Personal Record Book Tier 3: Specialist Eating Disorders Service The objectives of your personal record book are: To act as a collaborative record of your care All contacts with professional staff can be recorded in this book to enable you to have a clear understanding of who is who and what your goals are in each area. It is your responsibility to keep this record book up to date and bring to all your appointments. To provide tools for reflective thinking There is a list of appendices included in your record book which; allow you to practise any skills you are learning or have learnt, document your achievements or future goals, manage your appointments and monitor your weight. To function as an source of educational information for yourselves and to share with family/cares This record book provides information on eating disorders for your personal use or to share with family/carers. This includes; the effects of an eating disorder on physical and mental health, useful reading resources, support groups and misconceptions regarding eating disorders. To provide you with a detailed description of the settings, polices and procedures that are applicable to you in Tier 3 The record book provides detailed information regarding the eating disorders setting and also the policies and procedures that may influence your care. To provide you with information on steps in treatment and recovery The record book provides a breakdown of the steps in treatment and recovery. This also includes what you can expect from the service. Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Contents Contents : General Information on Eating Disorders Eating Disorders explained Psychological and physical effects of eating disorders Advice and support What happens in Eating Disorder Services? Introduction to tiers and services Treatment and Recovery First steps Cycle of Change diagram Role of GP after diagnosis What is a Care and Treatment Plan? Who you might meet and their job roles Dietetic Information A more in depth look at how your eating disorders effects bodily functions Blood tests Effects on hormones: women/men Effects of starvation Facts and misconceptions of eating disorders Recovery Testimonial Miscellaneous Contact number of you Tier 3 team Useful reading Sourced information Appendix Page Numbers: 3-4 4-5 5 5-6 6 6 7 8 9 10 11 11 12 12 13-17 18 19 2 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 General Information on Eating Disorders Introduction We all have different eating habits and there are a large number of “eating styles” which can allow us to stay healthy. However, there are some which can be driven by an intense fear of becoming fat and actually damage our health. These are called “eating disorders” and involve eating too much, eating too little and / or using harmful ways to get rid of calories. This information will be helpful if you feel your eating or dieting may be a problem. You may believe that you have anorexia nervosa or bulimia nervosa or you are experiencing concerns from family and friends who worry that you have lost too much weight. What are Eating Disorders? Worries about weight, shape and eating are common and problems can occur in a range of ways. Mostly eating disorders present as anorexia nervosa (AN) or bulimia nervosa (BN). There are also a whole range of other eating disorders that are slightly different, yet as troubling as AN and BN and are often referred to as Atypical i.e different or EDNOS meaning, eating disorder not otherwise stated. These diagnostic descriptions come from the International Classification Diseases, commonly known by your health professional as ICD-10. A lot of people want to be thinner even if they are not overweight in the first place. They often try to lose weight by dieting or skipping meals. For some, worries about weight become an obsession which can result in a serious eating disorder. Eating disorders are very common in women and teenage girls; however, they do occur in men and teenage boys. Eating disorders can affect individuals at any age and from all different cultural backgrounds. Someone with AN worries all the time about being fat even when they are skinny and eat very little. They lose a lot of weight and their periods may become irregular or even stop. They may find they spend huge amounts of time thinking about food, how to restrict it or how to avoid it and constantly worry about the effects eating food will have on them. Someone with BN also worries a lot about weight but they alternate between eating next to nothing and then having to binge or gorge on food. They also may vomit or take laxatives in order to control their weight. 