Healthy living guide Sleep Part of The Body series 3 Health at Hand 24 hour medical support for you and your family. Through our telephone health information service, Health at Hand, you have access to a qualified and experienced team of healthcare professionals, 24 hours a day, 365 days a year. Whether you are calling because you have late night worries about a child’s health, or you have some questions that you forgot to ask your GP, it’s likely that Health at Hand will be able to provide you with the help you need. The team of nurses, pharmacists, counsellors and midwives is on hand to give you the benefit of their expertise. They can answer your questions and give you all the latest information on specific illnesses, treatments and medications as well as details of local and national organisations. They can also send you free fact sheets and leaflets on a wide range of medical issues, conditions and treatments, and will happily phone you back afterwards to discuss any further questions you may have from what you have read. Health at Hand – 0800 003 004 Health at Hand is available to you anytime – day or night, 365 days a year. You can also email Health at Hand by going to our website: www.axappphealthcare.co.uk/members If calling from outside the UK please dial +44 1737 815 197 – international call rates apply. Please remember to have your membership number to hand before you call. Please note: Health at Hand does not diagnose or prescribe and is not designed to take the place of your GP. However, it can provide you with valuable information to help put your mind at rest. As Health at Hand is a confidential service, any information you discuss is not shared with our team of Personal Advisers. If you wish to authorise treatment, enquire about a claim or have a membership query, our team of Personal Advisers will be happy to help you. Just one number to call – 0800 003 004 If you are calling from abroad, the telephone number is: +44 (0)1737 815 197. Please remember to have your membership number to hand before you call. We may record or monitor calls for training, quality assurance and as a record of our conversation. www.axappphealthcare.co.uk/members Getting a good night’s sleep For reasons that are not fully understood, sleep is a basic human requirement and one that is essential for continued mental and physical wellbeing. Lack of sufficient sleep has been shown to be linked with a significant increase in the risk of car accidents which is at least as high as driving under the influence of alcohol. In fact, it is thought that sleepiness and slow reactions from lack of sleep contribute to about 10% of serious accidents and an even higher proportion of motorway accidents. Although it is hard to determine what normal sleep is because it varies so much from one person to the next, generally speaking it consists of a period of going off to sleep of no more than about 30 minutes followed by six to eight hours of sleep during which the person will wake briefly two or three times and then fall to sleep again, feeling refreshed in the morning. During sleep, we enter various levels of sleep, including Rapid Eye Movement (REM) sleep which is thought to be essential for sleep to be truly refreshing. One of the problems with identifying people with sleep problems is that not all of them are aware that their tiredness is due to lack of sleep. This is because many people who complain of insomnia, when studied, have often been found to have many hours of good quality sleep, whereas many people who think they are sleeping well are in fact suffering from a disorder such as sleep apnoea that they may be unaware of. 1 www.axappphealthcare.co.uk/members Getting a good night’s sleep How common are sleep problems? This is a hard question to answer for a number of reasons, including the discrepancy described on the previous page between those who think they have a problem and those who are unaware that they are not sleeping properly. In addition, there are a great number of people who do not consult their doctor but simply adapt their lives as best they can around their insomnia. However, it is It is thought that thought that about 5% of the about 5% of the population suffer population from Excessive suffer from Daytime Excessive Sleepiness Daytime (EDS). Sleepiness (EDS). These people experience an overwhelming desire to sleep during the day even though they may feel that they have had a good night’s sleep. Some of these people will have a sleep disorder, whereas others may be suffering from a physical condition, resulting in excessive tiredness. continued The most common sleep disorders are insomnia (see next page), narcolepsy (page 5), obstructive sleep apnoea (page 8) and periodic limb movement disorder (PLMD) which is sometimes called Restless Leg Syndrome (page 9). How are sleep problems diagnosed? It can be difficult to diagnose a sleep disorder partly because there are so many causes of fatigue and tiredness, including physical, emotional and mental sleep problems. The diagnosis usually starts with the doctor listening to a description of the symptoms the individual is complaining of. This will usually point the doctor in a particular direction which could involve an examination of the patient, further physical tests (blood tests, x-rays, scans etc if a physical problem is suspected) or sometimes what are called sleep studies where someone is monitored while they sleep. 