2014 8–10 July | Waipuna Hotel and Conference Centre | Auckland Research aspiration, inspiration, innovation PROGRAMME Hui Whakapiripiri Ma te huruhuru ka rere te manu | Sponsors The HRC and the HRC Māori Health Committee would like to thank and acknowledge all of our sponsors, partners and supporters. Without your support, whether it be financial, provision of resources, or in time, this Hui would not have been possible. Ngā mihi nui ki a koutou katoa For more than a century, the University of Otago has valued its strong links with Māoridom and is committed to continuing to contribute to iwi aspirations and Māori development. Today the University of Otago attracts tauira Māori (Māori students) from throughout the country and across all disciplines. Since 2005, Whakauae Research for Māori Health and Development has been assisting Māori to reach their potential by sustainably delivering Māori research founded on academic and research excellence and mātauranga Māori. Whakauae focuses primarily on Māori public health research, health promotion evaluation, primary care research, health services and health policy research. Whakauae have strong community linkages with whānau, hapū and iwi, and also partner with academic institutions and health service providers in the development and delivery of research. PHARMAC is the Pharmaceutical Management Agency of New Zealand. They are part of the New Zealand medicines system working to improve New Zealanders’ access to, and optimal use of, medicines. Te Rau Matatini Ltd. is helping to build a strong Māori workforce across the Māori health and disability sectors. Established in 2002, Te Rau Matatini coordinate a range of national programmes that contribute to health, Māori mental health, primary health and public health workforce priorities. Te Rau Matatini provides a strategic focus for Māori workforce training, education and capability building solutions for the advancement of indigenous health and wellbeing. Photograph Source: Maori Chief photograph - George Valentine circa 1880 Canoe image - iStockphoto.com Young boy - Mr Weston Pugh (Ngāpuhi, Ngāti Kahungunu) Design and production - MindWorks Creative Tihei Mauriora | Welcome Message from the HRC Māori Health Committee Chair Pro-Vice Chancellor Māori, The University of Waikato Professor Linda Tuhiwai Smith, CNZM Hui Whakapiripiri 2014 is purposely set to focus on positivity. In this current climate where negativity is constantly highlighted through different mechanisms such as media, and politics, we need to celebrate our gains no matter how small they may seem. We need to know that our battles, and the battles of those who fought before us, are considered, recognised and valued. Hui Whakapiripiri is a place to celebrate who we are, take stock of our steps, big and small, come together, share, refill and renew our tanks, ready to take on further challenges that will leave an imprint for future generations. Hui Whakapiripiri 2014 July 8 - 10 3 Kōrero Wānanga | About the Hui Whakapapa| Background In 1993 Hui Rangahau Hauora provided those involved in Māori health research with an opportunity to collectively discuss and share information relating to Māori health research. Hui Rangahau Hauora identified the need for such a forum where information could be shared, where key issues could be brought to the fore, and the direction of Māori health research discussed. After 17 years the achievements of Māori within health research have been numerous and significant steps have been taken, yet the need for this forum still exists. Three years after Hui Rangahau Hauora the call for another hui to discuss the strategic direction of Māori health research was taken up by Te Rōpu Rangahau Hauora a Eru Pōmare at Otago University’s Wellington School of Medicine. This inaugural Hui Whakapiripiri was held at Hongoeka Marae, Plimmerton in February 1996. The HRC’s involvement in Māori health research hui came in 1997, when it hosted Hui Whakatipu in Auckland. Although this hui was smaller, it raised similar issues as previous hui. In 2001 the HRC hosted the second Hui Whakapiripiri, this time at Tama Te Kapua Marae, Ohinemutu, Rotorua. For the first time the HRC was exposed to the Māori research community and the feedback received would eventually culminate in the release of the HRC’s Strategic Plan for Māori Health Research 2004–2008. Te Waipounamu hosted the next Hui Whakapiripiri in 2005. Entitled Matiro Whakamua ki te Oranga o te Māori, this Hui Whakapiripiri had the theme of looking to the future for Māori wellness. A year later Hui Whakapiripiri was held in Wellington at Te Papa Tongarewa. The HRC was supported by Victoria University of Wellington’s Health Services Research Centre and School of Māori Studies in hosting this event. In March 2009, Hui Whakapiripiri took place in Auckland. The theme in 2009 was Kanohi ki te kanohi – knowledge connections through traditional and contemporary means. Hui Whakapiripiri 2010 was held in Rotorua under the theme Hangaia to whare kōrero mā ngā pou rangahau e tu, and promoted collaboration, understanding and learning not only among the range of participants at Hui Whakapiripiri but also the broader health and research sectors, and Māori communities interested in research. In July 2012, Hui Whakapiripiri was held in Auckland. The theme was Whakamahia ngā pou mātauranga hei whakaongaonga te hauora Māori: Apply the pillars of understanding to stimulate health gains. This theme progressed the link between research, policy and practice extended from the six goals encapsulated in the Ngā Pou Rangahau: The Strategic Plan for Māori Health Research 2010-2015. Hui Whakapiripiri is a significant event on the health research calendar for Māori, and everyone involved in health research in New Zealand. Since 1993, hui held to discuss issues in Māori health research have given Māori a forum to present their findings, voice their concerns, and forge relationships that will outlast any research project. These hui have always been characterised by innovative health research, lively debate and a commitment to improving health outcomes for Māori. Hui Whakapiripiri is a significant event on the health research calendar for Māori, and everyone involved in health research in New Zealand. 4 July 8 - 10 Hui Whakapiripiri 2014 Te Pou Here | Theme This overarching theme extends from the six goals encapsulated throughout Ngā Pou Rangahau: The Strategic Plan for Māori Health Research 2010–2015. The Strategy content arose out of consultation with Māori communities, providers, researchers and policy makers. The theme of Hui Whakapiripiri 2014 is: Research aspiration, inspiration, innovation Ma te ara auaha he kauanuanu te oranga a te tangata Hui Whakapiripiri 2012 had a focus on Goal 3 – Translating research into Māori health gains. Continuing this theme, this year’s streams will be made up from all six pou found within the Māori health research strategy. While negative health statistics continue to dominate the headlines, we know that Māori health researchers are undertaking excellent work to improve Māori health outcomes. Hui 2014 will have a particular focus on positive approaches and successful outcomes. The HRC’s Māori Health Research Committee is keen to hear about research that focuses on community benefits, celebrates current successes, and identifies future potential. We would especially like to encourage participation at this year’s Hui by those who are new to research, including community and iwi groups, providers, and students. – Mr Beau Haereroa (Ngāti Porou, Te Aowera) åori aM uor fect a h f u aha that a ang s gå r cision n i åor e de ga M r th h ikan ga ove esearc t å e ng tiratan ealth r m a a h g i ng rata ng ran Måor i gati ran xercis e t E Må ahi e ar sion is ur M O To c our onduc t live s fo Måori thro r the b health rese ugh etter ar a the exp nd to b ch tha t ress r ion oaden produ c of r ang and de es kno atir w e atan pen M ledge ga a å t nd ori hea hat cha måt aur lth rese nges ang arch a Ou r Vi sion GOAL 1 GOAL 2 GOAL 3 GOAL 4 GOAL 5 GOAL 6 Transforming Måori health research knowledge and practice Enhancing the application of Måori methodologies to health research Translating research into Måori health gains Promoting Måori ethics processes and good practice Extending the Måori health research workforce and promoting a culture of research Strengthening the value of the HRC to respond to the needs of Måori for the benefit of New Zealand Te Heke Matua | Hui Host The HRC is the Government’s principal funding and investment agency for health research, responsible for investing Government funds allocated for health research. The HRC’s mission is benefiting New Zealand through health research. Māori health is one of the Government’s health gain priority areas, and Māori health research development is an important priority to address the disparities in health outcomes. The HRC is committed to ensuring hui opportunities occur for joint planning and whakawhānautanga, by, with, and for the Māori health research community – hence our continued role in hosting and organising Hui Whakapiripiri. Hui Whakapiripiri 2014 July 8 - 10 5 The hrc Māori Health Committee (mhc) is a statutory committee of the HRC responsible for advising the HRC Board on issues pertaining to Māori, assessment and distribution of funds allocated for Māori health research and career development. Mhc members also chair various assessing meetings and are responsible for convening Hui Whakapiripiri, the HRC’s biennial Māori health research conference. Te Puna Matatau | The HRC Māori Health Committee Members Mr Beau Haereroa Professor Linda Tuhiwai Smith, CNZM Ngāti Porou, Te Aowera HRC Kaumātua Ngāti Awa, Ngāti Porou Pro Vice-Chancellor Māori – The University of Waikato Mr Beau Haereroa brings a wealth of knowledge and experience to his role as the HRC’s Kaumātua. Matua Beau is renowned for his work as cultural advisor across the broad area of Māori health. He is currently associated with Te Rūnanga o Kirikiriroa but has worked in the areas of mental health, research and alongside the Hamilton mayor. He also has developed different frameworks and processes that have been implemented into Australian prisons. Mr Haereroa has been instrumental with previous Hui Whakapiripiri in addition to the HRC’s Pacific Fono, HRC Māori Health Research Writing Workshops, and the Māori Health Research Strategy launch. 6 July 8 - 10 Hui Whakapiripiri 2014 Linda Tuhiwai Smith is Professor of Education and Māori Development, Pro-Vice Chancellor Māori, and Dean of the School of Māori and Pacific Development at the University of Waikato. In 2013 she was awarded a Companion of the New Zealand Order of Merit for her services to Māori and education. She is a member of the HRC Board, Chair of the HRC Māori Health Committee, a member of the Marsden Fund Council and Convener of the Social Sciences Assessment Panel, and a member on the Council of the Royal Society of New Zealand. Professor Smith was a founding Joint Director of New Zealand’s Māori Centre of Research Excellence from 2002–2007. She is a former President of the New Zealand Association for Research in Education and most recently served as a member of the Constitutional Advisory Panel. Professor Smith has worked in the field of Māori education and health for many years as an educator and researcher and is well known for her work in kaupapa Māori research. Her book ‘Decolonising Methodologies Research and Indigenous Peoples’ has been an international best seller in the indigenous world since its publication in 1998. Dr Matire Harwood MBChB, PhD Ngāpuhi Senior Lecturer, Director of Tōmaiora – Te Kupenga Hauora Māori – The University of Auckland Dr Matire Harwood joined the HRC Māori Health Committee in February 2009 and was appointed to the HRC Board later in 2009. A graduate of the Auckland Medical School (MBChB) and University of Otago (PhD in Medicine), Matire is Senior Lecturer and Director of Tōmaiora Research Group at Te Kupenga Hauora Māori, the University of Auckland. As a primary care clinician, Matire’s research focuses on monitoring and improving health services for Māori, particularly in relation to long-term conditions (such as stroke and lung cancer) and kaupapa Māori clinical governance. She is mum to Te Rangiura and Waimarie. Dr Amohia Boulton Ngāti Ranginui, Ngai te Rangi, Ngāti Pukenga Associate Director – Whakauae Research for Māori Health and Development Dr Amohia Boulton is the Associate Director at Whakauae Research for Māori Health and Development, an iwi research centre in Whanganui. Dr Boulton’s career has spanned both public policy and academia, including roles as a data analyst at the Ministry of Education, policy analyst and senior analyst at Te Puni Kōkiri, and Private Secretary (Māori Affairs) for Hon. Parekura Horomia. Trained as a health services researcher, Dr Boulton’s research interests are in the fields of Māori health, particularly leadership and governance, service-level evaluation, and the interface between health policy and service implementation, interests which have led to research and evaluation projects in the fields of mental health, primary health care, public health and communitybased health promotion. Dr Boulton’s HRC projects include a study investigating the health service arrangements that best support rongoā Māori (traditional Māori healing) in a contemporary setting, and supervising a postdoctoral student who is exploring Māori views on rongoā Māori and primary health care. Dr Boulton is a Visiting Research Fellow at the Health Services Research Centre, School of Government, Victoria University of Wellington; an Adjunct Research Associate at the Graduate School of Nursing, Midwifery and Health, Victoria University of Wellington; on the Executive of the