SEABREEZE: SOUTH LONDON MENTAL HEALTH PILOT PROJECT! EVALUATION REPORT MAY 2014! ! Dance United in partnership with! Institute of Psychiatry at King's College London! South London and Maudsley NHS Foundation Trust (SLAM)! ! ! ! ! ! ! !! ! Photography: Pari Naderi! Seeing the guys so confident really hit me with emotion. I cannot remember when this last happened to such degree in relation to a piece of art. Of course seeing patients I had met on the ward when very unwell made it more significant, as did their pride when they rushed to say “hi” at the end of the show, eager to come and say "look what I did". Isabel Valli, Institute of Psychiatry, King’s College London Coming in everyday is a bit of a challenge but it’s something that I needed to rise to and it’s hard, but I feel good because of it. Seabreeze participant I've started walking with my head up when I walk down the street. I used to walk with it down… it does make you feel more confident. Seabreeze participant This has been brilliant, a lot of enthusiasm from our team and clients alike. It would be great if it could run again! I’ve met with a couple of clients who I can see have benefited greatly. Jean Lawlor, Team Manager, Lewisham Early Intervention team 18 young adults started the project and 16 completed it. The group moved (overall) from below average wellbeing (levels similar to people describing their health status as poor), to achieving normal wellbeing levels (above the norm for this population). On an individual level, 13 pilot completers improved in respect of all 7 intermediate outcomes. Background to the pilot" High rates of mental health issues are encountered within the constituencies Dance United had focused on to date so a logical next step was to test the efficacy of a dance-based intervention in a mental health setting with the ambition to develop a teaching model and choreography suited to this context. In October 2012 senior personnel from a bio-medical research institution, the Institute of Psychiatry at King s College, London (IoP) and a front-line clinical team, the South London and Maudsley National Health Service (NHS) Foundation Trust (SLaM) attended The Place in London and watched Dance United s Academy beneficiaries performing on stage. Having witnessed the power of dance as an intervention, a research context started to emerge: a unique collaboration between Dance United, the IoP, SLaM, two voluntary organisations (Bipolar UK and Rethink Mental Illness) that aimed to break new ground artistically and medically. The front-line early intervention teams in south London operating within SLaM (STEP, LEO, LEIS, COAST) were critical in turning an ambition into a reality. The Need The partners wanted to test an intervention for young adults aged 18 – 35 living in south London in the early stages of diagnosis and treatment of schizophrenia, bipolar and other mental health conditions. The typical profiles included those who had sought help for psychological problems, with impairment in psychosocial functioning and specific signs and symptoms indicating high risk of bipolar disorder; those with an early diagnosis of schizophrenia, or experiencing psychosis or being treated by their GP for depression/anxiety. The health partners identified three key problems these young adults experience: (1) they often feel isolated and struggle with interpersonal relationships, (2) they struggle with their body awareness and physical fitness and this has a negative impact on their overall levels of confidence, (3) they find it hard to get up in the morning and to maintain energy and optimism, with a liability to over-focus on their condition and worry about the future. The broader health ambitions were threefold: (1) to reduce the stigma associated with accessing mental health services and to consequently reduce the co-morbidity of delayed diagnosis (over 80% of bipolar symptoms, for example, are detectable by the age of 35). Co-morbidity is a big issue for this particular client group often resulting from poor social networks and family relationships; drug and alcohol addiction; psychosis and general development difficulties; and sometimes, involvement in the criminal justice system and gang membership (Coid et al), (2) to illuminate the fact that modern medications for these conditions do not impair movement functions. Rather, people in treatment can carry on living with normal physical mobility and their capacity to dance clearly demonstrated this point, (3) to draw attention to recent radical changes in the delivery of care model from clinical management to holistic recovery; a combination of rounded assessment and active focused intervention with the language of pushing boundaries, positive risk-taking and personal aspirations. Recruitment and Delivery The participants were recruited by SLaM front-line mental health workers working within the early intervention teams and Dance United’s pastoral team went to meet with those who