2 www.axappphealthcare.co.uk/members Insomnia Insomnia i.e. difficulty sleeping for a sufficient amount of time each night to feel refreshed and able to lead a normal life, is thought to affect 10% to 15% of people at any particular time. Sufferers may have trouble getting to sleep, experience frequent episodes of waking during the night or wake up too early and are unable to get back to sleep. Causes of insomnia include anxiety (which typically causes difficulty getting off to sleep), worry or stress (which are common causes of disturbed sleep) and depression, which is frequently signified by early morning waking i.e. waking before the alarm clock goes. Severe insomnia i.e. only sleeping a few hours or not at all day after day is sometimes a symptom of a mental illness such as schizophrenia or manic depression (sometimes now called bipolar disorder). However, in these instances there are almost always other associated symptoms. Insomnia can also be the result of a disturbance of the normal sleeping pattern due to jet lag, constant sleep disturbance from children, noisy neighbours or as a result of shift work. Alcohol abuse may also disturb normal sleep patterns by causing daytime sleepiness or may make sleep less refreshing since there is evidence that it disrupts the amount of the good quality (REM) sleep. Temporary insomnia may accompany a period of grief (this is essentially a normal reaction as long as it is temporary). Physical disruptions to sleep include night sweats, itching, pain, having to get up at night to pass urine or breathlessness. Obviously, if these symptoms exist, medical advice should be sought to establish whether or not there is a significant underlying physical problem. Treatment of insomnia The treatment of insomnia starts with establishing an underlying cause (if one exists). This may be as simple as drinking too much fluid before bedtime resulting in the need to pass urine at night or may be more complex if a significant mental or physical underlying illness is thought to exist. Once underlying issues have been excluded, resolved or treated, sleep can be improved, often by establishing a bedtime routine that enables the individual to physically and mentally wind down at the end of the day. continued www.axappphealthcare.co.uk/members 3 Insomnia continued This may go something like this Having a regular bed-time. Avoiding day time sleeping. Avoiding stimulating drinks such as tea or coffee in the evening and, perhaps, substituting them with a warm milky drink. Having a relaxing warm bath. Reading something relaxing in bed rather than watching the television or doing paperwork. Avoiding long lie-ins on a regular basis since these can result in disruption of the normal sleeping pattern. Use relaxation techniques such as relaxation tapes regularly to help relax. Sleeping tablets do exist and can Prescription sleeping tablets sometimes be can become both useful in the short term to re- psychologically and physically establish a addictive. normal sleeping pattern. However, prescription sleeping tablets can become both psychologically and physically addictive and even over-thecounter sleeping tablets should preferably not be seen as a long term solution. 4 www.axappphealthcare.co.uk/members Narcolepsy What is it? Narcolepsy is a disorder of the brain, which scientists are beginning to understand and which is a chronic nervous system disorder affecting the sleep/wake cycle. It can occur at any age, although most often it first appears during adolescence. Excessive Daytime Sleepiness (EDS) is the most common symptom and is usually the most serious and obvious feature of the disorder. It was first described by a French physician in 1880 who coined the term ‘narco’ (sleep) and ‘lepsy’ (to be seized by). Narcolepsy occurs equally in men and women and there are thought to be 2,500 diagnosed sufferers in the UK, with perhaps another 17,500 undiagnosed and untreated. How does it occur? In human sufferers, researchers have recently found undetectable levels of a protein (hypocretin 1) in certain nerve pathways involved in wakefulness. It is already known from other studies that animals that cannot make hypocretin cannot stay awake, even when engaged in exercise. It is therefore thought that there may be a genetic predisposition to develop narcolepsy. However, it is also clear that the environment plays a part. What are the symptoms of narcolepsy? The