ABSTRACT PerceptionsofHealthcareinRuralGuatemala:TheK’icheStoryofModern Medicine MorganRaley Director:Dr.LoriBaker,Ph.D. AmongtheK’icheMayapeopleofMomostenango,aruralcityinhighland Guatemala,theperceptionsofhealthcarearecomplicated,diverse,andvery rarelyinvestigatedorassignedappropriatemeaning.Byinterviewingboth localmedicalprofessionalsandMayanpriestsinthesummerof2013, researchwasperformedtoseehowtheseculturalperceptionsaffectthe efficiencyofhealthcareintheregion.Byevaluatingtheseinterviews,itcan bedemonstratedthattheK’ichepeopleandmodernmedicalprofessionals havemanyobstaclestoovercomeinordertoachieveaunifiedhealthcare system,whichisbothinlinewiththegovernment’srecommendationsandis culturallyapplicable.Whilethesesolutionscouldnotberesolvedwithinthe limitsoftheresearch,itismyhopethatthegatheredresearchcanbe accumulatedforfutureendeavorstowardthesegoals. AP PPROVEDB BYDIRECTO OROFHONO ORSTHESISS: Dr.LoriBaaker,Anthroopology PPROVEDB BYTHEHON NORSPROGR RAM: AP Wisely,Director Drr.AndrewW DATE: PERCEPTIONSOFHEALTHCAREINRURALGUATEMALA: THEK’ICHESTORYOFMODERNMEDICINE AThesisSubmittedtotheFacultyof BaylorUniversity InPartialFulfillmentoftheRequirementsforthe HonorsProgram By MorganRaley Waco,Texas May2014 TABLEOFCONTENTS Acknowledgments......................................................................................................................iii Dedication………………………………………………………………………………………………..iv ChapterOne:LiteratureReview………………………………………………………………..1 ChapterTwo:MethodsandMaterials……………………………………………….……..10 ChapterThree:DiscussionandFindings…………………………………………….....…16 ChapterFour:Conclusions……………………………………………………………..……….28 Appendix……………………………………………………………………………………………….31 References….……………………………………………………………………………………….…47 ii ACKNOWLEDGMENTS IwouldliketothankDr.GarrettCookforhissupervisionthroughoutthe researchprocessandhisintroductionintothevillageofMomostenangoand itswonderfulpeople.Dr.LoriBakerhasbeeninstrumentaltothewriting processofthisresearchandthroughoutmytimeasanundergraduateat BaylorUniversitybyinstillingadesiretoseekoutthepeopleoftheworld. MyresearchgroupwhileinMomostenango,KelliBasset,TylerHale,andEllie Lastrapeswereallextremelyhelpfulincompilingdata,workingwith recordingdevices,andgenerallymakingsurethatIknewwheretogo. Finally,tothepeopleofMomostenangowhoopenedtheirhomesandtheir storiestomyresearchgroup,Iameternallygratefulfortheexperienceto knowandtoseetheirexperienceswithinthehealthcareindustry. iii DEDICATION ThisbodyofworkisdedicatedtotheK’icheMayaofGuatemala,totheir storiesofstruggleandhardshipwithinthehealthcaresysteminhighland Guatemalaandtotheirhopeforfutureprogress. iv CHAPTERONE LiteratureReview ThehealthcaresysteminmostCentralAmericancountriesisa controversialtopicofpublichealthagenciesandgovernmentalorganizations acrosstheglobe.Withdiverseethnicgroups,largeindigenouspopulations, traditionalandmodernmedicineworkinginthesamelocation,itisatopic consideredtobecomplicatedattheveryleast.ThecountryofGuatemalais situatedverynicelyintothemiddleofthisissue.Withalargeproportionof thepopulationconsistingofindigenousMayangroups,alongwithvaried environmentalzonesacrossthecountryandahistoryofdiscrimination, genocideandwar,theclashofculturalperceptionsofhealthandthe introductionoftheidealsofwesternmedicinehavecreatedaschismwithin thecountry. EmbeddedwithinthiscontroversyaretheMayaoftheGuatemalan highlands.Tuckedawayinnearly100%indigenouspopulations,these communitiesavoidsuchcomplicationsofdiscriminationandlackof understandingoftheirculturalvaluesbyeitheravoidingtheclinicalmedical settingaltogetherorbyonlyseekingmodernmedicalinterventionindire circumstances.Traditionalmedicinesandtheideaofhealingritualsand sacrificesperformedbylocalMayanpriestsisseenasmuchmorelikelyto 1 achieveasuccessfuloutcomethanvisitingthelocalclinic.Notonlyisthere anunderstandingofthedesiredoutcomeoftraditionalmedicalintervention, thereisalsononeedtoexplainanentireculturalperceptionoftheworld whenseekinghealthcarehelpfromMayanpriests.Whileillness,infections, anddiseasesremainatahighlevelofincidencewithintheregion,the indigenouspopulationslargelyresistmodernmedicalinterventionsthat couldpreventsuchhighinstances.Theideaoffutureillnessduetothe actionsofthepresentisaratherunknownconceptwithintheMayaculture. Medicalinterventionissoughtwhenthereissomething“wrong”withan individual,anditisassumedthatattimeswhentheindividualfeelshealthy thereisnoneedforanytypeofmedicalsupervision(Harvey,2008).Thus, theideaofcheck‐ups,vaccinationsagainstfuturediseasesandinfections,and preventativebehavioralmethodsareseentobeillogical,especiallywithin theconfinesoftheeconomicstandingofthemajorityoftheindigenous population. Theriseinincidenceofchronicdiseasesandthesustainedprevalence ofmalnutritioninthisregionisduetothecombinationofmanyfactors.The transitionfromlocallygrowncropsbeingthemainsourceofnutritionto foodswithmuchlargeramountsofsaturatedfatsisalargesourceofhealth concerns.Increasingincomeswithintheregionthatcomefromthe expansionofindustrializationandurbanizationhaveledtoachangeindiet thatisnotnecessarilybeneficialtotheagriculturaleconomywithinthe 2 region,andhasmuchmoreimpactonthenutritionalintakeofthe community.Combinedwithalackofphysicalactivitywhichindustrialization brings,chronicmalnutrition,increasedinstancesofobesityandtype2 diabetesandtheproliferationofotherillnessesareanaturalsideeffect (Little,2012).Suchchronicdiseasesandincreasedprevalence,specifically withinindigenouspopulationshaveledtoahealthproblemthatcould seriouslydamagetheinfrastructureofthecountry. Thewayinwhichmodernmedicineisappliedtoindigenouspeoples isalargepartoftheconflictwithinthehealthsector.Theclashofcultural idealsofhealthandwellnessandthemodernmedicaltrendtowards preventativemeasuresisalargepartoftheschism.Eventheideaofa “patient”canbeseenasanareaofconflict.Whatcannotbephysicallyseen orfeltisveryrarelythoughtofasillnesswithinthelargerMayaculture. Therefore,eventheargumentofmedicalprofessionalsseekingtohelpthose inthecommunitywhoareillcanbeasourceofconflict,orattheveryleast,a misunderstanding.Withsuchproblemsincommunicationbetweenthetwo schoolsofthought,itcanbeeasilyunderstoodwhytheMayaaresohesitant toparticipateinmodernmedicalpractices(Harvey,2008).Theideaof medicalprofessionalsbeingculturallycompetentisbecomingapriority withinthehighlandregions,specificallyamongthosewhodonotalready identifyasapartoftheindigenousculture.WitheachuniquegroupofMaya, certainattitudesandactionsmustbelearnedandpracticedinordertobe 3 culturallysalient.Learningwhateachindividualgroupnotonlydefinesas illnessandworthyoftreatment,butalsowhattraditionalmeansareusedto combatsuchillnessisaneffectivewaytointegratemodernmedical techniquesintoagroupwithefficiency.Becausemostgroupswillbe supplementingwhateverhelptheyreceivefrompublichealthorganizations andmodernmedicaltechniqueswiththeirowntraditionalmethods, knowingsuchmeanscanhelptocreateamorecomprehensiveoverviewof whatisbeingdonetothebodyandhowsuchmeasurescanbebeneficialor disadvantageouswhenmixedtogether. Inonestudy,theKaqchikelMayaperceptionof“notbeingattended” withinthemodernmedicalrealminthedepartmentofSololá,Guatemalais