ManagingFoodAllergiesintheSchoolSetting: GuidanceforParents TheFoodAllergy&AnaphylaxisNetwork(FAAN) www.foodallergy.org ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents ThispublicationwasdevelopedwithsupportfromtheCentersforDiseaseControlandPrevention,NationalCenterforChronicDisease PreventionandHealthPromotion,DivisionofAdolescentandSchoolHealth;contract#200Ͳ2009ͲMͲ31692.Itscontentsaresolelythe responsibilityoftheauthorsanddonotnecessarilyrepresenttheofficialviewsoftheCentersforDiseaseControlandPrevention. 2 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents ManagingFoodAllergiesintheSchoolSetting: GuidanceforParents Forsomeparents,sendingachildwithlifeͲthreateningfoodallergiesofftoschoolcanfeellikean overwhelmingtask.Successfullytransitioningyourchildintoschoolrequiresformingapartnershipbetween youandateamofkeyindividualsthatincludestheschoolnurse,teachers,administrators,cafeteriastaff, maintenancestaff,transportationstaff,coaches,otherparents,andyourchild’sclassmates.Allofthese individualsplayaroleinfoodallergymanagement.TheFoodAllergy&AnaphylaxisNetwork(FAAN)has createdthisguidancedocumenttohelpyouhelpyourchildjointhemillionsofchildrenwithfoodallergywho attendschoolsafelyeveryday. Thisguidanceaddressestheparents’rolesinbecomingproactiveparticipantsinapartnershiptohelpmanage foodallergiesintheschoolsetting.Thedocument,dividedinto10sections,focusesonachecklistofcritical steps: ChecklistforParents 1. BecomeInformedandEducated 2. PrepareandProvideInformationAboutYourChild’sFoodAllergyandMedication 3. BuildaTeam 4. HelpEnsureAppropriateStorageandAdministrationofEpinephrine 5. HelpReduceFoodAllergensintheClassroom(s) 6. ConsiderSchoolMeals 7. AddressTransportationIssues 8. PrepareforFieldTripsandExtracurricularActivities 9. PreventandStopBullying 10. AssistYourChildwithSelfͲManagement 3 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents 1) BecomeInformedandEducated Therearevarioustopicsyoushouldknowandunderstandbeforeyouapproachyourchild’sschool. First,bewellversedonyourchild’sfoodallergy. Astheparentofachildwithfoodallergy,itiscriticalthatyouknowthefollowing: x Thefoodsheorshemustavoid. x Thesignsandsymptomsofanallergicreaction. x Thewaysyourchildmightdescribeanallergicreaction. x Theroleofepinephrineintreatment. x ThecorrectwaytouseanepinephrineautoͲinjectabledevice,ifonehasbeenprescribed. ThebestwaytolearnthisinformationistotalkwithaboardͲcertifiedallergist.Youcaneasilylocatean allergistnearyouthroughtheAmericanAcademyofAllergy,Asthma&Immunology(AAAAI)website, www.aaaai.org. Second,learnhowschoolsgenerallymanagestudentswithfoodallergy. ReadingAnaphylaxisinSchoolsandOtherChildͲCareSettings,apositionstatementfromAAAAI,isahelpful initialstep.Youalsocanreviewstatewidefoodallergymanagementguidelinesthathavebeenpublishedbya numberofstates,perhapsincludingyours.Appendix1citestheseandotherresourceswhereyoucanfind informationtohelpyousetreasonableexpectationsformanagingyourchild’sfoodallergiesatschool. Third,findoutasmuchasyoucanaboutyourschool’sapproachtofoodallergymanagement. Becausefoodallergyhasbecomesuchanemerginghealthissue,especiallyamongchildren,manyschools havealreadyadoptedandimplementedfoodallergymanagementstrategies.Agoodstartingpointforthe inquiryisalocalfoodallergysupportgroup,whereyoucanconnectwithparentswhosechildrenattend