Schizophrenia Bulletin vol. 42 no. 3 pp. 531–533, 2016 doi:10.1093/schbul/sbt119 Advance Access publication August 19, 2013 FIRST PERSON ACCOUNT Schizophrenia, Maslow’s Hierarchy, and Compassion-Focused Therapy Mark Ellerby I have experienced psychosis for 20 years. The main symptoms are voices and delusions that interact and reinforce each other. I have written a lot about my illness over the years in a series of autobiograhical books called “The Stages of Schizophrenia” (Chipmunka publishing 2007). I have had numerous medications including risperidone and clozapine as well as 2 years of cognitive behavioral therapy. In 2005 I relapsed, and having tried many things already, it was decided by my community psychiatric nurse to refer me to a psychologist at my local (mental) hospital. I have been having compassion-focused therapy (CFT). I began to understand the process in terms of how we might use compassion within the various parts of the mental health system to help the self-growth of patients on Maslow’s model of the hierarchy of need. This has been a lengthy and ongoing process as I shall now describe. We know from Maslow’s hierarchy of needs that safety needs must be met before emotional needs and emotional needs before self-esteem and esteem before self-actualization. From Gilbert’s CFT model (Paul Gilbert Compassion Focused Therapy, Routledge 2010), we know that threat interferes with our problem solving, insight, personality, and emotions. The reason it does this is because the brain needs to provoke a physical response to defend or protect itself—the fight-flight response, submission, etc. What has all this got to do with schizophrenia? The 2 main symptoms of my schizophrenia are hearing critical voices and having paranoid delusions. This illness attacks self-development on the Maslow tree in 5 key ways. It seems that CFT can help with climbing the Maslow tiers as follows: TIER 1: Help may be needed to support basic needs like cooking, keeping clean, and other household tasks. Giving and receiving practical support are inherently related to our care-giving mentality. CFT focuses on the level of arousal by training breathing exercises, safe place imagery, and compassionate image work. These are often taught at day centers, in the form of relaxation classes, but as we shall see compassion is rarely involved. TIER 2: Sheltered Accommodation is just that ie sheltered and can contribute to the safety needs of service users. Hospital wards can hinder recovery because the patients in and nurses are not sharing compassionate conversation and are left to watch the television. They do not always feel safe-like places. TIER 3: Compassion allows connectivity and empathy toward other people and should be useful for generating progress on the relational level. It plays a foundational role in friendship and loving relationships and families and is also a warm, pleasurable feeling created by our soothing system. •• This may need an institutional context, like day centers, to be facilitated because people with schizophrenia can be stigmatized and socially isolated. Day centers are places where people can talk to each other and develop compassion through witnessing each others suffering. From here, friendships and relationships can develop strengthening the emotional level of the tree still further. Compassion may give patients the emotional strength to support work and independent living outside the mental health system, which is the ultimate aim of such places. •• The key to understanding this could be seen as providing more of a “family/affiliative” atmosphere on inpatient wards. Less emphasis on the medical model may be helpful. Instead of patients getting drugged on tablets, active and interactive means of recovery may be understood to be possible. Compassionate training on the part of nurses and keeping the patients would overcome the threat system. •• Schizophrenia often impairs our motivation to look after ourselves, and our physiology is dominated by anxiety (Maslow’s first tier of physiological needs). •• Paranoid delusions are frightening and make us feel unsafe in the world (Maslow’s second tier of safety). •• Delusions make it difficult to trust people (third tier of belonging). •• Hearing critical voices attacks our self-esteem (Maslow’s fourth tier of self worth). •• It is difficult to put energy into creativity when attention is pulled to threats (Maslow’s fifth tier of achieving potential). © The Author 2013. Published by Oxford University Press on behalf of the Maryland Psychiatric Research Center. All rights reserved. For permissions, please email: [email protected] 531 M. Ellerby •• Maintaining close family support (particularly with compassionate relatives) is a way of building emotional strength against voices and delusions and also helps develop the emotional tier of the Maslow tree in profound ways. If family contact is restricted by wards, this is going to be more difficult. At the extreme, some patients may be cut off from families and friends because they form the focus of their paranoia on childhood trauma or being a dysfunctional family. I