explored.ItisanexplorationofthepowerlessnessandfearthattheMaya encounterwhentheyarefacedwiththestruggleofparticipatinginamodern medicalsystemthathasnobasisintheculture.Thehistoryofdiscrimination againsttheMayapeoplesinGuatemalahasleftapermanentscaronthe psycheofthecountry.Thereislittletrustandaslittleinteractionaspossible betweentheindigenouspopulationandLadinos,ornon‐Maya,within communities.TheMayapeoplearesoaccustomedtobeingdeniedthesame accesstocareasotherswithintheirowncountrythatthefearoflessercare, accompaniedbyalackofculturalunderstandingonthepartofmedical professionals,allleadstotheideaof“notbeingattended”inhealthcare settings.Iftheexpectedqualityofcareisnotexperienced,thentheMayan 4 patientcanunderstandablybecomeupsetandbelievetheyarenotreceiving careatall.Whiletypicalbiomedicalprotocolmightbefollowed,the perceptionofthisprotocolcangreatlyinfluenceitseffectivenesswithinthe clinicalsetting.Theideaof“therapeuticexpectations”cangreatlyalterthe interactionsbetweenculturalideals,creatingconflictwhereitwasnot intendedandconfusionwhereitwasnotexpected(Berry,2008). Thecomplexitiescontinuetoincreaseasnon‐government organizationsandshort‐termmedicaltripsfromwesternculturesare becomingmorecommoninindigenoussettings.Inonearticle,MayaRoberts analyzestheeffectsofshort‐termmissiontripstoGuatemala,where volunteerswithnomedicaltrainingdistributeanyandalldrugstheyhave broughtwiththeminaone‐dayclinic.Thecomplicationsthatarisefromsuch asituationarenumerousandoverlapping.Givingunnecessarymedications toindividuals,confusingtheindigenouspopulation’sperceptionofcertain medications,andcreatingasituationinwhichallestablishedmedical systemsinplacecouldbebypassedareallpossibleconsequencesofsuch situations.Therealtragedyofthesituationisthatthereisnoaccountability tothepeoplethattheseshort‐termvolunteerscometoserve,astheyleave thecountrywithinonetotwoweeks,nevertoreturn.Thislackof accountability,withoutanyrealregulationorcontrolplacedonsuch programs,canwreakhavocinthesmallMayancommunitiesacrossthe country.NotonlydotheMayanolongerfeeltheneedtoworkwithinthe 5 establishedmedicalsystemsinplacebecauseoftheaccesstofree medications,buttheMayaalsobecomedependentuponsuchprogramsto maintaincertainlevelsofmedicineandmedicalinterventionwithintheir everydaylives.Dependenciesonsuchthingsasvitamins,evenvitaminsthat donotnecessarilyneedtobesupplementedpasttheirnormaldiet,cancause economictroublewithprioritiesshiftingfromfoodpurchasingtomedication purchasing(Roberts,2006).Suchdependenciesareamplifiedproblems withinthecommunitybythelackofpharmaceuticalregulationandtraining withinthecountry.InastudyperformedbyKroegeretal.,itwas demonstratedthatmanypharmacistsdonotaskthequestionsthat pharmacistsaretrainedtoask;suchaswhatothermedicationsapatientis taking,orevenrequireaphysician’sprescriptionformanydrugs.Manyof theMayapatientsarepurchasingsuchmedicinesasanti‐parasitemedication inlargequantitiesandusingitinlargerdosesthanrequiredratherthan attendingregularcheck‐upswithphysicians.Evenwhenextremelyill,many patientsareseekingtheadviceoftheuntrainedpharmacist,whodoesnot chargeforaconsultation,overpayingtoconsultaphysician(Kroeger,2001). Thesectorofsmallnon‐governmentalorganizations(NGOs)isalso risingwithinGuatemalatoday.Alotoftheproblemsassociatedwithshort‐ termclinicsandprogramscanbeseeninthissector,aswell.Theindigenous peoplewillgotosuchNGOsratherthangovernmentinstitutions,creatinga lackofcommunicationbetweentheneedsofthepeopleandthosewithinthe 6 governmentwhoworktomeetthoseneedsandtheneedsofpublichealth acrossthecountry(Maupin,2009).NGOsaredependentuponthefinancial assistanceofothers,normallycontributionsfromindividualsintheUnited Statesandotherdevelopedcountries.Whenfundingislost,thesame transientnatureofvolunteerclinicsoccurs,leavingthelocalpopulationina ratherdesperatesituation.WithmostoftheMayapeoplemakingminimum wageorless,theNGOsandvolunteerclinicsaretheonlywaytheycanafford medicationsandmedicalcarewhilenotsacrificingotherneeds,suchasfood andshelter.WhenNGOsleavearegion,theirabsencecanmeancreating moredirehealthcircumstancesthanthosethatoriginallyexisted(Rohloff, 2011).However,thegovernmentprogramsthatwouldtakeitsplacearenot necessarilyculturallyrelevantorstableeither,astheydependontheaidof othernationsandthereelectionofthosewhodirectthem. ThechangingmissionsofNGOsalsoaffecttheregion,ascertaintypes ofcareareavailableatonetimeandthenaretradedforotherareasof concerndeemedclosertowhatthosewhocontributefinanciallydeemas mostpressingintheregion.Theconfusioncreatedbytheneedtoworkwith severalNGOsaswellaspublicandprivateclinicsinordertoreceivefullcare forlifecanbepartlyresponsiblefortheMayahesitancetoparticipatein modernmedicalpractices.Thebureaucracyinvolvedinobtainingtheproper care,attheproperlyspecializedclinic,designatedforcertainlanguage 7 groupsandcertainvillagescancreatealotofthefearandmisunderstanding thatisbecomingtypicalofMayanpopulations. TheMayathemselvesareworkingtowardsreformintheprocessof healthcareinthecountry.Whenconflictaroseinthecountryinthe1970s and1980s,resultinginalargeamountofMayandeaths,NGOswereforcedto closetheirdoorsforatime.Withgovernment‐sanctionedethnocide resultinginover200,000deaths,83%ofwhichwereMaya,thegeneral distrustoftheMayatowardsthegovernmenthasremainedastrongbarrier toanytypeofeffectivehealthcarereformbeingputintoplace.TheMaya wereleftinacrisisthathascreatedalastingeffectontheoverallhealthof thepopulation.TheMayapeopleworkedinmovementsforthe1996Peace AccordstoincludethedesignationofGuatemalaasamultiethnic, multilingualcountry.Currently,thegovernmentofGuatemalaisusingthe PeaceAccordsandothermeanstocreatecontractswithNGOstobringhealth carereformtothenation(Maupin,2009). TheMayaarestillworkingtowardsabetterhealthcaresystemwithin theircommunities,citingdiseasepreventionandpovertyasthemainissues thatpublichealtheffortsshouldbefocusedon(Green,2009).However,as thedistrustofthegovernmentremainsandthebureaucracyofNGOsbecome morecomplex,theoveralllevelofhealthwithinindigenouspopulationswill continuetodecline.Withsuchissuesastheriseofchronicdiseases, increasinglevelsofpoverty,prevailingdiscrimination,andlittlegovernment 8 regulationofdistributionofmedication,suchadeclinecanbeexpectedto persist.Onlylarge‐scalehealthcarereform,ontopoftrainingofhealthcare professionalsinculturalcompetency,canchangethepatternofhealth. OnegroupofMayathathavehadverylittlehealthcareresearch preformedwithintheircultureistheK’icheMaya.Thisgroup,locatedinthe highlandsofGuatemala,isratherisolatedbutisthelargestgroupwithinthe Maya.Namedforthelanguagethattheyspeak,theK’ichehavearichcultural traditionoffestivals,clothing,food,andlanguage.However,eveninthis remotegroup,theproblemsofthenationalhealthcaresystemhave disruptedtheireverydaylives.Accesstocleanwaterisscarceandinfection anddiseaseabound.Povertyisalmostuniversalwithinthegroup,andthey havelittlerepresentationwithinthelargercommunityofGuatemala.Itisthis groupofpeoplethatarediscussedinthefollowingpages;theirperceptions ofthehealthcaresystemthathasbeenputinplacearoundtheirculture, askingthemtoconformtoastandardizedsystemthathaslittlerelevanceto theirsociety,andwhattheydeemasmotimportantwithintheideaofpublic health.BecauseofthelackofinformationontheK’iche,thisresearchwill hopefullyhelpinthemovementtowardsculturalsalienceofhealthcarein thecommunity. 