Mistreatment of Women in Childbirth: How widespread is the problem and what can be done? Mary Ellen Stanton Global Health Mini-University March 4, 2016 Mistreatment of women during in health care • How bad is the problem? • What are the manifestations of the problem? • Will we know it when we see it? • Where is it happening? • How pervasive? Just anecdotes? • Is this “simply” a problem of “bad provider behavior”? • Is this a “soft issue”? • What can we do about it? How bad is the problem? In childbirth in health facilities it is significant…and “small” things to an observer may be experienced as humiliation and cruelty How bad is the problem? What are the manifestations of the problem? • • • • Verbal abuse – accusations, threats, blame Physical abuse – slapping, kicking, restraints Sexual abuse – rape Stigma and discrimination – based on age, ethnicity, tribe, religion, socioeconomic status, HiV status • Failure to meet professional standards of care – lack of informed consent, breech of confidentiality, painful examinations, refusal of pain relief, neglect and abandonment • Poor rapport between women and providers – dismissal of concerns, denial of birth companions, detainment in facilities • Health systems conditions and constraints – sharing beds, staff and supply shortages, bribery and extortion Source: Bohren, et al, 2015 WHO The Mistreatment of Women During Child Birth in Health Facilities. PLOS Med, 2015 Will we know mistreatment when we see it? Not necessarily… There are different opinions about the same behavior -- such as the “obstetric slap” Will we know mistreatment when we see it? Will we know mistreatment when we see it? From a blog “…hospital treating human beings as animals, where is the love? The professional ethics? God help us” …. Nkoyo Will we know mistreatment when we see it? From blogs “…hospital treating human beings as animals, where is the love? The professional ethics? God help us” …. Nkoyo “Normalized Disrespect & Abuse” - Behavior women say is D & A, but providers do not - Behavior women consider acceptable, but others do not - Poor treatment or conditions - Systemic problem - All agree is D & A Behavior all agree is D & A - Poor treatment or conditions - Systemic problem - Deemed normal or acceptable Deviation from national standards of good quality of care Deviations from human rights standards Source: Adapted from Freedman and Kruk. The Lancet, 2014. Where is it happening? In childbirth -- everywhere…manifestations are different. • WHO systematic review 2015 – reports from 34 countries • Reports from all continents Source: Bohren et al, PLOS Med, 2015 How pervasive is the problem? Do we have a set of bad anecdotes, but prevalence is low? Prevalence depends upon (at least)… • • • • whether you observe or ask how you ask – personally, mobile phone, etc. whom you ask – women or health care provider when you ask – in hospital before discharge or several months later • where you ask – at the health facility or in the community • how much you ask -- single item or multiple questions, with or without probes How pervasive is the problem? Where studied carefully, disrespect and abuse of women in childbirth in facilities is a “common phenomenon” • In Kenya: Self report on exit survey - 20% any disrespect /abuse - 4% physical abuse - 14% neglect/abandonment • In Tanzania Self report on exit survey - 19% any disrespect /abuse - 3% physical abuse In home 5-10 weeks postpartum - 28% any disrespect /abuse - 5% physical abuse Sources: Abuya et al, PLoS One 2015 (Kenya) Kruk et al, Health Policy and Planning, 2014 (Tanzania) Is this “simply” a problem of “bad provider behavior”? “Wicked problems or wicked people?” Among other things, disrespect and abuse of women in childbirth is affected by….. • Disrespect for and lack of empowerment of the provider • Weakness of the health system, including standards of care and infrastructure Sources: Wicked… : Burns et al, Sociology of Health and Illness, 2012 Provider issues: McConnville forthcoming Health system issues: Bohren et al, PLOS Med, 2015 Disrespect for and lack of empowerment of the provider “It is a struggle to feel like we are part of the health team, given that health service provision is based on economic interests rather than on service provision norms and scientific evidence….In our country …the private sector maternal health services have become a business which misinforms service Isolation users and limits autonomy – a practice that verges on total lack of ethical principles.” Self doubt Powerlessness Source: Adapted from WHO-WRA-ICM forthcoming Importance of health system in respectful maternity care….and respect for health care providers • • • • • • Photo: Jhpiego Standards of care Electricity Running water Clean toilets Bed space Staff Photo: EngenderHealth What can we do about mistreatment? Strategies will depend on type of abuse, context, whether it’s an egregious incident or a systemic issue. We need evidence and we can start work immediately. Evidence of a multi-component intervention in Kenya Interventions Results Facility • Training in respectful care • Quality improvement teams • Caring for carers—site counselors • Monitoring of mistreatment • Mentorship • Maternity open days Decrease • Any abuse from 20% to 13 % • Physical abuse from 4 % to 2% • Privacy violations 7% to 6% NS • Verbal abuse 18% to 11% • Detention 8% to 1% Community • Community workshops • Mediation/alternative dispute resolution • Counseling community members Increase • Abandonment 13% to 17% NS Note: Observations of treatment were made, as well Source: Abuya BMC Pregnancy and Childbirth, 2015 Going forward to eliminate disrespect and abuse of women in childbirth…. 