Feb / Mar 2016 Maidstone & District Branch Newsletter Hi Vicci, your on the cover again! Recently we celebrated our 50 years as a branch of the MS Society. Happily we were able to invite a few people who were active in those grey beginnings. However, what some may not know is that back in May/June 1995 the first issue of MS Matters was published. It was an amalgamation of the original MS News and The Messenger. .........more on page 7 ANNUAL LUNCH 30 January saw 48 of us sitting down to a super lunch at the Grange Moor Hotel. Excellent food, lots of laughter and meeting up with old friends made it a fun day and a great success. The generosity of several people meant that the number of raffle prizes grew to 19 and the generosity of those attending resulted in £120 being raised for branch funds. A big thank you to everyone but most of all congratulations and big hugs go to Shirley Boosey who organised it all. Also i n this issue AGM l Socials & Outings l VAT Relief l Resources TO RECEIVE YOUR NEWSLETTERS BY EMAIL? please let me know. email: [email protected] If you have anything large or small to say or sell? please let me know mob: 07547 139576 or email: [email protected] Copy date for next issue 21st March FREE TO A GOOD HOME Hardwood standing frame (Manual) We have been offered this piece of equipment by someone who lives in Bearsted. It is about 1 metre square, well used but perfectly serviceable. If anyone might find this useful please call into the branch, 01622 675556. This newsletter is published by the Maidstone branch of the MS Society. The views expressed in this publication are individual and not necessarily the view or policy of the charity and its supporters. ‘no part of this newsletter should be copied or reproduced without the consent of the author’ Registered Charity Nos. 1139257/SC041990 Registered as a limited company in England and Wales 07451571 2 NOT THE CHAIRMAN ANYMORE’S BIT Happy New Year to You all You will have noticed that I am no longer Chairman. This is because we desperately needed a new Treasurer and I am he. No one person can hold the two offices at the same time. I still plan to be involved in the day to day business of the branch. We have been busy already. Wednesday 27 January several volunteers spent the day at Tesco in Lunsford Lane, Larkfield where we raised the sum of £265.78. Not bad for a quiet midweek spot. We are busy planning events for this year. There will be 5 outings and 4 socials. The dates are fixed but the activities are not. If you have any ideas or there is something you would like to do contact the branch. The list of dates can be found in this Newsletter. I have spoken to the weather pixies and put in a request for this year’s weather. No rain, lots of sun, and temperatures between 17 and 24 degrees. They have agreed but you all know what contrary little so and sos they can be. We are planning to hold an information day this year. We have no plans as yet so if there is a particular subject you want covered contact the branch. 10 pin bowling is continuing. We had our first games of the year on 20 January. The next bowling days are 24 February and 13 April. Don’t forget coffee mornings every Wednesday at the Heart of Flavour, King Street, Maidstone at 10.45. Paul 3 ANNUAL MEETING Dear Member. The Annual Meeting of the Maidstone & District Branch Of the Multiple Sclerosis Society will be held at the Maidstone Community Support Centre, Marsham Street on Saturday 27th february 2016 The venue is completely accessible and you are warmly invited to attend and contribute your thoughts on, and suggestions for, the way in which your Branch should continue to function and go forward. One of the main items of business will be to elect the committee members for the next twelve months – we are always seeking new committee members so please give some careful thought to this. Should you wish to nominate a committee member or propose a resolution either email me on: [email protected], or phone me on 01622 208871 before Sunday 31st January 2016. Please let me know if you would prefer to receive postal forms. Only paid-up members will be able to stand or actively participate in the Annual Meeting – all renewals and/or queries are dealt with by National Centre (call membership on: 020 8438 0759). We hope to see as many of you as possible at the Annual Meeting which will be followed by a buffet tea, giving the opportunity to socialise with other members. Tracey Secretary 4 OUTINGS & SOCIALS 2016 COACH TRIPS Saturday Saturday Saturday Saturday Saturday May 14th June 18th July 16th August 13th – September 17th – TBC TBC Portsmouth TBC Buckingham Palace