BraveHearts
supporting children and adults with congenital heart disease
Issue 16, Autumn 2016
Registered charity 1148359
Plus
INSIDE: The parents of Josh Verney - who died at just 8 months, tell his powerful story for
Keeping The Beat. Read tales about adults living with CHD and see all your fundraising pics.
Welcome
to our Autumn edition!
By Sharon Coyle
Chief Executive Officer
Welcome to our last edition of Bravehearts for 2016
– and what a positive year it’s been. We have had the
long-awaited ‘fantastic’ news that the Leeds Congenital
Heart Unit will remain open and is working towards
becoming a Level 1 Surgical Centre, and have seen the
launch of CHSF’s Keeping the Beat appeal.
Finally, I would like to personally thank ALL our supporters,
fundraisers, and volunteers on behalf of our Trustees and
the CHSF team. As most of you know, we are a wholly selffunded charity, and we rely completely on the generous
people of this region to support the work we do.
I would like to draw your attention to this edition’s
family story shared with us by Mr and Mrs Verney.
We feel it is only right that as a charity we represent
all families, living with varying outcomes. Initially
Sharon Coyle, CEO
visit our website
www.chsf.org.uk
email us
[email protected]
call us
0113 3925742
Inside this issue:
2-3
4-5
6-7
8
9
10
11
12-13
14-15
16
2
hearing the story from Mr and Mrs Verney was quite
overwhelmingly powerful, and some of my team found it
quite distressing. Nevertheless we feel their voices should
be heard to reflect the sad reality that Congenital Heart
Disease means to some families.
Welcome, Katie’s Club
Josh’s Journey
Community fundraising
Christmas Cards
Superhero Walk
Kevin Watterson interview
First-time fundraising
Grown Up Tales
Corporate Partnerships
Join the Lottery
Editor’s Note
As I write this, Baby Loss Awareness Week is taking place,
and occurs annually from 9-15 October. It encourages
understanding of the devastating impact of baby loss
on parents and families. It’s currently being debated in
Parliament, with MPs sharing their own stories.
The Verney family, who appear on pages 4-5, have given
us their brave account primarily to support Keeping The
Beat. We hope stories like this help encourage society to
share and discuss the subject of loss more openly. Although
a difficult subject to broach, a more liberated approach
to these matters will help break our national taboo about
death - in particular with regard to baby loss.
Katie’s Club
Here’s a few more of the heart
heroes treated at the Leeds
Congenital Heart Unit recently.
They include Esemai la’rose Staniland who had heart
surgery at 6 days old for a rare heart condition called
Hemi Trunchus. She is now 9 months old and doing well!
If you’ve got a photo you’d like us to consider for a future
issue, send it to [email protected]. Thanks!
UPDATE ON CHSF’S
FUNDRAISING COMMITTEES
We are delighted to welcome the Ilkley and Huddersfield/
Wakefield Fundraising Committees to our team! They
are joining the already existing groups in Harrogate and
Bradford.
We are a friendly bunch, so
please don’t hesitate to
get in touch if you can help!
It is fantastic to hear about some great fundraising already
taking place during the first year of the committees many great ideas, from coffee mornings/afternoons to
quiz nights, eBay sales and car boot sales, to name a few.
The Harrogate Fundraising Committee also put a team
together for our Yorkshire 3 Peaks, and we have been
chosen as Charity of the Year in different schools and
nurseries across the region thanks to the marvellous
efforts of our committees’ members.
If you would like to join one of the existing committees, or
are interested in becoming a member of a new committee
in different parts of our region, please contact Alex Green,
and we will be more than happy to help you.
[email protected]
0113 3925093
Supporting our region – this map shows the area
covered by Children’s Heart Surgery Fund
Freya Ward pictured at 15
months, after her surgery
for Transposition of the
Great Arteries.
as born
e Ross wetralogy
s
o
R
a
li
T
h
Eme
heart
2016 wit
in April t and had open
o
ll
a
st.
of F
in Augu
surgery
nd
Esemai la’rose Stanila
(see opposite)
Molly Hurley (18 months
here) had heart surgery
for Tetralogy of Fallot.