Health Services Research Association of Australia and New Zealand; and a member of the New Zealand Evaluation Reference Group. She lives in Marton in the Rangitikei with her partner and assorted (non-edible) animals. Dr Kahu McClintock Tainui, Ngāti Mutunga, Ngāti Porou Research Manager – Te Rau Matatini Dr Kahu McClintock was invited to be a member of the HRC Māori Health Committee in July 2008. She graduated with her Doctorate of Philosophy (Psychiatry) PhD thesis at the University of Auckland, which was titled ‘Te Tomokanga, Acceptable Child and Adolescent Mental Health Services (CAMHS) for Māori in Aotearoa’. She is a past recipient of a HRC Māori Career Development Award, which supported her PhD research activities, and a HRC postdoctoral recipient. In her spare time, Dr McClintock is a keen swimmer, stepping up to the challenge and completing her first Iron Māori in 2011. Dr McClintock trained as a psychiatric nurse in the 1970s and the last clinical position she held was in the Kaupapa Māori Tamariki Mokopuna Service of Te Puna Hauora, Tauranga Hospital. She is also a qualified primary school teacher and has vast experience in special education and Kaupapa Māori education. More recently Dr McClintock has worked as a researcher with Te Wānanga o Aotearoa, Te Rūnanga o Kirikiriroa and is currently employed by Te Rau Matatini, the national Māori health workforce centre. Dr McClintock currently leads the research component of Waka Hourua Māori and Pasifika Suicide Prevention Fund for Te Rau Matatini. Dr Suzanne Pitama Ngāti Kahungunu Associate Dean Māori and Director, Māori Indigenous Health Institute – University of Otago, Christchurch Dr Suzanne Pitama is a registered psychologist and has been involved in Māori health research for over 18 years. She is a keen advocate for Kaupapa Māori-based methodologies and has interests in child mental health, Māori access to quality health services and indigenous health curriculum development. Dr Pitama’s PhD examined the place of an indigenous health within a medical curriculum. Dr Pitama is completing an HRC funded project that is focusing on the prevalence of cardiovascular disease in Māori communities (five-year follow up study) and is a named investigator on the ICIHRP project ‘Educating for Equity’. Associate Professor Helen Moewaka Barnes Ngāpuhi, Ngāti Wai Co-Director SHORE and Whariki Research Group – Massey University, Auckland Associate Professor Helen Moewaka Barnes is a multidisciplinary Māori social scientist, with expertise in quantitative and qualitative methods and evaluation. She is the Co-Director of Whariki, a Māori research group, which is part of the SHORE and Whariki Research Centre at Massey University. She has particular expertise in the fields of Māori health, Māori methods and methodologies, research ethics and tikanga, community engagement and Māori research capacity building. Associate Professor Moewaka Barnes’ research areas currently include developing and growing Māori research capacity and use; developing methods and methodologies within Māori paradigms; privilege and racism; and developing theoretical Hui Whakapiripiri 2014 July 8 - 10 7 concepts and research and restorative action around the health of people and the health of land/environments. She is a founding and current executive member of the Māori Association of Social Scientists and has sat on numerous committees, including HRC assessing committees and the current Steering Committee for the HRC/Ministry of Health Queen Elizabeth II Jubilee Research Grant – Health Knowledge to Action. Mr Paul White Te Rarawa Director – Toreatai Paul White has a 25-year background in Māori development and wide experience in the public service. He comes from the Ngai Tupoto hapū in Motukaraka, Hokianga, which is part of Te Rarawa iwi, and has served on a variety of trusts, incorporations, and governance boards. He is currently a self-employed management and development consultant and lives in Rawene in the Hokianga. Previously, Mr White was the Chief Executive of Ngāi Tahu Development Corporation, a Regional Director for Te Puni Kokiri in Tai Tokerau, and Branch Manager for the Housing Corporation in Northland. Mr White is a qualified architect and has a Masters in Business Studies. He has served as a board member on Housing NZ Ltd, CHRANZ, Health Sponsorship Council, FITEC and Canterbury District Health Board. He is also a director on the Top Energy Board; the Chairman of Te Rarawa’s asset holding company; a Te Rarawa representative on Te Hiku o te Ika Leadership Forum and an elected negotiator for Te Rarawa’s Treaty Claims Team. Mr White has been involved as a member of Te Rarawa’s Iwi Research and Development group which coordinates and integrates research at an iwi and hapū level. He also led the historical Treaty claims research for Te Rarawa, and has been involved in a number of research projects, including whanau ora and environmental health initiatives. Te Taumata Tiketike | Keynote Speakers Dr Lance O’Sullivan – Dinner speaker Te Rarawa, Ngāti Hau, Ngāti Maru Te Kohanga Whakaora Dr Lance O’Sullivan is a GP based in Kaitaia. A Māori doctor fluent in te reo, he is a passionate advocate for Māori health and treating patients regardless of whether or not they can afford treatment. His drive for accessible health care extends beyond his patient-centric clinic in Kaitaia, which offers flexible hours and payment methods. He is also responsible for establishing MOKO (Manawa Ora, Korokoro Ora, “Healthy Heart, Healthy Throat”), V-MOKO, a schoolbased and online service focused on preventing rheumatic fever among primary and intermediate students in and around Kaitaia. Lance also set up Kainga Ora (“Well Home”), a home improvement project tackling one family home at a time, a proactive measure against ailments resulting from poor living conditions. In recognition of his achievements, Lance was named Kiwibank New Zealander of the Year 2014, received a Sir Peter Blake Leadership Award and Public Health Association Public Health Champion Award in 2013, and was named TVNZ Māori of the Year 2012. Dr O’Sullivan a GP, is a creator of revolutionary health programmes, and a pioneer for equal health care in his community. He is charismatic and hardworking, making great contributions to health care in the Far North. His philosophy towards his patients is: “Rob people of their self-belief and you deny them a bright future. I’ll never turn a kid away and say he’s a lost cause or a patient when people say he’s just trouble.” Dr Maureen Holdaway Te Atihaunui-a-Paparangi, Ngāti Hauiti Associate Director of the Research Centre for Māori Health & Development – Massey University, Palmerston North Dr Maureen Holdaway was appointed Associate Director of the Research Centre for Māori Health & Development (RCMHD) at Massey University in 2005. Dr Holdaway’s qualifications include a PhD in Māori Studies at Massey University, 2002, a Postgraduate Diploma of Social Sciences (Massey University 1995), and a Bachelor of Arts. Majoring in Nursing and Social Anthropology (RGON N.Z. Massey University, 1990). Dr Holdaway is well experienced in research, assessment, teaching and supervising both undergraduate and postgraduate students. Her knowledge and skills span across a number of domains that will be beneficial for her role as part of the Māori Health Research Committee. 8 July 8 - 10 Hui Whakapiripiri 2014 Professor Linda Tuhiwai Smith, CNZM Ngāti Awa, Ngāti Porou Pro Vice-Chancellor Māori – The University of Waikato Linda Tuhiwai Smith is Professor of Education and Māori Development, Pro-Vice Chancellor Māori, and Dean of the School of Māori and Pacific Development at the University of Waikato. In 2013 she was awarded a Companion of the New Zealand Order of Merit for her services to Māori and education. She is a member of HRC Board, Chair of the Māori Health Committee, a member of the Marsden Fund Council and Convener of the Social Sciences Assessment Panel, and a member on the Council of the Royal Society of New Zealand. Professor Smith was a founding Joint Director of New Zealand’s Māori Centre of Research Excellence from 2002-2007. She is a former President of the New Zealand Association for Research in Education and most recently served as a member of the Constitutional Advisory Panel. Linda has worked in the field of Māori Education and Health for many years as an educator and researcher and is well known for her work in Kaupapa Māori Research. Her book ‘Decolonising Methodologies Research and Indigenous Peoples’ has been an international best seller in the indigenous world since its publication in 1998. Dr Chelsea Bond Dr Elana Taipapaki Curtis Senior Lecturer with the Aboriginal and Torres Strait Islander Studies Unit – The University of Queensland Ngāti Rongomai, Ngāti Pikiao, Te Arawa Public Health Physician and Senior Lecturer Te Kupenga Hauora Māori – The University of Auckland. Dr Chelsea Bond is an Aboriginal (Munanjahli) and South Sea Islander Australian and a Senior Lecturer with the Aboriginal and Torres Strait Islander Studies Unit. Born and raised in Brisbane, Dr Bond has worked as an Aboriginal health worker and researcher in communities across south-east Queensland for over 15 years. Dr Bond’s work has focused on interpreting and privileging indigenous experiences of health and the health care system, including critically examining the role of Aboriginal health workers, the narratives of indigeneity produced within public health, and advocating for strengthbased community development approaches to indigenous health promotion practice. Her PhD research,which examined the disjuncture between indigenous and public health narratives of identity in an urban Aboriginal community, was awarded a Dean’s Commendation for Academic Excellence, placing her among the top 10 per cent of her graduating year. Dr Bond has published a number of papers in regards to indigenous health promotion practice, social capital, and the conceptualisation of Aboriginality within public health, and has been awarded such honours as NAIDOC Scholar of the Year, UQ Young Alumnus, and Congress Lowitja’s Emerging Indigenous Health Researcher. Dr Bond is a member of the Australian Health Promotion Association of Australia, a founding board member of Inala Wangarra (an Indigenous community development association within her own community), a Visiting Research Fellow with the School of Social Work and Public Health at the University of Queensland, and a proud mum to five beautiful children. Associate Professor Papaarangi Reid Te Rarawa Tumuaki – Deputy Dean Māori and Head of Department Te Kupenga Hauora Māori – The University of Auckland Associate Professor Papaarangi Reid is Tumuaki and Head of Department of Māori Health at the Faculty of Medical and Health Sciences, at the University of Auckland. She holds science and medical degrees from the University of Auckland and is a specialist in public health medicine. She has tribal affiliations to Te Rarawa in the Far North of Aotearoa, and her research interests include analysing disparities between indigenous and non-indigenous citizens as a means of monitoring government commitment to indigenous rights. As Director of Vision 20:20, Dr Elana Taipapaki Curtis has leadership responsibility for the Whakapiki Ake Project (Māori recruitment), the CertHSc (Māori and Pacific foundation education) and MAPAS (Māori and Pacific Admission Scheme). In 2004–2005, Dr Curtis was a Harkness Fellow in healthcare policy based at the University of California (San Francisco), investigating ethnic disparities in breast cancer mortality and survival. She has previously worked at the National Screening Unit, Ministry of Health (Māori:non-Māori disparities in breast cancer epidemiology) and Te Rōpū Rangahau Hauora a Eru Pomare, University of Otago (ethnic disparities in access to invasive cardiovascular procedures/caesarean sections). Dr Curtis is currently working towards her MD focused on Māori and Pacific health workforce development within a tertiary education context. She is proud mum and step-mum to three beautiful kōtiro – Bryanna (14 years), Taipapaki (6 years) and Iritekura (3 years). Associate Professor Beverley Lawton, ONZM Ngāti Porou Director and Senior Research Fellow, Women’s Health Research Centre – University of Otago, Wellington Associate Professor Lawton trained at Otago Medical School. She worked as a general practitioner in Newtown, Wellington, for 17 years and cofounded the Wellington menopause clinic. These experiences led to an interest in research to answer the many questions relevant to women’s health. She established the Women’s Health Research Centre, University of Otago. In 2004, Associate Professor Lawton was made an Officer of the New Zealand Order of Merit for services to women’s health. She is currently a member of the National Maternal Monitoring Group, member of the National Kaitiaki group for the cervical screening programme, Co-Chair of the International Indigenous HPV Alliance, and past member of the New Zealand Perinatal Maternal Mortality Committee. Her areas of research interest include: women’s health with specific focus on sexual and reproductive health; mid-life health and menopause; diabetes and heart disease risk; clinical trials; Māori health and inequalities; Kaupapa Māori research; and maternal and infant health. Hui Whakapiripiri 2014 July 8 - 10 9 Ms Bernadette Jones, Dr Tristram Ingham and Ms Cheryl Davies Panel Presentation Ms Bernadette Jones Ngāti Apa, Nga Wairiki Research Fellow and Lecturer – University of Otago, Wellington Bernadette Jones has worked for the University of Otago, Wellington, for the past 10 years and is currently a Research Fellow and Lecturer in Hauora Māori. She trained at Wellington Hospital as a registered nurse specialising in