expressed an interest and who were considered at the right stage in diagnosis/treatment/recovery. Every participant signed a consent form for the collection and use of data and photographic/filmed material. The agreement was NHS compliant and signed off by the clinical partners. At the heart of the pilot stood a four-week full-time dance-based intervention, in which participants, recruited by their clinical workers, learnt how to dance and then rehearsed and performed an original dance work to invited audiences. They also engaged in trust-building and team-building exercises and shared healthy lunches. The process was modelled on Dance United’s classic teaching methodology (with 42 teaching points such as treating the participants as a ‘company of dancers’ from day 1 and paying attention to the quality of movement from the outset rather than adding on in the latter stages of rehearsal). The 15-minute dance piece, Seabreeze, was created in a choreographic laboratory by Dance United’s Associate Artist, Dam Van Huynh, and two of the company’s most experienced dance directors, Ellen Steinmuller and Carly Annable Coop. Highly regarded for his research work in contemporary dance in the USA, Hong Kong and Europe, Van Huynh takes a distinctive three-dimensional view of how a person trains, looks, feels and digests movement through his or her own body. The choreographer and two dance directors were supported by two pastoral support workers from Dance United to deliver the project. A clinician from SLaM was also embedded in the team. The participants performed Seabreeze three times at the Jerwood Space in south London. The Challenges There were some concerns expressed by the clinical collaborators that working in a highly disciplined art form might be experienced as stressful so the dance team modified their facilitation style to be gently persuasive rather than driven; the language of pressure, push and urgency gave way to a softer style albeit harnessing creative energy and tension and working with high artistic and production values. Four ‘role models’ drawn from backgrounds such as post-graduate dance and psychology were trained and embedded in the group to help maintain focus and energy. There were some concerns that people with these profiles may find it very challenging to get up every day to attend an intensive project and might not want to be brought together as a group (which they often seek to avoid because of the associated stigma). Lastly, there was anxiety expressed by the partners that those who took part would not wish to be filmed. For this reason, the film maker joined in the dance group for the first week and gently introduced filming in the subsequent weeks. The team took heed and due care and the worries described above did not materialise. Training Because the participants were patients from the National Health Service there were a number of safeguarding issues that fell under the heading of the ‘do no harm’ principle and the referral partners therefore retained overall responsibility for their clients. In preparation for the project, the clinicians and the dance team exchanged skills and knowledge; the former experienced dance first-hand and discovered from within how the process brings about embodied shifts, the latter learnt about models of treatment, medication, duty of care, treatment environments and the ethics surrounding the collection and use of data. They also spent time in the Maudsley Hospital environment. The four intensive training days was delivered by visiting tutors: Belinda Sosinowicz Tudor (Trainer and Programmes Development: Building Resilience, Wellbeing and Happiness with Positive Psychology , Art and Creativity); Dr Tamara Russell (clinical psychologist focusing on mindful movement practice in mental health) ; Gloria Ho (the Youth Co-ordinator, Bipolar UK) and Jo van den Bosch (lead arts therapist for SLAM). Dance movement psychotherapy and mindful movement practice are both used within the NHS. The company found it helpful to spend time with specialists from these two disciplines working within SLaM to clarify commonalities and distinctions. Dance United’s process aimed to improve participants’ overall mental wellbeing from a number of angles through an active engagement with professional contemporary dance. Theory of Change A theory of change was created to articulate how the activities and their key qualities could bring about a number of measurable intermediate outcomes leading to three long-term outcomes. 