Provision of Mental Health Services for Adults with Learning Disabilities – CLP033 Page 1 of 20 Table of Contents Governance of Trust Policies – PB001 ..................................................... Error! Bookmark not defined. Why we need this Policy ..................................................................................................................... 2 What the Policy is trying to do ............................................................................................................ 4 Which stakeholders have been involved in the creation of this Policy .............................................. 4 Any required definitions/explanations ............................................................................................... 4 Key duties ............................................................................................................................................ 5 Clinical Policies Committee ..................................................................................................... 5 Service Areas ........................................................................................................................... 5 Ward Managers’...................................................................................................................... 5 Policy detail ......................................................................................................................................... 5 Eligibility for Services .............................................................................................................. 5 Implementation and Dissemination ..................................................................................... 10 Education and Training (Training Needs Analysis) ................................................................ 11 Training requirements associated with this Policy ........................................................................... 11 Mandatory Training .............................................................................................................. 11 Specific Training not covered by Mandatory Training .......................................................... 11 How this Policy will be monitored for compliance and effectiveness .............................................. 12 For further information..................................................................................................................... 12 Equality considerations ..................................................................................................................... 12 Havard Reference Guide ................................................................................................................... 13 Document control details ................................................................................................................. 14 APPENDIX 1 – EQUALITY Analysis report .......................................................................................... 14 APPENDIX 2 - Crib Card for use with Transforming Care 'At Risk Register'…………………………………..17 Why we need this Policy The White Paper, Valuing People: A New Strategy for Learning Disability for the 21st Century (March 2001) sets out the Government’s commitment to improve life chances for people with learning disabilities. It emphasizes that mainstream services should be accessed by people who have a learning disability in the same way as the rest of the population. In particular it makes reference to Page 2 of 20 the mental health needs of people with a learning disability being met within mainstream mental health services where appropriate with or without the support of Learning Disability services. It is therefore expected that all Mental Health Services in Northamptonshire Healthcare Foundation NHS Trust will identify and respond to the mental health needs of people with learning disabilities, in conjunction with specialist learning disability services where appropriate, within the context of Valuing People and the National Service Framework for Mental Health Services. Furthermore, where specialist learning disabilities are providing mental health services, they will deliver the standards of care set out in the NSF for Mental Health and New Horizons When in need of mental health services it is important that people with learning disabilities are able to access appropriately skilled and knowledgeable professionals who are able to undertake assessment, intervention, support and monitoring, and wherever possible enable people to remain in their communities, only accessing in-patient services when required. It will require mental health services and learning disability services to work in partnership to achieve this. The Trust is committed to the following principles: People with learning disabilities have the same right of access to specialist Mental Health Services as the rest of the population. Every effort should be made to ensure that where possible the mental health needs of people with learning disabilities are met within mainstream services, either with them as the sole provider or in partnership with learning disability services. Services will be able to evidence that reasonable adjustments have been made to accommodate individuals accessing the service There will be a number of people with