schoolsinyourlocalarea.FAANrecognizesmorethan170suchgroupsacrosstheUnitedStates(withdozens morepending).Supportgroupsgenerallyholdregularmeetings,haveamedicaladvisor(usuallyalocal allergist),andareknowledgeableaboutareaschoolsandtheirfoodallergymanagementpolicies.Support groupsarealsoagreatwaytocomparenotesandsharetipswithotherparentsinyourarea. Finally,understandthattheindividualneedsofstudentswithfoodallergymaydifferaccordingtoage. Someofthemanagementstrategiesinthisdocumentmaybemoreappropriateattheelementaryschoollevel asopposedtothehighschoollevel,whenstudentsbecomemoreindependent.Forexample,studentsinhigh schoolmaynotneedtositatadesignatedtableinthecafeteria,andmaynotneedtoberemindedaboutthe potentialdangerofsharingortradingfood. 4 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents 2) PrepareandProvideInformationAboutYourChild’sFoodAllergyandMedication FoodAllergyActionPlan Providinginformationaboutyourchild’sfoodallergyandmedicationstotheschooliscritical.Withthehelpof yourchild’sallergist(orotherlicensedhealthcareprovider),completeaoneͲpageFoodAllergyActionPlan. Yourchild’sschoolmayhaveitsownform,anditmayhaveaslightlydifferentname(i.e.,EmergencyCare Plan);ifnot,youcandownloadonefromtheFAANwebsiteatwww.foodallergy.org/page/foodͲallergyͲactionͲ plan1. Theformshouldinclude x Acompletelistoffoodstowhichyourchildisallergic. x Thepossiblesymptomsofyourchild’sallergicreaction. x Thetreatmentthatshouldbeadministeredtoyourchild,andunderwhatcircumstances. x Contactinformationforemergencymedicalservices(i.e.,911),yourchild’sallergist,andyou. x Acurrentpictureofyourchild. x Thesignatureofyourchild’sallergist(orotherlicensedhealthcareprovider). BesidestheFoodAllergyActionPlan,theschoolmayaskyoutoprovideinformationsuchasallergytest resultsandanyhistoryofyourchild’sallergicreactions.Theschoolalsomayrequireyoutocomplete additionalmedicalformsnotnecessarilyrelatedtofoodallergy. EpinephrineAutoͲInjector YoualsomustprovidetheschoolwithatleastoneepinephrineautoͲinjector,ifprescribed.Infact,many parentsprovideatleasttwoautoͲinjectors,incaseaseconddoseisneeded.EpinephrineautoͲinjectorsshould haveashelflifeof1year,sobesuretochecktheexpirationdateontheautoͲinjectorbeforegivingittothe school.Youmaywanttoensurethattheexpirationdateisatleast12monthsaway,sothatyouwillnotneed toreplacethedeviceduringtheschoolyear. AdditionalMedications Dependingonyourchild’scircumstances,youmayneedtoprovidetheschoolwithadditionalmedications suchasantihistamineand/orasthmainhalers.Remember,however,thatepinephrineisthefirstlineof defensefortreatingapotentiallylifeͲthreateningallergicreaction,andthatalleffortsshouldbedirected towarditsimmediateuse.Researchclearlyshowsthatfoodallergyfatalitiesaremostcommonlyassociated eitherwithnotusingepinephrineorwithdelayingepinephrinetreatment.1,2,3,4 1 TheUseofEpinephrineintheTreatmentofAnaphylaxis.PositionStatementfromtheAmericanAcademyofAllergy,Asthma& Immunology.Availableonlineat:www.aaaai.org/members/academy_statements/position_statements/ps26.asp. 2 BockSA,MuñozͲFurlongA,SampsonHA.Fatalitiesduetoanaphylacticreactionstofoods.JournalofAllergyandClinical Immunology2001;107:191Ͳ193. 3 BockSA,MuñozͲFurlongA,SampsonHA.Furtherfatalitiesduetoanaphylacticreactionstofood:2001to2006.JournalofAllergy andClinicalImmunology2007;119:1016Ͳ1018. 