Developing High-Quality, Functional IFSP Outcomes presented in collaboration with Presentation Goal Understand how to: • Develop functional, high quality IFSP outcomes • Rate the quality of the outcomes Functional Assessment Meaningful IFSP Outcomes 2 Using Information to Develop Outcomes 1) Start with parents’/caregivers’ priorities about child’s learning/development and/or family’s needs 2) Consider what’s working and what’s challenging in everyday routines and activities 3) Consider how the child’s developmental skills, needs and disability influence the child’s learning and participation in everyday routines and activities 3 Notes: There are 3 key pieces of information that need to be used when developing high quality IFSP outcomes: • First, it’s critical to start with the parent’s/caregiver’s priorities regarding what they hope for their child what is most important or meaningful to them. – Special focus should be placed on family desire related to participation in family and community activities. – Use open-ended questions to help parents and other care providers reflect on how they want the child to participate in activities and routines that are meaningful to them, as well as what factors impact their child’s successful participation. – Family priorities, not the practitioner’s priorities, should serve as the basis for a high quality, participation-based outcomes and goals. • Second, it is important to consider what’s working and what’s challenging at home and in the community. – Make note of those situations that are motivating and interesting to the child and family and those that impact participation in family and community life. – Ask parents what the child enjoys doing, what they enjoy doing together, and what parts of their day may not be going well 4 Notes, continued: • Third, is what has been learned from evaluation and assessment. – The EI professional must incorporate what has been learned during the evaluation and functional assessment process into the IFSP outcomes, including: • Child’s current levels of development • Child’s and family’s needs • Child’s disability and its impact on the child’s learning and participation in daily activities. All 3 pieces of information are critical for developing high quality outcome statements, as well as making decisions about strategies and activities that will most effectively promote incidental learning and the opportunity to practice new skills to meet the identified outcome. 5 Relationship of Outcomes to Placement and Services First… develop IFSP outcomes based on functional, authentic assessment information Then… determine placement, services and supports based on what is necessary to meet the outcomes/goals 6 Notes: • Remember to develop the outcome before determining location and type of services, and supports. – The services a child needs to receive should be based on the outcome, not the other way around. – Location of services should be based on whether or not the outcome and goal can be met in the natural environment. 7 Requirements for IFSP Outcomes IFSP must include: •A statement of the measurable results or measurable outcomes expected to be achieved for the child and family (including pre-literacy and language skills as developmentally appropriate for the child) •The criteria, procedures, and timelines used to determine the degree to which progress toward achieving the results or outcomes is being made and whether modifications or revision of the expected results or outcomes or services are necessary 34 CFR §303.344 (c) 8 Notes: The IDEA-Part C Regulations released in September 2011 state that an IFSP must include: • A statement of the measurable results or measurable outcomes expected to be achieved for the child and family (including pre-literacy and language skills as developmentally appropriate for the child); and • The criteria, procedures, and timelines used to determine the degree to which progress toward achieving the results or outcomes is being made and whether modifications or revision of the expected results or outcomes or services are necessary. 9 IFSP Outcomes • IFSP Outcomes: “What would your family like to see happen for your child/family?” • Two types of outcomes – Child Outcomes – Family Outcomes 10 Notes: • IFSP outcomes are equivalent to asking a family: “What would your family like to see happen for your child?” • There are two types of IFSP outcomes 1. Child outcomes 2. Family outcomes. 11 IFSP Child Outcomes Two types of child outcomes: • Participation-based • Routine/activity-based Child outcomes should: • Enhance learning through functional participation in everyday activities (child is learner/actor) • Be important and meaningful to the family/caregiver (priorities) • Expand activity settings so child can be competent • Be based on child’s interests 12 Notes: IFSP child outcome statements may be participation-based and ocus on the child’s interests and assets that will provide opportunities for learning and development. Child outcome statements may also be routine based and support activities that parents want or need to go more smoothly (i.e., mealtimes or bedtime routines). Child Outcomes should: • Enhance the child’s learning through functional participation in everyday activities (child is learner/actor), • Be important and meaningful to the family/caregiver (their priorities), • Expand activity settings in which the child can be competent, and • Be based on the child’s interests. 