intensive care and paediatrics, practising in both New Zealand and Australia. As well as coordinating clinical trials, Mrs Jones has been involved in a variety of Māori community partnership projects. The disparities for Māori in chronic respiratory diseases led to her focus on the reduction of these disparities, with a particular focus on involving the Māori community in partnership with her research. Her current studies include ‘Māori Health Literacy’ (funded by the Ministry of Health and Asthma Foundation) and ‘Supporting Māori Tamariki with Asthma in Schools’, a HRC-funded project. Dr Tristram Ingham Ngāti Kahungunu, Ngāti Porou Senior Research Fellow, Department of Medicine – University of Otago, Wellington Dr Tristram Ingham is a Senior Research Fellow in the Department of Medicine at the University of Otago, Wellington. He has led a number of large epidemiological and clinical studies. His major research interests are respiratory health, with a focus on the burden of disease among Māori. He is on a number of advisory committees within the Capital Coast District Health Board and works closely with Māori health providers to support their community-based research. Dr Ingham is currently leading two studies funded by the HRC. These include exploring the risk factors for children hospitalised with acute respiratory infections, and the role of vitamin D and housing in respiratory health. Ms Cheryl Davies Ngāti Raukawa Manager – Tu Kotahi Māori Asthma Trust Ms Cheryl Davies has worked in the Māori health sector for the past 25 years. Eighteen years ago, she was instrumental in establishing the first Māori Asthma Society in the country and has been with the same organisation to watch its fruition into contributing to and making a difference for Māori, particularly those with respiratory conditions. Her research was recognised in the establishment of Tu Kotahi as being an essential component to the Māori health services they were providing for the community. Over the past 13 years, Ms Davies has been an investigator for a number of research projects focused on Māori and respiratory, housing, cancer and smoking. She is a keen advocate for Kaupapa Māori-based methods of research that ensure Māori providers and the Māori community are able to develop meaningful and reciprocal relationships with the many different facets of research. 10 July 8 - 10 Hui Whakapiripiri 2014 Whakapakari Whānau | HRC Writing Workshop Tuesday, 8 July 2014 Over the past three years the HRC has seen a significant increase in the numbers and the quality of funding applications for the Māori health research career development awards and funding round initiatives. The Māori health research roadshows and writing workshops have shown to be a contributing factor to the increase in applications. Participants in the writing workshops receive up-to-date information from those that have experience and have been successful in applying for, and assessing, various funding initiatives. The writing workshops focus on the HRC structure, application and assessment process and the do’s and do not’s of application writing. There is also a practical component where participants can bring a key research question to work on. 10:00am - 10:15am Arrival (tea and coffee) Horizon Lounge Ground Level 10:15am - 10:45am Whakawhanaungatanga Banquet Room 2 Ground Level 10:45am - 11:30am Background Developing the research question Methods Timeline Banquet Room 2 Ground Level 11:30am - 12:00pm Light refreshments Horizon Lounge Ground Level 12:15pm - 1:45pm Bringing a research team together/ collaborations Budgets Ethics Dissemination HRC Gateway for uploading Reporting Reviews and rebuttals Key dates Banquet Room 2 Ground Level 1:45pm - 2:00pm Break (tea and coffee) Horizon Lounge Ground Level 2:00pm - 3:00pm One on one with researchers Banquet Room 2 Ground Level Hui Whakapiripiri 2014 July 8 - 10 11 Ngā mahi o te hui | Hui Programme Day One: Wednesday, 9 July 2014 12 7:45am - 8:25am Arrival/Registration 8:25am Assemble in the foyer for powhiri protocol 8:30am - 9:30am Powhiri – Mr Beau Haereroa 9:40am - 10:15am Welcome and directions for the day Professor Linda Tuhiwai Smith, CNZM Opening address: Sir Robert Stewart, KNZM Foyer Banquet Room Ground Level 10:30am - 11:00am Morning tea Exhibition Hall Ground Level 11:15am - 11:45am Keynote Speaker: Dr Chelsea Bond Facilitator: Dr Amohia Boulton Banquet Room Ground Level 12:00pm - 1:00pm SESSION ONE Stream One: Transformative Research Practice Facilitator: Dr Will Edwards Dr Meihana Durie Te Papa o te ora: Mātauranga Māori as a basis for Māori health and wellness Dr Huhana Hickey Whānau Hauā identity: Integrating the intersectional nature of indigeneity and disability identity frameworks Dr Isaac Warbrick Gaining weight but improving ‘health’ anyway: The impact of exercise on the well-being of Māori men Banquet Room Ground Level Stream Two: Māori Methodologies Facilitator: Dr Mera Penehira Ms Gill Potaka-Osborne and Dr Amohia Boulton A picture is worth a thousand words: The use of imagery in qualitative research methodology Ms Anna Dawson The key concepts and content of a cultural competence intervention Dr Glenis Mark Health treatment aspiration, Rongoā Māori inspiration, and photo methodology innovation Conference Room 1 Mezzanine Level Stream Three: Knowledge Translation Facilitator: Dr Kahu McClintock Ms Rachel McClintock An exploration of taiohi Māori: Rites of passage Mr David Patterson Urban design, mental health and Māori Dr Laurie Morrison and Ms Mahina Rerehau-Richards Deconstructing gambling misuse using the Ngā Pou Wāhine Intervention wānanga to assist wāhine Māori to reduce gambling harm to improve their well-being for whānau ora Conference Room 2 and 3 Mezzanine Level Stream Four: Building Māori Health Research Capacity and Capability Facilitator: Dr Maureen Holdaway Ms Te Moana Campbell-Knowles Whānau Ora – Whānau-centred engagement and provision Dr Louise Parr-Brownlie Lighting the way for improved brain stimulation protocols to treat Parkinson’s disease Dr Sue Crengle and Dr Terryann Clark Trends in Māori youth health 2001-2012: Results from the Youth2000 national health and well-being surveys Promenade Room Lower Level Stream Five: Promoting Ethical Processes Facilitator: Mr Maui Hudson Ms Charrissa Makowharemahihi Developing a kaupapa Māori research project to reduce disparities for young Māori women and their babies Mr Jonathan Kilgour and Ms Okeroa Karyn McRae The value of relevant research methodologies for iwi: Using community researchers as a means of increasing the relevance and ownership of research in communities Ms Moe Milne and Professor Khyla Russell Cultural constructs and biobanking Carbine Room Ground Level July 8 - 10 Hui Whakapiripiri 2014 1:15pm - 1:45pm Lunch 2:00pm - 3:00pm SESSION TWO Stream One: Transformative Research Practice Facilitator: Dr Matire Harwood Mr Paul Davis New Zealand paramedics are ready for an autonomous pre-hospital thrombolysis protocol Associate Professor Denise Wilson Connectedness and confidence: Wāhine Māori and safety Dr Karen Brewer Beginning the development of a kaupapa Māori intervention for stroke-related communication disorders Stream Two: Māori Methodologies Facilitator: Ms Justine Camp Miss Jodi Porter Ka pioioi i te tihi o ngā Kahikatea. Measuring Ngai Tai aspirations for vitality Dr Nina Scott Māori prostate cancer politics; stories from the trenches Dr Will Edwards and Dr Reremoana Theodore Te Kura mai i Tawhiti. A lifecourse approach to health and well-being Stream Three: Knowledge Translation Facilitator: Mr Jordan Waiti Mr Kimiora Henare Re-educating the tumour stroma for the treatment of cancer Dr Geoff Kira Te whānau matemoe – Results at six months from the sleepy family study Mr Andrew Sporle Health statistics: The good, the bad and the free Exhibition Hall Ground Level Conference Room 1 Mezzanine Level Conference Room 2 and 3 Mezzanine Level Promenade Room Lower Level Stream Four: Building Māori Health Research Capacity and Capability Facilitator: Dr Isaac Warbrick Dr Simon Lambert Tangata Whairoa: Geographies of care post-disaster Mr Trevor Clark What has sport got to do with health? Dr Anneka Anderson and Dr Phillipa Malpas We all have a role: Exploring the challenges and rewards of working within a collaborative kaupapa Māori consistent research project on physician-assisted dying Carbine Room Ground Level Stream Five: Panel Presentation Facilitator: Dr Paul Reynolds Dr Rebecca Wirihana, Ms Helena Rattray, Dr Lily George, Mr Andre Mclachlan, Ms Caroll Aupouri-McLean Encouraging healing by validating historical trauma Banquet Room Ground Level 3:15pm - 3:45pm Afternoon tea Exhibition Hall Ground Level 4:00pm - 4:30pm Keynote panel: Ms Bernadette Jones, Dr Tristram Ingham and Ms Cheryl Davies Facilitator: Dr Te Kani Kingi Banquet Room Ground Level 4:30pm - 4:45pm Summary of the day: Professor Linda Tuhiwai Smith, CNZM Banquet Room Ground Level 6:15pm - 6:45pm Pre-dinner mix and mingle Horizon Lounge Ground level 7:00pm Dinner starts Banquet Room Ground Level 7:30pm Conference Dinner Speaker: Dr Lance O’Sullivan (2014 New Zealander of the Year) Facilitator: Dr Meihana Durie Banquet Room Ground Level 8:30pm - Late Entertainment Band – Urban Drift Banquet Room Ground Level Hui Whakapiripiri 2014 July 8 - 10 13 Nau te rourou, naku te rourou Ka ora te mahi Rangahau | Abstracts Day One: Wednesday, 9 July 2014 SESSION ONE Presenter: Dr Meihana Durie Rangitāne; Ngāti Kauwhata; Ngāti Porou; Ngāi Tahu; Rongowhakaata Ngā Purapura – Te Wānanga o Raukawa Te Papa o te ora: Mātauranga Māori as a basis for Māori health and wellness The potential for the application of Mātauranga Māori (Māori Knowledge) to drive tangible and enduring outcomes in Māori health and wellness is yet to be fully realised. This presentation, Te Papa o Te Ora, advances the position that significant gains in Māori health and wellness will occur when initiatives are underpinned and driven by: • Identifiable values (kaupapa) fundamental to Māori cultural identity • The application of Māori theoretical frameworks relevant to health and wellness • Integration of Māori cultural practices that are specific to health promotion, enhanced participation and risk mitigation • Research that positions Mātauranga Māori as the basis for enabling enhanced and tangible outcomes in Māori health and wellness Case studies will demonstrate the application of this approach to Māori communities and will emphasise the interface that exists between Mātauranga Māori, Science and Health Promotion. Whereas conventional initiatives often focus on the problem, this presentation highlights the benefits of placing emphasis upon common Māori values and aspirations. Presenter: Dr Huhana Hickey Waikato (Ngāti-Tahinga), Whakatōhea (Ngai Tai) AUT University Whānau Hauā identity: Integrating the intersectional nature of indigeneity and disability identity frameworks In recent years, disability as an identity discourse has developed from the medical, social work and rehabilitation fields into what are now seen as identity-based critical fields of study, as are women’s studies and queer-based studies. The disability identity work has also begun to increase the recognition and knowledge of the diversity that exists within our different communities. With this increasing knowledge has also come an understanding of the complicated factors that have an impact on these different identity frameworks. The identity of indigenous people with 14 July 8 - 10 Hui Whakapiripiri 2014 disabilities is inextricably linked to ethnicity and gender status and yet little research has been carried out to explore these intersectionalities and their impact on the well being of indigenous people with disabilities. Research undertaken to date has been from a provider’s perspective and focuses on how to provide culturally appropriate services regarding the health status of indigenous peoples. Little analysis has been done from the position of identity around indigeneity and disability. Drawing on research with Māori whānau with disabilities, this presentation focuses on whānau hauā identity using indigenous and western disability paradigms. Presenter: Dr Isaac Warbrick Ngāti Rangitihi, Ngāti Whakaue, Ngāti Te Ata, Ngāpuhi Massey University, Palmerston North Gaining weight but improving ‘health’ anyway: The impact of exercise on the well-being of Māori men The success of exercise and nutrition interventions for Māori are often measured by the amount of weight lost, but is ‘weight’ a true measure of ‘health’ in Māori men? How does measuring weight align with a Māori view of ‘health’, or are there more culturally relevant ways to assess the success of health interventions? Is it even ethical to measure weight? Thirty ‘sedentary’ Māori men, between 28 and 50 years (BMI >25), were randomly assigned to one of two 12-week exercise programmes. Group discussions took place after completing the programs to assess the programme’s impact on markers of overall well-being. These discussions revealed that participation in a ‘kaupapa-enhanced’ exercise programme impacted positively on many aspects of well-being and lifestyle, from relationships with spouse and children, to workplace productivity and mood. Results also suggest that the approach used and the social environment established within an intervention is more important to participants than the method of exercise, and perhaps even the quantifiable results. Presenter: Ms Gill Potaka-Osborne Te Atihaunui a Paparangi Whakauae Research for Māori Health and Development Co-presenter: Dr Amohia Boulton Ngāti Ranginui, Ngai te Rangi, Ngāti Pukenga, Ngāti Mutunga Whakauae Research for Māori Health and Development A picture is worth a thousand words: The use of imagery in qualitative research methodology In 2011 Te Puni Kōkiri selected Whakauae Research for Māori Health and Development to work alongside three health service providers to evaluate their Whānau Ora programmes. One of these, Te Taiwhenua o Heretaunga, is currently in the final phase of research. An important objective of the evaluation is to describe the impact of the Whānau Ora programme on whānau themselves. Using methods framed from a Māori-centred research approach, Whakauae researchers completed qualitative interviews with engaged whānau. The data describing their respective ‘whānau ora’ journeys was then analysed and translated into diagrams to provide a visual representation of whānau ora; one that could be easily read and understood by the evaluation’s commissioners. Due to the success of the vignettes in illustrating the whānau ora journey, we subsequently modified and improved them, drawing particularly from the PATH (Planning Alternative Tomorrows with Hope) tool (1.Pipi, 2010). In our presentation we will discuss the method we devised first to develop the whānau ora vignettes and then describe the modifications we made as the evaluation continued. We conclude that the method has been very successful for commissioners and whānau alike; providing participants with a voice and researchers and funders with a powerful portrait of the impacts of whānau ora. 1. Pipi, K. (2010). The PATH Planning Tool and its Potential for Whanau Research. MAI Review(3) school), which focused on three particular elements of cultural competency: awareness, knowledge and action. The main findings are discussed in relation to the participant’s experiences of cultural awareness, cultural knowledge and cultural action. A number of recommendations relating to researchers, academics and health professionals will be presented for future research. References: 1. Papadopoulos, I, Promoting culturally competent research, in Transcultural Health and Social Care. Development of Cultural Competent Practitioners, I. Papadopoulos, Editor 2006, Elsevier. p. 85-98. 