrambatiS,etal.Musicrecognitioninfrontotemporallobar degenerationandAlzheimerdisease.CognBehavNeurol.2011;24(2):74‐84. PrickettC,MooreR.TheuseofmusictoaidmemoryofAlzheimer’spatients.JMusicTher. 1991;27(2):101‐110. WilkinsRW,HodgesD,LaurientiP,SteenM,BurdetteJ.Networkscience:anewmethodfor investigatingthecomplexityofmusicalexperiencesinthebrain.Leonardo.2012;45(3):282‐ 283. Musicandemotionsinthebrain:Familiaritymatters.2011. JanataP.Theneuralarchitectureofmusic‐evokedautobiographicalmemories.Cerebral Cortex.2009;19:2579‐2594. VinkA,BruinsmaM,ScholtenR.Musictherapyforpeoplewithdementia.TheCochrane Library.2011(4):1‐48. ClarkM,LipeA,BilbreyM.Useofmusictodecreaseaggressivebehaviorsinpeoplewith dementia.JournalofGerontologicalNursing.1998;24(7):10‐17. GerdnerL.Effectsofindividualizedversusclassical'relaxation'musiconthefrequencyof agitationinelderlypersonswithAlzheimer'sdiseaseandrelateddisorders.International Psychogeriatrics.2000;12(1):49‐65. SakamotoM,AndoH,TsutouA.Comparingtheeffectsofdifferentindividualizedmusic interventionsforelderlyindividualswithseveredementia.InternationalPsychogeriatrics. 2013;25(5):775‐784. MusicandMemory.org.MusicandMemory.2013;http://musicandmemory.org.Accessed 09/23/2013. Cohen‐MansfieldJ.Agitatedbehaviorsintheelderly:II.Preliminaryresultsinthe cognitivelydeteriorated.JAmGeriatrSoc.1986;34:711‐727. Cohen‐MansfieldJ,MarxM,RosenthalA.Adescriptionofagitationinanursinghome. JournalofGerontology:MedicalSciences.1989;44(3):M77‐M84. WoodS,CummingsJ,HsuM,etal.TheuseoftheNeuropsychiatricInventoryinnursing homeresidents:Characterizationandmeasurement.AmJGeriatrPsychiatry.2000;8(75‐83). JungKwak|UWM.EDU/SOCIALWELFARE/ UniversityofWisconsin‐Milwaukee 41. 42. 43. 44. 45. 46. 47. 48. 49. 50. 51. 52. 53. 54. 30 HughesC,BergL,DanzigerW,CobenL,MartinR.Anewclinicalratingscaleforthestaging ofdementia.BJP.1982;140:566‐572. BergL.ClinicalDementiaRating(CDR).PsychopharmacologyBulletin.1988;24:637‐639. AdamsK,McClendonM,SmythK.Personallossesandrelationshipqualityindementia caregiving.Dementia:TheInternationalJounralofSocialResearchandPractice. 2008;7(3):301‐319. SpruytteN,VanAudenhoveC,LammertynF,StormsG.Thequalityofthecaregiving relationshipininformalcareforolderadultswithdementiaandchronicpsychiatric patients.PsychologyandPsychotherapy:Theory,Research,andPractice.2002;75(3):295‐ 311. FritschT,KwakJ,GrantS,LangJ,MontgomeryR,BastingA.ImpactofTimeSlips,acreative expressioninterventionprogram,onnursinghomeresidentswithdementiaandtheir caregivers.TheGerontologist.2009;49(1):117‐127. CuddyL,DuffinJ.Music,memory,andAlzheimer'sdisease:ismusicrecognitionsparedin dementia,andhowcanitbeassessed?MedicalHypotheses.2005;64:229‐235. Variabilityinprefrontalhemodynamicresponseduringexposuretorepeatedself‐selected musicexcerpts,anear‐infraredspectroscopystudy.2015. GerdnerL,SchoenfelderD.Evidence‐basedguideline:Individualizedmusicforelderswith dementia.JournalofGerontologicalNursing.2010;36(6):7‐15. NewYorkStateDepartmentofHealth.IndividualizedMusicInterventionOutcomes.2007; http://www.health.ny.gov/diseases/conditions/dementia/edge/interventions/indiv_music /indiv_music_intervention_casestudy.htm.Accessed7/3/2015,2015. VasionyteI,MadisonG.Musicalinterventionforpatientswithdementia:ameta‐analysis. JournalofClinicalNursing.2013;22:1203‐1216. HsiehS,HornbergerM,PiguetO,HodgesJ.Neuralbasisofmusicknowledge:evidencefrom thedementias.Brain.2011;134:2523‐2534. KoelschS.Towardsaneuralbasisofmusic‐evokedemotions.TrendsinCognitiveSciences. 2010;14(3):131‐137. BloodA,ZatorreR.Intenselypleasurableresponsestomusiccorrelatewithactivityinbrain regionsimplcatedinrewardandemotion.ProceedingsoftheNationalAcademyofSciences. 2001;98(20):11818‐11823. Gebauer L, Kringelbach M, Vuust P. Ever‐changing cycles of musical pleasure: The role of Dopamine and anticipation. Psychomusicology: Music, Mind, and Brain. 