10/7/2013 Organ Donation after Circulatory Death Christine Westphal NP MSN ACNS-BC ACHPN Director/Nurse Practitioner PRISM Palliative Care Oakwood Healthcare System Rebecca Williams BS MA HHCC Hospital Services Associate Gift of Life of Michigan 1989 1905 1964 HRSA Breakthrough First Heart and World War II Ends Collaborative Begins Intestine Transplant 1990 1914 1966 2003 1945 1967 First Successful Trial First Pancreas of Islet Cell World War I Transplant Transplant Compare the history, criteria and process related to organ Donation after Circulatory Death (DCD)* to organ donation after brain death. Describe best practices of organ donation consent process. Apply case studies to illustrate implications for hospice and palliative care related to DCD. * Formerly called “Donation after Cardiac Death” Advances in Donation Benefit Soldiers Past, Present, Future… Berlin Wall Comes First Cornea The Beatles Come To Down Transplant America Objectives First Full Facial First Human in Space Gift of Life Formed Transplant 2008 1950 1969 2010 1961 1971 Michigan First First Kidney Man Reaches the Person Consent Law Transplant Moon 2013>>>? 1963 1981 Uniform First Lung and Liver Determination of Transplants Brain Death Act Soldier receives doublearm transplant after losing all four limbs in roadside bomb attack Soldier receives nerve graft and regains use of his leg shattered by roadside bomb Challenging Numbers • In the United States, almost 120, 000 people wait for a life-saving transplant • Who are these people? • Every day, day 365 days a year year, 22 people Co-Workers die on the waiting list… Grandmothers Grandfathers Friends. Mothers. Daughters Fathers. Sons. 1 10/7/2013 Michigan Wait List Kidney 2538 Liver 341 Lung 91 Heart 74 Kidney/Pancreas 42 Pancreas 14 Intestine 4 Kidney/Heart 4 Pancrease/liver/intestine 2 Liver/lung 1 Heart/liver 1 TOTAL 3110 Gift of Life Michigan What Is Gift of Life? Gift of Life Michigan is the federally designated organ and tissue recovery organization It acts as the intermediary between donors, hospitals and transplant centers How Often Does Donation Occur? • Approximately 86,000 deaths annually in Michigan • 40,000 calls to Gift of Life every year • 261 organ donors Calls to GOL Potential organ donors Actual organ donors Actual tissue donors Actual cornea donors • 861 tissue donors • 2061 cornea & eye donors What does Gift of Life do? Organ & Tissue Recovery Education • Obtain consent and work with donor families • Educate hospital staff, physicians, funeral homes,, and the public • Determines medical suitability • Locate, match, and type tissue for transplant • Recover organs and tissues for transplant • Collaborate with Michigan Eye Bank Michigan Statutes • Maintain the Michigan Organ Donor Registry in cooperation with the Secretary of State Michigan Statutes 2008 Uniform Anatomical Gift Law 2005-PA 176 Kyle Ray Horning Law • • • • Medical examiners will conduct investigation within a • Uniformity across states and with federal regulations Upholds individual’s autonomy in decision making Reasonable search for documentation Allows Gift of Life to assess medical suitability of potential donors Hospital must maintain care to ensure family of medically suitable patients provided option of donation timeframe to allow for organ donation. ME or designee can be present during recovery and provided with all lab and pathology reports reports. ME’s must notify Gift of Life of deaths outside hospital Sen. Roger Kahn, appears with the Horning family of Vassar at the ceremonial bill signing of the Kyle Ray Horning Law. 2 10/7/2013 Uniform Determination of Death Act The 1981 Uniform Determination of Death Act recognized death as either: •Determination of irreversible cessation of circulatoryy and respiratory functions; or •Irreversible cessation of all functions of the entire brain, including the brain stem (“brain death”) Adopted by the AMA and each stateDetermination of Death Act Michigan Public Health Code, Public Act 90 of 199 What is Donation After Circulatory Death (DCD)? Donation after Circulatory Death (DCD) is a planned l d terminal t i l wean with ith the th possibility ibilit off organ donation after the patient reaches circulatory death. Cessation of heart beat and breathing Death pronounced by hospital staff per policy