Older People and Social Isolation A Resource Pack er Be r tte Old 3rd Edition t r Be Foreword At our Older Experts Group meeting an older person commented that, “people miss out because they don’t really know” It is incumbent on all of us who work with older people to make sure that they do know, and to take action to address the exclusion, social isolation and loneliness many older people experience. We live in a society which is getting older, ageing is the reality of all our lives. Feeling isolated and lonely, and often too ignored or undervalued, is not a necessary part of this process. It is therefore refreshing to see the range of ideas contained in this Resource Pack, which provides information and supporting training materials for anyone wanting to tackle the complex issues involved in addressing social isolation. It is packed full of useful advice about what support based on established good practice already exists in Leeds. The production of the Resource Pack was originally supported by LinkAge Plus, but its content reflects work over a considerable period of time by a group of people who have built up a range of expertise and insight into what works for older people. We all deserve to have a life worth living and we can’t go far wrong if we use this information and implement some of the suggestions described. In particular remembering that: “When planning services for older people who are socially isolated, perhaps the most important step is to ask people what they actually want.” (Tackling Social Isolation p.1) We were pleased and overwhelmed by the interest that has been shown in the first two editions of the Social Isolation Resource Pack, therefore, we decided to print a third edition the pack, with amendments suggested by front-line staff. We are thrilled that the pack is seen as useful, and hope that this Third Edition is just as successful. We will continue to focus on social isolation, and have more work going on in order to keep this issue a high priority. Joy Marshall - Project Manager, Ageing Society, Leeds Adult Social Care Acknowledgements The Social Isolation Peer Support Group Joy Marshall, Project Manager, Ageing Society, Leeds Adult Social Care Leeds Older People’s Forum, Staff and Members Councillor Peter Harrand - Joint Older People’s Champion Dr. Mima Cattan - Leeds Metropolitan University Bronwen Holden Jenny Thornton - Older and Disabled People’s Strategic Partnership and Development Team, Mental Health Amanda Douglas - Older and Disabled People’s Strategic Partnership and Development Team, Falls Prevention Margaret Forth - Senior Rehabilitation Officer, Leeds City Council Bridget Maguire - Carers Strategy Implementation Manager Thanks to the Older People’s Strategic Partnership Team for funding the production of the Third Edition of the Pack. Caroline Starkey - Principle (Health and Wellbeing in Later Life), Adult Social Care, Leeds City Council The case studies in this resource pack are fictional. Any resemblance to individuals, living or dead, is purely co-incidental. This is the intellectual property of Leeds Older People’s Forum - any copies with agreement only. Leeds Older People’s Forum Link Age Plus The Leeds Older People’s Forum was established in 1994, and currently has over 120 members from older people’s voluntary sector organisations in Leeds. Link Age Plus was a Department of Work and Pensions Pilot Programme, to explore new ways of providing information and support to older people. Leeds was one of the eight pilot sites nationally. Our aims are: The Leeds LinkAge Plus pilot aimed to: • To provide information to older people’s organisations about issues affecting the lives of older people • Build capacity of voluntary sector organisations • To offer opportunities for networking with older people’s groups and organisations • To monitor plans, services and other developments that affect older people • To provide opportunities for older people to give feedback to statutory organisations • To ensure that voluntary organisations working with older people are fully involved in shaping services • Support the development of up to 6 “Gateway” organisations across the city enabling increased access to services • Increase contact with services and benefits by 10% amongst older people and carers • Develop and support increased awareness of, training and effectiveness of volunteer opportunities • Develop all of the above with the effective inclusion of BME organisations and elders For more information, visit our website at www. opforum.org.uk or contact us: Leeds Older People’s Forum 60 Upper Basinghall Street Leeds LS1 5HR 0113 380 4911 [email protected] There is a training course on tackling social isolation, run by Leeds Older People’s Forum. Please contact us for more information (there may be a charge for this course). Contents 01 What is social isolation? 02 What are the effects of social isolation? 03 What makes someone socially isolated? 04 Disadvantaged groups 05 How do people who are socially isolated behave? 06 How can you target people who are socially isolated? 07 What happens when people do not use services? 08 Coping strategies for workers 09 10 14 15 18 19 20 21 21 22 24 25 26 27 What is available in Leeds? • Mental health • Telecare and equipment • Keeping healthy and active • Lifelong learning • Bereavement • Befriending • Transport • Keeping House • Benefits and debt management • Black and Minority Ethnic elders • Sensory impairment • Older people in care homes • Carers 29 Summary of useful organisations 31 Neighbourhood Network Schemes 35 Useful terms 36 Bibliography What is social isolation? “I’ve gone three years without talking to hardly anyone.” Increased social isolation is frequently linked with getting older. However, only about 10% of older people describe themselves as socially isolated (Victor, Scambler et al in Cattan 2002). Yet social isolation is, by its nature, not something that is easily measurable, or indeed, something that many people feel comfortable disclosing. To some older people, increased isolation may be accepted as ‘part and parcel’ of the ageing process, and might not be challenged. As Forbes explains, “what for one person may be acceptable solitude may be for another anguish” (Forbes 1996: 313). An often quoted definition of social isolation comes from Cattan. Social isolation is, “an objective measurable state of having minimal contact with other people, such as family, friends or the wider community” (Cattan 2002:11). She considers that whilst social isolation can be measured, the feelings of loneliness are personal and individual. It is important to bear in mind that for some people, it may not be the number of contacts that is important, but the nature of those contacts, including who they are, the length of time spent, or the activity (Forbes 1996: 313). For many, a cup of tea with a loved one is likely to be more positive than a visit from a person reading the gas meter. For others, living alone and seeing few people may not be as devastating as we may assume, and they may not consider themselves to be lonely. (Cattan 2001: 4) Research has shown that older people might not necessarily refer to social isolation and loneliness using these terms (Erskine 2006: 30). This research in West Leeds suggests that many older people felt that the need to “raise people’s spirits (thus implicitly countering loneliness) was striking” (Erskine 2006: 30). It is therefore crucial to recognise that ‘jargon’ is likely to be a barrier in understanding the very real experiences of social isolation and loneliness. Social Isolation and loneliness are complex issues, and as such, have complex solutions. This resource pack is intended to help you think about the various issues that affect older people who may be socially isolated. It is important to bear in mind that the feelings of isolation and loneliness are very personal, and may affect individuals in different ways. What is clear from the Older Better strategy for Leeds (Healthy Leeds 2006: 21) is that older people want to be actively involved in the services and developments that affect their lives. When planning services for older people who are socially isolated, perhaps the most important step is to ask people what they actually want. This pack is by no means an exhaustive guide and any suggestions or ideas should only be considered with the needs, hopes and aspirations of the individual at the centre. an objective measurable state of having minimal contact with other people, such as family, friends or the wider community | 01 Older People and Social Isolation What are the effects of social isolation? Older People in Leeds Leeds has a total population of 750,000. Of these, nearly 143,000 (20%) are sixty or over (Leeds Initiative Area Statistics, April 2004). There are seven wards in Leeds in which older people face particularly low levels of income: • • • • • • • City and Hunslet Gipton and Harehills Hyde Park and Woodhouse Chapel Allerton Headingley Burmantofts and Richmond Hill Middleton Park Most older people in Leeds live with at least one other person, but inevitably this changes as people age, and 59% of women in West Yorkshire in their eighties live alone. 4,139 older people in Leeds (about 3% of the total) live in residential or nursing homes. Older people in Leeds: Visions for the Future: • • • • • • • • • • Access to comfortable and secure homes An adequate income Safe neighbourhoods Ability to get out and about Friendships Access to learning and leisure Able to keep active and healthy Access to good, relevant information Involvement in planning and decision making Freedom from age discrimination Older Better: A Strategy to promote healthy and active life for older people in Leeds 20062011 (Healthy Leeds 2006: 9) “Once I was taunted by this group of young lads about being a blind old bat, and I pushed my stick in one lad’s chest and told him one day he would be in the same position. Well they went quiet and just left. But you know afterwards I just had a big cry.” (Cattan 2002: 32) It has been suggested that social isolation and loneliness have a significant impact on the health and well-being of older people (Office of the Deputy Prime Minister 2006: 18). The effects can include: • Increase in depression and associated mental health difficulties • Physical health implications • Poor life expectancy • Decrease in community involvement • Feeling that life is not worth living • Lack of confidence • Lack of motivation • Feelings of failure and despair These physical and mental health implications are significant, both for the individual and for the resources within the community. In 2005, 19% of men and 33% of women between the ages of 64–74 lived alone. For the over 75s, this rose to 29% of men and 60% of women living alone. (Age Concern 2007: Online) Older People and Social Isolation 02 | What makes someone socially isolated? “I used to go out every day before I had my stroke. But since my stroke I’ve lost confidence to go out alone. If there were more benches and places to rest, I would feel more able to go out alone.” (Cattan 2002: 25) There are a number of key factors that researchers have suggested increase the chances of older people experiencing social isolation and loneliness (Forbes 1996: 313). • • • • These may include: (Findlay and Cartwright 2002: Online) • • • • • • • • • • • • • Living alone Accessibility of transport (public and private) Perception of level of crime/violence in the community Not wanting to use available services Literacy Poverty/fear of future poverty Poor health or physical disability Continence Loss of significant relationships, including bereavement or divorce Lack of family support Lack of support from friends Relocation to a new community/sheltered housing/ care home Being a carer | 03 Older People and Social Isolation Lack of access to learning or meaningful activities Lack of access to information about services Language Lack of knowledge or access to technology Although these factors are not exhaustive, it is significant to note that multiple causes are likely to have a diverse impact on the experience of social isolation and loneliness. Research