3 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 There are common signs and symptoms that often occur in both AN, BN and EDNOS that often make a diagnosis difficult, but it is important to recognise them so you can identify what the issues are for you as an individual, these are: Weight loss or unusual weight changes. Periods being irregular or stopping. Missing meals, eating very little and avoiding “fattening foods”. Avoiding eating in public, secret eating. Large amount of food disappearing from cupboards. Believing you are fat when underweight. Excessively exercising, often in secret. Becoming preoccupied with food, cooking for other people, calories counting and setting target weights. Going to the toilet or bathroom immediately after meals. Using laxatives and vomiting to control weight or sometimes medications / herbal remedies to lose weight. It is important to know that eating disorders can have a detrimental effect on your physical and psychological health resulting in: Feeling excessively cold. Headaches and dizziness. Changes in hair (sometimes hair loss) and skin. Tiredness and difficulty with everyday normal activities. Damage to health including stunting of growth and damage to internal organs and bones. Loss of periods and risk of infertility. Anxiety and depression. Poor concentration, missing school, college or work. Lack of confidence, withdrawn from family and friends. Low self esteem and self loathing. Dependency or over-involvement with parents, instead of developing independence. People always want to know “why” and “how” this eating disorder has happened. There is no one single reason and generally there are a number of causes / triggers as follows: Worry or stress may lead to comfort eating, this may cause worries about getting fat. Dieting and missing meals leads to craving for food, loss of control and over-eating. Anorexia or bulimia can develop as a complication of more extreme dieting, perhaps triggered by an upsetting event, such as family breakdown, death or separation in the family, bullying at school or work or abuse. Often, anorexia and bulimia may be a way of trying to feel in control if life feels stressful. 4 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 More ordinary events, such as the loss of a friend, a teasing remark, school / college / university / work pressures may also be the trigger in a vulnerable person. Some people are often more at risk of developing an eating disorder than others. They are usually sensitive or anxious individuals who are having difficulties managing some internal conflicts especially when they have low self esteem. They are also often very perfectionist. Seeking Advice and Support for yourself and your family The type of help and treatment can vary from region to region in Wales, but all health professionals work from guidance called “NICE guidelines” (National Institute Clinical Excellence) which recommend best practice and treatment, a downloadable leaflet tells you what treatment you can expect form your GP and other NHS services. www.nice.org.uk. Further support can be obtained from: www.b-eat.co.uk, www.eatingdisordersresearch.com and www.rcpsych.ac.uk. All have useful advice for sufferers, carers and peers, including readable and well researched information about eating disorders. Introduction to the Services in Eating Disorders In 2010 The Welsh Assembly Government committed to funding the development of specialist eating disorder teams in different areas of Wales. These Tier 3 teams sit between Tier 2 Community Mental Health Teams (CMHT’s) and Tier 4 Specialist Inpatient Services. Specialist Eating Disorders Inpatient Unit Specialist ED Team Referrals from CMHT’s Specialist Interventions Gatekeeper for Tier 4 TIER 4 TIER 3 Tier 2 Community Mental Health Teams TIER 2 Screening Assessing Information Joint Working Annual health Checks Counselling TIER 1 PRIMARY CARE (GPs) 5 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 The Tier 3 Specialist Eating Disorder Service for Gwent and South Powys is a small team of specialist clinician’s based in Maindiff Court Hospital, Abergavenny, allowing an accessible proximity to all 5 boroughs in Gwent and across South Powys. The team offers consultation, support and direct joint working to Tier 2 and allied clinicians. It provides individual, group and family interventions and has an explicit ‘Gate Keeping’ role for any patients requiring Tier 4 (Specialist Inpatient Service) and non emergency access to the acute medical bed in Neville Hall Hospital, Abergavenny. The aim of the Tier 3 Specialist Eating Disorders Team is to ensure that service provision for eating disorders is high quality, innovative and equitable across Gwent and South Powys. This will be achieved by working in partnership with Tier 1, Tier 2, mental health and acute medical colleagues, service users and carers and third sector services. Treatment and Recovery Recovery from an eating disorder is never easy, never short, and never painless. The gaining of weight or letting go of unhealthy eating behaviour is a slow, sometimes long struggle full of emotional turmoil. The strength and mental will power an individual needs to break free from an eating disorder is immense and you will often feel lost, alone and vulnerable. Recovery is complex. Not only does the person have to rebuild their body physically they also have to rebuild themselves psychologically. A regular and balanced eating pattern needs to be established and underlying emotional problems need to be talked about, addressed and resolved. Setbacks are common and at times, progress is invisible, but recovery is very achievable. First Step: Acknowledging That Eating is a Problem Perhaps the most difficult step in treatment is for the person to acknowledge that eating is a problem and that they need to “want” to change