Having a percutaneous endoscopic gastrostomy tube Information for patients Endoscopy page 2 of 12 Percutaneous Endoscopic Gastrostomy tubes are known as PEG tubes. What is a PEG tube? A PEG tube is a feeding tube that is inserted into your stomach and through which liquid food is given. A PEG tube can be used if you need: • Temporary liquid feeding to support you when you are finding it difficult to eat or drink. Once your condition improves you would normally be able to return to eating. • Extra liquid feed because for some reason you cannot eat enough food to keep healthy. • To be given more fluids than you can drink normally. • Long term liquid feeding support. Feeding port Y - adaptor Medication / flushing port External fixation device Clamp Internal fixation device page 3 of 12 Why might I be offered a PEG tube? There are various medical reasons why you may need a PEG tube. These can include: • • • • Difficulties swallowing food and/or fluids You are unable to eat enough to meet your needs You are unable to drink enough to meet your needs If you suffer from a progressive type of illness and are well nourished at the moment, a PEG tube can help maintain you in this condition. How will having a PEG tube help me? A PEG tube allows you to get all the nutrition you need. If eating and drinking has been a struggle, or if mealtimes are taking up more time than you would like, the additional liquid feeds given via the PEG tube will remove this pressure. This means that you will be free to do the things you would like to do. Feeding with a PEG tube gives you the balanced diet you need to feel better, have more energy and resist infection. Will I still be able to eat and drink normally? Some people who have a PEG tube do have to stop eating and drinking normally. However, if your speech and language therapist has told you it is safe to do so, you can eat and drink whilst you have PEG tube. page 4 of 12 How is the PEG tube inserted? PEG tubes are inserted using an endoscope. An endoscope is a flexible tube used to look inside a person’s stomach. The endoscope is passed through the mouth, down the throat and then into the stomach. Once it is in place, the PEG tube is fed down the endoscope and passed through a small incision in the outside of your stomach. When the PEG tube has been placed the endoscope is removed leaving the PEG tube in position through the stomach wall. (See diagram below). Stomach Skin Internal fixation device External fixation device What if I am already being fed with a nasogastric tube? You may already have a nasogastric tube to feed you. If this is the case a PEG tube is being offered because either: • Your nasogastric tube has become dislodged and you are not getting enough liquid feed through it, or • We feel that you would be more comfortable without a tube in your nose. The PEG tube is easily hidden under your clothes and is more comfortable. page 5 of 12 What happens if I agree to a PEG tube being placed? If you agree to a PEG tube and you are not already in hospital, you will need to come in. An appointment will be made for you to have the PEG placed in the Endoscopy Unit. You will not be allowed to eat or drink for several hours before the tube is fitted. This will also apply if you receive liquid feeds through a nasogastric tube. In the Endoscopy Unit you will be given antibiotics through a small needle in the back of your hand. You will also be given an injection (sedation) through the needle in your hand which will make you feel drowsy or sleepy. Once the sedation has taken effect the endoscope is passed into your stomach. A small incision will be made on the outside of your stomach for the PEG tube to pass through. Will it hurt to have a PEG tube placed? Throughout the whole procedure you will either be drowsy or asleep. You may be aware of the the endoscope being passed and removed because this can cause some discomfort in your throat, both during and after the procedure but this should wear off quite quickly. How long does it take to have a PEG tube placed? It usually takes between 15 and 20 minutes. page 6 of 12 What are the risks in having a PEG tube placed? Placing a PEG tube is a comparatively safe procedure that means it can be used for patients who may be elderly, frail or ill for other reasons. However, as with many medical and surgical procedures the placing of a PEG tube does carry some risks. For some patients, particularly those with chest problems, the sedation we use can cause some problems although it is safer than a general anaesthetic. All patients are monitored throughout the procedure to guard against any problems arising from sedation. If you would like further information about sedation then please ask to see the booklet ‘You and your anaesthetic’ (www.rcoa.ac.uk/document-store/you-and-your-anaesthetic). During