Determination of Brain Death American Academy of Neurology Guidelines Irreversible neurologic condition Persistent coma and apnea after rule out of other etiologies Absence of brain stem function by clinical testing of cranial nerves Confirmatory tests are not mandatory Who Supports DCD? “If in the process of delivering high quality end-of-life care, organ donation is possible, then critical care professionals should help enable that outcome.” S i t for Society f Critical C iti l Care C Medicine M di i Recommendations for DCD Donation, 2002 Institute of Medicine Society for Critical Care Medicine United Network for Organ Sharing Association of Organ Procurement Organizations The Joint Commission What can be donated in DCD? Who are Potential DCD Donors? Patients with a non-survivable neurological injury who do not meet the criteria for brain death Irreversible brain injury, such as those caused by trauma, stroke, t t k and d MI Severe underlying illness (musculoskeletal, pulmonary disease, high spinal cord injury), causing ventilator dependence Family has decided to remove ventilator support (terminal wean) for patient with: Organs: kidneys, pancreas, liver, lungs and intestines. Up to 7 lives saved! Tissues: cornea/eye, skin, bone, heart valves, veins and tendons. Up to 75 lives improved! 3 10/7/2013 When is Gift of Life Called? Overview of the DCD Process Typical Clinical Triggers* Irreversible Injury or Illness • Every neuro injured, vented patient with a GCS ≤5 • Every vented patient being evaluated for brain death Referral to Gift Of Life Prognosis • Every vented patient being considered for withdrawal of vent support • Every vented patient being considered for a change in Organ Recovery Collaboration and Evaluation resuscitation status *Calls to GOL within ONE hour required by CMS (Center for Medicare & Medicaid Services), the Joint Commission and HFAP (Healthcare Facilities Accreditation Program) Education According to research, 98% of all adults have heard about organ donation and 86% have heard of tissue donation. 90% of Americans say they support donation, but only 90% of Americans say they support donation but only 30% know the essential steps to take to be a donor. What do YOU know about organ donation? www.unos.org accessed February 6, 2013 Withdrawal Of Vent Support Patient and Family Care Consent Process Test yourself--yourself---True True or False Consent for organ and tissue donation can only be done by next of kin. HIV/AIDS and cancer are contraindications to donation. All major religions support organ and tissue donation. Hospice patients cannot be considered for donation. Initial Decision: Withdrawal Part I The decision to withdraw therapies : Must be an independent decision by the family and the patient care team Is totally separate from any decision regarding organ donation 4 10/7/2013 Evaluation Gift of Life huddles with primary care team to discuss current plan of care and evaluate: Collaborative Approach Gift of Life representative will huddle with available members of the healthcare team, including: Medical Maintenance of therapies until family decision Palliative care Does Dennis meet DCD criteria? Spiritual support Likely survival time after withdrawal Wisconsin DCD Tool Will Dennis meet medical criteria for donation? Age Co-morbidities Gift of Life and hospital staff should approach the family together Why should the approach be done together? Increases consent rates Demonstrates healthcare team’s support of donation Discussion Collaborative Approach • Can anyone bring up donation? • No one can bring up donation without special training from Gift of Life. • Most hospitals specify Gift of Life as the official ‘designated requestor’ in their donation policy • Why? To Prevent: • Misinformation • Family conflict • False Hope The collaborative team and family discuss DCD process. This includes the possibility the patient may not expire within time frame needed for donation If patient does not expire, he/she will return to the unit or move to a hospice bed. Patient will not be re-intubated and cannot become an organ donor (may still donate tissues after death) Coordination When and where ventilator support will be removed? Operating room area or ICU bed, depending on hospital policy and family needs. Coordination with respiratory