their life and give up their eating disorder. People with AN highly value their undernourished state and are reluctant to make changes. In contrast, family members are desperate for change, this discrepancy makes treatment of AN extremely challenging and often problematic. Those with BN do not acknowledge there is a problem because they are often ashamed about their eating habits and it is often organised around secrecy. Over the page is a useful diagram (diagram 1), which describes the cycle of change for an individual with an eating disorder. This includes each stage of contemplation, the preparation and actions that individuals carry out when they want to make changes to their lives and also the relapse stage. The relapse stage should not be seen as a failure, but as a time to reflect on negative situations and learn from them to begin the cycle again. 6 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Diagram 1: PRE CONTEMPLATION RELAPSE This stage is normal, it is when an individual stops maintaining their action. This can be momentary or longer. This is not failure, although it may seem like it, the cycle will begin again following this. This stage is where individuals are in denial of a problem or know that there is a problem, but are unwilling to change it. CONTEMPLATION At this stage and individual accepts there is a problem but the thought of change is too scary. CYCLE OF CHANGE MAINTENANCE At this stage the individual is maintaining the action they decided on. ACTION PREPARATION At this stage the individual is making some changes Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 At this stage the individual is motivated to make changes. The Role of GPs after diagnosis of an eating disorder After a diagnosis of an eating disorder has been made, your local GP should continue to monitor you, checking your bloods and physical health. They should also provide your prescriptions and family support of required. Mental Health Services Out-patient Treatments – you will see a Therapist who may be a Community Mental Health Nurse, a Psychiatrist or a Psychologist who will offer regular appointments to help you with your difficulties. A Dietician may as well be appointed to support you with your diet and meal plans. Your weight will also be monitored and any other physical investigations will be agreed. Intensive Treatments in the Community - sometimes difficulties become much more of a problem and in this case you may need to see more than one person or have more than one treatment. These appointments may be more intensive and frequent. In-patient & Day Patient Treatments – if out-patient and intensive out-patient treatment is proving difficult we may recommend day patient and in-patient treatments, this will depend on services within your area and may take the form of an admission onto a medical ward for refeeding, admission to a mental health unit or a specialist eating disorders unit depending on managing the “risk” issues. Therapies – there are a range of therapies that may be available, again dependent on local services and these will be explained to you. Typically therapies include: motivational therapy, cognitive behavioural therapy (CBT), dialectical behaviour therapy (DBT), family therapy, educational therapy as well as dietetic counselling and occupational therapies. All these therapies can be delivered individually, within groups and with carer’s and family members. Working With Families – it is well recognised across Wales the importance of working with families to enable sufferers to overcome their difficulties. The exact way in which this works will depend on you, your family and what services are available. Some services have family therapy, parental / carer counselling and more specific family based group treatments. Compulsory Treatment – sometimes the strength and power of the eating disorder is extreme and impairs the ability to make rational decisions about treatment. It is therefore occasionally necessary when life or health is a risk, to admit a patient to hospital to be treated and compulsorily fed under the Mental Health Act. Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Mental Health Measure 2010: Care and Treatment Plan (CTP) What is the Care and Treatment Plan (CTP)? This has recently replaced the Care Programme Approach (CPA) in Wales. Anyone suffering with an eating disorder that is referred into mental health services will have a Care and Treatment Plan (CTP) and an appointed Care Coordinator. You and your carers will be fully involved in this process, as it is a way of assessing all of your needs and developing a care plan that meets those needs. What is a Care Coordinator? When referred into mental health services you will have a named Care Coordinator within 14 days. They will complete the care plan with you and oversee the care and treatment process. What is a CTP Meeting? The aim of this meeting is to review your care plan to ensure that all of your needs are being met and design your future care plan. It is your choice who attends this meeting and the location and time of meeting. If you feel it is necessary you can request a CTP meeting at any time. What is in my Care Plan? You will receive a copy of your care plan following your CTP