Preventing Disrespect and Abuse of Women Giving Birth in Health Care Facilities Mary Ellen Stanton Inter-Agency Gender Working Group October 29, 2014 Photo: Amy Cotter Vaginal destruction Displacement in War Female Genital Cutting Pregnancy Early Sexual Initiation Female Infanticide Domestic Violence Seclusion Honor Killings Early Marriage Girl Neglect Rejection of Widows Abortion Trafficking Abduction/Rape Selective Abortion Women and girls are vulnerable over their lifespan Evidence for Disrespect and Abuse in Facility-Based Childbirth • Lack of informed consent • Lack of confidentiality • Discrimination • Physical Abuse • Undignified Care → Humiliation • Abandonment of Care • Demand for payments → Detention in Facilities Source: Adapted from Bowser and Hill, Traction Project 2010 “…in the hospital they will be shouting on you treating you like you are not a human being.” …woman with infant in northern Ghana describing her treatment in childbirth Source: Moyer et al. Midwifery, 2013 “A nurse was attending to me, she told me I had to help, to push. At the moment I couldn’t. I was yelling. The nurse gave me a slap. That made me very ashamed, she treated me as a bad girl. …woman in Peru Source: Silencio and y complicidad. CLADEM/CRLP reported in Pires. Violence against women….The Lancet 2020. Some key questions How bad is the problem? Will we know it when we see it? How widespread? Do we have a set of bad anecdotes, but incidence is low? Where is it happening? What can we do about it? Some key questions How bad is the problem? Significant…and “small” things to an observer may be experienced as humiliation and cruelty Will we know it when we see it? Not necessarily. Perceptions vary. How widespread? Do we have a set of bad anecdotes, but prevalence is low? No! Where is it happening? Throughout the world…manifestations are different. What can we do about it? The big question. Strategies will depend on type of abuse, context, whether it’s an egregious incident or a systemic issue…. How can we measure progress? Work started on tools, indicators. Will we know disrespectful and abusive treatment when we see it? “Normalized D & A” - Behavior women say is D & A but providers do not - Behavior women consider acceptable but others do not Behavior all agree is D & A - Poor treatment or conditions - Systemic problem - All agree is D & A - Poor treatment or conditions - Systemic problem - Deemed normal or acceptable Deviation from national standards of good quality of care Deviations from human rights standards Source: Adapted from Freedman and Kruk. The Lancet, 2014. What about incidence of disrespect and abuse of women in childbirth? Depends upon (at least): • • • • • whether you observe or ask whom you ask – women or health care provider when you ask – in hospital before discharge or several months later where you ask – at the health facility or in the community how much you ask -- single item or multiple questions, with or without probes • how you ask… Good studies are forthcoming. There is wide variability. From the Heshima Project in Kenya, 2014 (Source: Population Council) • 1 in 5 women interviewed (n=644) reported feeling humiliated at some point during their most recent birth experience • 9 out of 10 health care providers said they heard of or witnessed colleagues treating women inhumanely In seeking and receiving maternity care before, during and after birth: 1. No one can physically abuse you. 2. No one can force you or do things to you without your knowledge and consent. 3. No one can expose you or your personal information. 4. No one can humiliate or verbally abuse you. 5. No one can discriminate against you because of something they do not like about you. 6. No one can prevent you from getting the maternity care you need. 7. No one can detail you or your baby without legal authority. Source: White Ribbon Alliance for Safe Motherhood. Disrespect and abuse is a quality of care issue: setting performance standards Examples of standards and verification criteria: • The woman is protected from physical harm or ill treatment: Never physically restrains woman Photo: Jhpiego • The woman’s right to information, informed consent, and choice/preferences is protected: Responds to questions with promptness, politeness, and truthfulness Source: MCHIP Respectful Maternity Care Toolkit Photo: EngenderHealth Source: WHO Prevention and Elimination of Disrespect and Abuse During Childbirth statement. http://www.who.int/reproductivehealth/topics/maternal_perinatal/statement-childbirth/en/ The providers of maternity care What role does “difficulty of circumstance” or systemic factors play in the manifestation of and lack of accountability for disrespect and abuse of pregnant and childbearing women? Issues may include: • Poor role models • Low social status/social discrimination • Exhaustion • Frustration • Fatalism • Moral distress Can lead to anger, rudeness, disrespect and abuse of women in their care. Attention to the providers’ issues in tackling disrespect and abuse of childbearing women Underway and completed (selected) ICM, White Ribbon Alliance — advocacy for midwives State of the World’s Midwifery Reports and dissemination WHO systematic review of interventions to address barriers Source: Ngongo/EngenderHealth WHO consultation to document midwives’ voices on their reality WHO systematic mapping of the literature—social, economic and professional barriers preventing midwifery personnel providing quality of care of women and newborns Where do we go from here? We certainly need a vision of respectful maternity care that is meaningful for all women and health care providers everywhere. But when disrespect and abuse is called out for what it is – the symptom of fractured health systems and locally expressed power dynamics that conspire against both patients and providers – then the real work of improving quality and creating accountability can begin. …Lynn Freedman and Margaret Kruk Averting Maternal Death and Disability Program References Bohren et al. Barriers and facilitators to facility-based delivery in low- and middle-income countries: a qualitative evidence synthesis. BMC Reproductive Health, 2014. Bowser and Hill. Exploring Evidence for Disrespect and Abuse in facility-Based Childbirth, USAID TRAction Project, Sept. 20, 2010. Confronting disrespect and abuse during childbirth in Kenya. Heshima Project Brief. USAID TRAction Project. Population Council 2014. Freedman and Kruk, Disrespect and abuse of women in childbirth: challenging the global quality and accountability agendas. The Lancet. June 2014. Freedman et al. Defining disrespect and abuse of women in childbirth: A research, policy and rights agenda. Bulletin of the World Health Organization. Published online 2014. (Final forthcoming.) McMahon et al. Experiences and responses to disrespectful maternity care and abuse during childbirth: a qualitative study with women and men on Morogoro Region, Tanzania. BMC Pregnancy Childbirth, Aug., 2014. Moyer et. al. ‘They treat you like you are not a human being’: Maltreatment during labour and delivery in rural northern Ghana. Midwifery. 2013. Pires et. al. Violence against women in healthcare institutions: an emerging problem. The Lancet. May, 2002. Respectful Maternity Care Toolkit. USAID MCHIP. Warren, et.al. Study protocol for promoting respectful maternity care initiative to access, measure and design interventions to reduce disrespect and abuse during childbirth in Kenya. BMC Pregnancy Childbirth. 2012. White Ribbon Alliance . Respectful Maternity Care: The Universal Rights of Childbearing Women. White Ribbon Alliance, 2011. WHO Prevention and Elimination of Disrespect and Abuse During Childbirth Statement. WHO. 2014.
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