in West Leeds highlights that the two most important factors influencing social isolation in this area include access to transport, and access to information about services (Erskine 2006: 30). Yet it is important to remember that you do not have to live alone to be lonely – you can experience loneliness within a crowd. This is particularly significant for older people entering a care home, or a sheltered housing scheme, but can also affect carers, or people living with their partners or families. “I have got a wheelchair but still cannot get out of the house unaided. There is a step outside my door and I need a ramp but Social Services have said I’m not eligible for one. Now it just feels like solitary confinement.” (Cattan 2002: 25) Disadvantaged groups at risk of social isolation The Older Better Strategy produced for Leeds for 2006-2011 (Healthy Leeds 2006: 26) identifies groups of people who may experience increased disadvantage. The disadvantage that these groups experience may make them more at risk of social exclusion. The following excerpt is taken from the Older Better Strategy (Healthy Leeds 2006: 26-30). For a full copy and summary of the report, visit www.leedsinitiative.org/health. The Strategy contains a wealth of information about older people in Leeds, including national policy and statistical data. Older women There are slightly more women than men in Leeds and women have a longer life expectancy. In surviving men, older women tend to suffer worse health, lower incomes and poor housing (often living alone). At the oldest ages, when problems become more acute, women overwhelmingly outnumber men. Women from Pakistani, Bangladeshi and other Asian groups in Leeds have particularly high rates of limiting long term illness, health problems or disabilities. Gender is a major determinant of health and health care needs and the social implications of gender need to receive attention. Lesbian, gay and bi-sexual older people Older lesbians, gay men and bisexuals are five times less likely to access services for older people than is the case in the general older population, because they fear discrimination, homophobia, ignorance and that they will have to hide their sexuality. Older lesbians and gay men have particular issues. Many have remained invisible because organisations have failed to investigate their needs. People with learning disabilities There are 17,000 people with learning disabilities in Leeds. Older people with learning disabilities need the same kind of support as younger people, but they often receive less help. Older people with Down’s Syndrome are more likely to develop dementia. Many older people with learning disabilities have very limited social networks and few opportunities to use ordinary leisure provision in the community. Homeless Older People Many older people who become homeless, previously lived settled and stable lives. The popular view of homelessness amongst older people, is that they have been homeless for many years and lived an itinerant lifestyle. Whilst there are people for whom this is true, evidence indicates that for many older people, homelessness comes as a result of life events, which are likely to occur in later life. Older homeless people will often find themselves defined as socially excluded and there may be elements of their lifestyle that conflicts with more traditional ways of living. Older Better Strategy (Healthy Leeds 2006) Other disadvantaged groups listed in ‘Older Better’ include: • Older gypsies and travellers • Older people from other black and minority ethnic groups • Older people living in poverty • Older carers • Older prisoners • Refugees and asylum seekers • Older people in care homes • Older people with mental health problems • Older disabled people Older People and Social Isolation 04 | How do people behave when they are socially isolated or lonely? As social isolation or loneliness are difficult to measure, due to the subjective nature of the feelings, it might be important to identify behaviour or responses that indicate social isolation when it has not been verbally expressed. However, isolation and loneliness is very individual, so often there is no ‘set’ way to act, but some key behaviour might be: • Verbal outpouring and keenness to keep talking • Prolonged holding of your hand or arm • Body language – defeated demeanour, tightly crossed arms or legs • Withdrawal from social contact • Crying, depression (www.patient.co.uk) Emma Emma is 80 and lives alone in North Leeds. She lives in the house that was her family home until her children moved to London and her husband passed away. She used to have a number of friends in Leeds, but since her mobility declined and she is able to get out of the house less and less, her social circle decreased. She employs a cleaning lady once a week and also someone to help with her garden fortnightly. Recently, she has been thinking up many different excuses to encourage the cleaning lady to stay for longer – making her cups of tea even criticising her work, asking her to clean areas over again. She has also been telephoning her children, and leading them to believe she is unwell, just so that they will come and stay with her. She knows that her behaviour is likely to annoy people around her, but she just doesn’t know how to help herself feel less lonely and depressed. 1.What are the key issues facing Emma? 2.What would you suggest would best meet her needs? “I’d do anything to see some people, even cutting the grass. At least people nod and say hello.” (Cattan 2001: 4) | 05 Older People and Social Isolation How can you target people who are socially isolated? If you are planning to develop a new service, or want to ensure that you include the most isolated older people, the first step is to find people and ask them what they want. Yet, it can be difficult to reach out to older people who are socially isolated. If you have a community group or service, perhaps try the following ideas: • The most important thing is to find out where older people are! It could be the market, or the hairdresser, or the working men’s club. This may change depending on your locality. • GP referrals – get in touch with your local GP or District Nurse and let them know about your service or ask them to refer individuals to you. • Put a poster in the library or local community centre. • Put up a posters in local shops or post offices. • Put up posters, or hold information mornings at local sheltered housing schemes, or local flats. • Post flyers to your local housing association. • Contact Faith Organisations to promote your service. • Let other services know about your service, such as voluntary sector groups, handyman services, or police/fire – they can help to suggest your services to individuals they meet. • Linking up with energy providers to promote your services. People who read meters are often in contact with many housebound older people. • Radio broadcasts. • Having a stall in a supermarket or working with local shops. • Local market – handing out leaflets. A 2005 review of interventions to prevent social isolation and loneliness among older people suggested that the most effective response was to provide education and social group activities. (Cattan, White, Bond and Learmouth 2005: 41) William William was 94 when his sister died a year ago. They had lived together in the family home all their lives. William feels the loss of his sister very keenly. His nieces and nephews live too far away to give him the companionship that he needs. Likewise, many of his older friends have died or moved away. Also, the chapel that he and his sister had attended all their lives has recently closed. Although, in general, William’s health is good, he has very poor balance and difficulty in hearing. He has fallen several times in the past year, fortunately with no serious consequences, but is unable to leave his house unaided. This is a severe deprivation to someone who had previously been very active. He had been a keen rambler, bird-watcher and photographer and had travelled abroad when foreign holidays were not commonplace. He had also enjoyed concerts and the theatre and had been a keen supporter of his union. His deafness is a significant barrier to communication. It makes ordinary conversation difficult and prevents him from speaking to his family and friends on the telephone. William is resilient and determined. He has two ambitions: to live to a hundred and to stay in his own home. However, his social isolation is making him increasingly lonely and depressed. William has a cleaner who visits, and has been involved with a community group in the past, but his deafness prevented him from talking to people and he felt excluded. What William would like to do is pursue his old interests – excursions in the Dales, concerts, theatre etc – but he has no transport, no-one to take him and he cannot hear. 1.What are the key issues William is facing? 2.Are there any alternative (but equally rewarding) activities he could access? ‘Isolation to Inclusion’ is a website that provides good practice examples and Regional Action Plans targeting social isolation. www.i2i-project.net Older People and Social Isolation 06 | What happens when people don’t use services? Why might people not use services? What can you do? • • • • Make people aware of the different services that are available to them. • Support people to access the services for the first time. • Look into continence, transport or other practical issues. • Suggest that they contact a Carers Organisation for support. • Look into financial issues. • Be sensitive to developing confidence. • Try to help with practical things first, like handypersons tasks, to build up a relationship (Cattan 2002: 5). • Think about using a telephone befriending scheme, provided by some Neighbourhood Network Schemes. • Think about the fact that a waiting list for services might put people off. • Think about the physical barriers to getting out and contact an organisation like Care and Repair to explore aids and adaptations. • Think about asking another older person in your organisation to support the new person when they are attending activities. • Reassure people that feeling lonely happens to everyone at certain times, and that there are ways to find support. • Consider what the person likes to do – if they like reading, there are book groups, or ‘At Home’ services provided by the library, where a volunteer can come out to deliver books and talk about them. If they like walking, there are walking groups. There are a number of more individual activities that people can access. • Discuss with the person about a referral to a GP for help with depression. • Discuss psychological therapies, such as counselling or Cognitive Behavioural Therapy. • • • • • • Don’t want to be a burden or have ‘charity’ (Cattan 2002: 5). Lacking confidence. Worried that they won’t get on with people, or have anything in common. Mistrust of services provided. Don’t like the services provided. Worries about continence. Caring responsibilities mean they might feel they don’t have time. Transport issues preventing them. The stigma attached to loneliness – older people may deny being lonely, or think that it is a natural part of getting older that they can do nothing about. | 07 Older People and Social Isolation “Each time I suggested something to John, he just refused. I know he is really lonely, but he just refuses to accept help. Now, when I leave his house, I feel really deflated, like I’m no good at my job, because I can see his situation getting worse and worse, and there doesn’t seem to be anything I can do about it.” (Worker) Coping strategies for workers Although it is often overlooked, working with people who are socially isolated can be challenging and emotional for workers. It is sometimes difficult to accept that you cannot always make everything better for people and sometimes services are not available or suitable to meet a persons needs. This can cause stress and it is important to be able to identify the symptoms, in order to tackle them before they get worse. Some symptoms of stress (excerpt from