meeting. If you are happy with it you will be asked to sign it. It will include details of the care and treatment you are receiving, the individuals involved and your main goals and objectives. If you are not happy with your care plan it can be amended at any time. 9 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Who You Might Meet in an Eating Disorders Service Physiotherapist: Clinical Lead: Care Co-ordinator (CMHT): Will work with you to improve/help restore bodily movement and functioning. Leads the Tier 3 Specialist Eating Disorder Service and will provide you with added support/therapy if necessary. Is responsible for ensuring you are receiving the care you need. This person tends to be a CPN or social worker. Admin Support: Support Workers (CMHT): Provides clerical and administrative support. Work with you to provide general support and engagement in practical and social activities. Dietician: Psychologist: Will work with you to provide ongoing dietary support and advice. Works with you to explore thoughts, feelings and behaviours and will try to reduce distress. Occupational Therapist: Works with you to explore how eating disorder affects everyday functioning. Will use individual goal-directed activities to maximize your independence. Community Psychiatric Nurse (CPN): Social worker: Psychiatrist: Will offer general support to you and your family and will be involved in organising and managing packages of care/support. Will work with you to treat the eating disorder and provide help and support with emotional difficulties. Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Will work with you to provide practical advice, ongoing monitoring and support and create an individual care plan on the basis of your needs. Dietetic Information: A More In-depth Look at how Your Eating Disorder Affects Bodily Functions What is a Healthy Weight for an Adult? There is not just one body weight that is healthy but a range within which your weight should fall. Healthy body weight depends on your height which should be accurately measured. Body mass index (BMI) is a calculation used to describe your weight in relation to your height. Medical research and expert opinion define a healthy BMI as being between 20 and 25. BMI = weight (kg) / (height x height (m)) Remember: It is easy to be confused when you see images in the media of thin people; it is as dangerous to be underweight as it is to be overweight. People have different bone and muscle body composition, so will be healthy at a different place in the range. Exercise increases muscle mass. Menstruation usually restarts when you are within the healthy range. Often you will menstruate at a similar weight as you did before you lost weight. Once your body is used to food and it is safe for you to restore weight, best recovery is achieved by 0.5 kg/ week at home or 0.5 – 1kg / week in hospital. Blood Tests It is important as part of your assessment and treatment plan that you and the team have some idea of how well your body of working. When you starve your body or try to use methods to lose weight these will disrupt your body functioning. One way in which problems can be picked up is to have blood tests which give us a snapshot of how your body is functioning. Electrolytes are chemicals within your body which are kept in careful balance to allow all body functions e.g. nerve messages and muscle contraction. Starvation/binging/vomiting/laxative use and purging cause electrolyte imbalance e.g. too much potassium may be lost which causes muscle weakness, problems with circulation and heart function and seizures. Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Effect on Hormones - Women There are several reasons why your regular menstrual cycle (periods) may be disrupted: malnutrition, hormone imbalance, illness or emotional distress/stress. When you lose a lot of weight and become malnourished your body stops producing the hormone oestrogen. Lack of this important hormone means that your body will not work properly; you will lose your periods (amenorrhoea). This will have serious health consequences on fertility and bone strength (osteoporosis). If this happens during your teenage years this results in stunted growth and delayed puberty. Once a healthy balanced diet and body weight has been achieved most women will restore oestrogen levels and periods will return. For a few women normal menstruation does not occur and they may have fertility problems. Effect on Hormones – Men Starvation causes the body to save energy by stopping hormone production, this disrupts normal bodily function. Men will experience lowered libido, a loss of early morning erections and nocturnal emissions (‘wet dreams’). Once a healthy balanced diet and weight have been achieved normal body functioning will return. The Effects of Starvation The Minnesota experiment done in 1940 looked at the effects of starvation on behaviour. The calorie intake of healthy men was halved over a 6 month period. All the men experienced dramatic physical, psychological and social changes. These continued during the re-feeding stage. Starvation Syndrome Physical changes in muscle strength, athletic performance, feeling light headed or giddy. Tired, pale and cold decreased ability to concentrate or comprehend. Preoccupation with food, thinking, talking, planning and daydreaming. Conflict over how to eat the food, gulping and/or eating very slowly or in a ritualistic fashion. Anxiety, apathy and depression increase. Socially more withdrawn, isolated and loss of sense of humour and increase moodiness and irritability. 