“Brainy Times” Central/Northeast Regional Newsletter March 2017 Central Regional Office 30 Lyman St. Ste. 10 Westborough MA 01581 Recreation Corner All activities take place at BIA-MA, 30 Lyman St., Ste. 10, Westborough, MA , unless noted otherwise. Space is limited for some activities. Sign up required. Call Tress to sign up: 800-242-0030, ext. 13 Arts Group: Tuesdays, 3/7/17 & 3/21/17 at 1:00 – 3:00 pm–A group for survivors who enjoy using fine art supplies in a quiet atmosphere. Each session we’ll pick a different theme to explore through art. Free! Coffee Club: Friday, 3/3/17 at 10:00-11:00 am. A group for survivors who want to connect for conversation and explore the benefits of journaling. We’ll provide the refreshments and journals. Free! Creative Minds Crafts Group: Thursday, 3/9/17 at 1:00 – 3:00 pm- The March craft is ladybugs & friends magnets. Free! Brain Games: Wednesday, 3/15/17 at 1:00 – 3:00 pm- Free recreation group where members get together to play cards and board games in a fun and relaxed environment, while also working on various cognitive, social, and physical skills. Space is limited. Call Lori to sign up: 800-242-0030, ext. 31. Crafts Night in Boston: Wednesday, 3/15/17, at 6:30 pm, at the Boston University survivor support group, Sargent College, 635 Commonwealth Ave., Boston, Room 200. We’ll be making spring-themed picture frames. Free! Paint Nite in Westborough: Monday, 3/20/17, at 6:00-8:00 pm – For survivors; we’ll serve mocktails and appetizers as Jubilee Painting guides us in painting the scene below on canvas. $5.00 per person. Letter from the Central Regional Manager Hello, It was great to see so many of you at our Advocacy Day at the State House last month. We had over a hundred attendees who listened to speakers from the legislature as well as the Brain Injury Association of Massachusetts, then met with their legislators to advocate for passage of an Act Improving Lives by Ensuring Access to Brain Injury Treatment (cognitive rehabilitation bill) and for increasing funding for the Statewide Head Injury Program (SHIP). See below for information about more ways you can advocate for brain injury services. Survivors’ Paint Nite is back by popular demand! Please join us on the first day of spring, March 20th, at 6 pm for some artistic fun. A local artist will lead us through the steps of creating a canvas painting. Space is limited, so please call to sign up. We also have a Crafts Night in Boston event on March 15th. We are excited to be able to offer activities in Boston with the help of our support group at Boston University. We will be decorating photo frames with spring-themed materials. Again, space is limited; call to sign up. Lastly, our Annual Conference is Thursday, March 30th at the Best Western Royal Plaza Hotel in Marlborough. We will have workshops for brain injury survivors, professionals, and caregivers/family members. Go to our website for the conference brochure and to register: www.biama.org Tress Ricker, Central Regional Manager [email protected] 800-242-0030, ext. 13 Advocacy Update The Massachusetts Senate is conducting a series of statewide forums, known as Commonwealth Conversations. Senators from the different areas of the state will be present to hear from citizens what they think are important issues that the state government should be addressing. This provides another opportunity for the Senate to hear from those who wish to advocate for brain injury services. The dates below are when the forums are being held within Central/NE Region. For more information, go to www. malegislature.gov/CC March 14: Central Mass. March 21: Northeastern Mass. April 4: MetroWest April 11: North Shore MEET A SURVIVOR Pam Borys, brain injury survivor Tell us your story. How did you get your brain injury? I have had epilepsy my whole life. In the summer of 2011, I mistakenly took the wrong medication that looked just like my epilepsy meds. This led to 4 seizures on one day. My life changed, I did not feel like the same person and no one explained what had happened. I was very confused; I couldn’t remember where things were in my house. Although I had a Master’s in English, now words looked like gibberish. My neurologist