Sickle Cell Disease and
Sickle Cell Disease and
Sickle
Cell
Traitand
Sickle
Cell
Disease
Sickle Cell Trait
Sickle Cell Trait
Recent Developments
Recent Developments
Recent Developments
American Sickle Cell Anemia
American Sickle Cell Anemia
AmericanAssociation
Sickle
Cell
Anemia
Association
2010Association
Annual Report
2010 Annual Report
Sickle Cell Disease and Sickle Cell Trait
Recent Developments
For an estimated 70,000 to 100,000 people in
the United States, sickle cell disease is a painful,
lifelong battle. Sickle-cell disease is inherited
from parents in much the same way as blood
type, hair color and texture, eye color, and other
physical traits. The types of hemoglobin a person makes in the red blood cells depend on what
hemoglobin genes are inherited from his parents. If one parent has sickle-cell anemia (SS)
and the other has sickle-cell trait (AS), there is a
50% chance of a child's having sickle-cell disease (SS) and a 50% chance of a child's having
sickle-cell trait (AS). When both parents have
sickle-cell trait (AS), a child has a 25% chance
(1 out of 4) of having sickle-cell disease. Symptoms of sickle cell disease vary. In some people,
they are mild, in others severe and requiring
hospitalization. The most common signs and
symptoms are linked to anemia. Anemia is a
condition in which blood has a lower than normal number of red blood cells. People with anemia do not have enough red blood cells, which
deliver oxygen. As a result, they may feel tired
or weak. Fatigue is one of the most common
symptoms of sickle cell anemia. Severe or longlasting anemia can damage the heart, brain,
lungs, kidney, spleen, and other organs of the
body. Very severe anemia may even cause
death. Many people with sickle cell disease live
with chronic pain, especially in their bones.
However, sudden pain that can occur anywhere
in the body is also a common symptom of sickle
cell disease. This pain is called a “sickle cell
crisis." Sickle cell crises often affect the bones,
lungs, abdomen, and joints. Other symptoms of
sickle cell disease include:

Shortness of breath and/or dizziness

Headache

Coldness in the hands and feet

Pale skin due to anemia

Jaundice, or yellow eyes and skin

Chest pain
Leg ulcers that do not heal
Blood transfusions can treat some complications
of sickle cell disease and prevent others. Adding
healthy cells to the bloodstream can reverse
some of the damage that sickled cells cause. Severe anemia, stroke, and acute chest syndrome
are conditions that blood transfusions treat.
Transfusions may also help prevent stroke or
heart failure. But there is a downside to this
practice: repeat transfusions
can cause complications. So
doctors weigh benefits and
risks before suggesting this
procedure. Regular blood
transfusions for sickle cell
disease can cause iron
buildup in the body, which
requires daily treatment
(iron chelation) and close
monitoring.

New Developments
Research on bone
marrow transplants, gene
therapy, and new medicines
for sickle cell anemia is