13 IFSP Family Outcomes Two types of family outcomes: • Participation-based • Resource-based Family outcomes should: • Enhance capacity of (family is learner/actor) • Support accessing community resources and supports (service coordinator supported) • Be important and meaningful to the family/caregiver (priorities) • Be based on family’s interests 14 Notes: There are two types of family outcomes – participation-based and resource based outcomes. Family Outcomes should: • Enhance the capacity of the family to meet the needs of their child (family is learner/actor), • Help the family access community resources and supports (service coordinator supported), • Be important and meaningful to the family/caregiver (priorities), and • Be based on the family’s interests. An example of a participation-based family outcome is: • “Frank and Tamara would like to be comfortable taking Dawn, with her siblings, to their grandmother’s house.” An example of a resource-based family outcome is: • “Jeri will find child care for her son within 25 miles of her new job.” 15 Developing IFSP Outcome Statements Step 1: Determine the functional area(s) Eating Step 2: What routine(s) does this affect? Meal time with the family Step 3: Child will participate in [routines in question] “Kim will eat with her Family at mealtime…” Step 4: “by ________ing” (address specific behaviors) “…eating the foods they eat.” McWilliam, R.A. (2006). Steps to build a functional outcome. Retrieved from http://www.siskin.org/downloads/Steps_to_Build_a_Functional_Child_Outcome.pdf 16 Notes: • The 4 step process on the previous slide reflects the development of the IFSP outcome statement to ensure that the core portion of the statement is written functionally and is participation-based. (adapted from a 7 step process that includes criteria, procedures and timelines developed by Robin McWilliam.) • While we recognize that states provide differing guidance on writing outcomes, this process should be applicable despite some variation across states. 17 Notes, continued: Let’s walk through the example we’ve developed using this 4 step sequence: 1. First, based upon the parent’s/caregiver’s priorities, determine the functional area that the outcome relates to. In our example, we selected “eating.” 2. Second, determine the routines affected. We selected “meal time with the family.” 3. Third, develop a statement that reflects how the child will participate in the routines, such as “Kim will eat with her family at mealtime . . .” 4. Finally, add to the initial part of the outcome statement developed in Step 3, what the child will do (defining specific behaviors). “. . . eating the foods they eat.” So the complete outcome statement that we developed using this framework is: “Kim will eat with her family at mealtime eating the foods they eat.” 18 Third Word Rule • The third word of IFSP child outcome statement should be a contextualized action that is functional. • Example: “Kim will eat with her family at mealtime eating the foods they eat.” Shelden, M. L., & Rush, D. D. (2009). Tips and Techniques for Developing Participation-Based IFSP Outcome Statements. Briefcase, 2(1). Retrieved from http://www.fipp.org/Collateral/briefcase/briefcase_vol2_no1.pd f 19 Notes: • The “third word” rule was identified by Rush and Shelden. The third word rule refers to the third word in the outcome statement. As a test of whether the outcome statement is participation based, examine the third word for an action that is functional for the child. The word “eat” in the example of Kim used in the slide meets the criteria. • Another example of an outcome statement with a functional third word is: “Thomas will ask for food he wants during meal times.” – In contrast, “Thomas will say three words when asked to repeat them” is skill-based and does not provide context for learning and engagement. 20 Developing Criteria, Procedures and Timelines • What are the ways in which the family and team will work toward achieving this outcome? • Who will help and what will they do? • How will the team know they’ve made progress or if revisions are needed to outcomes or services? 21 Notes: • Once a quality IFSP outcome is developed, the team must identify the criteria, procedures and timelines that will be used to determine the degree to which progress toward achieving the results or outcomes is being made, as well as if modifications or revision of the expected results/outcomes or services are necessary. The questions on the previous slide can be used to facilitate a discussion with parents and caregivers, focusing on: • Criteria that shows progress is being made, as well as procedures and realistic timelines. For example, “We’ll know this outcome is met when Kim eats at least two meals with her family, sitting independently with or without adaptive supports, eating regular table food, gaining at least one pound per month or 6 pounds in 6 months.” 22 High-Quality, Functional IFSP Outcomes IFSP outcomes need to be functional; however, many providers struggle to define what makes an outcome “functional.” When determining if an outcome is functional consider the following questions: • Does this outcome support the child’s participation in everyday activities? • Does this outcome support the fundamental belief that children learn best through their participation in everyday activities and routines with familiar people? 23 High-Quality, Functional IFSP Outcomes Three skills that are CRITICAL when developing outcomes are: • the ability to understand how to gather information from families throughout the process • the ability to conduct a functional assessment that gives a clear picture of the child’s abilities and needs in the child’s natural, everyday settings, activities and routines • the ability to use the information to develop outcomes 24 High-Quality, Functional IFSP Outcomes Throughout the process of gathering information from families, special attention should be paid to the information the family shares about what’s working well for them, as well as what is challenging 25 High-Quality, Functional IFSP Outcomes • Necessary and functional for child’s and family’s life • Reflect real-life contextualized settings • Crosses developmental domains and is discipline-free • Jargon-free, clear and simple • Emphasizes the positive, not the negative • Uses active words rather than passive words 26 Notes: So how do we know if the IFSP outcome developed is of high quality or not? NECTAC, ECO and WRRC, in collaboration with Dathan Rush and Lisa Shelden at the Family Infant and Preschool Program in Morganton, NC, have identified 6 unique criteria for determining if an IFSP outcome statement is of high quality. These criteria are: 1. Are statements necessary and functional for the child and family’s life? 2. Does the statement reflect real-life contextualized settings? 