SOCIALS Saturday Saturday Saturday Saturday April 23rd October 15th November 12th December 10th - ? TBC TBC Bingo Quiz The dates are fixed but the activities are not. If you have any ideas or there is something you would like to do contact the branch. BRANCH TELEPHONE NUMBER: 01622 675556 5 CEA CINEMA CARD The CEA Card allows you to obtain ONE free ticket for the person who is accompanying you to enable you to visit the cinema, by providing the assistance you require as a result of your disability, provided you purchase an applicable full price ticket for yourself for the same performance of the same film in the same auditorium. For further information on the scheme,including a list of participating cinemas, go to the CEA Card website: https://www.ceacard.co.uk/howtoapply.aspx NEW for 2016! In September we’ll be joining with Parkinson’s UK to put on our first joint bespoke fundraising event – The London to Paris Cycle! From 14-18 September, cyclists will pedal from one iconic city to another – through picturesque Kent, across the Channel, through the small villages of Northern France, passing famous First World War battlefields, before arriving under the Eiffel Tower. The money raised will help us continue to invest in our world-class Tissue Bank – the largest MS-specific brain donor scheme in Europe. Registration is now open! Please share with your contacts and visit the website or get in touch for more information. Website: https://www.mssociety.org.uk/ ms-events/london-paris-bike-ride 6 ...cont from cover Featured in that first issue were a number of high profile people, not least HRH The Prince of Wales but more interestingly and locally Vicci was the front cover ‘pin-up’. In our archives we have a copy of the first edition (unsigned) and we managed to persuade Vicci to have a photo taken of her holding that first edition. Vicci, as much as anyone has been in the forefront of branch activities for, well just a few years! We were hoping to get a mention in the next MS Matters but sadly the publishing team has so many contributions they can’t take them all. So even this combination of events could not get a place. Having said that, Vicci was happy for us to include something in this newsletter. 7 NEW RESOURCES We have one new resource available to order from the online shop: Claiming Personal Independence Payment (PIP) For people with MS who are going through the PIP claims process, this booklet looks at whether you’re eligible to claim, as well as looking in detail at the assessment process, including completing the PIP questionnaire, the face-to-face consultation and how to challenge a decision. Updated resources Hearing This factsheet provides an overview of MS-related hearing problems, how to manage them and explains how the brain processes information from the ear. MS Helpline leaflet This leaflet gives information about the support the MS Helpline can offer people affected by MS, including a re-useable card with the MS Helpline contact details. You can find up-to-date versions of all our most requested publications on the MS Society website Key Publications list, which is updated monthly: https://www.mssociety.org.uk/ ms-resources/key-publications These and other publications can be downloaded from www.mssociety.org.uk ordered from the shop www.shop.mssociety.org.uk. Contact: Information resources team [email protected] 020 8438 0999 UNDERSTANDING THE NEEDS OF PEOPLE WITH MS Around 10,000 people with MS completed the My MS, My Needs survey in 2012, making it one of the largest surveys of people with MS in the UK. The findings have proven highly effective in lobbying for changes to national guidelines on the care and treatment of MS. Early next month NC will be launching a new version for 2016. This will highlight where people are getting the treatments, services and support that they need, and where improvement is needed. Such information is vital for our work and will help us to work together to improve MS services. Everyone’s response matters For us to gather a clear picture of what it’s like to live with MS in the UK, we need as many people to fill in the questionnaire as possible. Getting involved If you’re an MS Society member look out for the questionnaire arriving on your doorstep soon. You can also complete it through the MS Register. Please do take a few minutes to share your experiences. If you have any questions please get in touch with the Research team. 9 VAT RELIEF AVAILABLE People with MS and MS Society branches are able to obtain a number of VAT reliefs. This is a simple way to reduce costs. All you need to do to claim these reliefs is provide a declaration to the