www.mind.org.uk) • • • • • • • • • • • • • constant tiredness feeling sick or dizzy headaches sleeping problems lack of appetite or craving for food high blood pressure chest pains feeling aggressive or irritable dreading the future or failure fearing you are ill taking no interest in life difficulty making decisions problems concentrating Some tips to tackle stress (excerpt from www.mind.org.uk) • Make the connection. Could the fact that you’re feeling under-the-weather be a response to too much pressure? • Take a regular break. • Learn to relax. Follow a simple routine to relax your muscles and slow your breathing. • Get better organised. Make a list of jobs; tackle one task at a time; alternate dull jobs with interesting ones. • Sort out your worries. Divide them into those that you can do something about (either now or soon) and those that you can’t. There’s no point worrying about things you can’t change. • Improve your lifestyle. Find time to eat properly, get plenty of exercise and enough sleep. • Confide in someone. Don’t keep your emotions bottled up. There are often many other workers experiencing the same frustrations and challenges, and you are not alone. It is important to be able to talk to someone – a work colleague or your manager – if you are experiencing difficulties coping at work. In response to this, we have established a Peer Support Group, for front-line workers from any organisation, to get together in a relaxed and non-judgemental environment and share ideas and experiences. This group has been supported by the Link Age Plus Programme, and meets every two months. For more information, please contact: Leeds Older People’s Forum 0113 380 4911 [email protected] www.opforum.org.uk Older People and Social Isolation 08 | What is available for people in Leeds? Leeds is a busy city, with many services and organisations operating within it. So, it can be difficult to find out what services are available. In the following section, we have compiled information on some of the key issues relating to older people who are socially isolated and some contact organisations which can provide either more information, or services. This is by no means an exhaustive list, but is intended to encourage you to think about the variety of issues that affect social inclusion, and indicate possible responses. Services might change, and it is important for workers to have an awareness of the different organisations operating in Leeds. Due to the often complex nature of social isolation, responding in an effective way requires a holistic and multi-faceted approach. It is important when working with a person who might be socially isolated, that all their needs are considered. When you hold a busy case-load, finding out information about services in Leeds can be a challenge. However, finding out information has become easier since 2008, with the launch of ‘Infostore’. | 09 Older People and Social Isolation Older People and Information The Link Age and POPPS programmes developed a web-based ‘information store for older people’ where all information about services in Leeds are held. Anyone can access this information on the internet, and it can send you updates and newsletters. For more information, go to the Information Store website: www.olderpeopleleeds.info Mental health The experience of social isolation and loneliness can be caused, or exacerbated by depression, dementia or other mental health issues. Promoting knowledge, information and positive mental health is critical when tackling social isolation. a) Depression i) What is depression? Depression is common in older age, and affects about one in eight older people who live at home and about 40% of those in care homes (Help the Aged 2003: 1). However, “it is a mistake to argue that depression is an inevitable part of ageing. Depression is never normal” (www.bbc.co.uk/health/conditions/depressionelderly1. shtml). Depression is often overlooked and if it is undiagnosed and untreated, it can become more serious (Help the Aged 2003: 1). Older people may be particularly susceptible to depression following key life changes, such as retirement, bereavement, significant illness or loss of home and independence. (www.bbc. co.uk/health/conditions/depressionelderly1.shtml) ii) What are the symptoms of depression? • • • • Feeling very low or hopeless Loss of appetite Difficulty sleeping, and waking early Feeling suicidal In older people, there are often physical symptoms also, which could include headaches, general weakness, pain and shortness of breath (www.bbc.co.uk/health/ conditions/depressionelderly1.shtml). There are also illnesses that can exacerbate or cause depression, such as thyroid and heart problems, vitamin B12 or folic acid deficiency or cancer. Certain drugs may also cause depression, including beta-blockers or bloodpressure drugs. (www.bbc.co.uk/health/conditions/ depressionelderly1.shtml) iii) What are the treatments for depression? • Psychological therapies (talking therapies) including counselling, CBT, bereavement counselling, psychotherapy. • Drug treatment (anti-depressant drugs). • Alternative therapies (such as St. John’s Wort, although this can interfere with other drug treatments, and is self-prescribed for mild-to-moderate depression). • Dealing with social factors, such as isolation or loneliness. iv) How do you work with someone with depression? • The most important think is to take time to listen and understand how someone is feeling. • Take things at a pace that the person can cope with, their concentration and motivation may be low. • Encourage them to seek help from their family doctor who will be able to rule out any physical causes for their low mood. • And if appropriate will be able to put them in touch with talking therapy services in a local surgery; or will be able to offer treatment themselves or refer on to a specialist team. • If the person talks about any ideas of self harm/not feeling that life is worth living take this very seriously; as older people are most likely to complete a successful attempt at suicide. • Make sure the persons family doctor is aware of this and that the person has an urgent appointment as soon as possible. Contacts MIND 0113 230 7608 www.leedsmind.org.uk Samaritans 0113 245 6789 Volition (has details of all mental health voluntary organisations) 0113 274 9585 www.volition.org.uk Counselling: Leeds Crisis Centre offers confidential, short term counselling and support for individuals who have experienced a crisis within the last 3 months. There is also a specialist deaf counselling service. It is free of charge. 0113 275 5898 Older People and Social Isolation 10 | b) Dementia i) What is dementia? The Alzheimer’s Society defines dementia as a loss of brain function that is most often progressive, which means the brain becomes more damaged over time (www.alzheimers.org.uk). Dementia is likely to affect: • • • • Memory Communication and speech Reasoning Mood There is not one single cause for dementia, although there are certain factors that could increase the risk of developing the disease. These include genetics, lifestyle (such as drinking or smoking or poor diet) or other medical conditions, such as high blood pressure (www. alzheimers.org.uk). Age is a significant factor that increases the risk of developing dementia. 6 in 100 people over 65 will develop it. However, there are also thought to be 17,000 people under the age of 65 with dementia (Department of Health 2000: 7) ii) What are the symptoms? There are various types of dementia which have different symptoms, including Alzheimer’s Disease, vascular dementia, Pick’s Disease or Lewy Body dementia – please visit www.alzheimers.org.uk for more detailed information. The main symptom of dementia is that the person forgets things they have just done, although often their longer-term memory remains more clear. Some other symptoms might include: • • • • • Changes to personality Difficulty completing tasks Confused in familiar surroundings Confused about the date and time Inappropriate behaviour (such as going out in nightclothes) • See or hear things that are not there • Become angry, upset or irritated very easily (Department of Health 2000: 11) However, it is important to note that the experience of dementia is individual. These symptoms will not affect every person, and in some cases, symptoms migh indicate other problems such as infections. iii) What is the treatment? Most types of dementia cannot be cured (www. alzheimers.org.uk). However, there are certain symptoms that can be treated, but it is important to get a diagnosis, to be more certain about the condition. The GP is the first person to contact, who might refer the person to a specialist. They might undertake memory tests, brain scans, or other physical examinations. Support (including activity), talking therapies and drug treatment can alleviate some of the symptoms of dementia. | 11 Older People and Social Isolation iv) How do you work with someone with dementia? Planning activities for a person with dementia: If you are supporting a person with dementia, you might: The Alzheimer’s Society suggests the following useful tips: • Help them to write down their worries or questions – this could be used when seeing a specialist or GP. • Record what the GP/Specialist says in the consultation with the person. • Give the person plenty of encouragement. Let them do things at their own pace and in their own way (www.alzheimers.org.uk). • Break activities down into small tasks to encourage the person to continue doing things that they had previously done (www.alzheimers.org.uk) • Encourage a balanced diet, or look into support services. • Try to do things with, rather than for the person and try to be patient. • Take time out if you feel annoyed or frustrated – try to make sure the person feels relaxed. • Make sure the person has plenty to do! • Use a memory aid – such as putting labels on cupboards, a notice-board (with photos and reminders on) or a large calendar. • Keep up social life for as long as possible. • Try to encourage a regular routine – unfamiliarity might be confusing. • Try to encourage the person to keep up with activities they enjoy • Break the activity into small tasks • Use activities with one step (such as dusting) • In the later stages, try stimulating the senses, such as a hand massage • Keep a sense of humour! • Encourage and remind Communicating with a person with dementia: The Alzheimer’s Society suggests the following useful tips: • • • • • • Listen carefully Get the persons attention before you speak Notice body-language Speak clearly Use physical contact to reassure Respect the person (www.alzheimers.org.uk) Contacts Alzheimer’s Society 0113 231 1727 Offer a wide variety of services in Leeds for people with Alzheimer’s Disease, including emotional and practical support to people with dementia and carers. Community Links Home Support Service 0113 200 9180 Offer intensive home support to older people in the LS7, 8 and 9 area of Leeds who have mental health difficulties. Volition 0113 274 9585 Supports voluntary sector mental health organisations in Leeds and can provide information/contact details about available services. Together: Working for Well-being 0113 244 6992 Provides advocacy, assertive outreach and intensive support for people with mental health problems Information for Mental Health Online Leeds Mental Health Directory www.mentalhealthleeds.info Leeds Memory Service Aims to help people who are experiencing memory difficulties, provides assessment, treatment and support. Referral to this service is through a GP. Older People and Social Isolation 12 | Dementia Cafés These cafés are for people with dementia and their carers. Contact your local café for more details. Nationally, there is Dementia Café online: www.dementiacafe.com Leeds dementia café/involvement group network Area Where When Leeds North East area “De Caf” Second Tuesday of each month (transport costs can Terry Yorath House, 18 Devonshire 2.00–4.00pm be reinbursed) Close, Roundhay, LS8 0113 242 7707 “Forgetfulness Club” Austin Burke Community Centre 196 Chapeltown Road, LS7 2nd Friday of each month 11.00am–1.00pm 0113 237 4332 “Sunshine Café” Collingham Village Hall Last Wednesday of each month 2.00–4.00pm 0113 231 1727 or 01937 588 994 Leeds North West area Forget-me-not Café Yeadon Cricket Club (behind White Swan) 1st Wednesday of each month 1.30–3.30pm 01943 472 004 Open Door Café New Headingley Club St Michael’s Road, LS6 Last Monday of each month 2.00–4.00pm 0113 231 1727 or 0113 295 5417 Leeds West area Memory Lane Group 1st Thursday of each month Armley Helping Hands 1.30–3.30pm St Bartholomew Centre 0113 305 5490 or 0113 279 9292 Strawberry Lane, LS12 1SF Leeds East area “DeCaf in East” St Agnes Church Hall LS9 1st Monday of each month 2.00–3.30pm 0113 231 1727 “DeCaf East” Garforth net 62c Main Street, Garforth 3rd Thursday of each month 2.00–4.00pm 0113 287 4784 Leeds South area Pot-O’Tea Potterdale Day Centre 192 Dewsbury Road, LS11 6ER 1st Wednesday of each month 2.00pm–4.00pm 0113 231 1727 or 0113 270 8673 To be confirmed Sunder Mann (for people with dementia from South Asian Communities and their carers) 1st Tuesday of each month Contact Touchstone 0113 248 4880 | 13 Older People and Social Isolation Telecare and equipment There are a number of new technological developments (called ‘telecare’) that exist to support people to live independently in the community, many of which could improve the lives of people who are socially isolated, particularly for carers of people with dementia. Some of these include: • • • • • • Falls and movement detectors Medicine dispensers Smoke alarms Gas detectors Temperature sensors Property exit sensors In order to get Telecare, you must have an assessment by a social worker or another professional (such as an Occupational Therapist) and there may be a cost for telecare services. For more information, including a leaflet of telecare products, contact: 0113 222 4401 (Social Services Contact Centre). There are also various pieces of equipment or aids/ adaptations that can be used in the home, including: • • • • • • For more information about equipment services, contact: Social Services Contact Centre 0113 222 4401 William Merritt Disabled Living Centre and Mobility Service 0113 305 5332 Charitable organisation that provides independent advice on equipment, which can be tried out before it is purchased. DIAL (Disability Information and Advice Line) 0113 214 3630 Telephone advice and information for disabled people, carers, professionals in Leeds. Assistance with claiming benefits and representation. Library facilities available. Upbeat www.upbeatcic.co.uk A social enterprise selling gadgets and products for independent living. For more information contact: 0113 236 1644 Physability Service, Leeds Federated Housing Association 0113 386 1000 Commodes Raised toilet seats Walking frames and crutches Talking clocks Big button telephones Handrails Safety West Yorkshire Fire and Rescue Service provide a FREE Home Fire Safety check - 0800 587 4536. West Yorkshire Police provide a wide range of advice about crime prevention: www.westyorkshirepolice.uk Older People and Social Isolation 14 | Maintaining a healthy and active life Promoting a healthy and active life amongst the older people you work with is likely to be an important element of your work. The following section gives you some key health promotion messages and contact details for organisations to signpost to. Why keep active and healthy? Keeping active and involved in the local community has a number of positive health benefits, including reducing social isolation and delaying or preventing disease or disability (Healthy Leeds 2006: 16). Promoting health is important when working with people who are socially isolated, for a number of reasons: • Better quality of life and longevity. • Preventing depression through identification and treatment. • Preventing falls. • Feeling involved and supported by the local community. • A holistic (whole person) approach to promoting inclusion, which is less stigmatised. If a person feels well and active, they are more likely to feel positive, get involved, seek social opportunities and have a more healthy and included life. There are a number of health promotion and safety initiatives that might help you when working with older people who are socially isolated: a) Eating healthily b)Physical exercise c) Preventing falls d)Continence Eating healthily • • • • Eat some vegetables and fruit every day. Eat plenty of bread, potato, pasta, rice or chapattis. Eat fewer fried foods/foods with a lot of fat in them. Increase the amount of exercise you take – good for your heart and your waistline! • Eat a variety of foods during the day. (South Leeds PCT 1996) For some people who are housebound, it might be necessary to have meals delivered to their home, either fresh or frozen: • Meals on Wheels: 0113 247 8577 (Monday to Friday 8.30am to 3.00pm) only available through social services assessment • Leeds Black Elders Association: 0113 237 4332 • Leeds Jewish Care Services, Kosher meals service: 0113 268 4211 • Private meal providers: See Keeping House list for details, delivery areas and prices. You can download the list from the Keeping House website: www.keepinghouse.org.uk • Age Concern Leeds: 0113 245 8579 There are also a number of organisations who provide support with shopping – please contact Keeping House for a full list of services in Leeds - 0113 222 4401. Many of the Healthy Living Centres provide advice and support to learn about healthier diets. Healthy Living Centres exist to promote healthy living activities for the health and well-being of disadvantaged communities. Active 4 Life (Inner North West Leeds) 0113 278 3779 Feel Good Factor (Chapeltown and Harehills) 0113 350 4200 Hamara Healthy Living Centre (South Leeds) 0113 277 3330 Zest for Life (Inner East Leeds) 0113 242 5096 West Leeds Healthy Living Network 0113 295 1043 | 15 Older People and Social Isolation • Gardening • Walking • Carryingshopping • Climbingstepsor the stairs k Scheme vities. To eeds City • Standingupandsitting down several times “ 13 222 4410 tworks: I’ve had another handrailputonthe A little activity each day goes a long way er Be r tte Old k • Sweepingthefloor • Vacuuming n also swim cil pool, for details of website ir carers, ssionals and services Examples of everyday physical activity r Health ref: 1643/OPMT Everyday activity will helpyou: stairs, and make •Movearoundmoreeasily sureIgoupand •Keepwellandstrong down several times • Domoreforyourself aday.IfIjustsitin • Keepintouchwithfamily “ es have 0. For more re near you centres or Keep Active Keep Well the chair, my knees seizeup! and friends •Feelmorerelaxed 14/7/09 16:23:06 Local places for keeping active: Leeds City Council leisure centres have many activities for people over 50. For more details and to find a leisure centre near you visit www.leeds.gov.uk/leisurecentres or call 0113 395 2373. 1643 Keep Active Keep Well2.indd 3-4 Keep Active Keep Well Take more physical exercise If you’re aged 60 or over you can also swim for free at any Leeds City Council pool, please contact your local centre for details of Swim4free sessions. Voluntary groups and Neighbourhood Network Schemes often provide activities, including dancing, walking, gentle exercise (see list of schemes at the back of this pack or visit www.leeds.gov.uk) Your local Neighbourhood Network Scheme for Older People runs many activities. To find your local scheme contact Leeds City Council Customer Services: Feel Good Factor 0113 350 4200 Information about walks around Leeds. Tel: 0113 222 4401 Minicom: 0113 222 4410 Website for Neighbourhoods Networks: www.leedsnns.org.uk Extend (movement to music classes: www.extend.org.uk) For the list of Extend classes in Leeds, see Infostore www.olderpeopleleeds.info A little activity each day goes a long way er Be r tte Old The InfoStore is an information website for people aged 50 or over, their carers, relatives and friends, and professionals and contains details of hundreds of services and organisations: www.olderpeopleleeds.org.uk 14/7/09 16:23:08 © NHS Leeds (Leeds Primary Care Trust) July 09 • Design for Health ref: 1643/OPMT Older People and Social Isolation 16 | Preventing Falls (taken from www.helptheaged.org.uk) • Falls are the most frequent type of accident in the over 65s. The effects of even a minor fall can be disastrous for an older person’s physical and mental health. • Injury caused by falling is a leading cause of death among older people over 75, and the risk of falling is three times as likely for older people living in a care home, than for older people living in the community. • About 30% of older people in the community will fall in a year. Fear of falling is a major factor in increasing social isolation amongst older people and will feature in the decision whether or not to leave the house. If an individual is worried about falling and has already suffered a fall and/or has problems with their balance or mobility, they should inform their GP who can arrange a specialist falls assessment. However, there are a number of preventative measures that can be taken to minimise the risk of a fall, and re-build confidence: • Assess the home – are there loose carpets, obstacles, steep stairs? Perhaps some aids and adaptations could be fitting (e.g hand-rails) to make the home safer. • Make sure there is adequate lighting at night, if you get out of bed. • Consider foot-wear – are the slippers that are worn around the house well fitted and appropriate? • Consider getting a Care Ring pendant alarm or other telecare equipment – this could be a lifeline in an emergency. • When planning a route outside, consider whether there are benches or places to rest on the journey. • Consider exercise – Help the Aged research has found that many older people are not aware that balance and strengthening exercises could prevent falls (Help the Aged 2007 (b): 1). • Review medication with a GP – perhaps this is adding to dizziness or losing balance? Not all falls can be prevented, but falling shouldn’t be seen as an inevitable part of getting older. Risk factors that contribute to falls rarely exist in isolation. Care and Repair: 0113 240 6009 (support, advice and modifications to the home, including ‘Housing Options’ service, helping people look at the appropriateness of accommodation) Telecare: 0113 222 4401 Care Ring: 0113 224 3485 Public Health Resource Centre: NHS library that all professionals can become a member of. They stock a number of health and well-being related materials, and they have posters and training equipment for hire. www.leeds.nhs.uk/phrc Tel: 0113 295 3081 | 17 Older People and Social Isolation A leaflet entitled, ‘Stand Tall, Avoid a Fall’ is available. Both Leeds City Council or Leeds Older People’s Forum hold copies. Continence “It’s just that this problem… it isn’t a thing you talk about, is it? I’m a bit… I’m embarrassed, that’s what… you see. I get embarrassed if I get to talk to people about it… because I think it’s, well, it’s not a very nice thing to talk about, is it?” “Incontinence (the accidental or involuntary leakage of urine or faeces) is a major factor increasing social isolation. Although incontinence is not an inevitable part of ageing, the condition is more common in older age and it is estimated that 6 million people are affected by it” (Help the Aged 2007 (a): 2). Some people will not go out, or attend social activities because they are worried about incontinence, or needing to use the toilet where there might be no facilities available. Continence is still a taboo subject, with many people too embarrassed to discuss any problems, which isolates people further. There are several responses: • Suggest a visit from the District Nurse or continence advisory service, to look at some of the problems and try to provide treatments or solutions. • When planning a trip, make sure that you know where any toilet facilities are, and make this information available. • Suggest using the Care and Repair Delivery service for continence pads – a discreet delivery service available throughout Leeds at a reasonable cost. • Look into bathing services. You could try local leisure centres or day centres. Continence Advisory Service 0113 305 5138 (St. Mary’s