4 SampsonHA,MendelsonL,RosenJP.FatalandnearͲfatalanaphylacticreactionstofoodinchildrenandadolescents.NewEngland JournalofMedicine1992;327:380Ͳ384. 5 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents 3) BuildaTeam Managingfoodallergyatschoolinvolvesateamofindividuals,includingtheschoolnurse,teachers, administrators,cafeteriastaff,maintenancestaff,transportationstaff,coaches,otherparents,andyourchild’s classmates. Inworkingwithyourteam,recognizeupfrontthatsomeofthemembersmightneedadditionaltimetolearn aboutfoodallergyandthestepsneededtoavoidfoodallergensintheschoolsetting.ActionsthataresecondͲ naturetoyou,suchasreadingingredientlabels,maynotbeintuitiveactionsforothers.Maintainanopen dialoguewithyourteam,characterizedbycalm,confidentcommunication.Also,makeyourselfavailableto yourteam,andprovidethemwithyourcontactinformationsotheycancallyouwithquestions,suggestions, orconcerns.Considersharingwiththemacopyoftheinformationsheet,“10FactsAboutFoodAllergy”(see Appendix2). Beforethefirstdayofschool,trytomeetwithmembersofyourteamto x Introduceyourselfandshareinformationaboutyourchild. x Findoutwhattheyalreadyknowaboutfoodallergy. x Provideinformationonthebasics(ifnecessary),clearupanymisconceptions,anddiscusstherole teammembershaveinmanagingyourchild’sfoodallergy. Provideacopyofyourchild’sFoodAllergyActionPlantotheteammemberswhoaremostlikelytocomeinto contactwithyourchildduringtheschoolday,andaskthemtokeepitinaneasilyaccessiblelocation. Becauseofschedules,youmaynotbeabletomeetwithalltheschoolteammembersasagroup.However,as soonaspossiblebeforethebeginningoftheschoolyear(orpriortoaschoolenrollmenttransfer),youshould meetatleastwithyourchild’steacher(s),whowillhavethemostcontactwithyourchildthroughoutthe schoolday. Youalsoshouldmeetwiththeschoolnurseinordertodiscussyourchild’sFoodAllergyActionPlan,andany needforanadditionaltypeofwrittenmanagementplan.Morecommontypesofplansinclude: x AnIndividualizedHealthcarePlan(IHP),whichisrecommendedbytheNationalAssociationofSchool Nurses(NASN)forstudentswhosehealthcareneedsmayaffecttheirabilitytoattendschoolsafely andperformacademically.5 x A504Plan6,whichappliestostudentswhohaveadisabilitythataffectstheirabilitytoparticipatefully, alongsidetheirpeers,inallregularfacetsoftheschoolday.Childrenwhosefoodallergymayresultin severe,lifeͲthreateningreactions(intheopinionofthechild’slicensedhealthcareprovider)meetthe definitionofdisabilityunderSection504.7Eachschoolshouldhavea504Coordinatorwhocanhelp youdevelopa504Plan. x AnIndividualEducationProgram(IEP),basedontheIndividualswithDisabilitiesEducationAct(IDEA). IDEAaddressesservicesforchildreninneedofspecialeducation(i.e.,childrenwithconditionsthat impacttheireducationalperformance,suchashearing,visionorspeechimpairments,behavioral conditions,orautism).ChildrenwithfoodallergyalonegenerallydonotqualifyforanIEP;however,a 5 NASNPositionStatementonIndividualizedHealthcarePlans,availableonlineatwww.nasn.org/Default.aspx?tabid=226. Section504oftheRehabilitationActof1973,asamended,29U.S.C.s.794isafederallawdesignedtoprotecttherightsof individualswithdisabilitiesinprogramsandactivitiesthatreceivefederalfundsfromtheU.S.DepartmentofEducation.Recipients ofthesefundsincludepublicschooldistricts,alongwithotherstateandlocaleducationalagencies. 