Ava Hebdige (5) had
Mitral Valve Repair in June.
Ruby M
6, was tray Varley aged
Pulmon eated for
Ventricuary Atresia wit
h
lar Septa
l Defect.
3
Josh’s Journey
by Chris and Kirsty Verney
“We had a very rocky 8 months with our
little man: 10 surgical procedures - one
lasting for 13 hours; a stroke resulting in
significant brain damage with unknown
consequences; a compromised airway; a
life-threatening infection; needles into his
shin when there was no other access and
a PICC line which was supposed to be the
answer to all his access problems, which
broke the day after inserting it. These are
some parts of his story.
“Josh was diagnosed antenatally with Hypoplastic Left Heart
Syndrome, a life limiting condition, which effectively meant
he only had half a heart. Without a hefty open-heart surgery
within a few days of birth, he would die, if indeed he would
survive until birth... We started grieving that day for our little
man, unsure of what the future held, changing our hopes and
dreams.
At this point we were introduced to Martin House Children’s
Hospice. We went for our first visit, my little man kicking away
inside me. Once we got past the question of ‘how on earth
did life end up here?’, we loved it. Our 3 year-old daughter
instantly felt at home. We were supported by wonderful
people with time to listen, who knew the right things to say.
The first 5 months of his life were spent in hospital. It was
incredibly hard but we made the most of it. Josh spent
most of his time, when he was able to, attached to me
or my husband in the sling, or having his bum tapped by
the wonderful nurses. We laughed and cried, hoped and
despaired, smiled and had fun.
We eventually got discharged. We had a wonderful but very
stressful few weeks at home which sadly ended with a trip
to PICU. One of the doctors said he thought we had done
amazingly well to keep him alive at home. This all culminated
in a chat with the doctors where they said that no more could
be done for Josh. His heart was failing, and we didn’t have
long left. Hours, days or weeks - they didn’t know. They sent
us to the hospice to be looked after.
It was hard, but alongside the grief we made a conscious,
very deliberate effort to not let it dictate the precious time
we had with Josh physically part of our family. We loved. We
smiled lots. We ate cake. We went on trips (often in the rain)
with feeding bag and syringe driver in tow. We lived our life as
fully as possible. We went home when circumstance allowed,
enjoying such precious time as a family, where we belonged.
We made our wishes known to the hospice doctors as they
became clear to us. We had spent 7 months living out of
suitcases, surrounded by other people. We wanted to be
home as much as possible, and if at all possible, when Josh
died. The team at Martin House Hospice were incredible.
4
Most significantly, in light of the Keeping
The Beat appeal, the team had to move
Josh on ECMO after a cardiac arrest in the
cath lab down the main linking corridor
and in the public lifts from E Floor Jubilee
Wing to PICU on D Floor Clarendon. It
took a huge team, including a number of
consultants, to manoeuvre him at a snail’s
pace through the corridors and up the
lifts. The lifts were small and bumpy and
only a small core team could travel with
him, meaning consultants and surgeons
were running up the stairs to keep up. If
anything had gone wrong, they wouldn’t
know where he was - tiny practicalities
you’d never think of.
He was kept in hospital to be protected
from bugs and viruses, yet he was moved
through public corridors, past A&E at
8pm at night with his chest open – it’s
unthinkable what could have happened.
We knew of the campaign at the time and
could dream of having this hybrid theatre
available for Josh. Ultimately, it probably
wouldn’t have changed the outcome, but
it would have saved a huge amount of
stress, worry, critical time and money.
This hybrid theatre campaign is crucial - a
child on ECMO in such a delicate position
should not have to be moved long
distance across a hospital.”
DONATE TO
KEEPING THE BEAT
online: www.chsf.org.uk/donate
Text BEAT02 £5 to 70070
More info on Keeping The Beat:
www.chsf.org.uk/keeping-the-beat
Continuing Care and Community nurses were drafted in to
support us, realising that there might not be much time left.