2. Papadopoulos, I and S. Lees, Developing culturally competent researchers. Journal of Advanced Nursing, 2002. 37(3): p. 258-264. Presenter: Dr Glenis Mark Ngāpuhi, Tainui, Ngāi Tahu Whakauae Research for Māori Health and Development Health treatment aspiration, Rongoā Māori inspiration, and photo methodology innovation This research explores Māori cultural perspectives of health and illness, and how these contribute to health treatment choices. Participants were asked to complete two semistructured interviews; take photographs with a digital camera representing their perspectives on health and health services; and keep a research diary of their thoughts about the meaning of these images. The innovative creation of “Māori-voice” or the voice of Māori through photo storytelling used adapted photovoice methods to provide several ways for Māori participants to express their views, orally, in written form as well as pictorially. Results showed that Māori preferred self-care practices when they become ill, which included the use of rongoā Māori but they also understood the need to use Western medicine and mainstream health clinics as a last resort. The aspirations of health treatment change were inspired by rongoā Māori stories, told through photo methodology innovation. Presenter: Ms Anna Dawson Kāi Tahu University of Otago Other authors: Rosalina Richards Joanne Baxter Samoan University of Otago Kāi Tahu, Ngāti Apa ki te Rā Tō University of Otago The key concepts and content of a cultural competence intervention There is a growing appreciation that health researchers should have a basic understanding of culture and in New Zealand particular emphasis is placed on the responsiveness to Māori and their unique culture. Māori are the indigenous people of New Zealand, constituting about 15 per cent of the total population. In Britain a model has been developed specifically for researchers. The model consists of four concepts: cultural awareness, cultural knowledge, cultural sensitivity and cultural competence [1]. Based on Papadopoulos et als theoretical frameworks, [2] an intervention was developed which was tailored specifically for a small group of researchers working within the Cancer Society Social and Behavioural Research Unit (SBRU). The intervention consisted of three Wanaka (Training Days), held at te Kura Kaupapa o Ōtepoti (Māori full immersion Hui Whakapiripiri 2014 July 8 - 10 15 Presenter: Ms Rachel McClintock Presenter: Dr Laurie Morrison Waikato/Ngāti Maniapoto, Ngāti Porou Te Runanga o Kirikiriroa Ngāti Whakaue, Te Arawa Taupua Waiora Māori Health Research Centre Other authors: Co-presenter: Ms Mahina Rerehau-Richards Mere Blazer Keri Thompson Te Arawa, Ngāti Raukawa, Ngāti Ranginui Te Rūnanga o Kirikiriroa Tainui, Ngāti Haua, Ngāti Maniapoto, Te Atiawa Ngāti Haua Mahi Trust Michelle Levy Arianna Waller Tainui, Ngāti Mahuta Te Rau Matatini National Māori Health Workforce Organisation Ngai Te Rangi, Ngāti Ranginui University of Otago An exploration of taiohi Māori: Rites of passage This presentation will share the findings from a Kaupapa Māori, strengths-based research project which sought to provide a better understanding of the concept of rites of passage in a contemporary Māori society. Using photovoice, the project explored what is in communities that assist Māori taiohi (adolescent) in their transition to adulthood. The aim of the study was to inform the development of culturally specific, solution-orientated strategies and policies which will enhance the capacity of Māori whānau (family/lies) to support their taiohi. Presenter: Mr David Patterson Ngāti Whakaue, Ngāi te Rangi The University of Auckland Urban design, mental health and Māori The relationships between urban design, mental health and Māori are explored. How might the city be better designed to include provision for people in a state of mental distress? What is the Māori world view as it relates to tāngata whaiora and their interpretation and existence in our urban centres? How do experts in the areas of Māori mental health, anthropology, architecture and urban design, along with traditional Tohunga, see the city as an ideological and physical entity? How does their experience working with whaiora, and observing the best environments for such people, inform their opinion of the way forward? The ideas discussed aim to flex the perspectives of the audience in terms of the current situation for those Māori with mental health challenges, inspired by the experience of the author who lives with bipolar disorder. The author is of Te Arawa and Ngā te Rangi descent, so comes from a position of experiential knowledge. It is a personal driving force of the author to ensure that people in the same situation he found himself in his late teens get through their struggles and grow into fully functioning, constructive, positive influences on themselves, their whānau, and their communities. 16 July 8 - 10 Hui Whakapiripiri 2014 Waiohua, Waikato Raukura Hauora o Tainui Trust Deconstructing gambling misuse using the Ngā Pou Wāhine Intervention wānanga to assist wāhine Māori to reduce gambling harm to improve their well-being for whānau ora Current surveys and prevalence studies consistently provide evidence that indicate wāhine Māori, are an “at-risk group”. They are a population with relatively high rates of poverty, spend disproportionately large amounts of their income on pokie machines and have relatively poorer health status. The Ngā Pou Wāhine Intervention wānanga was based in Te Ao Māori and used eight pou (posts) to depict a process for change towards self-empowerment following gambling misuse. The first four pou was used to determine their potential. The remaining four will guide strengthening the potential of the wāhine to achieve whānau ora. Thirty five wāhine Māori in Auckland and the Bay of Plenty region participated in the wānanga. Kaupapa Māori principles and qualitative approach using interview schedules, workbooks and photo-voice, were digitally recorded and transcribed. Inductive analysis was used to identify themes and In-vivo codes were used to name the themes. The themes included: family affair; planting the seed; a living hell; escaping everyday reality; change from within. Our findings confirmed the symbols were practical and relevant to Māori culture for wāhine to address, stop or reduce gambling misuse. Limitation and recommendations suggested by wāhine for the continuity of the wānanga will be discussed. Presenter: Ms Te Moana Campbell-Knowles Ngāti Ruanui, Ngaruahinerangi, Tangahoe Te Kupenga Matauranga o Taranaki real brain activity, we may optimise movement recovery, reduce side effects and improve the quality of life for affected kaumātua and kuia. This new technology may one day replace electrical stimulation to treat Parkinson’s disease. Other author: Presenter: Dr Sue Crengle Mihi Ratima Whakatōhea, Ngāti Awa Te Kupenga Mātauranga o Taranaki Kāi Tahu, Kāti Mamoe, Waitaha Waitemata District Health Board Whānau Ora – Whānau-centred engagement and provision Ngāpuhi The University of Auckland Whānau Ora has a high level of political support currently as a framework for health service delivery. However, there is a lack of consistency in the way the concept is understood and applied within the sector among mainstream and Māori providers. This presentation provides an overview of research findings from a project that investigated from a whānau perspective: the meaning of Whānau Ora as it relates to health; key issues in localised Whānau Ora provision in health; characteristics of a whānau driven framework for health service provider engagement with whānau; and the characteristics of robust localised Whānau Ora health service provision. The research involved a literature review, community-based wānanga with Tangahoe (a South Taranaki iwi) whānau, interviews with Tangahoe whānau members and interviews with other Whānau Ora stakeholders including health service providers. While the research was carried out through a Tangahoe lens, findings are likely to be of high relevance to other iwi and Māori community groups. Presenter: Dr Louise Parr-Brownlie Ngāti Maniapoto, Ngāti Pikiao University of Otago Other authors: Clementine Bosch-Bouju Brian Hyland University of Otago University of Otago Co-presenter: Dr Terryann Clark Other authors: Adolescent Health Research Group The University of Auckland Trends in Māori youth health 2001-2012: Results from the Youth2000 national health and wellbeing surveys Aim: To report trends in major health and well-being indicators for Māori youth in secondary schools between the 2001 and 2012. Methods: The Youth2000 survey series has provided comprehensive and representative data about the health and well-being of New Zealand youth in secondary schools in 2001, 2007 and 2012. This presentation will describe the prevalence of various health indicators for Māori youth compared over the three survey waves to identify trends. Results: There have been significant improvements in health status for Māori youth since 2001. Despite these improvements, there remain significant and persistent disparities when comparing Māori youth to their New Zealand European/Pākehā peers. Conclusions: While considerable progress is being made for Māori youth well-being, continued work to address heath disparities is required alongside culturally relevant and evidence-based interventions. Stephanie Hughes University of Otago Lighting the way for improved brain stimulation protocols to treat Parkinson’s disease Parkinson’s disease is a neurological disorder that primarily affects older people and causes slowness of movement, resting tremor and postural instability. Following loss of the chemical dopamine in the brain, activity is altered throughout motor pathways. While drugs and electrical stimulation effectively treat movement deficits, they also cause unwanted side effects in many patients. Our goal is to improve treatment options for patients by identifying new brain targets and stimulation protocols that restore normal activity in the brain and movements with minimal side effects. We are using optogenetic technology that enables light to activate very specific groups of brain cells and we are applying activity associated with normal reaching movements into the parkinsonian brain. Using optogenetic stimulation we are able to improve reaching performance and effects are significantly better than conventional stimulation protocols currently used on patients. Our results indicate that the pattern of stimulation is critical and by applying stimulation patterns that mimic Hui Whakapiripiri 2014 July 8 - 10 17 Presenter: Ms Charrissa Makowharemahihi Presenter: Mr Jonathan Kilgour Ngāti Kahungunu, Ngāti Tūwharetoa, Waikato University of Otago, Wellington Rereahu, Ngā Rauru Waikato-Tainui College for Research and Development Other authors: Co-presenter: Ms Okeroa Karyn McRae Beverley Lawton, ONZM Selina Brown Ngāti Porou University of Otago, Wellington University of Otago, Wellington Fiona Cram Ngāti Kahungunu Katoa Ltd Tina Ngata Pa Warihi Campbell Ngāti Porou Bridget Robson Ngāti Raukawa University of Otago, Wellington Ngāti Porou University of Otago, Wellington Developing a kaupapa Māori research project to reduce disparities for young Māori women and their babies Young Māori mothers experience stigma and their babies experience poor health outcomes. Interventions to reduce these health disparities need to understand the lives of these young women. ‘E Hine’ is a kaupapa Māori qualitative study that explores the lived realities of young Māori women <20 years and their infants. This presentation will describe the consultation processes employed preparatory to, and throughout the study, to seek agreement to undertake the research with young Māori mothers to be conducted in two regions (Hawke’s Bay and Wellington). Consultation occurred with tribal authorities, Māori health providers, district health boards, and community stakeholders. Endorsement was gained for strength-based research with young pregnant Māori women and their babies. The research also included service provider interviews, and analysis of policy and the strategic environment. Project oversight is by three advisory groups: Kāhui Kaumatua, Roopu Māmā, and an Academic Technical advisory group. Community feedback occurs throughout the project. Consultation is an ongoing process conducted within a relationship context. It enhances the development, implementation and translation of research that seeks to represent the lives of those who are vulnerable, and eliminate health disparities. 