12 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 The experiences are observed in people who are starved of calories, they will be common in people with anorexia, bulimia or disordered eating. These physical and mental changes will be reversed when your body is regularly supplied with the energy it needs. Why Eat Regularly? This is the foundation for the changes in eating habits that you need to make. Eating regular meals and snacks gives structure to your intake, fitting into your life and daily routines. Once meals and snacks are in place the composition and portion sizes may be modified. Eating regularly helps steady your blood sugars and thereby prevent spells of feeling light headed and dizzy. In turn this increases metabolism, allowing your body to burn energy (calories) and not store them – just what you will be trying to prevent. What is Regular Eating? / What Helps? Plan in advance what you need to be having – you may have a meal plan from the dietician that you have worked on together. This should be an important part of your daily tasks and may have to take priority over other activities. Aim to eat every 3-4 hours and not in between, remember to take snacks with you if you are out and about. Will I Get Fat? NO initially your body will restore its fluid balance so you may see some changes on the scales. When you are weighed in the first few weeks of recovery, you may notice that you initially gain a lot of weight despite only increasing your calories a little. This can be scary, or even traumatic, but it is entirely normal, and your weight will not continue to increase this way. The initial weight gain is your body’s cells working hard to begin functioning normally again. Your body doesn’t just store fat, it also stores glycogen, which is required for energy, and glycogen requires water to be stored effectively. When you are restricting, purge or take laxatives, you deplete your energy stores and water; part of the recovery process is for your body to replenish these stores that have been depleted. Hence, this initial weight gain is not fat, and does not mean you will continue to gain weight this way. Once your body’s stores are replenished, weight gain slows down, and you will gain small consistent amounts of weight every week. It is very important to not restrict your intake despite how scary this initial weight gain is and it’s important to keep to your meal plan to help your body to continue repairing itself, and discuss any concerns about weight gain you have with your treatment team. Your treatment team can help you deal with and understand better the processes that take place in recovery. 13 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 What About Drinking? Water is essential for the body to work properly, to remove waste and help to regulate temperature in warm weather. Drinking too little and becoming dehydrated can be dangerous for your health effecting muscle performance and urinary tract function. Drinking too much can also be dangerous this can affect electrolyte balance and can make it more difficult to regulate fullness and appetite. I’m Afraid That I Might Binge Fact eating a balanced diet, regularly without too much time between meals and snacks will help to maintain blood glucose levels and turn off your hunger making a binge less likely. In the beginning of recovery, bingeing does sometimes occur as your body gets used to food, your meal plan, and replenishing its stores as explained in the weight gain topic. Bingeing does not last forever and it is important to continue eating as normal, and continue with your meal plan as restricting after a binge, can cause another binge to happen. Remember: If you do binge do not be tempted to restrict, this just leads to low blood glucose levels, an increased appetite and increases the chances of another binge happening. Just get on with your planned meals at the next available place on your menu do not miss anything! Distortion of Hunger and Fullness Sensations Sensations of hunger and fullness are sometimes easy not to notice. Hunger has a lot to do with when your body expects food, not just when you need it. Not having a regular eating pattern or missing meals often means that you sometimes do not get the sensation of being hungry, it does not mean that your body does not need food. It is common for people with disordered eating to confuse the sensation of hunger with thirst; you may subconsciously be drinking to fend off the feelings of hunger. Some queries and concerns ‘’I only eat when I am hungry. To eat when I am not hungry doesn’t feel right’’ ‘’I like the sensation of feeling hungry as it means that I am in control and not greedy’’ 14 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 It is common to have fears about eating more; you may worry about gaining weight too quickly or losing control of your eating/weight. It is very important to establish a