main symptom is EDS – a constant feeling of sleepiness with bouts of unwanted sleep which recur throughout the day. This is the most disabling feature of narcolepsy. The attacks are overpowering and usually last a few minutes but can last about 30 minutes or longer in certain cases. They often occur in unusual circumstances – for example, in the middle of a conversation. Some sufferers, whilst apparently awake, may perform complex, sometimes irrational tasks with no recollection of the event thereafter. These variations in alertness can be dangerous. The second major symptom of narcolepsy is cataplexy. The Latin meaning of this is ‘to be struck down by fear’. This sudden loss or decrease in muscle tone can result in symptoms such as slurred speech, arm drop or collapse and is most frequently set off by an emotion such as anger, laughing at a joke or even anticipation of laughing at a joke. Other symptoms include sleep paralysis (a situation where the sufferer experiences an inability to move on first waking and may feel as if he or she can’t breathe) and visual or auditory hallucinations whilst dozing off or waking up. These are called Hypnagonic and Hypnopomic hallucinations. continued www.axappphealthcare.co.uk/members 5 Narcolepsy continued How is it diagnosed? Sometimes the diagnosis can be made on the history alone. Sleep laboratory tests can help to rule out other sleep disorders, such as obstructive sleep apnoea (OSA) during which the individual stops breathing for a period of time followed by a gasp which can also cause EDS but which does not cause the other features of narcolepsy such as cataplexy. A number of tests may be needed including a heart trace (ECG), a brain trace (EEG) and breathing functions whilst asleep. Other tests are also performed to measure how quickly the individual takes to fall asleep and measurements of their daytime sleepiness along with their ability to stay awake. What treatment and self-help strategies are there? Lifestyle Changes to lifestyle are often necessary. These can include changing the times at which activities take place, altering eating habits and avoiding certain foods and alcohol. Living with narcolepsy can be very stressful and counselling or psychotherapy support may be needed. A regular night time routine and planned daytime naps may be helpful. 6 Someone with narcolepsy should not drive since the overwhelming urge to fall off to sleep may occur without warning. Therefore, the sufferer should inform the DVLA (driving licence authority) of the fact that they have the condition. Drug treatment A variety of drugs may prove useful. These include stimulants such as amphetamines, which raise alertness and to some degree counteract the feeling of sleepiness. Unfortunately, these types of stimulants become less effective with use and their side-effects may make them unsuitable for particular individuals. A drug that has been found to be effective in the treatment of narcolepsy is Modafinil (Provigil). It promotes wakefulness and restores alertness without affecting the ability to sleep at night. It appears to act on an area of the brain (the hypothalamus) concerned with keeping people awake and alert. How Modafinil works is not precisely known but it seems to lack the sideeffects of amphetamines. Tricyclic antidepressants and a group of modern antidepressants called the SSRIs (which include the well-known Prozac) have occasionally been found to be useful in the treatment of cataplexy. However, these antidepressant drugs have no effect on EDS. www.axappphealthcare.co.uk/members Obstructive Sleep Apnoea Exercise continued What is it? Simple snoring is an inconvenience (mainly for those who have to hear it!) although it can sometimes cause relationship difficulties if it is severe and persistent enough to affect others in the household. However, severe snoring can be associated with a more serious condition called Obstructive Sleep Apnoea-hypopnoea Syndrome (OSAHS). This is a disorder that causes a person to snore but also to intermittently stop breathing whilst asleep sometimes for a worryingly long time. The causes of OSAH is far OSAHS are the more common in same as those overweight for snoring. people. However, it causes the individual to get into a cycle of going to sleep, snoring, stopping breathing due to obstruction of the airway due to relaxation of their airway, followed by momentarily waking up in response to the urge to breathe and then falling asleep again. The temporary waking may happen hundreds of times a night. The effect of this is that the sufferer does not get restful sleep even though they may think they have slept all night. OSAHS affects about 4% of men and 2% of women and is far more common in overweight people. What are the symptoms? The result of OSAHS can be symptoms of tiredness and lack of concentration during the day, morning headaches and excessive night time urination. It has been linked with