7 AccommodatingChildrenwithSpecialDietaryNeedsintheSchoolNutritionPrograms.UnitedStatesDepartmentofAgriculture FoodandNutritionService,Fall2001.Availableonlineat:www.fns.usda.gov/CND/Guidance/special_dietary_needs.pdf. 6 6 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents childwithfoodallergyalsomayhaveacoͲexistingconditionthatmaywarrantprotectionunderIDEA. Inthiscase,thefoodallergyandthecoͲexistingconditionaregenerallyaddressedthroughoneIEP. 7 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents 4) HelpEnsureAppropriateStorageandAdministrationofEpinephrine Knowinga)whereyourchild’sprescribedepinephrineislocated,b)whohasaccesstoit,andc)whowill administerthemedicationintheeventofanemergencyiscriticaltosupportingyourchild’shealthandwellͲ beingatschool. Whendeterminingthelocationoftheepinephrine,considerthefollowing: x Dependingontheirageandmaturitylevel,manychildrencarrytheirepinephrine(inawaistpackorin abookbag).Thispracticeisgenerallyallowedbystatelawand/orlocalschoolboardpolicyandis basedonparentalandphysicianconsent.Evenintheeventthatthechilddoescarryhisorher prescribedepinephrine,aresponsibleadultshouldalwaysbeavailableincaseanemergencyarises. x Localschoolpolicymayrequirethatprescribedepinephrinebekeptunderlockandkey.Ifso,discuss whohasaccesstoepinephrineandhowconvenientlyitcanbeaccessedinanemergencyorafter normalschoolhours. x Localpolicymayallowepinephrinetobekeptintheclassroom(inacontainermountedtoawall,out ofthereachoftheotherstudents,orintheteacher’sdesk),orpassedfromteachertoteacherasyour childchangeslocationsduringtheschoolday. Makesurethattheepinephrineyouprovidetheschoolhasnotexpired,andisclearlylabeledwithyourchild’s nameandclassroominformation. Epinephrineisgenerallyadministeredbytheschoolnurse.However,becauseaschoolnursemaynotbe availableduringanallergicreaction,otherschoolpersonnel(oftencalleddelegates)canbetrainedto administerthemedication.Thisprocessofdelegationisgenerallydeterminedbylocalschoolboardpolicyand bythejudgmentoftheschoolnurse.8Trainingofdelegatesisdonebyaschoolnurse,adistrictnurse,orother licensedhealthcareprovider. Wheneverepinephrineisadministered,thefollowingproceduresshouldbefollowed: x Emergencymedicalservices(i.e.,911)mustbecontactedimmediately,andtherespondingemergency personnelmustbeauthorizedtocarryandadministerepinephrine.Inmanylocations,onlycertain typesofemergencypersonnelareallowedaccesstoepinephrine.Checkwithyourlocalambulance provider(s)tolearnabouttheirpolicies. x IntheeventthatyourchildselfͲadministersepinephrine,heorshemustnotifyanadultstaffmember asquicklyaspossible,andtheadultshouldcallemergencymedicalservices(i.e.,911)immediately. ChildrenshouldneverselfͲadministerepinephrinewhenalone,althoughthiscircumstancemightbe beyondthechild’scontrol. x Yourchildshouldbetransportedtoahospitalandobservedfor4hours.Insomeallergicreactions,the symptomsgoaway,onlytoreturn2to3hourslater.Thisiscalledabiphasicreactionandmaybe moreseverethanthefirstͲphasesymptoms. Ifyourchildhasanallergicreactionatschool,discusstheeventwithappropriateschoolpersonnel.Review howthereactionoccurredandhowitcouldhavebeenprevented.Inaddition,notethesuccessesand challengesthatwereevidentintheresponsetotheemergency. 8 Delegation.PositionStatementfromtheNationalAssociationofSchoolNurses.Availableonlineat: www.nasn.org/Default.aspx?tabid=349. 