think, there may well be a myriad of other factors in family life that might also be relevant. In my case, any differences in my family were put aside, however, and the need for love and care took over instead. TIER 4: Compassion helps esteem needs by reducing our self-critic. Compassion helps relationships by reducing our fears of what others think of us. Using the compassion in soothing the fear caused by the paranoid delusions opens up different possibilities for action and reflection. Dealing with the self-critical voices removes a barrier to esteem and opens up the possibility of reaching potential at the self-actualization level. Gilbert states, it is easier to give compassion to others than oneself, so as we give it to others on the emotional tier of the pyramid, we can only then get it back from them and so progress to the fourth tier of the pyramid by then going to give this compassion to ourselves. This was demonstrated to me in the CFT group I attended: we had to look in the eyes of another person in the group and respond compassionately to their suffering. They then did the same to me, and finally after this, it was possible to give it to ourselves. Without giving compassion to ourselves, as provided by CFT, the therapeutic aims and value of day centers are going to be very limited and the crucial step from the third to the fourth tier would be very difficult. Let us also now explore my story in more detail as an example of some ways in which CFT and Maslow can help with schizophrenia on my own journey from onset to recovery and then go on to look at some other implications of this. My Story Crucially CFT should, in my experience, take place within an institutional context, stage by stage. By outlining this, we can see that CFT is going to be invaluable to the mental health system as a whole including some governmental policy making like providing housing, tackling stigma, and finding employment. Homelessness is sometimes the trigger for or is a result of a mental illness. Maslow’s basic needs include shelter and safety, so we find that Sheltered Accommodation can be the answer. There are staff there who can prompt us to take meals, keeping on top of housekeeping and help keep us functional. Without this there may be some self-neglect and inability to feed or otherwise look after 532 ourselves. As the benefits system recognizes, people may need prompting to look after our basic needs and that takes someone on hand to help, like a mental health project worker. Early in my illness, I thought that the neighbors were spying on me, so I went off into unpopulated areas to get away from them. I wandered around the countryside at night, even through rain and blizzards. It was only after I moved into sheltered accommodation that I began to be more aware of the fear and safety needs once my basic needs were being cared for. At this point, I didn’t dare go out of my room even as my paranoia made me afraid of everyone. I was able to talk about my fears to project workers and staff, and this helped keep me calm sometimes. They became people I could trust and so they were able to reassure me and so with help with overcoming the second safety tier of safety needs in Maslow’s pyramid. Sheltered accommodation is just that. Living in a project is sheltered from the big bad world, and it provides a 24/7 environment within which safety needs and emotional support can be given to help self-growth of people with a mental illness. I feel, compassion too would have helped with and enhanced the stated aim of “emotional support” in such places. Furthermore, I think compassion can help cope with the fear and self-blame caused by stigma. Society blames patients for their own illness so that cracking up under pressure is equated with not having the strength to prevent being driven mad. This is true for schizophrenia and depression, both of which are stress induced. We can add to our sense of self-esteem by having compassionate understanding for our situation rather than blaming ourselves for it. So sheltered accommodation was a stepping stone to the third tier of Maslow’s pyramid, which was then further reinforced by day centers. Here, I met new friends who accepted me. My attention shifted to pleasure and was increased through meeting new friends and enjoying the courses on offer. Whilst having cognitive behavioral therapy, a support worker was put in place to go out with me, and I was gradually exposed to the fear I had of going out. Other coping strategies were also put in place to help such as breathing, meditation, and ways of distracting myself with various forms of entertainment. None of this was as promising as reducing the fear through compassionate engagement. However, the CFT psychologist suggested that embodying courage and wisdom from the compassionate image work would help with my motivation to get out of my room. I noticed that sitting at home focusing attention on the voices was making things worse. That just leaves getting a job and the sense of purpose that can bring. I think this hits on the fourth tier of Maslow’s Hierarchy, that of self-esteem, which I think having