3. Does the outcome cross developmental domains? 4. Is it discipline-free? 5. Is the wording jargon-free, clear and simple 6. Is the outcome stated in active words rather than passive words? 27 Criteria Definitions Necessary and functional for child’s and family’s life – Supports participation in community life and family activities – Based upon what is important to the family – Supports child’s progress towards outcomes • It is not based on what the practitioner thinks 28 Notes: Let’s think more about the first high-quality outcome criteria statement on the previous slide: Necessary and functional for the child’s and family’s life. The outcome should focus on ways to support participation in community and family activities that are important to the family. The outcome should benefit the child by focusing on social relationships, acquiring and using knowledge and skills, and/or using appropriate actions to meet needs of the child and family. It is important to note that the determination of what is necessary and functional is not based upon what the practitioner thinks is meaningful and functional for the family. 29 Criteria Definitions Reflects real-life, contextualized settings Everyday activity settings and routines for the child and family • Includes typical routines such as meal time • Also includes routines and activities specific to the family Test items are not real-life or contextualized 30 Notes: The second high-quality outcome criteria statement from the previous slide states: Reflects real-life, contextualized settings This means that outcome statements should reflect the everyday activity settings and routines for the both the child and family. This includes any typical routines that are common across families, such as meal-time, bathing and riding in the car. This also includes routines and activities that are specific to the individual family. Specific isolated skills can include test items that were missed during an evaluation, and are not considered real-life or contextualized. 31 Child Outcome: Example reflects real-life and contextualized This Not This Marcus will play in the backyard getting around on his own using his walker. Marcus will take ten steps with his walker. 32 Criteria Definitions Integrates developmental domains and is discipline-free – Written to describe the child’s participation in routines and activities • Promote the child’s skill development in multiple domains • Addressable by any member of the IFSP team – Written so that child and family are the “actors” • Early interventionists and therapists are not the actors in the outcome 33 Notes: The third high-quality outcome criteria statement from the previous slide states: Integrates developmental domains and is discipline-free This means that the outcome is written to describe the child’s participation in routines and everyday activities, and promotes skill development across multiple domains. This can be addressed by any member of a child’s IFSP team. It also means that the outcome should be written so that the child and/or family are the “actors” or persons doing something, rather than the direct service provider. 34 Child Outcome: Example reflects developmental domains and discipline-free This “ Annabelle will help her dad with the laundry by pulling up and standing at the dryer on her own and putting clothes into the laundry basket with her dad" Not This "Annabelle will pull to a standing position at the couch and maintain her balance" Criteria Definitions Is jargon-free, clear and simple – Understandable by family and the general public. • Doesn’t include professional jargon or practitioner “speak” 36 Notes: The fourth high-quality outcome criteria statement from the previous slide states: Jargon-free, clear, and simple. This means that the outcome is written so that is understandable by the family and the general public. It does not include professional jargon or practitioner “speak”. The outcome should describe how the child will move, such as reaching up or down for toys, instead of using phrases like “range of motion”. 37 Child Outcome: Example reflects Jargon-free, clear, and simple This Not This “David will reach up and grab the toy when he is playing with his mom” “David will increase his “range of motion” 38 Child Outcome: Example reflects Jargon-free, clear, and simple This Not This “Carrie will ask for a cracker when she is having lunch with her family” “Carrie will improve her articulation skills” 39 Criteria Definitions Emphasizes the positive, not the negative – Focus of the whole outcome is positive – States what the child and family will do Doesn’t state what the child will not do or will stop doing – Any negative words creates a negative statement 40 Notes: The fifth high-quality outcome criteria statement from the previous slide states: Emphasizes the positive, not the negative. This means that the focus of the whole outcome statement is positive, and states what the child and/or family will do, rather than what they will not do or stop doing. If there are any negative words within the statement, it is not a positively worded outcome. 41 Child Outcome: Example reflects the positive, not the negative This Not This “Johnny will chew and swallow food when eating with his family” “Johnny will not spit out food when eating with his family” 42 42 Criteria Definitions Uses active rather than passive words – Words encourage active participation from the child and family – Words indicate what the child or family will do • Passive words reflect a state of being or lack of change in performance 43 Notes: The sixth, and final high-quality outcome criteria statement from the previous slide states: Use active rather than passive words. This means using words that encourage a child and/or family’s active participation or engagement. Active words may include eat, play, talk, walk, etc., and indicate what the child or family will do. • Passive words reflect a state of being (i.e., tolerate or receive), or a change or lack of change in performance (i.e., increase, decrease, improve, or maintain). Passive words should not be used in a high quality outcome statement. 