Appendix D Health Protection Agency Centre for Infections British Association for Sexual Health and HIV GUMCAD(2) Genitourinary Medicine Clinic Activity Dataset Guidance to clinic staff Authors : Revision date ESHSs Update : : Version Implementation completion date : : Dr. Gwenda Hughes, Dr. Immy Ahmed, Ms. Geraldine Leong, Dr Mary Poulton 23rd June 2010 Jordana Peake (Oct 2010 and July 2011) Re-issue with SHHAPT codes (V11) 31st December 2011 GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 1 of 32 Appendix D Contents 1 Document control .................................................................................. 3 2 Introduction ........................................................................................... 4 3 Collection and recording guidance ........................................................ 5 Patient registration details at first attendance ........................................ 5 Attendance type ..................................................................................... 6 Attendance date ..................................................................................... 7 Clinical details and SHHAPT (KC60)/READ coding .......................... 8 Other guidance ...................................................................................... 9 4 Reporting and transmitting data to the HPA ....................................... 10 Description .......................................................................................... 10 Running extracts .................................................................................. 10 Extract format ...................................................................................... 10 Reporting time period.......................................................................... 11 Frequency of reporting ........................................................................ 11 Transmission of the data extract to the HPA....................................... 11 Overlap with the Sexual and Reproductive Health Activity Dataset 11 5 How the HPA uses the data ................................................................. 12 Purpose of the GUMCAD return ........................................................ 12 Types of output.................................................................................... 12 Reporting time period.......................................................................... 13 Frequency of reporting ........................................................................ 13 Report format ...................................................................................... 13 Presentation of local area data ............................................................. 13 Recipients of routine reports ............................................................... 13 Distribution of reports ......................................................................... 13 6 Confidentiality and anonymity ............................................................ 14 7 Contact information for support and guidance .................................... 16 8 Appendix 1: Data items collected on the GUMCAD return ............... 17 9 Appendix 2: Summary of format and available coding options for data items collected on the GUMCAD return ..................................... 18 10 Appendix 3: SHHAPT codes, suffixes and definitions ....................... 21 11 Appendix 4: Reduced list of READ codes .......................................... 29 12 Appendix 5: Full Sexual Health READ code list ................................ 31 13 Appendix 6: GUMCAD and SRHAD mapping .................................. 32 GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 2 of 32 Appendix D 1 Document control Document control topic Current version Current status Authors Reviewers Issued to Details Document intended to provide guidance to front line staff responsible for capturing and entering GUMCAD data into systems and reporting to the HPA. Draft revision Author name Section amended/ Date added amended Gwenda Hughes All 14/04/10 Gwenda Hughes 4,6,7,9 15/04/10 Gwenda Hughes Mary Poulton Gwenda Hughes Code names updated 13/05/10 3,6 14/06/10 Appendices 23/06/10 Jordana Peake Mandy Yung Jordana Peake GUMCAD2 update GUMCAD2 update GUMCAD2 update 27/10/10 28/10/10 20/07/11 Reviewer name Section reviewed Geraldine Leong All Date reviewed 15/04/10 Person(s) issued to Date issued File reference GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 3 of 32 Appendix D 2 Introduction 2.1 This document is intended for front line NHS staff responsible for the collection and recording of data used to generate the Genitourinary Medicine Clinic Activity Dataset (GUMCAD) and to those responsible for reporting the data to the Health Protection Agency (HPA). 2.2 The GUMCAD return includes patient demographic details collected at patient registration at their first attendance, and clinical and risk factor data collected during the patient consultation. Collection of patient registration details is usually led by data entry clerks, front desk staff including receptionists, information technology, administrative or secretarial staff. Clinical coding and the collection of risk factor information is usually led by clinical staff supported by the above staff. Running and transmitting reports for the HPA is usually led by administrative staff supported by information technology staff. 2.3 The GUMCAD data support the monitoring and reporting of STIs including historical trend data. From April 2008, the structure of the return has been revised to include additional data items which will improve the public health utility of the data and will facilitate robust assessment of local service needs. This enables informed planning and allocation of resources at national, regional and local levels and is important in the drive to reduce the level of Sexually Transmitted Infections (STIs) nationally. The more informed the planning and decision-making process, the better the allocation of limited resource to effective treatment of STIs. 2.4 This document will provide staff with a guidance explaining how to collect and record each data item. It also provides detailed instructions on how and when to report the return to the HPA. 2.5 This guidance focuses on the items needed only for GUMCAD reporting. For reporting of other data-sets, such as GUM Access Monthly Monitoring, please refer to the appropriate guidance (DSCN 39/2007; www.isb.nhs.uk). 2.6 The GUMCAD return is electronic rather than paper-based. The data items collected on the GUMCAD return are shown in Appendix 1. The required format and coding options for these data items are given in Appendices 2 and 3. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 4 of 32 Appendix D 3 Collection and recording guidance 3.1 This section covers what to record when and deals with some of the common problems which may be encountered. Local systems and processes vary so the application of this guidance should be checked with your manager, software provider or with staff at the HPA if any issues arise. 3.2 The guidance covers the collection and recording of data relevant to the GUMCAD return, and includes: Patient registration details at the patient‟s first attendance Attendance type when the booking is made Attendance date when the patient attends for the appointment Clinical details and SHHAPT (KC60)/READ coding during and after the clinical consultation 3.3 The remainder of this section details what needs to be collected and recorded at each of these points. Patient registration details at first attendance 3.4 When a patient attends the clinic for a booked appointment or to a walk-in service, the patient should be registered and standard demographic details collected. Some patients may already have provided some basic registration information when calling to make the appointment. 