18 July 8 - 10 Hui Whakapiripiri 2014 Te Arawa Waikato-Tainui College for Research and Development The value of relevant research methodologies for iwi: Using community researchers as a means of increasing the relevance and ownership of research in communities This presentation discusses the engagement and use of community researchers in He Whakaoranga, a HRC-funded project that investigates cultural connectedness and its relationship to wellbeing from a Waikato-Tainui perspective. Community researchers were commissioned from across marae clusters within Waikato-Tainui and engaged because of their existing relationships within the tribe. Researchers from the communities being researched added to the credibility of the project, increased participant trust in the research process and enabled the communities to be participants rather than subjects. It also provided an opportunity for capability building for people who had varying degrees of research experience. This research describes the methodology employed in the project and the experiences of the project team in implementing the research. Presenter: Ms Moe Milne Ngāti Hine Te Moemoea Co-presenter: Professor Khyla Russell Ngāi Tahu Otago Polytechnic Cultural constructs and biobanking Te Mata Ira: Informing cultural guidelines on biobanking and genomic Research is a HRC-funded research project exploring Māori views on biobanking and genomic research. Biomedical research projects use human tissue to help understand disease processes and responses to treatments. Māori individuals continue to agree for their tissue to be used for health research in a variety of contexts. Māori communities have expressed a number of concerns about how consent is gained and what happens to the tissue, which is commonly stored within biobanks and has often been consented for genetic research. This presentation will share the Māori cultural constructs that have been used by participants to inform their views on human tissue collection and its use in future biomedical research. SESSION TWO Presenter: Mr Paul Davis Te Runanga o Te Rarawa St John Ambulance AUT University Presenter: Associate Professor Denise Wilson Ngāti Tahinga (Tainui) AUT University Other author: Debra Jackson University of Technology, Sydney Connectedness and confidence: Wāhine Māori and safety Other authors: Graham Howie Bronwyn Tunnage AUT University AUT University Bridget Dicker St John Ambulance Service New Zealand paramedics are ready for an autonomous pre-hospital thrombolysis protocol Objective: To investigate if current paramedic education in New Zealand is sufficient for the introduction of an autonomous paramedic clinical decision-making model of prehospital thrombolysis (PHT) administration for ST-elevation myocardial infarction patients. Methods: A one hour workshop introduced a new PHT protocol to 81 self-selected paramedics, who were then tested in protocol application, using four written scenarios that required 12-lead electrocardiogram (ECG) interpretation, understanding of protocol inclusion/ exclusion criteria, and rationale. Ten multiple-choice questions probed cardiac knowledge and protocol detail. Results: Clinical decision-making (identifying each scenario and treating appropriately) showed a sensitivity of 92.0% (95% CI: 84.8-96.5), and a specificity of 95.6% (95% CI: 89.1-98.8). Misinterpretation of the 12-lead ECG was the commonest error, with Bundle Branch Blocks (BBBs) and Left Ventricular Hypertrophy (LVH) misinterpreted most often. University educated paramedics were significantly better at clinical decision-making than in-house industry trained paramedics (p = 0.001), as were Advanced Life Support (ALS) paramedics compared to paramedics of lesser qualification (p = 0.001). Conclusions: New Zealand paramedics have a sound 12-lead ECG and cardiac knowledge base, sufficient for the introduction of a new autonomous paramedic PHT protocol. BBBs and LVH should be revised. Recent changes in paramedic education toward university degree programmes are supported. Wāhine Māori (indigenous people of Aotearoa New Zealand) are the kaitiaki of whānau (extended family) and have important roles in whānau wellbeing and the intergenerational transmission of information and strategies for safety. Little is known in the literature about how women, in general, view safety – how they learn about it, how they keep themselves safe, and how they pass safety messages and advice onto other women. We asked, what are the thoughts and understandings of wāhine on safety? We used a Māori-centred life story approach to conduct qualitative semi-structured interviews. We interviewed 20 wāhine aged between 18 and 70 years, about their views on safety particularly the strategies they used to keep themselves safe. Transcribed interviews were thematically analysed. Four themes were identified: Feeling safe, keeping safe, keeping others safe and feeling unsafe. We will share the findings that provide insight about the strengths wāhine have regarding safety, keeping safe and transmitting information to keep others safe. We will also present our concerns about these wāhine’s exposure to ongoing daily racism and discrimination, particularly in their workplaces. The significance of these findings for building on wāhine Māori strengths and existing strategies will be discussed. Presenter: Dr Karen Brewer Ngāi Te Rangi, Whakatōhea The University of Auckland Other authors: Matire Harwood Clare McCann Ngāpuhi The University of Auckland The University of Auckland Beginning the development of a kaupapa Māori intervention for stroke-related communication disorders Aphasia (a language disorder, most commonly caused by stroke) has a profound impact on Māori whānau. We present the findings of a kaupapa Māori research programme about the experiences of Māori with aphasia, their whānau and speech-language therapists (SLTs). We also discuss the application of these findings to transform practice; the development of a kaupapa Māori intervention for strokerelated communication disorders. Interviews with 11 whānau living with aphasia and 10 SLTs revealed many similarities between the needs of whānau with aphasia and SLTs. Māori with aphasia and whānau members are seeking: Information about stroke, communication disorders and the role of the SLT; culturally-safe guidance from SLTs to enable the whānau to enhance communication and take responsibility for rehabilitation; and language therapy provided in a suitable Hui Whakapiripiri 2014 July 8 - 10 19 location using resources that reflect their world view and identity. SLTs are seeking: Training focused on working with Māori whānau; Māori colleagues to guide their work with whānau; a workplace culture that allows time to practise in a culturally safe manner; and language therapy resources that reflect the world view and identity of Māori patients. Because these needs are similar, addressing them in parallel, as in the intervention research, is likely to have considerable impact. Presenter: Dr Will Edwards Taranaki, Ngāruahine, Tāngahoe, Pakakohi, Ngāti Ruanui Te Pou Tiringa Co-presenter: Dr Reremoana Theodore Ngāpuhi, Te Arawa National Centre for Lifecourse Research Other authors: Presenter: Miss Jodi Porter Ngai Tai, Whakatōhea, Te Whānau-a-Apanui, Ngāti Porou Massey University, Palmerston North Ka pioioi i te tihi o ngā Kahikatea. Measuring Ngai Tai aspirations for vitality Central to the concept of iwi vitality is the notion that iwi are able to actively determine what matters to them from a mana whenua perspective. An iwi perspective privileges iwi ways of knowing and being, and maintains iwi integrity by asserting an iwi world view that acknowledges iwi are at the centre of determining their own vitality. This research argues that progress towards the achievement of iwi vitality can be measured in a way that is consistent with iwi values and aspirations. A key focus of this research was to explore what it means to be well as Ngai Tai and contributed towards the development of a Ngai Tai Vitality Outcomes Framework. This framework provides a mechanism through which Ngai Tai, and potentially other iwi, are able to align their efforts towards identified iwi-specific vitality outcomes, effectively monitor what matters to them and plan for the future towards the realisation of iwi vitality. The research involved wānanga at Torere Marae with Ngai Tai participants and 14 ‘expert’ interviews. Presenter: Dr Nina Scott Ngāti Whātua, Waikato Waikato District Health Board Māori prostate cancer politics; stories from the trenches In 2009, a Māori public health physician was appointed to the role of advisor to a Select Committee Inquiry into prostate cancer, and so began a long journey in the realms of politics, the media, millions of dollars into research, accusations of racism, trouble and consternation. As well as giving a brief overview of why prostate cancer screening for Māori men is a catch 22 situation, this presentation will trace recent progress on cancer control actions for Māori prostate cancer. Hindrances to progressing Māori prostate cancer control will also be discussed, including the function of institutional racism as a determinant of Māori prostate cancer control. 20 July 8 - 10 Hui Whakapiripiri 2014 Aroaro Tamati Mihi Ratima Taranaki, Ngāti Ruanui, Te Atiawa, Te Whanau-ā-Apanui Te Pou Tiringa Whakatōhea, Ngāti Awa Te Pou Tiringa Erana Hond-Flavell Taranaki, Ngāti Ruanui, Te Atiawa, Te Whanau-ā-Apanui Te Pou Tiringa Hinerangi Korewha Ngāti Apa/Ngā Wairiki, Ngāti Kahungunu Te Pou Tiringa David Craig National Centre for Lifecourse Research Richie Poulton National Centre for Lifecourse Research Te Kura mai i Tawhiti. A lifecourse approach to health and well-being Te Kōpae Piripono is a Taranaki Māori immersion early childhood education (ECE) centre with a primary aim of intergenerational whānau development. Te Kōpae has partnered with the National Centre for Lifecourse Research (NCLR) to investigate what constitutes effective early life kaupapa Māori programming leading to improved health outcomes. The transformational research focuses on the potential of quality early life and whānau development programming to impact health and social well-being through the life course. The research will generate evidence around a specific model and approach – Te Kōpae Piripono – that may be scaled up and implemented in a range of contexts. The Te Pou Tiringa (the governance body of Te Kōpae Piripono) side of the research partnership brings academic expertise in education, health and kaupapa Māori research and an entry-point to the local Māori community and community credibility. While the NCLR contributes infrastructure, expertise in Western scientific research and other resources. This presentation discusses the practical application of Māori methodologies in a health research partnership project at the interface between Māori knowledge and Western science. Presenter: Mr Kimiora Henare Presenter: Mr Andrew Sporle Te Aupōuri, Te Rarawa The University of Auckland Ngāti Apa, Rangitane, Te Rarawa The University of Auckland Other authors: Health statistics: The good, the bad and the free Cristin Print Health statistics are routinely used by policy makers and funder to make planning or funding decisions about health services. Recent developments have improved the quality of Māori health statistics, but more could be done to make this important information tool relevant to Māori development at a local level. This workshop will outline how health statistics are produced in different part of the health sector and the different ways of accessing them. Participants will be shown freely available data, methods and training resources that will be useful for collecting data as well as research. The University of Auckland Lai-Ming Ching The University of Auckland Re-educating the tumour stroma for the treatment of cancer Māori succumb to cancer at a rate 67 per cent higher than non-Māori. Among the most lethal for Māori are cancers of the lung, breast, stomach, pancreas, and liver; mortality rates for which are between 1.7 to 3 times higher than in non-Māori. A common feature of these cancers is the formation of a solid tumour consisting of both cancer cells and surrounding stromal cells. Cancer cells are able to manipulate or ‘educate’ the surrounding cells to maintain tumour growth and disease progression. Communication networks between the cancer cells and the surrounding cells are complex and incompletely understood, but are recognised as critical for tumour survival and are therefore attractive targets for treating cancer. An emerging and innovative approach to cancer therapy is to alter these communication networks in order to ‘re-educate’ the surrounding cells to fight back. This concept formed the basis for HRC-funded doctoral research that has provided training using cutting edge technology for biomedical and cancer research, where there is a severe shortage of Māori scientists. Importantly, the