enter Head Strong - Web Development Consultation Page 2 At the heart of Cheshire and Wirral Partnership NHS Foundation Trust’s child and adolescent mental health service (CAMHS) is a commitment to developing mental health provision that truly meets the needs of local children and young people and their families; to this end stakeholder participation and partnership is a top priority. The development of a dedicated CAMHS website took this ethos to a new level, stepping outside of traditional consultation approaches to literally paint the bigger picture. Head Strong - Web Development Consultation Page 3 Children and young people from across CWP came together to anchor their thoughts and feelings on how best to create an all-new online presence. With a focus upon developing a deeper understanding of their own experiences of CAMHS, as well as their, as well as their aspirations for its future, the participants gave form to their shared ideas, representing them symbolically with their own unique visual metaphors. With enthusiasm, they took up the challenge and the paintbrush to create a fantastic series of graffiti walls. Care Well-Being Partnership Head Strong - Web Development Consultation Page 4 The resulting artworks have provided unique insights, rich in meaning, that are directly shaping the future website’s structure, content, voice and design. What follows is a brief summary of the ideas behind the images, coupled with additional contributions from parents and carers and further input from older service users. Head Strong - Web Development Consultation Page 5 Head Strong - Web Development Consultation Page 6 Time to Give The young people were keen to see a website that reflected their appreciation for CWP CAMHS, helping present and future service users understand that the service was very much there for them. The notion of being ‘given time and space’ is summed up in this visual metaphor of a Watch handing over Glowing Stars. The Stars’ unusual Green colour was deliberately chosen to reflect the ‘life giving’ quality, achieved through the staff and service’s hard work. The young people hoped that this message of an individualised provision would be echoed throughout the website’s pages. The young people very much valued being valued, and wanted to reassure others that CAMHS was about ‘working with’, not ‘doing things to’, young people. Head Strong - Web Development Consultation Brain Power Page 7 The young people felt that CAMHS was growing in the right way and saw a service that treated them as a whole person, encouraging physical as well as mental development. This focus upon holistic health was seen as a winning strategy in reducing the stigma often associated with mental health services. Likened to the gym, the young people were keen to champion the preventative benefits, as well as the reactive. Aspirationally, the group felt that the website could become a catalyst for raising the profile of CWP CAMHS throughout the local area. The group pressed that the website content would need to reflect this positive and proactive push on ‘fitness’. The group also went on to identify the need to actively promote the service and website within schools. An eye catching poster campaign was the preferred solution, perhaps making use of the graffiti artwork the young people had themselves created. Head Strong - Web Development Consultation Page 8 Whilst this image was originated by the young people at Pine Lodge Inpatient Unit, its underlying meaning was reiterated throughout all of the consultation activities. Running out of time, this Exhausted Runner struggles to climb the tilting Watch Face. Through this image, the group recounted their own experiences, the distance they had travelled and the progress they had made. Advocating that other young people make use of CWP CAMHS services sooner, rather than later, this image calls for a website that openly recognises the reluctance many young people may have about seeking support. Pointing up the real benefits of engaging with the service and how given time they will come to appreciate all that has been done to help them, Boxing Gloves were added to the figures hands to let others know they ‘should not fight agianst it’. “All the gloves do is make it difficult for the runner to get a firm grip and that just leads to more frustrations” Head Strong - Web Development Consultation Page 9 Taking Control This Universal Control, complete with Name Tag, points up the way in which the CWP CAMHS service was seen as empowering young people, giving them back ownership over their own self control. With its broad variety of Buttons, Dials and Levers, there is something to help everyone change their outlook, refocus their thinking and fine tune their emotions. The message was clear; CWP’s approach was about encouraging independence and building resilience, so that it’s the young person that is in the position to choose the future they deserve. The young people went on to signal that listing all the potential treatments and approaches could just become confusing, introducing too much technical detail that may only raise rather than allay concerns. Instead they felt the site should concentrate its efforts on establishing a connection with young visitors; developing a real understanding that the best approach for