learning disabilities whose mental health needs cannot be met within mainstream mental health services even with the provision of specialist learning disability support. In these situations the provision of specialist learning disability services will be required to meet the needs of this client group. Access to services should be based upon needs not upon diagnostic category. Service users and their families/ carers should be fully involved as far as possible in making decisions that affect their lives. Often the needs of the service users require a multiagency approach; co-operation and flexibility should characterise approaches in meeting people’s needs. The approach should be consistent with the principles of recovery using the care programme approach alongside person centred planning and WRAP (Wellness Recovery Action Plan). A person physical health needs will be identified via a health check and health action plan that identifies key professionals involved in meeting both physical and mental health needs Expected Outcomes of Policy Implementation Consistent access and appropriate use of mental health services by people with learning disabilities and mental health needs, with them receiving the best possible support. Roles and responsibility for meeting the mental health needs of people with learning disabilities will be explicit across all services. Page 3 of 20 Collaboration between Mental Health and Learning Disabilities services will ensure that people with mental health needs do not fall between services. Generation of data on use of mental health services, by people with learning disability with mental health needs will be available. This will be used to further develop services based on need, monitor accessibility of services and provide evidence to inform policy and protocol. The Trust is committed to treating people with dignity and respect in accordance with the Equality Act 2010 and Human Rights Act 1998. Throughout the production of this policy due regard has been given to the elimination of unlawful discrimination, harassment and victimisation (as cited in the Equality Act 2010) What the Policy is trying to do This policy concentrates on service provision to meet the mental health needs of people with learning disabilities. It sets out the operational arrangements between secondary mental health and learning disability services which will enable people with learning disabilities to have their mental health needs met by the most appropriate directorate and service. The fundamental principles of this policy are to direct resources as appropriate to the mental health needs of people with learning disabilities within the context of: st Valuing People-A New Strategy for Learning Disability for the 21 Century New Horizons- A Shared Vision for Mental Health Which stakeholders have been involved in the creation of this Policy Consultation with Service Managers, Medical Staff, Clinicians in both directorates Trust Policy Board Any required definitions/explanations Learning Disability Includes the presence of a significantly reduced ability to understand new or complex information, to learn new skills (impaired intelligence) with a reduced ability to cope independently (impaired social functioning) which started before adulthood, with a lasting effect on development. Mental Health Issues The Government defines mental illness as “A term generally used to refer to more serious mental health problems that often require treatment by specialist services. Such illnesses Page 4 of 20 include depression and anxiety (which may also be referred to as common mental health problems) as well as schizophrenia and bipolar disorder (also sometimes referred to as severe mental illness).” In this report, we refer to mental health issues rather than mental illness. Reasonable Adjustments The term reasonable adjustments was first used in the Disability Discrimination Act 1995 and refers to the duty on those providing goods, services and employment opportunities to ensure that their arrangements do not discriminate against disabled people NHFT Northamptonshire Healthcare NHS Foundation Trust Key duties Clinical Policies Committee Will approve the policy and ensure that current policy versions are placed on the intranet via CGST. This will enable it to be held on a central register. Service Areas The Service Managers / Senior Matrons are responsible for monitoring and ensuring that the policy is implemented in clinical practice by all professionals involved, reporting any deficits to the Quality Team. Ward Matrons Responsibility is to ensure all professionals on their ward have access to the policy. This involves doctors, therapists, nurses etc. Policy detail Eligibility for Services Services from the Mental Health and Learning Disability Directorate will have clear and transparent eligibility criteria for the services they provide. These will be equality impact assessed. Under no circumstance will service eligibility criteria exclude people with learning disabilities based on diagnosis alone. o Referral Route and Initial Assessment In both mental health and learning disability services, the Community Teams provide the single point of entry to services in their the team receiving the referral will: Establish eligibility for their service Carry out the initial screening assessment/single assessment process At this point