The 3 teams worked seamlessly together to support us at
home, and make this happen. Everyone pulled out all the
stops - there wasn’t a day when we didn’t see nurses or speak
to doctors - they were on call for us 24/7, such were Josh’s
needs. Some of them even came out voluntarily because we
needed the support but there was no money to pay for it.
We were amazed, we still are, so very fortunate and so very
thankful.
About a week before Josh died, we managed to get home
again – we had the conversation about this being our window
of opportunity to get home and what to expect if he took a
turn for the worse. Because he was a relatively portable baby,
we managed to cram a lot into that week – trips out to parks,
the woods, the pub, seeing the family, and even a little trip to
the ward to see the doctors and nurses at hospital after his
feeding tube came out. With his feeding bag, oxygen cylinder,
bag of controlled drugs and syringe driver ever present, we
carried on with making the most of life, also enjoying the
occasional lovely nap on the sofa snuggling up with him.
On the Saturday night he deteriorated rapidly. He felt different
when I held him. Soon he started working incredibly hard,
panting, heart rate of 170+, his head was like a furnace. He was
peaceful, but we knew that this was his final stage of heart
failure. We thought he wouldn’t survive for long so we just
held him, all night.
Phone calls to the hospice reassured us we were keeping him
comfortable and gently guided us in how to manage him.
Did we want to come back in? We were always welcome, but
because he was so calm and peaceful there was no panic. We
were also where we wanted to be. Our daughter was asleep in
her bedroom. The idea of getting everyone out the house, with
Josh dying, to drive 40 minutes to the hospice where he could
easily die en route was not an option. He hated the car with a
passion, and it caused significant stress to him at the best of
times. The trauma would have been huge for us all.
Like angels, just as the dawn was breaking, two nurses from
two different teams came to change medicines in his syringe
driver to keep him comfortable. We sat, cuddled and loved our
little man all night, in our wonderful, peaceful bedroom, unsure
how long he could work so hard for. That was our duty, our
total privilege and joy. We didn’t put him down.
Jamie Bentham, Cardiologist
“We would like to
build a state of the art
operating theatre where
we can work in a room
adjacent to our surgical
team allowing us to
bring our collective
experience to the most
difficult of cases.
We know this is how to achieve amazing results
and we know the future is bright with your help.”
Behind the scenes doctors were working out doses,
nurses from the three teams with guidance from L51 were
continually on the phone to each other, supporting each
other in decisions, - each knowing Josh fully - inside out. They
were downstairs in our kitchen scurrying away, leaving us
peaceful, upstairs with our baby. The teamwork was nothing
short of incredible. No need for out of hours GPs who didn’t
know either Josh or us. No need for additional trauma and
difficulty in his last hours. Just total peace. In the morning, he
calmed right down. Because of all the support we received
we had an incredibly peaceful day with him on Sunday, in our
arms, as a family. Amy, his big sister, so happy and content;
having cuddles whilst watching Frozen, and bouncing on the
trampoline, as we all sat outside.
We lay him in Amy’s bed at night, she fell asleep next to him,
cuddling him - precious, precious memories for her to hold in
her heart as she grows up. We then put him in bed in between
us on Sunday night. We fell into a deep peaceful sleep. Again,
the teams worked seamlessly and nurses from the hospice and
Continuing Care came to change his driver in the small hours,
busy behind the scenes, allowing us to remain calm, peaceful
and in love with our beautiful baby.
With a start, I woke up at 04.30 to hear his last breath. And
that was it. The peace was incredible. He had a smile on his
face. He was at peace. No needles. No bright lights. No fluid.
No rush or panic, or being kept away from him. No people we
didn’t know at the most personal of times. No ambulance. Just
the three of us, totally in love and at peace, with Josh’s big
sister sleeping next door.
I can’t explain how peaceful his death and the hours before
and after were. We feel incredibly lucky to have been so
amazingly well supported through this experience and are
so thankful to all those nurses and doctors from the many
different teams who worked together tirelessly, at all hours of
day or night, to enable it to happen in the way it did.”
