American Academy of Pediatrics
NEWBORN SCREENING FOR
CRITICAL CONGENITAL HEART DISEASE (CCHD)–2014 STATE
ACTIONS
(As of October 20, 2014)
Legislation Introduced
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Legislation Failed
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Executive Order
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Regulatory/Guidance
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LEGISLATION INTRODUCED
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HAWAII
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HI HB 1946 CREAGANd
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Pulse Oximetry Screening;
Congenital Heart Defects; Birthing Facilities; Newborns; Appropriation ($)
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Requires birthing facilities
to perform a critical congenital heart defect screening using pulse oximetry on
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every newborn in its care prior to discharge from the facility, with certain exceptions. Requires the
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Division of State Government Affairs | 1.800.433.9016, x7799 | [email protected]
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Legislation Enacted
department of health to adopt rules pursuant to chapter 91 regarding newborn critical congenital heart
defect screening using pulse oximetry. Makes an appropriation.
H Referred to HLT, CPC, referral sheet 3 - 01/21/2014
HI SB 2194 GABBARD
Pulse Oximetry Screening; Congenital Heart Defects; Birthing Facilities; Newborns; Appropriation ($)
Requires birthing facilities to perform a critical congenital heart defect screening using pulse oximetry on
every newborn in its care prior to discharge from the facility, with certain exceptions. Requires the
department of health to adopt rules pursuant to chapter 91 regarding newborn critical congenital heart
defect screening using pulse oximetry. Makes an appropriation.
S Conference committee meeting to reconvene on 04-25-14 4:35pm in conference room 229. 04/25/2014
HI HB 905 Joseph Souki (Introduced by request of another party) (carry over)
Point of Care Newborn Screening
Authorizes the Department of Health to implement point of care newborn screening, and amends section
321-291, HRS, concerning the newborn metabolic screening special fund. Effective July 1, 2050. (HB905
HD1)
D Carried over to 2014 Regular Session. - 12/18/2013
HI SB 1136 Donna Mercado Kim (Introduced by request of another party) (carry over)
Point of Care Newborn Screening
Authorizes the Department of Health to implement point of care newborn screening, amends section 321291 concerning the newborn metabolic screening special fund.
D Carried over to 2014 Regular Session. - 12/18/2013
LEGISLATION FAILED
MISSISSIPPI
MS HB 1290 Richard Bennett
Newborns; require hospitals to perform pulse oximetry screening on after birth.
AN ACT TO CREATE NEW SECTION 41-9-39, MISSISSIPPI CODE OF 1972, TO REQUIRE EACH HOSPITAL
THAT PROVIDES BIRTHING AND NEWBORN CARE SERVICES TO PERFORM A PULSE OXIMETRY SCREENING
ON EVERY NEWBORN IN ITS CARE NOT LESS THAN 24 HOURS AFTER BIRTH; AND FOR RELATED
PURPOSES.
(H) Died In Committee - 02/04/2014
LEGISLATION ENACTED
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Division of State Government Affairs | 1.800.433.9016, x7799 | [email protected]
ALASKA–2013 (Effective Date–January 2014)
Alaska Statutes Chapter 18.15 Section 205
ARIZONA–2014 (Effective Date–July 2015)
Arizona Revised Statutes Title 36 Section 694
ARKANSAS–2013 (Effective Date–August 2013)
Arkansas Code Title 20 Chapter 9 Subchapter 1 Section 103
CALIFORNIA–2012 (Effective Date–July 2013)
California Health and Safety Code Division 106 Part 2 Chapter 3 Article 6.6
CONNECTICUT–2012 (Effective Date–January 2013)
General Statutes of Connecticut Title 19a Chapter 368a Section 19a-55(b)(2)
FLORIDA –2013
Florida 2013 Session Law: Chapter 2013-40 (Appropriations)
* Chapter 2013-40 does not mandate newborn screening for CCHD. The law appropriates $155,592 in reoccurring
funds and $50,000 in nonreoccurring funds for the inclusion of newborn screening for CCHD into the state’s newborn
screening program.