there are 3 pathways for the referral/service user Page 5 of 20 o The receiving team accepts the referral and commences work with the service user. If a joint assessment/intervention becomes necessary in the future a referral can be made to the appropriate service. The receiving team deem that their service is not the most appropriate or they cannot solely meet the service users’ needs. It is then their responsibility to initiate discussion with other services and arrange a joint assessment to identify how the needs of the service user are best met and by whom. The referral does not meet the service eligibility criteria of any specialist services; the receiving team will inform the referrer and signpost to alternative services outside of the Trust and ask for confirmation that this has been offered Cases Requiring Joint Assessment and Joint Intervention In the case where a joint assessment is required, the initial receiving service will hold the case until this is carried out. The Mental Health and Learning Disability Community Teams will each appoint a worker who will coordinate the assessment. They will jointly contribute to the assessment of need with the relevant Consultants and professionals involved. The outcome of the joint assessment will be discussed at a Multi-disciplinary meeting. This would result in 3 potential pathways for the referral/service user: o One service accepts the referral and proceeds as per their operational policy Joint working is agreed, with one service appointed as case holder and takes responsibility for leading the joint work The referral is directed to another service outside the trust and after follow up the case is closed. Cases Requiring Urgent Assessment in Relation to their Mental Health A Care and Treatment Risk register (CTR) has been developed across the services to ensure that anybody (adult, child or young person) with a learning disability and/or Autism who is at risk of being admitted to a specialist learning disability unit or generic mental health inpatient bed because of their mental health or behaviour that challenges, is flagged at the earliest opportunity if they are at risk of a crisis that could result in hospital admission. This will enable contingency plans and early identification, including joint organisational discussions to occur with the aim of preventing an admission to hospital. If an individual becomes red rated, they will be required to receive a Community CTR if they are at imminent risk of admission to hospital. The lead clinician/social worker will contact the CCGs learning disability commissioners to arrange a community CTR where all parties Page 6 of 20 will attend. (Commissioners will endeavour to arrange the CTR as a matter of urgent priority) If a person is rated at BLUE which is where the person is in crisis or a crisis has occurred and the individual is at the point of being admitted to hospital. All blue light ratings will have a ‘Blue Light’ conference call with all those involved/available. The Commissioner (or their representative) will need to agree the admission Should admission occur (or if the person is admitted without prior knowledge) a Care and Treatment Review will take place within ten working days of the admission (See appendix 2 for further information on Care treatment review risk register) o Within Working Hours The Crisis Resolution Home Treatment Team (CRHTT) and the Intensive Support Service (ISS) will respond to urgent referrals for people who are experiencing an acute mental health crisis in accordance with their operational policies. In addition the Intensive Support Team (IST) has a duty clinician whom the Mental Health service can refer to directly for advice and guidance. It is the responsibility of the team receiving the referral to clarify eligibility, carry out initial assessment and initiate local discussion between other services and contact CCG commissioners if there is a risk of admission. o Out of Normal Working Hours The CRHTT responds to urgent referrals for people who are experiencing an acute mental health crisis in accordance with their operational policy Psychiatry provides an out-of-hour’s on-call psychiatrist who can be contacted through Berrywood Hospital switchboard. Northamptonshire County Council out-of-hours team will respond to urgent situations relating to mental health crisis and work in conjunction with other services to co-ordinate mental health act assessments. o Access to In-Patient Services Wherever possible assessment and intervention should be provided within the community. Admission to in-patient areas should only be considered when there is an acute clinical need requiring assessment and treatment and the individual cannot be safely supported within the community. Support must take place in the least restrictive environment o Planned Admission/Admission with Notice The individual referring for an inpatient admission should ensure that joint assessment/discussion is facilitated between LD and MH inpatient services to identify which is the most appropriate service to meet the needs of the individual and to agree what, if any, additional support may be required. Page 7 of 20 o Emergency Admission – Admission on Day of Request In emergency situations, where it is not possible for the receiving service to facilitate a joint assessment or discussion, a clinical judgement