3.5 Some of the registration details are also required for the GUMCAD return. This section provides some additional guidance on recording the GUMCAD specific registration details. 3.6 To generate the GUMCAD return, the following items need to be collected from, or created for, all patients during patient registration at their first attendance: Postcode of residence Date of Birth Gender Ethnicity Country of Birth Unique Patient Identifier number 3.7 The various options that can be recorded for each of these data items are summarised in Appendix 2. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 5 of 32 Appendix D 3.8 Postcode of residence: The postcode of residence enables most systems to generate Primary Care Trust and Lower Super Output area of residence, both of which are required for the GUMCAD return. If the patient does not provide their postcode, the patient should be asked to provide their PCT or borough of residence. Otherwise, the post code should be recorded as „Not known‟ (however this is recorded on your clinic system) or left blank. The post code of the clinic should not be entered. 3.9 Date of birth: Date of birth allows the system to generate the age of the patient at the date of attendance. Age at the date of attendance is required for the GUMCAD return. 3.10 Gender: Gender should be specified by the patient. „Not Specified‟ should be recorded where gender cannot be classified as either male or female and „Not Known‟ where the patient does not provide the information. 3.11 Ethnicity: Ethnicity should be specified by the patient from the standard list. „Not stated‟ should be recorded where the patient does not provide the information. 3.12 Country of Birth: Country of birth should be selected from the standard list. 3.13 Unique Patient Identifier: Most systems will automatically generate a unique Patient Identifier number at patient registration. 3.14 Some patients may not provide all these details. This should not prevent them being registered and accessing the service. If not all these details are collected at the first attendance, it may be possible to collect some further information at subsequent patient attendances. Attendance type 3.15 When the booking is made the attendance type must be recorded. The GUMCAD return requires information on the type of the appointment to distinguish new and follow-up patient attendances, and whether these are face-to-face or telephone/telemedicine consultations. The national categories, as defined by the NHS Data Dictionary, are as follows: First attendance face-to-face Follow-up attendance face-to-face First telephone or telemedicine consultation Follow-up telephone or telemedicine consultation. A first face-to-face attendance refers to a patient at the start of any new episode of care. A follow-up face-to-face attendance refers to a patient attending a follow-up appointment for a pre-existing condition. The same definitions apply to telephone or telemedicine consultations. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 6 of 32 Appendix D 3.16 The coding options for attendance type categories are given in Appendix 2. 3.17 In most clinic software systems, first patient attendances are further distinguished as either new or re-book attendances. A new patient attendance refers to patients at the start of a new episode who are being registered and seen at the clinic for the first time, and a re-book patient attendance to patients at the start of a new episode who were registered at the clinic during a previous episode. Criteria for booking new or re-book appointments are as follows: (1) The patient has never before attended the service (2) the reason for attendance is not related to any previous visit by that patient, and (3) the patient was discharged following their last visit or was not required to attend for a follow-up visit. New and re-book attendances are not distinguished on the GUMCAD return. However, for local patient management and commissioning purposes it is advisable to continue to record attendance information in this way on your clinic system if possible. 3.18 Please note the recording of first and follow-up attendances may be automated in your system. Attendances by a patient within 26 weeks of their last attendance will usually be classified as a follow-up attendance by clinic software. Attendances by a patient 26 weeks or more after their last attendance will usually be classified as a first or re-book attendance by clinic software. However, patients will frequently return to the clinic within 26 weeks with a new episode or problem and these patients should be reregistered and coded as a first (re-book) attendance. In order to invoke a re-book attendance you must close the previous episode by discharging the patient or make it very clear in the case records that no further follow up is planned. Consequently, you should manually change the attendance type details in the clinic software if an episode is closed within, or should extend beyond, the 26 week default interval. If you are unsure, please check with clinical staff to determine exactly how these items are to be recorded. 3.19 Information from patients with a booked appointment but who did not attend (DNAs) is not included in the GUMCAD return. Attendance date 3.20 When the patient attends for the appointment the Attendance Date must be recorded. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 7 of 32 Appendix D Clinical details and SHHAPT (KC60)/READ coding 3.21 During the clinical consultation, the following items need to be recorded for all patients: Sexual orientation Sexual Health and HIV Activity Property Type (SHHAPT)1 or READ code 3.22 Data may be recorded directly onto the system by the clinician during the consultation or written in the clinical notes. The data entry process may therefore vary by clinic i.e. it may be entered by the clinician or transcribed later from clinical notes by administrative or other staff. Sexual Orientation: 3.23 Patients will have a sexual history taken during the clinical consultation. Detailed guidelines on taking a sexual history have been developed by BASHH and should be followed closely („National Guideline for Consultations requiring Sexual History Taking‟, BASHH 2005). For the GUMCAD return, it is necessary to determine and record the Sexual Orientation of the patient2. The system default should be set as „Unknown‟ but it is important to record specific and accurate information whenever possible. Sexual orientation should be collected for both males and females. 3.24 The coding options for sexual orientation are given in Appendix 2. SHHAPT/READ codes: 3.25 Each item of service provided or diagnosis made in a GUM clinic and in some ESHSs is described by a SHHAPT code. Enhanced general practices and sexual and reproductive health (SRH) services using GP software, will use the national READ coding system. At least one SHHAPT/READ code must be recorded for each first patient attendance. A SHHAPT/READ code may also be appropriate at certain followup attendances. Where possible, the SHHAPT/READ code should be recorded on the system or in the clinical notes during or immediately after the consultation. For those situations where this is not possible e.g. where the results from tests are awaited, codes should be recorded as soon as this is possible. 