them will be full explored and explained at the start of treatment. Head Strong - Web Development Consultation Page 10 This image of a Welcoming House overshadowed by a rather Prominent Sign, was the young people’s call for more to be done to highlight the ‘homely’ way in which they had come to regard ‘Pine Lodge’. They knew that many people saw it primarily as a hospital, unable to see behind the label; however for them it was much more. The challenge, they felt, was getting this message across to potential new service users. For them, the main issue lay in the fact that more often than not young people would be admitted to the unit at short notice and would not have had sufficient time or have been emotional able to have accessed the website in advance. They also raised the point that internet access was not available within the centre and so it would also be difficult to access the information retrospectively. The final point that the group raised drew attention to the fact that many of the young people at the centre were from a broad geographical spread, sometimes from outside of CWP’s patch, which includes Cheshire and Wirral, where they had their own local CAMHS agency, often with their own website. To overcome these issues, the group suggested a downloadable brochure. In this way, the information would be available to those that had time to access the web in advance of being admitted, whilst it could also be printed out and made available for new arrivals; and finally it could be added as an independent link to the websites of external referrers. Head Strong - Web Development Consultation Page 11 The point on the previous page, about accessing the right information at the right time, was also raised throughout the parents/carers consultations. Independently they also suggested a printable document, however with an emphasis that it should be suitable for the whole family. They spoke candidly of the ways in which their child’s admission impacted not only upon themselves, but also siblings, friends and extended relatives. A concise document written with families in mind was seen as a useful and accessible way in which to involve and inform concerned parties, allaying fears and developing a broader base of support and understanding ready for the young person’s planned return home. The Two Bears image adds to these recommendations, embracing the idea of specifically creating ways of informing younger siblings about the treatment an older brother or sister may be receiving. Whilst a dedicated section could prove ideal, it was felt that making use of the childrens’ section of the proposed website may be sufficient in helping parents talk through and explain the situation with younger siblings. For parents in the community, access to information had more of a focus upon understanding the practicalities of the support offered, types of intervention, timescales and contact details of local provision. Both cohorts of parents felt that testimony and personal anecdote could be useful; and suggested that a ‘parent blog’, or a similar narrative approach, might provide the much needed context required to make sense of the often detailed information that was fed back from the service. Again both groups of parents agreed that links to local support groups for themselves would be extremely useful. Head Strong - Web Development Consultation Page 12 Family involvement was also seen as a key component amongst the young people that were accessing CAMHS in the community. The image of the Small Family Tree, but with Strong Links, illustrates the young peoples’ wish to see a dedicated provision for parents and carers that is distinctly separate from their own content. Family Tree Head Strong - Web Development Consultation Page 13 Care Well-being Partnership The young people at Pine Lodge were keen to point up the efforts that were made to make their stay as enjoyable as possible. Access to games and fun activities, and the opportunity to make new friends, were all seen as important to the overall treatment they received. Head Strong - Web Development Consultation Page 14 The Speeding A* Pencil was a surprising metaphor that extols the virtues of the Unit’s in-house school at Pine Lodge. Many of the young people acknowledged how the circumstances that had led to them being admitted had also had a huge impact upon their progress at school. Most described how they had assumed that their admission would see them falling still further behind their peers. However this was not the case and the specialist tutoring had quickly enabled them to pick up the pace and get back on track, restoring their confidence in the learning journey that lay ahead of them. Promoting this point to both young people and their families was seen as a way of helping them appreciate the real benefits that engaging with the service brought, on so many levels. Head Strong - Web Development Consultation Page 15 The Shape Sorter calls for a more basic way of organising information, setting the new CAMHS website aside from the more organisational and clinical structure currently favoured on the existing CWP site. The young people were keen to see a site that filtered users according to needs. Whilst the group felt that there was no such thing as too much information, how it was organised and