Matern Child Health J DOI 10.1007/s10995-011-0784-y Physical Abuse Around the Time of Pregnancy Among Women With Disabilities Monika Mitra • Susan E. Manning Emily Lu • Ó Springer Science+Business Media, LLC 2011 Abstract Women with disabilities are at greater risk for physical abuse than women without disabilities. However, no previous population-based studies have examined physical abuse against women with disabilities around the time of pregnancy, a critical period for mother and child. The objective of this study was to describe the prevalence of physical abuse before and during pregnancy among a representative sample of Massachusetts women with and without disabilities. Data from the 2007–2008 Massachusetts Pregnancy Risk Assessment Monitoring System (PRAMS) were analyzed in 2010. Disability prevalence was 4.9% (95% CI = 3.9–6.2) among Massachusetts women giving birth during 2007–2008. The prevalence of physical abuse during the 12-months before pregnancy among women with disabilities was 13.6% (95% CI = 7.2–24.0) compared to 2.8% for women without disabilities (95% CI = 2.1–3.7). Similarly, 8.1% (95% CI = 4.0–15.7) of women with disabilities compared to 2.3% (95% CI = 1.7–3.1) of women without disabilities experienced physical abuse during pregnancy. Multivariate analyses indicated that women with disabilities were more likely to report physical abuse before pregnancy (OR = 4.3, 95% CI = 1.9–9.7), during pregnancy (OR = 2.8, 95% CI = 1.1–7.1), or during either time period (OR = 3.2, 95% CI = 1.4–7.1) than women without M. Mitra (&) Department of Family Medicine and Community Health/Center for Health Policy and Research, University of Massachusetts Medical School, 333 South Street, Shrewsbury, MA 01545, USA e-mail: [email protected] S. E. Manning E. Lu Massachusetts Department of Public Health, Boston, MA, USA e-mail: [email protected] E. Lu e-mail: [email protected] disabilities while controlling for maternal age, education, race/Hispanic ethnicity, marital status and household poverty status. No difference was observed by disability status in the likelihood of prenatal-care providers talking to women about physical abuse. These analyses reveal disproportionate prevalence of physical abuse before and during pregnancy among women with disabilities. Screening for physical abuse and timely referral of women in need of assistance are critical to optimize health outcomes for both mother and child. Keywords Physical abuse Violence Disabilities Women Pregnancy Introduction Over the last decade, there has been emerging research examining the prevalence and consequences of violence against women with disabilities. Women with disabilities are at increased risk for violence and may experience unique forms of abuse [1–12]. Barrett and colleagues found that 33.2% of women with disabilities experienced intimate partner violence compared to 21.2% of women without disabilities [10]. Casteel et al. found that after controlling for selected characteristics, women with severe disabilities were four times more likely to be sexually assaulted than women without disabilities [11]. This study seeks to build on prior research on violence against women with disabilities by focusing on the prevalence of physical abuse among women with disabilities around the time of pregnancy. We document the prevalence of physical abuse 12-months before and during pregnancy among a population-based sample of Massachusetts women with disabilities and compare the prevalence of abuse 123 Matern Child Health J between women with and without disabilities. We also examine the association between prenatal counseling of physical abuse and disability status. Methods Participants Data were derived from the Massachusetts Pregnancy Risk Assessment Monitoring System (MA-PRAMS). MAPRAMS collects state-specific data on maternal attitudes and experiences before, during, and shortly after pregnancy. Survey participants were sampled from a frame of eligible birth certificates which included all live-born infants born in Massachusetts to Massachusetts-resident women. During 