2012;22(2):152‐167. JungKwak|UWM.EDU/SOCIALWELFARE/ 31 APPENDIX Table1.SummaryofMethodsofEachEvaluationComponent Purpose ToevaluateefficacyofM&Mto reduceresidents’behavioral problems,useofpsychotropic medication,andtoimprove satisfactionwithcareand relationshipqualitybetween residentsandfamily,andstaff attitudestowardresidentsandjob satisfaction. Research questions DoestheM&Mreduceanxiety, depression,agitation,anduseofanti‐ psychoticandanti‐anxiety medications? DoestheM&Mreduceagitation‐ relatedmovementsandimprove sleepquality? DoestheM&Mimprovefamily caregiver‐residentrelationship qualityandsatisfactionwithcare? DoestheM&Mimprovestaff attitudestowardresidents? Crossover,RCTwithtwoconditions‐ Condition1receivingtheM&M interventionforasix‐weekperiod (PhaseI)andCondition2receiving theM&Minterventionfor6weeks aftertheCondition1receivedthe M&Mandatwo‐weekwashout period(PhaseII). Familymembersanddirectcarestaff membersfortheparticipating residentsassessedatpre‐(baseline) andpost‐(endofthestudy)survey. Design CrossoverStudy Pre‐Post MedicationUse MDSAnalysis AdministratorSurvey Toevaluate effectivenessofthe M&Minreducing anti‐psychoticand anti‐anxiety medicationusein 1,500residentsin facilitiesparticipating inthePhaseIofthe statewide implementation. DoestheM&M reduceanti‐psychotic andanti‐anxiety medicationuse? Toevaluateeffectiveness oftheM&Minimproving behavioraloutcomesand reducingpsychotropic medicationusein residentsinallfacilities participatinginM&Min theStateofWI. Toidentifybarriersandchallengesin implementingandsustainingM&M, andrecommendationstoaddressthe barriersinfacilitiesparticipatingin theM&Mstatewideimplementation. DoestheM&Mreduce behavioralproblemsand improvecommunication, mobility,andmood? DoestheM&Mreduce psychiatricmedication use? Whatarethebarriersandchallenges inimplementingandsustainingM&M innursinghomefacilities? WhatisvalueofM&M? Whatarethebestwaystofoster effectiveimplementationandongoing sustainabilityofM&Minnursing homefacilities? Pre‐andpost‐M&M implementation surveyconducted online. Secondaryanalysisof MDSdataonnursing homeresidentsinall Wisconsinnursinghome facilitiesin2014,and 2015. Cross‐sectionalmailorwebsurveyto allnursinghomefacilitiesin Wisconsin Table1.SummaryofMethodsofEachEvaluationComponent Sample 59residentsfromastratified randomsampleof10nursinghomes inMilwaukee,Ozaukee,Racineand Waukeshacounties. 28Familymembersofparticipating residents. 63carestafffrom10nursinghomes. Data Collection and Measures Staffreportonmemory/cognition (ClinicalDementiaRatingScale), agitation(Cohen‐MansfieldAgitation Inventory),andmood (NeuropsychiatricInventory). Chartreviewonanti‐psychotic medicationuse. MovementmeasuredbyActiGraph GT3Xwornonthenon‐dominant wristsofnursinghomeresidents. Musicdatacollectedviaappinstalled oniPods. Generalizedlinearmixedmodel (GLMM)ANOVA,randomizationtests usingaresamplingapproach, WilcoxonSigned‐rankstests. Analysis CrossoverStudy Pre‐Post MedicationUse 32 MDSAnalysis AdministratorSurvey 1,500residents selectedto participateinthe M&Mby100nursing homesthat participatedinthe PhaseIoftheM&M statewideinitiative. Pre‐surveywas conductedbetween December2013and May2014whilepost‐ surveywas conductedbetween February2015and January2016. Onlinesurvey Residentsinnursing homesparticipatingin M&Mstatewide implementationatPhase I(2014),PhaseII(2015) andPhaseIII(2016)with residentsinnon‐ participatinghomes servingascontrols. 161nursinghomes(41%)in Wisconsinwhorespondedtothemail survey. AnalysisoftheMDSdata MailSurveyorweb‐basedsurvey formatselectedbyrespondents GLMMand GeneralizedLinear Model(GLM)ANOVA. Differences‐in‐difference analysesusingfixed effectsconditional logisticregression. Descriptiveandcontentanalysis. 