Leadership for Compassionate Healthcare: Rhetoric or reality check? Dr Kay Mohanna FRCGP Prof of Values Based Healthcare Education Organisational culture Or personal responsibility? Why? • Lack of time: eg GP -15 per cent overall increase in contacts: a 13 per cent increase in face-to-face contacts and a 63 per cent increase in telephone contacts; [1] • Shortage of workforce and squeeze on co-professionals • Cuts - to social care, public health plus the Nicholson Challenge • “Deflection, Delay, Denial, Selection, Deterrence, Dilution”[2] • Having to comply with ill-thought through imperatives that get in the way of the real work. Eg admission avoidance care plans 1.The Kings Fund. Understanding pressures in general practice. May 2016 2. Robertson R Six ways in which NHS financial pressures can affect patient care Kings Fund March 2016 Compassion fatigue A specific type of clinician burnout • Impacts between 20% and 70% of doctors and other healthcare professionals (Fernandez 2014). • Nearly half of patients and doctors in a US study felt that compassionate care is missing in the health care system (Lowne 2011). Empathy and compassion • Empathy: the cognitive ability to recognise another’s distress • Compassion: the driver to intervene from experiencing that distress alongside the patient Unhelpful? Holding such emotions at arm’s length, is often felt by professionals to be protective against burnout (Smajdor 2013) Black Humour A release valve against the corrosive effect of reliving distressing emotional experiences in too much depth? What does it take to be compassionate in practice? The next patient, Diana Jones, is well known to you. Many years ago, when you first met, she was a flight attendant. She is now, aged 37, with a significant alcohol dependency. You know that she has recently got married to man she met in rehab. Today she has been brought to see you by her very caring mother, also your patient, who regularly cajoles and pleads with her to attend outpatients, stop drinking, take her medication and generally look after herself better. “I wonder if you can prescribe a tonic for Diana, doctor, to build her up and get her fit” she says. “I would like to see grandchildren before I die.” Diana tells you that she and her new husband have been trying to conceive for about 2 years, have both cut their drinking down, but that she recently fell and broke her wrist and was told her bones were thin. You know her husband, he has three children with two other women and there is an injunction in place against him seeing any of them due to domestic violence Mid way through morning surgery Sarah walks in. She is deeply jaundiced and you can see she is fatigued. Sarah retired early on ill health grounds from her position as a ward sister on ITU. She is married to an HGV driver originally from Turkey, who has non insulin dependent diabetes and they have a daughter training to be a solicitor and a son at University. She was diagnosed when she collapsed in pain, at work, and was admitted and found to have metastatic ca caecum. “I’ve come to ask you to keep an eye on Mahmoud when I am gone,” she says. “All his family are in Turkey, so he won’t have much support and I am worried he won’t look after himself. Can you make sure he comes for his check ups?” By this time surgery is over-running significantly. Alongside the next name is a note from reception that this patient’s husband had been extremely aggressive when booking the appointment. When you call her through, Sean and Karen Hart walk in together. “We won’t take much of your time doc,” says Sean. “So we thought you could squeeze us both in. It’s harder than trying to get an audience with the Pope to see any of you lot. I just need my usual sick note and antidepressant and the wife needs her morphine, gabapentin and mirtazapine.” “I have run out of my morphine early,” adds Karen, “because Sean did his back in and was using mine, so the receptionist would not issue my repeat.” You see that the most recent entry on Karen’s notes is a court report from an orthopaedic surgeon on her complex regional pain syndrome dating from slipping and falling in a supermarket Have a think for a moment… Reflect on how you are feeling.. Perhaps tell your neighbour • Diana and her mother • Sarah and her family • Sean and Karen Mindfulness Proponents of mindfulness suggest that it allows clinicians to become more aware of their own psychological processes, biases, and prejudices, to enable them to become more flexible and hence perhaps better attend to the patient “compassionate leadership is everyone’s business” • it is a wicked problem that demands a clumsy solution... It demands a new way of leading • I disagree… • The role of the manager/leader is pivotal. They connect individuals and teams to their own humanity and core purpose • I disagree… • Only individuals can do that • But they need courage and resilience How can VBP help? A framework for thinking with Values Values are anything positively or negatively weighted as a guide to action (for example, needs, wishes and preferences). Values-based