should be made as to which service would be in the best position to meet the needs of the individual. A decision should be made by the service receiving the admission to review the situation and to request a joint assessment if a transfer to the other directorate may be appropriate. o Medical Responsibility Where the service user is under the active care of a Learning Disability Consultant Psychiatrist, they will continue to take medical responsibility when the service user is admitted to a Mental Health in-patient service. Where the service user is not under the active care of the Learning Disability Consultant Psychiatrist, the admitting team will involve them in the MDT decision making process. Whilst maintaining medical responsibility the Learning Disability Consultant Psychiatrist will work in partnership with the inpatient team, including medical staff. In situations where the inpatient team need to act urgently and the Learning Disability Consultant Psychiatrist cannot be contacted the appropriate Mental Health Psychiatrist will intervene, acting in the service users best interests. The exception to this is when a service user who is under the care of the Learning Disability Consultant Psychiatrist is admitted to the Psychiatric Intensive Care Unit (PICU). In this situation the PICU Psychiatrist will take on medical responsibility. Medical support can be requested from the Learning Disability Consultant to enable joint working as necessary. o Transfer Between Services On occasions, it may be necessary to transfer a service user to another directorate to enable their needs to be met by the most appropriate service, this relates to both community and in-patient settings. A discussion will be coordinated by the service that is already supporting the service user. This will involve the individual, family, advocates, consultants, team and service managers from relevant services who will identify and agree which service would be most appropriate to meet the service user’s needs. Any transfer of care should be carried out in the best interests of the service user with the minimal of disruption and upset to them. This should be carefully planned between the two services. Transfer should occur during normal working hours unless there is a valid justification to do otherwise. Documentation should clearly describe the reasons why the transfer was required and how this was carried out. Under no circumstances should diagnosis of learning disability alone be used as a reason for transfer. Prior to transfer a full hand over should take place including relevant history, reason for admission, current treatment and intervention, physical and mental health status and person centred information. It is the referring services Page 8 of 20 responsibility to ensure adequate information and support is provided. It is the receiving services responsibility to ensure they are fully informed of the care plan and needs of the patient before accepting responsibility. o Complex Developmental Needs in Addition to Mental Health Where there are complex developmental needs such as autism and ADHD, the service receiving the referral or case holder will consider the need to request an assessment from the Autism, Asperger’s and ADHD team. This will enable a review of the care planned and will recommend and/or provide: o Further intervention strategies o Advice/training on management of needs o Recommendations about appropriate care setting and support/treatment needs. o Care Programme Approach / Care Planning The majority of service users to whom this policy applies will be supported within the framework of the CPA. For those that do not meet the criteria for CPA the same best practice principles will apply under the care planning process. After the initial assessment has taken place a CPA meeting will be held to identify support required and develop a care plan based on need. The most appropriate professional involved from the team holding the case will be allocated as the CPA or case care co-ordinator, and will oversee the implementation, monitoring, reviewing and evaluation of the agreed plan of care. Additional support from either Mental Health or Learning Disabilities services will be identified and negotiated within the meeting. The role of services providing the additional support will be clearly identified in the CPA action plan. This will vary from the provision of support workers to specialist advice and consultation. The levels of support may vary dependent on resources available. The GP will be asked whether the person is in receipt of an annual health check and health action plan. Where this has not taken place the clinician will support the initiation of one. The mental health needs will be documented alongside actions and clinicians responsible as well as consideration for any physical health needs that may be identified. o Information and Involvement All services will have easy read materials in relation to the service provided, ward rounds and/ or reviews, Advocacy, medication and treatments prescribed, Mental Health Act and Mental Capacity Act These resources can usually be found on the internet or by approaching CTPLD’s and/ or requesting support to develop materials via the Learning Disability Speech and Language Therapy Service based in CTPLD’s. It is essential that the person and/ or family are invited and supported