skills and knowledge gained from this work can one day be translated into better treatment options for cancer patients, of which many are Māori. Presenter: Dr Geoff Kira Ngāpuhi Massey University, Palmerston North Other authors: Rhys Jones Stephen Stannard The University of Auckland Massey University, Palmerston North Presenter: Dr Simon Lambert Ngāti Ruapani, Tūhoe Lincoln University Other authors: Melanie Mark-Shadbolt Angelia Ria Ngāti Kahungunu ki Wairarapa Te Awa o te Ora Rongomaiwahine, Ngāti Ruapani Te Awa o te Ora Tangata Whairoa: Geographies of care postdisaster The recent (and ongoing) earthquakes in Christchurch radically altered the physical and psycho-social landscapes of the city. This research presents two analyses of data collected in collaboration with a Kaupapa Māori service provider in the dynamic post-disaster contexts of a devastated city. Semistructured interviews provide rich narratives of personal experiences of a massive urban disaster with key themes of family, housing and accommodation, and rapid service provider support. This data also enables a social network analysis of support networks in which key nodes and pathways outline geographies of care and trust which are culturally attuned to leverage off Māori institutions and practices. Results point to a more efficient and comprehensive coverage of what is too often considered a vulnerable community but whose experiences actually point to a great resilience. Te whānau matemoe – Results at six months from the sleepy family study Sleep is a necessary behaviour that instils health benefits. In contrast, poor sleep, sleep that is low in quality and duration, is associated with many physical and mental conditions including obesity. Poor sleep can affect any age group and taitamariki (adolescents) are an age group that is particularly afflicted for reasons both biological and pyscho-social. It was hypothesised that sleep improvement could manage or reduce body fat without nutrition or physical activity advice. Four behaviour change workshops were conducted with three groups of young (13 to 16 years old) taitamariki (n=22, boys: 27%) at a high school boarding hostel in the lower north island. Body composition outcomes (percentage body fat, body mass index, fat free mass, fat mass, waist:hip ratio) were recorded at baseline and at six months. Sleep, dietary and physical activity habits, and pubertal status were self-reported. This study is a world-first for taitamariki and sleep improvement health outcomes. Hui Whakapiripiri 2014 July 8 - 10 21 Presenter: Mr Trevor Clark Tainui Massey University, Palmerston North What has sport got to do with health? Māori men have a particularly bad prognosis in terms of health and are arguably the most vulnerable group in New Zealand for developing cardiovascular disease. It is surprising therefore, that given the high rates of participation of Māori men in sport, and particularly rugby league, that lifestyle-related diseases are so prevalent. This research aims to identify how retiring from rugby league impacts upon the health and well-being of both elite and non-elite Māori players. This is a prospective, non-intervention study being carried out to establish baseline data and generate future hypotheses for testing. The health status of retired players (n=125) from across different timeframes [those currently playing, recently retired (<1 year) and players retired for longer (<15 years)] will be examined over a period of 24 months, to ascertain the presence of disease, physiological condition and psychological well-being. Presenter: Dr Anneka Anderson Kāti Māmoe, Kāi Tahu The University of Auckland Co-presenter: Dr Phillipa Malpas The University of Auckland We all have a role: Exploring the challenges and rewards of working within a collaborative kaupapa Māori consistent research project on physician-assisted dying Physician-assisted dying (PAD) is currently illegal in Aotearoa, however, the public response to a number of high profile cases suggests that many people support PAD in certain circumstances. Despite the growing public interest in and support of this issue to date, little research in New Zealand has explored Māori perceptions towards PAD. The primary aim of this kaupapa Māori consistent research was to explore Māori attitudes and beliefs towards PAD though applying qualitative, focus group interviews with self-identified Māori participants. The research was a collaborative project, where everyone involved (kaumātua participants, researchers and kaimahi) each had a role to play, yet worked together to develop the research design, data collection, analysis and dissemination. The paper will discuss the challenges and positive benefits of this study. We will highlight the importance of creating and maintaining trust, rapport and communication among the research rōpū; how we negotiated the various and fluid roles each of us had to play; and how we worked towards creating a safe place for the rōpū to work given the sensitive nature of the research material. The experiences from this research could be used to inform and promote future collaborate kaupapa Māori health research in Aotearoa. 22 July 8 - 10 Hui Whakapiripiri 2014 Ngā mahi o te hui | Hui Programme Day Two: Thursday, 10 July 2014 8:30am - 8:45am Arrival/Registrations Horizon Lounge Ground Level 8:45am - 9:00am Welcome: Mr Beau Haereroa and Dr Suzanne Pitama Banquet Room Ground Level 9:10am - 9:40am Keynote Speaker: Dr Elana Taipapaki Curtis Facilitator: Dr Suzanne Pitama Banquet Room Ground Level 9:45am - 10:45am SESSION THREE Stream One: Transformative Research Practice Facilitator: Dr Mera Penehira Dr Matire Harwood SMART for Māori with asthma Dr Tess Moeke-Maxwell ‘Running on Empty’: The financial cost of end of life care Ms Marnie Reinfelds Hapū ora ki Taranaki – What constitutes optimal antenatal care for Māori women in Taranaki from a life course and whānau ora perspective Carbine Room Ground Level Stream Two: Māori Methodologies Facilitator: Dr Will Edwards Dr Kirsten Aroha Gabel “E toru ngā Hawaiki” – Exploring traditional philosophies of maternal well-being Ms Jeannine Stairmand Māori centred research – Cancer care journeys, clinical decision-making and disparity Dr Lynne Russell Learning through indigenous storytelling Conference Room 2 and 3 Mezzanine Level Stream Three: Panel Presentation Facilitator: Dr Amohia Boulton Dr Mere Kēpa, Mrs Betty McPherson, Dr Waiora Port and Mrs Leiana Reynolds And never be ashamed to act on principles Banquet Room Ground Level Stream Four: Building Māori Health Research Capacity and Capability Facilitator: Mr Jordan Waiti Dr Margaret Dudley Māori experiences of neuropsychological assessment Mr Steve York Te tirohanga o ngā poronga waewae nā te matehuka – he haerenga o tētahi Kaitiaki Waewae. Examining diabetes related lower limb amputations – a Māori podiatrist’s journey. Dr Sue Crengle and Dr Vanessa Selak Designing and conducting a clinical tria0l that supports Māori participation: Learnings from the IMPACT (polypill) trial Conference Room 1 Mezzanine Level 11:00am - 11:20am Morning tea Exhibition Hall 11:30am - 12:00pm Keynote Speaker: Associate Professor Beverley Lawton Facilitator: Dr Suzanne Pitama Banquet Room Ground Level Hui Whakapiripiri 2014 July 8 - 10 23 12:15pm - 1:15pm 24 SESSION FOUR Stream One: Transformative Research Practice Facilitator: Dr Isaac Warbrick Dr Fiona Cram and Dr Paula King Improving Māori access to health care Associate Professor Beverley Lawton Wāhine hauora: Early identification of infants at risk of hospitalisation for respiratory disease Dr Marilyn McPherson (Brewin) It takes a community to raise a child like ours: One in a million - the diagnoses Conference Room 1 Mezzanine Level Stream Two: Māori Methodologies Facilitator: Dr Maureen Holdaway Ms Kimiora Raerino Marae food gardens – Health and well-being through urban marae in Tāmaki Makaurau Ms Renee Davies and Ms Christine Roseveare Beyond the workshop – Next steps to building practice research skills and capacity for new Māori health researchers Conference Room 2 and 3 Mezzanine Level Stream Three: Building Māori Health Research Capacity and Capability Facilitator: Ms Justine Camp Mr Ronald Ngata Understanding Matakite: An exploration of the health issues related to spiritual experiences Dr Nina Scott Prostate cancer and Māori men; recent findings from six studies Dr Sue Crengle, Ms Julia Brooking and Ms Lisa Reddy Improving health literacy about cardiovascular disease medications – Implementing a clinical trial in two Māori providers and summary of results Carbine Room Ground Level Stream Four: Panel Presentation Facilitator: Professor Khyla Russell Mrs Rangimahora Reddy, Mr Beau Haereroa and Mrs Kay Berryman Optimising the palliative care pathway: Kaumātua and whānau communication aspirations Banquet Room Ground Level 1:20pm - 1:45pm Open Microphone Session Strengthening the value of the HRC to respond to the needs of Māori Facilitators: Professor Linda Tuhiwai Smith and Dr Matire Harwood Banquet Room Ground Level 1:45pm - 2:15pm Lunch Exhibition Room Ground Level 2:30pm - 3:00pm Keynote Speaker: Dr Papaarangi Reid Facilitator: Dr Matire Harwood Banquet Room Ground Level 3:00pm - 4:00pm Summary and closing comments: Professor Linda Tuhiwai Smith Banquet Room Ground Level 4:00pm - 4:30pm Karakia and closing: Mr Beau Haereroa Banquet Room Ground Level 4:30pm onwards Refreshments Exhibition Hall Ground Level July 8 - 10 Hui Whakapiripiri 2014 Nau te rourou, naku te rourou Ka ora te mahi Rangahau | Abstracts Day Two: Thursday, 10 July 2014 SESSION THREE Presenter: Dr Matire Harwood Ngāpuhi The University of Auckland maintenance therapy. Conclusion: The main finding, that SMART regimen has a favourable risk/benefit profile in Māori, should be incorporated into evidence-based practice. However the study also identified differences in the management of asthma, regardless of treatment regimen, between Māori and non-Māori. The role of ‘medical management’ alongside wider determinants (e.g. health literacy and timely care) will also be discussed. Presenter: Dr Tess Moeke-Maxwell Other authors: Janine Pilcher Alison Pritchard Medical Research Institute of New Zealand Medical Research Institute of New Zealand Ann Smith Justin Travers Te Arawa Tu Kotahi Māori Asthma Medical Research Institute of New Zealand Cheryl Davies Richard Beasley Ngāti Raukawa Tu Kotahi Māori Asthma Medical Research Institute of New Zealand Mitesh Patel Mark Weatherall Medical Research Institute of New Zealand Wellington School of Medicine Peter Black SMART for Māori with asthma Background: There are significant disparities between Māori and non-Māori with asthma, despite nearly 40 years of Māori-led research showing that barriers to health care and differences in management contribute to these inequities. This study sought to test the effectiveness of a groundbreaking asthma management regimen in New Zealand, with a focus on Māori asthma outcomes. International studies have shown that Single combination budesonide/ formoterol inhaler as Maintenance And Reliever Therapy (SMART) regimen is associated with substantially fewer severe asthma exacerbations than alternative regimens. ‘SMART’ may therefore be of specific benefit to Māori. Objective: To investigate outcomes for Māori with asthma in a randomised controlled trial of combination budesonide/ formoterol inhaler therapy. Ngai Tai ki Tamaki The University of Auckland Other Author: Merryn Gott The University of Auckland ‘Running on Empty’: The financial cost of end of life care Research aims: This pilot study explored the financial cost associated for Māori and non-Māori whānau who provided care to a family member with a life limiting condition. Participants’ preferences were sought on the best way to gather this information in a larger future study. This presentation reports on the Māori findings. Study design and method: A Māori-centered research design provided the frame for the study. Free media networks (Māori television, community newspapers, radio) were utilised in recruitment. Kanohi ki te kanohi interviews gathered information on the financial costs of care of 11 Māori whanau AND recorded their views of preferred data gathering methods. Analysis: Māori-centered research methods informed the analysis supported by a social constructivist analytical approach. Results and interpretation: All Māori whānau interviewed in the Māori cohort were low income earners or beneficiaries. They struggled to cope with meeting the financial demands of caring for someone at end of life. This placed a huge burden on them to fulfil their familial and cultural obligation to provide care/āroha to the ill and dying. Whānau identified that the best method to gather sensitive information on the financial cost of care is through kanohi ki te kanohi whānau interviews and marae based focus groups. Methods: 303 adult asthma patients, 44 of whom were Māori, were recruited. Participants were randomised to either a ‘SMART’ or STANDARD regimen. Results: The SMART group had fewer days of high use (Relative Rate (RR) (95% CI) 0.57 (0.38-0.85)), days of high use without medical review within 48 hours (RR 0.49 (0.32-0.75)), and severe exacerbations (RR 0.54 (0.36-0.81)) compared to Standard. The magnitude of the benefit from the SMART regimen was similar in Māori and non-Māori. Regardless of treatment regimen, Māori demonstrated more days of high use, high use without medical review, and underuse of Hui Whakapiripiri 2014 July 8 - 10 25 Presenter: Ms Marnie Reinfelds Ngāti Mutunga Te Kupenga Mātauranga o Taranaki Hapū Ora ki Taranaki – What constitutes optimal antenatal care for Māori women in Taranaki from a life course and whānau ora perspective The maternity care needs of Māori women are greater than for non-Māori and there are persistent inequalities in birth outcomes between Māori and non-Māori. As well, there are persistent differences in Māori experiences of and access to maternity services. It is possible that some of these factors may vary by region depending on the range of services and support mechanisms that are available. This presentation presents an overview of a community research project that sought to explore “what constitutes optimal antenatal care for Māori women in Taranaki from a life course and whānau ora perspective”. Specifically the research sought to address 1. What, according to Māori women and to Māori maternity care stakeholders, constitutes optimal antenatal care taking into account a whānau ora perspective? 