ILLINOIS–2013 (Effective Date–January 1, 2014)
Illinois Compiled Statutes Chapter 410 Section 1.10
INDIANA–2011 (Effective Date–January 2012)
Indiana Code Title 16 Article 41 Chapter 17 Section 2(b)
INDIANA–2013
Indiana Public Law 205 (Appropriations)
*Appropriations for the state’s newborn screening program include funding for the implementation of newborn
screening for CCHD.
IOWA–2013 (Effective Date–July 2013)
Iowa Code Title IV Chapter 136A Section 5A
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Division of State Government Affairs | 1.800.433.9016, x7799 | [email protected]
KENTUCKY–2013 (Effective Date–January 2014)
Kentucky Revised Statutes Title XVIII – Public Health Chapter 214 Diseases Section 155
LOUSIANA–2013 (Effective Date–August 2013)
Louisiana Revised Statutes Title 40 Chapter 1300 Section 373
MAINE– 2013 (Effective Date–July 2013)
Maine Revised Statutes Annotated Title 22 Chapter 261-A Section 1532
MARYLAND–2011 (Effective Date–July 2011)
Maryland HEALTH-GENERAL Code Annotated Section 13-111
MASSACHUSETTS–2014 (Effective Date–January 2015)
Massachusetts General Laws Chapter 111 Section 110C
MINNESOTA–2013 (Effective Date–August 2013)
Minnesota Statutes Chapter 144 Section 1251
MISSOURI–2013 (Effective Date–January 2014)
Missouri Revised Statutes Title XII Chapter 191 Section 334
NEBRASKA–2013 (Effective Date–September 2013)
Newborn Critical Congenital Heart Disease Screening Act
NEVADA–2013 (Effective Date–July 2015)
Nevada Revised Statutes Chapter 442 Section 680
NEW HAMPSHIRE–2012 (Effective Date–August 2012)
New Hampshire Revised Statutes Title X Public Health Chapter 132 Section 10aa
NEW JERSEY–2011 (Effective Date–October 2011)
New Jersey Revised Statutes Title 26 Section 2-111.3-.4
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Division of State Government Affairs | 1.800.433.9016, x7799 | [email protected]
NEW MEXICO–2014 (Effective Date–May 2014)
New Mexico Statutes Chapter 24 Article 1-6
NEW YORK–2013 (Effective Date–January 2014)
New York Public Health Law Section 2500-a
NORTH CAROLINA–2013 (Effective Date–May 2013)
North Carolina General Statutes Chapter 130A Section 125
NORTH DAKOTA–2013 (Effective Date–August 2013)
North Dakota Century Code Title 25 Chapter 17 Section 6
OHIO–2013 (Effective Date–September 2013)
Ohio Revised Code Title XXXVII Chapter 3701 Section 5010
OKLAHOMA–2013 (Effective Date–July 2013)
Oklahoma Statutes Title 63 Section 1-550.4
OREGON–2013 (Effective Date–June 2013)
Oregon Revised Statutes Chapter 433 Section 318
PENNSYLVANIA–2014 (Effective September 2014)
2014 Regular Session Act 94
SOUTH CAROLINA–2013 (Effective Date–June 2013)
South Carolina Code of Laws Title 44 Chapter 37 Section 70
SOUTH DAKOTA–2013 (Effective Date–July 2013)
South Dakota Codified Law Title 34 Chapter 24 Section 32
TENNESSEE–2012 (Effective Date–January 2013)
Tennessee Code Annotated Title 68 Chapter 5 Part 5 Section 507
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Division of State Government Affairs | 1.800.433.9016, x7799 | [email protected]
TEXAS–2013 (Effective Date–September 2013)
Texas Health and Safety Code Title 2 Chapter 33 Section 33.011
UTAH–2013 (Effective Date–October 2014)
Utah Code Title 26 Chapter 10 Section 6
VIRGINIA–2014 (Effective Date–July 2014)
Code of Virginia Title 32.1 Chapter 2 Section 65.1
WEST VIRGINIA–2012 (Effective Date–June 2012)
Code of West Virginia 1931 Chapter 16 Part 44 Section 1-2
WISCONSIN–2014 (Effective Date–March 2014)
Wisconsin Statutes and Annotations Chapter 253 Section 13 (1)
*Chapter 253 Section 13 (1) does not require newborn screening for CCHD; it gives authority to the WI Department of
Health to add new conditions to the state’s newborn screening panel.