8 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents 5)HelpReduceFoodAllergensintheClassroom(s) Speakwithyourchild’steacher(s)abouttheroleoffoodintheclassroom.Determinewhetherstrategiescan beimplementedtohelpavoidexposuretofoodallergensandtheriskofyourchildhavinganallergicreaction. Suchstrategiesmayinclude x Havinga“nofoodsharing”or“nofoodtrading”rule. x Encouraginghandwashingafterfoodhandlingandeating.Liquidsoap,barsoap,andsanitizingwipes effectivelycleanhandsofpotentialallergens,butantibacterialsanitizinggelsdonot.9 x Washingsurfacesafterfoodiseatenorused.Commercialwipesandspraycleanersaremosteffective atremovingpeanutproteinfromtablesandothersurfaces.9 x Usingnonfooditemsforclassroomprojects,academicrewards,andclassroomcelebrations. x Encouragingpackagedfooditemswithingredientlabels,asopposedtohomeͲbakedgoods. x Avoidingmodelingclay,papermâché,crayons,soaps,andothermaterialsthatmaycontainallergens. x Keeping“safesnacks”intheclassroomforunplannedevents,alongwithsafe,nonperishablemealsin caselunchiscompromisedorintheeventofashelterͲinͲplaceemergencyorevacuationtoanother location. x Providingtheclassroomteacherwithsafesnacksfortheentireclasssothatyourchildcaneatwhat everyoneelsedoes. x Havingstudentsstoretheirlunchesinaspecificlocation. x Allowingyoutobecomea“classroomparent”sothatyoucanhaveadvancenoticeofplanned activitiesthatmightinvolvefood.Someclassroomparentsarechosenoverthesummerbythelocal PTA.Ifyoucannotbeaclassroomparent,asktobeinvitedtoclasseventssuchasfieldtripssothatyou canhelptheteachermonitoryourchild’sexposuretofoodallergens. x Makingsurethatacopyofyourchild’sFoodAllergyActionPlanisavailableforsubstituteteachers. Inordertoraiseawarenessoffoodallergyandhelpreduceallergensintheclassroom,someschoolssenda letterhometoclassroomparents,informingthemthatthereisachildintheclasswithfoodallergy.Sucha lettercanhelppromoteparentalsupportofthefoodallergymanagementteaminitswork. Youalsomaywanttoasktheschooladministrationtodesignateyourchild’sclassroomasonethatisnotused foroutsideactivitiesandevents(duringnonschoolhours)thatinvolvefood.Takingthisprecautionwillhelp reducecontaminationofdesksandothersurfaceswithfoodallergenswhenschoolisnotinsession. 9 PerryTT,ConoverͲWalkerMK,PomésA,ChapmanMD,WoodRA.Distributionofpeanutallergenintheenvironment.Journalof AllergyandClinicalImmunology2004;113:973Ͳ6. 9 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents 6)ConsiderSchoolMeals Someparentspreferthattheirchildeatonlyfoodpreparedathome,whileothersprefertotakeadvantageof federalschoolmealprograms. AccordingtoguidelinessetforthbytheU.S.DepartmentofAgriculture(USDA),thefederalagencyoverseeing theSchoolBreakfastProgramandtheNationalSchoolLunchProgram,schoolsmustoffersafesubstitute mealstostudentswithlifeͲthreateningfoodallergies.Inordertodoso,however,theschoolneedswritten instructionsfromthechild’slicensedhealthcareprovider,aswellastheidentificationofappropriate substitutions.TheUSDAprovidessampleformsinitsAccommodatingStudentswithSpecialDietaryNeedsin theSchoolNutritionPrograms(seeAppendix1).Theinstructionsandformscanbeintegratedintotheteam’s approachtomanagingyourchild’sfoodallergiesatschool. Talkwiththeschool’sfoodservicedirector,preferablybeforethestartoftheschoolyear,tofindouthowthe schoolcafeteriamanagesstudentswithlifeͲthreateningfoodallergies,andwhethertheapproachis appropriateforyourchild.Commonapproachesinclude x Postingmenusinadvancetoallowparentstoidentifypotentiallyunsafemealofferings. x TrainingfoodservicepersonnelonfoodallergyissuessuchasavoidingcrossͲcontactduringfood preparationandserving,andreadingfoodlabels. x Postingpicturesofchildrenwithfoodallergiesbehindthecounterorregister. x Usingseatingarrangementstominimizeexposuretofoodallergens,whileensuringthatchildrenwith foodallergydonotsitalone. x Encouraginghandwashingaftereatingandfoodhandling. x Washingsurfacesafterfoodiseatenorserved. 