We are trying to find out what it is like for children
living with epilepsy and their parents
Who is involved?
Our names our Stephanie O’ Toole and Ailbhe Benson and we are PhD students at DCU. We
are doing a project in collaboration with Epilepsy Ireland and we are looking for children and
young people (aged 8 – 18 years) with a diagnosis of epilepsy as well as their parents to
participate. Due to the nature of the research, we require that children and young people
participating have no other significant medical conditions and/or learning difficulties.
What will the study involve?
The study will involve children and young people and their parents filling out questionnaires.
Why is this study beneficial?
This study will help us to learn more about the challenges (positive and negative) that face
children living with epilepsy and their parents. Such information will help us to tackle the
negative challenges faced by children living with epilepsy in the future and ultimately it will help
us to raise awareness about epilepsy in children.
How do we participate?
If you are interested in knowing more, or you think you and your child would like to participate,
please contact us by phone – 01-7006867 (Stephanie) or 01-7007997 (Ailbhe) - or by email at
[email protected] – so that we may post you out an information pack.
Alternatively, if you would like to complete the questionnaires online, please follow the following
links:
Parent Questionnaire: www.bit.ly/epilepsyparent
Child Questionnaire: www.bit.ly/epilepsychild
Although your participation would be highly appreciated, you do not have to take part - it is
completely up to you!