Hospital, LS12) Confidential advice and support on all aspects of continence care and management, including laundry support. Care and Repair continence delivery service 0113 200 9160 Delivers prescribed continence products, paediatric supplies, children’s nappies from your clinic or any other medical or mobility supplies. Confidential, reliable and a reasonable charge. Moorcare: Bathing Service (NE Leeds) 0113 203 4914 Have a portable bath lift (chargeable service). List of local public toilets Contact your nearest One Stop Centre (see list at the back of this pack). Lifelong learning In our Leeds Older People’s Forum 2007 report, over 94% of survey participants (all over 55) felt that getting involved in a lifelong learning activity was beneficial to their physical and mental health and made them feel less lonely. Learning can keep your brain and body active, get you involved in the local community, inspire you, challenge you and alleviate social isolation. However, there were significant barriers to learning that older people felt, including: Leeds Met University: 0113 812 0000 • Classes too expensive • No classes in their local area • No transport to classes or groups Yorkshire Dance: 0113 243 9867 Although learning can promote social inclusion in a holistic way, it is vital that older people are given the support to access classes and groups that interest them, and this should be taken into consideration when exploring learning opportunities. Many organisations also provide English classes for people whose first language is not English. Improving English might be one way of increasing social inclusion. There are a number of organisations in Leeds which promote lifelong learning for older people. They cater for most interests, including art, literature, languages, computing. Although a day centre might be the first place you might suggest for someone who was isolated, perhaps you could look at classes in their local area as well? You may also want to explore the possibility of getting Direct Payments (see Glossary). Learning is not something that stops when you reach 65. Getting involved in a learning class or group can promote social inclusion in a way that is nonstigmatised and appropriate to many people. Learning to use the e-mail can help keep people in touch with family abroad, whilst learning a language may be a challenge that keeps you interested and positive about life, which has associated health benefits. Heydays: 0113 213 7296 (West Yorkshire Playhouse project for the over 55s) Swarthmore: 0113 243 2210 Workers Educational Association: 0113 245 3304 Park Lane: 0113 216 2182 (Individual Student Support Team) Thomas Danby: 0113 249 4912 Northern College: 01226 776 000 University of the Third Age: 0113 268 7808 Local libraries also provide classes and book groups – contact Enquiry Express at the Library for more information 0113 247 6016. There are also several mobile libraries that may come to your area – contact the mobile library team for details of the nearest mobile stop: 0113 395 2323. The Library ‘At Home’ Service If you are housebound, or unable to get to your local library, you can contact the ‘At Home’ Service. This service is supported by volunteers, who will bring books to the home of an older person, and help them to choose new books. If you are housebound, or cannot get to your local library, the ‘At Home Service’ can deliver books to you – contact 0113 395 2324 for more information. The Leeds Older People’s Forum produced a report about lifelong learning in Leeds. For a copy of the report, or for more information, visit www.opforum.org.uk – and click on ‘news and issues’ The Association of Blind Asians have a selection of Bengali Language books from Calcutta to borrow - for more details, contact 0113 214 4540. Age Concern: 0113 245 8579 Joseph Priestley College: 0113 307 6111 Leeds University: 0113 243 1751 Older People and Social Isolation 18 | Bereavement Bereavement can be a factor that increases social isolation. As we get older, when family or friends die, our social circle might decrease. Grief might affect our inclination to leave the house or to make new friends or to get involved in social activities (Hawton and Simkin 2006: 13). The death of a loved one might come as an immense shock and might produce physical symptoms and it might make you not want to be surrounded by people having fun or living their lives. It might be difficult to contemplate the world still turning when a loved one has died (Hawton and Simkin 2006: 13). Grief counsellors suggest that there are certain symptoms that bereavement might produce, including: • • • • • • • • • • • • Shock Numbness Disbelief Searching (calling the persons name, talking to their photo, dreaming of them) Anguish and pining Physical and emotional stress Anger Sadness Guilt Fear Relief Despair (Hawton and Simkin 2006: 13) All these feelings might compound social isolation and might lead to depression or anxiety. | 19 Older People and Social Isolation It is important to be sensitive to people who are going through the grief process. Some ideas for supporting people might include: • Encourage them to set aside time to grieve, to cry and remember the dead person. • Keep a journal to record thoughts and feelings. • Encourage the person to get enough rest and keep well. Exercise might help you to sleep better. • Acknowledge that birthdays or anniversaries might be difficult, and help the person make plans for those dates. • Acknowledge that after the funeral arrangements have been made, the person might hit a low spot and might need increased support at this time. • If grief feelings do not subside, it might be important to encourage the person to see their GP, particularly if they have ongoing sleep disturbance, loss of energy or suicidal thoughts. (from Hawton and Simkin 2006). There are a number of organisations in Leeds which provide support: Bereavement Forum 0113 225 3975 www.lbforum.org.uk (has a directory of bereavement services in Leeds) Cruse Bereavement Care: 0113 243 4150 Befriending projects What are they? Volunteering A number of voluntary sector organisations in Leeds offer ‘befriending’ schemes. These are usually a volunteer who will visit someone in their own home to chat and ‘befriend’, for an hour or so per week. These services are particularly recommended for people who are housebound, or who do not like, or find it difficult to participate in, group activities. Volunteering can be of significant importance to someone who experiences social isolation, particularly after retirement (Joseph Rowntree Foundation 2005: Online) There are other types of ‘befriending’ services also, including telephone befriending services (where a person is telephoned by a volunteer for a chat, either weekly or monthly). In the main, these services are for people living in the local community, often alone. Some organisations visit people in care homes (although this is not that common at present) – for more information about befriending services in your area, contact your local Neighbourhood Network Scheme or City-wide voluntary organisation (see summary of useful organisations). Some faith organisations may also provide groups and befriending services. For a list of BME organisations (including faith) please see www.opforum.org.uk (under BME Focus Group pages) or see ‘Summary of useful organisations’ for details of Leeds Church Insititute and Active Faith Communities. Contact the Elderly www.contact-the-elderly.org.uk/ Contact the Elderly organises gatherings for frail, elderly people who live alone. One Sunday afternoon a month, volunteer drivers take elderly people on regular visits to hosts’ homes. Groups of between ten and sixteen people visit a different home every month and spend a few hours in the company of friends, old and new. For more information about the nearest scheme to Leeds: 0153 563 3592 Luncheon Clubs There are a number of luncheon clubs in Leeds. Contact your local neighbourhood network scheme or Leeds City Council or see www.olderpeopleleeds.info The benefits of volunteering are: • • • • opportunities to meet people keeping active putting something back into the community a challenge Many of the voluntary sector organisations in Leeds are supported by older volunteers, and often these volunteers have been service users in the past. Suggesting volunteering to someone who is isolated might be a means of assisting them to get involved in their local community and promoting positive inclusion. Volunteer Bureau (Voluntary Action Leeds) 0113 297 7931 Leeds Neighbourhood Network Schemes (see back of the pack for details) WRVS: 0845 601 0071 If you work in an organisation which needs volunteers contact: Volunteer Bureau (Voluntary Action Leeds) 0113 297 7931 Leeds Met Calm – University Student Volunteering 0113 209 8415 Leeds University Student Volunteering 0113 343 1062 Leeds Vinvolved – Learning Partnerships 0113 380 6662 Some suggestions for attracting volunteers: • Advertise widely, including at sheltered housing schemes, or at GP surgeries. • Try to get the newspaper to run a story about your organisation inviting potential volunteers to get in touch. • Contact businesses in your local area to see whether they have staff who would be interested in volunteering or helping at a specific event. • Be aware of what tasks you are asking volunteers to do: find out what the skills of your volunteers are, and work with them to find an activity they will enjoy and they are more likely to return. Older People and Social Isolation 20 | Keeping House Transport To many older people in Leeds, being able to access appropriate transport is a key factor in minimising social isolation. If only minimal public transport is available, getting out and about and maintaining social networks is impractical and costly. To many older people, transport is not just about getting somewhere, but also important for sociability and connection to the community, through the journey. Although some older people do not feel that the current provision of transport meets their needs (Transport and Older People Conference June 2007), it is important to provide adequate information about what is available: Metro: 0113 245 7676 Older and disabled people can now travel free of charge around England. Older people must apply for a pass – contact Metro for more details Leeds City Council Contact Centre can also deal with concessionary travel enquiries: 0113 222 4401 Access Bus: 0113 348 1900 Accessible door-to-door transport for anyone unable to use public transport Windmill Community Transport: 07904 556 857 Have an accessible coach to hire out to community groups FreeCity Bus: 0113 245 7676 Runs every few minutes with stops around the city centre Leeds Alternative Travel: 0113 245 4666 Have mini-buses to loan community groups Shopmobility: Loan powered scooters, manual wheelchairs and electric wheelchairs free of charge, to help people who have limited mobility to go shopping. Please ring the day before your visit to check availability: Leeds City Centre: 0113 246 0125 White Rose Centre: 0113 277 8858 | 21 Older People and Social Isolation Maintaining a clean home and garden is a key element of healthy ageing. Seeing your home or garden deteriorate is more likely to make you feel depressed and not want to maintain social networks, particularly inviting people to your house. An unclean house might also be a risk to physical health, to falling, or become a fire hazard. In 2005, Leeds City Council Adult Social Care launched the Keeping House Programme. Its aim is to create new ways of supporting the development of social enterprises to provide domestic services for older and disabled people. A social enterprise charges for services, but puts any profit back into the business for the benefit of the community and those using the service. (www. keepinghouse.org.uk) Keeping House have compiled a list of many of the domestic service providers in Leeds (private and social enterprises) according to geographical area. This list is regularly updated. The services which are currently available provide cleaning, gardening, shopping and other domestic tasks. For more information about