10 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents 7)AddressTransportationIssues Manyschoolshaveproceduresformanagingfoodallergiesonschooltransportationvehicles.Ifso,findout whattheseproceduresare,anddeterminewhethertheyareappropriateforyourchild.Keepinmindthat childrenridetransportationvehiclesnotonlytoandfromschoolbutalsoduringfieldtripsandforafterͲschool activities. Commonschoolbus/vanproceduresinclude x A“nofood”policy(unlessmedicallynecessary). x Specialseatingarrangements. x Equippingthebusdriverwithacellphoneoremergencyradiodevice. x Allowingchildrenoranaccompanyingadulttocarrytheirprescribedepinephrineonthebus. x TrainingdriverstorecognizethesymptomsofapotentiallylifeͲthreateningallergicreaction,andto respondappropriately. Atmanyschools,parentsdrivegroupsofchildrenbyprivateautomobile.Insuchcases,thepoliciesand proceduresforschoolbus/vantransportationshouldapply. 11 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents 8)PrepareforFieldTripsandExtracurricularActivities Yourchild’sfoodallergyshouldnotpreventhimorherfromattendingfieldtripsandparticipatingin extracurricularactivities. Askthatyoubegivenadvancenoticeabouttheseevents,sothatyoucanaddressanyfoodallergyconcerns. Issuestoconsiderincludethefollowing: x Whowillberesponsibleforcarryingyourchild’sFoodAllergyActionPlanandmedications? x Whowillberesponsibleforrecognizingthesymptomsofanallergicreaction,administering medications,andcallingemergencymedicalservices(i.e.,911)ifnecessary? x Willyourchildbeabletobringhisorherownfood? x Ifyourchildistoreceiveaspecialmeal,suchasasacklunchnotsuppliedbythechild,whowillensure thatthemealgiventoyourchildissafeforhimorher? x Willthechildreneatatarestaurantorothertypeoffoodserviceestablishment?Ifso,special arrangementsmaybenecessary. x Whattypeoftransportationwillbeinvolved(bus,van,privateautomobile)? 12 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents 9)PreventandStopBullying Anychildcanbebulliedatschool,oftenwithdevastatingresults.Thebullyingofchildrenwithfoodallergies takesongreaterurgencybecauseofthelifeͲthreateningnatureofthecondition.Childrenwithfoodallergies havehadsevereallergicreactionsafterbeingharassedwithanactualfoodallergen(i.e.,smearingpeanut butteronthefaceofachildwhoisallergictopeanuts). Schoolsshouldhavestrong,proactiveantiͲbullyingpreventionprogramsthatincludeasystemwherebyall studentslearnhowtorecognizeandreportbullyingrelatedtolifeͲthreateningfoodallergy.Ahelpful educationalawarenessresourceisFAAN’sBeaPAL(ProtectALife™fromFoodAllergies)program,designedto assistparentsandeducatorsinteachingstudentswhatfoodallergiesareandhowtohelptheirfriendswho havefoodallergies(seeAppendix1). Theschool’sresponsetoreportedbullyingshouldbemadeclearattheoutset,shouldbefullyimplementedas planned,andshouldbeboththerapeuticandpunitive. Alwaysbeonthelookoutforsignsthatyourchildmightbeexperiencingbullyingorteasingbecauseofhisor herfoodallergy.Potentialsignsofbullyingorteasingincludedepression,socialanxiety,resistancetogoingto school,andpooracademicperformance. Ifyoususpectthatyourchildisbeingbullied,contacttheteacherortheprincipal.TheU.S.Departmentof HealthandHumanServiceshasfurtherresourcesonbullying,whicharelistedinAppendix1. 