to attend ward rounds/ reviews and involved in their care planning. It is also essential that they are offered an advocate to support where applicable. Page 9 of 20 o Discharge Discharge will be planned from the day of admission. Admission documentation should clearly identify reason for admission, actions required and anticipated length of stay required. This will be regularly reviewed and updated as appropriate. Discharge planning will follow the Trust discharge and CPA policies. Discharge plans must take into account individual need and be at a pace that supports their needs. The CPA discharge meeting will include all agencies involved and will clearly identify discharge arrangements and follow up. Any concerns of potential or actual delays in discharge should be reported to the LD IPC Team who will support discharge in liaison with the local authority care management team.. o Outcome Measures All people accessing services will have outcomes measured via HoNOS LD and three changes checklist. o Agreement of Funding Where cases require additional funding e.g. for additional staffing to enable use of mainstream services, or for an out of county placement, these will be resolved between the nominated budget holders. This may include sums due or requested from the County Council and/ or CCG. The appropriate contact in LD/MH commissioning should be informed at the earliest opportunity within working hours. Funding should never be a barrier to urgent provision of health care as required. o Dispute Resolution The case holder will liaise with the relevant Consultant Psychiatrists and Service Managers where a dispute is raised. Where these cannot be immediately resolved, a multi-disciplinary meeting between the services will be arranged by the case holder in order to reach agreement. Where an agreement cannot be reached by clinicians who are directly involved the case will be referred to the Head of hospitals or general manager as appropriate. Where the dispute is still unresolved the Medical Director should be contacted for advice. Out of hours a reasonable compromise should be sought, seeking advice from on-call managers as appropriate. If a solution cannot be reached the Director on Call should be contacted for guidance. Implementation and Dissemination Head of hospitals and general managers are responsible for the dissemination and implementation of this policy to their teams via the identified line management structure Page 10 of 20 All professionals are responsible for ensuring their actions fit within the requirements of this policy and to identify any deficit or difficulty in implementation. Education and Training (Training Needs Analysis) The appraisal systems will be used across all staff groups to identify training and developmental needs, particularly in relation to meeting the mental health needs of people with learning disabilities. Identified training needs that cannot be met within current training provision will be forwarded to the Head of learning and development so that where possible, resources to meet these needs are identified. Multifaceted learning opportunities will be developed that will enable staff in all services to develop their knowledge and skills in relation to meeting the mental health needs of people with learning disabilities. This may include e-learning and availability of intranet resources, action learning sets and access to classroom based training including appropriate further education courses. Team based training, e.g. within staff meetings, and developing individuals, e.g. staff shadowing opportunities, in both directorates should be considered as a way of improving knowledge and skills Multi-professional and multi-agency training/learning opportunities should be developed to improve collaborative work between services and enable effective service delivery. As a minimum staff will receive: Learning Disability Awareness training, including values base. Identification of mental illness/atypical presentations in people with learning disabilities Mental Capacity Act and Human Rights Act awareness Adaptation of psychological therapies and Positive Behaviour Support Use of alternative communication methods Equality Act, including reasonable adjustments Training requirements associated with this Policy Mandatory Training Training required to fulfil this policy will be provided in accordance with the Trust’s Training Needs Analysis. Management of training will be in accordance with the Trust’s Statutory and Mandatory Training Policy’ Specific Training not covered by Mandatory Training Ad hoc training sessions based on an individual’s training needs as defined within their annual appraisal or job description. Page 11 of 20 How this Policy will be monitored for compliance and effectiveness Data will be collated, monitored and reviewed to enable the services to understand indicators of quality ascribed to the service. Where the data indicates that services are not performing to the described benchmark action plans will be drafted to improve the situation. The audit process assures users and the Trust that the service understands its commitment to equality and quality of patient outcomes. All services will provide information based on the Learning Disability Minimum Dataset, including the numbers of people who have a learning disability that are referred to their service with