9 CHAPTERTWO MethodsandMaterials Inordertounderstandthecomplexitiesinvolvedinthemedical systeminthemunicipalityofMomostenango,locatedintheTotonicapán departmentofGuatemala,andhowitisrelatedtothenationalhealthcare system,ourresearchgroupconductedinterviewswithtwolocaldoctors,a nurse,apharmacist,andaMayanpriestandhiswife,foratotaloffive interviewsspanningthehealthcaresystem’simpactinthevillage. Theinterviewswereallconductedinperson,inSpanish,andrecorded forlatertranslation.Oneofmyresearchpartners,KelliBassett,andI performedalltranslations,throughoutthefollowingweek.Interviewswere conductedinSpanishinordertoallowthosebeinginterviewedtoexpress theirthoughtsintheirnativelanguage.Interviewswereconductedunder theguidanceofDr.GarrettCook,professorintheAnthropologyDepartment ofBaylorUniversity,andwereconductedduringthemonthofJulyof2013as apartofafieldschoolconductedbytheAnthropologyDepartmentofBaylor University.Throughoutthisbodyofwork,allinterviewparticipantsare referredtobyuseofpseudonyms,inordertoprotecttheprivacyofthese individualsandtorespecttheircandidacyandgenerositywiththeresearch team.Itshouldbenotedthattheviewsexpressedaretheopinionsofthose 10 weinterviewed,andwithinthetimeconstraintsofthestudy,couldnotbe verifiedstatisticallyorbyalargersampleofthepopulation.However,the impactoftheseopinionsisstillrelevantwithintheculture,asitisthatofthe healthcareprofessionalswithintheregion,andthushasalargeimpactonthe townitself. MygroupandIsoughttoaskquestionsaboutnotonlythestability,or lackthereof,ofthemedicalsystemsetinplaceinMomostenango,butalso aboutpublicandprivateperceptionofthesepracticesandprogramswithin thecommunity.Inorderforahealthcaresystem’simpactonacommunityto beproperlyevaluated,itisnecessarytogainbothethnographicand academicresearchsources.Withbothofthesegoalsinmind,ourinterview questionswereshapedtoaddressbothoftheseareas.Ourquestionswere alsoshapedtotheindividual’sexperienceswithinthehealthcaresystem. Thedoctorsandpharmacistwereaskedaboutproceduresandstatistical information,whiletheMayanpriestandhiswifewereaskedquestions pointedtowardtheirpersonalexperiencewithandperceptionofthehealth caresystem. AlloftheparticipantswerechosenbecauseoftheirtiestoDr.Garrett Cook’spastresearchinthearea,orbecausetheywererecommendedtousby othersinthevillageasasourceofknowledge.Thedoctors,Dr.Perez,a pediatricianandobstetrician,andDr.Martinez,ageneralpractitioner,were interviewedattheirrespectiveofficeswithinthetown.Thepharmacist, 11 CallinawasinterviewedattheFarmacíaSantaAnawheresheisemployed. TheMayanpriestandhiswife,SalvadorandAngelinawereinterviewedat theirhomeontheedgeoftown.Thenurse,Alejandrawasinterviewedatthe Mayanpriest’shome,assheisthesisterofSalvador.Herinterviewwasnot recordedortranscribed,asshepreferredtogivethepaperworkthatthe organizationsheisemployedbyprovidestoourresearchgroup.Alejandra worksfortheAsociacióndeAgricultoresparaelDesarrollo“Rachoquel,”in conjunctionwiththepoliticalpartyUnidadNacionaldeEsperanza,working inclinicsandgoingtohomesinordertovaccinatechildrenandtofollowthe vaccineregimendeemednecessarybythegovernmentofGuatemala.The goalofusingtheselocationswastoallowtheintervieweeaccesstowhatever materialsandinformationtheydeemedrelevanttothequestionsaskedof them.Assuch,whileatthehomeofSalvadorandAngelina,theresearch groupwasabletolearnaboutmanyofthetraditionalmedicinalplantsused bythefamilyandtheK’icheMayawithintheregion.Thus,whilestudyingthe formalizedhealthcaresystemintheregion,wewerealsoabletogleansome ofthefolkmedicineused,aswell.Manyoftheintervieweesandtheir familiesdiscussedthecombinationoffolkmedicinewithmodernmedicine prescribedbydoctors.Whiletheeffectsofthiscombinationwouldbevery interestingtostudy,thatisoutofthescopeofthispaper.However,itshould benotedthatsucharelationshipdoesexist,andsomeoftheseplantsare catalogedsubsequently.Witheachplant,theSpanishorK’ichenamewas 12 given,dependingonthewordthewomeninSalvador’sfamilyknew,andthe medicinalpurposeandpreparationtechniquesweregivenwhenknown. Becausemanyoftheseplantshavebeenusedformanygenerationsbythe K’icheMayapeople,manyoftheplantsareknowntohavemedicinal properties,butthewomeninthefamilywereeitherunawareofsomeoftheir usesorhowtopreparethem.Thewomenknewonlythattheoldermembers oftheirfamiliesusedtheplantsintheirearlychildhood.Theoraltraditionof theseplantshasbeenslowlylosingpiecesasmoreoftheK’ichepeopleprefer tousemodernmedicineandclinicsratherthanthefolkmedicineoftheir ancestors. Asstatedearlier,alloftheinterviewswereconductedthrough relationshipswithotherswithinMomostenango.Onthefirstdayofourstay inMomostenango,theresearchgroupwasinvitedtoSalvador’sfamilyhouse tolearnwhatourbirthdayswouldbewithintheMayancalendarandto subsequentlyofferupburntsweetsandflowersinfiretoblesstheresearch experienceandourtimeinthevillage.SalvadorandAngelinaareboth currentlyworkingwithagroupofpeopletobringabouttherestorationof thetraditionalMayanwaysofceremonyandculture.Heperformssuch ritualblessingsasacourtesytoDr.GarrettCook’sstudentsinthehopethat sucheffortswillaidtheprogram,whichhehopestoturnintoasuccessful revitalizationmovement.Asitturnedout,thedayoftheceremonywasthe dayofmyMayanbirthday,orKamey.Accompanyingthisdesignationwasa 13 descriptionofwhatthisdaymeant,adayofprosperityandgivingthanksto ancestorsforfuturegood.Becauseofthiscoincidence,Iwasaskedtohelp Salvadorthroughouttheceremonyandtobeginsomeoftheproceedings. ThisalsomeantIwassplashedwithrosemaryandflower‐waterasecond timeduringtheprayer.ThiscoincidenceprovedtobemosthelpfulasI begantohaveseveralconversationswithSalvadorandAngelinabeforeand aftertheceremony.Throughthebuildingofthisrelationship,Iwasableto ascertainthemedicaldilemmathefamilycurrentlyfaced,aswellasask aboutpotentialinterviewswithinthevillage.Salvador’sfamilyknewofthree clinicswithinthevillage,andIwasabletoconductthetwointerviewsstated above.ItwasalsothroughthisrelationshipandgrowingfriendshipthatI learnedofthetraditionalmedicinalplantusesandthatSalvador’ssister, Alejandra,wasemployedasanurse.Withinsuchanthropologicalfieldwork, connectionstopeopleareoftheutmostimportanceingainingthetrustof thosebeinginterviewed.ItwasthroughtheconnectionsofSalvador’sfamily thattheseinterviewsweremadepossible.Ourrelationshipwiththe pharmacy,byfrequentingitforstomachmedicineandacetaminophen,also allowedfortheinterviewwithourpharmacistfriend.Inavillagethesizeof Momostenango,suchconnectionscanbethecruxofethnographicfieldwork. Questionswereaskedforbothspecificanswersandgeneralfeelings abouthealthcareissues,suchaswhatkindsofhealthcareareneeded,what aretheillnesseswiththemostfrequentincidencesinthearea,whatcanbe 14 donetoimprovetheseillnesses,andotherobjectiveandsubjective questions.Thesequestionswereaimedatgainingageneralknowledge abouttheregion’shealthcaresystemandthecommunity’sperceptionofit, ratherthanpurelyquantifiableinformationtobetested.Thegoalwasto understandtheculturebehindhealthcareinthearea.Ourgroupthought thatiftheculturalperceptionsofhealthcarecouldbediscussed,thenthis couldbeusedtogatherinformationforpossiblelaterstudiesinhowto improvethehealthcareinthearea,asapartofanappliedanthropology project.Whileourresearchgroupmaynotbeabletoaddresstheseissues withinthescopeofourresearch,theresearchitselfmightbeusedasapartof futureresearchandapplicationsinMomostenango.Ifthecultural motivationsbehindhealthcarecanbedetermined,thenthepractical applicationofthosemotivationswillbemuchmoreefficientandculturally inclusive.Thisisoppositeoftheapplyingthecolonialtechniqueofthepast ofstandardizedanswerstouniqueproblems.Thuswerethegoalsofour researchineachinterviewsituation.Atranscriptoftheseinterviews, translatedintoEnglish,canbefoundintheappendix. 