If this story has affected you and you
want to talk about anything with us or
the Verney family, please contact CHSF
at [email protected].
You can read more about
Keeping The Beat on page 10.
5
Community fundraising
Emma Brook and Vicky
Hargrave organised a
Family Fun Day in Batley
and raised £2,500.
For the last 20 years a team
of friends from Leeds named
‘Billy and his Heroes’ have been
raising money for local charities
by undertaking a relay run from
Pudsey to Blackpool. This year
they raised £1,840 for CHSF!
Amy Crowley’s
daughter Seraphina
suffered from
Ventricular Tachycardia.
Amy went on to shave
her head for CHSF and
got a hair raising £1,023.
Pictured here with
friend Maddie Rhodes.
Alex Killeavy and friends
ran the Leeds 10k in
memory of Amber
Barltrop and raised £615!
Adam Marshall has done two
half marathons and walked the
Yorkshire Three Peaks for CHSF,
and raised £2,060. His son was
born with Tricuspid Atresia.
Thank you very much
to all the Rotarians
of Skipton Craven for
supporting CHSF and
raising £567 at their
BBQ!
6
Sean
Skippen
completed
the York
10K, Great
North Run
& Yorkshire
10 Mile,
and raised
a fantastic
£2,430!
Olivia and Toby
Huggins took part in
Run 4 All to celebrate
10 yrs since her heart
surgery, and raised
£535. Thumbs up!
Gary Duncanson and
his amazing team
cycled from the
Wembley Stadium to
the Stade de France
and raised £4,481.61!
Sally and Shane
Webb ran a Coffee
and Cake Sale
to say thank you
for the care their
daughter Isla
received for a large
VSD. Thank YOU
for the £1,110!
To commemorate the
anniversary of her daughter
Charlotte’s heart surgery
Sarah Hardy organised a
Heart Party and raised £1,047
for CHSF!
Louis Ashby
(right on the
photo), 13,
born with a
heart condition,
finished in 10th
position in the
Leeds Junior
Run, and raised
a staggering
£640.85 for
Children’s Heart
Surgery Fund!
Well done to
you Louis,
and to your
friend Harry
Winterbotham!
Mark Jackson
and friend Gary
Cramby raised
an amazing
£1,212.50 cycling
from LGI to
the Royal Liver
Buildings in
Liverpool! Mark’s
daughter, Katie
(now 11), was
born with CHD
and has been
treated at the
unit. Katie’s on
the left with
sister Emma on
the right.
Guy Mendum ran Tough Mudder to
say a £2,012 thanks for the care his
daughter Robyn received.
Abbie and
Andy Chilton
- CHSF Chair
of Trustees,
raised
£2,112.41
taking part
in the Born
Survivor,
Manchester.
Amy Lax
organised
a Bingo
Night in
Whitby,
and raised
a fabulous
£705.06.
Emma Mallett ran the York
10k in 55.29 minutes, 8
months after undergoing
major heart surgery! And
Emma raised a staggering
£1,028.75 for CHSF! Well
done, and many thanks!
Mohammed’s
nephew, born
with CHD,
inspired him to
do a skydive, and
raise £1,298.75 for
CHSF.
7
Spread some festive cheer with
a CHSF christmas card
All sets of cards come
with envelopes and are
£3.50 for 10
Ordering instructions
Online: Order online at our
shop, at chsf.org.uk/shop
By phone: Please call
the office during normal
working hours on 0113
3925742
In person: You’re welcome
to visit the office, pop
in to see us at B Floor,
Brotherton Wing, LGI!
8
Superhero Walk
The weather may have been challenging, but our supporters were anything but ordinary
at this year’s Superhero Walk at Temple Newsam. Park. We’re thrilled to announce YOU
helped us raise over £9,000 for Children’s Heart Surgery Fund. Here’s just some of our
pictures from the day - thanks for your support, and see you again next year!
