Person-Centered AR: Spreading the Word

Person-Centered AR:
Spreading the Word
Coordinating Committee
Jean-Pierre Gagné, Coordinator
Elizabeth Mauzé, Associate Coordinator
Kathy Cienkowski
Sarah Ferguson
Mary Rose McInerney
Sue Ann Erdman, Editor - Perspectives
Person-Centered AR:
Spreading the Word
AR Bibliography
AR Short Courses & Workshops
Prior ASHA AR Bibliographies
ASHA. (1990). Aural rehabilitation: an annotated
bibliography. Asha, 32 (Suppl. 1), 1–12.
ASHA. (2001). AR–BIB: Audiologic rehabilitation– basic
information bibliography. Rockville, MD: Author.
Psychosocial/Behavioral Adjustment
A. Disability and Handicap
B. Psychosocial Adjustment
C. Stigma
D. Marital and Family Impact
II. Deaf Culture
III. Functional Communication Assessment
A. Self-Assessment
1. General Considerations
2. Disability and Handicap Scales
3. Spouse/Family
4. Hearing Aid Benefit/Satisfaction
5. Additional Measures
B. Auditory Perception
C. Speechreading
D. Speech Production
E. Language/Literacy (Adults/Children)
F. Central Auditory Processing
IV. Rehabilitation Procedures
A. Demographic Considerations
B. Service Delivery
C. Counseling
I.
D. Communication Strategies
E. Auditory Training/Learning
F. Speechreading
G. Speech Production
H. Language/Literacy
I. Central Auditory Processing
J. Hearing Aid Orientation
V. Rehabilitation Technology
A. Hearing Aids
B. Cochlear Implants
C. Vibrotactile Aids
D. ALDs/ Hearing Assistive Technologies
VI. Communication & Education Approaches
A. ASL/Bilingualism
B. Cued Speech
C. Oral
D. A/V, Acoupedic, Aural
E. Total/Simultaneous
VII. Theory of Mind
VIII. Sensory Integration
IX. Communication Environments
X. Efficacy and Outcome
XI. Textbooks and Monographs
A decade later…
Scope of practice and our knowledge base have
expanded even further.
A single bibliography would be unwieldy, inevitably
limited, and would quickly become out-dated.
Online literature search engines are now common.
Easy to locate references and full articles on general or
specific topics.
But something is missing…
Audiology has become increasingly dominated by diagnostics
and technology.
Focus is on the audiogram rather than on the person and what
it means to live with hearing impairment.
This problem is evident throughout the audiologic literature
and in audiology curriculum & practicum requirements.
Decision: Create a bibliographic database that will promote a
paradigm shift.
Person-Centered AR Bibliography
Expand our horizons: Draw from relevant literature
throughout healthcare and social and behavioral sciences
Identify literature that
promotes person-centered care
promotes a biopsychosocial model of service delivery
is consistent with the WHO ICF
Bibliography is a foundation to
facilitate changes in AR curriculum & practicum
develop CE programs
provide directions for AR research
Why person-centered care?
Warmth, empathy, trust,
respect and unconditional
positive regard :
Define the working alliance
Are personal attributes that
the effective
counselor/clinician presents to
the client
Are more salient than any
other variables in the
treatment process
Carl Rogers, 1902-1987
Why person-centered care?
Compared to medical/disease focused approaches,
patient-centered approaches to care result in
greater patient satisfaction,
enhanced treatment adherence, and
better treatment outcomes
The biopsychosocial model
George Engel insisted that the
biomedical model is inherently
flawed because it cannot account for
individual differences in perceived
illness (i.e., the subjective experience
of disease and disability).
Engel’s patient-centered approach
is considered to be one of the 20th
century’s most significant
contributions to healthcare.
According to Google scholar, The
Need for a New Medical Model: A
Challenge for Biomedicine (1977) has
been cited 5,073 times.
George L. Engel (1913-1999)
What is included in a biopsychosocial model?
View of the patient as a “whole,” a person whose fundamental nature
is biologic, psychologic, and social
Triadic process of observation, introspection, and dialogue through
which the patient’s subjective experiences become scientific data
A patient narrative is elicited without interruptions and with
minimal prompting or interrogation
Mutual understanding of the patient’s narrative ensures inclusion of
his or her perceptions and experiences in the assessment and
diagnostic process
Practitioner-patient relationship that fosters shared and
complementary communication and responsibilities
Patient engagement in the treatment process and plans that are
intended to alleviate or resolve perceived illness or disability
Systems theory rather than reductionism as the approach to
analyzing and understanding health and illness.
SIG 7 AR Bibliography
Currently has 1000+ references
Biopsychosocial model: 52
Patient/Person Centered: 41
Narratives, the patient’s story: 26
Counseling: 211
Self-efficacy: 33
Empathy: 38
Therapeutic/working alliance: 36
Adjustment: 82
Mindful practice: 12
New Literature to Explore
Families, Systems, & Health
Gerontologist
Health Psychology
Journals of Gerontology
Journal of Rehabilitation
Medical Education
Rehabilitation Counseling Bulletin
Rehabilitation Psychology
Patient Education and Counseling
Social Science & Medicine
Person-Centered AR Workshops
Person-centered AR: A biopsychosocial paradigm
Worldwide AR: ICF and IDA
AR in academia: What’s in/out? What’s needed?
The role of counseling in person-centered AR
The effective counselor
Narratives: Implications of the person’s story
Goal setting: Using narratives & self-assessment
Ingredients of successful AR
New emphases: Empathy, self-efficacy, adherence, therapeutic
alliance, mindful practice
Outcome assessment: Program evaluation & research
Overcoming obstacles to change in academic and clinical settings
Workshop Presenters
Sue Ann Erdman
Jean-Pierre Gagné
Mary Beth Jennings
Elizabeth Mauzé
David J. Wark