1) Greater satisfaction in interpersonal relationships • Improved communication skills • Increased level of trust in others • Increased capacity to work as part of a team 2) Positive Functioning: improved embodied confidence • Improved stillness and bodily control • Increased capacity for symbolic expression 3) Positive Affect: raised motivation, energy and optimism • Improved resilience • Increased optimism Referred by frontline clinical staff! ! Young adults aged 18 – 35 with an early diagnosis of a mental health condition! teambuilding activities! Learning dance technique in daily class! Taster sessions sessions! Learning a 15minute piece of choreography! Being part of a performing dance company in which all members must interact effectively to produce a high-quality artistic result.! Level of trust : being able to trust and be trusted by others! Working as part of a team: negotiating group solutions to dance challenges that require cooperation and timing! ! Inputting own material into choreography via creative tasks! Sharing a healthy lunch and snacks! ! Being part of a performing dance company in which all members learn and perform choreography in order to produce a high-quality artistic result.! ! Being part of a performing dance company and attending every day and overcoming obstacles and challenges in order to produce a high-quality artistic result.! Resilience: having Three performances of a 15-minute dance piece to invited audiences audiences! ! Communication skills: communicating effectively when interacting during classes and rehearsals! Satisfying Interpersonal Relationships: Relationships:! greater satisfaction in interpersonal relationships ! Symbolic expression: expressing ideas and feelings through expressive movement! ! ! ! Stillness and bodily control:! showing observable moments of stillness, bodily control and mastery of movement! ! Positive Functioning: Functioning:! improved embodied confidence! Trust exercises! Level of optimism:! believing in their capacity to achieve a high quality dance performance energy for and commitment to the dance project and being able to overcome challenges and obstacles along the way! ! Positive Affect: ! ! raised motivation, energy and optimism! Theory of Change – Outcome 1 – Interpersonal Relationships" Problem! Clients of mental health services sometimes have difficulty forming satisfying interpersonal relationships" Activity! Clients perform as part of a contemporary dance company in which all members must interact effectively to produce a highquality artistic result" Intermediate Outcome 1! Improved communication skills:! " • Remembering" • Listening" • Speaking with confidence" • Eye contact" • Non-verbal communication" Intermediate Outcome 2 !! Increased level of trust in others:! " • Executing paired and group movements such as lifts and holds" Intermediate Outcome 3 !! Increased capacity to work as part of a team:! " • Negotiation skills related to group dance challenges that require cooperation and timing" Outcome! Clients report greater satisfaction in interpersonal relationships" Theory of Change – Outcome 2 – Positive Functioning " Problem! Clients of mental health services sometimes struggle with their body awareness and physical fitness reducing their overall level of confidence and mental wellbeing " Activity! Clients perform as part of a contemporary dance company in which all members learn and perform choreography in order to produce a high-quality artistic result" Intermediate Outcome 1! Improved stillness and bodily control:! " ready to start moving on cue, impulse control, not fidgety, clear thinking, clarity of movement! Intermediate Outcome 2 !! Increased capacity for symbolic expression:! " expressing ideas and feelings symbolically through dance movement " Outcome! Clients report improved embodied confidence" Theory of Change – Outcome 3 – Positive Affect" Problem! Clients of mental health services sometimes struggle with getting up in the morning and with maintaining energy and optimism, reducing their overall level of mental wellbeing" Activity! Clients are part of a contemporary dance company in which all members attend every day and overcome obstacles and challenges in order to produce a high-quality artistic result" Intermediate Outcome 1! Improved resilience:! " Having energy for and commitment to the dance project, overcoming challenges and obstacles along the way" Intermediate Outcome 2 !! Increased optimism:! " believing in their capacity to achieve a high quality dance performance" Outcome! Clients report raised motivation, energy and optimism" Evaluation Tools The participants The clients self-scored at the beginning, middle and end of the intervention on the Warwick Edinburgh Scale (WEMWBS) (which is used extensively in the NHS to measure change). Matthew Taylor, the pilot s lead researcher from the Institute of Psychiatry at King s College, London interpreted the data. They also self-scored on five of the intermediate outcomes using an adaptation of the Recovery Star evaluation tool which is used in the NHS. The delivery team The dance artists and support staff working as part of the delivery team reported back on how far they had found the training inputs helpful in one-to-one interviews. The dance team and the support team both independently scored each participant on changes they observed in five of the intermediate outcomes and recorded these on outcomes