Continued on inside back cover
A Letter from the Board Chairman,
Dear Friends:
The American Sickle Cell Anemia Association wishes to express its gratitude and appreciation for the steadfast support of its funders, collaborators and donors during the 2010 Programming year. This support has enabled the Association to continue its strides in the provision of comprehensive community education, testing,
counseling and supportive services to the consumers and population at-risk for sickle cell disease and its variants in Ohio’s Region V. In the year 2010 the ASCAA was able to provide direct services to over 12,000 individuals from across the region.
Please note that the wide ranging individual, corporate, governmental and philanthropic supports rendered
helped the ASCAA remain at the forefront of the sickle cell comprehensive program movement locally and
nationally. Also, in this new year of service we are most excited about the Cleveland Clinic Foundation’s development of our new service site inside the clinic’s campus DD Building, located at 10900 Carnegie Avenue,
Suite DD1-201. This custom designed suite offers our patients and their families a warm and welcoming place
for state-of-the- art care. We sincerely thank the Cleveland Clinic for this major support and all of its past
support of our organization.
As one of the nation’s leading community based sickle cell education, testing, counseling and supportive service organizations, ASCAA will continue to focus its sights on providing both quality and quantity care to
those individuals seeking and utilizing our services.
The Board of Trustees and staff is pleased to present this Report to the community. We look forward
to continuing our program of services to our consumers and the population at risk.
We sincerely appreciate all of your support.
Sincerely,
Pamela Bradford
Mrs. Pamela Bradford,
L.I. S.W, B.C.D. C.S.W.M.
Board of Trustees
Mrs. Pamela Bradford,
Board Chairman
Dr. Anthony Stallion,
Vice President
Ms. Judy Montfort,
Secretary
Dr. Mark Worford,
Treasurer
Mr. Ed Scott,
Vice Treasurer
Ms. Wanda Blount
Ms. Jessica Cartagena
Mrs. Brenda J. Hall
Dr. William Harper, Ph.D
Mr. Christopher Lewis
Mr. William Lewis
Ms. Debra MardenboroughWhite
Ms. Naomi Marshall
Dr. Duncan Shepherd
Ms. Yolanda Taylor
Ms. Leah Williams, Attorney
Mr. Gary Williams, Attorney
Board Member Emeritus
Dr. Andrew Fishleder
Dr. Harold Ford
Mr. Lewis Frauenthal
(Posthumous)
Dr. George Hoffman
Dr. Edgar Jackson
George Jackson, Ph.D
Mr. Herman Leggon
Dr. John Lewis
(Posthumous)
Mrs. Anita Polk
(Posthumous)
Dr. Clifton Turner
(Posthumous)
Dr. Lewis Wright
ASCAA Staff
Mrs. Ira Bragg-Grant,
Executive Director
Mrs. Leslie Carter, Newborn
Screening Coordinator
Ms. Thresa Curry, NCBA Clerical
Ms. Jackie Guy, NCBA Clerical
Ms. Jamie Kelley, Administrative
Assistant
Mr. Robert King, Courier
Mr. Tim Marek, IT/MIS
Ms. Charlotte Martin,
Receptionist
Mr. Larry Osayamwen, CPA/
Accountant
Mr. Gilberto Peña, Hispanic
Outreach Coordinator
Mrs. Lindsay Streck, Health
Education Coordinator
Financial Review
The information contained in the financial review section is presented in accordance with auditing standards generally accepted
in the United States of America and the standards applicable to
financial audits contained in Government Auditing Standards.
Major Funders
Major Contributors
City of Cleveland/CDBG (Community
Development Block Grant)
Cleveland Clinic Foundation
The Harry K. Fox & Emma R. Fox
Charitable Foundation
Ohio Department of Health
United Way Services
Alpha Kappa Alpha Sorority, Epsilon
Lambda Omega Chapter:
In Memory of Karen Adkinson
