Feedback We appreciate and encourage feedback. If you need advice or are concerned about any aspect of care or treatment please speak to a member of staff or contact the Patient Advice and Liaison Service (PALS): Freephone (City Hospital Campus): 0800 052 1195 Freephone (QMC Campus): 0800 183 0204 From a mobile or abroad: 0115 924 9924 ext 65412 or 62301 Minicom: 0800 183 0204 E-mail: [email protected] Letter: NUH NHS Trust, c/o PALS, Freepost NEA 14614, Nottingham NG7 1BR www.nuh.nhs.uk Radiotherapy to the pelvis for cancer of the prostate Information for patients Radiotherapy Department This document can be provided in different languages and formats. For more information please contact: The Trust endeavours to ensure that the information given here is accurate and impartial. Elizabeth Ford, Radiotherapy Department © December 2016 All rights reserved. Nottingham University Hospitals NHS Trust. Review December 2018 Ref: 1227/v3/1216/ AR. The Nottingham Radiotherapy Centre City Hospital Hucknall Road, Nottingham, NG5 1PB Tel: 0115 962 7976 Public information This leaflet is aimed at people who have been diagnosed with cancer of the prostate. This leaflet aims to provide information regarding radiotherapy treatment for prostate cancer. Radiotherapy for prostate cancer Your doctor has suggested that you have radiotherapy treatment for the cancer in your prostate. Your doctor will discuss what alternative treatments are available to you, should you decided not to have radiotherapy. Location of the prostate gland The prostate is a small, walnut sized gland found below the bladder and in front of the rectum. See the image below. Useful contacts If you would like more information or to talk to someone about how you are feeling then please use the following numbers: Radiotherapy information and support Tel: 0115 962 7976 Urology nurse specialists Nottingham University Hospitals NHS Trust Tel: 0115 969 1169 ext 54082 King’s mill hospital Tel: 01623 622 515 ext 6284 Macmillan information centre The Macmillan information centre is located near oncology outpatients on the ground floor south corridor on the City Hospital campus. Tel: 0115 840 2650 www.macmillan.org.uk The prostate cancer charity A voluntary organisation providing information and support to men affected by prostate cancer and their families. www.prostate-cancer.org.uk Maggies centre Based at Nottingham City Hospital. No appointment is required and help is available free of charge; with information, benefits advice and psychological support to anyone affected by cancer. www.maggiescentres.org 2 11 Getting to radiotherapy Radical external beam radiotherapy Radiotherapy is situated on two sites within the City Hospital campus. The radiotherapy centre is located on St Francis Way at junction N18 on the north corridor, and the south radiotherapy department is located on the south road at junction S2 on the south corridor. You will be informed which site you need to attend. A map is available on how to find both sites. This is a course of X-Ray treatment. The aim of the treatment is to give a high dose of radiation to your prostate in order to cure the cancer. It is given as an outpatient procedure and takes about 10-15 minutes. Treatments are daily, five days a week. The number of treatments can vary from five treatment given over a period of four weeks, up to 39 treatments given over a period of eight weeks. Your doctor will discuss with you what is best for you. Treatment is painless and it does not involve needles. There is ‘pay and display’ parking at the hospital. Free parking permits are available from radiotherapy reception. Please ask for details. If you are receiving benefits you may be able to claim your travel expenses back. Please ask for details at radiotherapy reception. We can book hospital transport for some people if there is a medical requirement. If you cannot get to the hospital by your own means please telephone the radiotherapy department to discuss your requirements. If you live a long distance from the hospital and would find travelling every day difficult, then you may be able to stay in the patient hotel, located on the City Hospital campus. There is no charge for patients staying in the hotel while you are having treatment. Please speak to a member of staff for details. The type of radiotherapy treatment given is IMRT (intensity modulated radiotherapy), which is given either as VMAT treatment on our linear accerators or on our tomotherapy unit. Your consultant will discuss with you which type of treatment is best for you. Some men need a course of hormone treatment to shrink the prostate before the radiotherapy. This takes three to six months. It is quite normal to wait this length of time before starting your radiotherapy treatment. Some men will continue hormone therapy for many years or indefinitely. The timeline on page four can be used as a guide to how your treatments may happen. Please bear in mind that these dates are approximate and may vary especially if you are in a trial. Hormone and radiotherapy treatments are arranged to take into account individual patient needs. Please discuss your particular pathway with your consultant or information and support radiographer. 10 3 Hormone tablets Your doctor will inform you if you require further hormone therapy after the radiotherapy has been completed. Planning for radiotherapy Hormone injections Month Planning for radiotherapy is over just one appointment and will involve having a CT scan and in some cases an MRI scan. Radiotherapy treatment 5 4 3 2 Hormone treatment/radiotherapy timeline 1 4 You may need to have some help if you live alone, we advise that you: Rest when you feel tired. Take some gentle exercise if you feel able. Vary your activities to stimulate your interest. Use your energy to do things that you enjoy. Loss of appetite It is common to lose your appetite when you are recovering from treatment. We recommend that you: Don’t worry if you can’t eat full meals. Eat small snacks as often as you can. Choose foods that you enjoy. Buy foods that are easy to prepare or ready prepared. If you’re not eating well it’s important to make sure you still drink fluids. Aim for two litres per day. Alcohol should be kept to a minimum. Follow up appointments You will be given a follow up appointment to see the oncologist for between 6 and 20 weeks following your radiotherapy in the out patient clinic. You will also be given a blood test form to check your PSA. You can get this blood test done at your GP surgery and it should be done approximately one week before your follow up appointment. Please ensure you have this appointment and the blood test form before your last treatment. After radiotherapy PSA falls gradually. If your PSA does not fall, or if it consistently rises during your follow up checks, you may need further treatment. This is usually a hormone treatment. 