A massive thankyou to Barmby Bouncers
who donated characters, costumes
and castles for free. Check them out at:
facebook.com/Barmbybouncers
Events Feedback
Our events are only successful as a result of your support
and participation. Whilst we strive to ensure they appeal
to as many people as possible, we’re always on the lookout
for new ideas and ways to improve our existing schedule.
If you have any comments or thoughts about anything to
do with our charity events, please contact us at events@
chsf.org.uk. Feedback is our key to improvement.
9
ith
w
w
e
i
Interv
n
o
s
r
e
t
t
a
W
n
i
v
Ke
Kevin is pictured clockwise from top left: two
early career shots, speaking at a Christmas
Carol concert to mark his retirement in 2014,
Kevin with a group of his CHD patients at the
same concert, and with patient Joe Barry.
Keeping The Beat is Children’s Heart Surgery Fund’s
campaign to reach £500,000 by 2018 to fund a
revolutionary children’s heart theatre. This hybrid facility
will not only keep us in line with NHS England’s new
standards, but keep the LGI at the forefront of national
cardiac surgery and care.
One person who appreciates the importance of the
theatre is surgeon Kevin Watterson, who retired from
service in 2014 and has been at the heart of the Leeds
Congenital Heart Unit since 1991. To commemorate his
retirement from Chair of the CHSF Board of Trustees,
we asked him what Keeping The Beat means from his
perspective.
You performed thousands of open heart surgeries through
your 23 years working at LGI, you must feel very proud of
your career?
Absolutely, there are lots of my patients all over the place
and quite a lot are now grown up. Your memory is framed
by the first meeting of patient and family, so when you
meet them years later the change is quite remarkable!
What makes the hybrid theatre such an important advance
in the care offered by the Leeds Congenital Heart Unit?
It will provide the means to perform a variety of procedures
in the same place, ranging from open heart surgery to
minimally invasive procedures. It does mean some of the
sickest children will be operated on using state of the art
equipment. It’s extremely important people get behind the
Keeping the Beat campaign, and give our brilliant surgeons
and interventional cardiologists the best facilities possible
to continue the fight against congenital heart disease.
As our former Chair of Trustees, you must be proud of
what CHSF has achieved over the years?
It’s been vital - we wouldn’t have been able to achieve what
we have without their support. It’s a relatively small charity
which punches well above its weight, and that’s thanks to
the team and its supporters. It’s fantastic.
How’s life away from the Unit? We believe you’re learning
Spanish and enjoying being a grandfather?
Yes, my wife and I are very lucky that just as I retired our
daughter gave birth to twins who are extremely amusing.
I’m studying Spanish which I find very satisfying!
“
It’s extremely important people
get behind the Keeping the Beat
campaign... to continue the fight
against congenital heart disease.
”
DONATE TO KEEPING THE BEAT
Online: www.chsf.org.uk/donate
Text: BEAT02 £5 to 70070
www.chsf.org.uk/keeping-the-beat
10
bringing a revolutionary children’s
heart theatre to the region
Help for First-Time Fundraisers
Have you been enthused by the photos of
our fundraisers?
Have you never fundraised before but fancy
giving it a go?
Are you looking for inspiration, advice and
help with sorting out all the technical bits
you imagine no one likes!
If so, we’ve got you covered... Take a minute to look at
the revamped fundraising section of our website:
www.chsf.org.uk/get-involved
You might be in need of some brilliant ideas, or
know exactly what you fancy doing but want the
reassurance you’re doing it right.
There is information that will help and inspire you to
get started.
So if you’re throwing a simple bake-off challenge,
selling cupcakes or giving up chocolate for the month
we’re here to help you maximise the amount you raise
and keep the FUN in fundraising.
Alex Green
Community Fundraiser
[email protected]
0113 3925093
Get Reddy for Wear Red Day
This year’s Wear Red Day will
be as important as ever, with
all proceeds going to Keeping
The Beat, our campaign to raise
£500,000 for a state of the art
hybrid theatre by 2018. Look
out for more information on our
website, social media and mailouts
- we’ve got some exciting musical
endorsements to share with you!