Philip Eisenberg Charitable Trust
Gerzeny, Dorothy Nalle
Hall, Brenda J.
M.W. Hiram Grand Lodge,
A.F. & A. M., Inc.
Oglesby Constsruction, Inc.
Prayer Unlimited
Willis, Deborah: In Memory of
Onyero Onyeacholem
Major Funders
Bradford, Pamela
Bragg-Grant, Ira
Brand, Bobbie
City of Cleveland, CDBG
Brandon, Michael
(Community Development
Breckenridge, Joseph
Block Grant)
Brewington, Johnny
Cleveland Clinic Foundation
Brooks, Shawanna
The Harry K. Fox & Emma R. Fox Brown, Crystal
Charitable Foundation
Brown, Latayana
Ohio Department of Health
Buffington, Rudolph
Bullard, Michel L.
United Way Services
Burston, Renee
CA Technologies Matching Gifts
Program
Major Contributors
Cairo Elementary School
Carr, Jermel
Alpha Kappa Alpha Sorority,
Carter, Leslie
Epsilon Lambda Omega Chapter: Carter, Staci R.
In Memory of Karen Adkinson Chambers, Patrick
Citywide Banks
Philip Eisenberg Charitable Trust
Clifford, Gregory F.
Gerzeny, Dorothy Nalle
Cluse, Tonya
Hall , Brenda J.
Colbert-Gunn, Che'rri
M.W. Hiram Grand Lodge,
Coleman, Shaqweta
A.F. & A. M., Inc.
Coleman-Smith, Sharon
Oglesby Constsruction, Inc.
Coles, Reginald & Viola
Prayer Unlimited
Conway, Mattie
Cooley, Levonia
Willis, Deborah: In Memory of
Cotton, Steven
Onyero Onyeacholem
Crawford, Ervin
Crumb, Stanford
Curry, Constance
General Donations
Davis, Eric O.
Davis-Harris, Jeannette
AAA Mid-Atlantic - Hamilton, NJ
Dizard, Kamille
Aaron, Carrie
Dominion Employee Giving Program
Abbott Employee Giving Campaign
Dowdell, Courtney
Acey, Keith
Earley, Michelle D.
Afriyie, Kwabena
Easler, Lia
Alexander, Paul
El Hasa Court #47 Daughters of Isis
Allison, Dorothy J.
Fagan, Lena
Alpha Kappa Alpha Sorority, Chi Kappa Farris, Rozalyn
Omega Chapter
Ferguson, Kalyn
AM 880 KIXI Radio
Foster, Alyce
Anderson, Samoanna
Furcron, Sharon
Anonymous
Gant, Cheryl
Anson, Brian
Germany, Jo Ann
Ashford, Stephanie
Gerzeny, Dorothy Nalle
Baker, Michael
Gibbs, Candaice
Banks, Anju
Gilmore, Rowena V.
Battelle
Glenn, Brian
Beatty, Cynthia
Goins, Leonard, Jr.
Bess, Willie
Grace, Robert
Billingsley, Lisa
Graham, Marilyn C.
Blackwell, Marsha D.
Greene, Giesele, Dr.
Blade, Sheila
Griffin, Brandi
Blair, Karen R.
Griffin, Stanley
Blake, Emma
Griffith, Marshall A.
Blunt, Jannie
Haggins, Bonnie M.
Booker, Cheryl
Harper, Michael I.
Boyd, Renee
Headen, Cynthia
BP America
Heard, Joyce
Higgins, Walter
Hill, Arlin
Hill, Michael K.
Hillsman, Angelec
Hodges, Allen
Hollingsworth, Torey
Hopkins, Angelica
Houston, Bernice H.
Hubbard, Pauletta
Hughes, Sharon
Hunter, Stephanie
Jackson, Anthony
Jackson, Sherry F.
Jackson, Terry R.
Jefferson, James
Johnson, Mary L.
Jones, Deborah
Jones, Seltenia
Jones, Sharnise
Jones, Tiffany
Jordan, Marilyn R.
King, Edward
King, Robert
Koeth, Jason
Larkin, Leevator
Lawson, Vanessa R.
Leary, Joan
Lewis, William
Lindsey, Maren K.
Lockhart, Derrick
Long, Inejia M.
Love, John
Lovelace, Rita
Madden, Tamekia
Malloy, Donald
Marshall, Naomi B.
Mason, Antionetta
McCormick, Darren Terel
McCormick, George
McDade, Tensie R.
McDade, Theresa
McDade, Tyrone
McGinty, Mary Jane
McNutt, Jennifer
Medical Mutual of Ohio
Melton, Sierra
Millin, Sylvia
Mills, Sharon
Mitchel, Charles
Mitchell, Cynthia
Moore, Carol
Moore, Gloria
Moore, Jeffery
Morgan, Betty
Morris, Valarie M.
Moxley, Cynthia
Murray, Kevin
Murray, LaTonya
Nall, Sheryll
Nationwide Insurance
Neal, Gregory
Nelson, A. G.
Nelson, Erica
Nestle Foundation
Nelson,
Nelson,
Erica
Erica
New Hope
Baptist Church
Nelson,
Erica
Nestle
Nestle
Foundation
Foundation
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Erik
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Nickson,