9 There may be significant scarring to your rectum. This happens to less than five percent of treated men. Exceptionally rarely, the damaged part of bowel that is causing severe symptoms has to be removed in an operation. If this happens there is a small risk that you may need a colostomy (an opening of the bowel onto the front of the abdomen). Erectile dysfunction Erectile dysfunction (ED) occurs when the nerves used to send the message to produce an erection are scarred by the treatment. ED means you cannot have a useful erection. It happens for up to 50% of men who were able to have an erection before the radiotherapy. There are a number of treatments available for ED. Your GP or the urology team will be able to discuss what is suitable for you. Careful radiotherapy planning keeps these significant side effects to a minimum. How will I feel during and after my treatment? This varies from person to person. Some people feel quite well and are able to carry on very much as usual. However, others find they get quite tired and feel generally low. Most people feel well enough to be able to drive or use public transport to get to the hospital for treatment. Fatigue (tiredness) Coping with an unexpected illness and the treatment can be very tiring both physically and emotionally. You might feel you don’t have much energy; a bit like when you have flu. Everyday tasks to run your home may be more difficult than usual. 8 Radiotherapy planning Before treatment can start we have to make sure that the X-Rays are aimed precisely at your prostate. We need to avoid treating the normal tissues close to the prostate (bladder and bowel) as much as possible. This is called treatment planning and involves: A CT scan. Some patients may have an MRI scan as well. This will be done on the same day as your CT scan. At this appointment the radiographers will make some permanent skin marks on your pelvis to use as reference points for your treatment. If you would prefer not to have permanent skin marks then please discuss this with the radiographers who will be doing your scan. A series of mathematical calculations are performed. These usually take about six weeks to be completed and checked. You do not need to come to the hospital again until they are completed. You will be scanned each day on the treatment machine prior to the treatment itself. This is to help us ensure the accuracy of your treatment position only and does not tell us how well your treatment is working. If you treatment is split into two parts you may have a repeat planning scan during the treatment to plan the next section Preparing for radiotherapy to the prostate To help with your treatment your consultant would like you to follow a low fibre diet. Ideally you should start this diet two weeks prior to your planning appointment however if we have contacted you with less than two weeks notice then please start the diet as soon as possible. We will also ask you to administer a micro-enema (supplied at first appointment) before your planning scan and before each of your treatments. This is to empty your rectum and help move it away from the area we need to treat and so reduce possible side effects from the radiotherapy. There is a separate leaflet on ‘preparing for radiotherapy to the prostate or prostate bed’ which explains this in more details. Please ask for this leaflet if it is not sent to you with your planning appointment. 5 Will I have any side effects during radiotherapy? Your bladder and part of your bowel are very close to your prostate. This means that the treatment will cause some inflammation in these areas. Side effects build up gradually and vary from person to person. After two or three weeks you may experience some or all of the following: Bladder The lining of your bladder and urethra may become inflamed by the treatment. This can cause discomfort when passing urine. You will probably need to pass water more often than usual. You may find that the urine flow is very weak or hesitant. You will probably find you have to get up more times in the night to pass urine. You are more prone to having urine infections during treatment. We may ask you to do regular urine samples so that we can test it for infection. It is not unusual to pass small pieces of tissue or clots with your urine. You should not worry about this but inform the radiographers if it happens. It is very important to drink plenty of fluids - at least two litres per day. This fluid should be water, fruit juice or squash. If you cut down on your drinks it will not relieve your side effects, and may make you more likely to develop a urine infection. Intake of caffeine and alcohol should be reduce as they can irritate the bladder. Bowel Part of the bowel is very close to your prostate and so will be included in the treatment area. Inflammation of the bowel may cause some diarrhoea. It’s important to tell the radiographers if you experience diarrhoea so we can advise you how to manage it. 6 Skin You may see some reddening of the skin in the treatment area. This is unlikely to be troublesome but we will give you some cream to use throughout your treatment to keep the skin well moisturised. These side effects will gradually settle down over the four to six weeks after your treatment has finished. Will I have any long term side effects after radiotherapy? Normal tissues recover after radiotherapy but some changes will have taken place. This can sometimes cause the following symptoms: Bladder changes There will be some scarring of the bladder which may cause thinning of the bladder lining. This could make it bleed more easily and you might see blood in your urine from time to time. Some people find that they have to empty their bladder more frequently as the bladder doesn’t hold as much fluid. Bowel damage Bowel damage usually shows itself within two years of finishing treatment. Men with circulation problems, or who have had an operation in the abdomen, have a higher risk of bowel damage. The symptoms you may get with bowel damage include: Opening your bowels more times in a day. Feeling that you need to get to the toilet more quickly. Passing blood or slime in your motions (intermittently). Feeling a need to go but not passing much faeces (tenesmus). Very rarely there can be mucous discharge from your rectum. (continued overleaf) 7
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