Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Addaction Evidence submitted Section 1 Page Number 5 1 5 1 6 1 6 1 7 2 Stakeholder response table – guidance consultation 9 Comments Please insert each new comment in a new row. Recommendation 1: The identification and referral of vulnerable or disadvantaged young people who are misusing substances should not have an age threshold (e.g. over 16). There are young people aged under 16 who will require this intervention. Should we explore substance use other than cannabis and stimulants? Recommendation 2: Again there should not be an age threshold of over 16 for this intervention and why limit to cannabis and stimulant use? Response Please respond to each comment Thank you for your comment. The revised recommendation now extends to under 16 year olds and a wider range of substances. Thank you for your comment. Please refer to our previous response. Recommendations 3 & 4: This should be specifically linked with the changes proposed in Care Matters as well as Every Child Matters Recommendation 4: There should not be an age threshold of under 16, and schools should include colleges and further education providers. Recommendation 5: This provision should be available to young people referred through all children’s services/professionals not just schools. Thank you for your comment. The guidance ‘considerations’ section refers to this point. It would be useful to recommend evaluating the use of this intervention with other age groups. The revised guidance includes recommendations for further research. You can suggest a future topic for NICE guidance at www.nice.org.uk/page.aspx?o=ts.home Although the illicit drug use is identified as most prevalent among young people aged between 16 and 24 years, we need to widen the age range when defining which young people are vulnerable or disadvantaged. This is particularly true for those young people involved in commercial sex work who should always be considered to be sexually abused young people. Thank you for your comment. The Department of Health asked NICE to undertake: ‘An assessment of community-based interventions to reduce substance misuse among the most vulnerable and disadvantaged young people’. The guidance focuses on children and young people aged under 25. This is the age range covered by the public service agreement (PSA) target for Thank you for your comment. The revised guidance focuses on vulnerable and disadvantaged people up to the age of 25. Thank you for your comment. The revised recommendation is not limited to children referred by schools. p.1 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Adfam Evidence submitted Section Page Number Comments Please insert each new comment in a new row. 5 11 5 12 Recommendation 3: At Addaction we are addressing this area of research, as we have developed a pilot called the Intensive Interventions Programme which includes structured support for the families of young substance misusers. We are using an intervention framework developed by the University of Bath and Avon and Wiltshire Mental Health Trust, who are also evaluating the pilot. Recommendation 4: At Addaction we are addressing this area of research, as we have developed a pilot called Breaking the Cycle which aims to reduce the risk to young people affected by parental substance misuse. This pilot is being evaluated by the University of Bath and Avon and Wiltshire Mental Health Trust. Whilst I recognise why the recommendations are phrased as they are, i.e. they are based on the evidence, it is unfortunate that they focus on young people of 16+, on cannabis and stimulants and on motivational interviewing. This may not help many practitioners. Neither am I convinced that US evidence, particularly on prevention and young people, translates very well to the UK experience. I am pleased to see that the guidance document gives a very clear message about its limitations. General Again, the recommendations do not represent the reality of the lives of vulnerable young people. Most of them are not in regular schooling and so the recommendations re referral to Stakeholder response table – guidance consultation Response Please respond to each comment substance misuse shared by the Home Office and DfES (see ‘Tackling drugs, changing lives – keeping communities safe from drugs’ Home Office 2004). You can suggest a future topic for NICE guidance at www.nice.org.uk/page.aspx?o=ts.home Thank you for this information. It is anticipated that the guidance will be reviewed in March 2010, when you may wish to submit your evidence. Thank you for your comment. Please refer to our previous response. Thank you for your comments. The revised recommendation relating to motivational interviewing makes reference to those attending secondary schools or further education colleges. Unfortunately, there is a lack of evidence supporting effectiveness of this approach for younger children. There was evidence to support the use of motivational interviewing (some of which was from the UK) for reduction of use of other substances (including alcohol and tobacco) so it is recommended for young people who misuse any substance. Thank you for your comment. The guidance is for all those working with vulnerable and disadvantaged children and young people – p.2 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Association of Police Officers Evidence submitted Section Page Number Recommendations General Issues Page 5 Comments Please insert each new comment in a new row. motivational interviewing will be hard to implement. It is noted that the guidance defines Community-based interventions as “interventions or small scale programmes delivered in community settings that seek to elicit changes in the risk behaviour of the targeted population.” And not “Clinical interventions with individuals who are dependent on substances”. This distinction may be a little opaque to many. It may help the reader to be given the assistance of the different types of possible interventions. Response Please respond to each comment including settings outside school. Thank you for your comment. The guidance has been amended and the definition now includes schools and youth services. The review of effectiveness report provides information about all the interventions that were included (visit http://guidance.nice.org.uk/page.aspx?o=352235) It appears that this guidance sits in between general drug education in schools and the more individually targeted interventions introduced by the Drug Intervention Programme via the criminal justice system or referral into treatment by a health professional. This needs to be made clearer. British Association for Counselling and Psychotherapy Recommendation 2 Page 5 2 9 Reference to other guidance documents may help, including the ACPO “Joining Forces Drugs: Guidance for police working in schools and colleges” This refers to cannabis and stimulants. The term stimulants is not often used by non-health workers and therefore may be misunderstood. Public health need and practice The revised guidance refers to drug policy and children’s education and health policies. Thank you for your comment. The guidance has been amended. Thank you for your comment. The guidance has been amended. We suggest you include the word ‘educational’ under bullet point 6, on page 9, so that it reads ‘those with other health, educational and social problems, at home, school and elsewhere.’ Thank you. Your comments are noted. Stakeholder response table – guidance consultation p.3 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Comments Please insert each new comment in a new row. Whilst there is no direct evidence linking dyslexia with the development of substance misuse problems, there are two strong circumstantial reasons to suspect a link between early dyslexia and later substance misuse problems. 1. 2. Brighton Oasis Project Recommendation 1. Recommendation 2. Recommendation 3. Stakeholder response table – guidance consultation Response Please respond to each comment The high proportion of adult offenders who are dyslexic, combined with the high proportion who are substance users. In the Youth Justice System 45% of Young Offenders are reported to be substance dependent, 90% to have misused illegal drugs, two thirds to have an educational level below an average 11 year old and one third to have a reading age below seven (Youth Justice Board 2006.) It is possible that dyslexic children self-medicate to deal with stress. If this link were established it would have implications for treatment that could make a difference for many children. We support the recommendation that vulnerable young people "should" be identified, but we are concerned that the guidelines do not go far enough to indicate how, or where identification is currently working or lacking. There is a need to identify and bring young people into services but we need solid ways of doing this. This is why, at Brighton Oasis Project, we have developed assertive outreach interventions to link the two issues of teenage pregnancy and substance misuse. The document states that parents need to be worked with. There is no mention of carers. Many of the young people we work with are Looked After Children or in hostels, and therefore, work is done with their primary carer who is not their parent. The recommendation that a demographic profile of under 25's vulnerable to use is produced, but there are no further recommendations around interventions for 19 – 25’s. There is a massive gap in services for young people in this age range. Thank you for your comment. The guidance has been amended to include information about target populations, who should take action and what action they should take. The recommendations cover both identification , referral and provision of services Thank you for your comment. The guidance has been amended. Thank you for your comment. The guidance focuses on vulnerable and disadvantaged people up to the age of 25, however, there are areas where evidence relates to particular age groups. p.4 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Recommendation 4 page 17 Comments Please insert each new comment in a new row. They are too old for youth services and too young for adult services, and are often therefore excluded. Brighton Oasis Project believes that bridging / transitions services are developed on a national level, to reduce drop out rates and the potential of higher risk usage. This recommendation mentions children of substance misusing parents.The recommendations of Hidden Harm (ACMD 2003) are really relevant here. Interventions offered to children of substance misusing parents could really contribute to reducing later substance misuse within this group. As a result of all the initiatives that have sprung up nationally over the last few years this hard to identify group is becoming much more accessible and easier to reach and work with. Response Please respond to each comment Thank you for your comment. The guidance has been amended to refer to ‘Hidden Harm’. Children with family members who misuse substances are identified as a vulnerable group at increased risk of substance misuse. For young people one of the highest indicators of later problematic substance misuse is coming from a family where there is problem drug or alcohol use. Work on Hidden Harm nationally goes to the heart of where problematic substance misuse is sustained; within familial dynamics – The Hidden Harm agenda attempts to intervene and offer families and young people alternatives to the culture of substance misuse they have been brought up with. This is important preventative work. Recommendation 1. Stakeholder response table – guidance consultation Therefore we urge those involved in the implementation of the Hidden Harm recommendations and colleagues in this field should form close alliances when considering early preventative work. Gender specific services should be considered and funded. Patterns of substance use, age of first drug use and reasons for using substances vary between young women and young men. Our experience is that young women will actively request female workers rather than just accepting this if offered. Our experience The revised recommendations cover the importance of local joint strategies for reduction of substance misuse among vulnerable and disadvantaged under 25 year olds. Thank you. Your comment is noted. The guidance ‘considerations’ section refers to this point. p.5 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Care Services Improvement Partnership, incorporating NIMHE Commission for Evidence submitted Section Page Number General Comments Please insert each new comment in a new row. is that young women who come to services will also have histories of sexual abuse and partner or parental violence and feel safer with a female worker or within a women’s drug service which can specialise in offering support which are specifically related to the concerns of young women. It is useful to recognise that young people are individuals and that ‘one size does not fit all’. Whilst the recommendations are useful they need flexibility so that the holistic needs of the young person are addressed. Ie. If a young person’s drug use is in response to other problems then these other issues need to be addressed eg. difficulties at home, difficulties with parents, previous abuse, domestic abuse at home, etc. Some individuals may engage in group work and others would respond more positively to one to one interventions. Response Please respond to each comment Thank you for your comment. The guidance ‘considerations’ section refers to this point. General The guidelines also need to clearly link to Local Safe Guarding Procedures and how to assess when a child protection issue is evident. General It would also be useful to expand on the children of problematic drug users and how risk is identified and resilience factors built into the work. General It would be helpful to make some connections with work ongoing in "healthy schools" and also the potential for working within children's centres and extended services Thank you for your comment. The revised recommendations refer to the policy context of children and young people services, covering a range of settings. General There is little focus on BME despite the significant cultural issues in regard to substance misuse and some BME groups Thank you for your comment. The revised ’considerations’ section notes that there was a lack of evidence relating to some groups, including those from black and minority ethnic groups. Further research is recommended. Thank you for your comment. The guidance has General Stakeholder response table – guidance consultation General There is a general lack of reference to local authorities and Thank you for your comment. It is expected that the recommendations will be supported by local protocols, including those relating to child protection. Thank you for your comment. The revised recommendations refer to use of existing assessment tools. p.6 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Social Care Inspection Cumbria PCT Evidence submitted Section Page Number Comments Please insert each new comment in a new row. social care throughout the document, with the exception of the recommendations. This may reduce the likelihood of buy-in by people working in those bodies/areas, if social care is seen as an add-on and the guidance as top-down. Perhaps more thought could be given to including the social care sphere in the body of the document eg. paragraph 1 of the Foreword etc. The links to the Social Care Institute for Excellence are not apparent in the document. As SCIE is responsible for developing and promoting good practice in social care, this link would be helpful, especially as the guidance ought to be consistent with existing guidance. Response Please respond to each comment been amended to include reference to local authorities and the social care sector. General General Section 1 6 Family members misuse drugs OR ALCOHOL 5 Rec 1 should add a brief intervention as well as training for these staff members Rec 5 need to recognise the influence of boredom and curiosity as well as impulsive behaviour Thank you for your comment. Interventions that seek to prevent or reduce substance misuse in the broadest sense (that is, drugs, volatile substances, and tobacco or alcohol) were included, provided that the intervention study reported on outcomes relating to drug and volatile substance misuse specifically. Guidance on the prevention of alcohol or tobacco use alone in vulnerable or disadvantaged young people is not included. Thank you for your comment. The guidance ‘considerations’ section refers to this point. Thank you for your comment. The guidance has been amended. 7 General Stakeholder response table – guidance consultation Do we need to note any influence of gender and of siblings too? Thank you. Your comment is noted. The revised guidance includes reference to the need for close working between statutory and other agencies. Thank you for your comment. Recommendations are based on the process of individual assessment of risks and needs, which would include family context. In addition, the revised ‘considerations’ section refers to the need for an holistic approach that takes the child or young p.7 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Department of Health Evidence submitted Section Page Number Comments Please insert each new comment in a new row. Section 2 8 Need to emphasise primary prevention - - 16 seems a late cutoff point General Research that reports on drug use amongst young gay men consistently reports significantly higher levels of illicit drug use than comparable non-gay groups. Findings from “ Risk and reflexion: findings from the United Kingdom Gay Men’s Sex Survey 2004. Sigma Research, 2005 (ISBN 1 872956 81 5)” report that over 65% of the national sample of men under 20 had used recreational drugs in the preceding twelve months. Response Please respond to each comment person’s full range of needs into account. Thank you for your comment. The guidance focuses on vulnerable and disadvantaged people up to the age of 25. Thank you for your comment. The guidance focuses on problematic substance misuse rather than recreational use. Recreational drug use questions were repeated in the 2005 Sigma Gay Men’s Sex Survey and full results are awaited. Preliminary results again show elevated rates of illicit substance misuse and higher rates of frequent use than comparable “less vulnerable peers”. General Page 8/9 As such we would be grateful if you would consider including young gay men in the guidance. We feel it would be important to ensure that the definition of vulnerable and disadvantaged groups reflects the current policy as outlined in the Young People Public Service Agreement (YP PSA) guidance document. In our opinion, there is often a geographical dimension to both “disadvantaged” and “vulnerable” due to material, environmental or persistent health inequalities. This needs to be reflected in the guidance and it may be appropriate to consider whether young people living in Spearhead areas should be included within this guidance. Thank you for your comment. The guidance covers children and young people aged under 25 regardless of where they live. This is the age range covered by the public service agreement (PSA) target for substance misuse shared by the Home Office and DfES (see ‘Tackling drugs, changing lives – keeping communities safe from drugs’ Home Office 2004). The list of groups defined as vulnerable and disadvantaged are examples and not intended to be exhaustive. There is a recognition that the list is already quite extensive however you may wish to include LGBT young people and Stakeholder response table – guidance consultation p.8 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number General Comments Please insert each new comment in a new row. those with learning disabilities. In our view, there should be consideration of lesbian, gay, bisexual and transgender young people. LGBT young people have elevated rates of suicide, para suicide, STIs, mental ill health and poor health behaviours. Response Please respond to each comment Thank you for your comment. LGBT young people are included with respect to the range of specified risk factors. If “vulnerability” is defined in terms of elevated rates of illicit substance use young gay men are especially vulnerable. Again, research that reports on drug use amongst young gay men consistently reports significantly higher levels of illicit drug use than comparable non-gay groups. Findings from “Risk and reflexion: findings from the United Kingdom Gay Men’s Sex Survey 2004. Sigma Research, 2005 (ISBN 1 872956 81 5)” report that over 65% of the national sample of men under 20 had used recreational drugs in the preceding twelve months. Recreational drug use questions were repeated in the 2005 Sigma Gay Men’s Sex Survey and full results are due to be published shortly. Preliminary results again show elevated rates, amongst under 20 year old gay men, of illicit substance misuse and higher rates of frequent use than comparable “less vulnerable peers”. The Survey also confirmed that next two age bands of respondents in both the 1999 and 2005 had even higher rates of substance misuse- this may suggest “normalisation” of substance misuse increases with age and continue at significantly elevated rates in all age groups amongst gay men. General Stakeholder response table – guidance consultation Page 5 As such we feel that the guidance should reflect the specific needs and vulnerability of these groups. The guidance clearly states that it does not refer to clinical interventions. Thank you for your comment. The guidance has been amended. p.9 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Comments Please insert each new comment in a new row. However, clinicians would view interventions as described in this guidance and the recommendations, such as motivational interventions or interventions based on motivational interviewing techniques and brief and behavioural interventions and family work/therapy interventions as clinical as they would be part of structure plan of care. We feel that its is important that this guidance clearly differentiates between the formal