stars. They also evaluated their experience of delivering the project in one-to-one interviews. The clinical partners The clinical referral partners wrote individually and anecdotally about their experience of the project and their assessment of the efficacy of the intervention for their patients immediately after the project and at two months post-project. Correlation between tools and outcomes Overarching Outcomes positive functioning, positive affect/ interpersonal relationships Intermediate Outcome Improved communication skills Increased level of trust in others Increased capacity to work as part of a team Improved stillness and bodily control Increased capacity for symbolic expression Improved resilience Increased optimism Measurement tool Participants self-score on WEMWBS Measurement tool Participants self-score on Outcomes Star, dance team and support team score participants using same tool Participants self-score on Outcomes Star, dance team and support team score participants using same tool Participants self-score on Outcomes Star, dance team and support team score participants using same tool Participants self-score on Outcomes Star, dance team and support team score participants using same tool Observation of movement by dance director using the Symbolic Expression framework Participants self-score on Outcomes Star, dance team and support team score participants using same tool Participants self-score on WEMWBS WEMWBS All questions are scored as follows: a) None of the time (1 point) b) Rarely (2 points) c) Some of the time (3 points) d) Often (4 points) e) All of the time (5 points) 1. I’ve been feeling optimistic about the future 2. I’ve been feeling useful 3. I’ve been feeling relaxed 4. I’ve been feeling interested in other people 5. I’ve had energy to spare 6. I’ve been dealing with problems well 7. I’ve been thinking clearly 8. I’ve been feeling good about myself 9. I’ve been feeling close to other people 10. I’ve been feeling confident 11. I’ve been able to make up my own mind about things 12. I’ve been feeling loved 13. I’ve been interested in new things 14. I’ve been feeling cheerful WEMWBS data Participants data: total scores listed for the 14 questions 27/11/2013 13/12/2013 18/12/2013 32 47 52 54 54 70 44 57 60 57 68 70 43 56 56 38 48 50 37 47 48 46 48 56 46 49 53 31 38 37 50 48 56 43 55 47 46 49 46 67 69 47 66 46 58 Individual Wellbeing scores (WEMWBS)! 80! 70! 60! 50! 40! 30! 20! 10! 0! 22/11/2013! 27/11/2013! 02/12/2013! 07/12/2013! 12/12/2013! 17/12/2013! 22/12/2013! Average wellbeing scores (participants with complete datasets)! 60! 50! WEMWBS score! 40! 30! 20! 10! 0! 23/11/2013! 30/11/2013! 07/12/2013! 14/12/2013! 21/12/2013! Analysis of WEMWBS Data The group moved (overall) from below average wellbeing (levels similar to people describing their health status as poor), to achieving normal wellbeing levels (above the norm for this population). # # For the general population as a whole, the average score is just under 51 [Warwick Edinburgh user guide page 14]. The participants started below this (mid forties) and for those where all three ratings were collected, there was a 10 point increase to a final score of 53.9.# # For context, a recent evaluation of a range of three-month group exercise projects in mental health found an average increase of three points from 43 at baseline to 46 at three-month follow-up. (Malcolm E, Evans-Lacko S, Little K, Henderson C, Thornicroft G. The impact of exercise projects to promote mental wellbeing. J Ment Health. 2013 Dec;22(6):519–27.) The baseline in the Dance United pilot was similar to that of those taking part in the Malcolm study exercise groups. This is about the level of people who rate their general health as 'poor' [see User guide page 18]. The increase of ten points looks very impressive in that context.# # A recent evaluation of an internet tool to improve general population wellbeing also showed an increase of just less than three points over three months: (Powell J, Hamborg T, Stallard N, Burls A, McSorley J, Bennett K, et al. Effectiveness of a web-based cognitive-behavioural tool to improve mental well-being in the general population: randomized controlled trial. J. Med. Internet Res. 2013;15(1):e2).