44 Child Outcome: Example reflects use of active rather than passive words This Not This “Charlotte will sit next to her sister and play with the toys” “Charlotte will tolerate her sister’s presence at playtime” 45 Child Outcome: Example reflects use of active rather than passive words This Not This “Abigail will talk with her family during meals” “Abigail will increase her communication during meals” 46 High-Quality, Functional IFSP Outcomes If available, the child’s complete record can reveal if an IFSP outcome is based on: •Information gathered from the family (e.g., priorities and concerns) •Evaluation and functional assessment of child (e.g., skills, degree of participation, behaviors across settings , strengths, and needs) 47 Developing Child Outcomes Parent states: “I wish he could sit without as much support when he eats and plays – it is hard work holding him all the time.” 48 Child Outcome: Example This Not This “Romeo will play with toys and eat meals with his family by sitting without much support.” “Romeo will improve muscle tone for sitting.” 49 Notes: Based on the priority shared by Romeo’s parents, the previous slide illustrates an example of a high quality IFSP child outcome statement in comparison to a statement that is not high quality. 50 Developing Family Outcomes Parent states: “We want to be able to take Romeo with us in the car; we need a travel car seat.” 51 Family Outcome: Example This Not This “Karen and Mark will explore options for financial assistance for car seats and secure one.” “Staff will explore options for financial assistance for travel chairs.” 52 Notes: Based on the priority shared by Rome’s parents, the previous slide illustrates an example of a high quality IFSP family outcome statement in comparison to a statement that is not high quality 53 IFSP Outcomes Rating Activity Now it’s time to check apply what you have learned about understanding outcome criteria necessary to develop and write high quality, functional, participation-based Individualized Family Service Plan (IFSP) outcomes. At this time (if you haven’t already), please Download and print a copy of the Worksheet for Rating IFSP outcomes. Please rate each outcome statement by writing “yes” or “no” in each quadrant of the table, based on whether the statement meets each of corresponding criteria. When you are finished, check your answers by continuing with the PowerPoint 54 Lily will go fishing with her family and hold her own pole Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive 55 56 Lily will go fishing with her family and hold her own pole Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive Yes Yes Yes Yes Yes Yes This is a participation-based, functional, high-quality IFSP outcome! 56 57 Davis will talk more and pronounce words better Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive 57 Davis will talk more and pronounce words better Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive Yes No No Yes Yes Yes Remember to include real-life situations that promote skill acquisition in more than one developmental domain 58 59 Robin will stop having tantrums at separation from primary caregiver when going to daycare Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive 59 Robin will stop having tantrums at separation from primary caregiver when going to daycare Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive Yes Yes Yes No No Yes Use “Mom”, “Dad”, or “Grandma” instead of “primary caregiver”, and state the outcome positively by saying “say goodbye calmly” instead of “stop having tantrums” 60 Kammie will play with her toys so Grandma can cook breakfast and get the older kids off to school Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive 61 Kammie will play with her toys so Grandma can cook breakfast and get the older kids off to school Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive Yes Yes Yes Yes Yes Yes This is a participation-based, functional, high-quality IFSP outcome! 62 Lanesha will gradually stop eating baby food and eat more solid foods Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive 63 Lanesha will gradually stop eating baby food and eat more solid foods Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive Yes No Yes Yes No Yes Remember to create an outcome where the child and family can be actively involved in the success of the outcome through their daily activities or routines. Focus on what you want Lanesha to donot what you want her to stop doing. 64 Thomas will put up with lying on his stomach for 10 minutes without crying Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive 65 Thomas will put up with lying on his stomach for 10 minutes without crying Necessary/ Functional Real-life Contextual Settings Crosses Domains/ Discipline-Free Jargon-Free Positive, Not Negative Active, Not Passive No No Yes Yes No No It would be more functionally appropriate to have activities that encourage to play (i.e.: Thomas will play with toys on the floor rolling, reaching, and grabbing). Again, the focus should be on real-life settings, and the outcome should be framed positively and actively. 66 Ahmet will get to eat what he wants during meals by pointing or looking at the choices his parents provide Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive 67 Ahmet will get to eat what he wants during meals by pointing or looking at the choices his parents provide Necessary/ Functional Real-life Contextual Settings Crosses Domains/ DisciplineFree Jargon-Free Positive, Not Negative Active, Not Passive Yes Yes Yes Yes Yes Yes This is a participation-based, functional, high-quality IFSP outcome! 68
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