mental health needs, including the individual’s age, estimated level of learning disability and cultural background. The outcome of the referral will also be documented. This will be entered onto the patient’s electronic record. There will be a patient experience survey made available to clients and /or carers during their admission and at discharge. This will be made available in easy read if required. End of year reports on the experiences of people with learning disabilities will be compiled by each service and forwarded to Quality Assurance Team, Nurse Director and Chief operating officer and shared with the teams Where it has been identified and flagged up that the policy has failed to be implemented satisfactorily the case holder should facilitate a clinical review in order to learn from the experience and any actions including amendments required to the policy will be identified. Outcomes should be fed back to the Mental Health Green Light Project Lead. Where available, data will also be gathered from complaints and compliments received by the Trust. For further information Please contact the Service Managers, Meidcal Staff and clinicians in both directorates. Equality considerations The Trust has a duty under the Equality Act and the Public Sector Equality Duty to assess the impact of Policy changes for different groups within the community. In particular, the Trust is required to assess the impact (both positive and negative) for a number of ‘protected characteristics’ including: Age; Disability; Gender reassignment; Marriage and civil partnership; Race; Page 12 of 20 Religion or belief; Sexual orientation; Pregnancy and maternity; and Other excluded groups and/or those with multiple and social deprivation (for example carers, transient communities, ex-offenders, asylum seekers, sex-workers and homeless people). The equality report is contained in appendix 1 Reference Guide Department of Health, (1999) National Service Framework for Mental Health: Modern Standards and Service Models HMSO London Department of Health, (2001) Valuing People: A New Strategy for Learning Disability for 21 Century HMSO London st Department of Health (2009) New Horizons: A Shared Vision for Mental Health. HMSO London. Department of Health (2012) Transforming care: A national response to Winterbourne View Hospital, Department of Health Review, Final report HMSO:London Foundation for People with Learning Disabilities, Valuing People Support Team, National Institute for Mental Health in England, (2004) Green Light for Mental Health: How good are you services for people with learning disabilities? A Service Improvement Toolkit Foundation for people with Learning Disabilities London National Development Team for inclusion (NDTi) (2013) The Green Light Toolkit Royal College of Psychiatrists (2012) Enabling people with mild learning disabilities and mental health problems to access healthcare services (CR175 College Report November 12 Royal College of Psychiatrists (2013) People with learning disabilities and mental health, behavioural and forensic problems: the role of inpatient services FR/ID/O3 Faculty Report July 13 US Department of Health and Human Services (1999). Mental Health: a report of the surgeon general. Rockville MD: U.S. Department of Health and Human Services, Centre for Mental Health Services, National Institutes of Health cited in Varcarolis E.M and Jordan Halter M (2009). Essentials of Psychiatric Mental Health Nursing: a Communication Approach to Evidence-Based Care. Saunders Elsevier. Missouri Page 13 of 20 Document control details Author: Approved by and date: Responsible Committee: Any other linked Policies: Policy number: Version control: Version No. 1.0 Date Ratified/ Amended 12.04.2016 Nurse Consultant, Mental Health, Consultant Psychiatrist, Service Manager, Project Manager Trust Policy Board, 12.04.2016 Clinical Exec. CLP010 - Care Programme Approach Policy CLP060 - Physical Interventions Policy CLP056 - Admission and Discharge Policy PB002 - Equality Policy CLP033 Version 1: Date of Next Implementation Review Date 12.04.2016 12.04.2019 Reason for Change (eg. full rewrite, amendment to reflect new legislation, updated flowchart, minor amendments, etc.) New governance of trust policies template. APPENDIX 1 – EQUALITY Analysis report Equality Analysis Report Name of function: Policy for the Provision of Mental Health Services for Adults with Learning Disabilities Date: Assessing officers: Sue Freeman – Nurse Consultant Description of policy including the aims and objectives of proposed: (service review/redesign, strategy, procedure, project, programme, budget, or work being undertaken): Page 14 of 20 Equality Analysis Report Name of function: Policy for the Provision of Mental Health Services for Adults with Learning Disabilities Date: The aim of this policy is to provide guidance on operational arrangements to ensure that people with learning disabilities, when in need of intervention for their mental health are able to access the most appropriate service to meet their needs. This will include access to and support from mainstream adult mental health services. Evidence and Impact – provide details data community, service data, workforce information and data relating specific protected groups. Include details consultation and engagement with protected groups. Evidence base: NHFT Equality Information