Fact sheet Data Exchange February 2017 People are at the centre of a social investment approach. It’s about investing in the right services to help improve people’s lives. It’s called social investment, not spending, because it’s about investing resources upfront to enable people in need to thrive over the longer-term. The Social Investment Unit (SIU) was established as a cross-agency unit to advance and embed the Government’s social investment approach. The SIU uses data and analytics to apply rigorous and Why share data? By safely and securely sharing the data held on Kiwis in need, we can better understand their current and future needs and help improve their lives by providing effective social services. Personal information will only be shared with the permission of the individual (every individual owns the data that relates to them). Kiwis will have the ability to decide what information they’re comfortable with sharing, with whom and for what purpose. They can ‘opt-out’ of having their personal information shared, at any time. services are for Kiwis in need. The SIU has been working with social sector organisations to develop a cloud-based Data Exchange: a robust platform to enable the safe and secure sharing of data in near real-time. What is the social sector? Ensuring the security and privacy of data is a key priority for the Data Exchange and the SIU. The social sector is about more than government health boards ... the list continues. Organisations participating on the Data Exchange will: Determine and manage what data they share, with whom and when Receive only the data the sharing organisation makes available to them. An integral part of New Zealand society, the social Benefits of the Data Exchange evidence-based investment practices to social services, which helps to determine what the right agencies. It includes community partners, service providers, Non-Governmental Organisations (NGOs), charities, Crown Agencies, local government, district sector supports all Kiwis by investing in their education, health and wellbeing so they can live fulfilling and productive lives. But some people need more support to thrive and enhance their quality of life. The social sector also invests in communities so they can enable people to thrive and help them when they need support. SIU-2017-0079 With increased levels of security over current methods of data sharing, the Data Exchange will: Provide a safe and secure exchange of data between social sector organisations Connect social sector organisations in a way that’s easy, consistent and efficient Help front-line staff improve service delivery by providing better information about the people they work with Measure the effectiveness of services delivered and outcomes for people over their lifetime Inform better policy and investment decisions Promote standardised approaches to privacy, data management and data standards Allow for a data feedback loop to gain insights into the outcomes and performance of services delivered. How it works When fully developed, the Data Exchange will enable system-wide two-way sharing of anonymised and non-anonymised data through a cloud-based platform, which will clean, structure and manage the exchange of data. The Data Exchange will automatically collect and deliver data to participating NGOs and service providers to support their service delivery. Access to the Data Exchange is via a secure logon, with each participating organisation having specific terms and conditions governing their activities on the exchange. This includes standards, governance, security parameters and purposebased access to data and other relevant rules. The system relies on small pieces of software (agents) running on a server in each participant organisation. Agents handle the automated, specific collection of data (using a very strong level of encryption), and sends it to the cloud-based platform, where it’s sent on to another agent. The platform can handle many agents sending lots of data to multiple destinations simultaneously. The end-to-end solution is fully auditable and can track who, how, when and what data is moving around between participants on the Data Exchange. Prod-1 live The first ‘live’ transfer of data across the Data Exchange – for test purposes only – was successfully completed in December 2016, when anonymised data was transferred between the Ministry of Social Development and the Methodist Mission Southern. Up next Three production stages will be implemented over the next five years, with each bringing expanded features, technology, business components and operational scale. Prod Year Focus Prod-1 2016/17 Data Sharing Service goes into production, using anonymised data Prod-2 2017/19 More agencies and NGOs added Identity Resolution Service (IDRS) added Data Publishing Service added Prod-3 2019/22 More agencies and NGOs added Participants will have a phased entry onto the Data Exchange and will be able to share data they hold as part of standing-up the technology. Security and privacy A number of mechanisms exist to ensure Kiwis’ privacy is protected, including legislation, contractual and information sharing arrangements and Memoranda of Understanding. Security and privacy principles and methods have been designed in conjunction with a range of social sector organisations, to ensure the Data Exchange is robust and works for everyone. ‘Privacy by design’ principles have been used to develop the Data Exchange to protect privacy (and, by association, security), by embedding design features, protocols and processes that improve and optimise privacy and security. When service providers are contracted, a range of information is collected for business and research purposes. All organisations accessing this information are legally bound to hold it securely and use it appropriately. Who will use the data? Different groups will have access to different levels of data for different purposes: • Front-line staff – make more informed decisions and more targeted services delivered faster • NGOs and contacted service providers – monitor the delivery of services and fine-tune their programmes and how they’re tracking against expected results • Government agencies – inform investment and policy decision-making decisions to deliver more targeted services • Ministers – determine whether the government is delivering on expected results. Encryption ensures data is only seen by those who are authorised to do so. SIU’s role as the operator of the Data Exchange To ensure the proper protocols are in place for data sharing, the SIU works closely with: The SIU is accountable and responsible for ensuring the Data Exchange is fit-for-purpose, including managing and monitoring participants and the way it is used. • • • • Office of the Privacy Commissioner Government Chief Privacy Officer Government Chief Information Officer Ministry of Justice on the privacy approach being taken • Data Futures Partnership, an independent group funded by government to work with Kiwis to create the right systems, settings and conditions to allow data to be used to help make New Zealand a better place. Disclosure statements To make sure social sector organisations can legally share customers’ personal information – and that it can be used for analytical purposes – a series of common disclosure statements have been drafted for government agencies to use with their customers. This includes overarching statements that can be used in written or verbal privacy disclosure statements. When engaging with social sector organisations wanting to use the Data Exchange, the SIU will: • Give a clear understanding about why data is being used for social investment purposes, including the privacy, human rights and ethical considerations the SIU works within • Set out the conditions that must be in place to ensure customers know how any data they provide is intended to be used • Provide details on how this data can be used to improve service delivery, or for research • Follow agreed approaches, developed in association with social sector organisations. Generic example of how the Data Exchange works More information For more information, please visit www.siu.govt.nz Email the SIU at [email protected]
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