# # WEMWBS Descriptive Statistics Descriptive Statistics N Minimum Maximum Mean Std. Deviation 16 31 67 46.69 10.403 15 38 69 52.73 8.189 14 37 70 53.36 9.103 WEMWBS November WEMWBS Dec WEMWBS Dec2 13 Valid N (listwise) Paired Sample Statistics and Comparisons Paired Samples Statistics Mean WEMWBS November Pair 1 WEMWBS Dec WEMWBS November Pair 2 WEMWBS Dec2 N Std. Deviation Std. Error Mean 46.67 15 10.768 2.780 52.73 15 8.189 2.115 43.86 14 7.472 1.997 53.36 14 9.103 2.433 Paired Samples Comparisons Mean WEMWBS Pair 1 Std. Deviation Std. Error Mean t df Sig. (2-tailed) -6.067 6.649 1.717 -3.534 14 .003 -9.500 6.136 1.640 -5.793 13 .000 November WEMWBS Dec WEMWBS Pair 2 November WEMWBS Dec2 Correlations WEMWBS November Pearson Correlation WEMWBS November Pearson Correlation Sig. (2-tailed) N Pearson Correlation WEMWBS Dec2 1 Sig. (2-tailed) N **. Correlation is significant at the 0.01 level (2-tailed). WEMWBS Dec2 .787** .743** .000 .002 16 15 14 .787** 1 .772** Sig. (2-tailed) N WEMWBS Dec WEMWBS Dec .000 .002 15 15 13 .743** .772** 1 .002 .002 14 13 14 A Graph Showing Degrees of Change for Participants on WEMWBS Further WEMWBS Analysis The graph above is showing what happens for individual young adults in the group. The horizontal and vertical dashed lines are the mid-point on the scale. At base line in November, four participants are below the mid-point, so these are reporting relatively low wellbeing. At second follow up, one person remains below the mid-point. The black sloping line is the no change line, so out of the group only two have remained where they were. The green sloping line represents an average of one point improvement on the scale on average across the 14 items which make up WEMWBS. This suggests that three participants in particular have made substantial change. The most striking of the three is the one at the left, as this person was below the mid-point on the scale at the start and by the end of the programme was well above the mid-point. One person remains below the mid-point: this young woman was often unfocused and found it hard to keep the thread of thoughts and communication. She found it hard to grasp the key concepts. She needed a high level of one-to-one support and was the most needy member of the group. She was erratic in terms of attendance and punctuality. Only two have remained where they were: 1) one was a young woman who had very low self-confidence , was very timid and self critical. She was particularly harsh in judging her own skills and her performance. She was a perfectionist and set the bar very high for herself and then failed to meet these exacting standards. After watching the DVD she said she didn’t look as wobbly as she thought she would. 2) The other was a young man who did not want the project to end and surprised himself how much he liked it . He fantasised about how others saw him and struggled at the beginning but then when he realised he had been welcomed, accepted by and integrated into the group, the sense that it would all come to an end, the impending loss became overwhelming. Further WEMWBS Analysis The most striking of the three is the one at the left, as this person was below the mid-point on the scale at the start and by the end of the programme was well above the mid-point: this young woman grew considerably in confidence, and was productively self-critical, appreciated having a structure and something to get up for in the mornings. She was one of the proudest people and had the confidence to face challenges and work through them. She worked very hard. Three participants in particular have made substantial change: 1) This young woman was fairly confident and had good dance ability from the outset, the project wasn’t too big a challenge for her. She came from a stable family and social environment and never complained about the effects of medication. She had a good body image and was very organised. 2) This young woman was very self-critical at the beginning and made extraordinary progress to the point where she danced a solo in the final performance. 3) This young woman talked about how much the project had changed her life. She was not particularly emotionally expressive but was the first person to speak up in the feedback circle and said that things had improved in other areas of her life. Outcomes Stars Recovery Stars or Outcome Stars provide a very easy to use and visual way of measuring progress (see below the NHS Recovery Star and an example of how it is used in mental health care settings). Recovery Stars are often created by the participants themselves who set their own goals against which they can measure their progress. However, for a short four-week intervention we decided to design a bespoke Outcomes Star to measure the project s proposed intermediate outcomes. The participants self-scored at the beginning, middle and end of the project from 1 – 10 (1 being low and 10 being high) on the following statements: • • • • • My communication skills such as speaking with confidence and listening to others My resilience: my capacity to overcome obstacles in order to achieve something My capacity to maintain concentration and focus on what I am doing My level of trust in others My capacity to work as part of a team The results for the group as a whole are set out in the slide below. In the slide that then follows you can see an example of the outcomes stars that were also produced for each individual participant showing starting and finishing scores a) changes self-reported by participant, b) changes observed by dance team and c) changes observed by support team. NHS Recovery Star Model Typical outcomes that patients self report on GROUP RESULTS FOR