CQ StateTrack
EXECUTIVE ORDER
VIRGINIA–2012
Executive Directive 4 (2012)
REGULATIONS/GUIDANCE/OTHER
ALABAMA–2012/2013 (Effective Date–May 2013)
Alabama Department of Public Health: Hospital Guidelines for Implementing Pulse Oximetry Screening for
Critical Congenital Heart Disease
Alabama State Board of Health Regulations: 420-10-1-.03 Designation of Additional Heritable Diseases
(Adopted May 17, 2013)
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Division of State Government Affairs | 1.800.433.9016, x7799 | [email protected]
DELAWARE–2013 (Effective Date–May 2013)
Delaware Division of Public Health: 4107 Screening of Newborn Infants for Metabolic, Hematologic,
Endocrinologic, and Certain Structural Disorders
FLORIDA–2014 (Effective Date–October 2014)
Florida Department of Health – Addition of CCHD to Newborn Screening Panel
GEORGIA–2014 (Effective Date–May 2014)
Georgia Department of Public Health: Rules of Department of Public Health Chapter 511-5-5 Georgia
Newborn Screening Program
IOWA–2012 (Effective Date–August 2012)
Iowa Department of Public Health: Guidelines for Newborn Screening for Critical Congenital Heart Disease
MASSACHUSETTS–2013 (Effective Date–May 2013)
Massachusetts Department of Public Health: #13-5-590 Screening for Critical Congenital Heart Disease in
Newborns
MICHIGAN–2013 (Effective Date–April 2014)
Michigan Department of Community Health: Guidelines for Implementing CCHD Screening Tool-kit
Michigan Department of Community Health: Addition to Mandated Newborn Screening Panel/Newborn
Screening Panel
MISSISIPPI–2014 (Effective Date–November 2014)
Mississippi Department of Health: Mississippi Administrative Code Title 15 Mississippi Department of
Health Part 4 Office of Health Services Chapter 1 Newborn Screening and Birth Defects Registry (Adopted
October 17, 2014)
MONTANA–2014 (Effective Date–July 2014)
Montana Department of Public Health and Human Services: Montana Administrative Register Notice 37677–Proposed Amendments to Administrative Rules of Montana Pertaining to Newborn Screenings and
Follow-up of Failed Screenings (Adopted June 26, 2014)
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Division of State Government Affairs | 1.800.433.9016, x7799 | [email protected]
PENNSYLVANIA–2013 (Effective Date–March 2013)
Pennsylvania Department of Health: Addition of Disease to the Newborn Screening and Follow-Up Program
RHODE ISLAND–2014 (Effective Date–July 2015)
Rhode Island Department of Health: Rules and Regulations Pertaining to the Newborn Metabolic,
Endocrine, and Hemoglobinopathy Screening Program and the Newborn Hearing Loss Screening Program
(Adopted August 12, 2014)
Rhode Island Department of Health: Newborn Pulse Oximetry Screening Information for Healthcare
Providers
TENNESSEE–2013 (Effective Date–May 2013)
Tennessee Department of Health: Rules of Tennessee Department of Health, Family Health and Wellness,
Material & Child Health Chapter 1200-15-01 Newborn Hearing Testing, Screening for Metabolic/Genetic
Disorders and Critical Congenital Heart Disease
WISCONSIN–2014 (Effective Date–July 2014)
Wisconsin Department of Health Services: Emergency Rule Issued to Add Critical Congenital Heart Disease
to Newborn Screening
Wisconsin Department of Health Services: Emergency Rule 1410 Order of the Department of Health
Services to Adopt Emergency Rules
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Division of State Government Affairs | 1.800.433.9016, x7799 | [email protected]