15 CHAPTERTHREE DiscussionandFindings Theresultsoftheinterviewwereveryinteresting.Whendiscussing suchthingsasthebiggestproblemsinhealthcare,manyoftheanswerswere similar.Thedoctorsbothagreethatmalnutritionandinfections,specifically parasiticinfections,werethemostprevalentissueswithintheregionandin Guatemalaasawhole.Whilemalnutritionwasnotdefinedbyeitherdoctor, itcanbeseenthatsuchmalnutritionmeansthatthetypicaldietofpeoplein theregionislackinginthenecessarynutrientsinabalanceddiet.Themain starchstaplecropsareeatenalot,intheformsoftortillasandrice,andfried chickenisbecomingaculturalphenomenon.Intheprocessofthe demonstrationeffect,thepeopleintheregionarebeginningtoreplicatethe dietsofwesternsocieties.Throughoutthemarketplace,friedchickenstands withFrenchfrieswerebyfarthemostpopularfoodstands,andthenew pizzashopinthetownwascrowdedwithteensfromthesurrounding neighborhoods.Forthoseonthefieldschoolwithstomachsnotaccustomed tolocalfoods,theseplaceswereblessings.However,withtheyoungpeople ofthetownsupplementingtheirnativedietsofstarchandlittlenutrients withsuchfoodasfriedchickenandpizza,malnutritioncanbeseenasan obviousconclusion.Itshouldbenoted,however,thatonlythoseyoung peoplewhocouldaffordsuchmeals,thoseintheaffluentfamiliesinthe 16 town,wereseenintheseshopsandstands.Forthemajorityofyoungpeople, suchadietismuchabovetheireconomiccapabilities,meaningthateven moreoftheirdietismadeupoftwoorthreestaplecropswithlittle nutrients.Thefamilyatmosphereisveryapparentinthetown,withchildren andtheirparentsworkingtogetherinstandsinthemarketandstores.That istosay,itisnotasifthereisneglectinthewaythattheyoungpeopleare raisedup,however,educationlevelsbeinglowfortheparentalgenerationin thetown,mixedwithaclimatethatsupportsonlycertaincrops,andthe economicconditionswithinGuatemalaasawholeforcingthegrowthofcash cropsintheregionallappeartobefactorsthatinfluencethepoornutritional statusinthetown.Dr.Perezstatesthatmalnutritionisbasically“theentire problemofthecountry,”asitstemsfrommanysocioeconomicissuesandit alsoisaspringboardfromwhichthemajorityofotherillnessesinthe countrystemfrom. Othersuchhealthissuesareinfections,whicharealsoextremely prevalentintheregion.Dr.Perezsaysthatmalnutrition“leadstoinfections, bothpulmonaryandgastric,andtheseareverybadthings.Thesearethe thingsthatthepopulationseeksconsultationsforthemost.”Manywounds becomeinfectedbecauseofthelackofcleandrinkingandbathingwaterin thetown.Angelina,whohashadanabscessinherleftbreastforthepast threeyears,hashadthreebiopsiesperformedonthebreast.Each consecutivebiopsysitehasbecomeinfected,makingthesituationwiththe 17 abscessevenmoredangerous.Whiledoctorsdonotbelievethattheabscess ismalignant,theyareafraidoftheinfectionandabscesscreatingabigger problembyspreadingtoherlungsandotherareasofherbody.Thisisjust oneexampleofinfectionthatcouldpossiblybecombattedbycleanbathing water.Asitis,thewaterwithwhichAngelinabathesisfromthelocalwater source,whichisknowntobeunfilteredandasourceofparasites. PharamacistCallinaalsostatedtheproductsmostsoldattheFarmacíaSanta Anawereanti‐parasiticmedicines,followedbyvitaminsandantibiotics. Theseseemstosupportthetheoryofmalnutritionandinfectionbeingthe twobiggestinstancesofillnessinMomostenango,astheFarmacíaSantaAna isoneofthebiggestandmostcentralpharmaciesinthetown. Anotheraspectoftheculturalperceptionofthehealthcaresystem wasaddressedinourquestionsaboutvaccinations.SalvadorandAngelina believethatvaccinationsareavitalpartofthehealthoftheirchildren. However,theystatedthatthereismuchhesitanceformanyparentstotake theirchildrentotheclinicsbecauseoftheshort‐termsideeffectsthatcertain vaccinationsmayhaveonthechildren.Thegeneralillfeelingandapathy thataccompaniesmanyofthemajorvaccinationsfortheregionscaremany parentsaway,especiallybecausethelong‐termhealthbenefitscannotbe seenatthetimeofvaccination.Dr.Martinezstatedthatthereare governmentprogramsinplaceforchildrenuptofiveyearsofagetoreceivea freeregimenoftherecommendedvaccinations.However,becausemany 18 peopledo onotuseth heprogram,whentheyareincorpo oratedintoprivate clinics,su uchashisow wn,theyhavetowork thevaccinaationsintow whatever othertreatmentthechildwasb broughtintooreceive.W Whilethisissmuchmoree expensiveforthepaarent,Dr.Maartinezsayssthattherearemoreop ptions availabletothepareentintheprrivatehealth hsectorthaanthepubliccasfaras thetypessofvaccinattionsandth heiradminisstration.Nu urseAlejand dra,asaparrt ofherjob b,suppliesffamilieswith hthenecesssarypaperw worktocom mpletetheirr children’svaccinatio onrecords,aalongwithh helpfultipsforwheneachshotforr childrenunderageffivearegiveen. Figure1:PaamphletusedbytheAsociaacióndeAgricu ultoresparaeelDesarrollo““Rachoquel”fo or utiontofamiliiesintheMom mostenangom municipality. distribu 19 Thesepamphlets,likethatinFigure1,aremeanttopromotethevaccination ofallchildrenundertheageoffiveforthesixdifferentillnessesthataffect thepopulationofGuatemalathemostandaredeemednecessarybythe Guatemalangovernment.ThesevaccinationsincludetheBacillusCalmette‐ Guétinvaccination,orBCG,whichcombatstuberculosis.Thisistobegiven tochildrenatthetimeofbirth.Thisassumesthatchildrenarebornina placewherethevaccinationisreadilyavailable.Thenextvaccinationsattwo months,fourmonthsandsixmonthsarePolioandPentavalent.Pentavalent isactuallyacombinationoffivevaccinationsinoneinoculation,combatting diphtheria,tetanus,whoopingcough,hepatitisBandHaemophilusinfluenza typeB(ImmunizationUNICEF).Attwelvemonths,theMMRvaccineisgiven, abbreviatedSPRinSpanish,topreventmeasles,mumps,andrubella (Kaneshiro,2013).Ateighteenmonthsandagainatfouryears,Polio boostersaretobegiven,andwellastheDPTvaccine,preventingdiphtheria, pertussis,andtetanus(Diphtheria,2013).Itisalsorecommendedthatthese vaccinationsbesupplementedwithdosesofVitaminAeverysixmonthsand ananti‐parasiticdrugeverytwoyears.Thepamphletsaregearedspecifically towardindigenousMayapopulations,withillustrationsoffamiliesdressedin traditionalMayanclothingandavaccineregimenthataddressesthehealth issuesthatmostofthosepopulationswillencounter.Whilethesevaccines areratherstronglyrecommended,Salvador,Angelina,andbothdoctors expressedthehesitanceofthegeneralK’ichepopulationspecificallytotake 20 theirchildrentoclinicsinordertoreceivetherecommendedregimen.The fearthataccompaniesclinicvisitsisexpressedintheideathatchildrenwho havegonetotheclinicinthepasthavedied.Thestigmaassociatedwiththe clinicasaplaceofillnessanddeathdoesnothelptoincreasetheseekingof