Mason Durie Massey university 1938 1904 MB ChB Otago University 1905 Medical Officer 1910 Medical officer in the Cook Islands. 1912–13 Medical Officer Niue. 1949 1944 Really ancient voyages Voyages made about 5000 years ago Similar demographic trends Similar trends for disparities in health Similar trends for incomes Similar aspirations to retain culture Similar approaches to hui, fono, gatherings Karakia Koha Kawa 1946 Medical Research Council: Island Territories Research Committee (Dr D McCarthy) 1968 South Pacific Medical Research Committee 1990 HRC Pacific Health Research Committee 2005 - first edition of the Guidelines on Pacific Health 2014 - second edition of the HRC’s Pacific Health Research Guidelines To ensure that the research undertaken is beneficial and does not harm, by informing, and empowering Pacific peoples about health research within their own communities, and their rights as research participants. To provide an ethical and operational guide for health research to ensure that it is conducted in an appropriate and effective manner … for Pacific peoples in New Zealand. To provide a common template and shared vision on Pacific health research for the various Pacific health research stakeholders, including the HRC, researchers, research participants, and Pacific communities. Research that is Relevant Useful Uplifting Research that Endorses local aims Is solution focussed (rather than problem focussed) Allows for local participation and leadership Research processes and findings can be translated into: Policies Programmes Capability building Innovation Sustainable benefits Whakapiri Engagement Whakamarama Enlightenment Whakamana Empowerment Engagement with Pasifika communities is a critical step in Pasifika research • Church communities • Ethnic communities • Urban communities Two markers for engagement Partners in research Alignment of priorities Community partners Allied Pasifika health partners Other Pasifika research partners Partners share the research leadership - different from research participants or research ‘subjects’ Engagement requires respect for the culture of community partners Language Protocols Time management Faith Leadership The research question should make sense to the research partners Community priorities may not be the same as researcher priorities When the research addresses a problem that is high on the community agenda the partnership is likely to be more fruitful Agreement about the ways in which the research will be conducted and the outcomes that might follow – for communities as well as researchers Shared benefits and shared decision-making Recognition of community realities and priorities Whakapiri Engagement Whakamarama Enlightenment Whakamana Empowerment The research process should provide communities and researchers with new models for learning as well as objective approaches to problem solving Research findings should increase understanding and knowledge, create a basis for addressing goals and aspirations, and be capable of translation into action Two styles of research reporting should be considered: prepared for academic publication and suitable for community consideration Three Markers for Enlightenment Scientific credibility Enlightenment comes from empirical research Indigenous knowledge Enlightenment comes from the application of methodologies derived from indigenous knowledge The Fono principle Enlightenment comes from group discussion around research processes and findings The Desired Outcome Participant communities and researchers: will be wiser will have greater collective understanding of their communities will have greater appreciation of science as well as indigenous insights will be more aware of possibilities for the future Whakapiri Engagement Whakamarama Enlightenment Whakamana Empowerment Translational research offers research partners the prospect of benefits aligned with their own aspirations ‘Benefits’ might be personal, family, or community benefits ‘aspirations’ can encompass economic, social, cultural or environmental domains Research also offers researchers the prospect of increased academic credibility and career advancement Three Markers of Empowerment Research that leads to: Inspiration When research inspires communities, the will to succeed will be stronger Knowledge acquisition When research findings are owned by communities, the new knowledge will enable progress to be made with greater insight Affirmation Effective research upholds and strengthens identity, culture, aspirations and leadership within Pacific communities The Desired Outcome As a result of the research, communities will have increased motivation to address their futures will be well informed (knowledge is power) will be stronger in themselves as Pacific peoples in Aotearoa Whakapiri - Engagement Partners in research Alignment of priorities Whakamārama - Enlightenment Scientific credibility Indigenous knowledge Fono Whakamana - Empowerment Inspiration Knowledge acquisition Affirmation Tena koutou katoa Whakapiri - Engagement Partners in research Alignment of priorities Whakamārama - Enlightenment Scientific credibility Indigenous knowledge Fono Whakamana - Empowerment Inspiration Knowledge acquisition Affirmation Partners for research Alignment of priorities Scientific credibility Indigenous knowledge Fono Inspiration Knowledge acquisition Affirmation P artners for research A lignment of priorities S cientific credibility I ndigenous knowledge F ono I nspiration K nowledge acquisition A ffirmation
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