3.26 All SHHAPT/READ codes should be used only once per patient episode. The exception is the SHHAPT code H2 which should be used every time a patient attends for HIV related care (i.e. it is attendance based). This is because H2 codes may be used to extract information for SOPHID (Survey of Prevalent HIV Infections Diagnosed) patients. 1 Previously known as KC60 codes. Sexual orientation is collected because route of transmission („How acquired‟) is not appropriate for service provision codes such as „sexual health screen‟. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 8 of 32 2 Appendix D SHHAPT codes with descriptions and guidance on how they should be used are given in Appendix 3. A reduced list of READ codes has been developed by the HPA and is included in Appendix 4; a more comprehensive list is included in Appendix 5. However, this list is not exhaustive and is subject to change due to the release of new READ codes. Any national sexual health READ code may be submitted by clinics using READ codes. Other guidance 3.27 Supportive arrangements should be made where necessary for patients who do not have English as a first language, or who are visually impaired or have other disabilities that may affect their ability to complete the form e.g. literacy. 3.28 Patients should be made aware that the questions on the registration form and at sexual history taking are designed to help manage their care. 3.29 Clinics should be aware that some patients will have questions regarding these items. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 9 of 32 Appendix D 4 Reporting and transmitting data to the HPA Description 4.1 Each GUM clinic and ESHS is required by law to produce a quarterly electronic data extract of all patient attendances and diagnoses at GUM clinics/ESHSs with associated patient information for the GUMCAD statistical return. These extracts are submitted to the Health Protection Agency (HPA) Centre for Infections for processing and analysis. The data items collected on the GUMCAD return are shown in Appendix 1. All specified fields are mandatory and must be reported1. Running extracts 4.2 In the majority of cases, the clinic‟s computer software will have a routine query tool to run the GUMCAD extract. This process is likely to vary according to the software your clinic uses, so please refer to your software provider‟s training material for specific guidance where necessary. 4.3 A Morbidity Information Query and Export Syntax (MIQUEST) query is currently under development and will be distributed to all ESHSs that are using GP software. The tool will automate extraction for these services and the extraction is dependant upon all information collected during a sexual health consultation being recorded in a designated template. Extract format 4.4 Once you have run the query, the GUMCAD extract report should be formatted into a single comma delimited CSV file2. The format of the CSV file is presented in Appendix 1. An example of the field content for one row of data is shown below and is used to illustrate how the data should appear in the CSV file. If you think the format of your extract differs from the one below, please contact your software provider for further advice. Files that do not match this format cannot be uploaded into the database at the HPA. Example of CSV format for GUMCAD2 for services using SHHAPT codes for one row of data ClinicID,PatientID,KC60,Gender,Age,Sex_Ori,Ethnicity,Country_Birth,PCT,LSOA,First_Attendance,AttendanceDate RCC25,PAT123,C10A,1,16,1,A0,GBR,5K9,E01000001,1,2007-10-31 Example of CSV format for GUMCAD2 for services using READ codes for one row of data ClinicID,PatientID,READ,Gender,Age,Sex_Ori,Ethnicity,Country_Birth,PCT,LSOA,First_Attendance,AttendanceDate RCC25,PAT123,A98z.11,1,16,1,A0,GBR,5K9,E01000001,1,2007-10-31 1 The only exception is that a SHHAPT code need not be supplied for follow-up attendances. HPA are working with software providers towards changing GUMCAD files to XML format to be compliant with eGIF standards. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 10 of 32 2 Appendix D Reporting time period 4.5 Each GUMCAD extract should cover one calendar quarter. Frequency of reporting 4.6 Reports should be run quarterly, at least seven days after the end of the calendar quarter but no later than six weeks after the end of the calendar quarter. You must therefore ensure that patient records have been updated with the appropriate SHHAPT/READ codes (except in the minority of cases where results are delayed) and that these have been entered onto your computer system within 6 weeks of the end of the quarter. The GUMCAD Team at the HPA will send you a reminder two weeks before the deadline. Failure to meet the deadline will result in a null return for your clinic‟s data in quarterly feedback reports to the Department of Health and Trust managers. If you have concerns that you are unlikely to be able to meet this deadline please contact the GUMCAD Team at the HPA for advice as soon as possible. Transmission of the data extract to the HPA 4.7 GUMCAD data extracts must be submitted to the HPA through the HIV/STI web portal. This portal enables organisations to distribute files to previously identified users in a secure manner across the Internet. Use of the portal requires a login account name and password, which will be provided to you by the GUMCAD Team at the HPA Centre for Infections. Requests for user accounts should be sent to: [email protected]. The web portal can be found at: https://www.hpawebservices.org.uk/HIV_STI_Webportal/ Overlap with the Sexual and Reproductive Health Activity Dataset (SRHAD) 4.8 Sexual and reproductive health services are also expected to submit SRHAD to the NHS Information Centre. SRHAD provides data on contraception provision and other SRH activities carried out at SRH services. A number of data items within SRHAD and GUMCAD overlap (see Appendix 6), SRH services are not expected to complete these data items twice, but to continue to record the information routinely into their IT system. It is down to the development of the software to extract the relevant information to the specific dataset. Both SRHAD and GUMCAD data items comply with NHS Data Dictionary formatting and conditions. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 11 of 32 Appendix D 5 How the HPA uses the data Purpose of the GUMCAD return 5.1 The GUMCAD data are collected and analysed to monitor trends in new diagnoses of sexually transmitted infections (STI) and other sexual health problems and to determine which specific groups are at particular risk. For example, the data can be used to identify (1) emerging syphilis outbreaks in particular localities, (2) increasing gonorrhoea transmission among certain ethnic groups, or (3) HIV or other STI risk in specific immigrant populations. This information is used to inform the public health response by: Improving the planning and management of services. Developing, adapting and refining interventions. Monitoring the effectiveness of sexual health policies. Types of output 5.2 In addition to the HPA‟s main annual publication on HIV and Sexually Transmitted Infections, the agency aims to produce timely routine outputs of data at the local, regional and national level. The HPA has launched a GUMCAD data reporting tool available on the HIV/STI web portal. The tool enables clinic, PCT, SHA and HPA staff to run summary reports of aggregated data at the clinic or PCT level. These reports can be accessed at https://www.hpawebservices.org.uk/HIV_STI_Webportal/ using your user name and password. 