April 25, 2016
May: 31 Days to Learn and Lead for Lupus May has been celebrated for centuries by such illustrious poets as Shakespeare and Milton. But the month
has special meaning for the lupus community nationwide as the time to draw attention to a disease that
remains under-recognized and under-treated. The S.L.E. Lupus Foundation and Lupus Research Institute offer opportunities throughout the month to learn
about lupus and lead the lupus community by joining local awareness and fundraising activities.
Join Campaign to Fight Lupus Among Hispanics The Hispanic Communications Network (HCN) is launching a national educational campaign to raise
awareness of lupus among this community. The campaign is supported by a grant from the U.S. Department
of Health and Human Services Office of Minority Health to the Lupus Research Institute. The program
reaches millions of Spanish speakers through HCN’s national radio affiliate network La Red Hispana,
campaign website SobreLupus and social media. Tweet Your Questions About Lupus -- Join HCN’s Live Twitter Chat @SaludToday April 26 12:00 PM – 1:00 PM Eastern Standard Time/ 10:00 – 11:00 AM Pacific Time
You're invited to tweet questions in English or Spanish during the hour-long chat to lupus expert, Dr. Irene
Blanco, rheumatologist at NYC’s world-renowned Montefiore Medical Center. Visit @SaludToday and mark
your questions with #SaludTues. Ve a Twitter para tus preguntas sobre lupus - Únete al Twitter Chat en vivo de @LaRedHispana y
@SaludToday, el martes 26 de abril a la 1pm hora del este/10am hora pacífico.
Todos son invitados a tuitear sus preguntas en ingles y español durante la charla de una hora con la experta
en lupus: la doctora Irene Blanco, reumatóloga del Centro Médico Montefiore de renombre mundial de Nueva
York. Visita @SaludToday y participa con tus preguntas utilizando #SaludTues. Lupus and You: Beyond the Basics Whether you’ve lived with lupus for a month, a decade or a lifetime, there’s always something new to learn
about managing the disease. Join us at three free educational events: Cardiovascular Disease/ Enfermedad Cardiovascular – in Spanish/en Español
May 4, 6:00 PM – 8:00 PM
Columbia Presbyterian, Irving Institute Educational Center
622 W. 168th Street, 10th Floor, Room 405B
Manhattan
Register here
Updates on Lupus and Clinical Studies
May 10, 5:30 PM – 8:00 PM
Interfaith Medical Center
528 Prospect Place, 1st Floor Conference Room
Brooklyn
Register here Heart Health, Mental Health, and Health Care Maintenance & Lupus
May 18, 5:00 PM – 7:00 PM
1400 Pelham Pkwy South
Building 4, 2nd Floor Conference Room
Bronx
Register here
Lead by Example – with Action! Take an Important Step!
Take an Important Step to Fight Lupus Support lupus research by joining walks hosted by the
Alliance for Lupus Research (ALR) – The S.L.E.
Lupus Foundation and the Lupus Research Institute
will soon be merging with the ALR so come out and be
a part of this exciting collaboration! Saturday, April 30 Rose Bowl, CA Saturday, May 7 MetLife Stadium, NJ Saturday, June 4 Baltimore, MD
Click here to find an ALR Walk near you!
Show up for Lupus at Local Events! Throughout the year, and particularly in May, patient groups belonging to the Lupus Research Institute
National Coalition hold educational, fun and fundraising events around the country. Click here to check out
what’s happening near you.
Support Innovative Research Driving Results!
Major breakthroughs in lupus research confirm worldleading funders LRI and the ALR have been on the right
track! Results of a landmark study partially funded by
ALR and published by LRI’s Scientific Advisory Board
member Dr. Virginia Pascual may dramatically improve
lupus drug development and pave the way for
personalized treatment of the disease. Click here to
read the press release from Baylor Institute for
Immunology Research where Dr. Pascual serves as
Director of the Center for Inflammation and Autoimmune
Diseases as well as the Center for Personalized
Medicine, The study was recently published in Cell, a
highly prestigious scientific journal among biologists.
“The results included in this paper provide an explanation for why clinical trials fail in lupus, and opens the
door for true personalized approaches to drug discovery and treatment in this disease,” Dr. Pascual said.
May Proclaimed Lupus Awareness Month in New York City and New York State
Thank you Mayor Bill de Blasio for declaring May “Lupus
Awareness Month” in the City of New York. The
Proclamation recognizes the S.L.E. Lupus Foundation as
“the voice for New Yorkers with lupus since 1970.”
As part of the Lupus Agencies of New York State, the
S.L.E. Lupus Foundation goes to Albany May 18 when
Lupus Awareness Month will be proclaimed in New York
State. We will also urge legislators to pass key bills that
support lupus research and eliminate barriers to
advances in healthcare. Thank you to Tiffany Peterson
for traveling to Albany as our 2016 Patient
Representative!
Lupus organizations across the country are urging their
government officials to recognize May as lupus
awareness month. Google “Lupus Awareness Month”
and your state or city to see if May is recognized in your
area. If not, take the lead to write your governor or mayor
to voice this request on behalf of the lupus community!
About the Lupus Research Institute
The Lupus Research Institute (LRI), the world’s leading private supporter of novel research in lupus, pioneers
discovery and champions scientific creativity as it has successfully demonstrated the power of innovation to
propel scientific solutions in this complex autoimmune disease. www.LupusResearchInstitute.org
About the S.L.E. Lupus Foundation
The S.L.E. Lupus Foundation is the preeminent lupus organization providing direct patient services, education,
public awareness, and funding for lupus research. www.LupusNY.org
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