practice is a process that supports health care decision making where complex and conflicting values are in play. Complex values are values that mean different things to different people (for example, ‘best interests’) Conflicting values are values that are in conflict one with another (for example, there are often tensions in health care decision making between ‘best interests’ and ‘freedom of patient choice’) Medicine’s values tool-box Values-based practice is complementary to other tools in medicine’s values tool box The values tool box is the range of disciplines concerned in one way or another with values in healthcare (examples include codes of practice, medical ethics, medical law, decision analysis, health economics, narrative-based medicine and others (including the psychological and social sciences, medical humanities, history, literature, philosophy, visual arts, etc)) Values-based practice complements other tools for working with values in focusing particularly on the unique values of the particular individuals concerned (as clinicians, patients and carers) in a given clinical situation The premise of values based practice: Mutual respect for differences of values avoids moral relativism (‘anything goes’) by marking out excluded values and by shifting the emphasis in decision-making from pre-set ‘right outcomes’ to good process Excluded values are values (like racism) that are incompatible with the premise of mutual respect and hence (however widely shared) are by definition excluded from values-based decision making Good process in values-based practice is decision making that is guided by one or more of ten key process elements of values-based practice (see below) The 10-part process of VBP • 4 key clinical skills • 2 aspects of professional relationships, • 3 close links with evidence-based practice, • 1 dissensual basis for partnership in decision making Clinical skills 1. Awareness of values includes awareness of the diversity of individual values, awareness of clinicians’ own values as well as the values of others, and awareness of positive values (StAR values, ie strengths, aspirations and resources) as well as negative values (such as needs and difficulties) 2. Reasoning about values in values-based practice is aimed at expanding our values horizons rather than (directly) to decide what is right 3. Knowledge of values as derived from research and clinical experience has the important limitation that it can never ‘trump’ the actual values of a particular individual. 4. Communication skills include skills for eliciting Professional relationships 1. Person-values-centred practice: focuses on the values of the patient, being aware of and reflecting the values of other people involved (clinicians, managers, family, carers, etc): this is important in tackling two particular problems of person-centred care, problems of mutual understanding and problems of conflicting values 2. Extended multidisciplinary team work is practice that draws effectively not only on the diversity of skills represented by different team members but also on the diversity of team values: this is important both in identifying the values in play in a given situation and in coming to balanced decisions about what to do Partnership in decision making Consensus involves differences of values being resolved (as in the development of shared frameworks of values) Dissensus involves differences of values remaining in play to be balanced sometimes one way and sometimes in other ways according to the particular circumstances presented by different situations “Cultures of engagement, positivity, caring, compassion and respect for all – staff, patients and the public – provide the ideal environment within which to care for the health of the nation. When we care for staff, they can fulfil their calling of providing outstanding professional care for patients.” West et al. (2011) Cultures of engagement: SELECT WELL FOR PERSONAL ATTRIBUTES • Internal locus of control • Pro-social behaviour • Optimism • Ability to organise • Courage to speak out BUILD WELL FOR HEALTHY ENVIRONMENTS • The built environment • Pastoral as well as health care • Visible, responsive leadership TAKING RESPONSIBILTY • Noticing • Speaking out • Problem solving Resilience of Healthcare Professionals Identify your own risk and protective factors Share experiences of both vulnerability and resilience so that others may learn from—and perhaps emulate—the strengths and also avoid the pitfalls Acknowledge and praise success in peers’ achievements Promote feelings of pride Encourage storytelling Jackson, D (2007). Personal resilience as a strategy for surviving and thriving in the face of workplace adversity: A literature review. Journal of Advanced Nursing, 60(1), 1–9. Compassion in healthcare? Above all: speak up • ‘If you don’t speak up when it matters, when would it matter that you speak? The opposite of courage is not cowardice, it is conformity. Even a dead fish can go with the flow.’ THANK YOU [email protected]
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