structured approaches delivered by professionals trained to deliver such interventions and those which are less structured and can be delivered by practitioners trained to undertake interventions based on these techniques described in the guidance. Response Please respond to each comment The guidance acknowledges that different levels of competency will be required according to practitioners’ roles in screening, assessment and intervention for the reduction of substance misuse. General Page 4 In our view, there is limited evidence available to provide comprehensive guidance in all areas, if it would be possible be useful for the guidance to suggest where the evidence is lacking. It is also important that the messaging that this delivers does not by default suggest that the priorities for delivery are cannabis and stimulants as these are the key drugs referred to regarding interventions. It is important that the guidance does not focus on being substance specific and therefore by default lead the reader to not consider the substances not mentioned. Thank you for your comment. The revised guidance refers to gaps in the evidence (appendix B) and provides recommendations for research (section 5). The revised recommendations refer to all substances. General overall Where reference is made to education and training, the document should refer to the work of the Sector Skills Council and in particular Skills for Health. Could this perhaps be listed in the reference or other resources section. Reference is made to trained professionals, and it would be useful to provide a working definition for what is meant by trained professionals. Would the guidance be referring to professionals who have been assessed to be competent to deliver interventions described in the guidance or having just attended training? We feel that this needs to be clearly Thank you for your comment. This reference has been forwarded to the NICE Implementation Team. Page 5 Recommendation 1 and 2 Stakeholder response table – guidance consultation Thank you for your comment. The guidance emphasises the need for practitioners to have the appropriate competencies for screening, assessment and treatment in line with NTA guidance. p.10 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Comments Please insert each new comment in a new row. defined/described. Response Please respond to each comment Thank you for your comment. The guidance has been amended. The term practitioner may be more appropriate as this guidance will be relevant to the third sector organisations. General Page 5 General Page 5 General Stakeholder response table – guidance consultation In our opinion, the guidance needs to be clear when it is referring to practitioners being trained and when practitioners need to be competent in a specific skill; otherwise there will be no consistency in the delivery of interventions across the country. In our view, we feel that the term subbstance misuse needs to have a working definition to ensure that it includes alcohol, volatile substance abuse (VSA) and licit and illicit drugs so that the reader does not make an interpretation of the terminology to exclude any the other areas mentioned. It may be useful to give examples of Definition of intervention,such as motivational interviewing, brief interventions etc as the current definition refers to small scale programmes then inder recommendation 2 describes a specific type of intervention (motivational interviewing) In our opinion the age ranges that this work intends to cover needs to be made clear in all areas. When it states over 16 – does it mean 16-18 or 16-24 for example – this needs to be made very clear. It is important to recognise that systems in place for under 18s Thank you for your comment. The revised guidance includes a definition of substance misuse. Interventions that seek to prevent or reduce substance misuse in the broadest sense (that is, drugs, volatile substances, and tobacco or alcohol) were included, provided that the intervention study reported on outcomes relating to drug and volatile substance misuse specifically. Guidance on the prevention of alcohol or tobacco use alone is not included. Tobacco and alcohol are the focus of other NICE public health programme and intervention guidance – see www.nice.org.uk/guidance/PHP and www.nice.org.uk/guidance/PHI Thank you for your comment. Motivational interviewing has now been defined. Thank you for your comment. The guidance focuses on vulnerable and disadvantaged people up to the age of 25, however there are areas where evidence relates to particular age groups. The recommendations have been revised to p.11 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Recommendations 1 and 2 Page 5 and 6 Recommendation 1 (and other recommendations as noted) Page 5 Recommendation 2 Page 5 Recommendation 5 Stakeholder response table – guidance consultation Page 7 and Comments Please insert each new comment in a new row. are different than those for over 18s. This may need to be flagged up. As mentioned in previous general comment, important not to exclude drug categories such as alcohol, and other drugs. Response Please respond to each comment clarify this. You may like to be aware that there are national occupational standards (NOS) that exist ( see skills for health) – relevant for recommendations 1, 2 3, 4, 5 The NOS that might be relevant to look at are: • Recognise indications of substance misuse and refer individuals to specialists • Relate to families, parents and carers • Raise awareness about substances, their use and effects • Facilitate group learning • Carry out brief interventions with alcohol users • Counsel groups of individuals about their substance use using recognised theoretical models Counsel individuals about their substance use using recognised theoretical models Would you please clarify the term ‘Motivational interviewing’ – does this describe motivational interviewing techniques? If it is referring to a wide range of practitioners delivering interventions, for which they may not have attained full training and supervision for actual motivational interviewing. Thank you for your comment. This reference has been forwarded to the NICE Implementation Team. Motivational interviewing (MI) is lengthy and expensive. If the guidance recommends that a broad range of practitioners are trained to deliver MI then this may be difficult for implementation as it will have an impact on training budgets and access to training within local areas. In our opinion the first sentence could be interpreted as referral on to another external service. This would not be appropriate to Thank you for your comment. The definition of substance misuse has been revised. Thank you for your comment. The guidance has been amended to include a definition of motivational interviewing within the Glossary. Thank you for your comment. The guidance has been amended. p.12 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number appendi xA Recommendation 6 Page 7 Recommendation 6 Page 7 Section 2 Page 8 Section 2 Page 8 Section 2 Page 9 Stakeholder response table – guidance consultation Comments Please insert each new comment in a new row. refer 10-12 years olds to specialist substance misuse services. The wording therefore may need to be changed to ensure clarity on what is meant. There will be a consent issue for referral of young people under 16 ot other services or in school additional services. We therefore feel the guidance needs to ensure that this is flagged up where appropriate. Response Please respond to each comment The guidance ‘considerations’ section refers to this point. We welcome this recommendation. However we feel that a common core dataset should be agreed to ensure important demographic and at risk factors should be included e.g. ethnicity, sexuality etc Common Assessment Framework (CAF) data is collected at local level only and not national level and we consider that it will not provide a demographic profile of vulnerable or disadvantages under 25 year olds as far as we are aware and therefore the two issues in recommendation 6 are not linked. We consider the collection of data at local level to produce a demographic profile needs further consideration to ensure it is feasible and that the right organisations are in a position to undertake this. Paragraph 4: Does the annual economic cost of class A drugs refer to young people, we would be grateful for clarification. Factors that influence substance misuse we would suggest that peer group influences are added to the list Thank you. The guidance has been amended to include reference to profiling. Within the ‘policy background’ section you may like to note that there is a competent based NOS that relates to the third bullet point. • Recognise indications of substance misuse and refer individuals to specialists Thank you for your comment. This information has been passed to the NICE Implementation Team. All local organisations working with children and young people have local policies and protocols relating to confidentially and consent and these are likely to influence implementation of recommendations. Thank you. The guidance has been amended to include reference to profiling. Thank you for your comment. The guidance has been amended to clarify this. Thank you for your comment. The guidance has been amended. p.13 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Section 5 Doncaster Drug Strategy Unit Section 5 Page 11 Section 9 Page 14 Section 9 Page 13 Appendix A Page 16 onwards General Comments Please insert each new comment in a new row. In our opinion the research recommendations should reflect the need for information on how to address the needs of young LGBT people in relation to substance misuse. We would recommend the use of term ‘young people’ with a specific focus on vulnerable Young people, so that other groups are not excluded as they have not been mentioned, such as truants, homeless and those involved in the sex industry as mentioned earlier in the document. It is our view that it may be useful to list the categories being referred to when describing vulnerable and disadvantaged young people. In our opinion that the glossary should contain the definition used throughout the document of both “vulnerable” and “disadvantaged” Would you please consider defining substance misuse to include alcohol, licit and illicit drugs and volatile substances Would you also please consider defining selective interventions? In our view, many comments made above were also relate directly to statements in appendix A needs to be replicated (particularly in the recommendations section) Purpose not clear & document confusing. Layout confusing Response Please respond to each comment Thank you for your comment. PHIAC prioritises research that would be most useful in updating the guidance in the future. Thank you for your comment. The guidance has been amended to include reference to groups of vulnerable and disadvantaged children and young people. Thank you for your comment. Definitions relating to vulnerable and disadvantaged children are included in the revised guidance Thank you for your comment. Please refer to our previous response. Thank you for your comment. Selective interventions are defined in the glossary. Thank you. The guidance has been amended. Thank you for your comment. A quick reference guide is published at the same time as the guidance. Implementation tools will also be provided. Document lengthy and needs to be clear Recommendation 1 5 Need to clarify recommendations & produce a summary without additional waffle. Why over the age of 16? Thank you for your comments The guidance has been amended. What is meant by appropriately trained staff? Stakeholder response table – guidance consultation The guidance focuses on vulnerable and p.14 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Comments Please insert each new comment in a new row. Which target group is identified? Where is the definition of the target group? Are trained professionals available and how does this link into workforce plans? Response Please respond to each comment disadvantaged people up to the age of 25, however there are areas where evidence relates to particular age groups. The revised recommendation refers to young people from secondary school age being offered motivational interviewing. Unfortunately, there is a lack of evidence supporting effectiveness of this approach for younger children. The guidance ‘considerations’ section refers to this point. General Whole recommendation appears fragmented. Thank you for your comment. The guidance has been amended. Recommendation 2 5 No clear definitions of level of intervention, needs to be some screening & assessment. Thank you for your comment. The guidance has been amended. Recommendation 3 6 Recommendation in a confusing order. Thank you for your comment. The guidance has been amended. Is this back to defining target group Recommendation 4 Recommendation 5 6 Should it identify who and route to engage with these young people? Who is the appropriately trained staff? 7 Why does it keep repeating the bit on vulnerable & disadvantaged C & YP? What do you mean by behavioural techniques? Thank you for your comment. The guidance has been amended. Thank you for your comment. The guidance has been amended. Who will run the group sessions? The allocation of resources is beyond the remit of Stakeholder response table – guidance consultation p.15 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Drug Education Forum Evidence submitted Section Comments Please insert each new comment in a new row. What funding is available? Response Please respond to each comment this guidance. We generally welcome this guidance and believe that it could be helpful to those in the drug education field in meeting the needs of vulnerable children and young people. However we do have a number of concerns. Thank you for your comment. Recommendation 1 Any screening of young people over the age of 16 should be done in a non stigmatising way. One of the risk factors for problematic drug use is being labelled as a drug user. The guidance ‘considerations’ section refers to this point. Recommendation 1 We wonder about advocating a single technique – motivational interviewing – when the evidence, we have seen, is mixed about its effectiveness with this group. Thank you for your comment. General Page Number At a recent conference on drugs researchers from the Institute of Psychiatry discussed their findings. They said that there was no difference in outcomes between students who received motivational interviews and traditional drug education. My notes from the relevant section of the conference can be downloaded here and here: Recommendation 2 We again reiterate our concerns that the guidance does not allow for interventions beyond motivational interviewing. Recommendation 3 We fully support the reiteration of the DfES guidance to schools about developing strategies to identify and support young people for whom drugs may be a problem. Stakeholder response table – guidance consultation The statement relating to motivational interviewing is derived from the publications of McCambridge and Strang (2004, 2005), who found significant intervention effects at 3, but not 12 months post MI after a single session of around 60 minutes. Please refer to the main evidence review at www.nice.org.uk/PHI004 In addition, the Public Health Interventions Advisory Committee (PHIAC) considered a number of factors when developing the recommendations, including information provided by cooptees and expert testimonies. Members of PHIAC and external contributors are detailed in appendix C to the guidance. Thank you for your comment. Please refer to our previous response. Thank you. Your comment is noted. p.16 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Recommendation 4 Comments Please insert each new comment in a new row. Any screening of young people under the age of 16 should be done in a non-stigmatising fashion, reducing the likelihood of exacerbating risk factors. We believe that the role of identifying vulnerable young people needs to be much wider than schools. Many young people who may develop problems with drugs will be excluded from school. We believe there is a role for non-formal education to play a part in identifying and supporting vulnerable young people and would expect the guidance to reflect that. We are concerned that there is currently not the capacity to support vulnerable young people’s families particularly those that are hard to reach. Response Please respond to each comment Thank you for your comments. The guidance is not targeted exclusively to schools. Practitioners in a range of settings have a role in screening and assessment of vulnerable children and young people at risk of substance misuse or misusing substances. The recommendations recognise the importance of the development of a local strategy for the reduction of substance misuse among the target group. The guidance ‘considerations’ section also refers to a number of these points. We believe that the guidance should explicitly make reference to how it should be applied to situations where the children and young people are in the care of the local authority. Who in that case would be the “parent”? Recommendation 5 Educari general Recommendation 1 Glossary Stakeholder response table – guidance consultation 5 & 16 14 We do not believe that there is currently the capacity in the children’s workforce to meet the aspirations of Recommendation 5. Thank you for your comment. The allocation of resources is beyond the remit of this guidance. This guidance is welcome and generally well-presented. More clarity is needed in the way some of the definitions are given and the recommendations framed. Professionals are told to ‘identify vulnerable or disadvantaged young people aged over 16 who are misusing substances’. Thank you for your comment. The guidance has been amended. But the definition of ‘substance misuse’ is problematic; for example, because, since all use of illegal drugs can lead to legal problems - it therefore appears to define all illegal drug use as Thank you for your comment. The guidance has been amended. p.17 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Comments Please insert each new comment in a new row. ‘substance misuse’. This recommendation would be the opposite of a targeted intervention and would impose too great a burden on services. Response Please respond to each comment The guidance focuses on vulnerable and disadvantaged people up to the age of 25, however there are areas where evidence relates to particular age groups. Furthermore, for example, tobacco use is included in the definition; smoking is usually dependent use and can lead to health problems. Yet it is not clear if the recommendations apply to this – are the same interventions really considered appropriate for all types of substances? Recommendation 1 5 & 16 recommendations definition of vulnerable and disadvantaged general Stakeholder response table – guidance consultation 9 (It would also be good to give an upper age limit or define ‘young people’) In the next sentence, professionals are told to ‘refer those misusing cannabis and stimulants…’. It is not clear whether this means all young people misusing these substances (which would be ridiculous as it would overload systems) or (as might be reasonable if definitions were clear) only those who are vulnerable or disadvantaged. the recommendations that mention ‘referral’ are irresponsible unless there are matching recommendations about the way in which services to which young people are referred are to be expanded to meet the big increase in referrals The bullet-pointed list casts the net too widely, especially with reference to those ‘from marginalised and disadvantaged communities’ and ‘those with other health and social problems’. More precise definitions are needed; otherwise groups such as ‘children with asthma’ are going to be included. The reference to BME communities needs more elaboration since there are big difference in levels of use and problematic use in different BME communities; some more specificity is needed here. I would welcome a recommendation about tracking those who have received an intervention. Both through following them after Thank you for your comment. The guidance has been amended to include information about target populations, who should take action and what action they should take. Thank you. Your comment is noted. Thank you for your comments. The guidance has been amended. The revised guidance states that only members of ‘some’ ethnic communities are at risk of misusing substances. Thank you for your comment. The recommendations are based on the process of p.18 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Eurad Evidence submitted Section Page Number Comments Please insert each new comment in a new row. the intervention and by trying to ensure that multiple referrals are avoided or at least, different services are aware of these. Foreward and “aim of guidance” 1, 8 I am most annoyed by the absence of the word “prevention”. I know “reduce substance misuse” can be interpreted in many ways including prevention, but why not spell it out clearly and unambiguously? Recommendation 1 5 Recommendation 2 5,6 Stakeholder response table – guidance consultation Identifying young people who are misusing drugs is a very tricky problem. Unless they confess or are caught with drugs, it is very difficult to see how they can be targeted. This is a most sensitive area. Just because a child has a parent who uses drugs does not mean to say that they will do so. I recently met a young 22 year-old man whose father was an addict. He is heading the Swedish youth attack on drug use. I again make a plea for the true dangers of cannabis to be spelled out to users and non-users. The “appropriately trained professionals” must know their facts and not rely on FRANK or Drugscope to provide them as I said before. Instead of statements like “there is no conclusive proof that cannabis or skunk causes psychosis” we need quotes from Professor Robin Murray who has done so much research on this matter like “Five years ago 95% of psychiatrists would have said cannabis doesn’t cause psychosis, I would estimate that now 95% would