presented was critical to how it was received and understood. The Shape Sorter also calls for the content in each section of the website to be further subdivided into simple bite size information points that provide the user flexibility and choice as to which information they access. They also felt strongly that the site should be written from an emotional position, describing things with real feeling where possible. With Feeling Head Strong - Web Development Consultation Page 16 A further consultation group also called for a move away from clinical and therapeutic terminology and classification. They felt that although their reasons for accessing CAMHS were often extremely different, they did not want to be pigeonholed by their condition or treatment. Instead, this Face of Different Emotions supports the idea of a new way of subdividing the information on the site, around emotions, experience and differences. Head Strong - Web Development Consultation This frightening image acknowledges the way in which many of the young people had held fears and concerns about what lay in store for them at their first appointment. However, like all imaginary monsters, the group went on to explain that their anxiety quickly faded as soon as it had been confronted. Having made it to their first visit, it quickly became apparent that CAMHS was both friendly and of real help. The word FUN was later added behind the Monster motif, in recognition of the staff’s efforts to make their involvement as enjoyable and rewarding as possible. What this image calls for is the honest recognition on the website that new service users will have fears, and that their concerns are only natural. This frank acknowledgement was seen as essential in helping to support the transition in treatment. Page 17 Head Strong - Web Development Consultation Lights Camera Page 18 An idea that was reiterated throughout the consultations was the potential use of video as a means of quickly demystifying the ‘first appointment’ and so overcoming any initial fears. Settling potential nerves and helping to build confidence was prioritised by the young people as the main focus of the site; incorporating real first hand experiences and explanations in simple language, the young people were keen to get involved, though at the same time mindful of the need for confidentiality. The young people suggested ideas ranging from using masks to simply adding voice over as ways of securing their involvement and creating an entertaining first time introduction. Action Head Strong - Web Development Consultation Page 19 2Gether This Angelic Figure was added to the graphic as a reminder that we are never alone in how we may be feeling. This reassuring message linked directly to the positive impact CWP CAMHS’ group activities had on enabling young people to appreciate that even extreme emotions or confused thinking was in fact a more common occurrence than they might have been aware of. Emphasising that we share similar experiences and that these are often natural and understandable, was seen as another underpinning factor to the website’s core message. The image also flagged up how group activities could be promoted via the website; which in turn highlighted a second tier of site users, that would only be returning for updates and new opportunities, looking to be kept informed of future activities and additional support. Head Strong - Web Development Consultation Page 20 Read All About IT The Climbers Scaling the Newspaper represent the idea of a dedicated page for people returning to the site to get the latest updates easily. They described a page broken into clear sections, that allowed all of the site’s users easy access to the information most relevant to them. Beyond the website, the young people also called for consideration to be given to the idea of offering a broader scope of challenging physical activities, that bolstered some of the existing practices with a more rounded approach to health and well-being; activities that would encourage young people to reach beyond their comfort zone and interact positively with their peers. Head Strong - Web Development Consultation Page 21 There was a stark difference of viewpoint regarding the use of young peoples’ testimonies. Those at Pine Lodge welcomed the insights that other service users could provide about the support they had received and the progress they had made. Whereas young people receiving support in the community felt that this could create distracting or even negative results. For young people in the community, the Camera in the Picture calls for a concerted focus upon the positive. Their long term aspiration was to see a ‘gallery page’ added to the site, showcasing the things young people experience through the service. Whilst confidentiality could be an issue, they hoped to see a more universal acceptance and appreciation of the service that allows for a more general involvement, free from stigma and misunderstanding. In the short term, they suggested limiting subjective opinions to positive quotes, talking wherever possible in terms of the benefits and positives to be gained. Head Strong - Web Development Consultation Page 22 The young people described the CAMHS service as centring on the opportunity to talk openly about how they were feeling. Though