2007–2008, 4,697 Massachusetts women were sampled and the overall weighted response rate was 71%. Details about the purpose, sampling methods, and data collection of the MA-PRAMS are available elsewhere [13]. Measures The survey assessed physical abuse by asking women if they were pushed, hit, slapped, kicked, choked or physically hurt in any way by an ex-husband/partner and whether they were ‘‘physically hurt in any way’’ by their husband/partner during the 12-months before and during their most recent pregnancy. We grouped physical abuse into three categories [1] before pregnancy; [2] during pregnancy; and [3] before or during pregnancy. Disability status was ascertained by participants’ responses to the question: ‘‘Are you limited in any way in any activities because of physical, mental, or emotional problems?’’ Additional maternal characteristics examined were age, education, race/Hispanic ethnicity, marital status, and household poverty status. Household poverty status was measured as a ratio of family income to the number of dependent members in the household as compared to the Department of Health and Human Services Federal Poverty guidelines [14]. Maternal age, education, marital status, and race/ethnicity data were from birth certificates and physical abuse, disability, and prenatal counseling data were from the MA-PRAMS. with non-overlapping confidence intervals were considered statistically significant. We used multiple logistic regression to examine the association of disability with abuse while controlling for potential covariates. Significant predictors at alpha = 0.1 in the univariate analysis or potential confounders of the association between abuse and disability were included in the adjusted model. SAS 9.1 and SUDAAN 10 were used to account for PRAMS complex survey design. The MA-PRAMS study has been approved by the Massachusetts Department of Public Health’s Research and Data Access Review Institutional Review Board. Results Among the 2,876 respondents in the 2007–2008 MAPRAMS, 138 (4.9%, 95% CI = 3.9–6.2) reported having a disability (Table 1). Approximately 1 in 8 (13.6%, 95% CI = 7.2–24.0) women with disabilities reported physical abuse by either a former or current husband/partner during the 12-months before pregnancy compared to 2.8% (95% CI = 2.1–3.7) of women without disabilities. During pregnancy, 8.1% (95% CI = 4.0–15.7) of women with disabilities and 2.3% (95% CI, 1.7–3.1) of women without disabilities reported physical abuse. Prenatal care providers were equally likely to discuss abuse by husbands and partners to women with (54.3%, 95% CI = 42.7–65.5%) and without disabilities (59.4%, 95% CI = 56.8–61.9%). In crude analyses, women with disabilities were more than 5 times as likely before pregnancy (5.5, 95% CI = 2.6–11.8) and almost 4 times as likely during pregnancy (3.7, 95% CI = 1.7–8.5) to report abuse compared to women without disabilities. Women with disabilities were 4.3 times more likely to report physical abuse before or during pregnancy (4.3, 95% CI = 2.1–8.7) compared to women without disabilities. In analyses adjusted for age, education, marital status, race/Hispanic ethnicity, and household poverty status, women with disabilities were significantly more likely to experience physical abuse before (OR = 4.3, 95% CI = 1.9–9.7), during (OR = 2.8, 95% CI = 1.1–7.1), and before/during pregnancy (OR = 3.2, 95% CI = 1.4–7.1) compared to women without disabilities (Table 2). Discussion Analytic Methods We used chi-square statistics to compare the distributions of selected characteristics by disability status. Confidence intervals around population estimates were calculated by using point estimates and their standard errors, and estimates 123 This study demonstrates that women with disabilities are at a greater risk of physical abuse before and during pregnancy compared to women without disabilities. After adjusting for selected characteristics, women with disabilities were three to four times more likely to experience abuse before/during pregnancy. No difference was observed by