Report August 2012 Northampton County Council :Northamptonshire Results: 2011 Census Data Summary 2001 2011 % rise Corby Daventry East Northants Kettering Northampton South Northants Wellingborough Northants England 53,400 72,100 76,600 82,200 194,200 79,400 72,500 630,400 49,449,700 61,100 14.4% 77,700 7.8% 86,800 13.3% 93,500 13.7% 212,100 9.2% 85,200 7.3% 75,400 4.0% 691,900 9.8% 53,012,500 7.2% Ethnicity: 85.7% (White) and 14.3% (BME )- 1.75% (dual heritage); 4.01% (Asian); 2.5%(Black including British, African and Caribbean) ; 0.85 % (Chinese) ; 6.05 % (white other EEA, polish, Gypsy & Traveller) Gender: 49.6% males; 50.4% females (including 1% transgender) Disabled people: 19% (including 3.5 % < aged under 18) Faith communities: 71% Christian; 29% minority faith: (includes Hindu, Muslim, Sikh, atheists, non-belief) Sexual orientation (gay, lesbian or bisexual): 5 - 7% (Stonewall estimate) Service Information: provide any relevant service data or information to inform the Equality Analysis including service user feedback, external consultation and engagements or research. Page 15 of 20 Equality Analysis Report Name of function: Date: Protected Groups (Equality Act 2010) Policy for the Provision of Mental Health Services for Adults with Learning Disabilities STAGE 3: Consider the effect of our actions on people in terms of their protected status? The law requires us to take active steps to consider the need to: Eliminate unlawful discrimination, harassment and victimisation. Advance equality of opportunity Foster good relations with people with and with protected characteristic Identify the specific adverse impacts that may occur due to this policy, project or strategy on different groups of people. Provide an explanation for your given response. Age There will be no impact on people over the age of 18 years old who have a learning disability Disability Gender (male, female and transsexual, inclu. Pregnancy and maternity) There will be a positive impact on the small population of people with mild learning disabilities in being able to access mental health services. This policy helps reduce the risk of discrimination againt people with learning disability There will be no impact on gender Gender reassignment There will be no impact on gender reassignment Sexual Orientation (incl. Marriage & civil partnerships There will be no impact on sexual orientation Race There will be no impact on race Religion or Belief (including non belief) There will be no impact on religion or belief Page 16 of 20 Equality Analysis Report Name of function: Policy for the Provision of Mental Health Services for Adults with Learning Disabilities Date: Equality Analysis outcome: Having considered the potential or actual effect of your project, policy etc, what changes will take place? The policy promotes positive change in promoting equity of access to mental health services for people with learning disabilities. Action Plan Issue to be addressed Action Who Date to be completed Ratification – a completed copy of the Equality Analysis form must be sent to Equality and Inclusion Officer to be approved. Approving Officers Tendai Ndongwe Date of completion: Page 17 of 20 Appendix 2 Crib Card for use with Transforming Care 'At Risk Register' The aim The aim of the at risk register is to ensure that anybody (adult, child or young person) with a learning disability and/or Autism who is at risk of being admitted to a specialist learning disability unit or generic mental health inpatient bed because of their mental health or behaviour that challenges, is flagged at the earliest opportunity if they are at risk of a crisis that could result in hospital admission. This will enable contingency plans and early identification, including joint organisational discussions to occur with the aim of preventing an admission to hospital. Best Practice It is already expected as best practice that people who are at risk of hospital admission will be assessed as to whether they meet the criteria for the Care Programme Approach (CPA) and this is initiated where appropriate. There is also an expectation that the relevant specialist health services be referred to in an attempt to proactively work with the individual to reduce the likelihood of a crisis occurring. In addition, there should be a discussion with direct carers as to current management plans, including a contingency plan, if at any point they should cease being able to provide support due to situations such as illness or level of risk. This will include a pen portrait of need and a description of the support that would be required in such an event. Any professional who identifies someone at risk of requiring hospital admission should ensure best practice is adhered to. Consent Where the risk is increasing and concerns have begun to be raised in relation to the level of support required, then it is the professional’s duty to ensure that consent (or MCA best interest decision) is established to enable details of the person and their risk, to be entered onto the At Risk Register. It is important that individuals (and/or their family members where appropriate) are made aware that their details will be passed to the relevant commissioner should the risk of admission to hospital reach such a level that a Community Care and Treatment Review (or in some cases a ‘blue light’ conference call) needs