say it does. It is a quiet epidemic” (8/10/06). Not to give a strong message like this is a betrayal of our children, the very people we as adults have a duty to protect. I personally haven’t been involved in counselling or treating young people for drug use but I would have thought that 1 or 2 sessions would be wholly inadequate. The aim must be to stop them using rather than just cutting down. Response Please respond to each comment needs assessment, agreed action plan and review. The revised guidance includes a ‘considerations’ section which refers to close working between agencies. Thank you for your comment. The terminology used reflects the original referral from the Department of Health ‘An assessment of community-based interventions to reduce substance misuse among the most vulnerable and disadvantaged young people’. ‘Reduce’ has been interpreted to also mean prevent. Thank you for your comment. Following the referral from the Department of Health, the guidance is primarily based on evidence of effective interventions rather than evidence about the psychoactive properties of substances. Thank you for your comment. Evidence from the UK (see McCambridge and Strang 2004) suggests that a single 1 hour session of motivational interviewing can be effective, at least p.19 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Comments Please insert each new comment in a new row. Recommendation 3 6 Recommendation 4 6 Recommendation 5 7 Recommendation 6 7 My reservations again are how the schools are going to identify pupils (See above). If children are truanting or have been excluded then they will not be around to be assessed. Will the “structured programme of support” be compulsory or voluntary? Many “difficult” parents will not co-operate. Since these are children who are not yet known to be using, the whole emphasis must be on prevention, preferably from a scientific perspective, not harm reduction which is appropriate only with current users. At least the number of sessions suggested for these younger vulnerable children is more realistic. However no mention is made of advising them of the dangers of drug use. It is laudable to increase their communication, study and problem solving skills and to set goals but unless they have been properly informed about drugs, they may still be ignorant of the true cost of a drug habit. Again the professionals need to be trained in prevention techniques, not those of harm reduction. I’m not sure that this ambitious aim of identifying those vulnerable and disadvantaged under 25s is achievable. It is not clear what is to be done with the information. Policy Background 9 Stakeholder response table – guidance consultation Official government policies such as “Tackling drugs:changing lives….” (2004) aims to “reduce the use of class A drugs and the frequent use of all illicit drugs by young people (under 25 years old), in particular the most vulnerable, by 2008”. The aim should be to stop class A drug use and stop ANY use of all illicit drugs. The implication here is that infrequent use of all illicit drugs is somehow OK. “Drugs: guidance for schools (DfES 2004a) Says, “… - and respond to - the drug related needs of Response Please respond to each comment in the short term, at reducing substance use in vulnerable young people. Thank you for your comment. Schools have a role in identifying pupils who truant or are excluded. Thank you for your comment. The guidance has been amended to clarify that vulnerable or disadvantaged pupils should be offered a familybased programme of structured support. Thank you for your comment. The revised guidance includes a ‘considerations’ section which refers to substance misuse interventions as one component of a care plan that takes the child or young person’s full range of needs into account. Thank you for your comment. The recommendation has been amended to clarify that a local profile of vulnerable and disadvantaged young people will aid the development of targeted local services through further definition of the roles of local agencies and practitioners. Thank you for your comment. Thank you. Your comment is noted. p.20 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Home Office Evidence submitted Section Page Number Recommendations for research 1, 4 and 5 Recommendations for research 2 11,12 General General General Stakeholder response table – guidance consultation 11 Comments Please insert each new comment in a new row. vulnerable pupils”, whatever that may mean! Statements need to be unequivocal and say that drug use is not normal, illegal, and will not be tolerated. At least the other 3 documents mentioned use the word prevent/prevention, but their language also should be tightened up. Again this is encouraging as the word preventing is used, and used first before “reducing and/or delaying the onset of substance misuse…” This is arguably the most important question. The people designated to deliver these interventions to children must be properly trained in prevention techniques and have a sound knowledge of the science based facts surrounding drug damage to themselves, others and the wider society. Harm reduction should not be employed under any circumstances where children are not using drugs. It gives them the “green light”. The Home Office welcomes the draft guidance on community based interventions amongst vulnerable and disadvantaged young people The guidance needs to address a clearly defined and appropriate audience – HO would suggest Young people and drugs commissioners. There is clarity as to how this piece of guidance fits with the existing policy context on young people and drugs jointly driven through DH, HO and DfES. There is an existing structure of delivery for drug services for young people and communicating the evidence on what works must be mindful of this context. Drug Action Teams/Community Safety Partnerships work jointly with Children’s Services locally to reduce young people’s drug use as set out in the Every Child Matters Change for Children Young People and Drugs strategic guidance (http://www.drugs.gov.uk/publication-search/youngpeople/every-child-matters.pdf ). Joint Commissioning Groups in most areas, with representation from health, children’s services, probation, police and other agencies agree on what Response Please respond to each comment Thank you for your comment. Thank you for your comment. Appropriate training is now referred to in the ‘considerations’ section. Thank you. Thank you for your comment. The guidance has been amended. Thank you for your comment. The guidance has been amended. p.21 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section General General General Recommendation 1 Stakeholder response table – guidance consultation Page Number Comments Please insert each new comment in a new row. provision they will make available to address need across a range of universal, targeted and specialist interventions. The guidance states that ‘if an intervention has been omitted from the recommendations this does not mean it should be discontinued’ this is an absolutely crucial point given the policy framework on young people and drugs and the paucity of evidence from good quality evaluations. It would be helpful to present the evidence available on prevalence levels amongst vulnerable groups of young people. Although there is currently a fairly narrow evidence base on interventions that work with vulnerable groups, evidence is available on particular vulnerable groups who are more likely to take drugs. The government’s young people and drugs programme draws on this evidence base and seeks to ensure that local areas are targeting support to these vulnerable young people who include truants, excludes, looked after children, young offenders and children of drug misusing parents. Central Government direct spending on young people and drugs services is pooled into the Young People’s Substance Misuse Partnership Grant (YPSMPG) which totals £64 million for England in 2006/07. The expectation is for local areas to use this ring-fenced fund in addition to mainstream funding to reduce/prevent drug use and improve outcomes for young people. Recommendation 1 contains two parts: assessment and referral for motivational interviewing. The suggestion that professionals in the NHS, local authorities, education, social care, the voluntary sector and the criminal justice system should identify young people misusing substances fits well with Home Office and DfES guidance that all vulnerable children and young people in key risk groups for drug misuse are assessed at an early stage as part of a wider needs assessment. This is in alignment with the Every Child Matters Change for Children agenda which has sought to address the needs of the child as a Response Please respond to each comment Thank you. Your comment is noted. Thank you for your comment. The overall prevalence is defined and the revised recommendations refer to the need to develop local profiles of vulnerable populations. Thank you for your comment. The revised recommendations cover the importance of the development of a local strategy within the context of joint planning systems and commissioning. Thank you for your comment. The revised recommendations now comprise two distinct recommendations in this area: - the identification and referral to suitable services of all vulnerable/disadvantaged young people (of any age) who are (or who are at risk of) misusing substances. - offering motivational interviewing to secondary p.22 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Comments Please insert each new comment in a new row. whole rather than individual issues in isolation. Initial identification of drug use or risk of drug use should not be regarded as an issue isolated from general assessments. Care Matters – the reform Green Paper for looked after children – proposes for example that drug screening be included for all looked after children within regular health assessments. The Common Assessment Framework – being introduced throughout England by 2008 – is a tool for all professionals working with children in assessment of need which again grounds the recommendation in current policy context which local practitioners and services will be engaged with. Response Please respond to each comment school-aged children. Unfortunately, there is a lack of evidence supporting effectiveness of this approach for younger children. As evidence supports the use of motivational interviewing for the reduction of use of other substances (including alcohol and tobacco), it is now recommended for young people who misuse any substance. The guidance ‘considerations’ section refers to this point. However, the age limit that is suggested here – aged over 16 – appears to relate to the available evaluation evidence around the effectiveness of motivational interviewing and does little in terms of encouraging professionals working with children to identify issues with drug use at an early stage. The recommendation would be improved by rewording and separating out the process of identification of young people’s drug use from outlining what interventions may be most appropriate from the evidence. Recommendation 2 The implications of the requirement for professionals trained in motivational interviewing to deliver the proposed interventions must be acknowledged in order to give this guidance credibility locally– understanding the resource implications for local services involves advising who would be best placed to deliver the motivational interviewing; what training this involves (as I understand it there is no single recognised training or accreditation for Motivational Interviewing) and how this time would be resourced. Thank you for your comment. The revised guidance states that practitioners should have the appropriate competencies with respect to screening, assessment and intervention, according to their role. What about supervision of those delivering motivational Stakeholder response table – guidance consultation p.23 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Recommendation 3 and 4 Recommendation 6 General Stakeholder response table – guidance consultation Page Number Comments Please insert each new comment in a new row. interviewing? Who will provide this? Many practitioners in young people’s substance misuse services are already trained in motivational interviewing – but it is generally externally provided and expensive – so many staff are still awaiting such training and services cannot always afford to support the training for all staff. The resource implications and issues of accreditation would need to be addressed It is unclear who in schools the guidance intends to take forward identification of young people using substances. Again the Common Assessment Framework is the routine tool that many practitioners will be using with children deemed at risk to identify their needs. Substance misuse is flagged within this tool – guidance would be best placed to direct schools within the policy context of the Every Child Matters Framework. As in recommendation 1, there seems to be two issues rolled up into these recommendations – the identification of at-risk individuals and the types of interventions/services that they might require. It would be helpful if some guidance could be given as to which young people would benefit from the different interventions recommended. The CAF will not be collecting data for all children and young people – it is an assessment tool for children in need. Some local areas may be using information from CAF assessments to build a profile of the local population of vulnerable groups. Drug Action Teams and Children‘s Services set targets according to local need and The most recent publication on young people and drugs is Every Child Matters Change for Children: Young People and Drugs this provides the policy background on bringing the work of children’s services closer to drugs services. The Every Child Matters Green Paper and ‘ECM: Change for Children’ publications are distinct publications. Response Please respond to each comment Thank you for your comment. The guidance has been amended. The revised guidance refers to use of existing screening and assessment tools such as the Common Assessment Framework. Thank you for your comment. The revised guidance refers to developing local profiles of needs by local agencies, in conjunction with the regional public health observatory. Thank you for your comment. Key documents are referenced in the ‘background’ and ‘considerations’ sections. p.24 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number General Recommendation 5 General Institute of Alchol Studies Recommendations 1-7 Comments Please insert each new comment in a new row. The policy background should also include Youth Matters Green Paper which was published last year and includes proposals to reform services for vulnerable young people – in ensuring the guidance is credible the Integrated Targeted Youth Support Service – for which guidance is due to be issued in January 07 would I anticipate be a key audience. Do services providing this sort of intervention exist? It might be better to phrase it in terms of “commissioners should seek to commission” services of this type. Consideration needs to be given to which groups would be best placed to identify young people and families to such services. It is important to make it clear that interventions appropriate to the most problematic (opiate and crack) users are not considered in this guidance as they require specialist treatment services. We regard this as a balanced approach, which we support in the main. However, sadly, the efficacy of any of these approaches is likely to be fairly low. To our knowledge, there is no evidence available on 12 step self-help groups for youth, but they do exist, and seem to do well, and have the advantage of being cost-free. We cannot, therefore, see the reason for not mentioning them at all. Recommendations Stakeholder response table – guidance consultation 1-7 It seems to us that, while the ideas contained in the draft guidance and the intentions behind them are admirable, the problem is that of translating these ideas into actual practice. If the recommendations are to be more than worthy aspirations, people such as teachers have to take a range of actions, which, by any normal standard, are actually rather difficult and demanding. The work of Cartwright et al from 1978* demonstrated how social workers were reluctant to identify and intervene in alcohol problems in their clients unless and until Response Please respond to each comment Thank you for your comment. The policy section has been amended accordingly. Thank you for your comment. The guidance ‘considerations’ section covers this point. Thank you for your comment. Clear definitions are now included, however, the guidance does not cover those dependent on drugs. Thank you for your comment. PHIAC acknowledges the limitations of the evidence in this area – see the ‘considerations’ section. PHIAC was only able to consider the evidence available. Thank you for your comment. The recommendations provide practical standards. p.25 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation International Centre for Drug Policy (St George’s University of London) In-volve Evidence submitted Section Page Number Recommendation 6 7 Public health need and practice Vulnerable and disadvantaged young people Glossary 8 General Stakeholder response table – guidance consultation 8 14 Comments Please insert each new comment in a new row. they felt themselves to be competent and to have adequate support in carrying out that role. If this applies to social workers and other members of the helping professions, it is likely to apply even more strongly to, for example, teachers, whose primary purpose is not therapeutic. Without adequate education, training and role support, teachers and others are unlikely, in our view, to take the action that is needed for the recommendations to become a reality. The question thus becomes what kind of education, training and support is in existence or could be made available, and we are uncertain of what the position is in this regard. The draft lays considerable weight on BESTS, but, to our knowledge, as these have never been evaluated, there is no evidence to say whether or not they perform the necessary functions. In any case, we are informed by the Department for Education that BESTS are being discontinued. * Cartwright, A., Shaw, S., Spratley, T. & Harwin, J. (1978) Responding to Drinking Problems. London: Croom Helm Line 6 change ‘would’ to ‘should’, and also where it is repeated on page 18 (Appendix A) Para 4 – these figures can probably be updated from recent Home Office publications (November 2006) 2nd bullet point – insert “and sibling” after ”parental” 4th bullet point – insert “comorbidity” into list of examples Widen definition of “drugs” to include references to prescribed drugs and Over The Counter drugs – these are frequently abused and dependence on them acquired Vulnerable and disadvantaged young people (yp) are certainly at increased risk of drug/alcohol use and key to successful intervention is engagement. There is good evidence that services that are yp friendly, as defined by young people, overcome this initial barrier. Services that are accessible in time Response Please respond to each comment Thank you for your comment. The guidance has been amended. Thank you for your comment. Thank you for your comment. The revised guidance includes clear definitions. Thank you. Your comment is noted. p.26 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section General General General General Stakeholder response table – guidance consultation Page Number Comments Please insert each new comment in a new row. and space, are yp accepting, have activities that engage interest will see yp. Whilst at one level these appear truism there are real difference between services on the ground that deliver to the excluded and those that do not. Some of this is very basic such as providing a place where those basic encounters over coffee or food maybe with a video that provokes discussion and the start of motivational work. Much of the evidence was inevitably taken from formal studies that are limited to very specific interventions and therefore limited in terms of the application to the very groups looked at. Time limited/formal entry interventions do have role but should be fronted by outreach and informal access that enables the excluded to feel more included and are of not only in the community. The emphasis on motivational interviewing, relaxation and coping mechanism was good and a recognition that some the less directional counselling will probably not work with these yp. It was a pity that problem solving was mention rather than a more solution focused approach that builds on what the yp already have and brings self worth to those who do not have much. We have found that fundamental to working with these yp is identity. If work on identity and difference is not attempted these key basics to how yp operate in the world as excluded, drug users, gang member, academic failure etc cannot be challenged or changed. This also links with the community in which the yp live, their social, religious/spiritual place and ancestral heritage – all key to both current identity and potential positive change. The studies/evidence seemed to be isolated from where yp actually exist. Our work has shown that these yp are assisted as much if not more by a coaching process rather than a counselling process although the studies behavioural evidence does, to a degree, Response Please respond to each comment Thank you. Your comment is noted. Thank you. Your comment is noted. Thank you for your comment Thank you. Your comment is noted. p.27 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number General General Mentor UK General Evidence 1 - Men UK Mersey Care NHS Trust General Section 1 Stakeholder response table – guidance consultation 4 Comments Please insert each new comment in a new row. support some of this. We would advocate that interventions should also include the opportunity to use the process as a learning and alternative educational process. That is engagement with services includes an educational