healthcarebytheMayapeople. Dr.Perezspokeofthishesitancefrequently,ashestressedthefact thatmanyK’ichepeopleprefertorelyontraditionalandfolkmedical techniques.Heestimatedthat“only5outof2,000peoplegotothedoctor.” Inamunicipalityofapproximately100,000people,thatmeansthatonly .25%ofthepopulationroutinelyseeksmedicalhelpintheregion,ifDr. Perez’sstatisticalassumptionsarecorrect.Dr.Perezbelievesthata compromisebetweenthemodernhealthcaresystemsinGuatemalawiththe traditionalpracticesoftheMayawouldbeagreatstarttotheresolvingof thisproblem.Explainingwhatthesevaccinationsmean,inthecultural contextoftheMaya,wouldhelptoincreasethenumberofchildren vaccinated,comingintoclinicsforregularcheck‐ups,andhopefullywould inspiremotherstohavesomeoftheirprenatalcaretakentotheclinics,as well.Dr.Perezalsostatedthatbysomehowcombiningthepowersofthe publicandprivatehealthcaresystemsintheregion,thechancesofchanging thecurrentpatternsofhealthindiseasewouldincreaseevenmore. Dr.Perez,asapediatricianandobstetrician,wasveryconcerned abouttheverylargeproportionofthepopulationofpregnantfemaleswho 21 receivednoprenatalcareinclinicsandreliedsolelyonmidwivesduring childbirth.Theregion’smanydifferentsocialgroupsamplifytheproblem, eachmaintainingtheirownbeliefsabouthowtraditionalmedicineshouldbe usedduringpregnancyanddelivery.Midwiveslackformaltrainingmuchof thetime,andDr.Perezsaystheydon’thavetheabilitytohelppregnant mothersduringdeliveryifamajorproblemarises.Ifmidwivessuggesteda simpleultrasound,withoneprenatalandonepostnatalcheck‐uptothe mothersthattheycarefor,manyofthesecomplicationswouldbediscovered. Dr.Perezbelievesthatworkingwithmidwives,havingthemidwifebein controlofthedeliverywhileataclinic,doctorscouldinterveneifandwhen majorproblemsariseduringchildbirth.Byallowingmidwivestohaveinput attheclinicandtoworkwithdoctors,perhapsmoreoftheMayawouldfeel comfortabledeliveringwithavailablemodernmedicaltechniquesavailable. Workingwithtraditionalmedicinesandremedieswouldalsohelpthe process.InthewordsofDr.Perez,“Alotofthetimeyouneedtobevery carefulwhenusingnaturalmedicines,butyoualsoneedtobecarefulwhen yougiveaprescription,”meaningthatusingnaturalmedicinescanbejustas helpfulasmodernpharmaceuticalmedicines,andbothshouldbeusedwith cautionatalltimes. AngelinaandSalvador’ssisterswereverywillingtosharewhat knowledgetheyhadofplantusesintraditionalmedicinalpracticesofthe K’icheMayapeoplethathadbeenpasseddowntothemfromtheirancestors. 22 WhilewaaitingforNu urseAlejand dratoarriveeforherintterview,theewomen werechaattingwitho ourresearch hgroupand dwerekindenoughtossharetheir limitedknowledgeo ofwhatthey ydescribedasoncebeingalargerepertoireof naturalm medicinesussedsinceth hebeginninggoftheK’icheculture.Allofthe plantscouldbefoun ndeitherintthefieldinffrontofSalvvador’shom meorwithin n theconfin nesoftheirkitchen. Fig gure2:Photo osfromleftto oright,topttobottom:An nís,Durazno,Ojasde Eu ucalypto,Sem millasdeEuca alypto,Gramaa,Manzanilla a,HierbaMoro,Hierba Bu uena,andPerricón.PhotoggraphsbyTyylerHale,sen nior,Anthrop pology. Astheyd describedeaachplant,piicturedabovveinFiguree2,theygavvea descriptionofitsuseesanditsprreparationss.Whilesom meofthenaameswere onlyknow wninK’ichee,theninep picturedaboovewerekn nowninSpaanish,as well,andcouldbetrranslatedfortheirEngllishnames.A Anís,oranisseseed,is 23 usedforcolicinbabiesandforstomachpains.Awomanbathesintheleaves ofthedurazno,orpeach,treeinthedaysleadinguptolaborinorderto insureasafedelivery.Ojasdeeuclaypto,oreucalyptusleaves,areusedto combatcoldandflusymptoms,suchasbodyaches.Semillasdeeucalypto,or eucalyptusseeds,areusedtoclearsinuses.Grama,orBermudagrass,isused toalleviatekidneyproblems,suchasinfectionandkidneystones. Manzanilla,orchamomile,isusedtocalmthenerves.Hierbamoro,orblack nightshade,isusedtocombatanemia.Hierbabuenaandpericón,ormintand St.John’swortrespectively,arebothusedagainststomachpainsandnausea. Otherthantheleavesofthepeachtree,alltheotherplantswerecrushedand boiledinwatertocreateatea.Theabilitiesofthesenaturalmedicinesare astounding,asIwasabletowitnessfirst‐hand.Afterdrinkingonecupofté depericón,orSt.John’sworttea,thesymptomsofnauseaandstomachpain thatIhadexperiencedfortwodayspriorweregonewithinthehour.Itis clearthatallofthewomenwhodescribedtheseplantstoourresearchgroup, andwhowerekindenoughtosharesomesamplesoftheseplantswithus, trustedfullyinthepowerofthesetraditionalmedicinestocureallsortsof ailments.Whiletheydescribedtheseplantstoourgroup,theydiscovered myratherirrationalfearofbirdsastheyreleasedthreegrownturkeys,five chickens,andseveralbabychicksintheyardtobefed.Afterlaughingfor quitesometimeatthewayinwhichIcringedandbackedmyselfintoawall inaprotectivestance,theykindlyofferedtheservicesofSalvadoranda 24 healingbathofrosepetalstocuremyselfofthisfear.Allofthewomenwere muchmorewillingtodiscusssuchmeasuresasthisthantheirexperiences withinthemodernmedicalrealmofclinicsandpharmaceuticaldrugs. Furthermore,aswomen,theytrustedtheirbodies,especiallyduring pregnancy,muchmorecomfortablytothehandsoftheirfamilyratherthan Dr.Perezandothersatclinicsinthevillage. Withintheissueofinfantmortality,birthspacingandplanning,and subsequenthealthofthemotherandchildissexeducation.Dr.Perezstated thatthereisalackofsexeducationintheregion,asparentsareunwillingto addresstheissueandareoftenuneducatedthemselves.Becauseofthis,the amountofteenagepregnanciesisincreasing.Alongwithteenagemothers beingunawareofthehealthcarethatshouldbegiventotheirchildren,they areoftenostracizedandevendisownedbytheirfamiliesbecauseofthe additionalcosttothefamilythatanewchildwouldbring.Whiletheyare unawareofhowtotakeoftheirchild,chronicmalnutritioncantakeholdin bothmotherandchild,leadingtosusceptibilitytoamyriadofotherdiseases. Therootofmanyoftheseproblemsisalackofcommunication betweenmodernmedicineandtraditionalhealingmethods,andthenotions ofcurativemedicineratherthanpreventativemedicine,alongwithcultural understandingofproperandimproperbehaviors.Becauseofthefocuson illnessthatcanbeseen,thesymptomsratherthantheactualpathologyofthe illness,theMayapeopletendtodiscounttheideasofpreventativemedicine. 