Keeping House and to get a copy of the list of domestic service providers, contact: 0113 222 4401. You can visit the Keeping House website to download the list of service providers. www.keepinghouse.org.uk Handy-Person services See Keeping House (above) Care and Repair: 0113 240 6009 British Legion Poppy Calls: 0113 256 4477 (for those in contact with the Armed Forces) Benefits and debt management Poverty is one of the most significant factors leading to social exclusion and isolation. Leeds has been described as a ‘two-speed’ city and many pensioners find themselves in the poorest group. A recent Help the Aged report identified Hunslet in South Leeds as the 9th worst ward for pensioner poverty in England and Wales, with more than 84% of those over 75 living on income related benefits. Leeds as a whole has 41% of this age group falling into this category. One in five older people are living in poverty (Age Concern, 2006). ‘Older Better: A Strategy to Promote a healthy and active life for older people in Leeds 2006-2011’ (Healthy Leeds 2006). It is increasingly important, as we get older, to know where our money goes (Help the Aged 2006: 4). There can be many demands on money and this is often combined with a lower income. If we are hoping to encourage older people to take a more active and positive role in their community and be less socially isolated, we must also be aware of the financial implications and what is available to help. There are a number of benefits that older people may be eligible for: • Attendance Allowance: For people aged 65 and over who have physical or mental health needs. • Council Tax Benefit: Help towards paying your council tax, whether you rent or own your home, if you are on a low income. • Pension Credit: Income-related benefit for people aged 60 and over. • Housing Benefit: Help paying your rent if you are on a low income. • Winter Fuel Payments: Lump-sum payments paid each winter to people aged 60 and over. Older People may also be entitled to access: • Free or reduced cost NHS dental treatment, glasses and hospital fares. • Budgeting Loan: To help meet large expenses which you have difficulty budgeting for, or if you or your partner are getting pension credit. • Crisis Loan: Is available to anyone who needs help to meet their expenses in an emergency, whether or not they are getting Pension Credit. • Community Care Grant: Non-repayable grant to help people lead independent lives in the community. • AFTAID: Vital Help for Elderly People in Financial Need (0870 803 1950) Grants and financial support to pensioners on a low income. Older People and Social Isolation 22 | For more information about benefits, pensions and allowances, contact the Pension Service, 0845 606 0265. Your Money Matters Programme The Benefit Enquiry Line can also offer general advice: 0800 882 200. The Your Money Matters programme. It provides free, impartial and confidential information and advice on money management. They cover such topics as: Age Concern: 0113 389 3003/4. Provides help with benefits, and can take all necessary details for Pension Credit, Council Tax and Housing Benefit to forward to the Department of Work and Pensions. Neighbourhood Network Schemes: (see Glossary) Some schemes may be able to provide help and advice – check with your local scheme. Citizen’s Advice Bureau: 0113 281 6705 (can do a home visit for housebound older people) Legal Advice and Legal Aid (Community Legal Service Direct): 0845 345 4345 • • • • • • • Opening a bank account Chip and Pin Using cash points (ATM’s) Credit Cards Loans Budgeting Help with Debt If you are working with an older person who needs debt or money management advice, this three-year programme is running for 3 years from 2007. For more information, or to make a referral, contact Angela Cawthra 0113 244 0575. Leeds City Council Benefits Service: 0113 222 4404 Health Through Warmth: 0113 395 7152 Free or subsidised central heating installed for those with health-related difficulties. Turn2us Extensive lists of organisations that provide financial support: www.turn2us.org.uk Leeds Citizen’s Advice Bureau: 0844 477 4788 (10–4pm, Monday - Friday) Free energy saving advice and sources of financial support for improvements. Westminster Buildings, 31 New York Street, Leeds LS2 7DT www.leedscab.org.uk Fuel Savers: 0800 512 012 / 0113 395 7159 www.leeds.gov.uk/fuelsavers | 23 Older People and Social Isolation Black and Minority Ethnic Elders (BME Elders) In Leeds it is estimated that there are 10,500 people aged 60 and over from approximately 12 different Black and Minority Ethnic communities, the majority from Indian, Pakistani, Irish and Caribbean communities (Healthy Leeds 2006: 26 & Mahony 2007). Black and Minority Ethnic elders are not a homogenous community, and they are affected by diverse issues. However, there are certain significant barriers that many older people from Black and Minority Ethnic communities face when accessing services, which is likely to make them feel socially excluded. These barriers include: • • • • Language Inadequate provision of culturally specific services Financial difficulties Lack of training for mainstream staff on specific cultural needs • Racism (Healthy Leeds 2006: 27) Advocacy Support: 0113 235 1877 Culturally sensitive advocacy and advice services in a range of languages. Older Gypsies and Travellers Although the average life expectancy of older people in Leeds is 78.2 years, this is dramatically reduced for the gypsy and traveller population to about 50 years. Gypsy and traveller older people face multiple barriers to health and social care services and are frequently subjected to evictions. There are 1,071 Gypsies and Travellers in Leeds. (Healthy Leeds 2006: 26) GATE (The Gypsy and Traveller Exchange) provide support, information and advice. Contact: 0113 240 2444. All these barriers can result in social exclusion and isolation. There are a range of services, from city-wide to local, and also those provided through faith communities. Below are a selection of organisations: Leeds Black Elders Association: 0113 237 4332 Touchstone: 0113 271 8277 and 216 3143 Provides community mental health services and a neighbourhood service for Sikh elders across the city. Leeds Chinese Women’s Group: 0113 234 9030 Provides services for Chinese elders and families. Leeds Irish Health and Homes: 0113 262 5614 Leeds Jewish Welfare Board: 0113 268 4211 Hamara Centre: 0113 277 3330 Variety of services with a particular focus on BME communities in South Leeds. EMBolden Service, Leeds Ferderated Housing Association: 0113 386 1000 Provides support to the BME community aged 55+ throughout the city. Older People and Social Isolation 24 | “It was like somebody had shut you up in a box and said, ‘look, that’s your place. Stay there. It’s an awful feeling, it really is.” (Thomas Pocklington Trust 2003: 6) Sensory impairment A sensory impairment can increase the risk of social isolation and exclusion (www.rnib.org.uk, www.rnid.org. uk) and can include visual and hearing impairment. • At least one front-line staff member should have basic deaf awareness training. (www.rnid.org.uk) One study found that the significant barriers to social inclusion for visually impaired older people were: The RNIB offer the following advice to make services accessible to visually impaired people: (www.rnib.org.uk) • Confined to the home due to fearfulness of harm or exploitation. • Inability to negotiate the physical environment. • Unavailability of people to accompany them to social settings. • Make things bigger, brighter and bolder. • Use larger tools to help with activities (e.g. a larger paintbrush). • Always use good lighting. • Try using a magnifier for reading. • Use the audio description for TV programmes. • Use brightly coloured adhesive plastic labels (called ‘bump-ons’) to mark the settings on your cooker and microwave oven. • Try the selection of large games and puzzles from RNIB. This lead many people to feel they were ‘disconnected from neighbours and the community’ (UCL 2002: 1). Some people with sensory impairment find it very difficult to undertake new ventures, however small, without some support. Loss of vision means you can’t read signs, or pick up body language, and struggle to access information about services in the first place. Currently, around 2 million people people in the UK have an uncorrectable sight problem, and over 50% of visually impaired older people live alone. However, an RNIB survey said that only few had been offered any training in daily living skills (www.rnib.org.uk). The RNID have found that 66% of deaf and hard of hearing people feel isolated and excluded from social activities (www.rnid.org.uk). However, they provide a list of ways to make your service accessible: • Ask patients how they prefer to communicate and add a note to the person’s records. • Allow more time for appointments. • Have a display board to announce the next appointment. • Provide communication support, such as a sign language interpreter. • Provide helpful equipment, such as an induction loop. • Make sure staff are aware of RNID Typetalk, this service allows communication between textphones and telephones. • Remember to face your patient and use other communication tips. | 25 Older People and Social Isolation Healthcall Optical Services: 0800 220 573 Provide free sight tests and supplies spectacles for people who are housebound and in sheltered, nursing or residential accommodation For an assessment of need for people experiencing loss of sight, please refer to the Rehabilitation officers (Visual Impairment) who can provide training, equipment and support: 0113 222 4401 Leeds Centre for Deaf and Blind People: 0113 243 8328 www.leedsdeafandblind.org.uk A large community centre providing services and equipment Sign Language and Interpreting Service: 0113 246 9990 Qualified interpreters available for deaf and deafblind people in Leeds Shire View Centre: 0113 214 4544 Advice, support and information about sensory impairment Leeds Jewish Care Services: 0113 268 4211 Dedicated Sensory Impairment worker for the Jewish Community Physical and Sensory Impairment’s Network: 0113 297 7920 A network of Voluntary and Community Sector groups Older people in care homes It is often assumed that when an older person lives in residential or nursing care, there is less likelihood that they will be socially isolated. However, although for some people the move into a care home is a positive one, there are an equal number, for whom the move is associated with loss, bringing many of the same feelings as bereavement. These losses can include: • • • • • Loss Loss Loss Loss Loss of of of of of independence health family/partners home community In a 2006 survey in Leeds, over 72% of care homes surveyed in Leeds had residents that they felt were isolated and lonely, despite often being surrounded by people (Chesters, Frankland and Ingold 2006: 1). In general, there are only limited activities within care homes, and few residents form close relationships with other residents (Older Better 2006: 29). This leads to feelings of loneliness and isolation which can often exacerbate depression. The adjacent case study highlights some of the issues that might be faced by older people following a move into a care home. However, it is important to remember that even without specific barriers to communication, residents can still feel lonely and isolated. Contacts: Age Concern Advocacy Service: 0113 245 8579 Advocacy Network (has a directory of Advocacy Services in Leeds): 0113 244 9045 Advocacy Support (for people from Black and Minority Ethnic Communities): 0113 235 1877 Leeds Black Elders Advocacy Scheme: 0113 237 4332 Help the Aged: 020 7278 1114 www.helptheaged.org.uk Leeds CARE Association: 0113 287 7555 Mr Lim Mr Lim (70) came to the UK twenty years ago, with his wife. Mr Lim has Parkinson’s Disease and has variable mobility. At times, he requires a wheel-chair to mobilise. Until recently, his wife was caring for him at their home in Leeds but his needs became such that it was decided that he should move to a care home. However, the only care home that could accommodate his needs was 2 