an up to seven-fold increase in the chance of road traffic accidents in sufferers, a higher risk of high blood pressure and a greater likelihood of developing heart disease. What is the diagnosis? The diagnosis of snoring is obviously fairly easy since the individual’s partner or others in the household will report the symptom in no uncertain terms. However, although sleep apnoea may be suspected because the same partner will have noted that the individual stops breathing for a period of time, formal confirmation of OSAHS requires further tests, usually in the form of sleep studies. Sleep studies are usually done in the patients own home using a sleep monitor recording their sleep pattern and blood oxygen levels. continued www.axappphealthcare.co.uk/members 7 Obstructive Sleep Apnoea continued What is the treatment? Initially, there are things each person can do to help to reduce the chances of snoring or developing OSAH and these include Avoiding excessive alcohol. Reaching or maintaining a normal weight. Avoiding sleeping on the back since this makes collapsing of the airways less likely. Using steam menthol or olbas oil inhalations to keep the nasal passages open. Having taken these measures, if the problem remains or is suspected, the next step would be to see the GP for further advice. They are then likely to refer on to a specialist, usually an Ear, Nose and Throat (ENT) consultant for further advice and investigation. In other cases, an appliance which pushes the lower jaw forward may be tried, since this has been found to help to open the air passages at the back of the throat. If the oral appliance fails to work, the specialist may recommend something called continuous positive airways pressure (CPAP), which involves the sufferer wearing a mask over the nose and mouth which delivers air under a slight pressure as they breathe. This prevents the airways from collapsing during sleep and can be very effective. 8 www.axappphealthcare.co.uk/members Periodic limb movement disorder (restless legs syndrome) What is it? Periodic limb Periodic limb movement movement disorder (PLMD) disorder (PLMD) or restless legs or restless legs syndrome (RLS) syndrome (RLS) is is also also sometimes sometimes referred to as referred to as Ekbom’s Ekbom’s syndrome, after syndrome, after the doctor who the doctor who first recognised first recognised it. It is a disorder it. that affects up to 5% of the population but is still not completely understood. It varies in its severity from mild cases causing a certain amount of discomfort to severe forms that lead to significant distress and sleep disturbance. RLS can develop at any age although it is more common in the elderly population and in about one third of cases there is a family history. What are the symptoms? The most noticeable symptom of RLS is the presence of an uncomfortable fidgety, jittery or crawling sensation deep in the legs. These sensations are noticed most frequently in the calves and are usually present in both legs although one side may be worse than the other. The The most symptoms are noticeable invariably worse symptom of RLS during rest, is the presence especially whilst of an the sufferer is uncomfortable lying down fidgety, jittery or before going to crawling sleep. Moving sensation deep the legs relieves in the legs. the symptoms. In severe cases the individual may be forced to spend most of the night pacing up and down in an attempt to keep moving to relieve the sensations. The condition is often worse after enforced rest such as long journeys or having to sit for long periods of time. Another symptom, which some individuals may notice, is involuntary jerking movements of the legs during sleep, which may be bad enough to wake their bed partner. What causes it? The exact cause of RLS is not known but there are some conditions with which it is often associated and, if these other conditions are treated, the leg restlessness may also get better. For instance, deficiency in iron or the vitamin folic acid or B12 is associated continued www.axappphealthcare.co.uk/members 9 Periodic limb movement disorder (restless legs syndrome) continued with RLS as is pregnancy. Nerve damage due to diabetes, kidney failure or rheumatoid arthritis can also contribute to RLS. Some types of medication have been found to predispose to the condition, including lithium, betablockers, some antidepressants and some epilepsy drugs. How is it diagnosed? The doctor usually makes the diagnosis from the description of the symptoms given by the patient. He or she may examine the sufferer mainly to rule out other possible causes of leg pain and restlessness such as some nerve disorders. Blood tests may also be performed both to exclude other illnesses and to look for associated conditions such as those described above. In difficult cases the GP may refer the individual on to a neurologist (nerve specialist) to confirm the diagnosis and, in