25 Ifanillnesscannotbeseen,takestimetomanifest,orisnotrepresentedin physicalsymptoms,thentheMayabelievethereisnothingyettobefixed. Dr.Perezstressestohispatientstheneedforvaccinations,ultrasoundsand regularcheck‐upsinordertostaveoffillness,buttheconceptdoesnot exactlytranslateculturally.Whenthediagnosisofautismwasbroughtup, Dr.Perezsaiditwasrare,buthehadseentwocasesinthemunicipality.Itis difficultfortheparents,whohaveanunderstandingofillnessassomething physicalandcanbefixedinacertainmanner,toseeautismassomething thatdoesnotnecessarilymanifestitselfphysicallyandrequirestherapy ratherthanmedicine.Whenasked,SalvadorandAngelinasaidtheyhad neverheardofautism.Itislikelythatthereislittletonoawarenessofsuch typesofillnesseswithintheMayapopulation,atleasttheywaythatmodern medicinewoulddefinethem. PreventioningeneraliswhatbothDr.PerezandDr.Martinezsaid wouldbetheoneconceptthatcouldchangetheentiredirectionofhealth careintheregion.Ifitsadvantagescouldsomehowbetranslatedculturally totheK’icheMayapeoples,thenmanydiseasesandillnessescouldbe avoidedintheregionandinGuatemalaasawhole.However,evenifsuchan understandingevolved,withMayatraditionalmethodsandmodernmedical professionalsworkingtogether,therewouldstillbeobstacles. Momostenangoisamunicipalityofapproximately100,000peoplewithno hospital.Withouttheabilitytoperformemergencymedicalproceduresand 26 anyformofmajorsurgery,thenmortalityratesintheregionwillcontinueto riseasthepopulationgrows.Thisiscoupledwiththefactthatthedoctors seemunabletoreceiveallofthemedicationtheydeemnecessarytopromote healthintheregion,andSalvadorandAngelinabothspokeofthepopulation nothavingaccesstothemedicinethatlargermetropolitanareashaveaccess to.Theyspokeofvaccinationsreachingthetownexpiredorininsufficient doses,aswellasbeingsimplythewrongtypeofmedicationthatdoctorsand clinicsordered.Thishaspromotedthedistrustofthegovernmentandits healthcareprograms,whichcreatesthecycleoflackofclinicuse,lackof healtheducation,andincreasingincidencesofinfectiousandchronic diseasesinthepopulation.Overall,thesystemseemstobeinapositive‐ feedbackloopofpromotingdistrustandloweringefficiencyinitscultural context. 27 CHAPTERFOUR Conclusions ThroughthereviewofliteratureandtheresponsesoftheK’icheMaya peopleandtheirhealthcareprofessionalsinMomostenango,itcanbeseen thatthereisaratherlongwaytogotowardshealthcarereformthroughout theentirecountryofGuatemala.Theperceptionofagenerallackofstandard healthcareandlackofaccesstoimprovingthissituationcanbeseen throughouteachinterviewandcomponentofliterature. Suchinterventionsastheopeningofahospitalwithinthecommunity andincreasingpublichealtheducationmeasureswouldservetobetterthe generallevelofpublichealthwithinthecommunity.Othermeasuresthatgo beyondthespecificscopeofhealthcarewouldbeincreasedaccesstoclean waternotonlyfordrinkingandcooking,butalsoforbathing,andsometype ofeconomicreformwithinthecommunitytodecreasethelargelevelof povertythatpervadestheculture.Oncesuchbasicissuesasincreasedaccess tohealthyamountsofnutritionandshelteraremet,thenthepossibilityof interactingatagreaterlevelwithinthehealthcaresystemcanbeachieved. Thescopeofthisresearchwaslimitedinsizeanddepthbecauseof constraintsontimeandalackofhealthcareresourceswithinthesmall villageofMomostenango.However,thisresearchcanserveasastarting 28 pointforfutureresearchintheareaastospecificdiseasesandinfections withinthecommunityandhowtheywouldworkwithinthesystem. Areasthatshouldbeexploredwithinfutureworkscouldincludethe combinationofsocialandeconomicpressuresandtheeffectthattheyhave onhealthcareefficiency,especiallywithinruralsettings.Whatwasnever mentionedinanyoftheinterviewswasdiscriminationagainsttheMaya peopleasareasonfordistrustandfearofpublichealthandgovernment programs.Thereasonforthislackofexplanationmaysimplylayinthefact thatallparticipantswerenewlyacquaintedwithourresearchgroup. However,itappearstobevitaltotheprocessofhealthcarereformthatpast violenceandgrievancesplayalargepart.Overall,theperceptionofhealth carecannotbeisolatedfromtheeffectsofotherareasoflifeandtheoverall historyofacountry.Addingingovernmentandinternationalrelations furthercomplicatesthematter,alongwiththeincreasingmigrationof indigenouspopulationstourbancentersandeventoothercountrieswith greatereconomicprosperity.However,long‐termethnographicresearchcan helptodeterminehowallofthesesituationsaffecttheK’ichecultureona long‐termbasis. Otherareasofresearchmayalsoleadtothepracticalapplicationof programsandreformwithinthecommunity.Whilethisisoutofthescopeof anthropologicalethnographicfieldwork,itmaybepossibletocreatereform withinthecommunitywhilemaintainingtheculturalintegrityoftheK’iche 29 byfirstunderstandingtheculturalconceptionsoftheworldandthe interactionsandbehaviorsthatthesepeopleperform. TheK’ichepeopleareanextremelykindandgenerousgroupof peoplewhowerewillingtosharepartsoftheirliveswithourresearchgroup inordertoexplaintheirstrugglesandhopes.Itismyhopethattheysomeday cangainthereformandchangewithintheirhealthcarecommunitythatthey stronglydesire. 30 APPENDIX 31 TranscriptofInterviews InterviewwithSalvadorandAngelina Date:6‐25‐13 Salvador:Naturalmedicineisusedalotandisveryimportantinthecenters andbarreosofMomostenango.ThereisalotofhepatitisArightnowinthe town.BarreoSantaCarolinaandSantaAnnaarethetwobarreosmost affectedbyhepatitisA.ThekidsaremostaffectedbyhepatitisA.Thecause isdirtywater,specificallywaterusedbybothpeopleandanimals.InSanta Annatherearemorethan20casesofhepatitisA.Therearetwentypeoplein thehospitalfromSantaCarolina.Iheardsoonthenews.Thereisa vaccinationforhepatitisAavailable.Thedoctorscomedoortodoortogive thevaccine,butpeopleeitherdonotanswerorsictheirdogsonthem.People donotanswerthedoorbecausepeopledonotunderstandthediseaseorthat theweatherchangingcausestheillnesses.Thegovernmentgivesalotof medicinetotheclinics,buttheclinicsdonotgiveitoutuntilthemedicine expires.Ithinkitwouldbebetterifthegovernmentwouldgivechildrenthe vaccinesattheschoolswithouttheparentspresenttointerfere.Thelaw requiresthedoctorstogodoortodoorbecauseparentalconsentisneeded. Thereasonparentsresisthavingtheirkidsvaccinatedisduetotheshort termaffectsofvaccinationsuchasstomachpain,headpain,andnotwanting towalk. 32 Researcher:Haveyouhadanyproblemswithyourownkidshavingshort‐ termeffects? Salvador:Wedonotwaitforthedoctorstocometoourdoor.Webringour childrentothemedicalcenter.Wefollowthedoctor'svaccinationschedule anddonotalterthevaccinationregimen.Whentheygetvaccinationsthereis sometimesamarkorsomeswellingorpain,butitgoesaway.Wehave immunizationcards.MysisterworksforUNE[UnidadNacionalde Esperanza].UNEworksinareascloseandfarfromMomostenangoinorder tofigureoutwhatthebiggesthealthproblemsareintheseareas.Thebiggest problemisaccesstogoodmedicine.Thereisplentyofmedicinehere,butnot therightpeoplehaveaccesstoit,ormostpeopledonotknowhowtoaskfor it.Therearealotofsicknessestodowithlungs,butthereisnotalotwecan doaboutit.Therearepeoplewhoworkhere,buttheycannotdoalotabout theillnesses.Theyworkforpregnantladies,children,andtheelderly.There arealotofpeoplewhohavelungillnesses.Theguyweusedtobuycandles fromdiedfromalungdisease.Hisnamewas‐‐‐‐‐‐‐‐‐.Itwasn'tbecausehe smoked.Itwasthesmokefromthecandlesandofferingsthatkilledhim.The vaccinesforhepatitisAandBhelpforlungproblems.Therearealotof arthritisproblemsinMomos.Alotofpeoplewhohavearthritisusenatural medicine.TheyuseSalviaSantaandtheygotothehotbaths.Theyuse eucalyptusaswell.Theyusepeachtreeleavesandchilga.Theymakeapulp outofittorubontheirfeetandotherjointsthatarehurtingthem.Thereis 33 somethingtheyusealotnowattheHealthCenter.Becausetherearealotof stomachpainsandsubsequentvomitingbecauseofthefoodthatisnot cookedwell.Therearesomepeoplewhocookwellandtherearesome peoplewhodon't.Theyuseanisbecausetheeconomyisbadanditis cheap.Theymakeateaoutofit,addhotwaterandalittlebitofsugarandit helpswithstomachpain.Youwillnothaveanydiarrheaorstomach indigestion.Theyalsousepericónandanisdechu‐chuforstomachpains. Theyaddcinnamonandromerototheteawithanisdechu‐chu.InMomos thereisalsoalotofcolonillnesses.TheCatholicChurchanddoctorsin Momosknowofnaturalmedicineaswell:celery,carrots,andgarlic.They makeabrothoutoftheseingredients.Afteryouputitinabowlanddrinkit, yourcolonbecomescuredofinflammation. Researcher:Haveyouheardofautism? Salvador:Autism?No,Ihaveneverheardofthat. Salvador:Iamgoingtostarttalkingaboutthecaseofmywife.Shehasa sicknessinherbreast.Wewenttothedoctor.Thedoctorfirstgaveheralot ofmedicinethenlatersaiditwouldbebestifshegotamastectomy.