Fact Sheet - Heartland National TB Center

StoptheStigma:Eliminating
StigmatizingLanguage
StoptheStigma:Eliminating
StigmatizingLanguage
“EveryWordCounts”
“EveryWordCounts”
In the publica on, Every Word Counts: Suggested Language and Usage for Tuberculosis Communica ons, the authors describe how judgmental terms and nega ve connota on of words such as ‘defaulter’ and ‘suspect’ place blame for the disease and responsibility for adverse treatment outcomes on the pa ent.1 In the publica on, Every Word Counts: Suggested Language and Usage for Tuberculosis Communica ons, the authors describe how judgmental terms and nega ve connota on of words such as ‘defaulter’ and ‘suspect’ place blame for the disease and responsibility for adverse treatment outcomes on the pa ent.1 In order to assist in implemen ng a change in the use of s gma zing language, Heartland has commi ed to join forces with the Global TB Community, the Interna onal Union Against TB and Lung Disease, and the Na onal Society of TB Clinicians. Heartland, with support from the Treatment Ac on Group, developed this quick reference tool to aid in iden fying suggested replacement language as a reminder of how our words may affect others. In order to assist in implemen ng a change in the use of s gma zing language, Heartland has commi ed to join forces with the Global TB Community, the Interna onal Union Against TB and Lung Disease, and the Na onal Society of TB Clinicians. Heartland, with support from the Treatment Ac on Group, developed this quick reference tool to aid in iden fying suggested replacement language as a reminder of how our words may affect others. 1
1
From “Suggested language and usage for TB care, communica ons and
publica ons” page 2
Whereitbegan
Suggested language and usage Open le er: Re ring for tuberculosis (TB) care, s gma zing and communica ons and criminalizing language from publica ons. the global TB discourse Language in TB services: can we change to pa ent-centered terminology and stop the paradigm of blaming the pa ents? Civil society calls for the re rement of s gma zing and criminalizing language from the global TB discourse. SupportedbybyTreatment
TreatmentAcƟon
AcƟonGroup
Group(TAG)
(TAG)
Supported
Supported by Treatment AcƟon Group (TAG)
From “Suggested language and usage for TB care, communica ons and
publica ons” page 2
Whereitbegan
Suggested language and usage Open le er: Re ring for tuberculosis (TB) care, s gma zing and communica ons and criminalizing language from publica ons. the global TB discourse Language in TB services: can we change to pa ent-centered terminology and stop the paradigm of blaming the pa ents? Civil society calls for the re rement of s gma zing and criminalizing language from the global TB discourse. SupportedbybyTreatment
TreatmentAcƟon
AcƟonGroup
Group(TAG)
(TAG)
Supported
Supported by Treatment AcƟon Group (TAG)
EliminatingStigmatizingLanguage
EliminatingStigmatizingLanguage
Non‐hurtfulReplacementLanguage
Non‐hurtfulReplacementLanguage
Key Terms suggested by the Stop TB Partnership Key Terms suggested by the Stop TB Partnership Use this….. Not that….. Use this….. Not that….. Adherence / Non‐adherence Compliance / Non-compliance Adherence / Non‐adherence Compliance / Non-compliance Person lost to follow up Defaulter Person lost to follow up Defaulter TB Preven on and Care TB Control TB Preven on and Care TB Control Person to be evaluated for TB TB Suspect Person to be evaluated for TB TB Suspect HIV‐Posi ve HIV-infected HIV‐Posi ve HIV-infected HNTCSurveyResults
Language suggested by par cipants HNTCSurveyResults
Language suggested by par cipants Use this….. Not that….. Use this….. Not that….. TB Infec on Latent TB TB Infec on Latent TB Lack of housing; Under‐housed; Homeless/Homelessness People experiencing homelessness Lack of housing; Under‐housed; Homeless/Homelessness People experiencing homelessness Immigrant Alien Immigrant Alien Undocumented Illegal; Illegal alien Undocumented Illegal; Illegal alien Person with TB disease TB case Person with TB disease TB case Treatment failed Treatment failure Treatment failed Treatment failure Missed doses/Non‐adherent Delinquent Missed doses/Non‐adherent Delinquent Contact Analysis; Contact Elicita on; Contact Iden fica on Inves ga on; Inves gate Contact Analysis; Contact Elicita on; Contact Iden fica on Inves ga on; Inves gate Exposed to TB TB contact Exposed to TB TB contact Tuberculosis Consump on; White Plague Tuberculosis Consump on; White Plague S gma zing language and suggested replacements was iden fied by an HNTC survey
reques ng pledgers to iden fy language that they personally experienced or witnessed.
**This list is non‐inclusive.
S gma zing language and suggested replacements was iden fied by an HNTC survey
reques ng pledgers to iden fy language that they personally experienced or witnessed.
**This list is non‐inclusive.
Supported by Treatment AcƟon Group (TAG)
Supported by Treatment AcƟon Group (TAG)