sent me to a speech/language therapist. She suggested I go to a brain injury support group. Until then, no one had had said the scary words ”brain injury.” How else were you affected? I had memory loss, it was very difficult to read, write, and organize my thoughts. I lost my sense of math and numbers. That was terrifying. I couldn’t tell if I had enough money to pay my bills when I looked at my bank account online. I’d redo the numbers 5 times a day. I also have an absence of the sense of time. It’s hard to get motivated when you don’t have a sense of time because you don’t have a sense of urgency. I used to be a driven, energetic person. What has been helpful in your rehabilitation? Having someone challenge you on what you are doing is valuable. It gets you out of your comfort zone. The speech therapist helped me to write again and organize my thoughts. Facebook helps because it keeps me writing a little bit. Performing arts really helped my brain in surprising ways. Watching drama like Shakespeare helps to understand alternate meanings of words because the actors cue you to the meaning with their expressions and movements. I watched TV just to challenge myself to remember what happened before the commercial. It took about a year before I could remember. I ask people to email me everything—that way I am able to search on key words and find the information at a later time. How have you managed to cope emotionally with your injury? I cried, I raged, I looked for information. We all have to go through the pity party. The only way out is through. It was hard to explain to people what was going on because I didn’t understand it myself. I felt stupid. It took a while to realize I was not unintelligent. The shock of the trauma eased somewhat as my skills began to improve. Laughter beats panic every day. What advice do you have for other brain injury survivors? Feel good about having your cry. You are entitled to your sadness. Your injury will not stay at the level of severity it is today. Get out of the house. Find a support group meeting, go to performing arts. Talk to people about what happened to you. If you are interested in telling your story for our “Meet a Survivor” column, please contact Tress Ricker at 800242-0030, ext. 13 Perkins Library 175 North Beacon St. Watertown MA 02472 800-852-3133 www.perkinslibrary.org Perkins Library is for individuals who are unable to read print materials due to a visual, physical or reading disability, including due to a brain injury. They loan audio books and equipment, large print books, and braille books and magazines for free and can send them through US Mail, postage paid. They also have audio described videos in DVD format and a talking newspaper service. An individual is eligible if he or she: Is legally blind with vision of 20/200 or less, or has visual field no greater than 20 degrees Is unable to see well enough to read with comfort for extended periods of time, even with correction Has a physical limitation that makes holding a book or turning pages difficult Is certified by an MD as having a reading disability that has a physical basis which prevents one from reading standard print Is legally blind with a profound hearing loss SUNDAY MONDAY - - Central/Northeast Region Events March 2017 TUESDAY WEDNESDAY 9 8 2 1 THURSDAY FRIDAY 3 SATURDAY 4 BABIS group, Boston 10 AM- 12 PM 5 6 7 20 19 14 13 12 Arts Group, 1 – 3 PM Lexington Support Group, 3 – 4:30 PM N. Reading Support Group, 6 – 7:30 PM Lowell Support Grp, 11 AM – 12:30 PM 26 16 Brain Games, 1 – 3 PM Crafts Night in Boston 6-8 PM Framingham Support Grp, 10:30 AM – 12 PM Haverhill Support Group, 6 – 7:30 PM Walpole Support Group, 6:30 – 8 PM Arts Group, 1 – 3 PM Lexington Support Group, 3 – 4:30 PM Worcester Support Group, 6 – 7:30 PM Paint Nite 6 – 8 PM 10 11 Concord Support Group, 10 AM – 12 PM Creative Minds Crafts Group, 1 – 3 PM 15 22 21 28 27 17 24 30 Worcester Fairlawn Support Grp, 5 – 7 PM 18 Beverly Support Grp, 11 AM – 12:30 PM Milford Support Group, 7-8:30 PM 23 29 Framingham Support Grp, 10:30 AM – 12 PM Lunenburg Support Group, 7 – 8:30 PM 25 31 Braintree Support Group, 6:30 – 8 PM
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