p y care,, medicine and nursing. The Withdrawal and Organ Recovery Will family be present? Resources for family support and comfort What is the plan for comfort care if death does not occur in 60-90 minutes of extubation? Consult for palliative and/or hospice care Communication with receiving unit/staff 5 10/7/2013 The Family Family may wish to be present during terminal wean. Majority of families remain through withdrawal Most leave hospital after death is declared After death, the family may move to a private room or go home Family is given updates as donation moves forward per their wishes Ensure family has the support they need -- spiritual care, social work, family support. Palliative Care Team Facilitate withdrawal Provide for comfort care Spiritual support to honor the life and support family Support transition to hospice if patient survives Referrals for bereavement support Debrief team if needed The Physician Provide appropriate medical management strategies to preserve the option of donation for the families Medication to maintain organ quality (e.g. Heparin 300 units/kg) should be administered five minutes prior to extubation to minimize clots Direct the withdrawal process Provide post-withdrawal comfort care orders. Hospital maintains responsibility of patient until death Hospice and Palliative Care HPNA position statement “Role of Palliative Care nursing in Organ and Tissue Donation” Supports nurse as educator, advocate and partner with Organ Procurement Organization (OPO) to promote and obtain organs and tissues for donation Identifies role in care of DCD donors to ensure symptom control and support of family Recommends adoption of policies to support donation www.hpna.org The Transplant Team Transplant team has NO involvement with withdraw of support process Transplant team is NOT allowed in patient area Organ Recovery Process Hospital staff member declares cardiac death according to hospital policy 5 minute wait period to ensure heart does not restart Transplant surgeon(s) and the recovery team(s) begin organ recovery surgery after this 5 minute period 6 10/7/2013 Organ Recovery Starts with: Dissection down to the aorta Cannulation of the aorta Infusion of cold preservation solution Remaining dissection is done after the organs are perfused with preservation solution and cooled Minimize cell death due to lack of O2 Best possible outcome for recipients Gift of Life Michigan DCD Outcomes 2004 2004--2010 2004 140 Michigan DCD Data 2005 2006 2007 2008 2009 2010 122 120 Total Total Donors DCD Donors DCD Organs Transplanted DCD Organs % of Total Tx’d Per Donor Donors 100 95 90 80 2009 288 59 82 1.39 20.5% 2010 289 82 109 1.33 28.3% 2011 269 58 111 1.91 21.6% 2012 261 58 82 1.41 22.2% 82 78 76 Number 80 60 60 53 52 49 43 40 40 45 30 24 20 18 14 17 12 15 0 Evaluated For DCD Benefits Transplant recipients are not the only ones to benefit. Donor Families express a feeling of comfort and hope that assists them with their grieving process To Organ Recovery At Least 1 Organ TX'd Finding Comfort Family focused. Some families may play special music sing, music, sing or pray during the terminal wean Organs from DCD donors are proven to have similar outcomes as those from donation after brain death Studies demonstrate that new organ recovery techniques have made the outcomes virtually equal Provides an additional option for donation Often fulfills the expressed wishes of the patient Many donor families speak of feeling comfort knowing that their loved one’s donation has helped others live 7 10/7/2013 What can YOU do? Become a registered donor Registered donors only represent about 30% of the total donors (www.donatelife.net accessed Feb. 6, 2013) Encourage others to register Questions? Families give the gift of life… www.giftoflifemichigan.org ift flif i hi Discuss organ donation as part of advance care planning Recognize potential donors and inform Gift of Life Assist in consent process in collaboration with “Designated Requestor” Become aware of opportunities for tissue donation for hospice patients If only we give them the opportunity Thank you! Rebecca Williams BS MA HHCC [email protected] 586-255-7827 Christine Westphal NP MSN ACNS ACNS-- BC ACHPN [email protected] 313--593 313 593--8614 8
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