a sense of purpose can contribute to. Some schizophrenics have been quite successful such as John Nash in the film A Beautiful Mind and in the US academic Elyn Saks. Employment is good within CFT Compassion-Focused Therapy too because it allows the possibility of mastering new skills progressively as we embark on the climbing the career structure and, perhaps, more so than just getting qualifications at day centers and the status and esteem attached to that. Kristen Neff found that self-esteem, Maslow’s fourth tier, depends a lot on our position in society and how far up we are in the social hierarchy. This is going to be particularly problematic for mental health patients because few of them have the opportunity to work. My psychologist noticed that when I talked about some of my books and issues I knew about, I became much less terrified and able to think more clearly. This motivated me to write again and set goals. However, it is a challenge for me not be define my worth by such activity. Sometimes I feel that writing is a way of atoning for sins. CFT is helping me feel worth for my own sake rather than be driven by fear. The voices contribute to the self-doubts on my ideas. Interestingly, developing compassion itself can be a source of self-esteem. It is very rewarding for me to develop sensitivity and care to other people. We may feel better about ourselves by developing a caring feeling toward others and begin to value the way we react to other as human beings. As far as the final tier of the pyramid goes, it is difficult to have the energy to be creative and even motivated to reach potential when one has a mental illness. My illness took me on a different life path whilst I was doing my PhD. Yet, it can also open up possibilities. I would not be writing this were it not for my illness, and I have adjusted to the changes. I am not unhappy. That just leaves the question as to whether there are any examples of Maslow’s self-actualizers who have schizophrenia? I believe this should be the overall goal of the mental health system and the goal of its patients. We should not give up hope of this just because we have schizophrenia and should strive to attain this. Compassion has a role to play at the apex of Maslow’s pyramid in being at ease with the world. What I have noticed is the following: •• When I eventually calm down, I return to a normal emotional state and go from threat to safeness … and vice versa when frightened. •• This seems to point to the fact that climbing the Maslow tree may be possible with schizophrenia. •• Compassionate support from services and family will help this journey. •• CFT has given me some hope. As I have explained the progression in experiential terms, I believe that compassion can help at every stage of this institutionalized process, but it needs to be more widely practiced in services. The problem here is the complexity of the therapy and the cost of the required psychological help? Yet, even this has a reply in that being on drugs and medicines is also expensive, so we need to do some balancing about the costs here. Some Implications So what is the importance about this story? I think there a few possibilities here: •• I understand that in CFT, it helps with traumas, relationship problems, and fears created by schizophrenia, which at least opening up certain possibilities of patient self-growth. •• CFT is a way of positively applying holistic approaches to schizophrenia where we try to enable all sorts of selfgrowth practices to help patients develop. Conclusions In my autobiographical writings entitled The Stages of Schizophrenia (Chipmunka Publishing 2007), I have narrated my story and experience of mental illness as going through a series of stages: from first symptoms of the illness and loss of home to the group environments of hospital ward and sheltered accommodation and finally to day center and their help with getting back into education and anonymously with my new found friends within the society. Looking back, I can now see that compassion could have greatly helped this process, and wish I had heard of it in decades gone by. This therapy makes sense to me and should be tried, in my view, much more widely. This is especially important given the treatment resistance of the illness to many medical and cognitive approaches to the illness. There is hope here not only for some cessation or reduction in the severity of the illness but also for the self-growth of the patient living within the mental health system. Acknowledgments I would like to thank Dr Angela Kennedy for her insight and expertise in helping develop this article and for being willing to discuss the theoretical and practical basis of the therapy with a patient. I am also indebted to Paul Gilbert’s handbook on CFT that has greatly enlightened me on how this therapy works in theory and practice. Furthermore, I would like to acknowledge all the help from my friends and family and mental health professionals for all the care I have receive and without whom this therapy would not have been so effective. 533
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