those patients who have severely disturbed sleep, sleep studies may be performed in a special hospital setting. How is it treated? The type of treatment given will depend on various factors, including how severe the individual’s symptoms are, how long they have had them and what else has already been tried. First, the patient may be given general advice to help with sleep such as making sure they have a bed time routine, a comfortable bed and possibly a warm drink (not tea or coffee) before bed. Second, any associated conditions such as iron or vitamin deficiency will be treated. One third of elderly patients with RLS have iron deficiency and its correction will often reduce the symptoms of RLS. The doctor also may want to check what other medication the person is taking in case they include one or more drugs known to aggravate the condition. The result may be a change in medication to something more suitable. Those with severe symptoms may be offered medication. Several types of treatment have been shown to benefit people with RLS including medications such as Levodopa, Bromocriptine, Oxycodone, Clonazepam and various others. Ropinirole (Requip) is an alternative treatment that is being prescribed off licence more and more now for this issue. The choice of medication will be advised by the GP or specialist and may be an individual thing. One patient will respond to one type of medication but not another, so a system of trial and error may be needed before the best treatment is found for a particular person. 10 www.axappphealthcare.co.uk/members Further information Apart from contacting your GP, the following organisations may offer further help British Sleep Society PO Box 247 Huntington PE28 3UZ Web: www.sleeping.org.uk The Narcolepsy Association UK (UKAN) PO Box 13842 Penicuik EH25 8WX Tel: 0845 450 0394 Web: www.narcolepsy.org.uk 11 www.axappphealthcare.co.uk/members Healthy Living Guides For ease the Healthy Living Guides have been grouped into six different sections and have been given a number which you can use to request them on the form overleaf. Next to each guide is a list of the subjects that are described in each one. If you have requested Healthy Living Guides in the past you will notice that there are now fewer guides. However, all the subjects that we tackled in those guides are included in this new list along with a number of new topics. Healthy Living – our practical guides for living healthily 1 Healthy living – cholesterol, exercise, stress and relaxation 2 Healthy eating – diets, alcohol moderation and a height/weight chart 3 Sleep – how to get a good night’s sleep 4 Common allergies 5 Infectious diseases and their treatment The Body – a look at some of the most common medical conditions 6 Back and spine – back pain, sciatica and slipped discs 7 Skeletal system – arthritis, osteoporosis, fractures and knee replacements 8 Ear, nose and throat – tinnitus, hearing loss, sinusitis, snoring and tonsillitis 9 Eyes – cataracts, long and short sightedness and macular degeneration 10 Brain – migraines, strokes and epilepsy 11 Heart – hypertension, angina, varicose veins and heart surgery 12 Intestines – irritable bowel syndrome, hiatus hernia and diverticular disease 13 Lungs – bronchitis and asthma 14 Skin – psoriasis and eczema First aid – developed in association with the Red Cross 15 First aid for adults 16 First aid for children Cancer and its treatment 17 Cancer – a general introduction 18 Male specific cancers 19 Female specific cancers Life stages – advice on medical conditions specific to certain life stages 20 Childhood – head lice, chickenpox, whooping cough, mumps and rubella 21 Life begins at 50 12 www.axappphealthcare.co.uk/members Other subjects include 22 A–Z of medical terminology and tests 23 Male and female fertility 24 Dealing with depression 25 Travel health guide 26 Diabetes 27 CT and MRI scans 28 Before and after an operation 29 Pregnancy and postnatal care 30 Dealing with the menopause Health at Hand fact sheets If you have found the information in this guide interesting and you have any further questions then please call Health at Hand on 0800 003 004. They are available to take your call 24 hours a day, 365 days of the year. Health at Hand can access one of the largest medical databases in Europe to answer your questions or send you one of over 180 fact sheets on all the subjects that are covered by the Healthy Living Guide series and many more. These subjects are discussed in this guide: insomnia narcolepsy obstructive sleep apnoea restless legs syndrome. These subjects are not discussed in this guide: stress. The Health at Hand team work with medical journalists to update its fact sheets and add new subjects regularly so if you don’t see the subject you require further information on then please give them a call and if they have a fact sheet they will send it to you. 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