INSTITUTE CONTENT TOOLS Section 4.1: Introduction to Self-Determination INTRODUCTION TO SELF -DETERMINATION Adapted from Jamie Pope and Michael Fagbemi presentation at Texas Deaf-Blind Symposium What is Self-Determination? The term “self-determination” can be described as the capacity of individuals to exercise the degree of control over their lives that they desire in areas that they value and over which they wish to exert personal control. The amount of personal control will vary as the young person gains more knowledge and develops more skills. It does not mean total independence and autonomy. As people in a society, we are all interdependent and it is important to recognize what you need and where to gain the information and resources to move forward toward a desired dream or goal. Self-Determination is a life long process! It will be important for young people to reflect on the definition of self-determination and decide what it means to each of them. It is ok to control some areas of their lives and not others. Below are other ideas of what self-determination means to others. They provide a good starting point for discussions and framing what it means personally. The determination of one’s own fate or course of action without compulsion; free will.” - American Heritage Dictionary (1992) The degree of control the individual possesses or the ability a person has to advocate for oneself. - Professionals in the disability field You are able to make your own decisions and are able to do things on your own without others making decisions for you. - Consumer Self Advocates Power, choice, and, most important, the right to chase our dreams…the chance to direct our lives the way we want to, not the way others expect us to…” – Irving Martin, Self Advocate, Minnesota The attitudes, abilities, and knowledge to set goals for oneself and effectively work towards the achievement of those goals. - Michael Ward, Director of Transition Services Self-determination is believing in yourself, making your own decisions, and being responsible for them. - High School Student, Minnesota What are some advantages of Self-Determination? In order for young people to see the value of self-determination, they need to see why it is important and how it can lead to better outcomes as they journey through the transition process. Open a discussion on their views and tie a link to what they are learning in school, what will be covered during the transition institute and how they will use the information in their daily lives. Some sample advantages include: INSTITUTE CONTENT TOOLS Section 4.1: Introduction to Self-Determination Improved learning Enhanced community participation Increased personal responsibility Higher self-awareness and self-esteem What are some disadvantages of Learned Helplessness? Prevents equality and being seen as young adult Promotes feelings of needing to be protected and taken care of Reinforces powerlessness and passiveness Reinforces “acting the victim” and using disability as an excuse Others do for youth who are deaf-blind what they are capable of doing themselves Left out of communications, discussions and decisions about their lives Pushes family and supporters toward “burn-out” What are the factors involved? In order for young people to exercise self-determination, they will need to explore several factors that will lead toward their ability to exert more control over their futures. The purpose is to provide a beginning dialog and thought process so that the young people can begin to make personal assessments of where they are and what they need to learn. Each of these areas will require practice and supports from a variety of persons and resources. This should serve as an outline or guide: Skills Knowledge Attitudes & Beliefs Environmental Barriers Resources INSTITUTE CONTENT TOOLS Section 4.1: Introduction to Self-Determination Skills Skills are abilities that can be learned through training and practice and the development of strategies. A skill allows you to “do” something or perform a task. Young people should be encouraged to use these skills in opportunities that are within their comfort level for minor things during their daily lives. It can be as simple as learning to do their own laundry or make their own doctor’s appointment or setting up transportation to go to a friend’s house or deciding which elective to take in school. Discussion can include the following topics: Independent living Communication Mobility Self-Advocacy Problem-solving Decision-making Knowledge No one person has all of the answers. It will be important to help the young people to recognize what they do not know and where they can gain information and support. It will be important to help the young people identify key people in their lives who they can turn to for information and advice at home, at school and in the community. Guide them to good online tools. Connect them to mentors and role models so they can ask questions and begin to understand the type of information they will need to know. Some beginning target areas include: Resources & the System related to Transition The general environment Self (self-awareness) Rights & Responsibilities Attitudes & Beliefs Help to build “can-do” attitudes. Be careful not to overwhelm the young adult so that they become fearful of the future. Provide opportunities to develop and practice positive attitudes. During the transition institute, build in activities to help young people to share their gifts and talents. Ask their opinions and provide opportunities for them to provide feedback to each other. Model this behavior and encourage them to see how they can continue some of the following: INSTITUTE CONTENT TOOLS Section 4.1: Introduction to Self-Determination Positive outlook on life Self-confidence / self-advocacy Sense of determination Internal control High self-esteem Flexibility Environmental Barriers Transition is a process and it is not without challenges. Encourage young people to talk about some of the negative things people have said or situations they have experienced. Acknowledge that some things they will have more control over than other things. Discuss how others have dealt with similar situations and discuss alternative strategies. Role play activities are helpful in seeing a wrong and right way of dealing with certain situations. Presentations by Role Models and Mentors can provide valuable ideas on their personal experiences and how they deal with situations. Some possible areas to address include: Communication Mobility Attitudes Cultural differences Accommodations / access Resources It is important to provide suggestions of where to look for more information, who can be support people and which agencies provide services to assist in the transition process. This list is a jumping off point and each young adult should think about who they have in their home schools and communities. As young people develop their action plans, help them to include some of these resources for follow-up. Educators State Deaf-Blind Project Role Models and Mentors INSTITUTE CONTENT TOOLS Section 4.1: Introduction to Self-Determination American Association of Deaf-Blind (AADB), state Deaf-Blind consumer groups Service Providers Vocational Rehabilitation, Center for Independent Living, Orientation & Mobility Support Service Providers (SSPs) Interpreter Referral Agencies Transportation Services Helen Keller National Center Regional Representative Assistive Technology
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