disability status Matern Child Health J Table 1 Selected characteristics of women with live births by disability status in Massachusetts, 2007–2008 MA-PRAMS Overall All women n = 2,876 % (95% CI) Women with disabilities n = 138 % (95% CI) Women without disabilities n = 2,738 % (95% CI) 100 4.9 (3.9–6.2) 95.1 (93.9–96.1) P value Demographics Race/ethnicity White, Non-Hispanic 68.7 (68.2–69.1) 71.2 (63.1–78.1) Black, Non-Hispanic 8.1 (7.9–8.3) 10.8 (7.5–15.4) 8.0 (7.7–8.3) 13.9 (13.7–14.2) 11.0 (7.4–16.0) 14.1 (13.7–14.4) 9.3 (9.0–9.6) 7.0 (4.6–10.5) 9.4 (9.1–9.8) Married 66.1 (63.8–68.3) 55.8 (44.3–66.7) 66.6 (64.3–68.9) Unmarried 33.9 (31.7–36.2) 44.3 (33.3–55.7) 33.4 (31.1–35.7) No previous live births 48.9 (46.4–51.4) 44.1 (33.1–55.8) 49.1 (46.6–51.7) Previous live births 51.1 (48.7–53.6) 55.9 (44.3–66.9) 50.9 (48.3–53.4) Hispanic Other, Non-Hispanic 0.088 68.5 (2 (67.9–69.1) Marital status 0.070 Parity 0.700 Education 0.074 \High school 10.9 (9.6–12.4) 11.5 (5.8–21.5) 10.9 (9.5–12.4) High school diploma 25.3 (23.1–27.5) 40.1 (29.3–51.8) 24.5 (22.3–26.8) Some college 18.0 (16.3–19.9) 13.5 (7.6–22.8) 18.2 (16.4–20.2) 45.8 (43.4–48.3) 35.0 (25.1–46.4) 46.4 (43.9–48.9) College graduate Age (years) \20 0.146 6.6 (5.4–7.9) 6.5 (3.1–13.3) 6.6 (5.4–8.0) 20–29 40.7 (38.3–43.1) 49.2 (37.9–60.6) 40.2 (37.8–42.7) 30–39 49.1 (46.7–51.6) 36.8 (26.6–48.4) 49.8 (47.2–52.3) 3.7 (2.9–4.7) 7.5 (3.3–16.0) 3.5 (2.7–4.5) B 100% FPL 21.0 (19.2–22.9) 46.5 (34.9–58.4) 19.7 (17.9–21.6) [100% FPL 79.0 (77.1–80.8) 53.6 (41.6–65.1) 80.3 (78.4–82.1) 40? Household poverty status (approximate)a \0.001 Physical abuse Physical Abuse 12 months before pregnancy 3.3 (2.5–4.3) 13.6 (7.2–24.0) 2.8 (2.1–3.7) 0.015 Husband or partner 2.3 (1.7–3.2) 12.8 (6.6–23.3) 1.8 (1.2–2.6) 0.013 Ex-husband or ex-partner 2.7 (2.0–3.5) 10.6 (5.4–20.1) 2.2 (1.7–3.0) 0.025 Physical abuse during pregnancy 2.6 (2.0–3.4) 8.1 (4.0–15.7) 2.3 (1.7–3.1) 0.044 Husband or partner 2.0 (1.4–2.8) 5.4 (2.3–12.3) 1.8 (1.3–2.6) 0.133 Ex-husband or ex-partner 1.8 (1.3–2.5) 7.6 (3.6–15.3) 1.5 (1.0–2.1) 0.032 4.3 (3.5–5.4) 14.4 (7.9–24.7) 3.8 (3.0–4.8) 0.017 59.2 (56.7–61.6) 54.3 (42.7–65.5) 59.4 (56.8–61.9) 0.403 Physical abuse before or during pregnancy Preventive counseling Prenatal care provider talked about physical abuse a To examine differences in household income level, household Federal Poverty Level (FPL) was approximated using self-reported income (as a range) and the number of dependent household members, and comparing these to the 2007 Department of Health and Human Services Federal Poverty guidelines [14]. Because exact dollar amounts were not reported, the mid-point of each income range was used to approximate household income. Thus, the estimated household poverty level should be viewed as approximate, and may misclassify some households in the likelihood of prenatal-care providers talking to women about physical abuse. Although there is considerable literature on violence against women with disabilities, this is the first study, to our knowledge, to examine physical abuse among women with disabilities around the time of pregnancy. Research on the impact of violence on maternal and child health indicates that women experiencing violence before and during pregnancy are at risk for multiple poor maternal and infant health outcomes [15]. These adverse health consequences observed in the general population could potentially be even stronger for women with 123 Matern Child Health J Table 2 Association between selected maternal characteristics and physical abuse around the time of pregnancy, 2007–2008 MA-PRAMS Physical abuse Before pregnancy Crude OR (95% CI) During pregnancy Adj. OR (95% CI) Crude OR (95% CI) Before/during pregnancy Adj. OR (95% CI) Crude OR (95% CI) Adj. OR (95% CI) Disability status Yes 5.5 (2.6–11.8) 4.3 (1.9–9.7) 3.7 (1.7–8.5) 2.8 (1.1–7.1) 4.3 (2.1–8.7) 3.2 (1.4–7.1) No 1.0 1.0 1.0 1.0 1.0 1.0 Black, Non-Hispanic 2.1 (1.1–3.8) 1.1 (0.5–2.2) 2.3(1.2–4.4) 1.3 (0.5–2.9) 2.0 (1.2–3.4) 1.0 (0.5–1.9) White, Non-Hispanic 1.0 1.0 1.0 1.0 1.0 1.0 Hispanic 2.8 (1.6–4.9) 1.2 (0.6–2.5) 3.0 (1.6–5.5) 1.5 (0.6–3.5) 3.1 (1.9–4.9) 1.4 (0.8–2.6) Other 0.7 (0.4–1.5) 0.7 (0.3–1.6) 0.9 (0.4–1.9) 0.9 (0.4–2.2) 0.7 (0.4–1.4) 0.7 (0.3–1.4) Yes 1.0 1.0 1.0 1.0 1.0 1.0 No 4.5 (2.6–8.0) 2.3 (1.1–4.5) 3.3 (1.8–6.3) 1.5 (0.7–3.4) 4.3 (2.6–7.0) 2.0 (1.1–3.8) Race/ethnicity Marital status Education Less than high school 1.7 (0.8–3.5) 1.5 (0.7–3.4) 1.7 (0.7–3.7) 1.3 (0.5–3.3) 1.5 (0.8–2.9) 1.2 (0.6–2.4) High school Some college 1.0 1.2 (0.6–2.4) 1.0 1.8 (0.8–4.1) 1.0 1.3 (0.6–2.8) 1.0 2.0 (0.8–4.7) 1.0 1.4 (0.8–2.5) 1.0 2.2 (1.1–4.3) College 0.2 (0.1–0.5) 0.5 (0.2–1.2) 0.3 (0.1–0.8) 0.8 (0.3–2.2) 0.3 (0.1–0.5) 0.6 (0.3–1.4) Age (years) \20 0.7 (0.4–1.4) 0.3 (0.1–0.7) 1.1 (0.5–2.1) 0.6 (0.3–1.4) 0.9 (0.5–1.6) 0.5 (0.2–0.9) 20–29 1.0 1.0 1.0 1.0 1.0 1.0 30–39 0.4 (0.2–0.7) 0.89 (0.4–1.7) 0.4 (0.2–0.9) 1.0 (0.5–2.0) 0.4 (0.2–0.6) 0.8 (0.5–1.5) 40? 0.4 (0.1–2.8) 1.2 (0.1–9.4) 0.1 (0.02–0.9) 0.3 (0.0–2.3) 0.4 (0.1–2.0) 1.0 (0.2–5.9) Household poverty status B100% Federal poverty level 6.4 (3.6–11.4) 3.0 (1.4–6.2) 6.7 (3.6–12.4) 4.1 (1.6–10.7) 6.5 (3.9–10.7) 3.6 (1.8–7.0) [100% Federal poverty level 1.0 1.0 1.0 1.0 1.0 1.0 disabilities and their infants given the already fragile relationship between disability and health. Women with disabilities have a narrower margin of health compared to women without disabilities [16] and are more likely to report poor health, chronic conditions, and unmet health care needs [1, 17, 18]. Therefore, it is reasonable to assume that violence potentially has a greater impact on the health of pregnant women with disabilities and their infants. Our results indicate that women with and without disabilities were equally likely to receive prenatal counseling. We were not able to assess whether women with disabilities were more or less likely to disclose partner abuse or receive appropriate referrals from providers compared to women without disabilities. Given the opportunity that prenatal-care provides for preventive health counseling, this finding has important implications. First, because women with disabilities are at a greater need, counseling for partner abuse should be conducted among all women with disabilities. Second, effective methods to assess a woman with disabilities’ risk of partner abuse should be 123 developed. Massachusetts is one of only two states to include a disability screener in PRAMS, enabling us to examine maternal experiences and attitudes among women with disabilities at a population level. Other PRAMS states should consider including disability screeners to enable exploration of maternal experiences and health outcomes by disability status. There are some limitations to this study. First, a relatively small number of women self-reported disability, which may have limited the precision and generalizability of our findings. Further the MA-PRAMS does not allow for determination of type or severity of disability which may have an impact on experience of abuse. The MA-PRAMS data are based on self-report and therefore subject to selfreport bias. The MA-PRAMS questions on abuse are restricted to physical abuse and do not ascertain other forms of abuse that might differentially impact women with disabilities. Finally we cannot determine abuse during pregnancies that resulted in stillbirths or in live births of multiples of four or more [13]. Despite these limitations, Matern Child Health J these findings suggest that women with disabilities are at a greater risk for physical abuse. Screening for physical abuse and timely referral of women in need of assistance are critical to optimize health outcomes for both mother and child. Acknowledgments Monika Mitra is supported by the Massachusetts Medicaid Infrastructure and Comprehensive Employment Opportunities Grant which is funded by Centers for Medicare and Medicaid Services (CFDA No. 93.768). Emily Lu is supported by the Massachusetts PRAMS project which is supported in part by grant No. 1 UR6 DP000513-01 from the Centers for Disease Control and Prevention. 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