What is it? It’s our flagship fundraiser where people wear red to
show their support for awareness of congenital heart disease.
When? Next year’s event falls on Friday, February 3rd.
How? You can sign up your business or school online and find
out more at chsf.org.uk/events or give us a call on 0113 3925742
for a fundraising pack.
Please note: Don’t get confused with other heart charities who are running
a similar event on the same day, we invented Wear Red Day and are a
completely independent charity. Your support is more crucial than ever!
11
Grown Up Tales
Children’s Heart Surgery Fund also helps fund adults with congenital heart disease. Billy
and Graham wanted to share their positive stories as adults living with the condition we’re so grateful to them for sharing their positivity and getting in touch.
We’re also pleased to help our supporters get on career-wise, as James’s story testifies!
Billy Brand
“I was born on the 11th November 1993, initially presumed
to be a perfectly healthy baby boy. After routine check
ups, I was diagnosed with Tetralogy of Fallot, a congenital
heart disease involving four heart defects.
I had corrective surgery in July 1996 (aged 2 1/2) at what
was then Killingbeck Hospital in Leeds. Looking back, I
can barely remember the surgery itself but my parents
and family have told me that I was quickly back to my
normal self and earned the nickname ‘King-Kong’ after
repeatedly pulling my wires out and running down the
ward corridor just days after my surgery!
Growing up after this - apart from the occasional hospital
check up – I was able to live a pretty normal childhood.
I was a fit and healthy child, enjoying all manner of
sports and activities such as cycling and swimming in my
younger years, and then taking up playing football and
rugby during primary school.
I eventually stopped rugby aged 18 due to the time
commitment when I moved to Newcastle to study Civil &
Structural Engineering at Newcastle University in 2012.
I returned to the LGI for annual check-ups and MRI scans to monitor my condition. It was one
of these MRI scans in early 2016 that confirmed the need for invasive heart surgery to replace
my pulmonary valve (PVR). However the hospital were very helpful and supportive and we
agreed that I would have the surgery the summer after finishing university, before beginning
‘working life’! Even after this news, I stayed positive and persevered with my final few months
studying, and I managed to graduate with a First class Masters Degree.
Writing this, 10 weeks on from my surgery, I feel fabulous and I am back to full fitness. I am
moving down to London in October to begin work as a graduate structural engineer, and look
forward to starting this new chapter in my life!”
If you want to share your grown up tales with us we’d love to publish
more of your experiences, please contact us!
12
James Redlaff
Whilst not a CHD patient himself, we helped James Redlaff gain
valuable work experience at Leeds Teaching Hospitals in the Paediatric
Intensive Care Unit, shadowing head of cardiac surgery Carin Van
Doorn and cardiologist Elspeth Brown.
We’re delighted to say that James now has a place at Trinity College,
University of Cambridge, to study medicine! James got in touch to tell
us how it all came about and to thank us for our help:
“I had been part of the National Citizen Service (NCS) course 2 years ago, and as our social action
project we (Team Young Hearts) raised money for the CHSF. So when I found myself at a dead end
with work experience, I dug out Alex Green’s card and sent her an email, wondering if she could put
me in touch with someone at LGI who might be able to help me.
Shadowing Elspeth in the PICU and Carin in theatre gave me a remarkable, realistic insight into the
care and compassion when treating young patients and their families and the precision and inspiring
dedication during surgery, operating for up to 8 hours continuously!
In the later years of my course I hope to find an area of medicine that captivates me like no other,
whether it be in practice or research, and make the most of all the fantastic opportunities that
Cambridge will provide!”
Graham Foster
“I am now 52 but was diagnosed
with a Coarctation of the Aorta
and a leaking aortic valve as a
child. I was in Killingbeck Heart
Hospital Children’s Ward (Ward
7 if I remember), many times in
the early 70s.
I eventually had open heart
surgery in 1976 when I was 11 to
repair the narrowing in the aorta
(see newspaper article on the
right from the Yorkshire Evening
Post in 1976).