regular pattern of eating; your dietician can work with you to look at ways to restore a regular meal plan. Remember: When overcoming an eating problem the sensations of fullness may not feel normal, it may help to consider the following High fibre, low fat foods tend to fill you up. Drinking a lot of fluid around mealtimes may make you feel bloated. If you have been restricting your food intake for a long time you may feel full after small amounts, your stomach is a muscle and needs to be retrained into performing well. Your gut movements may be slowed down, your stomach will take longer to empty which means that you will feel full for longer after a meal. Misconceptions about Laxatives Laxatives help me loose weight….. Fact – fluid is lost after taking laxatives, there is little effect on calories absorbed and thus hardly any impact on real weight loss as they work lower down the bowel when absorption (of calories) has occurred higher up the digestive tract. Because I am constipated I need them to help me go…. Fact – people who restrict their eating do not have enough food in the digestive system and therefore the amount of waste is reduced, the whole digestive process is slowed down. Laxatives can make things worse because they can cause a loss of intestinal muscle tone so that the bowels come to not function properly. But I am so bloated….. People with eating disorders do often feel bloated with pain and wind, by not eating enough the digestive system becomes sluggish the stomach takes longer to empty. Laxatives actually increase swelling, pain and the formation of gas. 15 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Remember: Laxatives disrupt normal bowel function, they can cause electrolyte imbalance, the effect of which can be fatal with few signs that there is anything wrong. After continuing to eat regularly and stopping laxatives, your digestive system will start to function normally and you will not be so bloated or constipated. You will no longer feel that you need them. Exercise Can I Do Too Much of a Good Thing? Yes – exercise is good for you, it strengthens muscles and improves mood. However, exercising every day for hours, is not healthy it can lead to serious problems including permanent damage to joints, hormone imbalance, heart problems and dehydration. What is a Healthy Approach to Exercise? Not feeling guilty or anxious if you can’t exercise. Choosing 30 minutes moderate exercise most days or 30 - 40 minutes more vigorous exercise 3 - 4 times a week. Not exercising if you are hurt or injured and keeping exercise in proportion with other interests. Remember: If you are underweight with a BMI below 19 or not menstruating you should not be exercising. In some cases you may have an individual programme of strengthening exercises from a physiotherapist. It is crucial for your health that you restore weight and exercise may interfere with this goal. If you are not underweight and experience becoming light headed or dizzy you should seek medical advice before exercising. 16 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Facts and Misconceptions about Eating Disorders sourced by: The Centre for Eating Disorders & www.eatingdisordersupport.co.uk Eating Disorders are about food & weight. Eating disorders are symptoms of underlying issues. It will be important to focus on food & weight as part of recovery, but true recovery will also involve exploring what purpose the eating disorder served and why it developed as well as resolving the underlying issues in order to prevent relapse. How can she /he have an eating disorder? They eat with us every day: Someone with an eating disorder may eat or go through the motions of eating with the family, and then purge by vomiting or taking laxatives later. The media are to blame for the prevalence of eating disorders: A recent survey has confirmed that teenage girls get the bulk of health information from the media. These media messages are not a direct cause of eating disorders. Messages that promote thinness as an asset can create unrealistic standards regarding body size & shape. On the other hand, messages that present accurate, realistic helpful information can be a positive influence. The fact is, the media can positively or negatively affect the development of a teenager’s selfesteem & self image. It depends on the message & how it is delivered. People cannot have more than one eating disorder: Many people have more than one eating disorder. It is very common for someone to experience anorexia with bulimic tendencies, or bulimia to experience anorexia symptoms. Compulsive overeaters have sometimes experienced anorexia or bulimia at some point. This suggests that the eating behaviour themselves are merely symptoms, not the problem which needs to be addressed. Only teenage girls suffer from eating disorders: Many eating disorders do begin in the teenage years, but children, older women, men and just about anyone can fall victim to this terrible disorder. Are eating disorders just a phase: Eating disorders are not merely a phase but serious mental disorders. Someone with anorexia might say “I could gain weight if I wanted too! Someone with bulimia might say” I could stop bingeing & purging if I wanted to”. However, people