SHIREFORADN16548_UB_PE_brch.27.eb Understanding High Phosphorus and 9/22/06 3:13 PM Your Treatment Options was funded nal grant fro m Page 3 SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:13 PM Page 4 Important Information Just For You Sound it out: hi-per-fos-fa-team-e-ah A Guide To Understanding Hyperphosphatemia Hyperphosphatemia means “high phosphorus.” You, or someone you know, has been diagnosed with high phosphorus, and this brochure is designed to help you learn about how to treat this condition. 2 SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:13 PM Page 5 mation For You In this brochure, you will find out about: 4-5 How your kidneys work 6-7 High phosphorus and how it affects you 8-9 Treating your high phosphorus 10-11 Healthy eating, and a tasty recipe Fold-out Additional resources and glossary ➜ Words inboldface are defined in the glossary. 3 SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:13 PM Blood with waste Clean blood Waste Your kidneys clean (filter) your blood– removing waste products and extra water 4 Page 6 SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:13 PM Page 7 KIDNEYS: Your body’s cleaning system Your kidneys are cleaning centers for your blood. They remove waste products and extra water that would otherwise build up. Much of this waste comes from the food you eat. Your kidneys control how much phosphorus (foss-for-us) stays in your body. Among other things, kidneys help control your blood pre s s u re, strengthen your bones, and maintain your general health. CAUTION When kidneys fail to clean your blood properly, waste products build up, and your health may suffer. You may then need to change your diet, or begin a treatment routine — such as dialysis or medication. 5 SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:13 PM Page 8 Phosphorus Good and bad Phosphorus — in proper amounts — is important for the growth and maintenance of your body tissues and bones. Phosphorus is released from food into the stomach during digestion, and is then absorbed into the blood stream. Phosphorus is commonly found in foods such as dairy, red meat, fish, poultry, eggs, and nuts. Important substances for your overall h e a l th — such as p rotein, calcium and vitamin D — are found in foods that contain phosphorus. 6 SHIREFORADN16548_UB_PE_brch.27.eb E f f e c t s 9/22/06 3:13 PM Page 9 o f High Phosphorus You may not experience any symptoms from high phosphorus, but serious problems may be occurring. Here are some of the complications you may experience. Daily irritations The following may become daily irritations: • itchy skin • red eyes • bone pain • joint pain Serious problems More serious problems may develop, such as: • bone disease • heart disease • buildup of mineral deposits in your kidneys, heart, blood vessels, lungs, eyes, joints, and skin 7 SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:13 PM Page 10 Treating High Phosphorus There are several ways to treat high phosphorus. Phosphorus DIET: Your healthcare provider will recommend a diet low in phosphorus. Certain foods may be substituted for others, but you can still enjoy what you eat. DIALYSIS: Dialysis does some of the cleaning normally done by healthy kidneys — and may take place in your home or a medical setting. MEDICATIONS: Your healthcare provider may also prescribe any of several phosphate (foss-fate) binder options. Phosphate binders “attach” to phosphorus and are removed through the bowels. 8 SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:13 PM Page 11 How phosphatebinders work Like magnets, phosphate binders “bind” to phosphorus as it Phosphate travels through the stomach binder and digestive system, before it can be absorbed into the blood stream. Then, the bound phosphorus is removed through the bowels. Some phosphate binders may be tablets or pills that are swallowed, while others a re chewed. Some require taking more tablets or pills than others. Speak to your healthcare provider about what choice is best for you. Your healthcare provider will tell you: • How many tablets to take each day • When to take your medication • What to expect from treatment These medications work best when taken during or right after a meal. This may help lower the risk of side e ffects — such as nausea. 9 SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:14 PM Page 12 Eat healthy, Eat well! These are foods you can include in your low phosphorus diet: Non-dairy creamer, sorbet, sugar cookies, beef (and other red meats), and white bread Some foods with phosphorus create m o re problems than others, such as: Dairy (milk, cheese, ice cream), chocolate, dark cola, and whole wheat bread But your new diet doesn’t have to be boring. Here are some tips to help you enjoy the foods you love: • Fill omelets with vegetables • Top pasta with garlic and butter, not meat sauce • Eat chicken or fish instead of pork Ask your dietitian for more ideas! 10 SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:14 PM Page 13 Let’s get cooking! Aunt Betty’s Blueberry Pancakes 11⁄2 cups sifted plain all-purpose flour 2 teaspoons baking powder 3 tablespoons sugar 1 cup buttermilk 2 tablespoons no-salt margarine, melted 2 eggs, slightly beaten 1 cup canned or frozen blueberries, rinsed Sift flour, baking powder, and sugar into a mixing bowl and stir. Add remaining ingredients and stir until smooth. Begin cooking immediately. Heat a heavy skillet and grease lightly using a non-stick cooking spray. Spoon out pancakes and cook until done, flipping once. Top with fresh fruit or warmed jam and enjoy! Adapted from: Kidney Friendly Comfort Foods. August 2005. 11 SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:14 PM Page 14 Know More! ADDITIONAL RESOURCES Several educational resources are listed below, but remember: your healthcare provider is always the first person you should seek out with questions about your condition. American Association of Kidney Patients (AAKP) 3505 E. Frontage Road, Suite 315 Tampa, FL 33607 (800) 749-2257 www.aakp.org American Kidney Fund (AKF) 6110 Executive Blvd., Suite 1010 Rockville, MD 20852 (800) 638-8299 www.kidneyfund.org National Kidney Foundation (NKF) 30 East 33rd Street New York, NY 10016 (800) 622-9010 www.kidney.org National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) 3 Information Way Bethesda, MD 20892-3580 (800) 891-5390 www.kidney.niddk.nih.gov SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:13 PM Page 1 Glossary H e re you will find definitions of the bolded t e rms in the text. Calcium A mineral that gives strength to bones and teeth and has an important role in muscle function, blood clotting, and nerve function Hyperphosphatemia A condition that results when the levels of phosphorus in the blood get too high, which can happen when the kidneys are unable to filter the blood properly Mineral deposits Buildup of minerals such as calcium and phosphorus in the tissues or bloodstream Phosphorus An essential mineral that is found in foods and used in all body tissue and bones Protein An essential substance for the growth and repair of body tissue Vitamin D A substance in the body that works closely with calcium; also supplied by foods and supplements This brochu by an educat SHIREFORADN16548_UB_PE_brch.27.eb 9/22/06 3:13 PM Page 2 Stickyourwith treatment plan Medications can be difficult to take, but you should take any and all medications exactly as instructed by your healthcare provider. Following the treatment plan can make a big diff e rence in controlling your phosphorus and overall health — so stick with it! And if you have any questions, ask your healthcare provider. He or she will be happy to help you. This brochure was funded by an educational grant fro m American Association of Kidney Patients (AAKP) 3505 E. Frontage Road, Suite 315 ● Tampa, FL 33607 (800) 749-2257 ● www.aakp.org ©2006 Shire US Inc., Wayne, Pennsylvania 19087 FOS1008 08/06
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