the procedure a small needle is passed directly into the stomach. Occasionally, a small quantity of air escapes into the abdomen but this rarely causes a problem. A rarer but more serious complication is the leaking of gastric fluid. This may cause inflammation in the lining of the abdomen (peritonitis) that may need surgery to correct. Problems can also arise once the PEG tube is in position but are seldom serious. For example, infections may occur around the tube site. These occasionally require a course of antibiotics to treat the infection. How do I use the PEG tube to feed? Your PEG tube will not be used for the first 6 hours after it is fitted and for the following 6 hours you will only be allowed sterile water through the tube. After this time you can start PEG tube feeding. The dietitian will organise a feeding plan especially for you using liquid feeds. page 7 of 12 How do I look after my PEG tube? For the first 2 days after the PEG tube has been placed the site on your stomach will be cleaned with normal saline solution. From day 3 onwards the site can be cleaned with mild soap and warm water and gently dried. You will be given an information booklet telling you about the care of your tube in more detail. You and your carer will also be given training by the ward staff. How will I feel? After the PEG tube is in place you may find you get some redness, leakage or local inflammation at the PEG tube site. This will be treated by the nursing staff and usually clears up after a few days. You may find that your mouth and lips get very dry. If this happens, a mouth wash may help and a lip balm or moisturiser used regularly will help to prevent your lips getting cracked and sore. Can I have a bath, shower or go swimming with a PEG tube in? For the first 2 weeks you should not cover the tube site in water and should have showers not baths. In about 2 – 3 weeks the area around your PEG tube should have healed fully. You will then be able to bath, swim, or shower without any problems. Always remember to close both ends of the tube’s ‘Y’ adaptor (see diagram at the front of this booklet), before going into water. Always remember to dry the skin around the PEG tube and the tube itself afterwards. page 8 of 12 What about cleaning my teeth? If you have a PEG tube and get all of your liquid feed through it, it is easy to forget to clean your teeth. However, even if you are not eating and drinking, plaque can still build up on your teeth very quickly. It is important that you clean your teeth at least twice a day. How often does a PEG tube need to be replaced? The PEG tube is made of a long lasting polyurethane and normally will not need replacing for 2 years. To help make sure that it does not need replacing sooner it is important that the tube does not get blocked. To help prevent blockages you must flush it through with water before and after having a liquid feed or any medications. Remember, nothing other than the liquid feed, medication or water should be put down the PEG tube. If you need to have your PEG tube replaced or removed you will need to come back to the hospital, or it may be possible to arrange for this to be done in your home. What happens when I go home? If you decide to have a PEG tube, the dietitian will visit you and your carer before you leave hospital, and when you get home. The dietitian will explain the feeding plan and provide the feed and any equipment you need. The dietitian will also contact your GP so that they can arrange for prescriptions for future feeds. We can arrange for you to have a home delivery of the liquid feed and equipment if you wish. page 9 of 12 Do I have to say yes now? No, you don't need to make a decision now. Please feel free to talk over any problems or questions you have with your doctor, nurse, dietitian, family or carer before you decide. Even if you do not feel ready to have a PEG tube now, at least you now know how it might help you. You can discuss having a PEG tube again later when you feel ready. page 10 of 12 page 11 of 12 Produced with support from Sheffield Hospitals Charity Working hard to fund improvements that make life better for patients and their families Please donate to help us do more www.sheffieldhospitalscharity.org.uk Registered Charity No 1059043 organdonation.nhs.uk Alternative formats may be available on request. Please email: [email protected] © Sheffield Teaching Hospitals NHS Foundation Trust 2015 Re-use of all or any part of this document is governed by copyright and the “Re-use of Public Sector Information Regulations 2005” SI 2005 No.1515. Information on re-use can be obtained from the Information Governance Department, Sheffield Teaching Hospitals. Email [email protected] PD3696-PIL173 v4 Issue Date: July 2015. Review Date: July 2017
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