A Simple Intervention to Explore the
Expansiveness of Hope for Pediatric Palliative
Care Patients & Families
Allie Shukraft, MAT, MSW & Sarah Ness, PhD
Levine Children’s Hospital & Carolinas Hospice & Palliative Care Group
Disclosure
• The presenters have no financial relationships to
disclose.
• One of us is a starving artist and the other is a teacher
who went back to school to become a social worker. If we
had financial relationships we might be on a tropical
island somewhere . . . .
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Objectives
• At the end of this session you will be able to:
– Assess the use of art & metaphor with your patient population.
– Collaborate with patients & family members to further develop
their concept of hope.
– Identify a metaphor that you can utilize in your own practice to
create a simple intervention intended to develop hope.
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Metaphor
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Retrieved from https://www.grammarly.com/blog/metaphor/ on 11/17/2016.
Inspiration: Hope
The phrase the cha gi g
osaic of hope is useful for
describing the shifting of hope
& expectatio s.
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Further Inspiration: Poetry
Complete Poems by Emily Dickinson, 1924
Part One: Life
XXXII
HOPE is the thing with feathers
That perches in the soul,
& sings the tune without the words,
& never stops at all,
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& sweetest in the gale is heard;
& sore must be the storm
That could abash the little bird
That kept so many warm.
I ’ve heard it in the chillest land,
& on the strangest sea;
Yet, never, in extremity,
It asked a crumb of me.
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10
Arts for Life© Materials
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Feather stencils
Pencil
Watercolor paper
Crayons or oil pastels
Watercolor paints & brushes
Scissors
Black cardstock
Glue stick
Metallic markers/sharpies
Hole punch
Pipe cleaner
Arts for Life© Directions
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Pick out a feather stencil & trace the shape onto watercolor paper with a pencil
Trace as many feather shapes as you’d like - Each feather represents a hope.
Use the crayons or oil pastels to trace over all the pencil outlines. Add additional
feather lines & details inside each feather with the crayons/pastels.
Use the watercolor paint to fill the feathers in with colors.
While the paint dries on the feathers, write down some of the many things you
hope for, & what else you might do with these hopes.
When the watercolor paint is dry, cut out the feathers & glue each one down on
the black card stock paper.
Cut each feather out of the black cardstock, leaving a little black showing around
the edges.
Use the metallic markers or silver sharpie to add any last details to the front of
the feathers, & write what you hope for on the back (or the front) of the feather.
Finally, punch a hole in the stem of each feather, & string the feathers on a pipe
cleaner.
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Works Cited
• Clark, EJ. You Have the Right to be Hopeful. National
Coalition for Cancer Survivorship. 2008; 4.
• Cripe LD. Hope Is the Thing With Feathers. JAMA.
2016;315(3):265-266.
• Dickinson, Emily (1891). “Hope” is the thing with feathers.
MA: Harvard University Press.
• Photo credit: I took that at Akron Children’s Hospital!
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