Thankfully heart surgery has
come a long way over the last
40 years and I consider myself
lucky as I am in good health and
still receive checkups at the LGI.
But I do know some children in
the hospital beds next to me
were not as lucky and it is still
something that I try never to
forget.
If you know of anyone having
to undergo surgery for a
Coarctation of the Aorta I will
be more than happy to reassure
you, as I have gone on to lead a
normal life.”
13
Corporate Partnerships
We want to develop
relationships with
more businesses in
Yorkshire, and with
YOUR help, we can
make this happen.
We’d love you to speak
to your employer
about the possibility of
supporting CHSF - if
you can help identify
the right person to
speak to at your
company then we
can come along and
meet them at your
workplace to discuss
ways of working
together.
The more companies
we can work with, the
closer we can get to
our Keeping the Beat
target and to making
the children’s heart
theatre a reality.
Here are 3 top reasons for your employer or business to support our charity:
• Positive PR - your company can reap the benefits of good news stories about
your involvement with CHSF and your support of our current campaign
• Team building - teams working together to fundraise or volunteer will develop
key business and personal skills, see Wear Red Day on page 11
• Employee retention - people feel proud to work for a business that supports
the local community which can lead to increased loyalty
So, it’s over to you - and we look forward to you getting in touch with us!
A deliciously different partnership
We were delighted to be chosen as the Charity of the
Month for a fab Leeds restaurant, Ambiente Tapas. During
August the lovely people there added an optional £1 to
the bill for each table to donate to CHSF.
We love this novel approach to charity partnerships and it
seems their customers do too, as we were lucky enough
to receive nearly £1,500 at the end of the month!
14
It’s been a great year!
So much has happened in 2016 – we’ve grown our corporate support from a small
number of partners to over twenty companies working with us on a regular basis, plus
many others supporting us through various events.
We celebrated a special anniversary with the wonderful TD Direct Investing who have
been our loyal partners for a whopping ten years!
We were delighted that Morrish
solicitors extended our partnership
for a further year, and it’s been
great to work in partnership with
restaurants who are supporting us
through adding £1 to the bill.
We’ve had companies jump out of
planes for us, be pelted with rainbow
colours on a 5K run, take on the
toughest of assault courses and
physical challenges for us. We’ve also
had teams come and decorate the
children’s heart ward at key events
throughout the year.
All our supporters have something in
common – they all do their absolute
best to support CHSF and we are
HUGELY grateful to each and every
person who has helped us.
A tasty way to make a difference
So, you’re at work, you get hungry mid-morning and you just fancy a
tasty snack – know the feeling? Well we have the answer – delicious
flapjacks, made in Leeds, AND you can support CHSF at the same time!
The lovely people at Snack Support will drop a box off at your office, you
and your colleagues enjoy the tasty snacks, and when it needs refilling
Snack Support will come and restock for you. Simple!
If you’d like one in your office just contact Ellie at CHSF:
[email protected]
Feel-good festive fundraising
As the weeks roll on and the end of 2016 draws ever nearer, now is a great time to be
thinking about how you and your colleagues could support CHSF this Christmas.
Christmas provides loads of opportunities to fundraise at work - this could be through
selling mince pies to colleagues, putting on a team night out or sending ecards and
donating the money you’ve saved to CHSF. If you’d like some Christmassy ideas and
fundraising materials then get in touch with us and we’ll be happy to help.
For all corporate enquiries:
Ellie Brown
email: [email protected] tel: 0113 3923179
Ben Andrews
email: [email protected]
tel: 0113 3928516
15
Mud, mud, glorious mud
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Your chan
to wi
LOTTERY
£100 £1
EVERY
FRIDAY
For just
a week!
sign u
p
on our
websit
ea
t
www.c
hsf.org
.
uk/lot
tery
Support hearts for life and WIN!
Charity number 1148359. Registered company 8152970
Children’s Heart Surgery Fund
Room 003, B Floor, Brotherton Wing,
Leeds General Infirmary, Leeds, LS1 3EX
E: [email protected]
T: 0113 392 5742