FIVE OF THE SEVEN INTERMEDIATE OUTCOMES 27th November 2013 Communication skills Resilience Concentration and focus Level of trust in others Working with others as part of a team TOTAL 13th December 2013 Communication skills Resilience Concentration and focus Level of trust Work as part of a team TOTAL difference 18th December 2013 Communication skills Resilience Concentration and focus Level of trust Work as part of a team TOTAL difference 1 2 2 4 1 3 2 3 1 2 2 1 2 1 5 2 1 2 6 3 4 4 7 3 8 1 4 3 9 2 4 3 4 2 1 2 3 2 4 1 1 1 10 3 1 2 1 5 9 7 11 17 10 12 1 7 1 2 3 2 1 1 1 4 5 1 1 1 2 6 2 4 2 1 7 2 2 4 4 8 3 4 4 2 9 6 3 10 2 1 7 4 1 1 1 2 1 16 3 4 0 0 5 5 5 11 13 20 17 4 -1 -5 -4 -2 -6 -6 3 8 16 -3 1 2 1 3 1 2 1 1 4 5 1 6 2 3 2 2 7 4 4 4 2 8 4 2 4 4 9 2 3 2 2 10 1 1 1 2 1 2 5 4 2 1 1 1 16 0 1 6 2 2 11 14 19 13 7 -1 -4 -3 -5 -9 -6 4 7 12 0 15 Resilience OUTCOMES STAR: Communication skills Completed by participants showing changes in 5 intermediate outcomes for the group as a whole Week 3 Week 1 Concentration and focus Working with others as part of a team Level of trust in others OUTCOMES STAR: Resilience Example of results for an individual participant Communication skills Green = support team Red = participant Purple = dance team Concentration and focus Working with others as part of a team Level of trust in others Measuring Symbolic Expression The assessment of symbolic expression , involved systematic observation of each individual s movement qualities and dynamics using Laban Movement Analysis which, …is increasingly recognized world-wide in the fields of dance movement therapy and in the performing arts as a common language for communication about movement (Bloom, 2006). They were assessed for Flow, Weight, Space and Time. Flow conveys varying attitudes towards the continuity and control with which a motion is performed, either free or bound and is frequently related to feelings. Weight involves varying attitudes towards physically exerting force and using one s weight to have an intentional impact on the environment, either light or strong ; it is generally related to sensing and the physical attitude of intention. Space describes different ways of attending to the environment and orientating one s motions in space, either indirectly or directly; it is associated with inner impulses related to attention and is related to thinking processes. Time describes the pace contained in the movement, either sustained or sudden ; it is related to intuition and decision-making processes. All 16 pilot completers had developed and expanded their range of movement dynamics. DEVELOPMENT OF SYMBOLIC EXPRESSION OVERVIEW OF OBSERVATIONAL FRAMEWORK Laban Movement Analysis -‐ Eukine5cs (Effort Theory) EFFORT FACTORS AND ELEMENTS FACTOR INDULGING ELEMENT FIGHTING ELEMENT FLOW FREE BOUND WEIGHT LIGHT STRONG SPACE INDIRECT DIRECT TIME SUSTAINED SUDDEN OVERALL SUMMARY OF OBSERVATIONS INITIAL OBSERVATION • Low level of complexity of factor combinations - mostly restricted to two factors • Overall lack of attention to Weight factor resulting in lack of intention and presence in movement • General lack of attention to Time factor resulting in a lack of assertiveness and definition of movement FINAL OBSERVATION • Increase of complexity of factor combinations - two factors and more • Increase in attention to Weight factor resulting in a development of intention and presence in movement and body awareness • Increased qualitative attention to individual factors developing and applying both elements Evaluation of the training In terms of readiness to work with this specific client group, the four dance artists and two support team workers who attended the training scored themselves 8/9 out of 10 following the training inputs as compared with 5/6 out of 10 beforehand. Belinda Sosinowicz Tudor s training input was very thorough and experienced unanimously as reassuring. Two of the core messages that helped the team were people are just people and you re not there to cure them . The dance directors appreciated the focus on language, for example, using, you may , rather than you will . They were appreciative of the wisdom being shared such as that it is impossible to second guess what people s triggers might be; that it was a matter of being authentic and having empathy and not working with conditions . The team also took on board practicalities such as that participants might need more toilet breaks and more water than other groups because of the effects of medication. The Bi-Polar UK training was also very well received. The team found it particularly helpful to meet their two volunteers who had direct experience of this condition. The team appreciated Dr Tamara Russell s input, particularly comparing and contrasting mindful movement practice with contemporary dance, such as how the following elements are experienced in each discipline: pausing, taking notice, bringing awareness back to your breath, being grounded and having an