5.3 The following reports are available or are in development: Phase 1 • Numbers of Selected STI Diagnoses • Sexual Health Screens • HIV Test Offer and Uptake • Patient Flow for Each PCT and SHA • Rates of Selected STI Diagnoses Phase 2 • Numbers of All Diagnoses and Services Provided • Data Completion/Data Quality • Yearly Trends for Selected STI Diagnoses • Reporting compliance GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 12 of 32 Appendix D Reporting time period 5.4 HPA output reports will cover quarterly and annual periods. Frequency of reporting 5.5 The HPA will update the data for running reports quarterly. Data from clinics should be received by HPA within 6 weeks after the calendar quarter. HPA aims to make updated reports available 2 weeks thereafter. Report format 5.6 Automated reports will be produced in pdf and Microsoft Excel format. Presentation of local area data 5.7 Following recent guidance issued by the Office of National Statistics on the risk of deductive disclosure in small area statistics, the HPA has agreed with the Department of Health (DH) that clinic and LSOA level STI data tables will not be published by the HPA, in hard copy or on the website. Some PCT level data may be published in tables provided that these have been assessed and considered not to be at risk of deductive disclosure. 5.8 Clinic, PCT and Local Authority level data tables will be distributed in confidence to relevant organisations within the NHS, DH, local government and HPA. 5.9 When PCT or clinic level data are requested by other organisations (such as for Freedom of Information requests or Parliamentary Questions), then all cell sizes with counts of between 1 and 4 inclusive, and any associated „Totals‟ columns that would allow these cells to be deduced, will be blanked out (unless these have previously been assessed and considered suitable for publication). 5.10 Maps of STI rates by area of residence, where rates are grouped into categories, may be published in reports and on the HPA website. Recipients of routine reports 5.11 Reports will be made available to all clinics, PCTs, SHAs, Health Protection Units, Local Authorities, and the Department of Health. Distribution of reports 5.12 Reports will be made available across the HIV/STI web portal and will require a valid user name and password for access. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 13 of 32 Appendix D 6 Confidentiality and anonymity 6.1 Wherever possible, due to the sensitive nature of the data collected, system controls should be put in place to ensure that only those individuals for whom it is necessary to see certain patient information, are able to see it. EMIS LV is the biggest software supplier for enhanced general practice and there are system controls in place which means that clinicians have the highest level of access and are able to see all patient data and system administrators will only be able to see certain patient data. 6.2 Some patients may express concern regarding supplying their data and it being reported to the HPA. If so, the following approach should be taken: Explain the uses to be made of the data i.e. what they are consenting to, which is to allow information to be recorded and reported to improve the service and to protect public health. This will reassure the vast majority of patients. When necessary, patients should be reassured that their personal data are held in strict confidence and that no personally identifiable information will be reported to the HPA. Patients can also be provided with the HPA leaflet “Information and the Health Protection Agency” for further information. These leaflets have been distributed to your clinic but can also be accessed on the HPA website here: http://www.hpa.org.uk/ProductsServices/InfectiousDiseases/ServicesActivities/Sur veillance/SafeguardingTheConfidentiality/ If there are still on-going concerns, systems allow for the use of aliases. Whilst this is not ideal it is preferable to not recording the data at all. This should then allow for the reporting of data for these patients. If a patient‟s data has been submitted to the HPA and the patient later objects, you should contact the GUMCAD Team at HPA with the patient‟s unique ID number and your clinic code so that HPA staff can delete the relevant patient‟s records on the database. 6.2 The HIV/STI web portal enables organisations to distribute any type of files to previously identified users in a secure manner across the Internet. The HIV/STI web portal can be found at: https://www.hpawebservices.org.uk/HIV_STI_Webportal/. Use of the portal requires a login account name and password, which will be available from the project administrator at the Centre for Infections. The portal supports the Secure Sockets Layers (SSL) method of communication. 6.3 All staff within the HPA have a legal duty to keep patient information confidential. All records are kept securely in compliance with the Caldicott Guidelines. The HPA stores personal health information on secure servers and all databases are password protected. Access to the data is strictly controlled and limited to those directly involved in the collation of the data. Disaggregated data are retained for a maximum of 8 years from the date of patients‟ last attendance. 6.4 Following recent guidance issued by the Office of National Statistics on the risk of deductive disclosure in small area statistics, the HPA has agreed with the DH that clinic and LSOA level STI data tables will not be published by the HPA, in hard copy GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 14 of 32 Appendix D or on the website. Some PCT level data may be published in tables provided that these have been assessed and considered not to be at risk of deductive disclosure. Clinic, PCT and Local Authority level data tables will be distributed in confidence to relevant organisations within the NHS, DH, local government and HPA. When PCT or clinic level data are requested by other organisations (such as for Freedom of Information requests or Parliamentary Questions), then all cell sizes with counts of between 1 and 4 inclusive, and any associated „Totals‟ columns that would allow these cells to be deduced, will be blanked out (unless these have previously been assessed and considered suitable for publication). Maps of STI rates by area of residence, where rates are grouped into categories, may be published in reports and on the HPA website. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 15 of 32 Appendix D 7 Contact information for support and guidance 7.1 Further guidance on collecting, recording and reporting data for the GUMCAD return is available from: GUMCAD Reporting Team, STI Section Department of HIV and STIs Health Protection Agency Centre for Infections 61 Colindale Avenue London NW9 5EQ Tel: 020 8327 7469 Fax: 020 8200 7868 [email protected] http://www.hpa.org.uk/gumcad GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 16 of 32 Appendix D 8 Position * Appendix 1: Data items collected on the GUMCAD return Field Name Description 1 ClinicID Clinic ID code 2 PatientID Local patient identifier number 3 KC60 SHHAPT code 4 READ Sexual Health/HIV READ code 5 Gender Gender 6 Age Age at attendance date in years 7 Sex_Ori Sexual orientation 8 Ethnicity 9 Country_Birth 10 PCT PCT of residence code 11 LSOA Lower Super Output Area of residence code 12 First_Attendance Attendance type 13 AttendanceDate Date of attendance Patient‟s ethnic category Patient‟s country of birth NHS Data Dictionary Data Element SITE CODE (OF TREATMENT) LOCAL PATIENT IDENTIFIER SEXUAL HEALTH AND HIV ACTIVITY PROPERTY TYPE DIAGNOSTIC OR PROCEDURE CODING (SEXUAL HEALTH AND HUMAN IMMUNODEFICIENCY VIRUS RELEVANT READ CODE PERSON GENDER CURRENT AGE AT ATTENDANCE DATE SEXUAL ORIENTATION (CURRENT) ETHNIC CATEGORY COUNTRY CODE (BIRTH) ORGANISATION CODE (PCT OF RESIDENCE) LOWER LAYER SUPER OUTPUT AREA (RESIDENCE) FIRST ATTENDANCE ATTENDANCE DATE Variable Length≠ Example± AN(5) RCC25 AN(10) PAT123 AN(5) C10A AN(7) A78A.00 N(1) 1 N(3) 16 N(1) 1 AN(2) A0 A(3) GBR AN(3) 5K9 AN(9) E01000001 N(1) N(10) CCYYMM-DD 1 2007-10-31 *Refers to the horizontal position of the field within CSV format ≠ AN = Alpha-numeric, N = Numeric, A = Character. Number in brackets denotes the string length. ± Example of field content, also used to illustrate extract format expected GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 17 of 32 Appendix D 9 Appendix 2: Summary of format and available coding options for data items collected on the GUMCAD return Data item Format and coding options Clinic ID Format/length: an5 PatientID Format/length: an10 Note: This is a number used to identify a PATIENT uniquely within a Health Care Provider. It may be different from the Patient‟s case note number and may be assigned automatically by the computer system. KC60/SHHAPT Format/length: an5 National Codes: The national SHHAPT codes and their definitions are given in sections 4.4 – 4.6 Notes: SEXUAL HEALTH AND HIV ACTIVITY PROPERTY TYPE renamed from GENITOURINARY EPISODE TYPE Format/length: an7 National Codes: A reduced list of national READ codes and their definitions are given in appendix 4 and a fuller list in appendix 5. Notes: ESHSs will either supply their diagnostic/clinical codes in the form of SHHAPT codes under the data item “KC60” as SHHAPT codes or as READ codes under the data item “READ”. READ codes can be mapped to SHHAPT codes nationally at the HPA to allow reporting of combined GUMCAD and GUMCAD2 data. READ Gender Format/length: n1 National Codes: 0 Not Known - means that the gender of the person has not been recorded. 1 Male 2 Female 9 Not Specified – means indeterminate, i.e. unable to be classified as either male or female Age Format/length: n3 This is usually derived as the number of completed years between the PERSON BIRTH DATE of the PATIENT and the ATTENDANCE DATE . However, age can be manually entered in the absence of patient date of birth. Not known = 999, i.e. date of birth not known and age cannot be estimated Sex_Ori Format/length: n1 National Codes: 1 Heterosexual 2 Homosexual 3 Bi Sexual 9 Unknown Ethnicity Format/length: an2 National Codes: White A British B Irish C Any other White background Mixed D White and Black Caribbean E White and Black African GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 18 of 32 Appendix D Data item Format and coding options F White and Asian G Any other mixed background Asian or Asian British H Indian J Pakistani K Bangladeshi L Any other Asian background Black or Black British M Caribbean N African P Any other Black background Other Ethnic Groups R Chinese S Any other ethnic group Z Not stated Country_Birth Format/length: A(3) Refer to the International Standard of Organisation (ISO) 3166-1 standard for actual list of alphabetic codes and countries. Where country of birth in unknown please record this as ZZZ Note: The 2-char alphabetic code must not be used. Max 3 Characters Reference: http://www.iso.org/iso/home.htm PCT Format/length: an3 Notes: PCT OF RESIDENCE is the same as the attribute ORGANISATION CODE. Derived from POSTCODE using mapping from the National Administrative Codes Service (NACS). There is a PCT (or equivalent) for each postcode in England, Wales, Scotland and Northern Ireland. Records where the patient‟s postcode has not been provided to generate PCT of residence should be allocated to „not known‟ and coded "Q99". Postcodes outside the UK (overseas visitors) should be allocated to „not applicable‟ and coded as “X98”. http://www.connectingforhealth.nhs.uk/technical/standards/nacs LSOA Attend_type Format/length: an9 List of English Lower Super Output Area codes available at http://www.statistics.gov.uk/geography/soa.asp http://neighbourhood.statistics.gov.uk/dissemination/Info.do?page=SOAConstitutions.htm There is a Lower Layer Super Output Area for each postcode in England and Wales. Postcodes in Scotland, Northern Ireland, Channel Islands or Isle of Man should be coded “Z99999999”. Records where the patient‟s postcode has not been provided to generate LSOA of residence should be allocated to „not known‟ and coded “X99999999”. Postcodes outside the United Kingdom should be allocated to „not applicable‟ and coded “X99999998”. Format/length: n1 The National Codes for „FIRST ATTENDANCE‟ in the NHS Data Dictionary are: 1 First attendance face to face 2 Follow-up attendance face to face 3 First telephone or telemedicine consultation 4 Follow up telephone or telemedicine consultation GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 19 of 32 Appendix D Data item Format and coding options AttendanceDate Format/length: n10 – ccyy-mm-dd GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 20 of 32 Appendix D 10 Appendix 3: SHHAPT codes, suffixes and definitions A. DIAGNOSIS OF INFECTION, CONDITION OR DISEASE SHHAPT code Description Definition and guidance A1 Primary syphilis This refers to primary infectious syphilis. Laboratory confirmation is required. A2 Secondary syphilis This refers to secondary infectious syphilis. Laboratory confirmation is required. A3 Early latent syphilis This refers to patients who acquired syphilis in the preceding 2 years who have no signs of primary or secondary syphilis. Proof of negative serology within the preceding 2 years is required. A4 Cardiovascular syphilis This refers to cardiovascular syphilis A5 Neurosyphilis This refers to syphilis of the nervous system. A6 All other late and latent syphilis This refers to latent syphilis after the first two years of infection and all other latent syphilis. Congenital syphilis Serological evidence of syphilis in an infant or child and clinical signs consistent with congenital syphilis, for example: Early (<2 years): snuffles, skin and mucous membrane lesions, lymphadenopathy, hepatosplenomegaly. Late (>2 years): gummatous ulcers, interstitial keratitis, optic atrophy, sensorineural deafness, Hutchinson‟s incisors. A7A This includes all cases of complicated and uncomplicated gonorrhoea (preand post-pubertal) involving any site. B Gonorrhoea Persistent/recurrent gonorrhoea: Treatment failures should not be given a new diagnosis. Treatment failures include those in whom first line antibiotics have failed (for example, symptoms not resolved, antibiotics not taken correctly) and those who have had sexual intercourse with an untreated partner (not a new partner) within 6 weeks. Patients who are thought to be newly infected after a previous episode of gonorrhoea should be regarded as a new GUM episode and be investigated, treated and diagnosed/coded accordingly. Rectal and pharyngeal site suffix codes may be added. The X suffix may be added where the patient is known to have been diagnosed with this infection episode at another non-GUM clinic health setting. C1 Chancroid Laboratory confirmation is essential for this condition. C2 Lymphogranuloma venereum Laboratory confirmation is essential for this condition. Rectal or pharyngeal site suffix codes may be added. C3 Donovanosis Laboratory confirmation is essential for this condition. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 21 of 32 Appendix D SHHAPT code Description Definition and guidance Chlamydial infection This includes all cases of complicated and uncomplicated Chlamydia trachomatis infections (diagnosed by culture or antigen detection) involving any site. Persistent/recurrent chlamydia: Treatment failures should not be given a new diagnosis. Treatment failures include those in whom first line antibiotics have failed (for example, symptoms not resolved, antibiotics not taken correctly) and those who have had sexual intercourse with an untreated partner (not a new partner) within 6 weeks. Patients who are thought to be newly infected after a previous episode of chlamydia should be regarded as a new GUM episode and be investigated, treated and diagnosed/coded accordingly. Rectal or pharyngeal site suffix codes may be added. The X suffix may be added where the patient is known to have been diagnosed with this infection episode at another non-GUM clinic health setting. C4N Non-specific genital infection This includes all cases of complicated and uncomplicated NSGI. Proctitis should be coded C4N with the rectal site suffix code i.e. C4NR. In males, NSGI is diagnosed in the absence of gonorrhoea and laboratory confirmed chlamydia and the presence of polymorphonuclear leucocytes at >5 per high power field. Females being treated for non-specific mucopurulent cervicitis are also to be coded C4N. Persistent/recurrent urethritis: Treatment failures should not be given a new diagnosis. Treatment failures include those in whom first line antibiotics have failed (for example, symptoms not resolved, antibiotics not taken correctly) and those who have had sexual intercourse with an untreated partner (not a new partner) within 6 weeks. Patients who are thought to be newly infected after a previous episode of nonspecific infection should be regarded as a new GUM episode and be investigated, treated and diagnosed/coded accordingly. C5A Pelvic inflammatory disease and epididymitis This includes all cases of pelvic inflammatory disease and all cases of epididymitis associated with chlamydial, gonococcal or non-specific infections. Can be used with the relevant infection code, where appropriate. Other complications should be coded D2B. C5B Opthalmia neonatorum This includes all cases of opthalmia neonatorum. Can be used with the relevant infection code. C6A Trichomoniasis If associated with bacterial vaginosis then code C6A only should be used. C6B Anaerobic/bacterial vaginosis and anaerobic balanitis Diagnosis of bacterial vaginosis is generally based on microscopy, pH vaginal fluid and the amine test. This diagnosis is very rarely appropriate in males and used only if the patient has confirmed anaerobic balanitis. Other and nonconfirmed anaerobic balanitis should be coded as C6C. Asymptomatic patients who do not require treatment should not be coded C6B. C6C Other vaginosis/vaginitis/ balanitis C4 C7 C8 Anogenital candidosis This is diagnosed only when there is microscopic or culture evidence of Candida infection. If no microbiological evidence then case should be coded as C6C. Asymptomatic patients who do not require treatment should be coded D3. Scabies This includes cases treated on either a clinical or epidemiological basis. Treatment failures should not be given a new diagnosis. Patients who are thought to be re-infected should be regarded as new cases, and investigated, treated and diagnosed/coded accordingly. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 22 of 32 Appendix D SHHAPT code Description Definition and guidance Pediculosis pubis This includes cases treated on either a clinical or epidemiological basis. Treatment failures should not be given a new diagnosis. Patients who are thought to be re-infected should be regarded as new cases, and investigated, treated and diagnosed/coded accordingly. C10A Anogenital Herpes simplex: first episode An episode should be recorded here only if the patient has never (as far as can be ascertained) previously had a confirmed diagnosis with anogenital herpes. Laboratory confirmation is essential. C10B Anogenital Herpes simplex: recurrence This should include all other episodes of anogenital herpes. If there has been previous confirmation, then clinical judgement is enough for this diagnosis. Anogenital warts infection: first episode An episode should be recorded here only if the patient has never (as far as can be ascertained) been previously treated for anogenital warts. C11A diagnosis refers to macroscopic warts, not acetowhite patches or abnormalities revealed by acetowhite staining, nor is the cytological finding of wart virus change sufficient to use this code. C9 C11A C11D C12 Anogenital warts infection: recurrence This should include all other episodes of anogenital warts and should only be used once per episode. C11D diagnosis refers to macroscopic warts, not acetowhite patches or abnormalities revealed by acetowhite staining, nor is the cytological finding of wart virus change sufficient to use this code. Molluscum contagiosum C13 Viral hepatitis B (HbsAg positive): First diagnosis C13 records a first diagnosis of antigen positive hepatitis B. Known carriers of hepatitis B who present at a clinic for the first time should also be coded as C13. All subsequent presentations of hepatitis B that require management should be coded as D2B. Subsequent attendances by carriers that are unrelated to hepatitis B management should not be coded. C14 Viral hepatitis C: First diagnosis This code records the first diagnosis of hepatitis C, defined as anti-HCV positive or HCV RNA positive. C15 Viral hepatitis A: acute infection This code records a diagnosis of acute hepatitis A, defined as detection of hepatitis A virus specific IgM antibodies. D2A Urinary tract infection Includes all patients with a positive culture, otherwise patients should be coded D2B. D2B Other conditions requiring treatment at GUM clinic H H1 H1A HIV positive This code is to be use for first (new or re-book) attendances in patients who are known to have previously been diagnosed with HIV infection in any clinical setting but who are not attending specifically for HIV-related care. Codes H, H1, H1A, H1B and H2 are all mutually exclusive. New HIV diagnosis This includes all new HIV diagnoses. Codes H, H1, H1A, H1B and H2 are all mutually exclusive. The X suffix may be added where the patient is known to have been diagnosed with HIV at another non-GUM clinic health setting. New HIV diagnosis: Acute This includes all new HIV diagnoses which have evidence of one or more of the following in the last 6 months: a) a documented negative HIV test b) laboratory evidence (e.g. RITA assay, RNA, neutralisable p24 antigen and antibody negative), or c) evidence of seroconversion illness. Codes H, H1, H1A, H1B and H2 are all mutually exclusive. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 23 of 32 Appendix D SHHAPT code H1B Description New HIV diagnosis: Late Definition and guidance This includes all new HIV diagnoses which have a clinical AIDS diagnosis within three months of their HIV diagnosis. Codes H, H1, H1A, H1B and H2 are all mutually exclusive. Attendance for HIVrelated care This includes all attendances relating to HIV care. Codes H, H1, H1A, H1B and H2 are all mutually exclusive. Once defined, standardised BASHH codes will enable stage of infection to be determined and thereby support reporting to the Survey of Prevalent HIV Infections Diagnosed (SOPHID) and for calculating PbR tariffs. P4A Cervical cytology: minor abnormality Includes smears showing lower grades (i.e. “borderline” or “mild”) of dyskaryosis on cytological examination. P4B Cervical cytology: major abnormality Includes smears showing moderate or worse (i.e. “moderate” or “severe”) dyskaryosis on cytological examination. H2 GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 24 of 32 Appendix D B. SERVICES PROVIDED New SHHAPT code Description Definition and guidance T1 Chlamydia test T1 should be used for patients tested for chlamydia but who are not tested for gonorrhoea or syphilis. T1 is mutually exclusive of T2, T3 and T4 but may be used with P1A, P1B and P1C. T2 Chlamydia and gonorrhoea tests T2 should be used to code a sexual health screen which includes gonorrhoea and chlamydia testing but excludes syphilis testing. T2 is mutually exclusive of T1, T3 and T4 but may be used with P1A, P1B and P1C. T3 Chlamydia, gonorrhoea and syphilis tests T3 should only be used to code a sexual health screen which includes gonorrhoea, chlamydia and syphilis testing but excludes HIV testing. T3 is mutually exclusive of T1, T2, T4 and P1A but may be used with P1B and P1C. T4 Full sexual health screen including HIV antibody test T4 is used to code a full sexual health screen including gonorrhoea, chlamydia, syphilis and HIV testing. T4 is mutually exclusive of T1, T2, T3, P1A, P1B and P1C. HIV antibody test This code is to be used for any HIV antibody testing done which is not part of a full sexual health screen as described by code T4. P1A is mutually exclusive of T3, T4, P1B and P1C but may be used with T1 and T2. HIV antibody test offered and refused This code refers to all patients offered an HIV test who decline the test even though the clinician believes there is some possible HIV risk that could be screened by testing on that day. The code is used regardless of whether a pretest discussion or counselling was given, or whether the patient intends to test in the future. P1B is mutually exclusive of T4, P1A and P1C. P1C HIV test inappropriate This code is used to describe a patient attendance where an HIV test was not offered because it was not appropriate or was offered but after discussion it was deemed not appropriate e.g. where the patient has been recently tested, is in the „window‟ period, is already known to be HIV positive etc. P2A Hepatitis B st vaccination: 1 dose P1A P1B st Only the 1 dose of any new Hepatitis B vaccination course should be included. This would include those patients who may have been vaccinated some time in the past but are now receiving the first dose of a new course of vaccination. Subsequent doses should be coded P2B/P2C and boosters should be coded as D2B. P2B Hepatitis B nd vaccination: 2 dose Includes only the second dose of a Hepatitis B vaccination course, including those who are known to have received a first dose at another clinic. P2C Hepatitis B rd vaccination: 3 dose Includes only the third dose of a Hepatitis B vaccination course, including those who are known to have received a first and/or second dose at another clinic. P2I Hepatitis B immune Includes patients who are ineligible for hepatitis B vaccination because they are already immune. This should only be recorded once, the first time a patient attends a particular clinic, or when first known to be immune. P4 Cervical cytology done Includes all patients who had cervical cytology done, regardless of outcome. W1 HPV vaccination: 1 dose Only the 1 dose of any new human papillomavirus vaccination course should be included. This would include those patients who may have been vaccinated some time in the past but are now receiving the first dose of a new course of vaccination. Subsequent doses should be coded W2/3. The Q suffix can be added if the quadrivalent vaccine is used. W2 HPV vaccination: 2 dose st st nd Includes only the second dose of a HPV vaccination course, including those who are known to have received a first dose at another clinic. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 25 of 32 Appendix D New SHHAPT code Description Definition and guidance rd W3 HPV vaccination: 3 dose Includes only the third dose of a HPV vaccination course, including those who are known to have received a first and/or second dose at another clinic. PN Partner notification initiated For use in Level 2 & Level 1 services only: Partner notification has been initiated for this patient by this clinic. PNC Partner notificationrelated attendance: Chlamydia This should be used for those presenting as a partner of an index case diagnosed with chlamydia (at this or any setting). If the partner is found to be infected with chlamydia he/she should also be coded C4. PNG Partner notificationrelated attendance: Gonorrhoea This should be used for those presenting as a partner of an index case diagnosed with gonorrhoea (at this or any setting). If the partner is found to be infected with gonorrhoea he/she should also be coded B. PNS Partner notificationrelated attendance: Syphilis This should be used for those presenting as a partner of an index case diagnosed with syphilis (at this or any setting). If the partner is found to be infected with syphilis he/she should also be coded A1, A2 or A3. PNH Partner notificationrelated attendance: HIV This should be used for those presenting as a partner of an index case diagnosed with HIV (at this or any setting). If the partner is found to be infected with HIV he/she should also be coded H1, H1A or H1B. PEPS Post exposure prophylaxis after sexual exposure (PEPSE) Used for patients given HIV prophylaxis following sexual exposure Contraception (excluding condom provision) This code will be used to record contraception (females only), including prescribing and family planning advice, and excluding condom provision. Condom provision should not be included. This code should not be used in sexual health services where SHRAD coding is in use. Other episodes not requiring treatment D3 is used to code any new patient episode where no treatment is given, whether or not a sexual health screen and/or an HIV test are/is performed. D3 can therefore be used to record an episode where a patient tests negative for all tests done, or where testing the patient is not indicated and otherwise no treatment is given. D3 may also be used to record any other contact with a patient for clinical purposes but which does not result in treatment. Patients who do not attend appointments may be coded D3 if a) they have already been triaged, or b) they have had contact with a health advisor. Otherwise patients who do not attend should not be coded D3. D3 can be used only once per patient episode. Prisoner The „Z‟ code is used to code the provision of a service to a patient known to be a current prisoner. Sex worker The „SW‟ code is used to code the provision of a service to a patient known to be a current sex worker. P3 D3 Z SW GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 26 of 32 Appendix D C. SUFFIXES TO CODES For a number of conditions it is useful to record additional information about the patient’s presentation or service given. This will be collected through the use of suffixes which can be appended to certain SHHAPT codes. Where appropriate, multiple suffixes can be used on the same SHHAPT code, however, for site of infection suffixes R and O, only one suffix should be used to describe an infection episode. Where multiple suffixes are used, they should be ordered R or O followed by X, M. (A complete list of permissible code permutations using suffixes is given in Table D). Suffix Description R Rectal infection O Pharyngeal infection X Diagnosed previously elsewhere M Medication given Q Quadrivalent HPV vaccine SHHAPT codes to be used with Definition and guidance for use The „R‟ suffix is added where a diagnosis includes infection of the anorectum. Where the patient is infected at multiple sites including the anorectum the patient need only be coded once using the root SHHAPT code and the „R‟ suffix. The „O‟ suffix is added where a diagnosis includes a pharyngeal infection but excludes anorectal and genital infections. 