bus rides away from his home, so his wife is only able to visit once a week. Since his move, Mr Lim has felt increasingly depressed and isolated. His anxiety about the move into care has affected him so much that he has reverted back to his native language for much communication, and he finds it very difficult to communicate with staff and other residents, or participate in the activities of the home. Mostly, Mr Lim stays in his room, alone, and he has recently taken most of his meals in his room alone. The care home manager with Mr Lim, decided to contact a local community group catering specifically for Black and Minority Ethnic Elders. They were able to send a ‘befriender’ to meet Mr Lim. Although he initially felt worried, Mr Lim quickly grew to appreciate the weekly visits, particularly the discussions they had about his home land, and the newspapers that the befriender brought in his native language. Soon Mr Lim and the befriender met in the communal areas of the home and some of the other residents became interested in these conversations and began to ask questions. When the befriender brought along a music tape of cultural music, Mr Lim began to talk about himself with the staff and other residents, with the befriender translating. Mr Lim is slowly adapting to the care home and the changes that it brings to his life. Relatives and Residents Association: 020 7359 8148 http://www.relres.org Older People and Social Isolation 26 | “A carer is someone, who, without payment, provides help and support to a partner, child, relative, friend or neighbour, who could not manage without their help. This could be due to age, physical or mental illness, addiction or disability.” (Carers UK www.carersuk.org.uk) Carers “The 2001 census showed that there are over 70,000 carers in Leeds helping to support an adult or child relative, neighbour or friend at home” (Leeds Social Services 2006: 2) Many older people are themselves carers of other older people, or of adult children. For some people, caring can be isolating and many do not know what help and support is available for them. Carers can face guilt, depression, poverty and ill-health, and many do not see themselves as a formal ‘carer’, but just someone caring for a loved one or friend. In order to be able to keep caring, carers need regular breaks and time for themselves, although for some it is difficult to find the time and this leads to increased isolation. There are several organisations in Leeds who provide support for carers, in order for them to continue with their vital role. Social Services can do an assessment of the needs of the carer, to help get the services they need regardless of whether the person who is cared for is using services from Social Services or not. To ask for an assessment, call the Contact Centre on 0113 222 4401. Carers of people using mental health services can also get a Carers Needs Assessment by speaking to the mental health service professional involved with the person they care for. | 27 Older People and Social Isolation Respite and sitting services Moorcare: 0113 268 4211 Czajka Care Services (Respite Service): 0113 274 1900 Crossroads Leeds: 0113 271 6457 Support and general advice for carers Alzheimer’s Society Leeds: 0113 231 1727 Information, advice and support group for carers of people with Dementia/Alzheimer’s, of any age, and Day Centre for people under 65 with early onset dementia. Carers Leeds: 0113 246 8338 Advice, information, financial help, social events, courses, support from other carers. Carers UK • National Helpline: 0808 808 7777 Older Carers Support Service: 0113 272 0377 Support service for people over 65 caring for an adult with learning disabilities or mental health problems. Financial and other advice Carers Leeds: 0113 246 8338 Citizens Advice Bureau: 08701 202 450 & local offices. Leeds City Council Benefits Service: 0113 222 4404 Short breaks and other respite breaks • From Social Services after an Assessment • Family Placement – contact Social Services • Home Based sitters schemes are due to change from 1 September 2009. Please contact Carers Leeds after this date for the details: 0113 246 8338 Gloria and Jim Jim and Gloria have been married for 40 years and have lived in Leeds for 20 years. They do not have any children, but they were close with their nephew in Huddersfield, who they used to enjoy visiting a great deal. Two years ago, Gloria was diagnosed with Alzheimer’s Disease. Although they did not notice many changes initially – Gloria just used to forget the names of things – in the last six months, Jim feels Gloria has deteriorated significantly. Gloria now wakes several times during the night, often getting up and walking around the house. One two occasions, Jim found her trying to open the front door. Jim is now finding that he cannot leave Gloria alone for too long, as she often gets up to look for him and he worries that she will get out of the house and get lost. Gloria now needs assistance with all aspects of personal care, and when Jim tried to get help, Gloria became very distressed and shouted at the support worker, so Jim cancelled all the help that was provided. Jim has noticed that their friends have recently stopped visiting and he thinks this is because they cannot cope seeing the deterioration in Gloria. Jim now finds he has very little time for himself, and while he used to be captain of the local bowls club and he and Gloria used to love going to the cinema, they are now not able to do this. Sometimes Jim feels that the four walls of the house are pressing in on him, and he cannot escape. He feels that he has no one to confide in, and is not sure how much longer he can continue to cope. 1. Who is isolated? 2. What are the key issues for Jim? 3. What would you suggest? Carers Emergency Plan Scheme This scheme aims to give carers peace of mind by enabling them to make a plan, ahead of any emergency, for what would happen if they were called away in an emergency such as their own illhealth or an accident. It is a document called a Carers Emergency Plan, in which the carer writes down what arrangements they have made for someone to take their place in an emergency (the first 24hrs), and this plan is registered with an organisation called Carering, who operate a 24hr Contact Centre (they also provide the community Alarm Scheme). CareRing give the plan a unique reference number, and issue you, the carer, with a card with the reference number and the telephone number which you keep on you. The original document is kept in a secure place. If the plan needs to be activated, the telephone number is rung, the unique Plan reference number given, and Carering activate the plan by calling the contact which has been identified as the replacement carer. If the carer does not have anyone who can step in to replace them, then arrangements can be made to plan for a care agency to take their place. (Leeds Social Services (2006)) CareRing: 0113 224 3485 www.leeds.gov.uk/carering Older People and Social Isolation 28 | Summary of useful organisations and contact details Social services Contact Centre: 0845 125 4113 Neighbourhood Network Schemes (NNS): Voluntary Sector locality or ethnicity based organisations for older people in Leeds. Providing advice, support, social opportunities, exercise and learning opportunities. Each scheme is independent and provides different services. A list of neighbourhood network schemes is in the next section of this resource pack. City-Wide Voluntary Orgs: Voluntary sector organisations working across Leeds. These can be specific to condition (e.g. Alzheimer’s Society, Stroke Association) and can also be part of larger national charities. Providing social opportunities, support, advice. For a full list, see www.opforum.org.uk Leeds Older People’s Forum: A voluntary sector organisation that exists to support and represent voluntary sector organisations working with older people in Leeds. For more information contact 0113 380 4911 or www.opforum.org.uk Volition: A Voluntary Sector organisation that exists to support and represent voluntary sector organisations working with people with mental health difficulties. Contact 0113 274 9585 or www.volition.org.uk Physical and Sensory Impairment Network: A Network of organisations of and for people with a physical or sensory impairment. Contact 0113 297 7942. Learning Disabilities Forum: A voluntary sector organisation that exists to support and represent organisations of and for individuals with learning difficulties. Contact 0113 278 7300 or www.ldforum.org.uk NHS Direct: 0845 46 47 | 29 Older People and Social Isolation Leeds Church Institute: 0113 245 4700 www.leedschurchinstitute.org (a list of churches in Leeds/specific areas) Active Faith Communities: 0845 658 0388 www.activefaiths.org.uk (a list of faith organisations in Leeds) Faith in Elderly People: Affirms the value and gifts of older people and seeks to meet their spiritual needs. [email protected] 0113 269 8480 Statutory Housing Organisations (ALMOS) West North West Homes: 0800 915 1113 www.westnorthwesthomesleeds.org.uk East North East Homes: 0800 915 1600 www.eastnortheasthomesleeds.org.uk Aire Valley Homes: 0800 915 6660 www.avhleeds.org.uk Voluntary Sector Housing Organisations Leeds Federated Housing Association: 0113 386 1000 www.lfha.co.uk Housing 21: 0845 606 6363 www.housing21.co.uk Leeds Housing Concern: 0113 276 0616 www.leedshc.org.uk Anchor Trust: 0845 775 8595 www.anchorhousing.org.uk Connect Housing: 0113 235 0202 www.theridingha.org.uk Leeds Citizens Advice Bureau: 0844 477 4788 or 0870 120 2450 www.leedscab.org.uk Westminster Buildings, 31 New York Street, Leeds LS2 7DT One Stop Centres: Armley One Stop Centre 2 Stocks Hill Armley LS12 1UQ Morley One Stop Centre Morley Town Hall Leeds LS27 9DY Osmondthorpe One Stop Centre 81a Wykebeck Mount Leeds LS9 0JE Dewsbury Road One Stop Centre 190 Dewsbury Road Leeds LS11 6PF City Centre One Stop 2 Great George Street Leeds LS2 8BA Otley One Stop Centre 8 Boroughgate Otley Leeds LS21 3AH Wetherby One Stop Centre 24 Westgate Wetherby LS22 6NL Garforth One Stop Centre 1-5 Main Street Garforth LS25 1DU Older People and Social Isolation 30 | Leeds Neighbourhood Network Schemes For more details of the activities provided, please contact the individual schemes, or visit www.olderpeopleleeds.info This is not an exhaustive list of older people’s voluntary sector organisations in Leeds. For more information, including a list of city-wide voluntary sector groups, please contact Leeds Older People’s Forum or visit our website www.opforum.org.uk East Leeds: Action for Gipton Elderly 5-11 Oak Tree Drive Gipton Leeds LS8 3LJ Tel: 0113 240 9784 Works in LS8 and LS9 Burmantofts Senior Action St Agnes’ Church Hall 25 Shakespeare Close Leeds LS9 7UQ Tel: 0113 248 9191 Works in Burmantofts, Ebor Gardens, Lincoln Green, parts of Harehills North Seacroft Good Neighbours Scheme Kentmere Community Centre Kentmere Avenue Seacroft Leeds LS14 1BW Tel: 0113 232 3662 Works in North Seacroft Richmond Hill Elderly Action Richmond Hill Community Centre Long Close Lane Leeds LS9 8NP Tel: 0113 248 5200 Works in Richmond Hill, Cross Green, East End Park, Saxton Gardens, Osmondthorpe Lane Cross Gates & District Good Neighbours Scheme Station Road Cross Gates Leeds LS15 7JY Tel: 0113 260 6565 www.crossgatesgns.org.uk Works in Cross Gates, Manston, Pendas, Austhorpe, Colton, Whitkirk, Temple Newsam and Halton South Seacroft Friends and Neighbours Scheme The Methodist Church Hall 1081 York Road Seacroft Leeds LS14 6JB Tel: 0113 226 4096 Website: www.ssfn.co.uk Works in South Seacroft The Halton Moor and Osmondthorpe Project for Elders (HOPE) Osmondthorpe One Stop Centre 81a Wykebeck Mount Leeds LS9 0JE Tel: 0113 247 7665 Works in Halton Moor and Osmondthorpe Swarcliffe Good Neighbours Scheme St Gregory’s Centre Stanks Gardens Swarcliffe Leeds LS14 5LS Tel: 0113 232 6910 Works in South Swarcliffe, Stanks and Whinmoor Neighbourhood Elders Team 62c Main Street Garforth Leeds LS25 1AA Tel: 0113 287 4784 Works in Garforth and the surrounding area | 31 Older People and Social Isolation North East: North West: Chapel Allerton Good Neighbours Scheme (WRVS) 