Dr.med. Ivan Foeldvari
Hamburger Zentrum für Kinder- und Jugendrheumatologie
Kompetenz-Zentrum für Sklerodermie im Kindesalter
Kompetenz Zentrum für autoimmune Uveitis im Kindesalter
Schön Klinik Eilbek , Dehnhaide 120, D-22081 Hamburg , Germany
Tel: +4940-2092-3694 ; Fax: +4940-2092-3693
E-Mail: [email protected]
Homepage:www.kinderrheumatologie.de//www.sklerodermie.org // www.uveitis-kindesalter.de
th
Hamburg Symposium on Juvenile Scleroderma
– Update on New Developments –
– How to differentiat activity and damage in systemic sclerosis
Date: December 2nd 2017, 10.00-18.00
10
Location: Schön Klinik Eilbek, Haus 7, Dehnhaide 120, 22081 Hamburg, Germany
Programm
10.-10.15
Introduction – Ivan Foeldvari
Chairman: Dan Furst and Vanessa Smith
10.15-11.00 What is the difference between activity and damage and why is it
important to separate it?
11.00-11.20 How is damage assessed in adult Systemic Scleroderma patients: The
SCTC damage index. Dinesh Khanna, Division of Rheumatology,
University of Michigan, Ann Arbor, MI, USA
11.20-11.40 How is te activity assessed in adult systemic scleross- The new Revised
European Activity Index. Chris Denton, Division of Medicine, University
College London, London, UK
Coffe break
12,00-12.20 How do we assess damage in juvenile systemic sclerosis? Results from
the inception cohort - Ivan Foeldvari, Hamburger Zentrum für Kinderund Jugendrheumatologie, Hamburg, Germany /Jens Klotsche ,
Biostatistician Deutsche Rheumaforschungszentrum Berlin, Germany
12.20-12.40 How is the proposed juvenile scleroderma response index works in the
real life patients- results from the inception cohort. Ivan Foeldvari,
Hamburger Zentrum für Kinder- und Jugendrheumatologie, Hamburg,
Germany /Jens Klotsche , Biostatistician Deutsche
Rheumaforschungszentrum Berlin, Germany
12.40.-13.00 Roundtable discussion
Lunch break
Chairman: Dinesh Khanna, Chris Denton
14.00-14.30 Capillaroscopy findings as reflection of damage and activity- Vanessa
Smith , Maurizio Cutolo, Department of Rheumatology, Ghent
University Hospital, Ghent,Belgium; Research Laboratory and Clinical
Division of Rheumatology, Department of Internal Medicine, University
of Genova, Viale Benedetto, Italy
13.10.-13.20 Roundtable discussion
Chairman Ivan Foeldvari and Maurizio Cutolo
14.00-14.30 Specific issues to assess activity and damage in cardiopulmonary
involvement in Systemic Sclerosis- Chris Denton, , Division of Medicine,
University College London, London, UK
14.30-15.00 Specific issues to assess activity and damage in Gastrointestinal
involvement in Systemic Sclerosis- Dinesh Khanna - Division of
Rheumatology, University of Michigan, Ann Arbor, MI, USA
Coffe break
Chairman Dan Furst and Chris Denton
15.30-16.00 Specific issues to assess activity and damage regarding renal
involvement in Systemic Sclerosis-, Markus Kemper, Pediatric
Nephrologist, Hamburg , Germany
16.00-16.30 Are there any biomarkers which reflect disease activity or damage in
Systemic Sclerosis – Dan Furst , UCLA, Los Angeles, USA
16.30-16.50 Proposal of a pediatric activity and damage index for juvenile systemic
sclerosis
16.50-17.50 Roundtable discussion with all speakers of the meeting
17.50-18.00 Closing Remarks: Ivan Foeldvari
20.00 All participants are invited to a dinner, to be able to discuss the day in a relaxed
athmosphere.
There is no registration fee. Please register under [email protected]
The symposium is supported by an unrestricted found by xxxx