13 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents 10)AssistYourChildwithSelfͲManagement Forchildrenwithfoodallergies,preventionofallergicreactionsinvolvesmakinggoodchoices,advocatingfor themselves,andrecognizingpotentiallydangeroussituations.Asyourchildgrowsolderandmatures developmentally,learninghowtomanagehisorherfoodallergyisvitallyimportantinindividualand collectiveeffortstoavoidlifethreateningfoodallergens.Yourroleinyourchild’slearningprocessisessential. Whenappropriate,teachyourchildto x Carryhisorherprescribedepinephrineatalltimes.Remember:promptadministrationofepinephrine iskeytosurvivingapotentiallylifeͲthreateningreaction. x Knowwherehisorherprescribedepinephrineislocatedatschool(ifheorsheisnotoldenoughor permittedtocarryit)andwhichschoolpersonnelcanaccessthemedication. x Raiseawarenessoffoodallergyamongothers(classmates,friends,etc.). x Avoideatinganyfoodwhoseingredientsareunknown,suchashomeͲbakedgoods. x Avoidsharingortradingfoodwithclassmates. x Washhandsregularlytohelppreventexposuretofoodallergens. x Readfoodlabelstoidentifypotentialfoodallergens. x Learnhowtorecognizethesymptomsofareactionandtotellanadultimmediatelyifheorshe suspectsanallergicreaction. x Wearmedicalidentificationjewelrythatcanhelpconveyfoodallergyinformationtoemergency medicalpersonnel. x Reportbullyingorteasingsothatappropriateactioncanbetaken. 14 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents Appendix1:SelectedResources TheFoodAllergy&AnaphylaxisNetwork(FAAN) ¾ FoodAllergyActionPlan(EmergencyCarePlan):www.foodallergy.org/page/foodͲallergyͲactionͲplan1 ¾ ManagingFoodAllergiesintheSchoolSetting(video):www.foodallergy.org/section/videoͲgallery ¾ BackͲtoͲSchoolToolKit:www.foodallergy.org/section/backͲtoͲschoolͲtoolͲkitcontainsdownloadable posters,brochures,presentations,certificates,andothereducationalmaterials,includingtheBeaPAL (ProtectALife™fromFoodAllergies)program ¾ Foodallergywebsiteforkids:www.faankids.org ¾ Foodallergywebsiteforteens:www.faanteen.org ¾ TalkingtoYourTeenAboutFoodAllergy(brochure): www.foodallergy.org/downloads/TeenBrochure.pdf ¾ Linkstostatewideguidelinesformanagingfoodallergyinschools: www.foodallergy.org/page/statewideͲguidelinesͲforͲschools CentersforDiseaseControlandPrevention(CDC)andOtherFederalAgencies CDC ¾ CDCDatabrief–FoodAllergyAmongU.S.Children:www.cdc.gov/nchs/data/databriefs/db10.htm ¾ CDC/DivisionofAdolescentandSchoolHealth:FoodAllergies www.cdc.gov/healthyyouth/foodallergies/index.htm HealthResourcesandServicesAdministration ¾ TakeaStand!LendaHand!StopBullyingNow!