[Showed Dr.GarrettCooktheletterfromthedoctor]. Cook:Thepapersaysthatshehasaninfectionnow.Thisisacertificatefrom asurgeonhereinMomos.Itissignedby‐‐‐‐‐‐‐‐‐‐‐‐.Thereisaninfectionin herleftbreast.Italsorecommendsthatshebeevaluatedforamastectomy, butthatsheisnotrequiredtohaveonerightnow.Thedatethiswassignedis 34 the17thofJune,2013.Rightnowtheyarerecommendingothermedicinesas well. Salvador:Sheistakingthemedicine,butitwasveryexpensive.Sonowsheis takinganothermedicineandwearewaitingtoseeifwewanttodothe operation. Researcher:Howmuchdoestheoperationcost? Salvador:4,000Q[quetzales].Thefirsttimethedoctorsawheritwas700Q. Cook:Itis700Qforeverydoctor'svisit. Angelina:[Sheshowsusherinfectedincisionsonherbreasts.]Ithasbeen twoyearssincewehavestartedseeingdoctors.Ithasbeenthreeyearssince itbegan. Salvador:We'vebeentothesamedoctorforthelastmonth. Cook:Theywenttothedoctorandheprescribedmanytreatments,butthey wentforthecheaperoption. Salvador:We'vetriedtreatments,buttheyweren'teffective.Wewenttothe doctorandhesaidthetreatmentswe'vetriedwerenotworking.Itisavery seriousconditionnow. Cook:Itsaysonthepaperitisnotacancer,butaninfectionorabscess.They areafraidwhateveritismightspreadtoherlungs.Themedicineisobviously notworking. Salvador:Itwassupposedtotaketwoyearsforittobecured.Thereare3 typesofmedicines.Oneisaninjection,thesecondistwotypesofpills,anda 35 naturalmedicinecalledcifuela.Itiswhatyouputintotamales.Shecould onlydrinkwater.Shecouldnotdrinkcoffee,tea,orchile. Cook:Shehadfivedifferenttreatments. Salvador:Atfirstitgotbetter,buttheyhadtocutittoreleasethetrapped puss.Wehadtogobacktothedoctorfortreatment.Itcost700Qtogoback tothedoctor.Aprofonisthenameofthecurrentmedicineshetakes.They thoughtitwouldworkreallywellandatfirstitwas,butasyoucantellitis nolongerworkinganymore.Butwecannotgetanothermedicinebecauseit istooexpensive.Attheendofoneyear,attheendoftwoyearswewould waitforittogetbetterandatfirstitwouldbutitneverreallydid.Nowshe hasaverybadcase.Shecannottakesomemedicationsbecauseoftheheart medicinesheisonafterthebusaccident.Ithasbeensixyearssincethebus accident. Cook:Shehashadheartproblemsforsixyearsandthisinfectionfortwo years. Salvador:Mywifeandbabyweresupposedtodieduringthataccident,but didn't. Cook:Ok,soitsbeensixyearssincetheaccident,shehashadthisinfection fortwoyears,andshehasbeentothesamedoctorforeachofherfive treatmentsandeachtimeshehasgottenalittlebitbetter,butshehasnever beencured. Angelina:Thislastmonth'svisitiswhenthedoctorsuggestedamastectomy 36 andthatshouldcureit,butIamnotsosureitwill. Cook:Ok,buthereitsaystheyarenotsureaboutthemedicineorwhetheror notsheneedsamastectomy. Angelina:Itmaybecuredwithamastectomy. Cook:Yes,buthereitsaysitisaninfection,notcancersothatismuchbetter becausecancerismuchmoreserious. Angelina:Yes,butanabscesscanproducecancer. Salvador:Wearegoingtodoanultrasoundtoseehowthingsare.The ultrasoundistoseeifitisanabscessorcancer. Cook:Soisit700Qforjustthevisitandthemedicinecostsmore? Angelina:No,the700Qisforeverything. Cook:Soithasbeen3500Qyouhavespentinthelasttwoyears? Angelina:Thetotalmedicalbillsasofnowhavebeen15,000Q. Salvador:700Qcoversavisit,ultrasound,andthemedicine. Cook:Oksheistakinganotherantibiotic,butIhaveneverheardofit.What otherkindsofcustomshasshedonetohelpit? Angelina:AtfirstIwastakingnaturalmedicines,thenItookalotofpills. Cook:Whatisyourdoctorlike? Angelina:Heisverygoodandwelleducated.Andheworksinthemedical center.Heisaspecialist. Salvador:Heisalotmoreexpensive.HeisthedirectoroftheHealthCenter. ThedoctorisfromMomos. 37 Cook:Whereistheclinic? Salvador:Idon'tknowtheaddressoff‐hand,butitcanbefoundonline. Angelina:Ihavetogotothatdoctorformyspecificillness.TherewasashotI couldhavetakenformyinfection,butitwas600Qandjusttooexpensive. Peopledieherebecausetheycannotaffordhealthcareandtreatments.There wasanoutbreakofhepatitisandpeoplediedbecausetheycouldn'taffordthe vaccines. Researcher:Dotheyprovidevaccinesonlyforchildren,butnotadults? Angelina:Nothehepatitisvaccineisnotprovidedforeitherchildrenor adults.‐‐‐‐‐‐‐‐arevaccinescoveredbythegovernment.Aftervaccinesalot lesspeopledienow. InterviewwithDr.Martinez Date:6‐27‐13 Researcher:WhatdoyouthinkofthehealthcaresysteminGuatemala? Martinez:Soyouhaveprimary,secondary,andtertiarygroupingsystems. PrimarypatientscomeandIcangiveadiagnosisandgenerallyresolveit,so simpleillnesses.ThesecondarypatientsarebeyondwhatIcanresolveand mustbesenttothehospital.Thepublichealthsystemsaremorecomplete becausetheyaremoreincorporatedandmoredoctorscanconsulteach other.Thesystemneedstobemoreequal,moreprofessional,moreefficient, andmoreaffordable. 38 Researcher:WhatisthemostcommonproblemamongpatientsinMomos? Martinez:Themostcommonproblemsaremalnutritionandinfection.There areillnessesherethataresolelyregionalsincepeoplehereworkinhard laborconditions.Therearealsoalotofinsectsandmosquitoesthatcan causeillnessesandinfections.ButthatproblemiscommoninGuatemalaasa whole,notreallyspecifictoMomos.Themostimportantthingisprevention. Researcher:Aretherealotofpeopleherewhogettheirchildrenvaccinated? Martinez:Thereisavaccinationprogramwherekidsuptofiveyearsoldget certainvaccines.Butsomekidsdonotgetthevaccinestheyneedatthe appropriatetimes,sowhenthosechildrencomeintoprivateclinicswehave toincorporatethosemissedvaccinestheyneedintotheirregimen.Thereisa differentbetweenthevaccinesavailabletokidsthroughtheprivateand publicsystems. Researcher:Whatisthehealthcareprocedureforepidemicsoroutbreaks? Martinez:Incasesofhepatitisbothprivateandpublicinstitutionspromote preventionandtreatment. Researcher:Isthisclinicprivateorpublic? Martinez:Itsprivate Researcher:Howmanypatientsdoyougetroughlyinoneday? Martinez:Itsrelative.Itvaries. Researcher:Whatcanthegovernmentdotoimprovethehealthcaresystem? Martinez:Thegovernmentshouldhaveaprogramthatfinanciallysupportsa 39 womandependingonthenumberofkidsthatshehas.Thereshouldalsobea programtosupportpeoplewhocannotaffordhealthcareinordertoprovide allthemedicalservicesapersonneeds. InterviewwithPharmacistCallina Date:6‐27‐13 Researcher:Whatproductsdoyouusethemost? Callina:Anti‐parasiticmedicine,vitamins,andantibiotics. Researcher:Whatarethemostseriousproblems? Callina:Malnutrition,thenpulmonaryproblems,andlastparasiticproblems. Researcher:Howmuchdoproductscost? Callina:Wehavebothexpensiveandnon‐expensivethings.Theproducts fromUSAandCentralAmericaaremoreexpensive,whileproductsfrom Indiaaretheleastexpensive.Forexample,antibioticscancostupto390Q [quetzales].ThemostexpensiveantibioticsfromIndiaare60Q. Researchers:Canmostpeopleaffordmedicinefortheirillnesses? Callina:EvenwiththecheaperdrugsfromIndia,peoplecannotaffordthem. Sopeoplestockupontheabsolutecheapestdrugsthatcostaround3Qand hopethatbytakingmoremedicinetheywillbecured. 