to occur. NHS England also require consent for an individual’s details to remain on the register once an admission to hospital/discharge has occurred. (NB-NHS England has produced information leaflets and consent forms for this process) Completing the risk register Most of the register is self-explanatory however some sections require explanation. This crib sheet will act as a guide. Client Initials/ NHS Number– It is important that both the NHS number and individuals initials are entered in these boxes. Please provide initials only as commissioners are not allowed to be given full names Page 18 of 20 Under CPA Framework/Details of CPA Co-ordinator/Lead professional including contact details and phone number –Where the person is on CPA this will be the CPA coordinator. In cases where they are not on CPA the lead professional will be named. At this point the professional should consider whether they meet the criteria to be on CPA and take action if required. Last review of any review of person’s care plan/needs – this includes where people are receiving a Direct Payment for a personal assistant, Personal Health Budget etc… Type of residence – This will be one of the following: residential/nursing home, residential bespoke individual home, family home, own tenancy/house with 24 hour support, own tenancy/house with flexible support, supported accommodation, address of 52 week residential school etc…. Name of provider – This will be the name and address of the provider in the persons place of residence including parents/ informal carers and contact details Funding Stream – If there is a current support package in place which commissioning team/s are funding this- name and contact details Secondary Health Service Involvement – Please give brief details of current involvement, including LD and MH services- name and contact details. Is there a plan of care, risk assessment/management and contingency plan in place – This will be a yes where the plans are in place and detail the current situation. Where no is recorded the professional should ensure actions take place to address this need. Current level of risk:Green rating (for example) Where the person has been at risk (i.e. has been an inpatient because of their mental health/behaviour that challenges but successfully discharged where intensive support has prevented a crisis admission because of intervention etc…) there are concerns but no crisis presently (This may be where these are being managed or there is a high reliance on the family and/ or ageing parents) If a young person is approaching transition and risks could quickly escalate (must include young people in transition/out of county schools known to have CB/MH) All green rating will go on the risk register and the case manager will monitor and inform others on a need to know basis Amber rating (for example) Where the risk is rising- health interventions increasing or requests for a significant increase in the care package Where providers/families are stating that they are having difficulty in supporting the individual Where an individual has stepped down from a red rating (i.e. that a community CTR has taken place and an admission has been avoided) but sufficient concern and/or activity remains with current presentation All amber rating – a contingency planning meeting (arranged by the lead-coordinator) should take place to ensure that crisis avoidance is at the forefront Page 19 of 20 Red rating Where the lead clinician/social worker has assessed the individual as at significantly high risk and a crisis is imminent with a highly likely inpatient admission and/or Where there is a planned admission to hospital An individual who is red rated will be required to receive a Community CTR if they are at imminent risk of admission to hospital. The lead clinician/social worker will contact the CCGs learning disability commissioners to arrange a community CTR where all parties will attend. (Commissioners will endeavour to arrange the CTR as a matter of urgent priority) Blue Light Where the person is in crisis or a crisis has occurred and the individual is at the point of being admitted to hospital All blue light ratings will have a ‘Blue Light’ conference call with all those involved/available. The Commissioner (or their representative) will need to agree the admission Should admission occur (or if the person is admitted without prior knowledge) a Care and Treatment Review will take place within ten working days of the admission. Commissioner contact details are as follows: Learning Disabilities Sue Freeman-Commissioning Manager Tel: 01604 651283 M:07787006192 [email protected] Claira Ferreira- Commissioning Lead Tel: 01604 651207 M:07787006198 [email protected] Children and Young People Sian Heale-Commissioning Manager Tel: 01604 651723 M:07919697986 [email protected] Helen Adams-Commissioning Manager Tel: 01604 651627 M: 07824-608158 [email protected] Mental Health (Asperger’s) Rachel Douglas-Clark- Commissioning Manager Tel: 01604 651275 M: [email protected] Rachel Conlon- Commissioning Lead Tel: 01604 651133 M: [email protected] Senior Managers -Joint Commissioning Team Catherine O’Rourke –Deputy Head (adults) Tel: 01604 651263 M: catherine.o’[email protected] Richard Bailey - Deputy Head (children) Tel: 01604 651851 M: [email protected] Page 20 of 20
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