1 • Turn back the “veil of silence” – document and disseminate information • Stop the justification • Recognize mistreatment as a quality of care and a human rights issue • Use the powerful statements: • WHO Statement: The prevention and elimination of disrespect and abuse during facility-based child birth • WHO Framework for Quality of Maternal Newborn Care • Universal Rights of the Childbearing Woman • Pulling Back the Curtain on Disrespect and Abuse policy brief Sources: WHO; Hasting, White Ribbon Alliance/Health Policy Project The Universal Rights of the Childbearing Woman Source: White Ribbon Alliance Source: WHO Prevention and Elimination of Disrespect and Abuse During Childbirth statement. http://www.who.int/reproductivehealth/topics/maternal_perinatal/statement-childbirth/en/ 2 • Listen to women • Use all tools available – policy, health standards, the law (carefully and selectively) • Allow/encourage companion of choice at birth • Encourage stakeholders to own and address the problem 3 • Document/research the interventions to build the evidence base on what works • Champion and inspire health care personnel to change behavioral norms toward respectful maternity care • Beware of “minimal, negligible and negligent interventions” that are not disruptive enough* *Source: Hawe, Social Science and Medicine, 2015. “It is time to be maximally disruptive of the patterns that currently entrench poor health and health inequities.” …Penelope Hawe References Abuya et al. The effect of a multi-component intervention on disrespect and abuse during childbirth in Kenya. 2015. BioMed Central, Bohren et al. The Mistreatment of Women During Childbirth in Health Facilities. PLoS Med, 2015. Burns et al. Wicked problems or wicked people? Reconceptualising institutional abuse. Sociology of Health and Illness, 2012. Freedman and Kruk, Disrespect and abuse of women in childbirth: challenging the global quality and accountability agendas. The Lancet. June 2014. Hawe. Minimal, negligible and negligent interventions. Social Science and Medicine. May, 2015. Kruk et al. Disrespectful and abusive treatment during facility delivery in Tanzania. Health policy and Planning, 2014. Moyer et. al. ‘They treat you like you are not a human being’: Maltreatment during labour and delivery in rural northern Ghana. Midwifery. 2013. Prevention and Elimination of Disrespect and Abuse During Childbirth. WHO. 2014. Respectful Maternity Care: The Universal Rights of Childbearing Women. White Ribbon Alliance, 2011. Resources RIGHTS-BASED REPRODUCTIVE HEALTH Engender Health. Human Rights-Based Family Planning Resources. https://www.engenderhealth.org/pubs/family-planning/human-rights-based-family-planning.php Family Planning 2020. FP2020 Rights and Empowerment Principles for Family Planning. 2014. http://www.familyplanning2020.org/resources/4697 WHO. Ensuring human rights in the provision of contraceptive information and services: guidance and recommendations. 2014. http://apps.who.int/iris/bitstream/10665/102539/1/9789241506748_eng.pdf WHO and UNFPA. Ensuring human rights within contraceptive service delivery: implementation guide. http://apps.who.int/iris/bitstream/10665/158866/1/9789241549103_eng.pdf IPPF. Sexual and reproductive health and rights – the key to gender equality and women’s empowerment. http://www.ippf.org/sites/default/files/2020_gender_equality_report_web.pdf Youth Health and Rights Coalition and Pathfinder International. Promoting the sexual and reproductive rights and health of adolescents and youth: Building on the Global Health Initiative country strategies and supplemental guidance on the women, girls and gender equality principle. http://www.pathfinder.org/publications-tools/pdfs/Promoting-the-sexual-and-reproductive-rights-and-health-of-Adolescents-and-Youth.pdf Resources RESPECTFUL MATERNITY CARE White Ribbon Alliance. Respectful Maternity Care: The Universal Rights of Childbearing Women http://whiteribbonalliance.org/wp-content/uploads/2013/10/Final_RMC_Charter.pdf Maternal and Child Survival Program. Respectful Maternity Care Toolkit https://www.k4health.org/toolkits/rmc WHO. The prevention and elimination of disrespect and abuse during facility-based childbirth: WHO Statement http://apps.who.int/iris/bitstream/10665/134588/1/WHO_RHR_14.23_eng.pdf?ua=1&ua=1 White Ribbon Alliance and Health Policy Project. Pulling Back the Curtain on Disrespect and Abuse http://whiteribbonalliance.org/wp-content/uploads/2015/10/Pulling-back-the-curtain-on-d-and-a.pdf Kruk et al. Disrespectful and abusive treatment during facility delivery in Tanzania. Health Policy and Planning, 2014. http://heapol.oxfordjournals.org/content/early/2014/09/21/heapol.czu079.abstract Abuya et al. The effect of a multi-component intervention on disrespect and abuse during childbirth in Kenya. BioMed Central, 2015. http://www.biomedcentral.com/1471-2393/15/224
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