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Angela
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Nowell,
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Orange James
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&Haamid
JJ Peter:
of
ofSusan
DeLon
DeLon
L.
Haamid
of Jessica
Jessica Byrd
Byrd
of
Colie,
Colie,Susan
SusanCC&
&JJPeter:
Peter: In
InMemory
Memory
Corrigan, Michael
Michael &
& Donna: In
Corrigan,
of
ofJessica
JessicaByrd
Byrd Donna: In
Memory of
of Grace
Grace Vander
Vander Schaaf
Schaaf
Memory
Corrigan,
Corrigan,Michael
Michael&
&Donna:
Donna: In
In
Costello, Richard:
Richard: In
In Memory of
of
Costello,
Memory
Memoryof
ofGrace
GraceMemory
Vander
VanderSchaaf
Schaaf
Deidre Chance
Chance
Deidre
Costello,
Costello,Richard:
Richard: In
InMemory
Memoryof
of
Essenburg, Grace:
Grace: In
In Memory of
Essenburg,
Deidre
DeidreChance
Chance Memory of
Grace Vander
Vander Schaaf
Schaaf
Grace
Essenburg,
Essenburg,Grace:
Grace: In
InMemory
Memoryof
of
Flood, Michael:
Michael: In
In Memory
Memory of
Flood,
Grace
GraceVander
VanderSchaaf
Schaaf of
Deidre Chance
Chance
Deidre
Flood,
Flood,Michael:
Michael: In
InMemory
Memoryof
of
Folsom,
Fred
T. &
& Agnes:
Agnes: In
In Memory
Memory
Folsom,
Fred
T.
Deidre
Deidre
Chance
Chance
of Jessica
Jessica Byrd
Byrd
of
Folsom,
Folsom,Fred
FredT.
T.&
&Agnes:
Agnes: In
InMemory
Memory
In Kind Donations
Forest Elementary
Elementary School
School PTO: In Memory
Forest
of
ofJessica
JessicaByrd
Byrd PTO: In Memory
of Stefan
Stefan David
David Middleton
Middleton
of
In
In
Kind
Donations
BedKind
Bath &
&Donations
Beyond
Bed
Bath
Beyond
Forest
ForestElementary
ElementarySchool
SchoolPTO:
PTO: In
InMemory
Memory
Jablonski,
Ed:
In
Memory
of Deidre
Deidre
Boston Mills/Brandywine
Mills/Brandywine Ski
Ski Resorts,
Resorts, Jablonski,
Ed:
In Memory
of
Boston
of
of
Stefan
Stefan
David
David
Middleton
Middleton
Bed
BedBath
Bath
&Blast
Beyond
Beyond
Chance
Polar&
Blast
Polar
Chance
Jablonski,Ed:
Ed: In
InMemory
Memoryof
ofDeidre
Deidre
Boston
Boston
Mills/Brandywine
Mills/Brandywine
SkiResorts,
Resorts, Jablonski,
Build-A-Bear
Workshop Ski
Build-A-Bear
Workshop
Jackson, Stanley:
Stanley: In
In Memory
Memory of
of
Jackson,
Chance
Chance
Polar
Polar
Blast
Blast
Children's
Museum
of
Cleveland
Children's Museum of Cleveland
Stephanie A.
A. Jackson
Jackson
Stephanie
Build-A-Bear
Build-A-Bear
Workshop
Workshop
Cleveland Browns
Browns
Cleveland
Jackson,
Jackson,Stanley:
Stanley: In
InMemory
Memoryof
of
Jenkins, Jim
Jim &
& Jenny:
Jenny: In
In Memory of
Children's
Children's
Museum
of
ofCleveland
Cleveland
Jenkins,
ClevelandMuseum
Metroparks
Zoo
Cleveland
Metroparks
Zoo
Stephanie
Stephanie
A.
A.Jackson
JacksonMemory of
Jessica Byrd
Byrd
Cleveland
Cleveland
Browns
Jessica
Museum of
of Art
Art
ClevelandBrowns
Museum
Jenkins,
Jenkins,
Jim
Jim
&
&Jenny:
Jenny: In
InMemory
Memoryof
of
Cleveland
Cleveland
Metroparks
Metroparks
Zoo
Zoo
Orchestra
Johnson, Gloria
Gloria G.:
G.: In Memory of
Cleveland Orchestra
Johnson,
Jessica
JessicaByrd
Byrd In Memory of
Cleveland
Cleveland
Museum
Museum
of
of
Art
Art
Costco
Wholesale
John D.
D. Leary
Leary
Costco Wholesale
John
Cleveland
Cleveland
Orchestra
Orchestra
Johnson,
Johnson,Gloria
GloriaG.:
G.: In
InMemory
Memoryof
of
Cracker Barrel
Barrel
Old Country
Country Store
Store
Cracker
Old
Knoll,
Winnie
R.: In
In Memory
Memory of
of
Knoll,
Winnie
R.:
Costco
Costco
Wholesale
Wholesale
John
John
D.
D.Leary
Leary
Cristiano
Print Solutions
Solutions
Cristiano
Print
Grace Vander
Vander Schaaf
Schaaf
Grace
Cracker
Cracker
Barrel
OldCountry
Country
Store
DonatosBarrel
Pizza Old
Subs