ability to be still before you begin and setting your intention . The dance directors put into practice her advice to put your head into your feet in the choreographic lab. Some members of the team reported that the training had unsettled them and raised their anxiety levels about what to expect. This varied according to people s professional experience, for example, one member of the team had previously worked in HMP Holloway with women experiencing mental health issues, another had a background as a dance movement psychotherapist and both these practitioners were less anxious. Testimony from NHS Referral Partners Ann Bessell" # I'm a bit of a hippy and had really enjoyed the taster day (staff training) and found that it had lifted my spirits in a very difficult to describe way and I thought it was worth trying to persuade a few of my clients to attend. My client is no hippy but she enjoys dance and she didn't reject the idea out of hand. She was a slightly sceptical and somewhat reticent about being the "centre of attention", but she agreed that it would get her out of the house in the dark days leading up to Christmas and might help shed a few of the pounds that the medicine had helped put on. # # She was slightly mistrustful of the project. She has faced a lot of stigma and negative experiences in her life, not least being ill and being a user of mental health services and this has taken its toll, although she covers it up well. We have successfully "treated" the illness there was something that we couldn't help her get back which the illness had taken some ability to take risks, some self-worth, some idea about her place in the world, belief in others and in herself and her own abilities. This seemed to be holding her back from taking the next step back into work/education. It was incredibly moving to see her in the Dance United performance, not a shred of self-consciousness, expressing herself without fear, trusting in others and being trusted by them, both in the group work and in her solo. I had to blink a few times to believe it was her. I can't believe that there is anything that she couldn't do now.# # There are so many other clients to whom I would like to offer this project, so many people with whom we are "stuck" that we don't quite know what will help them take that next step towards recovery. Too often I feel we go down the more coercive routes when this happens, rather than seeing if projects like Dance United could make a difference. I feel sure that with my client or the other participants as ambassadors, they could persuade their harder-to-engage peers much more effectively than the workers to give it a go. I really hope that the success of this project will be built on. It is so hard to put the changes into words and of course we don't know yet what long-term difference this will make to her or the others. However, I do know that if we are truly to operate a bio-psycho-social model and deal with people holistically, we must offer projects like Dance United .# # Dipti Patel, STEP Team Manager, Southwark Team for Early Psychosis I would like to say that on behalf of STEP, that we really valued being able to offer our service users another type of "intervention", particularly one based on psychosocial principles. The project seemed to engage people in an very innovative way and managed to offer a balance of providing clear boundaries but allowing flexibility based on individuals' needs around their mental health. The very fact that it was not an explicit mental health project but a dance project for young people, but with the knowledge that they all had something in common was appealing to both workers and service users. I was impressed with how the young people managed to maintain commitment and work so cooperatively and creatively together. It sounds like a very supportive environment was engendered by all the dancers (DU staff & participants). It would be great to be able to offer our service users more of these opportunities, - I think the benefits are multiple, both intra-personally (improved self- esteem & self-worth, confidence building, sense of achievement), interpersonally (team-work, communication, co-operation, being supportive to others) and in terms of skill building, for example to be able to engage in other activities/projects/vocational opportunities w.r.t commitment, timekeeping, reliability. These are just a few of my thoughts but I am sure there are many more gains as identified by the service users themselves.# We did have one service user who seemed to have a little bit of a tricky time following the end of the project. It might have been coincidence but it did make me wonder about how the service users felt about the project coming to an end and how to cope with this. They had after all been immersed in the project for a intensive period and clearly seemed to have fun, value and benefit from it but to then be left with a void. If possible, I think it would be useful to have some options for follow on from any such projects in the future (dance related or otherwise). One suggestion could be that perhaps each participant has 1 to 1 time with their keyworker and someone from DU to plan next steps or future goals, basically so that they have something to look forward to and aim for and to maintain the momentum of well-being and recovery orientated activity.”