2. What is the role of antenatal care and care during labour and delivery from a life-course perspective? 3. How can ethnic inequalities in receipt of antenatal care and care during labour and delivery be addressed for Māori women and their whānau? The research involved a literature review, focus groups with Māori women who have been pregnant, face-to face interviews with individual Māori women who have been pregnant, and interviews with selected key stakeholders (including those with community expertise). Presenter: Dr Kirsten Aroha Gabel maternities are indeed a significant space of resistance and tino rangatiratanga today. Presenter: Ms Jeannine Stairmand Ngāti Porou University of Otago, Wellington Māori centred research – Cancer care journeys, clinical decision-making and disparity This paper considers Māori-centred research using an example of research on cancer care journeys, clinical decision-making and disparity. The research is led by the University of Otago and is in four phases. In this paper we first review the characteristics ascribed to Māori-centred research against the first two phases of the study – Phase 1: clinical decision making in multidisciplinary meetings and Phase 2: patient and clinician responses to treatment consultations. Key elements are the leadership of two principal investigators, one Māori and one Pākehā, operating by Māori values and key involvement of Māori researchers in the research team. Secondly, we reflect on our research and share some of the learnings, challenges and rewards of undertaking Māori centred qualitative research within secondary services. These include how to express values such as whānaungatanga and manaakitanga for all participants throughout the research process, recruiting busy clinicians to participate in qualitative Māori-centred research and ensuring that the mana of all those involved is maintained. This project demonstrates that Māori-centred social science research, using both Māori knowledge and western methods, can be undertaken in the clinical setting and produce knowledge to aid the advancement of hauora Māori. Presenter: Dr Lynne Russell Ngāti Kahu, Te Paatu The University of Waikato Kāi Tahu, Ngāti Kahungunu, Kāti Māmoe, Rangitāne, Ngāti Porou Victoria University of Wellington “E toru ngā Hawaiki” – Exploring traditional philosophies of maternal well-being Learning through Indigenous storytelling This paper will present the findings of my doctoral research into Māori maternities. In particular, it will discuss some traditional philosophies pertaining to maternal wellbeing. Drawing from accounts of our cosmologies, from mōteatea, whakatauki and pakiwaitara, it will consider aspects of our maternities that for many Māori mothers today have become buried under the plethora of Western maternal knowledge. Māori maternities represent a conflicted space for Māori women and whānau in contemporary Aotearoa/New Zealand. Colonisation has acted to significantly corrupt a traditionally empowering and healthy philosophy of Māori motherhood. This research draws on Māori and indigenous legal theories, on mana wahine theories and on kaupapa Māori theories in its analysis. It unpacks some of the specific legislative and policy initiatives introduced by the state that have served to undermine traditional Māori maternities and maternal wellbeing. In the face of a comprehensive and targeted colonisation process, Māori maternities have survived and continue to be a site of resistance and empowerment for Māori whānau. Despite the best attempts of the state to undermine Māori maternal wellbeing, Māori whānau have continued employ strategies of resistance and resilience, and to find ways of mothering that reflect our traditional philosophies. Māori 26 July 8 - 10 Hui Whakapiripiri 2014 This paper draws on the distinctive Indigenous approach to knowledge-gathering used in my postdoctoral research between 2009 and 2012. Although not new to Māori or other indigenous communities, indigenous storytelling (‘kōrero’, ‘yarning’ and ‘sharing circles’) was used to explore Indigenous interpretations of mental health experiences and the meanings attached to them. The collective understandings of 100+ elders, health service providers, researchers and other experts in indigenous mental health from across Aotearoa, Australia and Great Turtle Island (North America), melded with my own personal and professional experience as a wahine Māori, resulted in the identification of a number of commonly significant areas of importance for indigenous well-being. The research exposed both historical and contemporary barriers that inhibit the health and well-being of indigenous whānau and weaken their potential to thrive, but more importantly, generated positive findings about successful approaches to whānau healing and keeping whānau well. The research’s embrace of mātauranga Māori and wider indigenous wisdom facilitated innovative thinking to inform alternative approaches to Māori mental health policy and practice. The learnings gained, shared in a ‘storybook’ entitled ‘Sharing Our Space: Stories of Indigenous Wellbeing’, which is due for publication in September, will be expanded on in this brief presentation. Presenter: Dr Mere Kēpa Ngāti Whātua, Ngāpuhi, Ngai Tūhoe, Whakatōhea The University of Auckland Co-presenters: Mrs Betty McPherson Mrs Leiana Reynolds Te Rārawa, Te Aupōuri The University of Auckland Ngāti Rēhia, Tūwharetoa The University of Auckland Dr Waiora Port Te Rārawa, Te Aupōuri The University of Auckland And never be ashamed to act on principles Te Puāwaitanga o Ngā Tapuwae Kia Ora Tonu/Life and Living in Advanced Age: A Cohort Study in New Zealand (LiLACS NZ) is the only study of Māori women and men aged 80 to 90 years old, in Aotearoa New Zealand. The research is the only study of indigenous peoples of advanced age, in the world. The authors argue that the principles of courage, honour, courtesy, sincerity, and generosity are the body and spirit of the area of research conducted with Tangata Whenua or the earliest people of Aotearoa New Zealand who migrated from the ancient homeland of Rangiātea. In the quantitative investigation, these principles frame a kaupapa Māori ethos of research related to translating questionnaires and documentation that require ethical and moral conduct. The purpose of the presentation is to illustrate a bilingual, bicultural practice of translation in the research area of health and ageing. The focus is on relationship, commenced in 2010, to translate the LiLACS NZ’s documents from English language and scientific inquiry to Māori language and culture by members of Te Rōpū Kaitiaki o Ngā Tikanga Māori, the protectors of principles of conduct in Māori research in the study funded by the HRC. Reference Kēpa, M., Kēpa, C., McPherson, B., Kameta, F., Kameta, H., Port, W., Loughlin, H., Smith, P., & Reynolds, L (in review). E kore e ngāro ngā kākano i ruia mai i Rangiātea: the language and culture from Rangiātea will never be lost in health and ageing research. AlterNative an International Journal of Indigenous Peoples. Ngā Pae o te Māramatanga. Presenter: Dr Margaret Dudley Te Rarawa, Te Aupōuri, Ngāti Kahu AUT University Māori experiences of neuropsychological assessment The presence of cultural bias in neuropsychological testing is well established. In this study we aimed to (a) explore whether any aspects of Māori culture had been included in the assessment process, and (b) determine if the assessment had been culturally appropriate. Method: This qualitative study used semi-structured interviews encompassed in a kaupapa Māori framework. The sample comprised of 16 Māori, balanced for gender, urban and rural demographic variables. Age range was 16 years to 64 years. All participants had suffered a traumatic brain injury ranging from mild to severe. Eligibility criteria included: Research design: A qualitative study using semi-structured interviews that were digitally recorded and transcribed. Thematic analysis was used to identify themes. Results: The four themes identified were: positive experiences, cultural invisibility, having little or no choice, and preferred ways of doing things. Conclusion: Minimal enquiry into the participants’ cultural background took place. However, the participants wanted to include more aspects of Māori culture both in the content and the administration of the measures. There was a clear preference to be assessed by a Māori neuropsychologist. Presenter: Mr Steve York Ngāpuhi, Ngāti Raukawa, Ngāti Tūwharetoa Northland District Health Board Other authors: Nick Garrett Te Kani Kingi Ngāti Maniapoto AUT University Ngāti Pukeko Massey University, Wellington Te tirohanga o ngā poronga waewae nā te matehuka – he haerenga o tētahi Kaitiaki Waewae. Examining diabetes related lower limb amputations – a Māori podiatrist’s journey New Zealand’s diabetes population is increasing at an alarming rate. The prevalence rate for Māori is higher than non-Māori (7.8% vs 5.3%). The risk of irreversible longterm complications is considerable – increasing lower-limb ulcerations, amputations and subsequent mortality. This causes significant health, social and economic consequences for the individual and their whānau. These issues were evident in the clinical environment and initiated a Māori podiatrist to examine the extent of this problem for Māori in Te Tai Tokerau. With a HRC Māori Health Research Summer Studentship, a study was undertaken to research trends of diabetes-related lower-limb amputation in Northland from 2000 to 2010. Findings highlighted that of 708 amputations performed over this period, 400 were diabetes-related (212 individuals). Inpatient costs were $5.7M. Māori had more amputations than non-Māori. Approximately half of the individuals had multiple amputations and 50 per cent did not survive more than four years post-amputation. Following this studentship, a HRC Māori Health Research Master’s Scholarship was awarded to further investigate these issues, undertaking an observational study on mortality outcomes for Māori following amputation (nationally). Analysis will examine potential risk predictors to provide preventative management for improved health outcomes. This presentation outlines how HRC funding has supported a Māori podiatrist’s journey towards research-based solutions and developing Māori health research capacity and capability. (1) self- identification as Māori, (2) had been assessed within the previous 5 years, and (3) had good recall of the assessment. Hui Whakapiripiri 2014 July 8 - 10 27 Presenter: Dr Sue Crengle SESSION FOUR Kāi Tahu, Kāti Mamoe, Waitaha Waitemata District Health Board Co-presenter: Dr Vanessa Selak The University of Auckland Presenter: Dr Fiona Cram and Dr Paula King Other authors: Matire Harwood C. Raina Elley Ngāpuhi The University of Auckland The University of Auckland Chris Bullen The University of Auckland Designing and conducting a clinical trial that supports Māori participation: Learnings from the IMPACT (polypill) trial Māori are disproportionately affected by cardiovascular disease (CVD), which is the main reason for the eight year difference in life expectancy between Māori and non-Māori. The primary care-based IMPACT (IMProving Adherence using Combination Therapy) trial evaluates whether fixed dose combination therapy (a “polypill”) improves adherence to guideline-based therapy compared with current care among people at high risk of CVD. Interventions shown in trials to be effective do not necessarily reduce ethnic disparities, and may in fact widen them. Indigenous populations with poorer health outcomes are often under-represented in trials, so the effect of interventions cannot be assessed for them, specifically. Therefore, the IMPACT trial aimed from its inception to ensure that the design and implementation of the trial supported Māori participation and allowed us to specifically examine the effect of the polypill for Māori with CVD. We will discuss the processes used in the design and implementation of the trial and the effects of these on recruitment and retention of Māori participants. Lessons for other researchers undertaking clinical trials in New Zealand will be shared. Ngāti Pahauwera Katoa Ltd Improving Māori access to health care The focus of the improving access research project was the contribution that health services can make to the reduction of Māori health inequalities through ensuring equity of access to health care. The project focused on cardiovascular disease, diabetes and cancer, and had three objectives. (1) Increase the health sector’s understanding of the issues affecting Māori access to health services; (2) Provide an evidence base for action to improve access to health services for Māori; (3) Provide solutions to improve access to health services for Māori. Māori access to health care is about the entry of Māori into health care, as well as their journey through health care. Overcoming financial and logistical barriers to access is important, as is facilitating Māori access through intermediaries, such