(gamesandcartoonwebisodes): www.stopbullyingnow.hrsa.gov/index.asp?area=main U.S.DepartmentofAgriculture ¾ AccommodatingChildrenwithSpecialDietaryNeedsintheSchoolNutritionPrograms: www.fns.usda.gov/CND/Guidance/special_dietary_needs.pdf U.S.DepartmentofEducation ¾ DearColleagueLetteronDisabilityHarassment:www.ed.gov/PressReleases/07Ͳ2000/0726_2.html ProfessionalOrganizations AmericanAcademyofAllergy,Asthma&Immunology(AAAAI):www.aaaai.org ¾ AnaphylaxisinSchoolsandOtherChildͲCareSettings.PositionStatement: www.aaaai.org/members/academy_statements/position_statements/ps34.asp ¾ TheUseofEpinephrineintheTreatmentofAnaphylaxis.PositionStatement: www.aaaai.org/members/academy_statements/position_statements/ps26.asp AmericanCollegeofAllergy,Asthma&Immunology(ACAAI):www.acaai.org NationalAssociationofSchoolNurses ¾ IndividualizedHealthcarePlans.PositionStatement:www.nasn.org/Default.aspx?tabid=226 ¾ Delegation.PositionStatement:www.nasn.org/Default.aspx?tabid=349 15 ManagingFoodAllergiesintheSchoolSetting:GuidanceforParents Appendix2:10FactsAboutFoodAllergy 1) Thereisnocureforfoodallergy.Strictavoidanceoftheoffendingallergenistheonlywaytopreventa reaction. 2) Afoodallergyoccurswhentheimmunesystemmistakenlyattacksafoodprotein.Ingestionofthe offendingfoodcantriggerthesuddenreleaseofchemicals,includinghistamine,resultinginsymptomsof anallergicreaction.Thesymptomscanbemild(rashes,hives,itching,and/orswelling)orsevere(trouble breathing,wheezing,and/orlossofconsciousness).AfoodallergycanbelifeͲthreatening. 3) Theseverityofaperson’sallergicreactionstofoodcannotbepredictedfrompreviousreactions.Someone whosereactionshavebeenmildinthepastmightreactmoreseverelyduringanextepisode. 4) Anaphylaxisisaseriousallergicreactionthatisrapidinonsetandcanresultindeath.Itismostoften causedbyallergicreactionstofood,insectstings,medications,andlatex.Foodallergyistheleadingcause ofanaphylaxisoutsideofthehospitalsetting. 5) Earlyadministrationofepinephrine(adrenaline)iscrucialtosuccessfullytreatinganaphylacticreactions. EpinephrineisavailablebyprescriptionasanautoͲinjectabledevice. 6)Foodintolerance,unlikeafoodallergy,doesnotinvolvetheimmunesystemandisnotlifeͲthreatening. Lactoseintolerance,inwhichindividualshavetroubledigestingmilksugarlactose,isacommonexample. Symptomsoffoodintolerancecanincludeabdominalcramps,bloating,anddiarrhea. 7)Fouroutofevery100childrenhaveafoodallergy,andstudiesshowthattheprevalenceisincreasing amongchildren.10,11,12Thereasonsfortheapparentincreaseinfoodallergyarenotclearlyunderstoodby scientists. 8)Althoughanindividualcanbeallergictoanyfood,eightfoodsaccountfor90%ofallfoodͲallergicreactions intheUnitedStates:milk,eggs,peanuts,treenuts(almonds,Brazilnuts,cashews,hazelnuts,macadamia nuts,pecans,pistachios,andwalnuts),wheat,soy,fish,andshellfish. 9)Childrentypicallyoutgrowallergiestomilk,egg,wheat,andsoy.However,peanut,treenut,fish,and shellfishallergiesareusuallylifelong. 10)Casualexposuretopeanutbutter(suchasthroughskincontactandinhalation)isunlikelytocause anaphylaxis.13However,allergicreactionscanoccurfromairborneexposuretodustorcookingfumes. 10 BranumAM,LukacsS.FoodAllergyAmongU.S.Children:TrendsinPrevalenceandHospitalizations.NationalCenterforHealth StatisticsDataBrief,No.10,October,2008. 11 SichererSH,MuñozͲFurlongA,GodboldJH,andSampsonHA.USprevalenceofselfͲreportedpeanut,treenut,andsesameallergy: 11ͲyearfollowͲup.JournalofAllergyandClinicalImmunology2010;125:1322Ͳ6. 12 Branum,AM,Lukacs,SL.FoodAllergyAmongChildrenintheUnitedStates.Pediatrics2009;124:1549Ͳ55. 13 SimonteSJ,MaS,MofidiS,SichererSH.Relevanceofcasualcontactwithpeanutbutterinchildrenwithpeanutallergy.Journalof AllergyandClinicalImmunology2003;112:180Ͳ2. 16
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