Lived Experience Network Thinking about your personal readiness to be involved So you have the time and availability to get involved and share your lived experience in suicide prevention activities but are you emotionally and mentally ready? Talking about suicide, sharing your insights, learning about research, policy and programs, and so on, can be an incredibly rewarding, healing and hopeful experience but it can also be emotionally and mentally draining and can have an impacts on your physical and emotional wellbeing. The way this effects you can also change over time and depend on all the other things, the ups and downs, occurring in your life. How this guide can help you This guide is intended to help you assess your personal readiness to be involved in suicide prevention activities. It draws on the experiences of other individuals with lived experience of suicide as well as advice from professionals who work every day with people touched by suicide. It is intended for anyone with a lived experience of suicide, defined by Suicide Prevention Australia (SPA) as ‘having experienced suicidal thoughts, survived a suicide attempt, cared for someone who was suicidal, been bereaved by suicide, or having been touched by suicide in another way.’ For those who are already involved in suicide prevention activities, it is worth pausing on a regular basis to reflect on how your involvement is affecting your mental and physical health. Integrating your experience with suicide into your world view and sense of self Every person has their own unique response to suicide and there are no right or wrong responses. Words that are often used to describe an experience with suicide include catastrophic, numbing, devastating, overwhelming, exhausting, confusing, triggering, and so on. These are highly emotionally charged words. Last reviewed 30 October, 2014 © 2014 Suicide Prevention Australia Some people report achieving significant insights about their sense of self and connection to life while others find their world view shattered and confusing. It can be difficult to find a new balance where you are able to think constructively about your experience and not become overwhelmed with emotions or left feeling vulnerable. Most people find they need time to reflect on their experience before getting involved in suicide prevention activities. Reflection points: What words do you use to describe your experience with suicide? Have these changed over time? Do they still carry the same charge of emotion now compared to in the immediate weeks or months after the crisis? What are your energy levels like after thinking or talking about your experience with suicide? If you experience a drop in energy, how long does it take you to regain your energy? Does this have an impact on other parts of your life such as relationships with family, friends or work colleagues, or your physical or mental health? To what extent does your experience with suicide contribute to your sense of self? How is this different to your sense of self before suicide entered your life? Page 1 of 4 Lived Experience Network Thinking about your personal readiness to be involved Length of time since crisis There are no hard and fast rules about the length of time that has passed since your experience with suicide however, suicide prevention professionals will generally provide the following recommendations based on their work with individuals touched by suicide: If you have lost a loved one by suicide allow at least 12 months to pass before getting involved in suicide prevention. If you have made a suicide attempt allow at least 6 months to pass since your most recent suicide attempt. These recommendations are provided to help ensure individuals’ are not vulnerable when making a decision to participate. Levels of vulnerability can change over time as suicidality and grief may resurface. Reflection points: What would it be like to discuss your readiness to get involved in suicide prevention activities with a trusted person such as a friend, family member, mental health professional, or crisis line? Are there particular times when you know that you feel more vulnerable? This may be anniversary dates or birthdays, times of increased stress, or special events like Christmas or holidays. Asking the tough question: What’s my motivation? You may not be aware of this but mental health professionals undertake significant and ongoing training and supervision to ensure they are putting the interests of their client first. Without these skills and reflection it is easy to allow personal thoughts and feelings to interfere with professional relationships. Individuals with lived experience also need to be aware of the motivation behind their involvement in suicide prevention activities as it helps them identify the right type of activity to be involved in given their motivation. Again, this may change over time and with the ups and downs of life. It’s not always an easy and straightforward process to identify your motivation to be involved in an activity. This requires selfreflection and is often best done by talking to a trusted confidant or a mental health professional. Be gentle with yourself and don’t judge or appraise your motivation: There are no right or wrong answers. One way of helping uncover your motivation is to ask yourself the question ‘who will benefit from my involvement?’ Two common underlying themes are: I will, for example, this will help me heal, help me make sense of my experience, help me channel my emotional energy. Others will, for example, constructive improvements can be made to suicide prevention via my contribution to research, policy or program design. Most people will find that they have a mix of these two themes of motivation. Think about which motivation is currently dominant and try to find suicide prevention activities that will satisfy this motivation. Last reviewed 30 October, 2014 © 2014 Suicide Prevention Australia Page 2 of 4 Lived Experience Network Thinking about your personal readiness to be involved Finding the right type of involvement to match your motivation There are a broad range of suicide prevention activities available to participate in. Your involvement in any level of activity will add value and help create a community that values and supports everyone. Some examples matched to these two themes of motivation include: I will: Participation in activities that focus on healing such as community remembrance or awareness events such as walks on World Suicide Prevention Day, involvement in peer support groups or fundraising activities, participation in research (especially where there are good support mechanisms in place such as access to counsellors if you become vulnerable during the research process). These are more likely to require short-term commitment or be one-off activities and allow you time between activities to heal and process your emotions and thoughts. Others will: Activities such as participation in consultation process or events, involvement to in committees or working groups, organising community events, or undertaking speakers training to share your story at public events or in the media. These are more likely to be ongoing activities that require a commitment of time and energy over the medium- to longterm. Last reviewed 30 October, 2014 © 2014 Suicide Prevention Australia Ongoing self-care Sometimes involvement in suicide prevention activities can bring up unexpected emotions, feelings, and memories. It is important that you have a ready set of self-care strategies to draw on to nurture your wellbeing. The ‘Guide to self-care’ will assist you as you reflect on your self-care strategies. Reflection points: What are you already doing to practice self-care in the physical, psychological, emotional, spiritual, and workplace/volunteer realms? What additional strategies can you put in place? Sharing your personal experience of suicide Here are some useful points to assist you in deciding to share your personal experiences with suicide: Remember that if you do not want to make a comment, ask a question or share your story, you do not have to. While some people feel it is important to share, that is not true for everyone. Consider what information is useful for your audience to know. This will change depending on the situation and the audience. It is generally not helpful to discuss methods of suicide or suicide attempt (such as hanging or overdose), locations of suicide or suicide attempt (such as naming a particular bridge or building), and further details or graphic descriptions should generally be avoided. Sharing such information may be harmful to individuals in your audience who are feeling vulnerable. Be prepared for different personal perspectives on suicide and respect others Page 3 of 4 Lived Experience Network Thinking about your personal readiness to be involved opinions. Suicide is very complex and no two situations are the same. Suicide attempt survivors and those bereaved by suicide often approach the topic of suicide from very different places: Conversations between the two groups can sometimes generate intense emotions. Some researchers and professionals may talk about suicide in a way that seems impersonal and detached but this does not mean that they are without compassion for those touched by suicide. Let us value and respect the contributions of all individuals. If you are asked a question that you would prefer not to answer, it is perfectly acceptable to decline to answer, saying something like, “I appreciate your interest/concern/curiosity, but I hope you understand that I don’t feel comfortable discussing that.” Before you share a story of how you have been touched by suicide, consider how other people involved in the story or connected to the deceased/subject may feel about the details being discussed in public. If possible, talk to these people before you speak publicly about the suicide or suicide attempt. Also consider any legal processes that may be in progress such as a coronial inquiry. Sometimes it can disrupt the legal process if unconfirmed details about a death are publicly described as a suicide. Remember that it is very difficult to retract information or your story once it is published on the internet. See also ‘Talking About Suicide: A Guide to Language’. Last reviewed 30 October, 2014 © 2014 Suicide Prevention Australia Begin with the end in mind Right from the start it is important that you give yourself permission to withdraw or take a break from involvement in suicide prevention activities if you find your wellbeing is negatively impacted. Many people find this difficult. A common reaction after experiencing suicide loss or crisis is a desire to find or create some good out of a painful experience (“if I could just help prevent another person from experiencing this…”). Some people report that they are afraid to stop their activity as more suicide will occur or they are unsure about what their life will be like without an active role in suicide prevention. These are all normal reactions. Remember that suicide is very complex and responsibility for suicide prevention does not rest with any one individual alone. If you are unsure if you need to withdraw or take a break from your involvement in suicide prevention activities, try talking about it with a trusted person such as a friend, family member, mental health professional, or crisis line. You can also raise your concerns with the lived experience activity coordinator at the organisation you are involved with. Crisis line contacts (available 24/7) Suicide Call Back Service 1300 65 94 67 www.suicidecallbackservice.org.au Lifeline 13 11 14 www.lifeline.org.au Mensline 1300 78 99 78 www.mensline.org.au Page 4 of 4
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