as community health workers who have time to build relationships. Changes in health organisation policies, structures and practices can further improve Māori access when the changes reflect an understanding of Māori health needs and aspirations. The health system can support Māori health care access by articulating expectations (through strategy, policy and funding formulas) that health organisations will engage with Māori in the development, implementation, and monitoring of local initiatives to improve Māori access to health care. Presenter: Associate Professor Beverley Lawton Ngāti Porou University of Otago, Wellington Other authors: James Stanley Sally B. Rose University of Otago, Wellington University of Otago, Wellington Sara Filoche Sue Garrett University of Otago, Wellington University of Otago, Wellington Bridget Robson Ngāti Raukawa University of Otago, Wellington Wāhine hauora: Early identification of infants at risk of hospitalisation for respiratory disease Background: Respiratory diseases are a significant contributor to morbidity and mortality of infants of Māori mothers. Aim: To identify maternal and birth-related factors that potentially predict subsequent infant hospital admissions for respiratory disease. Methods: A retrospective analysis was conducted of public hospital data (54,980 births between 1995 and 2009) from the Wellington region. Results: 53,312 infants were included in the data analysis set 28 July 8 - 10 Hui Whakapiripiri 2014 with 6.4% of infants (3,435 infants) admitted to hospital for respiratory illness at least once in the first year of life. Infants of Māori and Pacific mothers (reference group New Zealand European) had substantially higher rates of admission (for Māori, crude RR = 3.42, 95% CI 3.11, 3.75; for Pacific, crude RR = 3.79, 95% CI 3.45, 4.17). At a maternal age of 17.5, infants of Māori women had a rate of hospitalisation three times higher than for infants of New Zealand European women (RR = 3.08, 95% CI 1.57, 6.04). Increasing levels of deprivation and maternal smoking status were associated with increased rates of hospitalisation. Conclusions: This evidence supports prenatal interventions to improve health outcomes for the infants of Māori and Pacific mothers. members in an effort to understand the appropriateness and effectiveness of siting food gardens on urban marae. The results of the proposed research will contribute to providing an understanding of the essential conditions needed to achieve wellbeing outcomes for indigenous people. Presenter: Ms Renee Davies Ngāi Tūhoe, Ngāti Raukawa Kokiri Marae Keriana Olsen Trust Other author: Christine Roseveare Regional Public Health, Hutt Valley District Health Board Presenter: Dr Marilyn McPherson (Brewin) Te Rarawa, Te Aupōuri, Ngāti Kahu Ngā Pae o te Maramatanga It takes a community to raise a child like ours: One in a million, the diagnoses. My research was launched on 26 March, 2014 as the opening seminar for the 2014 Horizons of Insight Seminar. If accepted, this will be my second presentation based upon my research. This presentation will be based upon the Diagnoses, which led to the recognition of Kyle’s condition: San Fillipo Syndrome. San Fillipo Syndrome is a rare disease or orphan condition which a child inherits from the genetic material carried by both parents. My presentation will discuss the ongoing series of visits to numerous doctors, based upon his maternal grandmother’s ongoing fear that something was not right with him. Although very happy in himself and couched within a whānau who loved him, his freedom to enjoy his life and be himself, with parents who thought everything was fine, with a grandfather who thought he was “one in a million”, his grandmother continued to worry. This worry would be the trigger which led to the eventual diagnosis of San Fillipo Syndrome, which marked him truly as “one in a million”. Presenter: Ms Kimiora Raerino Ngāti Awa, Rangiwewehi The University of Auckland Beyond the workshop – Next steps to building practice research skills and capacity for new Māori health researchers This presentation shares the experience of a 2013 “on a shoestring” pilot programme to develop research skills in a Māori health organisation. The programme was based on an “operational research” (practice research) training model which has achieved promising results in the Pacific. The Pacific model combined hands-on workshops on different aspects of the research process, with between workshop mentoring over a year to reach a final milestone of submitting a paper to a journal. Our scaled down programme took participants over nine months from the initial stage of identifying and planning a small project through to writing a report and presenting findings. The aim was to ‘use not lose’ workshop learning by supporting participants to apply their new knowledge and skills to a project that benefitted their organisation. The programme involved three provider organisations (Regional Public Health, SHORE Whaariki and Parker Duignan) and two community organisations (a Māori provider and a PHO). The presentation will present costs, benefits, strengths from the perspective of a participant (Renee Davies, Kokiri Seaview) who completed an evaluation of a Māori parenting project for this programme, and public health trainer/mentor (Christine Roseveare). Results of the pilot evaluation, (due in June) will be included if available. Marae food gardens – Health and well-being through urban marae in Tāmaki Makaurau This is a HRC project, and my PhD research. I am exploring the influence of culture and the importance of locational context to indigenous participation in health promotion, as evidenced in food gardens situated on urban marae. I contend that the site of health promotion is pivotal to indigenous participation, and that co-locating the pursuit of healthier activities on culturally relevant sites can contribute to wellbeing through raising cultural efficacy. Food gardens can be used as an effective healthy activity that promotes wellbeing, and siting gardens on marae may ensure that cultural factors are incorporated into the activity. Inspired by kaupapa Māori research and using a qualitative approach, I aim to provide an in-depth understanding of marae food gardens and their multi-dimensional outcomes. A narrative analysis approach will be undertaken to examine and describe the stories of the participants about their perceptions, motivations, benefits and achievements within the food gardens. I will analyse the multi-dimensional outcomes described by marae Hui Whakapiripiri 2014 July 8 - 10 29 Presenter: Mr Ronald Ngata Presenter: Dr Sue Crengle Ngāti Porou Massey University, Palmerston North Kāi Tahu, Kāti Mamoe, Waitaha Waitemata District Health Board Understanding matakite: An exploration of the health issues related to spiritual experiences Co-presenters: Ms Julia Brooking The term “matakite” refers to a Māori cultural experience of heightened intuition. It is the experience of “second sight” recognised by cultures around the world. This presentation will reveal the findings of a doctoral thesis that made a kaupapa Māori exploration of the health issues related to this experience. The study reveals new understandings about the nature of matakite, which may support efforts to distinguish it from pathology. Multiple factors are identified as impacting upon the wellbeing of people experiencing matakite. The impact of social, political, and cultural factors upon the wellbeing of people experiencing matakite are identified, and possible strategies for enhancing and protecting wellbeing are discussed. To this end the study challenges the norms and structures in mainstream western mental health and highlights how traditional Māori knowledge about matakite can be used as a resource for mental health in Aotearoa New Zealand. Ngāti Porou Ngāti Porou Hauora Presenter: Dr Nina Scott Ngāti Whātua, Waikato The University of Auckland Other authors: Charis Brown Chunhuan Lao, The University of Auckland The University of Auckland Zuzana Obertova, Ross Lawrenson The University of Auckland The University of Auckland Prostate cancer and Māori men; recent findings from six studies Prostate cancer is a top priority for Māori cancer control. Due to limited resources for Māori focussed prostate cancer research, and minimal Māori involvement in such research, until recently, academic discourse on Māori prostate cancer was largely limited to descriptive epidemiology and victim blaming analyses. In 2010, following a 2009 Select Committee Inquiry, the University of Auckland’s Waikato Clinical School gained funding for research on prostate cancer for Māori and non-Māori men. Starting in March 2011, Māori, academic and consumer groups were established. Four studies were completed looking at; 1) national trends in prostate cancer over time; 2) patterns of PSA testing in primary care; 3) management for localised prostate cancer,;and 4) costs and complications of treatment, including the impact on men and whanau. In 2012 the team received funding from Janssen-Cilag a subsidiary of Johnson and Johnson for research on metastatic prostate cancer, which involved three studies; 1) National trends in management of metastatic prostate cancer; 2) Pathways and cost of care for a cohort of men with metastatic prostate cancer; and 3) treatment barriers for metastatic prostate cancer from the perspective of a cohort of men. This presentation will contain an overview of these studies, including key findings for Māori and recommendations. 30 July 8 - 10 Hui Whakapiripiri 2014 Ms Lisa Reddy Waikato Tainui, Fijian Te Hononga o Tamaki me Hoturoa Other authors: Michelle Lambert Susan Reid Ngāti Kahungungu The University of Auckland Te Rarawa Workbase Jennie Harre Hindmarsh Marion Hakaraia Ngāti Porou Ngāti Porou Hauora Ngāpuhi Te Hononga o Tamaki me Hoturoa Improving health literacy about cardiovascular disease medications – implementing a clinical trial in two Māori providers and summary of results This project was funded by the International Collaborative Indigenous Health Research Programme funded by the HRC, NHMRC (Australia) and CIHR (Canada). We have designed and implemented a clinical trial with the aim of improving health literacy about cardiovascular disease (CVD) medications among Indigenous people and take these medicines. In phase one we conducted in depth interviews with patients to identify the scope, content and nature of the intervention that would be trailed. The intervention itself is a programme for use by nurses and includes training for the nurses, a written resource for patients, and the use of a tablet app to structure and guide the intervention sessions and print out resources for the patient. After development we implemented the trial in two Māori providers (Te Hononga o Tamaki me Hoturoa in Auckland and Ngāti Porou Hauora on the East Coast. We will present the process used in the design of the project, the development of the intervention and the implementation of the trial. We will also discuss participant recruitment and retention, and staff development. The trial results are very exciting and we will also provide an overview of these. Finally we will discuss what steps are being taken/can be taken to implement the intervention in an on-going way in these providers and more widely across the sector. Presenter: Mrs Rangimahora Reddy Ngāti Maniapoto, Ngāti Raukawa, Ngāti Rangiwewehi Rauawaawa Kaumatua Charitable Trust Co-presenters: Mr Beau Haereroa Ngāti Porou Te Runanga o Kirikiriroa Mrs Kay Berryman Ngāti Maniapoto Waikato-Tainui College for Research and Developmen Optimising the palliative care pathway: Kaumātua and whānau communication aspirations Māori perspectives toward the end-of-life journey centre on balance, unity, and harmony (Ngata, 2005). The living and spiritual worlds are connected and the end-of-life journey is about ensuring a person’s wairua has balance, calm, and connection to whānau on its journey to the spirit world (Ngata, 2005). In our research Māori Health Literacy and Communication in Palliative Care: Kaumātua led models we sought to identify key communication practices that contribute to Māori health literacy and kaumātua and whānau experiences of palliative care. The need to do this research was kaumātua inspired. The research methods included kaumātua interviews and whānau hui. For the purpose of this presentation, we focus on four communication tensions experienced by kaumātua and whānau; a) tino rangatiratanga and tino whānaungatanga (autonomy and connection); b) conflict and connection; c) isolation and connection; and d) balancing needs of self and other. Managing these tensions helps to facilitate kaumātua and whānau communication aspirations during this critical time. It also supports end-of-life journey aspirations for connection and helps to optimise the palliative care pathway for kaumātua and whānau. Hui Whakapiripiri 2014 July 8 - 10 31 Ngā mihi maioha | Thank you Ki ngā ipu mareikura me ngā ipu whatukura. He mihi tenei nā mātou nā te komiti Hauora Māori mo a koutou āwhina manaaki hoki ia mātou kia rewa totika te kaupapa nei ki tōna taumata. The HRC and the Māori Health Committee would like to acknowledge the support provided by participants of Hui Whakapiripiri 2014. We also thank our generous sponsors for their support of the hui. Without your attendance and support, the hui would not be possible. We hope that you enjoy the hui and the opportunity for engagement with colleagues and friends. Health Research Council of New Zealand Te Kaunihera Rangahau Hauora o Aotearoa Phone: +64 9 303 5200 Fax: +64 9 377 9988 Level 3, 110 Stanley Street, Auckland 1010 PO Box 5541, Wellesley Street, Auckland 1141 www.hrc.govt.nz
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