Salads Store
Donatos
Pizza
Subs
Salads
Knoll,
Knoll,Winnie
WinnieR.:
R.: In
InMemory
Memoryof
of
Cristiano
Cristiano
Print
Print
Solutions
Solutions
Krick,
William
&
Janie:
East Mt.
Mt. Zion
Zion Baptist
Baptist Church,
Church, Lifeline
Lifeline Krick,
William
& Janie:
East
Grace
Grace
Vander
Vander
Schaaf
Schaaf
Donatos
Donatos
Pizza
PizzaSubs
SubsSalads
Salads
In Memory
Memory of
of Jessica
Jessica Byrd
Byrd
Improvisation
In
Improvisation
Krick,William
William&
&Janie:
Janie:
East
East
Mt.
Mt.Zion
Zion
Baptist
BaptistChurch,
Church,Lifeline
Lifeline Krick,
Marshall,
Naomi
Marshall,
Naomi
Leary, Maureen:
Maureen: In
In Memory
Memory of
of
Leary,
In
InMemory
Memoryof
ofJessica
JessicaByrd
Byrd
Improvisation
Improvisation
Mt. Gillion
Gillion Baptist
Baptist Church
Church
Mt.
Min. John
John D.
D. Leary
Leary
Min.
Marshall,
Marshall,
Naomi
Naomi
Nautica Queen
Queen
Leary,
Leary,Maureen:
Maureen: In
InMemory
Memoryof
of
Nautica
Leary, Tracy:
Tracy: In
In Memory
Memory of
of
Mt.
Mt.
Gillion
Gillion
Baptist
Baptist
Church
Church
Leary,
Olive
Garden
Italian
Restaurant
Min.
Min.John
JohnD.
D.Leary
Leary
Olive
Garden
Italian
Restaurant
John D.
D. Leary
Leary
Nautica
Nautica
Queen
John
Omega Queen
Psi
Phi Fraternity,
Fraternity, Inc.
Inc. &
& Zeta
Zeta
Omega
Psi
Phi
Leary,
Leary,Tracy:
Tracy: In
InMemory
Memoryof
of
Olive
OliveOmega
Garden
Garden
Italian
Italian
Restaurant
Restaurant
Omega Chapter
Chapter
Ledbetter,
William
& Marion: In
John
John
D.
D.
Leary
Leary
Omega
Omega
Psi
Psi&Phi
Phi
Fraternity,
Fraternity,
Inc.
Inc.&
&
&Club,
Zeta
Zeta
Pickwick
Frolic
Restaurant
Memory of Jessica Byrd
Omega
Omega
Chapter
Chapter
Home to
Hilarities 4th St. Theatre
Lucano, Mae: In Memory of
Deidre Chance
Salgado, Shera & Stephanie: In Memory Varner, Brenda: In Memory of
of Jama Greene
Jessica Byrd
Lux, Allen: In Memory of Jessica Byrd Schofield, Clarence & Glennis: In
Memory of Patrice Neree
Miller, Kennard & Barbara: In
Memory of Jessica Byrd
Muata, Cameron: In Memory of
Dwight & Stefan Middleton
Shubert, Beth: In Memory of
Jessica Byrd
Siegmann, Lorraine: In Memory of
Deidre Chance
Namitz, Suzan & Lester: In Memory of
Smith, Harold & Deanna: In Memory
Jessica Byrd
of Jessica Byrd
Pedone, Joe: In Memory of
Deidre Chance
Peters, William: In Memory of
Deidre Chance
Pilger, Jim & Margie: In Memory of
Chris Tildon
Venema, W.: In Memory of Grace
Vander Schaaf
Vitarich Laboratories, Inc.: In Memory
of Jessica Byrd
Wakefield, Christine: In Memory of
Andrew Roberts
Walter, Anthony: In Memory of
Deidre Chance
Smith, Mike & Debbie: In Memory of
Marcus Antonio Russell
Weathersby, Ronnie & Pam: In Memory of Jessica Byrd
Stauber Performance Ingredients: In
Memory of Jessica Byrd
Wells, Janet L.: In Memory of
Kevin Harrington
Tepel, Neal: In Memory of
Deidre Chance
Rygiel, Dennis & Mary: In Memory of
Vander Schaaf, Bruce & Mary: In
Jessica Byrd
Memory of Grace Vander Schaaf
Werve Frazier, Jennifer: In Memory of
Sean Coachman
Whitfleet, Ed: In Memory of
Deidre Chance
Willis, Deborah: In Memory of
Onyero Onyeacholem
Worrell, Marcus & Mary: In Memory
of Jessica Byrd
Donations In Honor
Anonymous: In Honor of
Earl Lamont Millhouse
Buffalo Soldiers Motorcycle Club of
DE: In Honor of Keith Holland
Edelstein, Theresa: In Honor of
Hilda Brown
Green, Tyrese: In Honor of Jasmine
Johnson
Hall, Sonya: In Honor of Christa
Williams
Newton Manufacturing Co.: In
Honor of Carl Kerr
Continued from inside front cover:
ongoing. The hope is that
these studies will provide
better treatments for sickle
cell disease.
Researchers
also are looking for ways to
predict the severity of the
disease.