40 InterviewwithDr.Perez Date:6‐27‐13 Researcher:Whatdoyouthinkaboutthepublichealthsystemoverallin Guatemala? Perez:Therearemanyperspectivesandviewpointsonthistopic,butin realitythehealthsystemisverybad.Forpublichealthingeneral,the programsappearwell,buttheorganizationoftheprogramsisbadbecause sometimesthemedicinesfortheprogramsdon'tarrivewheretheyare supposedtogo.Inthismanner,thehealthofthepopulationdoesn'tget better.Mostofthetimethecurativemedicineisgivenratherthanthe preventativemedicine.MuchoftheproblemsinGuatemalaareabout preventionandnotaboutcurating.Theyalwaystalkaboutcures,cures, cures,butthatsystemisbad.Therealsoisn'tasystemthateducatesand informsthemtobecautious.Alotofpeoplehavetoseethattheycangoto privatedoctorswhenpublichealthcarefails.Theyneedtostartvisiting privatedoctors,eventhoughitismoreexpensive,becausethepublichealth systemisdysfunctional.Thepublichealthsystemissodependentonthe governmentthatsometimesitonlyfunctionsforpoliticalfavors.The governmentprogramsarenotfunctional.Forexample,thepresidentchanges everycoupleofyearsandrightnowthepresidentistryingtotellpeoplenot togotoprivatedoctors,buttousethepublichealthsystembecausethat's thebestwaytogivethepublicattention.Inreality,thepopulationisjustvery 41 poor,butthedoctorsdon'thavewhattheyneedtoservethepublic effectively.Hereit'sdifferent.IhavewhatIneed,Iworkreallyhard,andI givehelp.Butmostofthetime,I'mnotabletogiveexactlywhattheyneedto covertheirneedsinthatmoment.Sothewholesystemisbad. Researcher:What'sthemostprevalentillnessinMomostenango? Perez:It'sprettymuchthesameeverywhere.Theprimaryillnessis malnutrition.Thehealthcenterunderestimatesthenumberofmalnourished people;theycan'tclassifyeveryonewhoismalnourishedasmalnourished. Butifyougotoprivateclinics,thenumberismuchhigher.Theother problemsareinfections,pulmonaryillness,skinproblems,andparasites.But thebiggestproblemismalnutrition.Andthebiggestproblemhereandinall ofGuatemalaismalnutritionbecauseit'schronicmalnutrition.Thatleadsto infections,bothpulmonaryandgastric,andtheseareverybadthings.These arethethingsthatthepopulationseeksconsultationsforthemost. Perez:Andabigpartofthisispregnantwomenbecausealotofpregnant womendon'tconsultadoctor,andthisisanationalproblem.Theydon't haveprenatalorpostnatalconsultations,andthisleadstomalnourished children.Thisleadstothenationalproblemofmalnutrition,whichis basicallytheentireproblemofthecountry. Researcher:Inyouropinion,whatisneededinMomostenangotobetterthe healthofthepopulation? Perez:Whatweneedisacompromisebetweenthedifferenttypesof 42 healthcare,andnotaplanorwrite‐up,butanactualcompromiseofaction betweenthetwo.Thehealthcenterhasalotofprogramsandspecialties,but theydon'thaveinfluenceonthepopulationbecausethereare,moreorless, 100,000inhabitants.Probablyonly5of2,000peoplegotothedoctor,butin themedicalcenterthere'sonlyonedoctorandafewhelpers.Ithink,atthe veryleast,thereshouldbetendoctorsinthehealthcenter.Whatweneedthe mostinMomostenangoisahospital;ahospitalwithallofthespecialties. Becausethepublicneedsmoreaccesstoallofthespecialties. Perez:Also,alotofpregnantwomendiewhilegivingbirth.Thisisbecauseof thelackofacompleteserviceforpregnantwomen.It'sbecauseofadistrust ofthehealthcaresystemandalackofinformationaboutultrasoundsand everythingtheyneedduringapregnancy.Weneedafoundationheretostart ahospitalbecausewhatwehaveisnotsufficient.Thatwouldalsohelpthe percentageofpreventativemedicinetoincrease.Mostpeoplejustwant curativemedicinethantolearnabouttheillnesses.Ahospitalwouldhelpthe mountainofillnessesinMomostenango.Alotofthecorrelationbetween illnessanddeathcouldhavebeenhelpedbyprevention. Researcher:Dopregnantwomennotcometotheclinicbecausetheyuse naturalmedicine? Perez:Whathappenswiththisisthattherearealotofdifferentbeliefsinthe villageshereandalotofthetimetheydonotconsultdoctors.Theyhavealot moretrustinmidwiveswithintheircommunities.Butalotofthetime, 43 midwiveshavelimitationsanddonotknowaboutpregnancyproblems.It wouldbebetterifthemidwivessuggestedthatwomengotohospitalsora clinicwhenthebabyarrives,orattheveryleast,onceortwiceduringtheir pregnancy,butmanytimestheyjustsayno.Thenthedoctorscouldgive themanultrasoundorconsultation,butthemidwivescan'tgivethemthat.I thinkitwouldbeagoodideaforthemidwivestoworkwiththedoctors duringconsultationsforacompromise.Alotofthetimeyouneedtobevery carefulwhenusingnaturalmedicines,butyoualsoneedtobecarefulwhen yougiveaprescription.Alotofthetimestheyjusttellpregnantwomento drinkwater,butthat'snotsufficient.Alotoftimespregnantwomenonly comeinwhenthey'resickandthedoctortriestotakecontrolofthe pregnancy,whichdoesnotworkout.Here,thebesttacticwouldbe preventionaswell,forthesakeoftheirhealth.Anotherproblemissex educationbecauseit'saverysensitivetopic.Alotoftimesthereisnottrust betweenparentsandtheiryouthonthistopic.Theyjustnevertalkaboutit.A lotoftimeswhengirlsgetpregnant,theirparentscutthemoffbecausethey don'thavesufficientmoneytosupportthemandtheirbabies.Alotoftimes thisleadstomalnourishedbabies.Thus,theproblemofmalnutritionis perpetuatedinthepopulation. Researcher:IsthereaproblemwithvaccinationsinMomostenango? Perez:Sometimesfamiliesjustcometogetvaccinesasacurativemeasure, butthisisworsethanvaccinationsasapreventativemeasureandnotalways 44 doillnesses,suchasvaricella,showup,butalotofillnesseswithvaccinations areprevalentinthearea.Butalotoffamiliesareworriedaboutvaccinating theirchildren.Butalotofthistime,theirchildrendiewithoutthe vaccinations.Thepartofthepopulationthatdoesvaccinatetheirchildren oftenpreventsdeath,butthereisaportionofthepopulationthatdoesnot vaccinatetheirchildren.Ithinkthatthegovernmentshouldcomeupwitha programthatcompromisesbetweenthefamilies'beliefsandthevaccination oftheirchildren.Forexample,alotofvaccinationsdon'tmakeittovillages, andwhentheydo,thereisdistrustinthefactthatthegovernmentsendsthe vaccinations.So,whentheycomeinforvaccinationstherecouldbe informationaboutwhatthechildrenneedtoeat,andthatcompromiseisa longwayawayfrombeingthoughtofandactualized.Inmyopinion,the vaccinesareefficientandthereareplentyofthem,butthat'snotthe problem.Ibelievearound98%ofchildrenhavehadsometypeof vaccination. Researcher:Finally,isthereaproblemwithautismhere? Perez:Yes,I'veseenthis.It'saverysmallproblem,butthereissomeautism present.Thebiggestproblemisinformation.Theeducationlevelofthe publicisverylow,andsothepopulationunderstandsverylittleaboutthis. Personally,I'veseentwocasesinthetimethatI'veworkedhere.It'svery hardforthefamiliestoacceptthisdiagnosishere.Becauseyoucan'tseethe effectsrightaway,it'shardforthemtoacceptthattheyneedtogotolotsof 45 doctorvisits.It'shardtogetthemtocomeinbecausetheythinkthatwhen childrencomeintotheclinictheydie.Theydon'tunderstandthatthere'snot acurativemedicineforthis,butratheratherapy.Theissueisreallyhardfor themtounderstandadiseasethattheycan'tsee.Probablyinthiswholearea therearemanycasesbutthedoctorsdon'tlookforit.Ifit'snotanimperative form,thentheydon'trealizeitsautism.Yes,therearetwocasesandthe familiesaretryingtoworkwiththembutit'sverydifficult.Butyes,thereare caseshere. 46 REFERENCES Berry,NicoleS."Who'sJudgingTheQualityOfCare?IndigenousMayaAnd TheProblemOf"NotBeingAttended."MedicalAnthropology27.2 (2008):164‐189.AcademicSearchComplete.Web.15Apr.2014. 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