supplier. Template declarations are available at https://volunteers.mssociety.org.uk/ resources/1358 The lists below are not exhaustive but provide an outline of the types of items that VAT reliefs can be obtained on. Further details can be found in chapter 9 of the Treasurers’ Handbook. People with MS should not have to pay VAT on the following items: • adjustable beds, chairlifts, hoists and sanitary devices • emergency call systems • some building work done at the person’s home to help them to move around, such as widening of doorways and constructing ramps • adapted motor vehicles, and their repair – qualifying adaptions include a swivel seat or wheelchair hoist SPECIALIST BENEFIT ADVICE FROM MAIDSTONE CAB The Maidstone and District Branch of the MS Society is in partnership with Maidstone Citizens Advice Bureau to provide an exclusive to people with, or affected by MS who live within the Maidstone Borough. If you have, or are affected by MS and looking for benefits advice, phone Maidstone CAB on 01622 750770 and make a fast track appointment to see the specialist. IT IS THAT EASY! 10 A request for a Cryptic Puzzle (answers at the back for the rest of us) ACROSS 1. Mammal sounds like relative consumer (8) 5. Displayed furniture item also faded (4) 8. Discourage crude terms, essentially (5) 9. Festival idea found legally acceptable (5) 11. rearranged horns and fleeced (5) 12. Found rock in last one (5) 13. Colossal veranda concealed serving tray (6) 15. Found drab sentence not there (6) 19. Renegade hiding in enclosure below (5) 21. Performer held in contract ordeal (5) 23. Refreshment in formula German Beer (5) 24. Joint located in thin gear (5) 25. Meandering line in Egypt (4) 26. writhing fish’s urgent (8) DOWN 1. Sounds like a place to stay and something to wear (7) 2. Extra test contains grades (5) 3. Observe wordy change (7) 4. Extra vineyard conceals gorge (6) 6. Byword in Canada geese (5) 7. Various mountaineer pals climbed them (4) 10. Bee with monotone sound? (5) 14. Tag showed who viola belonged to (5) 16. Meat retailer cut herb for a change (7) 17. Trained to part exchange used property (5-2) 18. Raptor becomes ruffled creature (6) 19. Bird found in opera venue (5) 20. Will stick to unusual racing sled (4) 22. Remove froth from mandarin serving (5) 11 CRYPTIC CROSSWORD SOLUTION PAGE 18 12 SUDUKO Enjoy puzzling Answers in next NL 3 4 7 2 7 4 7 6 1 2 2 8 1 3 6 9 7 2 8 9 6 2 9 7 4 6 9 7 1 2 6 7 3 1 7 9 6 7 3 5 4 7 4 5 1 9 9 2 ** **** 8 2 3 6 8 9 7 8 1 13 Feb/Mar 2016 DIARY DATES M T W Th F S S C Z O C Z S O S COFFEE MORNINGS Heart of Flavour King Street, Maidstone 11am Wednesdays OUTINGS COACH TRIPS Saturday May 14th Saturday June 18th Saturday July 16th Saturday August 13th – Saturday September 17th – TBC TBC Portsmouth TBC Buckingham Palace BOWLING Lockmeadow February 24th April 13th 11am CALL PAUL 01622 202326 SOCIALS MCSC, Marsham Street Saturday April 23rd Saturday October 15th Saturday November 12th Saturday December 10th - TBC TBC Bingo Quiz AGM MCSC, Marsham Street Saturday 27th February ZEROTH EXERCISE CLASSES Weekly (Mon & Thurs) call Jill Maynard: 01622 749564 2 - 4.30pm 3pm 11.15-12.30pm 14 HAPPY BIRTHDAYS to the following members who will be celebrating their birthday FEBRUARY Vicci Chittenden l Sue Forster l Janice Carr l Jayne Aspinall Pamela Histon l Beryl Smith l Ann Culham Sheila Burgman MARCH Davina Buckle l Jill Clark l Jenny Pilgrim l Shirley Caen Simon McCrodden l Philip Watson Enjoy your special day from the Maidstone MS Branch 15 BRANCH COMMITTEE PRESIDENT HEATHER LEWTON CHAIRMAN SECRETARY TRACEY WAKELING TREASURER PAUL SIDAWAY SUPPORT OFFICER WILL BUCKLE NEWSLETTER EDITOR ALI JUDGE SOCIAL / OUTINGS TERRY CULHAM SIMON MCCRODDEN SUPPORTING SHIRLEY BOOSEY FUNDRAISING STILL VACANT!!!!! BRANCH TELEPHONE NUMBER: 01622 675556 Website: http://www.mssociety.org.uk/maidstone 16 YOUNG UNITED BY MULTIPLE SCLEROSIS YUMS is an online support network for people aged 18-40 affected by MS and living in Kent. For more information about YUMS, you can find them on Facebook, give them a ring or drop them an e-mail www.Facebook.com/groups/kentYUMS t: 07982 264856 email: [email protected] Maidstone Branch Contact Details: Branch Line: 01622 675556 Branch emails: [email protected] This newsletter is produced by the Maidstone Branch of the Multiple Sclerosis Society. All views expressed are individual & not necessarily the views or policy of the charity & its supporters. No part of this newsletter may be reproduced without express, prior permission. PUZZLE SOLUTION 17 BRING THIS AGENDA WITH YOU BRING THIS AGENDA WITH YOU 18
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