Bone marrow transplants
can cure sickle cell disease.
Because the procedure has
significant risks, transplants
are not appropriate for every
patient.
Bone marrow transplants are used primarily in young patients who have severe sickle cell disease. However, the
decision to give this treatment is made
on a case-by-case basis.
the symptoms of the disease, but they can pass it
on to their children. Sickle cell trait is diagnosed
with a simple blood test. People at risk of having
sickle cell trait can talk to a doctor or health
clinic about getting this test.
Bone marrow used for a transplant must
come from a closely matched donor.
This is usually a close family member
who doesn't have sickle cell disease.
Complications
Researchers continue to look for ways
to reduce the risks of this procedure and
to widen its application.
Scientists are studying gene therapy as a
possible treatment for sickle cell disease. Researchers want to know whether
a normal gene can be put in the bone
marrow of a person who has sickle cell
disease. This would cause the body to
make normal red blood cells.
It is possible for a person with sickle cell trait to
experience complications of sickle cell disease,
such as splenic sequestration, “pain crisis,” and,
rarely, sudden death.
This can happen under extreme conditions of:



Researchers also are studying whether
they can “turn off" the sickle cell gene
or “turn on" a gene that makes red blood
cells behave more normally.
Researchers are studying several new
medicines for sickle cell anemia. Some
of these interfere with sickling of hemoglobin; others prevent the cells from
sticking to blood vessel walls, and some
raise levels of the hemoglobin present
before birth–fetal hemoglobin.
Sickle Cell Trait
People who inherit one sickle cell gene and one
normal gene have the sickle cell “trait.” People
with sickle cell trait usually do not have any of

High altitude (flying, mountain climbing, or cities with a high altitude)
Increased pressure (scuba diving)
Low oxygen (mountain climbing or exercising extremely hard). As a result of
this some individuals with sickle cell
trait have developed a serious condition
known as rhabdomyolsis which can be
fatal.
Dehydration (too little water in the
body)
Content source: Centers for Disease Control and
Prevention, January, 2010
http://medlineplus.gov/2011NIH
ASCAA Mission:
The American Sickle Cell Anemia Association was incorporated in
1971 as a nonprofit organizations. The mission of the organization
is to provide comprehensive education, testing, counseling and
supportive services to the population at risk for sickle cell anemia
and its variants. Further, its intent is to ensure quality and quantitative care in the provision of comprehensive service to affected individuals and families.
American Sickle Cell Anemia Association
10900 Carnegie Ave., DD1-201
Cleveland, Ohio 44106
Phone: (216) 229-8600 Fax: (216) 229-4500 www.ascaa.org
A United Way Agency