1a Gledhow Mansions Roxholme Grove Leeds LS7 4JJ Tel: 0113 262 3619 Covers Chapel Allerton Aireborough Voluntary Services to the Elderly with Disabilities (AVSED) Suffolk Court Silver Lane Yeadon LS19 7JN Tel: 0113 250 1702 Works in LS19, LS20 Community Action for Roundhay Elderly St Edmunds Church Lidgett Park Road Roundhay Leeds LS8 1JN Tel: 0113 268 0406 Works in Roundhay, Oakwood, Moortown (East of Harrogate Road), Brackenwood Leeds Black Elders Association (LBEA) 180 Chapeltown Road Leeds LS7 4HP Tel: 0113 237 4332 Website: www.lbea.co.uk Works in Chapeltown and with African-Caribbean elders across Leeds Meanwood Elders Neighbourhood Action (MENA) Meanwood Community Centre Stainbeck Avenue Leeds LS7 2QU Tel: 0113 230 6545 Works in Meanwood, LS7, LS17, parts of LS6 Moor Allerton Elderly Care (MAECare) 57 Cranmer Bank Leeds LS17 5JD Tel: 0113 266 0371 Website: www.maecare.org.uk Works in Moortown, Alwoodley, Shadwell Wetherby in Support of the Elderly (WISE) One Stop Centre 24 Westgate Wetherby LS22 6NL Tel: 01937 588 994 Website: www.w-ise.org.uk Works in Wetherby and surrounding villages Caring Together in Woodhouse and Little London (CTiWLL) Woodhouse Community Centre 197 Woodhouse Street Leeds LS6 2NY Tel: 0113 243 0298 Fax: 0113 244 3926 Works in LS2, LS6, parts of LS7 Hawksworth Older People’s Support 6 Broadway Hawksworth Wood Leeds LS5 3PR Tel: 0113 228 5552 Fax: 0113 228 5550 Works in Hawksworth Wood Horsforth Live at Home Scheme The Central Methodist Church Town Street Horsforth Leeds LS18 4AH Tel: 0113 259 1511 Fax: 0113 259 1511 Works in Horsforth Supporting the Elderly People (STEP) St Andrews Church Butcher Hill Leeds LS16 5BG Tel: 0113 275 7988 Works in West Park and Upper and Far Headingley Older People’s Action in the Locality Unit 10, Holt Park District Centre Leeds LS16 7SR Tel: 0113 261 9103 Fax: 0113 261 9128 Website: www.opal-project.org.uk Works in LS16 Older People and Social Isolation 32 | Otley Action for Older People Otley Civic Centre Cross Green Otley LS21 1HD Tel: 01943 463 965 Fax: 01943 467 106 Works in Otley and surrounding area Older Active People The Cardigan Centre 145-149 Cardigan Road Leeds LS6 1LJ Tel: 0113 274 9154 www.olderactivepeople.org.uk Works in Burley, Hyde Park, Little Woodhouse, Headingley and parts of Kirkstall South: Belle Isle Elderly Winter Aid Low Grange House 6 – 8 Low Grange Crescent Belle Isle Leeds LS10 3AE Tel: 0113 277 8208 Works in Belle Isle Hamara Healthy Living Centre Tempest Road Beeston Leeds LS11 6RD Tel: 0113 277 3330 Website: www.hamara.org.uk Works in South Leeds with a particular focus on BME communities Holbeck Elderly Aid Oak House Balm Walk Holbeck Leeds LS11 9PG Tel: 0113 245 5553 Website: www.holbeckelderlyaid.org.uk Works in Holbeck Middleton Elderly Aid Oak House Balm Walk Holbeck Leeds LS11 9PG Tel: 0113 272 1050 Works in Middleton | 33 Older People and Social Isolation Morley Elderly Action Wesley House 32 Wesley Street Morley Leeds LS27 9DY Tel: 0113 253 4484 Website: www.morleyelderlyaction.org.uk Works in greater Morley Rothwell and District Live at Home Scheme The Rothwell Baptist Hall Wood Lane Rothwell Leeds LS26 0PG Tel: 0113 288 0887 Works in Thorpe-on-the-Hill, Lofthouse, Robin Hood, Carlton, Rothwell, Oulton, Woodlesford, Methley South Leeds Live at Home Scheme St Andrews Methodist Church Old Lane Beeston Leeds LS11 8AG Tel: 0113 271 6201 Covers Beeston, Hunslet, Cottingley West: Armley Helping Hands Strawberry Lane Community Centre Strawberry Lane Armley Leeds LS12 1SF Tel: 0113 279 9292 Works in Armley, Wortley Bramley Elderly Action 230A Stanningley Road Bramley Leeds LS13 3BA Tel: 0113 236 1644 Works in Bramley Farsley Live at Home Scheme Farsley Parish Church Hall New Street, Farsley Leeds LS28 5DJ Tel: 0113 290 9340 Works in Farsley, Calverly, Rodley and Tyersal Neighbourhood Action for Farnley, New Farnley and Moor Top Farnley Community Centre Cross Lane, Farnley Leeds LS12 5AA Tel: 0113 263 2945 Works in Farnley and surrounding area Leeds Irish Health and Homes Unit 5, Gemini Park Sheepscar Way Leeds LS7 3JB Tel: 0113 262 5614 Website: www.lihh.org.uk Works with Irish elders across Leeds Pudsey Live at Home Scheme St Andrew’s Methodist Church Robin Lane, Pudsey Leeds LS28 7BR Tel: 0113 256 2717 Works in Pudsey Leeds Kashmiri Elders Association Woodsley Community Centre 64 Woodsley Road Leeds LS3 1DU Tel: 0113 244 2684 Works with Kashmiri elders across Leeds Stanningley and Swinnow Live at Home Scheme 117 Norwood Crescent Stanningley Leeds LS28 6NG Tel: 0113 255 8461 Works in Stanningley, Swinnow Sikh Elders Service Touchstone House 2–4 Middleton Crescent Leeds LS11 6JU Tel: 0113 216 3143 City Wide Groups and Schemes: Age Concern Leeds 188A Woodhouse Lane Leeds LS2 9DX Tel: 0113 245 8579 Café, information and advice, educational and leisure activities, hairdressing, insurance services Association of Blind Asians Shire View 72 Headingley Lane Leeds LS6 2DJ Tel: 0113 214 4538 Works with Asian elders with visual impairments Care and Repair Leeds 323 Roundhay Road Leeds LS8 4HT Tel: 0113 240 6009 Website: www.care-repair-leeds.org.uk The Home Improvement Agency for Leeds, helping older people, disabled people and people on low incomes to live in safe, warm, secure, well maintained and adapted homes Leeds Black Elders Association (LBEA) 180 Chapeltown Road Leeds LS7 4HP Tel: 0113 237 4332 Website: www.lbea.co.uk Works in Chapeltown and with African-Caribbean elders across Leeds South Leeds Elderly and Community Group 73 Lodge Lane Leeds LS11 6EP Tel: 0113 277 6404 Website: www.slecg.org.uk Works with Muslim elders, especially Beeston and Holbeck Other Neighbourhood Based Services Hamwattan Elderly Group c/o Montague Burton Resource Centre Banstead Street West Leeds LS8 5RV Tel: 0113 240 8796 Works in North Leeds South Leeds Elderly and Community Group 73 Lodge Lane Leeds LS11 6EP Tel: 0113 277 6404 Works with Muslim elders, especially Beeston and Holbeck West Indian Family Counselling Service and Roscoe Luncheon Club for the Elderly Roscoe Methodist Church Francis Street Leeds LS7 4BY Tel: 0113 262 5131 Works in Chapeltown Older People and Social Isolation 34 | Some useful terms BME Black and Minority Ethnic. Any minority group who have a shared race, nationality or language and culture. This definition includes: • Eastern Europeans • Gypsy Travellers • Irish people • Black African and Black Caribbean people • Asian and East Asian people • People who are mixed race Carer’s Assessment An assessment facilitated by a social worker to look at the needs, wishes and experiences of a carer. Community Matron Care for people with long-term conditions, helping them to stay as well as possible in the community. CPA A framework for providing a programme of care for service users with mental health difficulties. A service user has a ‘care co-ordinator’ who monitors the care and arranges regular reviews of these arrangements. Individual Budget / Self-Directed Support Upfront amount of social care and other funding sources, giving eligible people a clear idea of how much money is there for support, letting people use the money in a way that suits them. For more information visit: www.in-control.org.uk Intermediate Care Refers to services which aim to provide intensive rehabilitation to prevent hospital or residential/nursing care admission or re-admission. Neighbourhood Network Scheme Independent voluntary sector organisations that work within geographical or cultural communities to support older people. Occupational Therapist (O.T.) Provides support and advice on rehabilitation, on equipment for daily living, assessing people at home and in hospital. CPN Community Psychiatric Nurse POPPS: Partnerships for Older People’s Programme Department of Health funded project to test and evaluate innovative approaches that improve preventative health care. In Leeds, this focused on older people’s mental health services. Direct Payments Money given directly to people who are eligible for social care services to enable them to buy the assistance they need from alternative sources to the local authority. Respite Care Any service which is provided in order to give service users and carers a break from their usual care arrangements. This can include services provided in the home and longer breaks away from home. District Nurse Provides skilled nursing treatment, care and support to patients and their carers in their homes. Social Worker Trained and registered with the General Social Care Council to assess and support an individuals social needs. Single Assessment Process (SAP)/Easy Care A means of determining need used by both health and social care professionals. It is a person-held record, consisting of contact, overview and specialist assessments and care plans. The tool that is used in Leeds is Easy Care. | 35 Older People and Social Isolation Bibliography Age Concern (2006) Just Above the Breadline: Living on a low income in later life. Age Concern: London. Age Concern (2007) Older People in the UK: Key Facts and Statistics 2007. Last accessed 29th October 2007. www.ageconcern.org.uk Cattan, M. (2002) Supporting Older People to overcome social isolation and loneliness. Help the Aged: London. Cattan, M., White, M., Bond, J., Learmouth, A. (2005). Preventing Social Isolation and Loneliness among older people: a systematic review of health promotion interventions. Ageing and Society 25. Chesters, S., Frankland, C., Ingold, K (2006) Research into befriending schemes in older people’s care homes in Leeds. Unpublished (contact Leeds Older People’s Forum for more information). Department of Health (2000) Who Cares? Information and Support for the Carers of Confused People. Department of Health: London. Erskine, S (2006) Older People’s Health Needs Assessment. Leeds West PCT. Findlay, R., Cartwright, C. (2002) Social Isolation and Older People: A Literature Review. Online:www. communities.qld.gov.au/seniors/isolation/consultation/ documents/pdf/LiteratureReview. Last accessed: 22nd September 2007. Forbes, A. (1996) Caring for Older People: Loneliness. Catholic Care Agency for Social Concern: London. Healthy Leeds (2006) Older Better: A Strategy to promote a healthy and active life for older people in Leeds 2006 – 2011. Leeds Initiative: Leeds. Hawton and Simkin (2006) Help is at Hand: A resource for people bereaved by suicide and other sudden, traumatic death. Department of Health: London. Help the Aged (2003) Depression and older people: Towards Securing well-being in later life (Summary Briefing). Help the Aged: London. Help the Aged and Barclays (2006) Thinking about money: Budgeting and Managing Debt – Advice for Older People. Help the Aged: London. Help the Aged (2007) (a) Taking Control of Incontinence: Exploring the links with social isolation. Help the Aged: London. Help the Aged (2007) (b) National Falls Awareness Day Fact Sheet. Help the Aged: London. Joseph Rowntree Foundation (2005) Volunteering in Retirement. Online: www.jrf.org.uk/knowledge/findings/ socialpolicy/0115.asp. Last Accessed 05/10/2007. Leeds Social Services (2006) Quick Guide to Services for Carers. Leeds Social Services, Leeds. Mahony, C. (2007) Personal Correspondence. Office of the Deputy Prime Minister (2006) A Sure Start to Later Life: Ending Inequalities for Older People. A Social Exclusion Unit Final Report. Office of the Deputy Prime Minister: London. Thomas Pocklington Trust (2003) Meeting the needs of older people with visual impairment: social care or social exclusion. Occasional Paper, 2003, 2 www. pocklington-trust.org.uk. Last Accessed 29th September 2007. UCL (2002) The Housing, Care and Support Needs of Older People with Visual Impairments Living in a variety of settings: Findings and Recommendations. Sponsored by Thomas Pocklington Trust: London. www.pocklington-trust.org.uk. Last accessed 29th September 2007. Older People and Social Isolation 36 | Notes For more information about this resource pack or the training, contact: Rachel Cooper Leeds Older People’s Forum 60 Upper Basinghall Street Leeds LS1 5HR 0113 380 4911 [email protected] www.opforum.org.uk Design for Health ref: 1606/OPMT • August 2009
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