with eating disorders really don’t have a choice. In many cases, if they don’t get help they will have a hard time stopping on their own and it may become permanent disease. Aneurin Bevan and South Powys Tier 3 Eating Disorder Service Eating disorders are a cry for attention: People do not develop eating disorders as a way to seek attention. Rather, eating disorders are coping mechanisms, though faulty in nature. For this reason, it is important to address the role the eating disorder is serving for the individual, rather than writing it off as a cry for attention. Eating disorders are solely a problem with food: All eating disorders involve controlling food & weight as a focus of life. This focus allows a person to block or numb painful feelings & emotions or use food as a way of self comfort. Eating disorders are not a problem with food itself but what restricting food or over eating food can do in terms of blocking out emotions or providing a way of coping with life. Eating disorders are in fact only a symptom of underlying problems. 2013 Recovery testimonial ‘If doctors had told me a year ago that, I’d be where I am today with my recovery from an eating disorder, I wouldn’t have believed them. I didn’t think recovery was achievable and I thought that I didn’t deserve to recover. I read about people who suffered with eating disorders for years, and figured I’d be one of them. I found initial recovery painful, traumatic, and it’s probably one of the most anxiety filled experiences I’ve ever been through. However, now I look back, and realise what I have gained from my recovery, and am truly glad that I chose to recover. I can eat whatever I want, whenever I want, without feeling guilty, and I can take part in social activities that involve food, like Christmas. I hardly ever think about food, and never judge myself by what the weighing scales tell me, in fact, I don’t even weigh myself or want to anymore. Sometimes, life can still be difficult, but life is nowhere near as difficult as it was when I was fully engaged in my eating disorder and that makes my recovery, to me, totally worth it’. Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Miscellaneous Information Contact number for Tier 3 Eating Disorders Service: 01873 735546 Useful Reading on Eating Disorders Overcoming Binge Eating by Dr. Christopher G Fairburn Hunger for Understanding: helping young people to understand and overcome anorexia nervosa by Alison Eivors and Sophie Nesbitt. Help your Teenager Beat an Eating Disorder by James Locke and Daniel Le Grange. Treatment Manual for Anorexia Nervosa, a Family-Based Approach by James Locke. Cognitive Behaviour Therapy and Eating Disorders by Chris Fairburn. Information sourced from: www.rcpsych.ac.uk www.iop.klc.au.uk 19 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Appendix Appendices: 1.Tools to manage me Goals and Motivators Weekly Appointments Groups Attended Relapse Statements and Plan 2.Tools to manage my thoughts Pros and Cons Challenging Negative Thoughts 3.Tools to remember whose who Dietician – weight monitoring chart Occupational Therapist Specialist Clinician 20 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Tools to manage me Appendix 1 GOALS AND MOTIVATORS GOALS e.g. I want to go with my friends to the cinema MOTIVATORS e.g. I can wear my new shoes that I bought and show them off!!! 21 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Tools to manage me Appendix 1 WEEKLY APPOINTMENTS Week Beginning……………….. MONDAY TUESDAY WEDNESDAY THURSDAY FRIDAY 22 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Tools to manage me Appendix 1 GROUPS ATTENDED GROUP REFLECTION 23 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Tools to manage me Appendix 1 RELAPSE STATEMENTS AND PLAN E.g. Relapse does not mean failure___________________________ __ I can try and try again____________________________________ __ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________ RELAPSE PLAN What to do if I notice things slipping back E.g. I will ask for help 24 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Tools to manage me Appendix 1 PROS AND CONS PROS CONS 25 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Tools to manage me Appendix 1 CHALLENGING NEGATIVE THOUGHTS NEGATIVE THOUGHTS POSITIVE THOUGHTS SSS E.g. What’s the point I have tried E.g. Change is hard work but I can do everything!! it!! 26 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Tools to manage me Appendix 1 DIETICIAN Date, Time and Place of appointment Homework/activities Service user reflections 27 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Tools to manage me Appendix 1 OCCUPATIONAL THERAPIST Date, Time and Place of appointment Homework/activities Service user reflections 28 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Tools to manage me Appendix 1 SPECIALIST CLINICIAN Date, Time and Place of appointment Homework/activities Service user reflections 29 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013 Tools to manage me Appendix 1 ……………………………………. Date, Time and Place of appointment Homework/activities Service user reflections 30 Aneurin Bevan and South Powys Tier 3 Eating Disorder Service 2013
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