33 Table2.SummaryofFindingsofEachEvaluationComponent CrossoverStudy Pre‐Post MedicationUse Results Nostatisticallysignificant differenceswerefoundin: memory/cognition,agitation, andmood. Actualratesofuseduringthe totaldaystheiPodswere availablewerequitelowforthe majorityoftheresidents. Nostatisticallysignificant differenceswerefoundinstaff orfamilyoutcomes. Testsofdifferencesinvector magnitudeswereall nonsignificantindicatingM&M hadnoapparenteffecton movement. Statistically significantmean reductionsinanti‐ psychoticandanti‐ anxietymedication use. Itisunclearfrom thedatatheextent towhichM&M contributedtothe medicationuse reductiondueto datalimitations. Implications Resultsfromthestudycallinto question(1)theefficacyofthe M&Mprograminaffectingthe residentoutcomes,and(2) otherissuessuchaslowfidelity totheguidelinesrecommended Findingsprovide someindication thatthe implementationof theM&Mprogram mayhavehadsome MDSAnalysis Significantdifferences indifferencetestsfor numberofdaysof antipsychoticuseand anyuseof antipsychoticsforthe Wave1versusWave 2and3nursinghomes. Reductionsin antipsychoticusewere greaterinnursing homesnot participatinginM&M. Nosignificant differencesin differencetestsfor Wave2andWave3 comparisons.Insub‐ groupanalysisof Medicaidresidents, reductionsinanti‐ anxietyusedayswere greaterinnursing homesnot participatinginM&M whilereductionsin behavioralproblems andrejectionofcare weregreaterinWave 2. Findingssuggestthat M&Mmadeno improvementorhad worseimprovements onuseofpsychiatric medicationthanno AdministratorSurvey Twokeybarrierstoconsistentlyand effectivelydeliveringM&Mfortarget residentswere:(1)alackofbuy‐in fromalllevelsofcarestaffand managementand(2)alackofor limitedtimebystafftoimplement andmaintaintheprogram. Otherbarriersincludedtechnology andcostasadditionalcostwillbe incurredtoreplaceexisting equipmentandbuynewsongs. ValueofM&Minclude:enjoymentand improvedmood,personalizednature ofthemusic,thepositiveeffectsof headphonestoblocknoiseandallow eachindividualresidenttolistento themusictheyprefer. AlthoughM&Misperceivedasa valuableprogramtoenhancequality oflifeofresidents,M&Mdoesnot workforeveryone,andmoreefforts areneededtoenhancebuy‐infromall levelsofstaffinfacilities,increase Table2.SummaryofFindingsofEachEvaluationComponent CrossoverStudy Pre‐Post MedicationUse bytheM&Mprogramor insufficientguidelinesfromthe M&Mprogram. partialeffecton the reductionoftheuse ofanti‐anxiety medicationsamong residents. Limitations Smallsamplesize,useofglobal measuresoffunctioning collectedoverseveralweek intervals,andrelianceonstaff reportsonkeyresident outcomemeasures Recommendations FortheM&MProgram:1) selectindividualswhoaremost likelytobenefitfromM&M;(2) assess,identifyandsetspecific goalsfortheM&M intervention;(3)develop individualizedplaylistand listeningscheduletailoredto eachindividualperson;and(4) implementasystemicprocess evaluationoftheM&M programandincorporateM&M intoaformalcareplanning process. Futureresearchshouldinclude largersamplesizes,direct behavioralobservationsusing validatedmethods,andthe evaluationofdifferent protocolsforthe implementationofM&Mon behavioraloutcomes. Lackofrandom samplingof residentsand facilities,andlack ofrandom assignment(i.e.,no controlgroup) Additionalresearch isneededto determinewhether, andperhapsthe extenttowhich,the useoftheM&M programeffectsthe useofpsychotropic medicationsin nursinghome residents. 34 MDSAnalysis M&MwhileMedicaid residentsexperienced somepositive improvementsin behavioralproblems andrejectionofcare. Lackofrandom samplingorresidents andfacilities,andlack ofrandomassignment. Additionalresearchis neededtoidentify residentandfacility levelrelatedfactors accountingdifferential residentoutcomesin Wave1,2,and3,and toexaminefurtheron potentialreasonsfor differencesin outcomesbetween Medicaidandnon‐ Medicaidresidents. AdministratorSurvey supportfromfamiliesandvolunteers, andtoimprovefidelityofthe programimplementation. Cross‐sectional,descriptivesurvey with40%responserate. Buy‐inmaybeincreasedby:(1) helpingstafftorecognizeanypositive impactsofM&Monresidents;(2) approachingM&Mlikeothercare interventionsorprogramsthat requireasystematicapproachto assess,developtheplaylist,deliver, andmonitorconsistently;and(3) offeringincentivesoreducationand trainingamongdirectcarestaffwill beimportant,orintegrateM&Minto thecareplanningprocess. UniversityofWisconsin‐Milwaukee HelenBaderSchoolofSocialWelfare& CenterforAgingandTranslationalResearch EnderisHall 2400E.HartfordAve. Milwaukee,WI53211 Phone:414.229.4852 http://uwm.edu/socialwelfare
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