# Grace Parkyn, Care Coordinator (CPN), STEP Team" South London and Maudsley NHS Foundation Trust “I have just returned from two months leave and been to see SG (a participant). My gosh I cannot tell you how proud I am of him for completing the project with Dance United - it was almost like being in a room with a different person- his mood is better, his symptoms are better, he is going out, his self esteem is improved, he was reflective and thoughtful about the last year, he is spending time with his family again and has a great routine to his day, AND.. his diabetes is under the best control it has been for a long time. He is so proud of himself and showed me all his certificates and feedback from Dance United. I wanted to thank you for all the support you guys have shown him and to congratulate you on such an amazing project.” Recommendations Next Steps: to put together a medium size randomised control trial (RCT) to measure longer-term impact of an intervention modelled on professional contemporary dance training and performance on well-being. The trial would: (a) seek to replicate what has already been done, (b) look to develop an approach to maintaining and building on the benefit achieved, (c) look at the cost benefit of the new approach, (d) undertake comparative analysis with current state of the art and (e) look at a design for a service model. Post-intervention: to increase post-project support in order to help patients maintain motivational energy and focus achieved during the intensive intervention by: 1) each participant having one-to-one time with their key-worker and a Dance United worker to plan next steps/future goals and 2) to establish the weekly dance provision as soon as possible following the project. The training: to add a group supervision session immediately following the training inputs to ensure that the knowledge of what could happen is grounded and fears and anxieties around the client group can be voiced and put into perspective. # Recommendations for Future Evaluation Measuring Change: It would be important to examine how persistent any changes are and whether participants scores returned to their norm after an interval of time. It would be interesting to explore whether there are any gender differences in response to the intervention or any noticeable within cohort differences, say between age groups of participants; would the 18-24 years cohort gain more from the programme than the 25-35 group? Evaluation Tools: it would also be interesting to add in other measures such as the GHQ (General Health Questionnaire) which is recognised by government re the analysis of cost benefit, EQ-5D and symptom scores. A systematic discussion with the participants clinical worker would add immense value, for example, a semi-structured interview coupled with contextual analysis. Many people with Bipolar disorder (and other mental illnesses for that matter) keep mood diaries and may use mood scales as part of their diaries. It would be interesting and potentially very useful to gain access to these diaries and to look at how mood, mindset, daily life and so on change outside of the Dance United project. These diaries capture rich information indeed but they are extremely personal and are used confidentially with therapists but one option would be to create a bespoke mood diary that stood outside this framework. Amazing! What an immense amount of co-operation, trust and sensitivity. The dancers should be very proud of their achievements. # Dipti Patel, Team Leader, STEP Team, SLaM# Wonderful performance – a fantastic way to improve self and enhance recovery. I would certainly recommend that the trusts and commissioners support and fund more similar projects as an on-going service. Dr. Raj Johannsen-Chapman, SLaM Impressed by the teamwork and amount of effort put into the performance. The performance was extremely professional and was a fantastic achievement for all those involved. Ravi Kaur, Project Oracle Really impressive accomplishment, showing confidence, trust and enjoyment. Dr. David Blazey, Head of Social Inclusion and Recovery Projects, SLaM Loved the focus and concentration and teamwork. Felt very moved when watching an amazing experience. Dr. Tamara Russell, Institute of Psychiatry, Kings College London It's making me feel more comfortable with just being out of the house and amongst people and around people and going on the train on public transport… I am feeling my anxieties are getting lower and lower. Seabreeze participant
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