they understood confidentiality had its restrictions, they felt that all of their conversations were dealt with respectfully, allowing them the privacy needed to be open and honest. The No Entry Sign in front of the Two Speech Bubbles denotes the professional way in which their voice is given priority; a selling point that the group wanted the website to emphasise. Right of Way Head Strong - Web Development Consultation Page 23 Thinking Outside Boxes ‘The Box’ was put forward as the title of one core page that would highlight simple self help strategies. Likened to i-Tunes, it would allow surfers to access easy to use techniques, whether a downloadable diary, a motivational podcast or a bite size introduction to a new approach. Whatever format these personal development ‘apps’ might take, this section needs to be something that can grow with time, encouraging young people to return in the future. Head Strong - Web Development Consultation Page 24 RockON Amongst many of the attendees, the self help technique of Mindfulness was given significant recognition and put forward as the ideal first posting to ‘The Box’ section of the site. Though relatively simple to learn, the group described huge benefits to their well being. The image of the Rocking Chair was how they described the process of centring yourself in the moment. This robust technique anticipated both ups and downs, however it allows the practitioner to enjoy the present; relaxing into and appreciating the here and now. Head Strong - Web Development Consultation Page 25 RockOUT The Broken Watch was added, slipping from the Rocking Chair, to signify the ways in which CAMHS enables young people to let go of negative past experiences and limiting beliefs, through techniques such as Mindfulness. Head Strong - Web Development Consultation Page 26 The group also wanted a Cloud of Swirling Hazy Photographs working into the metaphor. This tornado of snapshots representing past moments was described as slowing down, with the images in the photographs coming into focus, allowing them as an individual to develop a clearer understanding of the issues that had led them to require CAMHS support. Head Strong - Web Development Consultation Page 27 The final addition to this metaphor was the Rising Score of Musical Notes seen climbing up and away. An upbeat finale to this piece, it signifies how they felt they had been supported and encouraged to find new ways forward that suit their individual tastes and preferences. An uplifting message that voices the personalised service CWP CAMHS offers its young people. Head Strong - Web Development Consultation Page 28 CNNCT CNNCT CNNCT CNNCT CNNCT CNNCT Email and electronic communication was a persistent point raised throughout the various consultations. All those involved, from young people to parents and carers, wanted a site with easier access to targeted contact information. The challenges of providing this in a safe and controlled way, obviously limits the overall scope of any final approach; however it does flag up for the future the need for CWP to start developing robust strategies for contemporary communication. Head Strong - Web Development Consultation Page 29 This final motif came out of an additional workshop that invited older young people to contribute their recommendations. This open format discussion covered a broad range of topics, including making use of existing social networks and web 2.0 portals, as well as how best to compartmentalise the site according to each of the likely visiting users. The image below was doodled during the session and succinctly captures what became a powerful allegory for the group. What began as a journey through the local service, quickly evolved into a more inclusive metaphor for life and how CAMHS can form a vital stage for some. Painting a detailed narrative, that incorporated an ever growing collection of journey based analogies, from the ‘fog of confusion’ to ‘being trapped on the roundabout of addictive behaviour’, the group found countless ways of comparing service user’s situations to their journey concept. This gave rise to the styling of the young person’s section of the site; making use of traffic signs and journey related imagery, as well as extending the idea into the language patterns used within the content. deadcatdreaming Where Believing is Seeing Graphic Facilitation unlocks the creativity present within individuals, organisations and communities; enabling them to participate in the building of a co-created vision and a tangible route map to shared achievements. DeadCatDreaming’s unique methods take groups through the creative act of a mind moving from uncertainty and frustration to discovery and integration; where problems are solved, opportunities grasped, knowledge shared and new communities of practice created. www. e: [email protected] w: www.deadcatdreaming.co.uk t: 07870 485979 adcat de .co.uk g n Spontaneously created combinations of graphics and words capture key ideas, stimulating discussion, participation and focus. DCD’s pioneering approach crosses disciplines and boundaries to deliver big-picture visuals. This unique service transforms the business development process into an incredibly memorable and meaningful experience. 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