aspect so that, for example, yp with cannabis use can join a programme that educates them about themselves but also provides accredited training to start the integration process. Ideally this should be backed by volunteer and even employment opportunities through the service and beyond. Suggest that evidence is gathered from the services in the UK who are already working in a value for money services that are engaging with these yp in positive way. There needs to be an engagement between those delivering services and those carrying out research. • The fact that many of the recommended interventions are either school based or involve referral from the young person’s school, will mean that young people who are not in school (as is the case with many vulnerable young people) will be excluded from such interventions. • There is an issue with the guidance omitting young people who are being cared for by someone other than a parent (i.e. looked after children), as these young people may be some of the most vulnerable and should be taken into account in recommendations such as these. This guidance is in an area with well-developed joined-up government policies. Because these policies are so wide ranging, there is inevitably a more diffuse evidence-base for services on the ground. There needs to be clarity therefore about the factors leading to successful outcomes when implementing the recommendations made here. Lack of evidence – this is true because it is difficult to research the factors leading to implementation of public health approaches in a “pure” way. However, if we consider consensus Response Please respond to each comment Thank you. Your comment is noted. Thank you. Your comment is noted. Thank you for your comment. The recommendations now refer to practitioners working with children and young people across a range of settings; although certain vulnerable groups such as those excluded from school remain hard to reach. Thank you for your comment. The guidance has been amended. Thank you. Your comment is noted. Thank you. Your comment is noted. p.28 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Section 1 5 Section 1: Recommendations 5-7 Section 1: Recommendations 5-7 Section 2 8 Stakeholder response table – guidance consultation Comments Please insert each new comment in a new row. findings (relevant to public health interventions) the factors that stand out are: clarity of treatment processes, training and supervision of staff, mode of outreach and delivery of intervention, and community treatment standards/monitoring. It is for the reasons given above, that some interventions wrongly applied have the contrary effect of encouraging drug use. The appropriate mode of delivery of interventions should therefore be more fully identified in this guidance. Also some community interventions need to be specifically targeted at certain groups of drug users as they will be ineffective or contraindicated with others. Research into Dialectical Behaviour Therapy is very helpful in demonstrating these complex interactions. The intended audience may need help to appreciate how important the interactions of different factors are, e.g. motivational interviewing is unlikely to be effective unless it is delivered by staff trained and/or supervised through a recognised course with their training regularly updated. Also attitudes of staff towards the intervention and the client group will need to be monitored and actively supported or influenced as appropriate if the approach is to remain effective. Public health interventions lacking a strong evidence base and intended for use in a wide range of community settings are particularly open to differing local interpretations which may water down or even undermine their effectiveness. Arrangements for national monitoring are well advanced. It would be very beneficial if NICE could consider issuing supplementary guidance for monitoring and reviewing the local impact of implementing evidence-based community interventions in such a key area. Definition of vulnerability: this is an important and accepted definition. However it is also important to point out that drug misuse is identified in other less disadvantaged groups of young people who are in danger of forming lifestyle habits that may be Response Please respond to each comment Thank you for your comment. The recommendations now define delivery mode and target groups. The ‘considerations’ section in the revised guidance now includes this point. The ‘considerations’ section in the revised guidance now includes this point. Thank you for your comment. The NICE Implementation Team is developing support tools to accompany the guidance, including audit and costing tools and implementation advice. Thank you. Your comment is noted. p.29 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number General Section 5: Research 11-12 Michael Taylor Comments Please insert each new comment in a new row. less visible but can have devastating impact on private life, such as in the parenting of children where emotional and psychological abuse is linked to adult personality development. I would be pleased on behalf of the organisation I represent to give further evidence of the above considerations for the psychological welfare of young people as a result of their parenting experiences, e.g. when influenced by parental drug misuse. There are many aspects of the comments above that we believe should be developed into recommendations for further research. In addition, research into the early signs and precursors to drug misuse in all families should be funded. The model of interest to be explored would be early identification rather than early intervention with a pathway between the two approaches also to be identified with the support of a research programme. I offer a couple of observations. Response Please respond to each comment Thank you. Your offer is noted. Thank you for your comment. PHIAC has prioritised the research requirements from a long list. Thank you. Your comment is noted. In reading the draft document I was surprised that in discussing vulnerability that no mention was made of single parent families, nor of tobacco smoking. These two are factors easily observable by primary care teams or at least GP teams. National Addiction Centre General 1 Stakeholder response table – guidance consultation 5 I imagine that there is not the evidence linking such vulnerabilities to future drug use. PHIAC are to be congratulated on having done a difficult job well. The lack of good quality evidence is a major handicap to the development of guidance and what has been achieved impressively narrows the gap between what is securely known and can be inferred and what is needed and can be useful now. It would have been additionally helpful to have the appendix on gaps in the evidence to comment on this guidance. The concern that some interventions may encourage drug use has some foundation in evidence and is worthy of careful consideration. This possibility is known to apply specifically to Thank you. Your comment is noted. Thank you for your comment. This possibility is clearly highlighted in the guidance; and the importance of appropriate implementation is p.30 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number 1 5 1 Stakeholder response table – guidance consultation 5 Comments Please insert each new comment in a new row. group rather than to individualised interventions. In particular, evidence from a number of RCTs and at least one review identify harmful outcomes in classroom settings where interventions have targeted heterogeneous groups with different prevention needs. In these studies primary prevention interventions have led to further involvement in drug use among children and young people who were pre-existing users, beyond that seen in control conditions. There is no evidence to substantiate concerns that individualised interventions have similar effects. These issues were considered by the ACMD in the recent ‘Pathways to Problems’ report. Recommendation 1 proposes that generic professionals identify and refer vulnerable or disadvantaged young people, as already occurs. There is no indication in Recommendation 2 of the settings in which professionals appropriately trained in motivational interviewing may be found. The detailed intervention content of Recommendation 2 is entirely appropriate. It is likely to be problematic for specialist drug services only to deliver motivational interviewing interventions. Attendance at new services following referral may be an unnecessary barrier to help for these young people. Generic professionals such as youth workers, Connexions Advisors, YOT workers and social workers already in contact with this population are well-placed to develop drug prevention practice and to have a more substantial role than referral. Training is also likely to have wider individual practice and service development benefits beyond contributing to drug prevention. A small point but worthy of note: Recommendation 1 specifies “motivational interviews” whereas Recommendation 2 specifies “motivational interviewing”. There is a growing industry of individual interventions claiming to be “motivational” in some sense or other. The latter term makes a more specific reference to the existing evidence-base and has increasingly welldeveloped fidelity and quality standards and should be preferred Response Please respond to each comment stressed – see the ‘considerations’ section. Thank you for your comment. The guidance has been amended. The ‘considerations’ section in the revised guidance now includes this point. Thank you for your comment. ‘Motivational interviewing’ for the purposes of this guidance is defined in the ‘glossary’. p.31 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number 1 5 1 6 4 Stakeholder response table – guidance consultation 11 Comments Please insert each new comment in a new row. for these reasons. The specification of cannabis and stimulants seems a little odd in view of evidence of effects on other drugs in the cited studies. Why not refer to drugs in general, perhaps identifying the possible need for further interventions among those with more complex problems? Perhaps the referral of individual adolescents and their families identified in Recommendation 4 should be qualified in some way to exclude compulsion and encourage a more person-centred approach. No criteria are identified and referral of ‘problem pupils’ and ‘problem families’ may seem an attractive way of dealing with difficult situations. The effectiveness of subsequent intervention seems likely to be contingent upon the referral process itself being sensitively handled. As with previous comments, it is not clear who should deliver these interventions, and it may be that the growing levels of non-curriculum staff within schools are well-placed to deliver interventions to pupils themselves if appropriately trained, whilst family interventions will require separate provision. The section on implementation proposes some tools to assist the capacity of localised organisations to deliver on these recommendations. There is reason to be concerned that what has been proposed will be insufficient. The drug prevention training needs of professionals in contact with these young people may not yet be well understood. There are workforce development issues that will benefit from national strategic consideration. Specialist treatment and other existing provisions do not currently address the specific prevention nature of the needs of these young people. For example, current training provisions for motivational interviewing in general are unsatisfactory. Dedicated training programmes applying this approach to vulnerable and disadvantaged young people in this approach do not yet exist. A long term strategic perspective on these issues appears essential in addition to guidance on what Response Please respond to each comment Thank you for your comment. The guidance has been amended. Thank you for your comment. The guidance has been amended to use the term ‘offered’. The recommendations have been revised to be specific about target populations, who should take action and what action they should take. The ‘considerations’ section in the revised guidance now refers to this point. Thank you for your comment. Training and competences are considered within NICE implementation advice. p.32 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number 5 11/12 5 11/12 5 11/12 5 11/12 Stakeholder response table – guidance consultation Comments Please insert each new comment in a new row. can be done relatively straightforwardly. Recommendations 1, 4 and 5 involve specific targeting of three identified vulnerable groups. Whilst agreeing that more research is needed in these populations, it is not clear how and why these have been selected or that these groups have more acute needs for research evidence than other groups identified elsewhere in this guidance. There are virtually no existing trials that have been undertaken in this country with any of the vulnerable groups. Whilst all vulnerable groups will have somewhat distinct needs, it does not follow that they should be separately targeted, which would be an erroneous interpretation of Recommendations 1, 4 and 5. The existence of additional risk known to be attached to membership of multiple vulnerable groups is also relevant here It is possible that programmes which target vulnerable and disadvantaged young people more broadly can be more effective and cost-effective within each vulnerable group than more narrowly targeted approaches, as well as making an additional contribution to the reduction of the overall burden of drug-related harm. At an individual level, it may be important for a young person to have the opportunity to talk to someone about their drug use in exactly the same way that other teenagers do. This is often a good basis for rapport building and subsequent discussion. Narrower and broader targeting approaches should thus be evaluated. If intervention guidance is going to prominently involve referral in the context of multi-agency collaborative working, as it does presently, it will be important to incorporate dedicated evaluation of the effectiveness of this component in future studies. As well as identifying research questions, it may be important to also consider making a recommendation on study design. In other areas, calls that too much funding is directed towards trials are often heard, and are understandable. In relation to prevention in this area, the paucity of high quality evidence Response Please respond to each comment Thank you for your comment. The specific groups were identified from the evidence of effective interventions. Thank you for your comment. The recommendations cover a wider range of vulnerabilities that place children and young people at risk. The recommendations are based on the process of individual assessment of risk and needs, with recommended interventions for specific groups based on evidence of effectiveness. Thank you. Your comment is noted. Thank you. Your comment is noted. p.33 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number 5 11 5 11 General National Drug Evidence Centre 2 Stakeholder response table – guidance consultation 8 Comments Please insert each new comment in a new row. identified in the review to originate from this country was understood to be a major problem. A specific recommendation that RCTs will usually be the most appropriate study designs to answer the identified questions may be helpful. Recommendation 2 does not, in my own view, represent an evidence-based need for further research. See earlier comment. Recommendation 3 calls for specific evaluation of family-based interventions. In light of the prominence given in the intervention guidance, it would seem appropriate to also give motivational interviewing similar status. The evidence-base for both is strikingly under-developed, and whilst the need for family-based interventions has already been recognised within the HTA process, a similar need for research on the contribution that motivational interviewing may make to drug prevention has not. The guidance should perhaps recognise that the “5% of less vulnerable” young people that use illicit drugs represents a larger number of young drug users than does the “24% of vulnerable young people” that are illicit drug users. That is, that most young drug users are not from disadvantaged groups. Disadvantaged young users may be at higher risk of going on to develop problematic use, so there is a public health justification for prioritising their needs, but this isn’t made explicit in the recommendations. There are more up to date estimates of economic & social costs, see Gordon et al, in Singleton et al, at: http://www.homeoffice.gov.uk/rds/pdfs06/rdsolr1606.pdf Response Please respond to each comment Thank you for your comment. The concern about unintended adverse effects of interventions appear to be specific to group rather than individual interventions, delivered in settings such as classrooms. This concern is highlighted in the guidance and evaluation of any adverse effects of interventions is also included in the research recommendations. The guidance has been amended. Thank you. Your comment is noted. Thank you. The guidance has been amended. p.34 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section 2 National Treatment Agency General General Page Number 8 Comments Please insert each new comment in a new row. “Illicit drugs use in the UK is most prevalent among young people aged between 16 and 24 years.” – this is not the case for all drug types; e.g. opiate use is more common among older age groups. Policy Context. The young peoples substance misuse policy context is not highlighted. Every Child Matters: Young People and Drugs (DFES 2005) underpins the young peoples Drug Strategy. Hidden Harm ACMD 2003 provides details about parental drug use referred to in Recommendation 5. There are two different substance misuse treatment systems one for under 18’s ( defined in Essential Elements NTA 2005) and an adult system.( Models of Care NTA 2006). Each system has a slightly different definition of treatment and funded in different ways. From an implementation perspective it may be useful to identify possible funding streams for both adult and young people’s systems. Definitions: The document defines substance misuse as ‘intoxication …regular excessive consumption and/or dependence ... leading to social, psychological physical and legal problems’ (page 5). This broad definition fits with abuse/dependence in DSM IV. However, the following sub-paragraph notes that clinical interventions for individuals who are ‘dependent’ on substances are not considered. The authors have included dependence in the definition of misuse. It is unclear what group are included or excluded. The document appears to single out cannabis and stimulants, other combinations that are common in clinical practice are not mentioned. General Vulnerable Groups: The introduction highlights that certain vulnerable groups have been admitted. Latest Home Office statistics identify that not all vulnerable groups are homogeneous and that even in the most Stakeholder response table – guidance consultation Response Please respond to each comment Thank you. Your comment is noted. Thank you for your comment. The guidance refers to these documents. The revised recommendations emphasise the importance of developing a joint strategy – which would be the vehicle for assessing and accessing the resources available. Thank you for your comment. The guidance has been amended. Thank you for your comment. The guidance states that children and young people at risk have multiple vulnerabilities and needs. The recommendations are based on the process of needs assessment, agreed action plan and p.35 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section General Page Number Comments Please insert each new comment in a new row. vulnerable of groups for substance use, misuse is not a majority activity. We advise that when discussing risk the paper should reflect protective and resilient factors. Also by identifying certain groups there may be a tendency to identify distinct group characteristics or group needs. This conflicts with the reality of vulnerable young people being in many different groups sometimes with high substance misuse harm and sometimes with high non substance misuse need/harm. The NTA would see that for under 18’s those in the former category would require structured specialist substance misuse treatment the latter being more likely to require interventions described in the guidance. Competency for both assessors and practitioners: This is mentioned but not defined. Motivational interviewing is a tool rather than a therapeutic approach. Many people working with under 18’s outside the specialist young people’s drug system or CAMHS are unlikely to be competent practitioners in regards to motivational interviewing. Even within the young person’s substance misuse treatment system practitioners are likely to have attended a two day courses but does this make them competent? Practitioners may be a more useful term than professionals given many youth support services and treatment services are based in the voluntary sector. Competency seems very relevant when even the guidance “ expressed concern that some interventions may encourage drug use if not delivered appropriately by trained professionals”. Response Please respond to each comment review. Thank you for your comment. The guidance states that practitioners from a range of settings should have the appropriate range and level of competences with respect to their role in the prevention of substance misuse (ie screening, assessment and treatment) NICE implementation tools are being developed and will provide further advice on competencies and training. Individuals conducting interventions in the cited studies included qualified social workers or psychologists, professionals with broad training in many aspects of child development, psychopathology, family functioning and other matters. Many substance use workers to whom these young people will be referred in UK systems will not be trained in this way. In light of the potentially iatrogenic effects