1 For use in Level 3 services only: The „X‟ suffix is added where a patient is known to have been diagnosed with their presenting condition at another non-level 3 (non-GUM clinic) health setting in the UK before this attendance. 2 For use in Level 2 & level 1 services only: The patient was given/prescribed treatment at this setting for the presenting condition. The M suffix should be used whether or not the patient is then referred for further management. The „Q‟ suffix is added where a patient being immunised against HPV receives the quadrivalent vaccine. B, C4, C2, C4N B, C4, C2 B, C4, H1, H1A, H1B B, C4, C10A, C10B, C11A, C11D. W1, W2, W3 1 Level 3 service = Specialist Sexual Health and HIV (or genitourinary medicine clinic) service Level 1 and level 2 services = Other commissioned sexual health services GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 2 Page 27 of 32 Appendix D D. PERMISSIBLE CODE PERMUTATIONS USING SUFFIXES Permissible combinations of SHHAPT codes and their suffixes are shown below: SHHAPT Code & Suffix Combinations BR BO BX BM BRX BRM BOX BOM C4R C4O C4X C4M C4RX C4RM C4OX C4OM C2R C2O C4NR H1X H1AX H1BX C10AM C10BM C11AM C11DM W1Q W2Q W3Q 1 Description LGV NSGI Rectal infection Pharyngeal infection Diagnosed previously elsewhere Medication given Rectal infection, Diagnosed previously elsewhere Rectal infection, Medication given Pharyngeal infection, Diagnosed previously elsewhere Pharyngeal infection, Medication given Rectal infection Pharyngeal infection Diagnosed previously elsewhere Medication given Rectal infection, Diagnosed previously elsewhere Rectal infection, Medication given Pharyngeal infection, Diagnosed previously elsewhere Pharyngeal infection, Medication given Rectal infection Pharyngeal infection Proctitis HIV Diagnosed previously elsewhere HSV Medication given Warts Medication given HPV vaccine Quadrivalent vaccine Gonorrhoea Chlamydia 1 Service type All All L3 L1,L2 L3 L1,L2 L3 L1,L2 L1,L2,L3 L1,L2,L3 L3 L1,L2 L3 L1,L2 L3 L1,L2 L1,L2,L3 L1,L2,L3 L1,L2,L3 L3 L3 L3 L1,L2 L1,L2 L1,L2 L1,L2 L1,L2,L3 L1,L2,L3 L1,L2,L3 L1 and L2 = Level 1 and level 2 commissioned sexual health services; L3 = Specialist Sexual Health and HIV (or genitourinary medicine clinic) services GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 28 of 32 Appendix D 11 Appendix 4: Reduced list of READ codes A. DIAGNOSIS OF INFECTION, CONDITION OR DISEASE READ code READ code description A78A.00 Chlamydial infection K420900 Chlamydia cervicitis A78A200 Chlamydial infection of anus and rectum A98z.11 Gonorrhoea A987100 Gonococcal rectal infection A980100 Acute gonococcal urethritis A981500 Acute gonococcal cervicitis A910.00 Primary genital syphilis A919.00 Unspecified secondary syphilis A92..00 Latent early syphilis A96..00 Late latent syphilis A90..00 Congenital syphilis A781200 Genital warts 7D03311 Cauterisation of vulval warts 7D03500 Painting of vulval warts 7732300 7732500 Cauterisation of perianal warts NEC Painting of perianal warts 7732400 Cryotherapy to perianal warts A541.00 Genital herpes simplex 43C3.11 HIV positive 65VE.00 Notification of AIDS K44..00 Female gonococcal pelvic inflammatory disease A981.00 Acute gonorrhoea upper GUT K40y100 Female chlamydial pelvic inflammatory disease K241600 Chlamydial epididymitis K4...00 Female pelvic inflammatory diseases K241.00 Epididymitis A984011 Ophthalmia neonatorum - gonococcal Q406713 Ophthalmia neonatorum - chlamydial A94..00 Neurosyphilis A990.00 Chancroid A991.00 Lymphogranuloma venereum A992.11 Donovanosis A994.00 Nonspecific urethritis AD1..00 Trichomoniasis - trichomonas K421911 Bacterial vaginosis AD22.12 Pediculus pubis - pubic lice A780.00 Molluscum contagiosum AD30.00 Scabies K190.00 Urinary Tract Infection, site not specified AB21.00 Candidal vulvovaginitis GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 29 of 32 Appendix D READ code READ code description 43B4.00 Hepatitis B surface antig +ve 43X3.00 Hepatitis C antibody test positive A701.00 Viral (infectious) hepatitis A B. SERVICES PROVIDED READ code READ code description 8I3T.00 Chlamydia screening declined 43jK.00 Chlamydia DNA detection 68K7.00 Urine screen for chlamydia 4JK9.00 Endocervical chlamydia swab 4JKA.00 Urethral chlamydia swab 4JKD.00 Low vaginal swab for chlamydia taken by patient 4JF42.00 Throat swab for chlamydia 4JH63.00 Anal swab for chlamydia 4JF43.00 Throat swab for gonorrhoea 4JH64.00 43U6.00 Anal swab for gonorrhoea Chlamydia test negative 8I3o.00 Gonorrhoea screening declined 4JLA.00 Gonococcal swab 4JKB.00 Gonococcal cervical swab 4JKC.00 Gonococcal urethral swab 4JQ8.00 Gonorrhoea test negative 43jA.00 Neisseria gonorrhoeae nucleic acid detection 8I3t.00 4381.00 Syphilis screening declined Syphilis titre test negative 438..00 Syphilis infectious titre test 62K..00 Antenatal syphilis screen 4JR7.00 HIV screening test 62b..00 Antenatal HIV screening 8I3p.00 HIV screening declined 43C2.11 HIV negative 43M..00 Hepatitis A test 43B..00 SH-antigen (hepatitis B) test 43X2.00 Hepatitis C antibody test 65X..00 Contact tracing 6151.00 IUD fitted 614..11 Oral contraception 61B..00 Depot contraceptive 61Z..00 Contraception NOS 8B2L.11 Condom issued GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 30 of 32 Appendix D 12 Appendix 5: Full Sexual Health READ code list Please click on the link below: Final READ code list for GUMCAD2 sites_200711.xlsx Clinics using Clinical Terms version 3 will also be able to submit these and a full list corresponding to the version 2 list will be sent out imminently. Although READ codes of length AN(7) have been listed here, READ codes of length AN(5) will also be accepted. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 31 of 32 Appendix D 13 Appendix 6: GUMCAD and SRHAD mapping DATASETS: GUMCAD (&2) Responsible Organisation: Data Submitted By: HPA GUM & ESHSs SRHAD NHS IC SRH services DATA ITEMS Patient Registration/Clinic Information Organisation ID Clinic ID Patient ID Gender Age Ethnicity Country of Birth PCT of Residence LSOA of Residence Responsible PCT First Attendance Date of Attendance Initial Contact Location Type Attendance Information * Clinical Details Sexual Orientation KC60 (code) READ (code) Contraception Method Status Contraception Main Method Contraception Other Method (1&2) Contraception Method Post Coital (1&2) SRH Care Activity *Proposed addition of LSOA of Residence to SRHAD to ensure data is available for a static geographical boundary due to possible changes to PCT boundaries. Application to add this data item into SRHAD is currently being considered by ISB. GUMCAD: Behavioural and Organisational Guidance 21.07.11; st Implementation completion date: 31 December 2011 Page 32 of 32
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