of interventions if delivered by Stakeholder response table – guidance consultation p.36 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section General Stakeholder response table – guidance consultation Page Number Comments Please insert each new comment in a new row. untrained people and highlighted by the document, this is an important issue. Substance use services should be encouraged to employ ‘appropriately trained professionals’ but specialist substance misuse services that include NHS and other professionals should be responsible for those young people who are both vulnerable and engaged in harmful substance use. Response Please respond to each comment Resources Vulnerable children and young people represent a considerable minority. For instance, at least 10% of the adolescents surveyed by the National Statistics (2004) survey were judged to have a mental disorder. If all or even half of these young people, who represent only a proportion of the vulnerable groups at increased risk listed by the document, were referred to an intervention, it would immediately overwhelm all existing targeted services in the UK. Thank you for your comment. The guidance highlights that vulnerable children and young people have significant needs. The recommendations relating to referral to services focus on those individuals assessed to be at high risk. Relationships with other services For the sake of rational use of resources, interventions should be delivered through existing services, (schools, child and adolescent mental health or substance use services, or a combination) however enhanced. This is crucial to avoid duplication or development of parallel services. The guidance states that the recommendations should be implemented within the existing frameworks for children and young people and drug prevention. Substance misuse in context: The listed interventions are aimed at substance misuse. However, this should be seen in context. Many of these young people will have multiple needs and for some, substance misuse may be only a relatively minor aspect, or marker, of other difficulties. It is crucial that any service (such as an augmented CAMHS) to which they are referred has the staff competence to evaluate the full range of difficulties they suffer so that comprehensive interventions can be put in place. Without an The guidance acknowledges that these groups have multiple vulnerabilities and a range of needs. p.37 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Recommendation 1 5 Comments Please insert each new comment in a new row. agreed distinction between use and misuse of cannabis it is difficult to see how such interventions can have successful outcomes. The first part of this recommendation is referred to in the Home Office document Identifying Substance misuse need HO 2003. The evidence base is about cannabis and stimulants but the action should refer to all substances. Are these professionals “ targeted youth support workers”?. Whoever they are they should not be specialist drug workers but they should be supported and possibly supervised by specialist drug workers. This recommendation notes that individuals over 16 should if appropriate be referred for one or more motivational interviews. It is unclear what is meant in the guidelines ‘if appropriate’. If judgment is required, those who are screening need to have appropriate experience to judge whom to screen and refer. Perhaps these should be professionals such as teachers, general practitioners or school nurses. This recommendation also should refer to the Common Assessment Framework where need among vulnerable young people is most likely to be identified. From this perspective need will be identified before the intervention which would be the logical sequence. This recommendation also assumes competency in assessing as well providing motivational interviewing. Does every young person using cannabis or stimulants require one or more sessions of MI? Response Please respond to each comment Thank you for your comment. The guidance states that practitioners from a range of settings should have the appropriate range and level of competences with respect to their role in the prevention of substance misuse (screening, assessment and treatment). NICE implementation tools are being developed and will provide further advice on competencies and training. The guidance refers to use of existing screening and assessment tools, such as the Common Assessment Framework. Practitioners should have the appropriate competencies relating to their role in prevention of substance misuse. The intensity of the intervention such as number of sessions will be dependent on level of need and risk. The guidance is based on a tailored approach of individual risk assessment and referral to the appropriate services. This contrasts with the latest draft of the NTA guidance on comprehensive substance misuse assessments which suggests identifying need and then the type of intervention to meet this need. This is consistent with the Every Child matters “tailored approach” to need. Stakeholder response table – guidance consultation p.38 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Recommendation 2 Page Number 5 Comments Please insert each new comment in a new row. The term motivational interviewing has many meanings, some see it as a style of interviewing though it can be an intervention if it includes feedback and identification of consequences of stopping or continuing substance misuse. It is probably best used in a stepped care approach so that individuals who are identified as at risk can be followed up with more structured treatment. Response Please respond to each comment Thank you for your comment. Motivational interviewing has now been defined in the ‘glossary’. The guidance has been amended. The Dennis et al. 2004 study is no longer used to support this recommendation. The report cites the research of McCambridge and Strang and the Dennis et al (2004) study to justify the use of motivational interviewing. However, these studies are quite different and used different treatments. The McCambridge study was not for vulnerable young people but college students and the MI was done by Jim McCambridge himself. It was more of a brief intervention with a motivational component However, the Dennis study was for those with cannabis use, and many had other complex needs, often ‘vulnerable’ in the terms of the draft document. It utilised motivational enhancement therapy (MET) rather than MI. This structured treatment was manual-based, and highlighting the competence issue, delivered by trained therapists often at doctorate level. It may be that the stepped care concept should also apply here: if young people receive a brief intervention and not change their behaviour during follow up, referral for specialist treatment will be required. Otherwise, some vulnerable young people will receive MI by untrained staff thinking that is all they require, perhaps in effect diverting them away from specialist resources. There is no discussion of referral for those under 16 who are actually misusing or using drugs. In addition, there is no indication noted about training requirements. The MET was a structured manual delivered therapy with trained professionals, significantly different to the situation in England where many workers are not professionally trained and may have Stakeholder response table – guidance consultation p.39 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Comments Please insert each new comment in a new row. experienced only brief training. The recommendation should note what appropriate background and training is appropriate; the common 1-2 day training which is the norm does not change practice. Response Please respond to each comment In line with the HAS review , The Substance of young need (HAS 2001) and Essential Elements (NTA 2005) this recommendation seems to suggest interventions by practitioners based in young people specialist treatment services( ECM,YP and Drugs 2005) or tier 3 / 4 services (HAS). However these services are described they offer a more comprehensive range of interventions than simply MI. Again this range is consistent with the concept of numerous substance related needs rather than a single focus on motivation. Recommendation 3 6 Recommendation 4 6 Stakeholder response table – guidance consultation Motivation however is extremely important. Most interventions within the young person’s treatment system are aimed at assisting the young person to consider their options from an informed perspective and then set goals for reducing or stopping their use of substances. Unless the young person agrees that their drug use is problematic MI programmes are likely to be unrealistic and wasteful of scarce resources that could be used elsewhere. The NTA fully support this recommendation but would like to see the policy context developed. E.g. identification should happen through the CAF, possibly through Social Inclusion Teams as part of the Extended Schools Strategy. CAF’s should be followed by CAF Action Plans and reviews. NTA perspective is that this should be contained within the school system supported by Young Peoples treatment services. The importance of this is that BESTs and other services are not universal and provision throughout England is patchy. This recommendation has resource implications. Who will provide these family based interventions. Research, if it’s the Thank you for your comment. The guidance is set within the context of the Common Assessment Framework and existing systems and structures for children and young peoples services. Thank you for your comment. The family-based programme should be provided in the context of p.40 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Recommendation 5 6 Comments Please insert each new comment in a new row. Liddle et al work, was based on highly trained qualified family therapists with rigorous supervision. Outside of CAMHS these services don’t exist. The recommendation suggests the interventions happen before CAMHS. Essential Elements states that all Local Authority areas should have staff able to offer a family based intervention including parental work but this would not necessarily be MI focused. At present Family Therapy services have an extremely high threshold and such parents are unlikely to meet threshold criteria. Also this recommendation includes parents who misuse substances. This may confuse issues. The government response to Hidden Harm available from DFES, highlights three very different types of parental interventions. Parents whose children use drugs; parents whose problematic drug use develops problems for their children through addictive patterns etc and drug using parents who require drug treatment. Such a perspective enables easy identification of referral pathways which would be a welcome addition to the paper. This recommendation has significant resource implications. It suggests that those children under 16 ‘at risk’ of substance misuse should be referred with their parents for a relatively intensive structured programme of support. The level of intervention envisaged is potentially equivalent to that offered in child and adolescent mental health service day units of which there are relatively few in the UK. In keeping with professional practice in the UK, any such intervention should have a preceding stage of detailed assessment. This could involve the CAF or its equivalent in child and adolescent mental health services. In order to engage families and young people and because it is important to identify sources of difficulties such as abuse, unrecognised learning disability, or mental disorder, this is a crucial stage. Stakeholder response table – guidance consultation Response Please respond to each comment the local strategy and services commissioned and is likely to include CAMHS or other such providers. Thank you for your comment. NICE recommends cost-effective interventions. Funding and resource implications are beyond the remit of NICE guidance. The revised recommendations refer to the use of screening and assessment tools, including the Common Assessment Framework and those available from the National Treatment Agency. p.41 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Recommendation 6 Nottinghamshire Healthcare NHS Trust General General Stakeholder response table – guidance consultation Page Number 7 Comments Please insert each new comment in a new row. The population described overlaps heavily with the ‘child in need’, the educational special needs and the CAMHS populations. Any new services need to fit within this network of established services. The content of the group interventions is very specifically described by the recommendation. However, the later text linked to evidence statement 64.1 merely refers to ‘multi-component’ interventions. The precise content of therapy sessions is subject to considerable debate and the science presented here appears insufficiently advanced to specify with such detail what the exact content of interventions should be Home Office, Department of Health and NTA are providing data that may assist this. NTA is trying to focus not on demographic data on prevalence of vulnerable people or prevalence of drug use, but on treatment need. This should help service planning based on need. This guidance is mainly appropriate for non-health agencies, particularly Social Services and education. It deals with the identification of those at risk and suggests a few methods for preventing that risk being realised. Those identified might need tier 1 or 2 interventions which do not involve services like those provided by this Trust. NADT would receive direct referrals of those who have severe problems. The whole document seems very ‘thin’ and the evidence base is weak as acknowledged. Main weakness is that there is no mention of the need to improve awareness of drugs issues as a whole in those who come into contact with the vulnerable groups the report identifies, especially educators and social work staff. Social workers in particular, dealing with vulnerable children and young people seem content not to ‘know about drugs’ and probably miss some indicators in their clients. Response Please respond to each comment Thank you. Your comment is noted. Thank you for your comment. NICE public health guidance focuses on the promotion of good health and the prevention of ill health for those working in the NHS, local authorities and the wider public and voluntary sector. Thank you for your comment. The ‘considerations’ section in the revised guidance document now covers this point. p.42 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Re-solv Royal College of Nursing Evidence submitted Section Page Number General Section 2 Page 9/10 Section 5 Page 11 General General General general Stakeholder response table – guidance consultation Comments Please insert each new comment in a new row. Regret the draft Guidance does not include VSA, and excludes vulnerable people under 10. The prevention message we consider needs to start at 5. We have seen 2 deaths of 7 year olds. Response Please respond to each comment Thank you for your comment. The definition of ‘substance misuse’ provided in the guidance includes volatile substances. The guidance focuses on vulnerable and disadvantaged people up to the age of 25, however, there are particular areas where evidence relates to particular age groups. Policy Background should include Thank you for your comment. The guidance has Out of Sight? …… Not Out of Mind been amended. Children, Young People and Volatile Substance Abuse. A Framework for VSA 2005 (Department of Health). Recommendations for Research The Public Health Interventions Advisory Suggested addition: Committee identified a number of gaps in the What interventions have been effective and cost effective in evidence. However, there is a limit to the number preventing Volatile Substance Abuse deaths and causing the of research recommendations that it can make. deaths from Volatile Substance Abuse to fall from 152 in 1990 to You may wish to suggest a future topic for NICE 47 in 2004. guidance at www.nice.org.uk/page.aspx?o=ts.home Thank you for your comment. The RCN welcomes the opportunity to review this document. The main issue of contention from a number of respondents has Thank you for your comment. The revised been clarification of the age scope. Interventions aimed at over guidance focuses on vulnerable and 16s will be different to those below that age. This makes for a disadvantaged people up to the age of 25, confusing document. however, there are areas where evidence relates to particular age groups. Further, this guidance covers a wide age range and we are not Thank you for your comment. The guidance has sure whether some of the recommendations can be equally been amended. applied to all, for example school based recommendations are not appropriate after 16 with most schools and parent programmes not likely to be useful above a certain age. We, therefore, suggest that the guidance needs to be clear Thank you for your comment. Please refer to our about what population the guidance is and/or is not for. previous response. p.43 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number General Recommendations 1&2 Page 5 Recommendation 3 and 4 Recommendation 5 Recommendation 5 6 Recommendation 6 Recommendation 5 Recommendation 6 Stakeholder response table – guidance consultation 7 Comments Please insert each new comment in a new row. The Guidance has limitations which are acknowledged, in that certain populations are omitted - this needs to be very clear when put in the public domain. Response Please respond to each comment Thank you for your comment. Please refer to our previous response. Please also note that the revised guidance sets out ‘considerations’ in developing the recommendations. These are not written in a way that reflects a motivational interviewing approach (client self-efficacy etc). Thank you for your comment. The guidance has been amended. Schools are asked to identify vulnerable pupils - this will require a large injection of money on appropriate training, to enable schools to become identifiers of this vulnerable groups Which professionals and which service might this role be attached to? Thank you for your comment. NICE is unable to comment on funding allocations. We envisage that this will require large financial investment if it is to be meaningful. Why has the age range been set so tight (10-12) when increasingly it can be argued that maturity is not being achieved by 16 in many marginal groups? Should the age range of this group be extended to 10-14? Identification of a population up to age 25 will be very difficult in practice as in some areas services are configured in such a way that this would straddle several different services. Parent skills training will need to be at a time convenient for the parents and this group, (not 9-5 which typically happens) if the chances are maximised to gain engagement which is likely to be difficult enough with this group. We, therefore, consider that there is a need for out-of-hours parent groups. The opening sentence lists service providers but misses out mental health trusts. These often work with young people 1625, especially males, because no one else will. The mental health trusts need to be included. NICE is unable to comment on funding allocations. Thank you for your comment. The guidance has been amended. Thank you for your comment. The guidance focuses on vulnerable and disadvantaged people up to the age of 25, however, there are areas where evidence relates to particular age groups. Thank you for your comment. The guidance has been amended. Thank you for your comment. The guidance does not specify the hours within which the interventions should occur. However, it does suggest that programmes are drawn up with the parents or carers. Thank you for your comment. The guidance has been amended to reflect the role of local agencies and practitioners and referral criteria and pathways. p.44 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Section 2 Page Number 8 Section 2 8&9 Section 2 Stakeholder response table – guidance consultation 9 Comments Please insert each new comment in a new row. Under “Factors that influence …” there are in our view some groups that are missing. 1) Peer pressure 2) Rite of Passage 3) Looked after children or excluded from school. As above, we are surprised that peer involvement is not measured. Also should we not be aiming to reduce substance misuse among all young people? The section on policy does not appear to refer to any Welsh or Scottish policy. Response Please respond to each comment Thank you for your comment. The guidance has been amended. Thank you for your comment. Peer involvement was considered. Please refer to the main review of effectiveness which contains numerous evidence statements that refer to peers (www.nice.org.uk/page.aspx?o=352252). Peer involvement is also mentioned within the supporting evidence as set out in appendix A. Please note that the Department of Health asked NICE to undertake: ‘An assessment of community-based interventions to reduce substance misuse among the most vulnerable and disadvantaged young people.’ Thank you for your comment. Please note that NICE guidance on public health covers England only (see www.nice.org.uk/page.aspx?o=guidetonice) p.45 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Appendix C Page Number 22 Comments Please insert each new comment in a new row. The Public Health Interventions Advisory Committee appears to be heavily medical influenced which will lead to medical models of care. However, if the target groups are to achieve outcomes they will need a more social model approach. The group needs a mental health nurse and a practice nurse. A voluntary sector representative from a local charity should also be involved. Appendix C 22 As above the RCN is keen to nominate nurse representatives to be involved in future work. General Stakeholder response table – guidance consultation There does not appear to be any reference to the work that followed on from the Fraser Rulings. References - HardingPrice et al (1991); Drug Misuse and Caring for Children; NDSCCG; Grimsby or ANSA (1997); Working with Children and Young People; Pinpoint Communications; Kingston-on-Thames. Response Please respond to each comment Thank you for your comment. We endeavour to ensure that membership of PHIAC is multidisciplinary, comprising public health practitioners, clinicians (both specialists and generalists), local authority employees, representatives of the public, patients and/or carers, academics and technical experts. Committee members responsible for this guidance are listed in the appendices and include a professor of health psychology a designated nurse for looked after children and several other professional and lay personnel. NICE also works with patients, carers, patient organisations and the public to produce guidance that addresses their issues and to make sure that it reflects their views and meets their healthcare needs. NICE advertised for new members to join PHIAC in October 2006 – so unfortunately we are not currently looking for applicants. Thank you for your comment. The revised guidance includes a ‘considerations’ section which acknowledges that confidentiality may be an issue, especially if the individual is a minor. However, clarification of circumstances pertaining to parental consent is beyond the remit of this guidance. p.46 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section General Page Number Comments Please insert each new comment in a new row. Early identification: We consider that the guidance should include the cross over factors between tobacco and alcohol use and use of solvents and drugs amongst young people. There is some Canadian research that has highlighted the benefits of early intervention with smokers and drinkers in. Terms of preventing use of 'harder drugs'. General Greater consideration should be given to the relationship between the club scene and the use of stimulants and alcohol. There is good international evidence to show that a significant proportion of young people are drawn into this form of drug use rather than opiates. Greater emphasis should be given to interventions that will address the needs of this group. General Diversion schemes have featured as a possible intervention to assist young people find alternatives to drug use. Many disadvantaged young people have limited access to such schemes therefore the cost benefits of investment in such schemes should be considered. Stakeholder response table – guidance consultation Response Please respond to each comment Thank you for your comment. These issues are important, but it was necessary to keep the guidance within manageable boundaries so that it could be completed within the time and resource constraints. Interventions that seek to prevent or reduce substance misuse in the broadest sense (that is, drugs, volatile substances, and tobacco or alcohol) were included, provided that the intervention study reported on outcomes relating to drug and volatile substance misuse specifically. Tobacco and alcohol are the focus of other NICE public health programme and intervention guidance – see www.nice.org.uk/guidance/PHP and www.nice.org.uk/guidance/PHI You may wish to suggest a future topic for NICE guidance at www.nice.org.uk/page.aspx?o=ts.home Evidence on selective and indicated interventions that aimed to prevent or delay the initiation of substance misuse (‘primary prevention’) by vulnerable and disadvantaged young people was considered. It was also included if it aimed to help these groups to reduce or stop their misuse of substances (‘secondary prevention’). The guidance does not cover recreational use by the general population. Please refer to the previous response. The guidance considered all available evidence. p.47 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Royal College of Paediatrics and Child Health Evidence submitted Section Page Number General General General General Recommendation 3 Stakeholder response table – guidance consultation 6, 17 Comments Please insert each new comment in a new row. The guideline could be better aligned with clinical practice if the Guideline Development group were to co-opt three additional experts with special expertise or a special interest in substance misuse: a paediatrician, a psychiatrist; and a clinical psychologist. The guideline could be written with greater clarity. For instance, it would help to clarify which substances are included. It is implied, but not clearly stated, that alcohol and tobacco are included. The recommendations would be easier to read without the irritating repetition. The population at risk of substance misuse could be defined in a separate section, and then referred to by some phrase, such as ‘the population at risk’. The document would also be clearer to read if the goal of intervention were defined in the language of epidemiology as being secondary prevention. Primary prevention (such as whole school interventions) and tertiary prevention (such as treating those who are already dependent on substances) seem to have been excluded from the scope – which would be clearer if this were stated using this terminology. This could be clarified by specifying what would be done in schools to help those who are vulnerable that is not already being done. “Appropriate support…or…referral to other services” is not specific enough. Response Please respond to each comment Thank you for your comment. NICE public health interventions guidance has a Public Health Interventions Advisory Committee (PHIAC) and not a Guideline Development Group. PHIAC considers evidence from people with relevant expertise. These are listed in the guidance appendices. You may wish to refer to documents outlining the public health guidance process and methods at www.nice.org.uk/page.aspx?o=300576 Thank you for your comment. The guidance has been amended. Thank you for your comment. The guidance has been amended. Thank you for your comment. NICE public health guidance focuses on the promotion of good health and the prevention of ill health – so tertiary prevention/treatment of those already dependent is not included. We aim to write our guidance as clearly and succinctly as possible, so that it is accessible to all potential users. Thank you for your comment. The guidance has been amended. p.48 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Recommendation 4 Royal Pharamaceutical Society Page Number 6, 18-20 Recommendation 5 7, 18, 21 Forward an / or Recommendations 1-2 & / or 4-5 Stakeholder response table – guidance consultation Comments Please insert each new comment in a new row. This recommendation seems to suggest that elements of a multimodal approach developed by Dishion and others should be applied to parents of vulnerable young people. There is however considerable evidence to suggest that elements of a multimodal approach may not work if used in isolation from the other elements (e.g. in relation to multisystemic therapy); and the paragraph suggests that motivational interviewing is the main component that matters, which may be misleading. The studies referred to here are multi-component programmes that have been shown to improve behaviour and reduce the use of tobacco, alcohol and cannabis. The way the recommendation is written suggests that two elements are being extracted, the young persons’ group and the parents’ group. While these may be very effective in the hands of professionals trained in the multi-component programme, they may be less effective if used in isolation by insufficiently trained personnel. Also, it is not clear what would motivate either the parents or young people to attend these groups, especially as it seems likely that the target population would not have a sufficient level of problems (yet) to make their parents concerned enough to want help. It was difficult to interpret clearly the scope of the guidance i.e. the reduction in substance misuse of current substance misusers and reducing the risk of identified potential substance misusers (i.e. vunerable and disadvantaged young people). The age range for which this guidance is targeted should be more explicitly Response Please respond to each comment Thank you for your comment. The guidance has been amended. The ‘considerations’ section in the revised guidance document now covers this point. Thank you for your comment. The guidance has been amended. The ‘considerations’ section in the revised guidance document now covers this point. Thank you for your comment. The guidance has been amended. p.49 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section General SCAN Draft guidance, general Stakeholder response table – guidance consultation Page Number Comments Please insert each new comment in a new row. The guidance describes “Community based interventions or small scale programmes delivered in community settings that seek to elicity changes in the risk behaviour of the targeted population” (page 5). Within the recommendations there was no mention of interventions around harm reducation associated with substance misuse. Providers of the interventions described in the recommendations hould incorporate harm reducation advice / support into the intervention. Current or potential substance misusers should be aware of harm reducation strategies and services available in the community (e.g. Needle Exchange Schemes) Response Please respond to each comment Thank you for your comment. The Department of Health asked NICE to undertake: ‘An assessment of community-based interventions to reduce substance misuse among the most vulnerable and disadvantaged young people.’ The primary outcome measures focused on reductions in the numbers of vulnerable and disadvantaged children and young people who start misusing substances, and/or a delay in the time before initiation: Among this group already misusing substances, primary outcome measures focused on increases in the number who stop misusing substances and reductions in use or frequency of use. The guidance did not aim to assess the harm associated with substance misuse. This is a helpful document and its findings should inform practice. However, it examines a much more limited body of literature than is available in many other areas of health care, and only one research project from the UK. Perhaps the recommendations should be more circumspect. Also, they require context and integration with practice realities. Thank you for your comment. The guidance has been amended. p.50 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section As above Stakeholder response table – guidance consultation Page Number Comments Please insert each new comment in a new row. Definitions There is a need to explain and clarify a number of terms: Substance – which substances are being included and excluded Use/ misuse/ dependence Vulnerable and disadvantaged or most vulnerable and disadvantaged ‘Clinical’ Types of interventions: motivational interviewing, brief intervention, family therapy, group therapy, multicomponent interventions may be described as such but might have different components and duration in different settings. For example, The document defines substance misuse as ‘intoxication …regular excessive consumption and/or dependence ... leading to social, psychological physical and legal problems’ (page 5.). This broad definition fits with abuse/dependence in DSM IV. However, the following sub-paragraph notes that clinical interventions for individuals who are ‘dependent’ on substances are not considered. The authors have included dependence in the definition of misuse. It is unclear what group are included or excluded. The document appears to single out cannabis and stimulants, other combinations that are common in clinical practice are not mentioned. Response Please respond to each comment Thank you for your comment. The guidance has been amended. NICE public health guidance focuses on the promotion of good health and the prevention of ill health, so clinical interventions for dependency on substances are not considered. p.51 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section As above As above As above Stakeholder response table – guidance consultation Page Number Comments Please insert each new comment in a new row. Competence Individuals conducting interventions in the cited studies included qualified social workers or psychologists, professionals with broad training in many aspects of child development, psychopathology, family functioning and other matters. Many substance use workers to whom these young people will be referred in UK systems will not be trained in this way. In light of the potentially iatrogenic effects of interventions if delivered by untrained people and highlighted by the document, this is an important issue. Substance use services should be encouraged to employ ‘appropriately trained professionals’ but specialist substance misuse services that include NHS and other professionals should be responsible for those young people who are both vulnerable and engaged in potentially harmful substance use. Resources Vulnerable children and young people represent a considerable minority. For instance, at least 10% of the adolescents surveyed by the National Statistics (2004) survey were judged to have a mental disorder. If all or even half of these young people, who represent only a proportion of the vulnerable groups at increased risk listed by the document, were referred to an intervention, it would immediately overwhelm all existing targeted services in the UK. Relationships with other services For the sake of rational use of resources, interventions should be delivered through existing services, (schools, child and adolescent mental health or substance use services, or a combination) however enhanced. This is crucial to avoid duplication or development of parallel services. Response Please respond to each comment Thank you for your comment. The ‘considerations’ section in the revised guidance document now covers this point. Thank you for your comment. Please note that information about allocation of resources is beyond the remit of this guidance. Please refer to our previous comment. p.52 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section As above As above As above Page Number Comments Please insert each new comment in a new row. Substance misuse in context The listed interventions are aimed at substance misuse. However, this should be seen in context. Many of these young people will have multiple needs and for some, substance misuse may be only a relatively minor aspect, or marker, of other difficulties. It is crucial that any service (such as an augmented CAMHS) to which they are referred has the competence to evaluate the full range of difficulties they suffer so that comprehensive interventions can be put in place. There is great heterogeneity in the characteristics of the samples. As a result, there is also overlap between groups. This has implications for the implementation of ‘applicable’ interventions. Assessment / judgement of applicability – This seems an important component of the guidance. There are four categories – which criteria were used to assign studies to a particular rating, i.e. A, B, C or D? As above Population studies in clinic settings: Age range – There is a wide age range of children / adolescents studied. This makes general extrapolation difficult. What is appropriate at 13 may not be at 23. As above Population studies in clinic settings: Sample characteristics – In some studies, these are not clearly stated. There is great variability with which information on the sample with regard to substance use is reported (examples are use of multiple substances, quantity / frequency of use, misuse or dependence). Stakeholder response table – guidance consultation Response Please respond to each comment Thank you or your comment. The ‘considerations’ section in the revised guidance document now covers this point. Thank you for your comment. The guidance has been amended. Thank you for your comment. Please refer to the NICE public health guidance process and methods manuals at www.nice.org.uk/page.aspx?o=300576 particularly sections 4.2 and 4.3.1.1 of the methods manual. Thank you for your comment. The guidance has been amended. There are areas where evidence relates to particular groups with particular characteristics and any distinctions should now be clear. Thank you for your comment. The guidance has been amended. p.53 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Draft guidance, Foreword Page Number 1 As above Draft guidance, Recommendations Draft guidance, Recommendations, General issues General 5 Comments Please insert each new comment in a new row. Differentiation between substance use and misuse. This was noted in the first consultation. It is important to clearly differentiate the criteria for each term. For example, is the overall objective of an intervention to reduce misuse, rather than use? The philosophy and goal of the intervention may impact upon the interpretation of the outcome. Is the guidance about the “most vulnerable and disadvantaged” or the “vulnerable and disadvantaged”? The definitions of and differentiation between the two groups may be important. There is some repetition at the end of each recommendation – the last five or six lines. Second bullet point: The relationship between risk and substance use / misuse – This relationship is of an association (rather than causation). Thus, care needs to be taken in the conceptualisation of the overall framework of the guidance. We cannot be sure that removal / reduction of risk (assuming that this is possible) is likely to lead to a change in behaviour, because we do not know if and by what mechanism the relationship is causal. Response Please respond to each comment Thank you for your comment. The Department of Health asked NICE to undertake: ‘An assessment of community-based interventions to reduce substance misuse among the most vulnerable and disadvantaged young people’. Substance misuse is defined in the revised guidance. For further information on the public health guidance process and methods, see the NICE manuals (www.nice.org.uk/page.aspx?o=300576) Thank you for your comment. The guidance has been amended. Thank you for your comment. The guidance has been amended. Thank you for your comments. The evidence shows an association between risk and substance use/misuse. However, the recommendations are based on the best evidence of effectiveness in changing behaviours. You may wish to suggest a future topic for NICE guidance (see www.nice.org.uk/page.aspx?o=ts.home). Perhaps it is worth making reference to critical reviews of the strength of the relationships to risk factors. In this regard several (though relatively few) studies used a risk index, which might be one way of stratifying those at some risk or at “most” risk (e.g. Campbell et al, 2002). The study by Nair et al (2003) is useful in differentiating outcome. Stakeholder response table – guidance consultation p.54 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section As above As above As above As above Stakeholder response table – guidance consultation Page Number Comments Please insert each new comment in a new row. It is not clear what substances are included. Recommendation 2 notes stimulants and cannabis. What about opiates and other illicit drugs and alcohol, nicotine and prescription drugs? What about multiple substance users which is a commonplace reality in today’s teenage environment. Prevention intervention or treatment intervention: It would be helpful to separate out which are prevention and which treatment interventions. This might clarify which type of interventions is being targeted for use and/or misuse and/or dependence. There are examples of quite a number of studies, which note that the subjects / clients / patients are in treatment settings. The interventions are the same as or similar to those used in dependent users. Is there definite evidence from the studies quoted that dependent users were not included? For example, Dennis et al (2004) explicitly uses DSM-IV criteria for dependence. “Users” included multiple substance users. Perhaps some were dependent? Examples are listed in Table 1. As noted above clarification with regard to inclusion and exclusion criteria are needed. Treatment of dependence generally requires clinical treatment interventions including pharmacological treatment (but not only pharmacological treatment) within a comprehensive treatment plan of other psychological interventions and social support eg housing and education. Will forthcoming NICE guidance focus on young people under the age of 18? Response Please respond to each comment Thank you for your comment. The guidance has been amended. Thank you for your comment. NICE public health guidance focuses on the promotion of good health and the prevention of ill health – so tertiary prevention/treatment of those already dependent is not included. Thank you for your comments. This stakeholder consultation relates to the draft guidance and not the evidence. With regard to ‘definite evidence’, studies were assessed using a number of checklists, as set out in a document outlining the methods for the development of NICE public health guidance (see www.nice.org.uk/phmethods). The appendices to the main review of effectiveness also contains sample forms (see www.nice.org.uk/page.aspx?o=352252). NICE public health guidance does not focus on tertiary prevention/treatment of those already dependent (please refer to our previous response). Thank you for your question. Forthcoming NICE public health guidance is listed at www.nice.org.uk/guidance/topic/publichealth You may wish to suggest a future topic for NICE guidance (see www.nice.org.uk/page.aspx?o=ts.home). p.55 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Draft guidance, Recommendations, General issues Page Number 5, line 11 Comments Please insert each new comment in a new row. “Clinical interventions with individuals who are dependent on substances are not considered…” As noted above, this sentence requires clarification. What does it mean? Does “clinical” equate to dependence and / or prescribing? It cannot be stressed sufficiently that it is very important to characterise and differentiation the populations being described with regard to nature and extent of substance use/misuse/dependence, to describe the nature and extent of interventions provided and to take into account the limitations of studies when evaluating outcome so that conclusions balanced and recommendations are potentially practical. This notes that individuals over 16 should, if appropriate, be referred for one or more motivational interviews. It is unclear what is meant in the guidelines by ‘if appropriate’. If judgement is required, those who are screening need to have appropriate experience to judge whom to screen and refer. Perhaps these should be professionals such as teachers, general practitioners or school nurses. Perhaps “Professionals… should be trained to identify…” should be recommended. This has very great resource implications, of course. Draft guidance, Recommendations, Recommendation 1 5 As above 5 It is important to clarify why in some recommendations “over 16” is the threshold whilst in others ‘under 16’ is targeted. Draft guidance, Recommendations, Recommendation 2 5 Why are cannabis and stimulants the only ones included? See note above Stakeholder response table – guidance consultation Response Please respond to each comment Thank you for your comments. Pleaser refer to our previous responses. Thank you for your comments. The guidance has been amended. Thank you for your comment. The guidance focuses on vulnerable and disadvantaged people up to the age of 25, however there are areas where evidence relates to particular age groups. Thank you for your comment. The guidance has been amended. p.56 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section As above Page Number Comments Please insert each new comment in a new row. Provision of motivational interviewing for those over 16 with cannabis or stimulant misuse. The term motivational interviewing has many meanings, some see it as a style of interviewing though it can be an intervention if it includes feedback and identification of consequences of stopping or continuing substance misuse. It is probably best used in a stepped care approach so that individuals who are identified as at risk can be followed up with more structured treatment. The report cites the research of McCambridge and Strang and the Dennis et al (2004) study to justify the use of motivational interviewing. However, these studies are quite different and used different treatments. The McCambridge study was not for vulnerable young people but college students and the MI was done by Jim McCambridge himself. It was more of a brief intervention with a motivational component. Response Please respond to each comment Thank you for your comments. The guidance has been amended. ‘Motivational interviewing’ for the purposes of the guidance is now clearly defined. The guidance also sets out ‘considerations’ in developing the recommendations, which includes reference to the issue of practitioner competencies. The Public Health Interventions Advisory Committee (PHIAC) consider a number of factors when developing recommendations, including information provided by cooptees and expert testimonies. However, the Dennis study was for those with cannabis use, and many had other complex needs, often ‘vulnerable’ in the terms of the draft document. It utilised motivational enhancement therapy (MET) rather than MI. This structured treatment was manual-based, and highlighting the competence issue, delivered by trained therapists often at doctorate level. It may be that the stepped care concept should also apply here: if young people receive a brief intervention and not change their behaviour during follow up, referral for specialist treatment will be required. Otherwise, some vulnerable young people will receive MI by untrained staff thinking that is all they require, perhaps in effect diverting them away from specialist resources. Stakeholder response table – guidance consultation p.57 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Draft guidance, Recommendations, Recommendation 3 Draft guidance, Recommendations, Recommmendation s 4 and 5 6 As above Stakeholder response table – guidance consultation 6-7 Comments Please insert each new comment in a new row. There is no discussion of referral for those under 16 who are actually misusing or using drugs. In addition, there is no indication noted about training requirements. The MET was a structured manual delivered therapy with trained professionals, significantly different to the situation in England where many workers are not professionally trained and may have experienced only brief training. The recommendation should note what appropriate background and training is appropriate; the common 1-2 day training which is the norm does not change practice. Appropriate. Response Please respond to each comment Thank you for your comment. The guidance has been amended. Specific details about background and training requirements of particular professionals and others is beyond the remit of this guidance. These are most significant. They suggest that those children under 16 ‘at risk’ of substance misuse should be referred with their parents for a relatively intensive structured programme of support. The level of intervention envisaged is potentially equivalent to that offered in child and adolescent mental health service day units of which there are relatively few in the UK. Thank you for your comments. The ‘considerations’ section in the revised guidance document now covers this point. In keeping with professional practice in the UK, any such intervention should have a preceding stage of detailed assessment. This could involve the CAF or its equivalent in child and adolescent mental health services. In order to engage families and young people and because it is important to identify sources of difficulties such as abuse, unrecognised learning disability, or mental disorder, this is a crucial stage. The population described overlaps heavily with the ‘child in need’, the educational special needs and the CAMHS populations. Any new services need to fit within this network of established services. Thank you. Thank you for your comment, please note that information about allocation of resources is beyond the remit of this guidance. p.58 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number As above Draft guidance, Recommendations, Recommendation 6 Stakeholder response table – guidance consultation 7 Comments Please insert each new comment in a new row. The content of the group interventions is very specifically described by the recommendation. However, the later text linked to evidence statement 64.1 merely refers to ‘multi-component’ interventions. The precise content of therapy sessions is subject to considerable debate and the science presented here appears insufficiently advanced to specify with such detail what the exact content of interventions should be. Appropriate Response Please respond to each comment Thank you for your comment. Evidence statements are, by definition, succinct and do not necessarily include information about intervention content. The Public Health Interventions Advisory Committee (PHIAC) considered a wide range of information when developing the recommendations. You may wish to refer to documents outlining the public health guidance process and methods at www.nice.org.uk/page.aspx?o=300576 Please refer to our response above. p.59 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Draft guidance, Public health need and practice, Policy background Page Number 10 Comments Please insert each new comment in a new row. Recent evidence on the extent of substance use/misuse/dependence can be sourced from the Advisory Council on the Misuse of Drugs’ document Pathways to problems (2006) to give some idea of the nature and extent of the problems that may require different levels of support. Response Please respond to each comment Thank you for your comment and references. Additional references National Statistics (2005) Mental Health of Children and Young People in Great Britain. Palgrave Macmillan. Basingstoke. Jensen PS. Weersing R. Hoagwood KE. Goldman E. (2005) What is the evidence for evidence-based treatments? A hard look at our soft underbelly. Mental Health Services Research. 7(1):53-74. (1996) The nature and treatment of adolescent substance misuse (NDARC Monograph No. 26). New South Wales: NDARC. As above As above Stakeholder response table – guidance consultation Spooner, C., Mattick, R. & Howard, J. New Zealand Health Technology Assessment (1998) Adolescent therapeutic day programmes and community-based programmes for serious mental illness and serious drug and alcohol problems: A critical appraisal of the literature (NZHTA Report No. 5). Christchurch: NZHTA. ACMD Hidden Harm (2003) and the new implementation guidance which is soon to be issued is also a useful resource Perhaps strength of evidence versus applicability should be tabulated. This might give some indication or guidance as to what change can be anticipated. Thank you for this reference. Thank you for your comment. The process considered both quality of evidence and applicability. (see sections 3.4, 3.6, 4.2, 4.3 and 6 of the main review of effectiveness at www.nice.org.uk/page.aspx?o=352252 and appendix D of the revised guidance at www.nice.org.uk/PHI004 p.60 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number 22 Comments Please insert each new comment in a new row. Committee membership The public health expertise of the committee is acknowledged but the inclusion of senior ‘field’ professionals (e.g. psychiatrists, social workers) might have aided in presenting the recommendations in a less theoretical and more obviously practical style. Section 5.3a 42, last line The Dennis study is on cannabis abuse and dependence. It is not clear whether the other studies included dependent populations as they do not state if subjects are dependent or not. The Liddle studies were in also in clinical populations. Section 5.3a 44 Section 5.3a As above 45 Draft guidance, Appendix C As above Stakeholder response table – guidance consultation Evidence statements 56.2 and 58 do not have applicability ratings. Evidence statements 60 and 62 do not have applicability ratings. Applicability ratings – It may not always be appropriate to recommend interventions across a broad range of settings. For example, the McCambridge study was on students in higher education. The interventions may not be appropriate to young people whose verbal and literacy skills and capacity to think in the abstract may be more limited. There is a need to calculate the training and intervention resources required to implement Recommendations 1 and 2 by extrapolating from the evidence of prevalence (See ACMD (2006) Pathways to problems). Response Please respond to each comment Thank you for your comment. Membership of PHIAC is multidisciplinary, comprising public health practitioners, clinicians (both specialists and generalists), local authority employees, representatives of the public, patients and/or carers, academics and technical experts. Committee members responsible for this guidance are listed in the guidance appendices. NICE also works with patients, carers, patient organisations and the public, to produce guidance that reflects their views and meets their healthcare needs. Thank you for your comment, however this stakeholder consultation relates to the draft guidance and not the evidence (see www.nice.org.uk/page.aspx?o=SubstanceMisuse Int&c=296726). The draft guidance did not contain a section 5.3a (see www.nice.org.uk/page.aspx?o=384010). Thank you for your comment. Please refer to our previous response. Please refer to our previous response. Thank you for your comment. The Public Health Interventions Advisory Committee (PHIAC) considered a number of factors when developing recommendations, including information provided by cooptees and expert testimonies. Members of PHIAC and the external contributors are detailed in the guidance appendices. Thank you for your comment, please note that information about allocation of resources is beyond the remit of this guidance. p.61 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Section 5.3a Page Number 55 Comments Please insert each new comment in a new row. Conclusions – Second paragraph – Elaborate / clarify. This type of approach was also considered… after suitable adaptation. Section 5.3a 56 Young substance users, paragraph 3 – Would be very cautious about improvements because of • Relatively short follow-up • Characteristics of sample Healthcare settings Perhaps it is important to stress the following issues: • There are relatively few studies on young substance users (21) • Substances used may vary and may be multiple • Settings vary – some are non-clinical • Sample sizes are generally small. For example, Tait et al, 2004 (n=127), McCambridge (n=200), Aubrey (n=77). • Attrition rates may be sizeable, sometimes not reported (Liddle et al). • Importantly, in terms of recommendations, interventions similarly described may differ quite substantially (p228, 233, 237). • Therapists vary: nurse, social worker, health. • Follow up is not longer than 12 months. • Self-report is not always validated. • There are problems with randomisation in one of the larger studies (Dennis et al, 2004). Section 5.3a PHIAC 7.4a 22411 and 14 Response Please respond to each comment Thank you for your comment, this stakeholder consultation relates to the draft guidance and not the evidence (see www.nice.org.uk/PHI004). The draft guidance was 31 pages long and did not contain a section 5.3a or ‘Conclusions’ section. Thank you for your comment. Please refer to our previous response. Thank you for your comments. Please refer to our previous responses. If recommendations are going to be made it appears that it is on very few studies and only on in the UK that is on a specific population which may not be generalisable and where benefits are not clear. Stakeholder response table – guidance consultation p.62 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number As above As above As above As above Section 5.3a Schering Plough Ltd Section 5.3a Stakeholder response table – guidance consultation 229, line 4 342 Comments Please insert each new comment in a new row. Note: P16 (PHIAC 7a) Oliansky et al 1997 is given RCT+ (A). Is this correct? Perhaps more needs to be made of the relatively small sample size of some studies, e.g. Tait et al, 2004 (127 subjects); Aubrey, 1998 (77 subjects); McCambridge & Strang, 2004/2005 (200 subjects). Dunn et al included only 2 studies on young substance users. Tait & Hulse (2003) includes 2 studies of multiple substance use. The better rated studies appear to have had some limitation, e.g. high drop-out rate, non-report of trial methodology check list. • Brief intervention • Family therapies • Group therapy • Counselling These terms may mean very different interventions in different, though relatively few, studies. It is therefore very difficult to compare outcomes. For example, see Table 2. Were participants more or less likely? Table 5.4.3 indicates less. 1.6: The only difference between groups is the intervention under investigation. Response Please respond to each comment Thank you for your comment. Please refer to our previous response. Thank you for your comment. Please refer to our previous responses. Thank you for your comment. Please refer to our previous responses. Thank you for your comment. Please refer to our previous responses.. Thank you for your comment. Please refer to our previous responses. Thank you for your comment., This stakeholder consultation relates to the draft guidance and not the evidence (see www.nice.org.uk/PHI004). p.63 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section General Page Number Comments Please insert each new comment in a new row. As the stakeholder comments on this document have suggested, it seems that the guidance has been simplified firstly due to a diverse evidence base, and secondly to ensure compatibility and implementation across the diverse target audience. However as a consequence the guidance lacks a strong direction and risks being overlooked or ignored. For this reason we urge the NICE audit team to issue audit criteria in March 2007 which are explicit and tailored to each organisation likely to implement the guidance. It would be useful to allow the audit criteria to be updated six months from the publication of the guideline: this would help to incorporate information from the field allowing a clearer audit across schools, drug intervention groups, police, GPs, and others. General Concerning the children of drug-using parents, NICE suggest that parental drug therapy (e.g. methadone) plus counselling is not remarkably more effective at mitigating child outcomes than the parental drug therapy on its own. Accordingly, the guideline does not make any recommendations in this group. The narrow focus in this group misses an important risk factor for substance misuse among the young: namely, the possible access of children and teenagers to potent medications in the home which have been prescribed to treat the parent’s drug misuse. Stakeholder response table – guidance consultation Response Please respond to each comment Thank you for your comments. The guidance has been amended. NICE public health guidance is for those working in the NHS, local authorities and the wider public, private and voluntary sectors. NICE public health intervention guidance makes recommendations on clear activities (interventions) to promote a healthy lifestyle or reduce the risk of developing a disease or condition. The recommendations are likely to be reviewed in 2010. CASPE is carrying out a review exercise to consider all aspects of the process for developing audit criteria. You may wish to register your comments at www.nice.org.uk/page.aspx?o=auditcriteria Thank you for your comment. There are many risk factors for substance misuse among the young. The Public Health Interventions Advisory Committee (PHIAC) considers a number of factors when developing recommendations, including information provided by cooptees and expert testimonies. There are areas where evidence relates to particular age groups with particular characteristics and the recommendations reflect this. p.64 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Sheffield PCT Evidence submitted Section Section1.Recomme ndation 1. “Professionals in the NHS, local authorities, education, social care, the voluntary sector and the criminal justice system should identify vulnerable or disadvantaged young people aged over 16 who are misusing substances.” Section1.Recomme ndation 1. “Professionals in the NHS, local authorities, education, social care, the voluntary sector and the criminal justice system should identify vulnerable or disadvantaged young people aged over 16 who are misusing substances.” Stakeholder response table – guidance consultation Page Number Page 5 Page 5 Comments Please insert each new comment in a new row. What governance do NICE recommendations have over employees within local authorities, education, social care, the voluntary sector and the criminal justice system? A requirement for all these agencies to screen and identify ‘vulnerable young people’ has existed for many years as part of the National Drug Strategy but without a clear directive from the relevant national government departments progress has been slow and difficult. Response Please respond to each comment Thank you for your comment. NICE guidance applies to the NHS where compliance is checked by the Healthcare Commission. Although NICE public health guidance has no statutory or other purchase in other sectors, engagement with stakeholders and working via DH with other government departments, NICE will produce public health guidance to address the needs of local government, the education sector and others to meet their public health responsibilities. The statement does not suggest an upper age limit. The national drug strategy and NTA guidance treats services for under 18s as separate to over 18s. Thank you for your comment. The guidance has been amended. It covers children and young people aged under 25. This is the age range covered by the public service agreement (PSA) target for substance misuse shared by the Home Office and DfES (see ‘Tackling drugs, changing lives – keeping communities safe from drugs’. Home Office 2004). p.65 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Section1.Recomme ndation 1. “Professionals in the NHS, local authorities, education, social care, the voluntary sector and the criminal justice system should identify vulnerable or disadvantaged young people aged over 16 who are misusing substances.” Section 1. Recommendation 1. ”They should, as appropriate, refer those misusing cannabis and stimulants for one or more motivational interviews by appropriately trained professionals.” Page Number P5 p.5 Comments Please insert each new comment in a new row. Identifying substance misuse in young people is not straightforward. There are no universally approved/trialled screening tools or accredited training. Young people may not identify a problem themselves or cover up any substance use, especially at key universal assessment points where questions about substance misuse might most routinely be asked. If the wording is ‘should identify’ are there legal challenges where a young person develops a drug problem and this was NOT identified by, for example, an education professional? Response Please respond to each comment Thank you for your comment. The Public Health Interventions Advisory Committee (PHIAC) considered a number of factors when developing recommendations. The revised guidance sets out some of these ‘considerations’ and acknowledges that confidentiality may be an issue, especially if the individual is a minor. ‘as appropriate’ is a useful qualifyer here, but how are practitioners to define what is ‘appropriate’? Thank you for your comment. Is this definitely saying that alcohol, VSA users or opiate/tranquilizer users should NOT be referred for these types of programmes? Evidence on the ground would suggest that the likelihood of most young people identified in this way having the inclination to consent to such a referral or turn up for an appointment is very low. What should the practitioner do if the young person doesn’t want to be referred? Most existing guidance tells us that where young people are identified as substance misusers (as opposed to just using recreationally) that they should be referred for specialist assessment and support (Tier 3 or treatment). This recommendation seems to be saying something slightly different Stakeholder response table – guidance consultation The revised recommendations refer to any substances. The Public Health Interventions Advisory Committee (PHIAC) considered a number of factors when developing the recommendations, including information provided by cooptees and expert testimonies. Members of PHIAC and external contributors are detailed in appendix C. The guidance focused on interventions that aimed to prevent or delay the initiation of substance misuse (‘primary prevention’) by vulnerable and disadvantaged young people, or which aimed to help these groups to reduce or p.66 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number Comments Please insert each new comment in a new row. and makes no reference to existing structures around the Tiered Model of Need (HAS 2001). Response Please respond to each comment stop their misuse of substances (‘secondary prevention’). This equates to tiers 1 and 2. The recommendations are concerned with early identification, screening and assessment of those at high risk of misusing substances or are currently misusing substances; and referral to appropriate services. The guidance emphasises that this process is undertaken within the context of existing systems; specifically the Common Assessment Framework (CAF). Reference is also made to the National Treatment Agency models of care which are based on the four tiers of service. Section 1. Recommendation 2. “They should help the young person to consider their options and set goals for reducing or stopping their use of substances.” Stakeholder response table – guidance consultation p.5 Again, experience tells us locally that many young people have no inclination to set goals for reducing their substance use. This recommendation should recognise this and consider harm reduction advice as an alternative in these cases. This guidance did not consider tertiary prevention/treatment of those already dependent. Thank you for your comment. The Department of Health asked NICE to undertake: ‘An assessment of community-based interventions to reduce substance misuse among the most vulnerable and disadvantaged young people.’ Primary outcome measures focused on reductions in the numbers of vulnerable and disadvantaged children and young people who start misusing substances, and/or a delay in the time before initiation: Among this group already misusing substances, primary outcome measures focused on increases in the number who stop misusing substances and reductions in use or frequency of use. The guidance did not aim to assess the harm associated with substance misuse. p.67 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Section 1. Recommendation 3. “Schools should identify pupils who are vulnerable to substance misuse, as well as those who are already misusing substances….” Section 1. Recommendation 3. “In the case of vulnerable pupils who have behavioural problems, schools should work with behaviour and education support teams (BESTs) and the pupils’ parents. Schools should work with the education welfare service and children’s trusts to ensure that all the pupils identified receive appropriate support at school or through referral to other services” Stakeholder response table – guidance consultation Page Number P6. Comments Please insert each new comment in a new row. Perhaps an audit of how many schools actually achieve this in line with the guidance would be useful as it is in practice quite a task. Again, there are few tools to assist schools with this process. P6 Response Please respond to each comment Thank you for your suggestion. CASPE is carrying out a review exercise to consider all aspects of the process for developing audit criteria. You may wish to register your comments via www.nice.org.uk/page.aspx?o=auditcriteria It is not clear from this description whether the ‘appropriate support’ is wider support around a range of issues or specifically relates to substance misuse related services. Thank you for your comment. The guidance has been amended. The description implies that where a vulnerable pupil does not have a ‘behavioural problem’ that the school should not work with BEST teams or the pupil’s parents. The revised recommendations no longer refer to BEST teams. BEST Teams are no longer in existence, at least in our local area. p.68 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Section 1. Recommendation 4. “Schools should identify vulnerable or disadvantaged adolescents aged under 16 who are at an increased risk of misusing substances. They should refer these adolescents and their families to a structured programme of support.” Section 1. Recommendation 5. “Professionals trained in behavioural techniques should provide groupbased therapy for 10–12 year olds who are referred by schools because of their behavioural problems and vulnerability to substance misuse.” Stakeholder response table – guidance consultation Page Number p. 6 Comments Please insert each new comment in a new row. This is no doubt well intentioned but a bizarre recommendation. Effectively it says that all young people whose parents or other family members misuse drugs, those with behavioural or mental health problems, looked after children, those who are homeless, young offenders, school excludees and truants, and those involved in sex work should all receive the described family programmes. This would mean, for our local area, thousands of families, and setting up this kind of programme would require intensive resourcing. Response Please respond to each comment Thank you for your comments. The guidance has been amended. The description does not clearly say whether the interventions are aimed at parenting in a general sense or whether specific focus on the substance misuse is required. p.7. The vast majority of families identified through this process would not, experience would tell us, voluntarily attend the programmes described. It is not clear whether this is recommended in addition to the interventions described in recommendations 3 and 4. The age limit is unusually specific. Thank you for your comments. The guidance has been amended. The guidance focuses on vulnerable and disadvantaged people up to the age of 25, however there are areas where evidence relates to particular age groups. It is not clear whether the interventions described are fairly universal parenting and life skills type interventions (and therefore potentially beneficial against a range of outcomes) or specifically tailored around substance misuse. The potential numbers involved here are again potentially huge under the existing description. p.69 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section GENERAL GENERAL Stakeholder response table – guidance consultation Page Number Comments Please insert each new comment in a new row. The document does not make clear enough a definition of substance misuse as opposed to substance use (or recreational substance use). This is a key factor in determining the appropriate level of intervention. The document therefore is inherently flawed as it seems to base it’s recommendations that an accepted definition of substance misuse is in operation across a range of children’s service delivery areas. In reality the fact that substance misuse is so difficult to pin down as a concept is a key block to developing consistent preventative responses. The document should make clear that some young people, including those in ‘vulnerable groups’ use a range of substances in a non-problematic way. The second key issue that is not recognised by the document is the role of young people’s views on their own ‘problems’, and the consequent motivation to be inclined to do anything about them. The assumption seems to be that the identification of ‘substance misuse’ is a straightforward task where practitioners, parents and young people all happily agree the definition of a ‘problem’. What possible attraction is there for a 15 year old heavy cannabis user in attending a ‘motivational interview’ on a voluntary basis if he does not believe that his use of cannabis is a problem needing help? Response Please respond to each comment Thank you for your comments. The guidance has been amended. Thank you for your comment. The Department of Health asked NICE to undertake: ‘An assessment of community-based interventions to reduce substance misuse among the most vulnerable and disadvantaged young people’. The ‘considerations’ section in the revised guidance document now covers this point. You may wish to suggest a future topic for NICE guidance at www.nice.org.uk/page.aspx?o=ts.home p.70 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Page Number GENERAL Tacade Recommendation 1 Recommendation 2 5 5 Recommendation 3 6 Recommendation 4 6 Recommendation 5 7 Recommendation 6 7 Stakeholder response table – guidance consultation Comments Please insert each new comment in a new row. The document appears in general to ignore some key issues in relation to the potential need for the interventions described. Response Please respond to each comment Thank you for your comments. There is a lack of universal consensus around some definitions. For example there are a myriad ways one could define a ‘truant’ but if at a basic level we take the definition as a young person who has ever taken a days unauthorised absence from school (the definition used in the British Crime Survey) we end up with thousands and thousands of young people. It would in fact be a dangerous overstatement to say that all these young people should automatically be required to attend additional lifeskills groups and parenting courses in order to prevent possible future drug use as seems to be suggested in recommendation 4. A distinction was made between the scale of the intervention (for example, in terms of such things as duration, intensity and frequency) and the scale of the target population. The potential scale these programmes would need to be, based on the recommendations as they are, would be in direct contradiction of the general issues in the introduction on page 5, that the interventions are ‘micro interventions’ or ‘small scale’. Agree This could be a difficult area as acceptance of substance misuse as harmful by YPs is low. Training would have to be in place in all schools at all levels to identify such YPs, the current workload and change in attitude teachers have to getting close to their YPs in light of civil action around sex abuse and political correctness claims means often teachers miss the signs. Agree they should but do they have the skills in place to do so? Also once referred are the resources available to cope with the possible demand? Will there be enough resources to make this happen and of the right quality? This I believe already happens in respect of DAATs and would just need coordination with the other agencies. But what do you do with the results? Thank you. Thank you for your observation. Thank you for your comment. The ‘considerations’ section in the revised guidance now covers this point. Thank you for your comment. Please refer to our previous response. Please also note that information about allocation of resources is beyond the remit of this guidance. Thank you for your comment. Please refer to our previous response. Thank you for your comment. The guidance has been amended. p.71 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Vul., & dis. YP Page Number 9 Policy 10 Implementation 10-11 Research 12 Needs to be linked fully to the identified needs of the vulnerable. Glossary 14 Would suggest drugs definition in line with WHO Evidence statements 19- The effect each intervention has on individual families or YPs may not be as effective as on another and so it is good to see a wide range of evidence has been sought. The problem with such evidence is making it available in a understandable format to all those concerned. Stakeholder response table – guidance consultation Comments Please insert each new comment in a new row. Will there be a national data base to maintain this information as many YP and their families are transient in nature moving from one PCT to another. Often records are months in catching up and many YPs could slip through the net as it were. Not all of these policies may be important to the agencies identifying the YPs and as such information exchange could be a problem. Will training be offer to those wishing to use the NICE tools? Response Please respond to each comment Thank you for your comment. The guidance has been amended. Thank you for your comment. This section outlines numerous policies and it is recognised that some policies might be more pertinent to particular agencies, compared to others. Thank you for your question. Use of tools is being considered, and has been explored with users through workshops. The costing tools are released with a ‘how to use’ sheet and there is an email address that people can use ‘[email protected]’to ask questions about the costing tools, plus [email protected] for more general feedback. Thank you for your comment. The guidance has been amended. Thank you for your suggestion. After much deliberation the definition in the guidance was chosen. It does not conflict with that used by WHO and is much more succinct (8 lines of text – see www.who.int/substance_abuse/terminology/who_ lexicon/en/ ) Thank you for your comment. There are difficulties in using a universal language that is welcomed by everyone involved in the guidance development process. We aim to write our guidance as clearly and succinctly as possible, so that it is accessible to all potential users. p.72 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Evidence Statements Page Number 19 - Evidence statements 19 - Cost-effectiveness 21 Standing committee 22 26 Stakeholder response table – guidance consultation Comments Please insert each new comment in a new row. Training must be in the forefront of using these evidence statements and by do so effectively you can signpost workers in the correct direction at least as a starting point to engage the family or YP The flaw with some evidence statements is there ability to ‘pigeon hole’ people into certain areas without exploring all the facts or having the time to do so correctly. Often YP are wrong placed and instead of improving according to the statement do quite the reverse. Cost should be focus on obtaining interventions with the YP etc, however small and not ‘wasted’ on too much research, unless that research is part of the monitoring of the client base effectively. Will this be an effective committee and not just one which meets talks and produces little? It does cover a lot of people who unless I am mistaken have extremely busy workloads within their own professions, are they going to give the required amount of time, energy and focus to help this guidance work? Again here the question of what is effective, how do we judge that? Abstinence, reduction, harms prevention and minimisation, education or a greying of each? A reduction of someone substance misuse from seven days a week to five is effective but some agencies have been known to disagree. Provision of education which may or may not be accepted. Response Please respond to each comment Thank you for your comment. The ‘considerations’ section in the revised guidance document now covers this point. Thank you for your comment. The ‘considerations’ section in the revised guidance document now refers to this point. In addition, ensuring that activities do not increase misuse among this population is considered as a recommendation for research. Thank you for your comment. Please note that information about allocation of resources is beyond the remit of this guidance. The PHIAC was formed in 2005. Guidance has already been published in three intervention areas and is in development for a further eight. Thank you for your comment. There is a lack of consensus around different concepts and definitions for substance misuse. You may wish to refer to documents outlining the public health guidance process and methods at www.nice.org.uk/page.aspx?o=300576 which explain how effectiveness is judged. In addition, appendix D of the revised guidance summarises the methods used to develop it. p.73 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section The document The Mentor Foundation (International) Page Number All Comments Please insert each new comment in a new row. A good base from which to work, but it needs to be more than guidance to be effective, it needs to have a PI attached to make accountability part of the way it works. 1. The Mentor Foundation 2. 3. 4. 5. 6. Stakeholder response table – guidance consultation The reference to other “vulnerable groups” who have not been the focus of this work gives concern. Would it better to state at the outset those groups that have been the focus and identified as such and then make reference to those who have not been the focus and the need for work and support to them. To some degree all young people are “vulnerable” in different ways and to different degrees. The definition of substance misuse remains unclear and should be specific in terms of reference to legal as well as illegal substances and should also address the misuse of prescribed and over the counter drugs. What is the distinction between use and misuse of cannabis? Recommendations 1 and 2 a. Is one hour really sufficient? What about the need for the interviewer’s training and qualifications in the area of substance use and misuse, prevention, education etc. What about the follow up? Recommendation 3 a. This appears very general and starts with schools to say the obvious and then opens up to other groups still linked to a school recommendation? What about those not attending school? Recommendation 4 Response Please respond to each comment Thank you for your comment. The recommendations aim to contribute to the achievement of the PSA target for reducing substance misuse of all those under 25 Thank you for your comments. The guidance has been amended. 1. The guidance sets out groups included in the definition of vulnerable and disadvantaged children and young people. There are areas where evidence relates to particular sub-groups. Where evidence is lacking, the guidance recommends further research. 2. The guidance has been revised to include a definition of substance misuse that includes reference to legal and illegal drugs. 3. The guidance focuses on substance misuse and a definition is provided. 4. Please note that there are areas where evidence relates to particular intervention characteristics. The ‘considerations’ section in the revised guidance document now covers this point. 5. Please note that there are areas where evidence relates to particular intervention characteristics. p.74 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Evidence submitted Section Stakeholder response table – guidance consultation Page Number Comments Please insert each new comment in a new row. a. I presume the understanding of the term “at risk” will be explained somewhere in the document. b. Is there a need to be more specific about who would be providing the extra input/support once identified as “at risk”? 7. Recommendation 5 a. Whilst this may be extremely valuable given the right context, provision and providers surely the stress should be on the need for all children to receive this input as part of their basic education 8. Recommendation 6 a. I am concerned that the categorising of vulnerable groups in this way misses out so many individuals who are equally vulnerable but who do not fall into any of the identified categories. Response Please respond to each comment 6. The revised guidance recommends that practitioners use screening and assessment tools to identify vulnerable and disadvantaged young people at risk of misusing substances, such as the Common Assessment Framework and those available from the National Treatment Agency. 6. b) The guidance has been amended. 7. Please note that there are areas where evidence relates to particular intervention characteristics. In addition, the Department of Health asked NICE to undertake: ‘An assessment of community-based interventions to reduce substance misuse among the most vulnerable and disadvantaged young people’. 8. Please note that there are areas where evidence relates to particular sub-groups. Where evidence is lacking, the guidance recommends further research. You may wish to suggest a future topic for NICE guidance at www.nice.org.uk/page.aspx?o=ts.home p.75 Public Health Interventions Advisory Committee Substance Misuse Consultation on the Draft Guidance – Stakeholder Response Table November to December 2006 Stakeholder Organisation Training & Development Agency for Schools Evidence submitted Section 1 Page Number 6 1 7 Stakeholder response table – guidance consultation Comments Please insert each new comment in a new row. Recommendation 3&4: The development of skills and systems in schools for the identification of vulnerable pupils is underway, and also a culture change placing responsibility with staff and governors for wellbeing of the child in addition to educational attainment. However, NICE needs to be aware that these developments will take time to deliver consistent practice in identification and early intervention, and progress is patchy at present. Therefore there is a capability issue for some schools with these recommendations in the short to medium term. For example, the requirement for all schools to use referral mechanisms into specialist teams is by 2010, although the mechanisms should be in place ahead of this. Recommendation 5: The TDA is not aware of any systems in place or in development for the identification of pupils vulnerable to substance use (as opposed to more general behaviour problems) before the age of 10. There are vulnerability matrices in use in some senior schools, but not in the primary school age group currently. Response Please respond to each comment Thank you for this information. It will be passed to the NICE Implementation Team. Thank you for this information. It will be passed to the NICE implementation team. p.76
© Copyright 2026 Paperzz